Pub Date : 2019-09-02DOI: 10.1080/02682621.2019.1681637
Bruce Rumbold, J. Lowe, S. Aoun
ABSTRACT A population survey finds that bereaved people draw upon diverse sources of support in their communities, from both formal services and informal networks of care. The formal service most frequently recognised by participants is provided by funeral directors. We outline some reasons for this, and explore one particular theme, memorialisation, in which funeral providers have traditionally been a lead discipline. Significant changes in memorialisation over recent decades challenge today’s funeral industry, but also draw our attention to underlying social changes reshaping our understanding not only of bereavement care but of care in general. Bereavement support is most effective when provided collaboratively by formal and informal care providers, but collaboration is challenged by policies that continue to privilege formal services over informal care. This challenge of developing constructive, respectful and complementary collaborations between formal and informal care is not peculiar to bereavement care, but is a social policy imperative for contemporary societies.
{"title":"Funerals, memorials and bereavement care","authors":"Bruce Rumbold, J. Lowe, S. Aoun","doi":"10.1080/02682621.2019.1681637","DOIUrl":"https://doi.org/10.1080/02682621.2019.1681637","url":null,"abstract":"ABSTRACT A population survey finds that bereaved people draw upon diverse sources of support in their communities, from both formal services and informal networks of care. The formal service most frequently recognised by participants is provided by funeral directors. We outline some reasons for this, and explore one particular theme, memorialisation, in which funeral providers have traditionally been a lead discipline. Significant changes in memorialisation over recent decades challenge today’s funeral industry, but also draw our attention to underlying social changes reshaping our understanding not only of bereavement care but of care in general. Bereavement support is most effective when provided collaboratively by formal and informal care providers, but collaboration is challenged by policies that continue to privilege formal services over informal care. This challenge of developing constructive, respectful and complementary collaborations between formal and informal care is not peculiar to bereavement care, but is a social policy imperative for contemporary societies.","PeriodicalId":44115,"journal":{"name":"Bereavement Care","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2019-09-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/02682621.2019.1681637","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47809127","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2019-09-02DOI: 10.1080/02682621.2019.1679454
D. Brady
Abstract As this issue celebrates 60 years since the founding of Cruse, it is timely to review Bereavement Care, an important element in the development of the organisation, in the context of other journals with similar aims. The background to the publication of Bereavement Care will be presented together with journals that contain a similar subject coverage. The way the journals are organised will be briefly explored as well as some of their most cited and the most-read papers. Commentary on the latest issue of these journals will be provided along with reflection on other sources of bereavement literature. Some suggestions for future topics are also included.
{"title":"Journals in the field of death studies and bereavement. Where does Bereavement Care fit in?","authors":"D. Brady","doi":"10.1080/02682621.2019.1679454","DOIUrl":"https://doi.org/10.1080/02682621.2019.1679454","url":null,"abstract":"Abstract As this issue celebrates 60 years since the founding of Cruse, it is timely to review Bereavement Care, an important element in the development of the organisation, in the context of other journals with similar aims. The background to the publication of Bereavement Care will be presented together with journals that contain a similar subject coverage. The way the journals are organised will be briefly explored as well as some of their most cited and the most-read papers. Commentary on the latest issue of these journals will be provided along with reflection on other sources of bereavement literature. Some suggestions for future topics are also included.","PeriodicalId":44115,"journal":{"name":"Bereavement Care","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2019-09-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/02682621.2019.1679454","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48750247","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2019-09-02DOI: 10.1080/02682621.2019.1679453
A. Eyre
Abstract This article reviews the nature of post-disaster peer support groups and highlights their role in addressing collective grief and trauma following mass fatality incidents. With reference to best practice guidelines for responding to collective trauma events the article highlights the functions of peer support in promoting social support, connectedness and self/community efficacy. Different types of UK-based peer support group are described – from independent user-based action groups to facilitated talking groups as part of wider community support networks. The establishment and delivery of the Manchester Attack Support Group Programme (following the 2017 Manchester Arena terror attack) is discussed as a contemporary example of a network of facilitated talking groups. It complements the participation of bereaved people and survivors in other independent and self-determined peer-based activities such as the Manchester Survivors Choir and terrorism-related campaigns.
{"title":"The value of peer support groups following disaster: From Aberfan to Manchester","authors":"A. Eyre","doi":"10.1080/02682621.2019.1679453","DOIUrl":"https://doi.org/10.1080/02682621.2019.1679453","url":null,"abstract":"Abstract This article reviews the nature of post-disaster peer support groups and highlights their role in addressing collective grief and trauma following mass fatality incidents. With reference to best practice guidelines for responding to collective trauma events the article highlights the functions of peer support in promoting social support, connectedness and self/community efficacy. Different types of UK-based peer support group are described – from independent user-based action groups to facilitated talking groups as part of wider community support networks. The establishment and delivery of the Manchester Attack Support Group Programme (following the 2017 Manchester Arena terror attack) is discussed as a contemporary example of a network of facilitated talking groups. It complements the participation of bereaved people and survivors in other independent and self-determined peer-based activities such as the Manchester Survivors Choir and terrorism-related campaigns.","PeriodicalId":44115,"journal":{"name":"Bereavement Care","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2019-09-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/02682621.2019.1679453","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41883991","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2019-09-02DOI: 10.1080/02682621.2019.1679467
D. Kerslake
Abstract Cruse Bereavement Care is marking its 60th year with events throughout 2019. In July the anniversary conference Bereavement Care – Past Present and Future hosted an international line-up of speakers. Former Cruse CEO Debbie Kerslake hosted the final panel session which looked to the future.
{"title":"The future of bereavement support: The next 60 years","authors":"D. Kerslake","doi":"10.1080/02682621.2019.1679467","DOIUrl":"https://doi.org/10.1080/02682621.2019.1679467","url":null,"abstract":"Abstract Cruse Bereavement Care is marking its 60th year with events throughout 2019. In July the anniversary conference Bereavement Care – Past Present and Future hosted an international line-up of speakers. Former Cruse CEO Debbie Kerslake hosted the final panel session which looked to the future.","PeriodicalId":44115,"journal":{"name":"Bereavement Care","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2019-09-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/02682621.2019.1679467","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44172874","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2019-09-02DOI: 10.1080/02682621.2019.1679462
A. Dyregrov, K. Dyregrov
Abstract Although positive growth is possible following the loss of a loved one, meaning construction and redefinition of reality may represent a very difficult transition. Professionals must be careful in how they convey optimism and the prospects of growth to families that have recently suffered trauma and loss. At the same time, it is certainly true that they are able to steer people towards recognition of strengths and the possibility of growth and learning. In this article, various approaches that could be used in establishing such outcomes are communicated, in order to assist in providing a way in which people can make life bearable after tragedy has struck.
{"title":"Positive growth following trauma – clinical perspectives1","authors":"A. Dyregrov, K. Dyregrov","doi":"10.1080/02682621.2019.1679462","DOIUrl":"https://doi.org/10.1080/02682621.2019.1679462","url":null,"abstract":"Abstract Although positive growth is possible following the loss of a loved one, meaning construction and redefinition of reality may represent a very difficult transition. Professionals must be careful in how they convey optimism and the prospects of growth to families that have recently suffered trauma and loss. At the same time, it is certainly true that they are able to steer people towards recognition of strengths and the possibility of growth and learning. In this article, various approaches that could be used in establishing such outcomes are communicated, in order to assist in providing a way in which people can make life bearable after tragedy has struck.","PeriodicalId":44115,"journal":{"name":"Bereavement Care","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2019-09-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/02682621.2019.1679462","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48909845","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2019-01-02DOI: 10.1080/02682621.2019.1590970
Emma Beck, Nicola Gibson, A. Heazell
Abstract Perinatal death has an enduring effect on parents which is altered by their experience of care. However, professionals frequently report feeling underprepared to care for bereaved parents. This study evaluated parents’ and professionals’ experiences of using an audio archive of experiences of perinatal deaths (www.stillbirthstories.org) using a self-reported questionnaire. Eighty-three percent of parents and the public (n = 33) found listening to the archive helpful, with no negative responses. Fifty-four percent stated that it changed how they felt about having a perinatal death, increasing the proportion of respondents who felt supported (12 to 27%) and decreasing the proportion who felt alone and anxious (27 to 15%). All professionals accessing the archive found it helpful, stating it increased empathy and understanding of parents’ emotions which improved confidence that parents’ needs could be met. Archives of real experiences may help parents and professionals after perinatal death. Further research is needed whether such an archive has a wider reach and accessibility than traditional support networks.
{"title":"‘Real experiences which increase empathy’ – a preliminary exploration of the utility of an audio archive describing parents’ and clinicians’ experiences of stillbirth","authors":"Emma Beck, Nicola Gibson, A. Heazell","doi":"10.1080/02682621.2019.1590970","DOIUrl":"https://doi.org/10.1080/02682621.2019.1590970","url":null,"abstract":"Abstract Perinatal death has an enduring effect on parents which is altered by their experience of care. However, professionals frequently report feeling underprepared to care for bereaved parents. This study evaluated parents’ and professionals’ experiences of using an audio archive of experiences of perinatal deaths (www.stillbirthstories.org) using a self-reported questionnaire. Eighty-three percent of parents and the public (n = 33) found listening to the archive helpful, with no negative responses. Fifty-four percent stated that it changed how they felt about having a perinatal death, increasing the proportion of respondents who felt supported (12 to 27%) and decreasing the proportion who felt alone and anxious (27 to 15%). All professionals accessing the archive found it helpful, stating it increased empathy and understanding of parents’ emotions which improved confidence that parents’ needs could be met. Archives of real experiences may help parents and professionals after perinatal death. Further research is needed whether such an archive has a wider reach and accessibility than traditional support networks.","PeriodicalId":44115,"journal":{"name":"Bereavement Care","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2019-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/02682621.2019.1590970","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"43933682","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2019-01-02DOI: 10.1080/02682621.2019.1587869
P. Cartwright
Abstract Background: The research investigated how helpful counselling was for people who self-identify as being bereaved through a substance-related death. Method: Semi-structured interviews were conducted with twenty bereaved participants. Interview data underwent a thematic analysis using Iterative Categorisation (Neale, 2016). Findings and conclusions: Participants’ needs were many, varied and changed over time. They used many types of support to meet these needs. Both one-to-one and group counselling were helpful and each was used to meet different needs. Significant needs regarding the substance-related characteristics of these bereavements were often not recognised by participants and seemingly also their counsellors, so were not worked through. Unhelpful experiences of counselling occurred through poor practice and a lack of specialist knowledge about these bereavements. Recommendations: Nine are given to improve the helpfulness of counselling for these bereaved people, including recognising and working with the substance-related characteristics of bereavements or referring clients to other services for these.
{"title":"How helpful is counselling for people bereaved through a substance-related death?","authors":"P. Cartwright","doi":"10.1080/02682621.2019.1587869","DOIUrl":"https://doi.org/10.1080/02682621.2019.1587869","url":null,"abstract":"Abstract Background: The research investigated how helpful counselling was for people who self-identify as being bereaved through a substance-related death. Method: Semi-structured interviews were conducted with twenty bereaved participants. Interview data underwent a thematic analysis using Iterative Categorisation (Neale, 2016). Findings and conclusions: Participants’ needs were many, varied and changed over time. They used many types of support to meet these needs. Both one-to-one and group counselling were helpful and each was used to meet different needs. Significant needs regarding the substance-related characteristics of these bereavements were often not recognised by participants and seemingly also their counsellors, so were not worked through. Unhelpful experiences of counselling occurred through poor practice and a lack of specialist knowledge about these bereavements. Recommendations: Nine are given to improve the helpfulness of counselling for these bereaved people, including recognising and working with the substance-related characteristics of bereavements or referring clients to other services for these.","PeriodicalId":44115,"journal":{"name":"Bereavement Care","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2019-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/02682621.2019.1587869","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"46573947","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2019-01-02DOI: 10.1080/02682621.2019.1580854
Martin Lytje, A. Dyregrov
When a child loses a parent, their life is forever changed. A world that seemed safe and predictable suddenly becomes strange, frightening, and uncertain (Green & Connolly, 2009). In the time follo...
{"title":"The price of loss – a literature review of the psychosocial and health consequences of childhood bereavement","authors":"Martin Lytje, A. Dyregrov","doi":"10.1080/02682621.2019.1580854","DOIUrl":"https://doi.org/10.1080/02682621.2019.1580854","url":null,"abstract":"When a child loses a parent, their life is forever changed. A world that seemed safe and predictable suddenly becomes strange, frightening, and uncertain (Green & Connolly, 2009). In the time follo...","PeriodicalId":44115,"journal":{"name":"Bereavement Care","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2019-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/02682621.2019.1580854","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42969107","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2019-01-02DOI: 10.1080/02682621.2019.1588560
R. Scott, R. Wallace, A. Audsley, S. Chary
Abstract A significant proportion of secondary school pupils in the UK have experienced the death of someone close. Bereavement in childhood can have a significant and long lasting impact. The aim of this study was to explore how pupils aged between 12 and 18 understand major loss, death and dying, whom they talk to and the support they access at these times, and their awareness of the range of support available to them. A total of 31 pupils, 108 parents and 37 staff from a large Scottish secondary school took part and data was collected using online questionnaires. A high proportion of pupils had experience of major loss or bereavement and showed significant awareness of their feelings and responses to these. It appears that young people primarily seek support from family and friends, but the role of peers is less well recognised by parents and teachers. The school was recognised as a source of support mainly by teachers.
{"title":"Young people and their understanding of loss and bereavement","authors":"R. Scott, R. Wallace, A. Audsley, S. Chary","doi":"10.1080/02682621.2019.1588560","DOIUrl":"https://doi.org/10.1080/02682621.2019.1588560","url":null,"abstract":"Abstract A significant proportion of secondary school pupils in the UK have experienced the death of someone close. Bereavement in childhood can have a significant and long lasting impact. The aim of this study was to explore how pupils aged between 12 and 18 understand major loss, death and dying, whom they talk to and the support they access at these times, and their awareness of the range of support available to them. A total of 31 pupils, 108 parents and 37 staff from a large Scottish secondary school took part and data was collected using online questionnaires. A high proportion of pupils had experience of major loss or bereavement and showed significant awareness of their feelings and responses to these. It appears that young people primarily seek support from family and friends, but the role of peers is less well recognised by parents and teachers. The school was recognised as a source of support mainly by teachers.","PeriodicalId":44115,"journal":{"name":"Bereavement Care","volume":null,"pages":null},"PeriodicalIF":0.0,"publicationDate":"2019-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1080/02682621.2019.1588560","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"48613191","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}