Pub Date : 2021-01-01DOI: 10.1016/s2211-6095(21)00031-2
{"title":"Series Page","authors":"","doi":"10.1016/s2211-6095(21)00031-2","DOIUrl":"https://doi.org/10.1016/s2211-6095(21)00031-2","url":null,"abstract":"","PeriodicalId":44571,"journal":{"name":"International Review of Research in Developmental Disabilities","volume":"1 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"56669059","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-01-01DOI: 10.1016/s2211-6095(21)x0003-6
{"title":"Prevention Science and Research in Intellectual and Developmental Disabilities","authors":"","doi":"10.1016/s2211-6095(21)x0003-6","DOIUrl":"https://doi.org/10.1016/s2211-6095(21)x0003-6","url":null,"abstract":"","PeriodicalId":44571,"journal":{"name":"International Review of Research in Developmental Disabilities","volume":"1 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"56669781","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-01-01DOI: 10.1016/s2211-6095(21)00033-6
{"title":"Copyright","authors":"","doi":"10.1016/s2211-6095(21)00033-6","DOIUrl":"https://doi.org/10.1016/s2211-6095(21)00033-6","url":null,"abstract":"","PeriodicalId":44571,"journal":{"name":"International Review of Research in Developmental Disabilities","volume":"3 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"56669085","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-01-01DOI: 10.1016/bs.irrdd.2021.08.001
D. Swain, Mary Troxel, L. Anthony, L. Kenworthy, A. Verbalis, K. Hardy, Allison B. Ratto, Yetta Myrick, B. Anthony
{"title":"School-based executive function interventions reduce caregiver strain","authors":"D. Swain, Mary Troxel, L. Anthony, L. Kenworthy, A. Verbalis, K. Hardy, Allison B. Ratto, Yetta Myrick, B. Anthony","doi":"10.1016/bs.irrdd.2021.08.001","DOIUrl":"https://doi.org/10.1016/bs.irrdd.2021.08.001","url":null,"abstract":"","PeriodicalId":44571,"journal":{"name":"International Review of Research in Developmental Disabilities","volume":"1 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"54088497","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-01-01DOI: 10.1016/s2211-6095(21)00035-x
{"title":"Contributors","authors":"","doi":"10.1016/s2211-6095(21)00035-x","DOIUrl":"https://doi.org/10.1016/s2211-6095(21)00035-x","url":null,"abstract":"","PeriodicalId":44571,"journal":{"name":"International Review of Research in Developmental Disabilities","volume":"1 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"56669129","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-01-01DOI: 10.1016/bs.irrdd.2021.08.008
L. Daunhauer, Nan Zeng, Bethany Rigles
{"title":"A phenotypic approach to understanding obesity in children and youth with Down syndrome","authors":"L. Daunhauer, Nan Zeng, Bethany Rigles","doi":"10.1016/bs.irrdd.2021.08.008","DOIUrl":"https://doi.org/10.1016/bs.irrdd.2021.08.008","url":null,"abstract":"","PeriodicalId":44571,"journal":{"name":"International Review of Research in Developmental Disabilities","volume":"1 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"54088788","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-01-01Epub Date: 2021-10-29DOI: 10.1016/bs.irrdd.2021.08.005
Caroline L Roberts
Siblings of individuals with severe intellectual disability are underrepresented in research, yet they are simultaneously an at-risk population and a crucial population in terms of future planning (Heller & Arnold, 2010; Rossetti & Hall, 2015). This review systematically summarizes the literature with the goals of (1) characterizing the state of the literature on this subpopulation, (2) identifying evidence for differential impacts and needs in this subpopulation as compared to the umbrella population of siblings of individuals with IDD, and (3) identifying future directions researchers should take to determine the implications of these differential impact(s), should they exist. Results suggest that the research is inconclusive in many domains, but increased likelihood of negative outcomes and increased caregiving responsibilities across the lifespan are supported. Limitations include underreporting of severity and sample biases. Implications for sibling wellbeing and future planning are discussed.
{"title":"A review of the literature on siblings of individuals with severe intellectual and developmental disabilities.","authors":"Caroline L Roberts","doi":"10.1016/bs.irrdd.2021.08.005","DOIUrl":"10.1016/bs.irrdd.2021.08.005","url":null,"abstract":"<p><p>Siblings of individuals with severe intellectual disability are underrepresented in research, yet they are simultaneously an at-risk population and a crucial population in terms of future planning (Heller & Arnold, 2010; Rossetti & Hall, 2015). This review systematically summarizes the literature with the goals of (1) characterizing the state of the literature on this subpopulation, (2) identifying evidence for differential impacts and needs in this subpopulation as compared to the umbrella population of siblings of individuals with IDD, and (3) identifying future directions researchers should take to determine the implications of these differential impact(s), should they exist. Results suggest that the research is inconclusive in many domains, but increased likelihood of negative outcomes and increased caregiving responsibilities across the lifespan are supported. Limitations include underreporting of severity and sample biases. Implications for sibling wellbeing and future planning are discussed.</p>","PeriodicalId":44571,"journal":{"name":"International Review of Research in Developmental Disabilities","volume":"67 1","pages":"153-188"},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12657032/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"54088699","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2020-01-01DOI: 10.1016/s2211-6095(20)30016-6
{"title":"Series Page","authors":"","doi":"10.1016/s2211-6095(20)30016-6","DOIUrl":"https://doi.org/10.1016/s2211-6095(20)30016-6","url":null,"abstract":"","PeriodicalId":44571,"journal":{"name":"International Review of Research in Developmental Disabilities","volume":"1 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2020-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1016/s2211-6095(20)30016-6","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"56669312","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2020-01-01DOI: 10.1016/s2211-6095(20)30018-x
{"title":"Copyright","authors":"","doi":"10.1016/s2211-6095(20)30018-x","DOIUrl":"https://doi.org/10.1016/s2211-6095(20)30018-x","url":null,"abstract":"","PeriodicalId":44571,"journal":{"name":"International Review of Research in Developmental Disabilities","volume":"1 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2020-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1016/s2211-6095(20)30018-x","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"56669511","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2020-01-01Epub Date: 2020-10-15DOI: 10.1016/bs.irrdd.2020.09.002
Natalie G Brei, Ana-Maria Raicu, Han Joo Lee, Bonita P Klein-Tasman
Williams syndrome (WS) is a genetic neurodevelopmental disorder often accompanied by inhibitory difficulties. Online cognitive training programs show promise for improving cognitive functions. No such interventions have been developed for individuals with WS, but to explore the practicality of large-scale online cognitive training for this population, we must first investigate whether families of those with WS find these programs feasible and acceptable. Twenty individuals aged 10-17 years with WS, along with parents, participated in a pilot online cognitive training program supervised in real time using videoconference software. We evaluated the feasibility and acceptability of this response inhibition training using three parent questionnaires. Descriptive data are reported for the measures of feasibility and acceptability. Overall, the online procedures received a positive reaction from families. Parents were likely to recommend the study to others. They indicated training was ethical and acceptable despite feeling neutral about effectiveness. The frequency and duration of sessions were acceptable to families (two 20-to-30-min sessions per week; 10 sessions total). Families provided feedback and offered suggestions for improvement, such as more flexibility in scheduling and decreasing time spent in review of procedures.
{"title":"Feasibility and acceptability of an online response inhibition cognitive training program for youth with Williams syndrome.","authors":"Natalie G Brei, Ana-Maria Raicu, Han Joo Lee, Bonita P Klein-Tasman","doi":"10.1016/bs.irrdd.2020.09.002","DOIUrl":"https://doi.org/10.1016/bs.irrdd.2020.09.002","url":null,"abstract":"<p><p>Williams syndrome (WS) is a genetic neurodevelopmental disorder often accompanied by inhibitory difficulties. Online cognitive training programs show promise for improving cognitive functions. No such interventions have been developed for individuals with WS, but to explore the practicality of large-scale online cognitive training for this population, we must first investigate whether families of those with WS find these programs feasible and acceptable. Twenty individuals aged 10-17 years with WS, along with parents, participated in a pilot online cognitive training program supervised in real time using videoconference software. We evaluated the feasibility and acceptability of this response inhibition training using three parent questionnaires. Descriptive data are reported for the measures of feasibility and acceptability. Overall, the online procedures received a positive reaction from families. Parents were likely to recommend the study to others. They indicated training was ethical and acceptable despite feeling neutral about effectiveness. The frequency and duration of sessions were acceptable to families (two 20-to-30-min sessions per week; 10 sessions total). Families provided feedback and offered suggestions for improvement, such as more flexibility in scheduling and decreasing time spent in review of procedures.</p>","PeriodicalId":44571,"journal":{"name":"International Review of Research in Developmental Disabilities","volume":"59 ","pages":"107-134"},"PeriodicalIF":0.0,"publicationDate":"2020-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1016/bs.irrdd.2020.09.002","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"38511043","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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