Pub Date : 2022-11-01DOI: 10.33235/rsaj.18.3.88-100
Alyssa Cormick, Kelli Owen, Deborah Turnbull, Janet Kelly, K. ODonnell
Current healthcare systems often fail to recognise and address the healthcare needs of First Nations People, resulting in unacceptable gaps in health outcomes. Biomedical frameworks used to examine chronic conditions, like chronic kidney disease (CKD), focus on ill health rather than on the strengths First Nations People use to be resilient and sovereign. Healthcare systems, staff and researchers need to collaborate with First Nations People to understand and value lived experiences to best address health and wellbeing needs. This research was carried out within Aboriginal Kidney care together: improving outcomes now (AKction). Using decolonised methods and a participatory action approach, research yarning and thematic analysis were collaboratively conducted to map the health journey of an Aboriginal woman with lived experience of kidney disease. The woman utilised a range of strengthening factors to maintain resilience during her kidney health journey, including Ngolun/connections (to land, language, culture, spirit and ancestors; family;
{"title":"Renal healthcare: Voicing recommendations from the journey of an Aboriginal woman with chronic kidney disease","authors":"Alyssa Cormick, Kelli Owen, Deborah Turnbull, Janet Kelly, K. ODonnell","doi":"10.33235/rsaj.18.3.88-100","DOIUrl":"https://doi.org/10.33235/rsaj.18.3.88-100","url":null,"abstract":"Current healthcare systems often fail to recognise and address the healthcare needs of First Nations People, resulting in unacceptable gaps in health outcomes. Biomedical frameworks used to examine chronic conditions, like chronic kidney disease (CKD), focus on ill health rather than on the strengths First Nations People use to be resilient and sovereign. Healthcare systems, staff and researchers need to collaborate with First Nations People to understand and value lived experiences to best address health and wellbeing needs. This research was carried out within Aboriginal Kidney care together: improving outcomes now (AKction). Using decolonised methods and a participatory action approach, research yarning and thematic analysis were collaboratively conducted to map the health journey of an Aboriginal woman with lived experience of kidney disease. The woman utilised a range of strengthening factors to maintain resilience during her kidney health journey, including Ngolun/connections (to land, language, culture, spirit and ancestors; family;","PeriodicalId":42629,"journal":{"name":"Renal Society of Australasia Journal","volume":" ","pages":""},"PeriodicalIF":0.2,"publicationDate":"2022-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47163373","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-11-01DOI: 10.33235/rsaj.18.3.73-75
S. Muthuramalingam
In September 2016, the National Health and Medical Research Council (NHMRC) and the Consumer Health Forum of Australia released a Statement on consumer and community involvement in health and medical research. The purpose of the document is to guide research institutions, researchers, consumers and community members in the active involvement of consumers and community members in all aspects of health and medical research. They define ‘consumers’ as patients, potential patients, carers and people who use healthcare services. This significant document by the NHMRC recognises that involving consumers and community members adds value to health and medical research, and that they have a right and responsibility to do so.
{"title":"Moving beyond tokenism: Past, present and the future of consumer engagement in kidney disease research","authors":"S. Muthuramalingam","doi":"10.33235/rsaj.18.3.73-75","DOIUrl":"https://doi.org/10.33235/rsaj.18.3.73-75","url":null,"abstract":"In September 2016, the National Health and Medical Research Council (NHMRC) and the Consumer Health Forum of Australia released a Statement on consumer and community involvement in health and medical research. The purpose of the document is to guide research institutions, researchers, consumers and community members in the active involvement of consumers and community members in all aspects of health and medical research. They define ‘consumers’ as patients, potential patients, carers and people who use healthcare services. This significant document by the NHMRC recognises that involving consumers and community members adds value to health and medical research, and that they have a right and responsibility to do so.","PeriodicalId":42629,"journal":{"name":"Renal Society of Australasia Journal","volume":" ","pages":""},"PeriodicalIF":0.2,"publicationDate":"2022-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42697280","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-11-01DOI: 10.33235/rsaj.18.3.76-87
A. Henson, S. Holman, Jeanette Kempe, Patrice Latcham, Carmen Crawshaw
{"title":"Isolated ultrafiltration (Iso Uf) practices in haemodialysis units across Queensland:\u0000A prospective survey of nursing clinical practice","authors":"A. Henson, S. Holman, Jeanette Kempe, Patrice Latcham, Carmen Crawshaw","doi":"10.33235/rsaj.18.3.76-87","DOIUrl":"https://doi.org/10.33235/rsaj.18.3.76-87","url":null,"abstract":"","PeriodicalId":42629,"journal":{"name":"Renal Society of Australasia Journal","volume":" ","pages":""},"PeriodicalIF":0.2,"publicationDate":"2022-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47043669","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-07-01DOI: 10.33235/rsaj.18.2.57-61
J. Yaxley, Edward C. Meagher
{"title":"Then and now: Historical perspectives on 40 years of change in nephrology practice in Queensland","authors":"J. Yaxley, Edward C. Meagher","doi":"10.33235/rsaj.18.2.57-61","DOIUrl":"https://doi.org/10.33235/rsaj.18.2.57-61","url":null,"abstract":"","PeriodicalId":42629,"journal":{"name":"Renal Society of Australasia Journal","volume":" ","pages":""},"PeriodicalIF":0.2,"publicationDate":"2022-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48280720","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-07-01DOI: 10.33235/rsaj.18.2.51-56
B. Tarca, S. Jesudason, P. Bennett, Michelle Ovenden, Philippa Southwell, T. Wycherley, K. Ferrar
{"title":"Research involving people receiving peritoneal dialysis: Lessons learned","authors":"B. Tarca, S. Jesudason, P. Bennett, Michelle Ovenden, Philippa Southwell, T. Wycherley, K. Ferrar","doi":"10.33235/rsaj.18.2.51-56","DOIUrl":"https://doi.org/10.33235/rsaj.18.2.51-56","url":null,"abstract":"","PeriodicalId":42629,"journal":{"name":"Renal Society of Australasia Journal","volume":" ","pages":""},"PeriodicalIF":0.2,"publicationDate":"2022-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43624227","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-07-01DOI: 10.33235/rsaj.18.2.39-41
S. Burford, P. Bennett
{"title":"Global Nephrology Nursing Perspectives","authors":"S. Burford, P. Bennett","doi":"10.33235/rsaj.18.2.39-41","DOIUrl":"https://doi.org/10.33235/rsaj.18.2.39-41","url":null,"abstract":"","PeriodicalId":42629,"journal":{"name":"Renal Society of Australasia Journal","volume":" ","pages":""},"PeriodicalIF":0.2,"publicationDate":"2022-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48052908","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-07-01DOI: 10.33235/rsaj.18.2.44-50
Alice Kennard, N. Glasgow, S. Rainsford, G. Talaulikar
{"title":"Frailty in advanced chronic kidney disease: Perceptions and practices among treating clinicians","authors":"Alice Kennard, N. Glasgow, S. Rainsford, G. Talaulikar","doi":"10.33235/rsaj.18.2.44-50","DOIUrl":"https://doi.org/10.33235/rsaj.18.2.44-50","url":null,"abstract":"","PeriodicalId":42629,"journal":{"name":"Renal Society of Australasia Journal","volume":" ","pages":""},"PeriodicalIF":0.2,"publicationDate":"2022-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"45049850","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-07-01DOI: 10.33235/rsaj.18.2.62-67
Zhengxiu Xie, K. Z. Zhang, H. Thein, M. Kataoka, R. McLean
{"title":"“We are Asian people, you know”: Perspectives and experiences of New Zealand Asian in-centre haemodialysis patients","authors":"Zhengxiu Xie, K. Z. Zhang, H. Thein, M. Kataoka, R. McLean","doi":"10.33235/rsaj.18.2.62-67","DOIUrl":"https://doi.org/10.33235/rsaj.18.2.62-67","url":null,"abstract":"","PeriodicalId":42629,"journal":{"name":"Renal Society of Australasia Journal","volume":" ","pages":""},"PeriodicalIF":0.2,"publicationDate":"2022-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46023228","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
R. Teo, Derlinder Kaur, Douglas Ong, T. Singh, Behram Ali Khan
Background Low levels of physical activity in patients with chronic kidney disease have long been shown to impact adversely on functional status and quality of life. Numerous studies have demonstrated the benefits of exercise in patients on haemodialysis. However, implementation of exercise programs as routine practice remains lacking, likely due to the variability of methodology across published studies as well as limitations at dialysis facilities. Objectives We share our experience in providing exercise therapy that is prioritised as routine patient care in a community dialysis setting; interventions are individualised to each patient’s functional ability based on thorough and regular assessment. Approach Exercise therapy is structured whereby patients’ functional status and abilities are evaluated in detail prior to placement into exercise programs and at regular progress intervals. Each exercise program, facilitated by exercise specialists, is tailored to the patients’ functional capability and health status using exercises that are modifiable to their needs. Group exercises also provide an avenue of social interaction and support for patients. Conclusion Exercise therapy is advocated strongly to improve function and quality of life in patients on dialysis. Through implementation of a range of multifaceted and individualised exercise programs, we address both their functional and psychosocial needs. Our unique holistic approach aims to facilitate patient adherence in a sustainable manner
{"title":"Implementation of exercise therapy in kidney failure","authors":"R. Teo, Derlinder Kaur, Douglas Ong, T. Singh, Behram Ali Khan","doi":"10.33235/rsaj.18.1.9-14","DOIUrl":"https://doi.org/10.33235/rsaj.18.1.9-14","url":null,"abstract":"Background Low levels of physical activity in patients with chronic kidney disease have long been shown to impact adversely on functional status and quality of life. Numerous studies have demonstrated the benefits of exercise in patients on haemodialysis. However, implementation of exercise programs as routine practice remains lacking, likely due to the variability of methodology across published studies as well as limitations at dialysis facilities. Objectives We share our experience in providing exercise therapy that is prioritised as routine patient care in a community dialysis setting; interventions are individualised to each patient’s functional ability based on thorough and regular assessment. Approach Exercise therapy is structured whereby patients’ functional status and abilities are evaluated in detail prior to placement into exercise programs and at regular progress intervals. Each exercise program, facilitated by exercise specialists, is tailored to the patients’ functional capability and health status using exercises that are modifiable to their needs. Group exercises also provide an avenue of social interaction and support for patients. Conclusion Exercise therapy is advocated strongly to improve function and quality of life in patients on dialysis. Through implementation of a range of multifaceted and individualised exercise programs, we address both their functional and psychosocial needs. Our unique holistic approach aims to facilitate patient adherence in a sustainable manner","PeriodicalId":42629,"journal":{"name":"Renal Society of Australasia Journal","volume":" ","pages":""},"PeriodicalIF":0.2,"publicationDate":"2022-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41468391","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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