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Person Centered Primary Heath Care: The Role and Positionof the Family Physician-Generalist and Implications for Research 以人为本的初级卫生保健:家庭全科医生的角色和地位及其研究意义
Pub Date : 2016-04-26 DOI: 10.5750/IJPCM.V6I1.564
C. Weel
Aim. This paper analyses how the role and function of family physicians in primary health care relates to person centeredness. Method. Based on the model of the Ecology of Medical Care the interaction of individuals with health care has been deduced and from this were identified main implications for the provision of care. Results. Individuals experience a large variety of health problems over time, of which only a minority is presented to health care professionals, with care in the direct vicinity (community) the most likely place of contact. From this, common health problems and their prognosis, self-care and autonomy, reasons for contact, multi-morbidity and community related social determinants of health define the conditions to provide health care for all health problems in all individuals. Discussion and Conclusions. The variety of health problems presented over time for individual-specific expectations, make the person with the health problem the self-evident focus of care. The person-centered approach serves to relate the patient’s agenda to professional considerations of the nature and prognosis of the health problem identified and the risks and benefits of treatment. From this, the importance can be established of continuity of care, shared decision making, individual prognostication and ascertaining individual risks from community-specific determinants of health. Priorities of research are to come to a better understanding of the mechanisms of continuity of care and the building of professional relations of trust. Other priorities of research are to strengthen the knowledge base of diagnosis, prognostication and interventions of frequent health problems in the community.
的目标。本文分析了家庭医生在初级卫生保健中的角色和功能与以人为本的关系。方法。基于医疗保健生态模型,个人与医疗保健的相互作用已被推断出来,并从中确定了提供护理的主要影响。结果。随着时间的推移,个人会遇到各种各样的健康问题,其中只有少数人得到保健专业人员的诊治,而直接靠近(社区)的护理机构是最有可能的接触地点。由此,共同的健康问题及其预后、自我保健和自主、接触的原因、多发病和与社区有关的健康社会决定因素决定了为所有个人的所有健康问题提供保健的条件。讨论和结论。随着时间的推移出现的各种健康问题对个人的具体期望,使有健康问题的人成为不言而喻的关注焦点。以人为本的方法有助于将患者的议程与确定的健康问题的性质和预后以及治疗的风险和益处的专业考虑联系起来。由此可以确定护理的连续性、共同决策、个人预测和确定社区特定健康决定因素的个人风险的重要性。研究的优先事项是更好地了解护理的连续性机制和建立专业信任关系。研究的其他优先事项是加强对社区常见健康问题的诊断、预测和干预的知识基础。
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引用次数: 1
Person Centered Communication in Healthcare: A Matter of Reaching Out 医疗保健中以人为本的沟通:伸手的问题
Pub Date : 2016-04-26 DOI: 10.5750/IJPCM.V6I1.565
S. Dulmen
Treating patients as persons, by considering, a.o., their individual level of understanding, self-management skills, concerns and care preferences, is only logical, at least from an ethical point of view. Yet, in medical practice, such an approach does not come easy, as many other obligations and formalities have to be taken care of which distract attention from the person behind the patient. As a consequence, many patients continue to experience barriers while communicating with their healthcare provider [1]. For this reason, numerous interventions have been developed and implemented to either increase healthcare professionals’ attitudes and communication skills to really engage with a patient, or to strengthen a patient's communication skills in order to be heard and understood. For patients with malignant lymphoma, for example, a tailored online intervention has been developed to increase their participation [2], and medical students learn to listen by using open questions in soliciting patient problems [3]. The three papers that together form a special section on communication in healthcare in this issue of the IJPCM each describe a different study aimed to enhance a patient's personhood.
至少从伦理的角度来看,通过考虑患者的个人理解水平、自我管理技能、关注点和护理偏好,将患者视为人来对待是合乎逻辑的。然而,在医疗实践中,这样的方法并不容易,因为许多其他的义务和手续必须照顾,分散了对病人背后的人的注意力。因此,许多患者在与医疗保健提供者沟通时仍然遇到障碍[1]。出于这个原因,已经开发和实施了许多干预措施,以提高医疗保健专业人员的态度和沟通技巧,以便真正与患者接触,或者加强患者的沟通技巧,以便被倾听和理解。例如,对于恶性淋巴瘤患者,已经开发了定制的在线干预来增加他们的参与[2],医学生通过使用开放式问题来询问患者的问题来学习倾听[3]。这三篇论文共同构成了本期IJPCM关于医疗保健沟通的特别部分,每一篇都描述了旨在提高患者人格的不同研究。
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引用次数: 2
Training Medical Specialists in Communication about Medically Unexplained Physical Symptoms: Patient Outcomes from a Randomized Controlled Trial 培训医学专家就医学上无法解释的身体症状进行交流:一项随机对照试验的患者结果
Pub Date : 2016-04-26 DOI: 10.5750/IJPCM.V6I1.490
Anne Weiland, A. Blankenstein, J. V. Saase, H. Molen, David Kosak, R. Vernhout, L. Arends
Objectives : Medically unexplained physical symptoms (MUPS) burden patients in their well-being and functioning and have a prevalence of approximately 25-50% in primary and specialist care. Medical specialists often find patients with unexplained symptoms difficult to deal with, whereas patients are not always understood. We report effects on patient outcomes of an evidence-based MUPS-focused communication training for medical specialists. Methods: In a multi-center randomized controlled trial medical specialists and residents allocated to the intervention received a 14-hour MUPS-focused communication training. They practiced a patient-centered approach, including multi-factorial symptom exploration and explanation of MUPS with perpetuating factors. To study intervention effects, each doctor had to include three MUPS patients before and three after the intervention and to ask them to complete questionnaires at baseline and at 3 and 6 months follow-up. The questionnaires included illness worries (Whitely Index), symptom severity (Visual Analogue Scale), distress, depression, anxiety and somatization (4DSQ) and daily functioning (SF-36). Results: A sufficient number of 123 medical specialists and residents participated in the study. They included 478 MUPS patients. Out of them, 297 patients filled out questionnaires at baseline, 165 patients at 3-months follow-up and 71 patients at 6-months follow-up . Recruitment of patients was lower than expected and patients’ non-response to baseline and follow-up questionnaires was higher than estimated. No significant effects were found on patient outcomes. Conclusions: I t remains unclear whether medical specialist training results in better patient outcomes in MUPS as the trial was underpowered. New research with special attention to patient recruitment and retention is needed to answer this question.
目的:医学上无法解释的身体症状(MUPS)对患者的健康和功能造成负担,在初级和专科护理中患病率约为25-50%。医学专家经常发现难以解释的症状难以处理的病人,而病人并不总是被理解。我们报告了以医学专家为中心的循证mpps沟通培训对患者结果的影响。方法:在一项多中心随机对照试验中,被分配到干预组的医学专家和住院医生接受了14小时的以mpps为重点的沟通培训。他们实行以患者为中心的方法,包括多因素症状的探索和解释具有永久因素的MUPS。为了研究干预效果,每位医生必须在干预前和干预后分别纳入三名MUPS患者,并要求他们在基线和随访3个月和6个月时完成问卷调查。问卷内容包括疾病担忧(怀特利指数)、症状严重程度(视觉模拟量表)、痛苦、抑郁、焦虑和躯体化(4DSQ)和日常功能(SF-36)。结果:有足够数量的123名医学专家和住院医师参与了研究。他们包括478名MUPS患者。其中,297名患者在基线时填写了问卷,165名患者在3个月的随访中填写了问卷,71名患者在6个月的随访中填写了问卷。患者的招募低于预期,患者对基线和随访问卷的无反应高于估计。未发现对患者预后有显著影响。结论:目前尚不清楚医学专家培训是否能改善MUPS患者的预后,因为该试验的效力不足。需要新的研究,特别关注患者的招募和保留来回答这个问题。
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引用次数: 4
Providing Patient Centered Care for Adolescents with Chronic Conditions 为患有慢性疾病的青少年提供以病人为中心的护理
Pub Date : 2016-04-26 DOI: 10.5750/IJPCM.V6I1.560
Nabeel Al-Yateem
Background : It is well acknowledged that clear, structured healthcare services that are mutually developed between the patient and the healthcare professionals are likely to be of high quality, desirable, and effective. Such service should address the complexity of the illness-health experience in terms of the factors that influence it as well as the physical and psychosocial consequences on the patient. The required focus should be on treating the patient rather than just treating the disease. Objectives : To develop relevant and feasible care guidelines that may inform more competent and patient centered services for adolescents and young adults with chronic conditions. Methodology : A sequential exploratory mixed method design guided this study. The first qualitative phase employed in-depth interviews to explore the experiences of adolescents and young adults about the health services they were receiving. This was followed by focus group interviews with healthcare professionals to discuss the patients’ reported needs and to suggest interventions that would address them. Finally, a second quantitative phase was carried out through a survey to explore the views of a larger sample of service stakeholders about the relevance and feasibility of the suggested guidelines for clinical practice. Results : The in-depth interviews revealed four main themes, as follows: a current amorphous service, sharing knowledge, the need to be at the center of service, and easing the transition process to adulthood. The second study phase yielded 32 proposed guidelines that may contribute to more competent and patient centered health care.
背景:众所周知,在患者和医疗保健专业人员之间共同开发的清晰,结构化的医疗保健服务可能是高质量,理想和有效的。这种服务应从影响疾病-保健经历的因素以及对病人的生理和心理后果方面处理疾病-保健经历的复杂性。必要的重点应该是治疗病人,而不仅仅是治疗疾病。目的:制定相关和可行的护理指南,为患有慢性疾病的青少年和年轻人提供更有能力和以患者为中心的服务。方法学:采用顺序探索性混合方法设计指导本研究。第一个定性阶段采用深入访谈的方式,探讨青少年和青壮年在接受保健服务方面的经验。随后,与医疗保健专业人员进行焦点小组访谈,讨论患者报告的需求,并提出解决这些需求的干预措施。最后,第二个定量阶段通过一项调查进行,以探索更大样本的服务利益相关者对临床实践建议指南的相关性和可行性的看法。结果:深度访谈揭示了四个主要主题:当前无定形的服务,分享知识,服务中心的需求,以及向成年过渡的过程。第二阶段的研究产生了32项建议的指导方针,可能有助于更有能力和以病人为中心的医疗保健。
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引用次数: 4
Person Centered Medicine: Core and Diversity 以人为本的医学:核心与多样性
Pub Date : 2015-12-31 DOI: 10.5750/IJPCM.V5I4.554
J. Mezzich, I. Salloum
In the conceptualization of Person Centered Medicine (PCM) one can recognize core concepts as well as diversity at multiple levels. The core concepts convey vision and depth. Diversity displays plurality, richness and scope. And both are intertwined and articulated through the unfolding process and journey that the construction of PCM represents. This paper briefly elaborates on these complementary perspectives of PCM. And ends introducing a set of papers that illustrate its core and diversity.
在以人为本的医学(PCM)的概念中,人们可以认识到核心概念以及多层次的多样性。核心概念传达了视觉和深度。多样性表现出多元性、丰富性和广度。两者在PCM的构建过程和旅程中相互交织和联系。本文简要阐述了PCM的这些互补观点。最后介绍了一组论文,说明了它的核心和多样性。
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引用次数: 1
Person-centered Yoga Therapeutic Approach for Adult Attention Deficit-Hyperactivity Disorder 以人为中心的瑜伽治疗成人注意缺陷多动障碍
Pub Date : 2015-12-31 DOI: 10.5750/IJPCM.V5I4.550
I. Salloum, J. Cichon
Background: ADHD affects 2.5% to 5% of the adult population, is often under-diagnosed and poorly managed with few treatment options. Limited pharmacotherapeutic options are available, and many patients and clinicians are reluctant to use them for fear of side effects or concerns about substance abuse liability. Very limited psychotherapeutic options are available for ADHD. Cognitive behavioral group therapy (CBTg) is the only approach with some preliminary promising results, however there is no individual CBT option for this population. Objectives: There is a growing popularity of yoga as a therapeutic technique in psychiatric disorders and it may offer distinct advantages for adult ADHD. The objectives of this paper is to discuss the benefit of yoga as a person-centered individualized intervention for adults with ADHD. Methods: We discuss the therapeutic utility of a more encompassing and systematic application of yoga practices, including their physical and philosophical, meditative and spiritual aspects to address the symptoms of ADHD and to enhance wellness through lifelong growth and skill building yoga for adults with ADHD. We also present a systematic comparison between yoga practices and the standard CBTg therapy to demonstrate that the proposed yoga intervention is able to address ADHD symptoms areas targeted by CBTg. Results: Intervention based on a systematic application of yoga practices may offer targeted interventions to match ADHD patients’ symptoms and needs and compares positively with CBTg. Furthermore, yoga therapy may be superior to CBTg in terms of convenience, person-centeredness and individualized care. Conclusions: Yoga may offer a valuable option to meet patients’ needs by integrating both physical and philosophical aspects to dynamically targeting specific areas of emotional, behavioral and cognitive dysfunctions as well as the hyperactivity symptoms.
背景:ADHD影响了成人人口的2.5%至5%,通常诊断不足,管理不善,治疗方案很少。有限的药物治疗选择是可用的,许多患者和临床医生不愿意使用它们,因为害怕副作用或担心药物滥用的责任。针对多动症的心理治疗选择非常有限。认知行为团体治疗(CBTg)是唯一一种初步有希望的治疗方法,但是对于这一人群没有单独的CBT选择。目的:瑜伽作为一种治疗精神疾病的技术越来越受欢迎,它可能为成人多动症提供明显的优势。本文的目的是讨论瑜伽作为一种以人为中心的个性化干预成人多动症的好处。方法:我们讨论了一个更全面和系统的应用瑜伽练习的治疗效用,包括他们的身体和哲学,冥想和精神方面的问题,以解决多动症的症状,并通过终身成长和技能培养瑜伽对多动症成人的健康。我们还提出了瑜伽练习和标准CBTg治疗之间的系统比较,以证明所提出的瑜伽干预能够解决CBTg针对的ADHD症状区域。结果:基于系统应用瑜伽练习的干预可以提供有针对性的干预,以匹配ADHD患者的症状和需求,并与CBTg进行积极比较。此外,瑜伽疗法在便捷性、以人为本和个性化护理方面可能优于CBTg。结论:瑜伽可能提供了一个有价值的选择,通过整合身体和哲学方面,动态地针对特定领域的情绪、行为和认知功能障碍以及多动症状,来满足患者的需求。
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引用次数: 1
A Postmodern View of Evidence-based Medicine (EBM): Barthes. Heidegger, Deleuze and Guattari, and Derrida. 后现代循证医学(EBM):巴特。海德格尔,德勒兹,瓜塔里,还有德里达。
Pub Date : 2015-12-31 DOI: 10.5750/ijpcm.v5i4.531
Brian Walsh
The language of an EBM paper screams objectivity . The personal interests of the authors are skilfully expunged. These are men and women of science! Taken out altogether are the drivers of the project—desire, interest, professional advancement (surely not money). The EBM paper presents an image. My paper interrogates the objectivity of the subject-object distinction, arguing that it is based on the subject, from Descartes, “I think, therefore I am”. The subject-object distinction, fundamental to science / EBM, is not used by Martin Heidegger. He depicts people immersed in the environment, coping, they hope. Their world is a world that matters , a world of joy and sorrow. Absent is the contrived distinction between subject and object, yielding a detached, “objective” universe, set up for scientists to study and gain knowledge of. Deleuze and Guattari do not read an EBM paper to ascertain its meaning. Rather they analyse how meaning is set up. They would note how the conceptual structure and language created an experimental subject depicted in biomedical terms. They would note the use of fixed terms, fossilised, such as experimental subject , rather than as a continually evolving process. Derrida tells us that, although God and metaphysics have been pushed off the conceptual cliff in out scientific age, we still read with misty, metaphysical eyes. We read in the myth of truth, based on origins and centres, about the real universe. We read in the coherence of the paper, and the reliability of reason. We think that words have fixed meanings, and that all readers understand the same as all authors intend.
循证医学论文的语言是客观的。作者的个人兴趣被巧妙地抹去了。这些都是科学家!这些因素都是项目的驱动因素——欲望、兴趣、职业发展(当然不是金钱)。EBM论文给出了一个图像。我的论文质疑主客体区分的客观性,认为它是基于主体,从笛卡尔的“我思故我在”。作为科学/循证医学基础的主客体区分并没有被马丁·海德格尔使用。他描绘了沉浸在环境中的人们,他们满怀希望地应对。他们的世界是一个重要的世界,一个充满欢乐和悲伤的世界。主体和客体之间没有人为的区分,产生了一个超然的、“客观的”宇宙,供科学家研究和获取知识。德勒兹和瓜塔里不会为了确定其含义而阅读循证医学论文。而是分析意义是如何建立起来的。他们会注意到概念结构和语言是如何创造出一个用生物医学术语描述的实验对象的。他们会注意到使用固定的术语,化石,如实验对象,而不是作为一个不断发展的过程。德里达告诉我们,尽管上帝和形而上学在我们这个科学时代已经被推下了概念的悬崖,我们仍然用朦胧的、形而上学的眼睛阅读。我们在基于起源和中心的真理神话中读到真实的宇宙。我们读到的是文章的连贯性,以及推理的可靠性。我们认为单词有固定的含义,所有读者的理解都和所有作者的意图一样。
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引用次数: 1
A Year in the Life of a Person Recently Diagnosed with Atrial Fibrillation in Denmark 在丹麦,最近被诊断为房颤的人一年的生命
Pub Date : 2015-12-31 DOI: 10.5750/IJPCM.V5I4.533
Vibeke Høgh, E. Cummings, S. Riahi, S. Lundbye-Christensen
Healthcare services target delivery of a connected patient journey as an indicator of a high quality of care, but knowledge of the patients’ experience is sparse. This case study explores the lived experience of the quality of life and perception of health during the first year of the journey of a person recently diagnosed with atrial fibrillation. Data sources include field notes, transcripts, medical records, letters, and scores from standardized questionnaires. A phenomenologically inspired approach for qualitative data analysis and a descriptive approach for discovering exceptional changes in scores from questionnaires are used. The patient journey in the study consists of; 38 visits to general practice, five visits to the outpatient clinic, and two radio frequency ablations at hospital. Four central themes; balancing responsibilities, navigating the system, adjusting to the situation, and recognizing bodily reactions, are elaborated. In conclusion, hope for a better future is evident throughout the journey. Difficulties of balancing responsibility, conflicting information and lack of support and connection between general practice and the hospital result in putting the participant’s dignity at stake. Despite two ablations the participant is affected in his daily life and family life due to physical limitations. Along the study adjustment to the situation is seen, and his new status as grandfather is surprisingly seen to facilitate this adjustment.
医疗保健服务的目标是提供连接的患者旅程,作为高质量护理的指标,但对患者体验的了解很少。本案例研究探讨了生活质量的生活经验和健康的看法,在旅途的第一年,一个人最近被诊断为房颤。数据源包括现场记录、成绩单、医疗记录、信件和标准化问卷的分数。采用现象学启发的方法进行定性数据分析,并采用描述性方法发现问卷得分的异常变化。研究中的患者旅程包括;看了38次全科门诊,5次门诊,在医院做了两次射频消融。四个中心主题;平衡责任,导航系统,适应情况,并认识到身体的反应,详细阐述。总之,对更美好未来的希望贯穿整个旅程。平衡责任的困难、相互矛盾的信息以及在全科医生和医院之间缺乏支持和联系导致参与者的尊严受到威胁。尽管有两次消融,但由于身体限制,参与者的日常生活和家庭生活受到影响。在学习过程中,我们可以看到他对环境的调整,而他作为祖父的新身份令人惊讶地促进了这种调整。
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引用次数: 4
Nursing Profession’s Contribution to Person- and People-Centered Primary Health Care 护理专业对以人为本的初级卫生保健的贡献
Pub Date : 2015-12-31 DOI: 10.5750/IJPCM.V5I4.552
Yukiko Kusano, Erica Ehrhardt
Background: Equity and access to primary health care (PHC) services, particularly nursing services, are key to improving the health and well-being of all people. Nurses, as the largest group of healthcare professionals delivering services wherever people are, have a unique opportunity to put people at the centre of care, making services more effective, efficient and equitable. Objectives: To assess contributions of nurses to person and people-centered PHC. Methods: Analysis of nursing contributions under each of the four sets of the PHC reforms set by the World Health Organization. Results: Evidence and examples of nursing contributions are found in all of the four PHC reform areas. These include: expanding access; addressing problems through prevention; coordination and integration of care; and supporting the development of appropriate, effective and healthy public policies; and linking field-based innovations and policy development to inform evidence-based policy decision making. Conclusions: Nurses have significant contributions in each of the four PHC reform areas. The focus of nursing care on pe ople -centeredness, continuity of care, comprehensiveness and integration of services, which are fundamental to holistic care, is a n essential contribution of nurses to people - centered PHC . Nurses’ contributions can be optimised through p ositive practice environments, a ppropriate workforce planning and implementation and adequate education and quality control though strong regulatory principles and frameworks. P eople-cent e red approaches need to be considered both in health and non-health sectors as part of people-centered society. A strategic role of nurses as partners in services planning and decision-making is one of the key elements to achieve people - centered PHC.
背景:公平和获得初级卫生保健服务,特别是护理服务,是改善所有人健康和福祉的关键。护士作为向人们提供服务的最大保健专业人员群体,拥有独特的机会将人置于护理的中心,使服务更加有效、高效和公平。目的:评价护士对以人为本的初级保健的贡献。方法:分析世界卫生组织制定的四套初级保健改革方案下护理的贡献。结果:在所有四个初级保健改革领域都找到了护理贡献的证据和例子。这些措施包括:扩大准入;通过预防解决问题;协调和综合护理;支持制定适当、有效和健康的公共政策;将实地创新与政策制定联系起来,为基于证据的政策决策提供信息。结论:护士在四个初级保健改革领域都有重要贡献。护理注重以人为本、护理的连续性、服务的全面性和整体性,是全面护理的基础,是护士对以人为本的初级保健的重要贡献。通过积极的实践环境、适当的劳动力规划和实施以及通过强有力的监管原则和框架进行充分的教育和质量控制,可以优化护士的贡献。作为以人为本的社会的一部分,卫生部门和非卫生部门都需要考虑以人为本的办法。护士作为服务计划和决策的合作伙伴的战略作用是实现以人为本的初级保健的关键因素之一。
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引用次数: 1
LATIN AMERICAN CONFERENCE ON PERSON CENTERED MEDICINE 拉丁美洲以人为本的医学会议
Pub Date : 2015-12-31 DOI: 10.5750/IJPCM.V5I4.556
C. Woodhead
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引用次数: 0
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