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Bereavement Care最新文献

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‘Doing the same puzzle over and over again’: a qualitative analysis of feeling stuck in grief. “一遍又一遍地做同样的谜题”:对陷入悲伤的感觉进行定性分析。
Q3 Nursing Pub Date : 2023-02-13 DOI: 10.54210/bj.2023.1095
Lucy Poxon
2022 has witnessed a crescendo of controversial debate in grief and bereavement research, surrounding the inclusion of Prolonged Grief Disorder (PGD) in the revised Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition (DSM-V-TR). Criticisms of the inclusion of PGD focus on the potential for diagnosis narrowing the range of healthy functioning and any treatment gains associated with a PGD diagnosis being outweighed by the risk of pathologising individual differences and diversity in human behaviour (Ben-Zeev, Young & Corrigan, 2010). This qualitative research approaches ‘stuckness’ in grief from a non-pathologising, inductive and curious position that embodies the core, humanistic values of Counselling Psychology (Cooper, 2009). Four participants who reported feeling stuck in grief were interviewed and the resultant transcripts were analysed using Interpretative Phenomenological Analysis (IPA). The four superordinate themes: (‘Eclipsed by the deceased’; ‘The power in powerlessness’; ‘The double-edged sword of coping behaviours’ and ‘Living in Purgatory’) reveal novel insights into the significance and consequences of living with unresolved dilemmas of grieving. Findings support a meaning reconstruction approach to grief therapy and highlight the negative implications of holding a pathologising, time-limited, stage-based conceptualisation of grief. Implications for practice include combining person-centred therapy with targeted cognitive-behavioral grief interventions.
2022年,围绕将延长悲伤障碍(PGD)纳入修订后的《精神疾病诊断与统计手册》第五版(DSM-V-TR),悲伤和丧亲研究中的争议性辩论达到高潮。对纳入PGD的批评集中在诊断可能缩小健康功能的范围和与PGD诊断相关的任何治疗收益被病理化个体差异和人类行为多样性的风险所抵消(Ben-Zeev, Young &;科里根,2010)。这种定性研究从一种非病态、归纳和好奇的立场来看待悲伤中的“停滞”,这体现了咨询心理学的核心人文价值(Cooper, 2009)。研究人员采访了4名被困在悲伤中的参与者,并使用解释现象学分析(IPA)对结果进行了分析。四个最高的主题:(“被死者遮蔽”;“无能为力中的力量”;“应对行为的双刃剑”和“生活在炼狱”)揭示了生活在未解决的悲伤困境中的意义和后果的新颖见解。研究结果支持悲伤治疗的意义重建方法,并强调了将悲伤概念化为病理性的、有时间限制的、基于阶段的消极影响。实践的意义包括将以人为本的治疗与有针对性的认知行为悲伤干预相结合。
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引用次数: 1
Bereavement care: A widower's use of stories and bibliotherapy 丧亲关怀:鳏夫对故事和读书疗法的运用
Q3 Nursing Pub Date : 2023-02-13 DOI: 10.54210/bj.2023.1089
T. Bowman
This essay is both personal and professional. I write as a grieving husband and a family and grief educator who uses literary resources (bibliotherapy) as prompts for grieving, coping, and perspective. In these pages, I will interweave my personal grief-writing process with literary resources utilized as a grief educator. My intent is two-fold: to illuminate how words, especially metaphors, have informed and helped me as a widower AND to shed light on bibliotherapy as a resource for grief and bereavement care. Grieving work as a professional is one thing; it is another when you are the griever. Hence, countertransference will also be addressed. Limited commentary, research or theory will be included in this practice-focused article so that readers can ponder use of bibliotherapeutic practices for bereavement care, especially for widows and widowers.
这篇文章既是个人的,也是专业的。我作为一个悲伤的丈夫,一个家庭和悲伤教育者来写作,我使用文学资源(阅读疗法)作为悲伤、应对和透视的提示。在这些页面中,我将把我个人的悲伤写作过程与作为悲伤教育者所利用的文学资源交织在一起。我的意图是双重的:阐明文字,尤其是隐喻,是如何告知和帮助我这个鳏夫的;阐明阅读疗法作为悲伤和丧亲之痛护理的一种资源。作为一名专业人士,悲伤是一回事;当你是悲伤的人时,这是另一回事。因此,反移情也将得到解决。有限的评论、研究或理论将包括在这篇以实践为重点的文章中,以便读者可以考虑使用文献治疗实践进行丧亲护理,特别是对寡妇和鳏夫。
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引用次数: 0
Sand tray interviews: 沙盘访谈:
Q3 Nursing Pub Date : 2022-11-17 DOI: 10.54210/bj.2022.21
Martin Lytje, Carol Holliday
This article presents the “sand tray interview” as a method developed to help researchers interview young children on sensitive topics. Earlier studies have often refrained from interviewing young children on sensitive matters due to their difficulties in such research. This article details how sand tray interviews can be a safe and engaging way for young children to explore painful topics, such as parental bereavement. Based on our application, we discuss the development of the method and debate the applications, strengths, and limitations.
这篇文章提出了“沙盘访谈”作为一种方法开发,以帮助研究人员采访儿童敏感的话题。早期的研究经常避免就敏感问题采访幼儿,因为这类研究存在困难。这篇文章详细介绍了沙盘访谈如何成为一种安全而吸引人的方式,让年幼的孩子探索痛苦的话题,比如父母丧亲之痛。基于我们的应用,我们讨论了该方法的发展,并讨论了其应用、优势和局限性。
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引用次数: 1
What Should Good Bereavement Support in Palliative Care Look Like?: Findings from workshop group discussions 在姑息治疗中,好的丧亲支持应该是什么样的?:工作坊小组讨论的结果
Q3 Nursing Pub Date : 2022-11-02 DOI: 10.54210/bj.2022.1078
H. Scott, S. Sivell, M. Longo, K. Seddon, J. Fitzgibbon, A. Nelson, A. Byrne, E. Harrop
Introduction: There is a lack of consistency in approaches to bereavement support provision and evaluation. This study identified outcomes for adult bereavement support in palliative care, involving a workshop with people from professional and lived experience backgrounds, providing a view on what support interventions should look like. Aims: The aims of the workshop were to gather stakeholder views on the purpose and impacts of bereavement support and what outcomes should be used in the design and evaluation of bereavement interventions and services.  Methods: Stakeholders were divided into three groups and asked to identify and discuss how support services should help bereaved service users and what good bereavement support looks like. Key themes were identified from the written and verbal content of the consensus day. Findings: Three main themes emerged from the data; informal support and self-management; the aims and purpose of formal bereavement service support and the timing, accessibility and quality of support. Conclusion: Workshop findings align with public health models of bereavement care and recent service standards, identifying core support functions and aspirations for bereavement services. Finding the best mechanisms and modalities for meeting these, in the context of the late/post-pandemic period, presents both challenges and opportunities.
导言:在提供丧亲支持和评估的方法上缺乏一致性。本研究确定了姑息治疗中成人丧亲支持的结果,包括一个由专业和生活经验背景的人组成的研讨会,提供了支持干预措施应该是什么样子的观点。目的:讲习班的目的是收集利益攸关方对丧亲支助的目的和影响的意见,以及在设计和评价丧亲干预措施和服务时应采用何种结果。方法:将利益相关者分为三组,并要求确定和讨论支持服务应如何帮助失去亲人的服务用户,以及良好的丧亲支持是什么样子的。从协商一致日的书面和口头内容中确定了关键主题。研究发现:数据中出现了三个主要主题;非正式支持和自我管理;正式丧亲服务支持的目标和目的以及支持的时间、可及性和质量。结论:讲习班的研究结果与丧亲护理的公共卫生模式和最近的服务标准相一致,确定了丧亲服务的核心支持功能和愿望。在大流行病后期/后时期,寻找满足这些需求的最佳机制和方式,既是挑战,也是机遇。
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引用次数: 0
We wept and we waited-but what can we learn from the week we mourned the Queen? 我们哭泣,我们等待,但我们能从哀悼女王的一周中学到什么呢?
Q3 Nursing Pub Date : 2022-10-12 DOI: 10.54210/bj.2022.1109
Harrop Emily, Pearce Caroline
Ple a s e no t e: Ch a n g e s m a d e a s a r e s ul t of p u blishing p roc e s s e s s uc h a s copy-e di ting, for m a t ting a n d p a g e n u m b e r s m ay no t b e r eflec t e d in t his ve r sion. For t h e d efini tive ve r sion of t his p u blica tion, ple a s e r ef e r to t h e p u blish e d sou rc e. You a r e a dvise d to cons ul t t h e p u blish e r’s ve r sion if you wish to ci t e t his p a p er.
lpe s和t和n g和s米处:Ch d e a s r和s ul p u blishing p roc t和s s和s阿联酋h a s copy-e号麦紫for m a t, g d p a和m b号和s m艾则b和r eflec t和d t裙子锡有r。锡For t h d efini有并of t裙子p u的整理,lpe a s和r和r t h和p u blish和d苏rc和You a r a dvise d e cons ul t h和p r blish和锡r’s有r if You wish to我们t和t裙子p p er。
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引用次数: 0
Engaging in perinatal loss in the Czech Republic: Keen community and haphazard institutionalisation 从事围产期损失在捷克共和国:热心社区和偶然制度化
Q3 Nursing Pub Date : 2022-08-18 DOI: 10.54210/bj.2022.1090
I. Šmídová
In the Czech Republic, community responsibility for care of the bereaved after pregnancy loss, and specifically perinatal loss, is a recent phenomenon. Using a sociological, qualitative, explorative framework, the paper analyses practices and contexts for establishing community care as emerging bottom-up initiatives. The research, funded by the Czech Science Foundation 2016– 2019, traces the significant change in the status quo of Czech practices of perinatal loss and associated bereavement care. Grassroots initiatives address these challenges rather than the public health system of the post-socialist past. The paper reflects risky or random as well as synergic effects of the changing environment in perinatal bereavement care provision.
在捷克共和国,社区负责照顾失去怀孕的人,特别是围产期失去怀孕的人,是最近出现的一种现象。本文采用社会学、定性和探索性的框架,分析了将社区护理作为新兴的自下而上的举措的实践和背景。该研究由捷克科学基金会(2016 - 2019)资助,追踪了捷克围产期损失和相关丧亲护理实践现状的重大变化。解决这些挑战的是基层倡议,而不是后社会主义时代的公共卫生系统。本文反映了风险或随机以及环境变化的协同效应在围产期丧亲护理提供。
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引用次数: 0
Why aren’t rural family caregivers receiving appropriate bereavement support in Australia? Practical considerations for palliative care settings 为什么澳大利亚的农村家庭照顾者得不到适当的丧亲支持?姑息治疗设置的实际考虑
Q3 Nursing Pub Date : 2022-05-23 DOI: 10.54210/bj.2022.1079
M. Hamiduzzaman, Kyle P O'Donohue, Arron Veltre
Bereavement support for families and carers in rural Australian settings often fails to meet well-established and longstanding guidelines in key areas, subsequently causing undue mental distress for many individuals and potentially leading to the development of prolonged grief disorder (PGD), a debilitating psychiatric disorder of intensified grief and additional physical health detriments. In this paper, we consider the literature surrounding rural bereavement care in Australia and identify factors that contribute to poorer bereavement care in these locations, including issues of lacking policy elements to guide bereavement support and deficiencies in training and staffing which create difficulties between competing healthcare priorities. We synthesise recommendations of several guidelines to propose an individualised, multi-disciplinary, and pathway-based approach to rural bereavement care, and finally suggest several key areas that can be targeted and improved to help improve rural bereavement care in Australia without creating significant strain on the already thin resources of rural healthcare settings.
在澳大利亚农村地区,对家庭和照料者的丧亲支持往往不符合关键领域的既定和长期指导方针,随后给许多人造成了过度的精神痛苦,并可能导致长期悲伤障碍(PGD)的发展,这是一种使人衰弱的精神障碍,加剧了悲伤和额外的身体健康损害。在本文中,我们考虑了有关澳大利亚农村丧亲护理的文献,并确定了导致这些地区丧亲护理较差的因素,包括缺乏指导丧亲支持的政策要素以及培训和人员配备方面的不足,这些问题在相互竞争的医疗保健优先事项之间造成了困难。我们综合了几项指导方针的建议,提出了一种个性化的、多学科的、基于途径的农村丧亲护理方法,最后提出了几个关键领域,可以有针对性地改进,以帮助改善澳大利亚农村丧亲护理,而不会对农村医疗保健环境本已薄弱的资源造成重大压力。
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引用次数: 0
Post-traumatic growth following the death of a parent: Does one auto-ethnographic account make a summer? 父母去世后的创伤后成长:一个自动人种学账户能构成一个夏天吗?
Q3 Nursing Pub Date : 2022-03-25 DOI: 10.54210/bj.2022.15
Komal Qasim, J. Carson
Parental death in adulthood is for many a life-changing event (Pearce & Komaromy, 2021). In recent years, the work of Tedeschi and Calhoun (2004), has focused on post-traumatic growth following trauma. Qasim and Carson, (2020), challenged the inevitability of post-traumatic growth following the trauma of bereavement. This paper considers the loss of her father by the first author, from the perspective of the Tedeschi and Calhoun Model. This looks for growth in five areas; relating to others, new possibilities, personal strength, spiritual change and appreciation of life. This auto-ethnographic account follows a rich tradition of other recent autobiographical accounts in the bereavement field (Mayer & Mayer, 2020; Coles, 2021; Moore, 2021).
对许多人来说,成年后父母去世是一个改变人生的事件(Pearce & Komaromy, 2021)。近年来,Tedeschi和Calhoun(2004)的研究重点是创伤后的创伤后成长。Qasim和Carson(2020)质疑丧亲之痛后创伤后成长的必然性。本文从Tedeschi和Calhoun模型的角度来考虑第一作者失去父亲的情况。它着眼于五个领域的增长;与他人联系,新的可能性,个人力量,精神变化和对生活的欣赏。这种自我民族志的叙述遵循了丧亲领域其他近期自传体叙述的丰富传统(Mayer & Mayer, 2020;科尔斯,2021;摩尔,2021)。
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引用次数: 1
Bereavement during the Covid-19 pandemic in the UK: What do we know so far? 英国Covid-19大流行期间的丧亲之痛:到目前为止我们知道什么?
Q3 Nursing Pub Date : 2022-01-13 DOI: 10.54210/bj.2022.18
Emily Harrop, Lucy E. Selman
The Covid-19 pandemic has been a devastating mass bereavement event, with measures to control the virus leading to unprecedented changes to end-of-life and mourning practices. In this review we consider the research evidence on the experiences of people bereaved during the pandemic. We summarise key findings reported in the first five publications from our UK-based Bereavement during COVID-19 study, drawing comparisons with available evidence from other studies of bereavement during the pandemic. We summarise these findings across three main topics: experiences at the end of life and in early bereavement; coping and informal support during the pandemic; and access to bereavement and mental health services. The synthesis demonstrates the exceptional challenges of pandemic bereavement, including high levels of disruption to end-of-life care, dying and mourning practices as well as to people’s social networks and usual coping mechanisms. We identified considerable needs for emotional, therapeutic and informal support among bereaved people, compounded by significant difficulties in receiving and accessing such support. We provide evidence-based recommendations for improving people’s experiences of bereavement and access to support at all levels.
2019冠状病毒病大流行是一场毁灭性的大规模丧亲事件,控制病毒的措施导致临终和哀悼习俗发生了前所未有的变化。在这篇综述中,我们考虑了关于大流行期间失去亲人的人的经历的研究证据。我们总结了我们在英国开展的COVID-19期间丧亲研究的前五篇出版物中报告的主要发现,并将其与其他大流行期间丧亲研究的现有证据进行了比较。我们将这些发现总结为三个主要主题:生命结束和早期丧亲的经历;大流行期间的应对和非正式支持;以及获得丧亲之痛和心理健康服务的机会。该综合报告显示了流行病丧亲带来的特殊挑战,包括对临终关怀、死亡和哀悼做法以及人们的社会网络和通常应对机制的高度破坏。我们发现,丧失亲人的人在情感、治疗和非正式支持方面有相当大的需求,而在接受和获得这种支持方面又有很大的困难。我们提供基于证据的建议,以改善人们的丧亲经历和获得各级支持的机会。
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引用次数: 4
Do we need to decolonise bereavement studies? 我们需要将丧亲研究非殖民化吗?
Q3 Nursing Pub Date : 2022-01-13 DOI: 10.54210/bj.2022.20
S. Hamilton, B. Golding, Jane Ribbens McCarthy
At this re-launch of the journal Bereavement, we explore the question, ‘Do we need to decolonise bereavement studies?’ We do not offer definitive answers, but rather seek to open up conversations. We briefly explore some of the main debates and explanations of what ‘decolonising’ means. In its broader understandings, this entails questions about the nature of the knowledge that underpins claims to ‘expertise’, since knowledge inevitably reflects the socio-historic position and biography of those who produce it. This raises uncomfortable issues about the ‘universality’ of that knowledge, and how to understand what is shared between human beings, including how to understand experiences of pain and suffering. In addressing the nature of, ‘bereavement studies’, we first consider complexities of language and translation, before observing the heavy domination of the ‘psy’ disciplines in affluent minority worlds, oriented towards individualised, medicalised and interventionist perspectives. We indicate work that seeks to challenge these limitations, including the decolonising of psychiatry itself. We argue the need for such decolonising work to go beyond cross-cultural work originating in affluent minority worlds, beyond interdisciplinarity, and beyond crucial work on equality, diversity and inclusivity. Bereavement, as a field of study and a set of practices, needs to take account of the legacies of complex colonial histories of exploitation and harm that continue to shape the world in general, and in particular, the aftermath of death in the continuing lives of the living. We conclude with some implications for ‘bereavement’ practice, from a UK perspective.
在这次《丧亲》杂志的重新发行中,我们探讨了这样一个问题:“我们是否需要将丧亲研究去殖民化?”我们不会给出明确的答案,而是寻求展开对话。我们简要探讨了一些关于“去殖民化”含义的主要争论和解释。在更广泛的理解中,这涉及到关于支撑“专业知识”主张的知识本质的问题,因为知识不可避免地反映了产生它的人的社会历史地位和传记。这就提出了一些令人不安的问题,关于知识的“普遍性”,以及如何理解人类之间共享的东西,包括如何理解痛苦和苦难的经历。在探讨“丧亲研究”的本质时,我们首先考虑语言和翻译的复杂性,然后再观察富裕的少数民族世界中“精神病学”学科的严重统治,以个性化,医疗化和干预主义的观点为导向。我们指出了寻求挑战这些限制的工作,包括精神病学本身的非殖民化。我们认为,这种非殖民化工作需要超越源自富裕的少数民族世界的跨文化工作,超越跨学科,超越关于平等、多样性和包容性的关键工作。丧亲之痛作为一个研究领域和一套做法,需要考虑到继续影响整个世界的复杂的殖民剥削和伤害历史遗留下来的问题,特别是生者继续生活中死亡的后果。从英国的角度来看,我们总结了一些对“丧亲”实践的影响。
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引用次数: 3
期刊
Bereavement Care
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