{"title":"Eco-Anxiety and the Intractable Afterlives of Plastic.","authors":"Geovani Ramírez","doi":"10.1353/lm.2024.a935831","DOIUrl":"https://doi.org/10.1353/lm.2024.a935831","url":null,"abstract":"","PeriodicalId":44538,"journal":{"name":"LITERATURE AND MEDICINE","volume":"42 1","pages":"28-38"},"PeriodicalIF":0.2,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142113184","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"文学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Sitting with Death.","authors":"Nathan Gray","doi":"10.1353/lm.2024.a935832","DOIUrl":"https://doi.org/10.1353/lm.2024.a935832","url":null,"abstract":"","PeriodicalId":44538,"journal":{"name":"LITERATURE AND MEDICINE","volume":"42 1","pages":"39-51"},"PeriodicalIF":0.2,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142113193","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"文学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
An increasing number of collaborative end-of-life narratives have been published after the death of the protagonist. Focusing on two examples of women's end-of-life memoirs in contemporary German popular culture, this essay examines how relationality, gender, and affectivity shape the philosophies, practices, and politics of palliative care and the associated concepts of the "good death." Ultimately, I argue that the memoirs foreground a still-marginal narrative and practice of dying at home within an intimate public sphere of palliation that transgresses traditional approaches to care for the dying in contemporary health care. They also contribute to gendered and sentimental notions of family care and of the self-determined and autonomous body and death.
{"title":"The Intimate Palliative Sphere: Affect, Gender, and the Good Death in Relational End-of-Life Narratives.","authors":"Katja Herges","doi":"10.1353/lm.2024.a935835","DOIUrl":"https://doi.org/10.1353/lm.2024.a935835","url":null,"abstract":"<p><p>An increasing number of collaborative end-of-life narratives have been published after the death of the protagonist. Focusing on two examples of women's end-of-life memoirs in contemporary German popular culture, this essay examines how relationality, gender, and affectivity shape the philosophies, practices, and politics of palliative care and the associated concepts of the \"good death.\" Ultimately, I argue that the memoirs foreground a still-marginal narrative and practice of dying at home within an intimate public sphere of palliation that transgresses traditional approaches to care for the dying in contemporary health care. They also contribute to gendered and sentimental notions of family care and of the self-determined and autonomous body and death.</p>","PeriodicalId":44538,"journal":{"name":"LITERATURE AND MEDICINE","volume":"42 1","pages":"88-111"},"PeriodicalIF":0.2,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142113195","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"文学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Afterlife and Life-After.","authors":"Jaime Konerman-Sease","doi":"10.1353/lm.2024.a935829","DOIUrl":"https://doi.org/10.1353/lm.2024.a935829","url":null,"abstract":"","PeriodicalId":44538,"journal":{"name":"LITERATURE AND MEDICINE","volume":"42 1","pages":"21-25"},"PeriodicalIF":0.2,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142113181","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"文学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
This article explores the representation of terminal brain cancer in Marion Coutts's memoir The Iceberg (2014), on her husband's illness and death, and Marco Peano's autofiction L'invenzione della madre (The invention of the mother; 2015), about a son who cares for his mother during her final days. While addressing the medicalization of dying and the efficacy of palliative care, both texts engage pervasively with visual culture. This emphasis on the visual arts and cinema provides a thought-provoking commentary on the protagonists' experience of witnessing the gradual erosion of verbal expression in their dying loved ones. This essay will thus explore both the use of visual culture as palliative praxis and the authors' implicit considerations on the role of narrativity in dying.
本文探讨了玛丽恩-库茨(Marion Coutts)的回忆录《冰山》(The Iceberg,2014 年)和马尔科-皮诺(Marco Peano)的自传体小说《母亲的发明》(L'invenzione della madre,2015 年)中对晚期脑癌的表述,前者讲述了她的丈夫患病和死亡,后者则讲述了一个儿子在母亲临终前照顾她的故事。在探讨死亡医疗化和姑息治疗的有效性的同时,这两部作品都普遍涉及视觉文化。对视觉艺术和电影的重视,为主人公目睹临终亲人语言表达能力逐渐衰退的经历提供了发人深省的注解。因此,本文将探讨视觉文化作为姑息疗法的应用,以及作者对叙事性在死亡中的作用的隐含思考。
{"title":"Palliative Images in Marion Coutts's <i>The Iceberg</i> and Marco Peano's <i>L'invenzione della madre</i>.","authors":"Maria Vaccarella","doi":"10.1353/lm.2024.a935840","DOIUrl":"https://doi.org/10.1353/lm.2024.a935840","url":null,"abstract":"<p><p>This article explores the representation of terminal brain cancer in Marion Coutts's memoir The Iceberg (2014), on her husband's illness and death, and Marco Peano's autofiction L'invenzione della madre (The invention of the mother; 2015), about a son who cares for his mother during her final days. While addressing the medicalization of dying and the efficacy of palliative care, both texts engage pervasively with visual culture. This emphasis on the visual arts and cinema provides a thought-provoking commentary on the protagonists' experience of witnessing the gradual erosion of verbal expression in their dying loved ones. This essay will thus explore both the use of visual culture as palliative praxis and the authors' implicit considerations on the role of narrativity in dying.</p>","PeriodicalId":44538,"journal":{"name":"LITERATURE AND MEDICINE","volume":"42 1","pages":"197-214"},"PeriodicalIF":0.2,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142113192","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"文学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
In this article, I present some of the literary and cultural influences behind hospice pioneer Cicely Saunders's idea of "total pain," a term she used from the 1960s onwards to promote the holistic approach which has since become palliative care. Existing studies imply "total pain" emerged from Saunders's own mixed career experiences and her attention to patient narratives. However, I explore how the term originates not only in Saunders's direct encounters with her patients but also in her readings of literary, philosophical, and theological texts from a range of European post-war contexts, from Viktor Frankl and Simone de Beauvoir to Martin Buber and Ladislaus Boros. Examining "total pain" in light of Saunders's reading reveals the particular intellectual milieu-often ignored-from which palliative care emerged.
{"title":"Cicely Saunders and the Literary and Cultural Heritage of \"Total Pain\".","authors":"Joe Wood","doi":"10.1353/lm.2024.a935834","DOIUrl":"https://doi.org/10.1353/lm.2024.a935834","url":null,"abstract":"<p><p>In this article, I present some of the literary and cultural influences behind hospice pioneer Cicely Saunders's idea of \"total pain,\" a term she used from the 1960s onwards to promote the holistic approach which has since become palliative care. Existing studies imply \"total pain\" emerged from Saunders's own mixed career experiences and her attention to patient narratives. However, I explore how the term originates not only in Saunders's direct encounters with her patients but also in her readings of literary, philosophical, and theological texts from a range of European post-war contexts, from Viktor Frankl and Simone de Beauvoir to Martin Buber and Ladislaus Boros. Examining \"total pain\" in light of Saunders's reading reveals the particular intellectual milieu-often ignored-from which palliative care emerged.</p>","PeriodicalId":44538,"journal":{"name":"LITERATURE AND MEDICINE","volume":"42 1","pages":"65-87"},"PeriodicalIF":0.2,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142113183","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"文学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Introduction: A \"Totalizing\" View of Palliative Care.","authors":"Anna M Elsner, Steven Wilson","doi":"10.1353/lm.2024.a935833","DOIUrl":"https://doi.org/10.1353/lm.2024.a935833","url":null,"abstract":"","PeriodicalId":44538,"journal":{"name":"LITERATURE AND MEDICINE","volume":"42 1","pages":"55-64"},"PeriodicalIF":0.2,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142113188","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"文学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Knowing Black Afterlives.","authors":"Kimberly Bain","doi":"10.1353/lm.2024.a935825","DOIUrl":"https://doi.org/10.1353/lm.2024.a935825","url":null,"abstract":"","PeriodicalId":44538,"journal":{"name":"LITERATURE AND MEDICINE","volume":"42 1","pages":"7-9"},"PeriodicalIF":0.2,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142113189","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"文学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Research on palliative care emphasizes the crucial role of narratives in the encounter with suffering and dying patients because we need to learn from the dying in order to improve care for them. Autobiographical narratives by terminally ill writers contribute to a more encompassing understanding of what it means to be dying as they often thematize dying and death, besides theorizing all kinds of implications of terminal illness. Among such autothanatographers are well-known writers such as Gillian Rose, Jenny Diski, and Tom Lubbock. The process of writing about the last stage of their lives is palliative narrative praxis because the narrative act alleviates suffering. Exploring dying and death in philosophical, literary, and often highly poetic terms needs to be read and interpreted within a more complex web of meaning-making.
{"title":"Last Narratives: Life Writing Palliative Praxis.","authors":"Franziska Gygax","doi":"10.1353/lm.2024.a935838","DOIUrl":"https://doi.org/10.1353/lm.2024.a935838","url":null,"abstract":"<p><p>Research on palliative care emphasizes the crucial role of narratives in the encounter with suffering and dying patients because we need to learn from the dying in order to improve care for them. Autobiographical narratives by terminally ill writers contribute to a more encompassing understanding of what it means to be dying as they often thematize dying and death, besides theorizing all kinds of implications of terminal illness. Among such autothanatographers are well-known writers such as Gillian Rose, Jenny Diski, and Tom Lubbock. The process of writing about the last stage of their lives is palliative narrative praxis because the narrative act alleviates suffering. Exploring dying and death in philosophical, literary, and often highly poetic terms needs to be read and interpreted within a more complex web of meaning-making.</p>","PeriodicalId":44538,"journal":{"name":"LITERATURE AND MEDICINE","volume":"42 1","pages":"157-173"},"PeriodicalIF":0.2,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142113190","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"文学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}