Journal of Patient Experience最新文献

The Inpatient Experience with Nursing Care Scale (IPENCS) is a valid and reliable instrument for measuring patients' experiences with nursing care. This study aimed to develop and validate a short-form of this scale. To ensure the experiment was scientific and rigorous, the short-form IPENCS was developed and validated by both qualitative and quantitative methods in three phases. Phase one is to develop the short version of the instrument. Phase two is to evaluate the validity and reliability of the short-form IPENCS. Phase three is to conduct a cognitive interview (CI) to evaluate the comprehensibility of the short version. 1565 valid questionnaires were received and the response rate was 75.02%. Thirteen items were excluded under four methods of simplification. The 17-item IPENCS showed good reliability and validity. Less completion time and high acceptance about the scale length were also found in the CI. The short-form IPENCS showed acceptable measurement properties which was regarded as an alternative to the original scale to provide rapid assessment and quality improvement suggestions.

Consistent and effective self-management of Diabetes Mellitus (DM) and hypertension (HTN) remains a challenge for many patients, who face barriers such as limited healthcare access, poor diet, and insufficient exercise. Remote patient monitoring (RPM) allows patients with specific chronic conditions to monitor and report their healthcare data through a digital platform. However, there is limited research on Medicaid patients' experiences using RPM. The purpose of this study was to describe patients' experiences managing their DM and HTN using RPM. Semi-structured longitudinal interviews were conducted with seventeen participants enrolled in a RPM program. Thematic analysis of interviews revealed three main themes: program enrollment experiences, utilizing RPM, and factors impacting disease management. Patients reported that their overall experience utilizing RPM was positive, and RPM helped to overcome challenges such as unhealthy eating and infrequent monitoring of their blood sugars and/or blood pressures. Results suggest that RPM programs could be an effective strategy for supporting the management of DM and HTN. Limitations include small sample size and variability in Medicaid program design by states in U.S. Clinical Trials.gov NCT: NCT05555095 https://clinicaltrials.gov/study/NCT05555095.

This study examined the relationships among resilience, demoralization, and quality of life (QoL) in older patients with colorectal cancer and explored the mediating role of resilience. A cross-sectional study using convenience sampling was conducted at a medical center in northern Taiwan. Data were collected through structured questionnaires, including a demographic survey, the Resilience Scale, the Mandarin Version of the Demoralization Scale, and the McGill Quality of Life Questionnaire. Correlation and mediation analyses were performed using the PROCESS macro for SPSS. Among 139 participants, resilience was negatively correlated with demoralization (γ = -0.728, P < .001) and positively correlated with QoL (γ = 0.714, P < .001). Demoralization was negatively correlated with QoL (γ = -0.719, P < .001). Mediation analysis confirmed that resilience significantly mediated the relationship between demoralization and QoL (Z = -4.69, P < .001). Enhancing resilience may reduce demoralization and improve QoL in older colorectal cancer patients. Integrating resilience-building interventions into early-stage cancer care may enhance patients' psychological well-being and overall QoL, though further studies with more representative samples are needed.

Professionals in intensive care units (ICUs) should increasingly consider digital innovation in high-quality specialized recovery programs that are easily accessible for ICU survivors and their family members. However, a gap in the literature exists on what is known about the perspectives among the expected users for these digital applications in different healthcare systems. This study explores the differences in perspectives toward digital interventions in post-ICU support among ICU survivors across 4 European countries. A quantitative cross-sectional study was conducted using an investigator developed questionnaire to assess perspectives on digital interventions across Croatia, Germany, the Netherlands, and the United Kingdom. Among 106 ICU participants, the majority was female (63.0%) and aged between 46 and 55 years (36.8%). Three key factors related to digital post-ICU support were identified: perception (ie, perceived effectiveness and relevance of digital health program content), accessibility, and openness to digital health technologies. Interestingly, no significant differences across countries or demographic groups were found. Digital health interventions can provide effective and personalized support to individuals facing similar health challenges across different countries.

Professionalism is central to patient experience, however undergraduate medical education often emphasizes standardized frameworks over relational, context-sensitive learning. Students' perspectives remain underrepresented in curriculum design despite shaping future care delivery. To synthesize undergraduate medical students' views on professionalism education, identify barriers and enablers to learning, and highlight implications for curriculum reform and patient-centered care. A mixed-methods systematic review was conducted, including qualitative, quantitative, and mixed-methods studies published between 2010 and 2023. Four databases (PubMed, Embase, PsycINFO, Education Resources Information Center [ERIC]) were searched. Quality appraisal used the Mixed-Methods Appraisal Tool and thematic analysis was applied to integrate findings, emphasizing learner voices and links to patient experience. Fifty-four studies were included (38 qualitative, 16 quantitative/mixed methods). Students consistently emphasized the influence of role modeling by senior clinicians, reflective practice, patient narratives, and supportive learning environments. Barriers included inconsistent teaching, cultural dissonance between formal curricula and observed clinical behaviors, and lack of structured feedback. Learning was most impactful when professionalism teaching was embedded in real patient care, reinforced through observation, supervision, and reflection. Students perceive professionalism as relational practices, empathy, respect, integrity, and accountability that directly shape patient experience. Curricula should integrate structured role modeling, reflective exercises, patient narratives, and culturally responsive teaching. Centering student perspectives in curriculum design can better prepare graduates for context-sensitive, patient-centered practice.

As healthcare systems grapple with simultaneous challenges of patient engagement, access for services, and growing clinician burnout, we share an approach to quality improvement focused on equipping integrated care teams with methods for proactive insight and action to manage patients. This approach offers a way to deliver outcomes that value-based care arrangements look to achieve, and which can alleviate clinician burnout and improve satisfaction across care teams. We illustrate our experience with a program managing patients with sickle cell disease in Southeast Pennsylvania that has delivered improved outcomes, including improvements around the provision of important medication therapies and completion of annual screening tests, for a population that historically faces many health inequities. These tools and workflows are still widely in use today. Improving the care of a patient longitudinally requires an approach across the continuum of care and inevitably requires a team-based model with a multidisciplinary emphasis to better engage patients outside of office visits and relieve burden on frontline clinicians.

Hypertension remains a leading cause of cardiovascular morbidity and mortality worldwide. Effective self-care is essential for long-term blood pressure control and prevention of complications. This study aimed to assess the adequacy of self-care behaviors and identify associated predictors among adults with hypertension. A cross-sectional study was conducted among 393 adults with primary hypertension attending public primary care centers. Data were collected through structured interviews using the Self-Care of Hypertension Inventory, Multidimensional Scale of Perceived Social Support, and a validated hypertension knowledge questionnaire. Binary logistic regression was used to identify predictors of adequate self-care (≥70%). Although 71.6% of participants had good hypertension knowledge, only 26.7% demonstrated adequate self-care. Key barriers included emotional stress (98.0%), financial hardship (87.3%), and time constraints (78.4%). Significant predictors of adequate self-care included younger age (OR 0·939), being married (OR 2·48), employment (OR 0·697), fewer comorbidities (OR 0·552), controlled blood pressure (OR 0·370), higher knowledge (OR 0·949), and stronger social support (OR 1·054). This study identified self-care deficiencies among hypertensive patients, characterized by good knowledge but poor engagement in lifestyle modification, monitoring, and communication. Effective self-care was associated with younger age, family support, and higher knowledge, whereas older age, comorbidities, and blood pressure control impeded it. Emotional stress, financial hardship, and time constraints were key barriers, underscoring the need for comprehensive, multi-level strategies to enhance hypertension self-management.

The first project of the Action Network on Measuring Population and Organizational Health Literacy was the Health Literacy Population Survey 2019-2021 (HLS₁₉). Based on the HLS₁₉'s experience, improvements were needed to the communicative health literacy questionnaire before it could be used in the second wave of the HLS survey. Our aim was to test the comprehensibility of the Hungarian version of the revised questionnaire with cognitive interviews. Two questions caused comprehension problems: (1) discussing health information with your doctor from other sources such as internet, family and friends-participants found this question too long and difficult, so we changed the sentence structure to make it more understandable; (2) expressing personal views and preferences to your doctor-the interviewees misunderstood the question, they did not realize that we were referring to health-related personal views. During the translation process, it was challenging to convey the meaning of "health concern" in Hungarian, the version with examples in parentheses was deemed the most effective. The final version of the revised questionnaire seemed to be understandable and comprehensible.

This study analyzed 1221 patient feedback cases, comprising both complaints and consultations, received via a national public service platform at a major Chinese regional general hospital. While the total volume of feedback increased, the proportion of formal complaints declined as consultations rose, suggesting a shift toward proactive information-seeking behavior. Consultations most frequently involved hospital procedures and medical expenses, highlighting patients' growing need for guidance and system navigation support. Most complaints were related to hospital management, medical quality, and communication, with surgical departments and physicians most frequently cited. Seasonal peaks occurred in the third quarter. These findings offer valuable insights into evolving patient expectations and support targeted improvements in hospital communication, staffing, and feedback management systems.

Saudi Arabia's Vision 2030 and the National Health Insurance Scheme (NHIS) aim for a more equitable healthcare system. Public participation and health insurance literacy (HIL) are vital for its success, yet underserved areas like Al-Jouf lack research on these factors. This cross-sectional observational study was conducted with 408 adult Saudi citizens from public health clinics in Al-Jouf. A structured questionnaire assessed demographics, HIL, confidence in choosing (CCI), comparing (CCP), utilizing insurance (CUI), proactive behavior (PBS), and willingness to enroll in NHIS. Correlational analyses were performed using Spearman's correlation and multinomial logistic regression. Among participants, predominantly men (82.11%) aged 41 to 50 (21.81%), only 15.93% were enrolled in health insurance. Social media was the primary information source, and HIL scores were low to moderate. Significant correlations were observed between income and PBS (p = 0.015) and CCI (p = 0.021). Higher HIL and confidence positively influenced willingness to participate. The study underscores the gap between awareness and enrollment in NHIS, emphasizing the need for tailored interventions, particularly for low-income and unemployed individuals.