Journal of Patient Experience最新文献

Hypertension remains a leading cause of cardiovascular morbidity and mortality worldwide. Effective self-care is essential for long-term blood pressure control and prevention of complications. This study aimed to assess the adequacy of self-care behaviors and identify associated predictors among adults with hypertension. A cross-sectional study was conducted among 393 adults with primary hypertension attending public primary care centers. Data were collected through structured interviews using the Self-Care of Hypertension Inventory, Multidimensional Scale of Perceived Social Support, and a validated hypertension knowledge questionnaire. Binary logistic regression was used to identify predictors of adequate self-care (≥70%). Although 71.6% of participants had good hypertension knowledge, only 26.7% demonstrated adequate self-care. Key barriers included emotional stress (98.0%), financial hardship (87.3%), and time constraints (78.4%). Significant predictors of adequate self-care included younger age (OR 0·939), being married (OR 2·48), employment (OR 0·697), fewer comorbidities (OR 0·552), controlled blood pressure (OR 0·370), higher knowledge (OR 0·949), and stronger social support (OR 1·054). This study identified self-care deficiencies among hypertensive patients, characterized by good knowledge but poor engagement in lifestyle modification, monitoring, and communication. Effective self-care was associated with younger age, family support, and higher knowledge, whereas older age, comorbidities, and blood pressure control impeded it. Emotional stress, financial hardship, and time constraints were key barriers, underscoring the need for comprehensive, multi-level strategies to enhance hypertension self-management.

The first project of the Action Network on Measuring Population and Organizational Health Literacy was the Health Literacy Population Survey 2019-2021 (HLS₁₉). Based on the HLS₁₉'s experience, improvements were needed to the communicative health literacy questionnaire before it could be used in the second wave of the HLS survey. Our aim was to test the comprehensibility of the Hungarian version of the revised questionnaire with cognitive interviews. Two questions caused comprehension problems: (1) discussing health information with your doctor from other sources such as internet, family and friends-participants found this question too long and difficult, so we changed the sentence structure to make it more understandable; (2) expressing personal views and preferences to your doctor-the interviewees misunderstood the question, they did not realize that we were referring to health-related personal views. During the translation process, it was challenging to convey the meaning of "health concern" in Hungarian, the version with examples in parentheses was deemed the most effective. The final version of the revised questionnaire seemed to be understandable and comprehensible.

This study analyzed 1221 patient feedback cases, comprising both complaints and consultations, received via a national public service platform at a major Chinese regional general hospital. While the total volume of feedback increased, the proportion of formal complaints declined as consultations rose, suggesting a shift toward proactive information-seeking behavior. Consultations most frequently involved hospital procedures and medical expenses, highlighting patients' growing need for guidance and system navigation support. Most complaints were related to hospital management, medical quality, and communication, with surgical departments and physicians most frequently cited. Seasonal peaks occurred in the third quarter. These findings offer valuable insights into evolving patient expectations and support targeted improvements in hospital communication, staffing, and feedback management systems.

Saudi Arabia's Vision 2030 and the National Health Insurance Scheme (NHIS) aim for a more equitable healthcare system. Public participation and health insurance literacy (HIL) are vital for its success, yet underserved areas like Al-Jouf lack research on these factors. This cross-sectional observational study was conducted with 408 adult Saudi citizens from public health clinics in Al-Jouf. A structured questionnaire assessed demographics, HIL, confidence in choosing (CCI), comparing (CCP), utilizing insurance (CUI), proactive behavior (PBS), and willingness to enroll in NHIS. Correlational analyses were performed using Spearman's correlation and multinomial logistic regression. Among participants, predominantly men (82.11%) aged 41 to 50 (21.81%), only 15.93% were enrolled in health insurance. Social media was the primary information source, and HIL scores were low to moderate. Significant correlations were observed between income and PBS (p = 0.015) and CCI (p = 0.021). Higher HIL and confidence positively influenced willingness to participate. The study underscores the gap between awareness and enrollment in NHIS, emphasizing the need for tailored interventions, particularly for low-income and unemployed individuals.

This caregiver perspective article shares a decades-long experience of a family navigating the health system to obtain an accurate diagnosis for their nonbinary child, ultimately identified with Hypermobile Ehlers-Danlos Syndrome (hEDS) with Median Arcuate Ligament Syndrome (MALS), and Tethered Cord Syndrome. As a health communications professional, the author describes how symptoms were repeatedly dismissed or misdiagnosed, highlighting the systemic challenges in listening and collaboration, as well as including the patient voice in the diagnostic process. The article offers practical recommendations rooted in lived experience to inform health providers, innovators and policymakers that listening is not a courtesy - it is a clinical necessity.

Patient experience in dental care is shaped by multiple factors throughout the treatment journey, including emotional, communicational, and environmental elements. This narrative review explores how fear, lack of trust, and poor communication can negatively affect patients' willingness to seek or continue dental care, ultimately influencing access and return visits. A focused literature search was conducted using PubMed and Scopus to identify studies examining the relationship between patient experience and dental service utilization, and findings were thematically synthesized across 3 phases of the patient journey: before, during, and after the dental visit. Interpretation was guided by Andersen's Behavioral Model of Health Services Use, which situates healthcare utilization within predisposing, enabling, and need-related factors. Influential elements included effective communication, transparent payment and follow-up systems, streamlined appointment scheduling, a welcoming reception, and a clean, comfortable treatment environment. These experiences were consistently associated with greater trust, comfort, and satisfaction, which in turn increased the likelihood of return visits. Strengthening patient experience across the care pathway may improve long-term engagement with dental services, even among patients whose first visit occurs under urgent or emergency circumstances.

Background: Patient experience is a key indicator of healthcare quality, influencing satisfaction, safety, and outcomes. In Ghana, limited research has examined inpatient experiences across diverse settings. This study explored patient experiences of inpatient care and examined how these experiences relate to patient characteristics in public hospitals. Methods: A cross-sectional survey was conducted between July 2024 and February 2025 in 8 public hospitals across Ghana's Central, Western, Ashanti, and Northern Regions. A total of 1220 inpatients from medical and surgical wards were consecutively recruited. Patient experiences were assessed using the Picker Patient Experience Questionnaire-15 (PPE-15). Data were analyzed using descriptive statistics, Pearson and Spearman correlations, and multiple linear regression. Results: The mean experience score was 39.8 ± 11.2. Low ratings were reported for family involvement (31.8) and continuity of care (32.3), with over 65% citing poor emotional support and 58.1% dissatisfied with pain management. Experience scores correlated with satisfaction (r = 0.425) and hospital recommendation (ρ = 0.257). Higher age, education, and health status predicted better experiences; surgical admission, longer stays, and prior hospitalization predicted worse scores. Conclusion: Addressing communication gaps, emotional support, pain control, and family involvement is essential for improving patient experiences in Ghanaian hospitals.

Children with complex medical needs often require substantial medical care, including at home, where family members perform many procedures typically reserved for licensed nurses. This article presents a caregivers' perspective of navigating the healthcare system while managing her daughter's care following a diagnosis of Ataxia-Telangiectasia, a rare neurodegenerative disease. It reflects on the systemic gaps in how we prepare and support family caregivers, particularly regarding end-of-life discussions. This article highlights how caregivers are uniquely positioned to identify inefficiencies, safety concerns, and innovative solutions both in hospital and home settings, often before they are recognized by the larger healthcare system. Recommendations include establishing formal caregiver feedback systems, standardizing caregiver training, and developing values-based communication training for clinicians. By integrating caregivers into formal processes, healthcare systems can become more responsive to the needs of children with complex needs and their families.

Oral immunotherapy (OIT) is an emerging treatment for pediatric food allergies; however, decision support strategies in Japan remain underdeveloped and culturally nuanced. This qualitative descriptive study explored the OIT decision-making experiences and support needs of children, their parents, and healthcare professionals. Fourteen participants were recruited from 2 tertiary medical centers in Tokyo and Kanagawa. Individual semi-structured interviews were conducted and thematically analyzed. Three core themes emerged: navigating complex choices by balancing safety, burden, and values; centering on the child's voice through participation, emotional awareness, and autonomy; and bridging gaps in informational, emotional, and peer support to enable shared decision making (SDM). A conceptual model grounded in the Ottawa Decision Support Framework and the Japanese cultural context illustrates how stakeholder-specific needs interact to shape the quality of decisions. This study highlights the rarely examined intersection of pediatric autonomy, clinical uncertainty, and sociocultural context. These findings underscore the need for culturally responsive and child-inclusive SDM strategies and tailored decision aids to support families navigating pediatric OIT.

Patients' psychosocial experiences vary and can influence their recovery. An insight into these experiences can facilitate patients' perioperative care. This study explored and described the psychosocial experiences of adults aged 18 years and older with lower limb fractures. A qualitative exploratory, descriptive design was undertaken among 18 purposively sampled postoperative adults with lower limb fractures who had undergone surgery at a hospital in Ghana. Data were collected using semi-structured face-to-face individual interviews and analyzed using thematic analysis. The 2 main themes identified were altered psychological well-being and frightening experiences, and evolving social experiences among adults with lower limb fractures. The subthemes showed that the participants experienced fear, worry, and anxiety as well as social isolation, social role neglect, socioeconomic problems, and varying availability of social support. Participants' fears, worries, and anxieties were related to the possible loss of their limbs, lives, livelihoods, and social support. Healthcare providers must incorporate holistic psychological and social care that enables adults with lower limb fractures to deal with injuries, their surgery, and the protracted recovery process postoperatively.