Journal of Medical Humanities最新文献

Illness narratives invite practitioners to understand how biomedical and traditional health information is incorporated, integrated, or otherwise internalized into a patient's own sense of self and social identity. Such narratives also reveal cultural values, underlying patterns in society, and the overall life context of the narrator. Most illness narratives have been examined from the perspective of European-derived genres and literary theory, even though theorists from other parts of the globe have developed locally relevant literary theories. Further, illness narratives typically examine only the experience of illness through acute or chronic suffering (and potential recovery). The advent of biomedical disease prevention methods like post- and pre-exposure prophylaxis (PEP and PrEP) for HIV, which require daily pill consumption or regular injections, complicates the notion of an illness narrative by including illness prevention in narrative accounts. This paper has two aims. First, we aim to rectify the Eurocentrism of existing illness narrative theory by incorporating insights from African literary theorists; second, we complicate the category by examining prevention narratives as a subset of illness narratives. We do this by investigating several narratives of HIV prevention from informants enrolled in an HIV prevention trial in Kenya and Uganda in 2022.

Coproduction of public policy involves bringing together technical experts, practitioners, and people with lived experience of that policy to collaboratively and deliberatively codesign it. Coproduction can leverage different ways of knowing and evaluative perspectives on a policy area to enhance the legitimacy and efficaciousness of policymaking. This article argues that researcher reflexivity is crucial for getting the most out of coproduction ethically and epistemically. By reflecting on our positionality, habitus, and biases, we can gain new insights into how we affect the research design, production and analysis of data, and communication of findings. This reflexivity helps to disrupt power dynamics that underly research and policymaking, helping to realise the radical potential of coproduction to democratise practice, empower citizens, and make research more relational. We demonstrate the value of reflexivity through an analysis of our work coproducing a theory of thriving in financial hardship in partnership with the UK national anti-poverty charity Turn2us. We contextualise our advocacy for reflexivity within the practical realities of advancing coproduction in the UK today.

Bharatanatyam is a traditional Indian dance form that involves the use of facial expressions and body movements to tell stories. A key aspect of Bharatanatyam is the use of hand gestures, also known as hastas, which are used to communicate with specificity and precision. Hastas are symbols, and along with facial expressions and body movements that are contextually relevant, they help to communicate narratives. I am a neuroscientist and have been immersed in Bharatanatyam for 25 years; true to the tradition of the form that emphasizes lifelong scholarship and immersion, I continue to learn from my gurus and supplement my dance training with the study of Carnatic music and Sanskrit. My journey in creative aging started after losing my mother and witnessing the lack of access to expressive movement that was available to her; for fear of falls, my previously-dynamic mother spent the last three months of her life without leaving the bed or feeling the sunshine on her skin. By using hastas in the context of creative aging, I describe how we can promote the acquisition of new skills, the physical benefits even in the face of arthritis and limited mobility, the ability to ascribe meaning to the gestures, and the capability to form new meanings and new gestures that are contemporary and relevant to the lives of older adults. Above all, we can engage older adults actively in the creation and appreciation of art.

This article focuses on the ways in which narrative accounts of loneliness in literature problematize current definitions of this important and yet underexplored determinant of health. I argue that the prevailing conceptualization of loneliness in health research, with a general emphasis on social prescribing, obscures other dimensions of loneliness beyond social connectedness that also need to be accounted for in its definition. Drawing on narrative approaches to health and care and taking as a case study Santiago Lorenzo's Spanish novel Los asquerosos (2018), the article gestures toward a more political-rather than exclusively subjective and relational-reading of loneliness. It shows how the novel's exploration of loneliness as an ambivalent experience of tranquility and disaffection questions whether there is any direct causation between loneliness and aloneness or social isolation, presenting loneliness not so much as a problem or a social pain in need of curing, but as a symptom of a larger structural crisis. The article also reflects on the ability of literary narratives to illuminate, discuss, and ultimately challenge the underlying dynamics of loneliness, raising questions about how we understand these narratives and the type of agency we attribute to them.