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Breaking Taboos: Arab Breast Cancer Activism in Art and Popular Culture 打破禁忌:艺术和大众文化中的阿拉伯乳腺癌活动
IF 0.9 N/A HUMANITIES, MULTIDISCIPLINARY Pub Date : 2024-09-13 DOI: 10.1007/s10912-024-09886-6
Abir Hamdar

This essay examines the breast cancer accounts of four Arab female celebrities who have spoken out in public about their illness experience: the Egyptian TV presenter Basma Wahba and the actress Yasmine Ghaith, the Iraqi actress Namaa al-Ward, and the Lebanese pop singer Elissa. By reading their testimonies against the backdrop of critical literature on illness narratives and memoirs, as well as on cancer narratives and activism, the essay asks: how are the accounts of these women’s cancer diagnosis and treatment disclosed and described? In what medium do they communicate and circulate their breast cancer experiences? What significance do these public disclosures have on challenging and breaking the Arab taboo of cancer? In conclusion, the essay argues that these women’s willingness to share their stories in public constitutes an important form of multimedia activist intervention—visual, sonic, and performative—that is playing a key role in the development of a breast cancer movement.

这篇文章研究了四位公开讲述自己患病经历的阿拉伯女性名人的乳腺癌经历:埃及电视节目主持人巴斯马-瓦赫巴(Basma Wahba)和女演员雅斯敏-盖斯(Yasmine Ghaith)、伊拉克女演员纳玛-沃德(Namaa al-Ward)以及黎巴嫩流行歌手伊丽莎(Elissa)。通过在有关疾病叙事和回忆录以及癌症叙事和行动主义的批评文献的背景下阅读她们的证词,文章提出了以下问题:这些妇女的癌症诊断和治疗情况是如何披露和描述的?她们通过什么媒介交流和传播自己的乳腺癌经历?这些公开披露对挑战和打破阿拉伯人的癌症禁忌有何意义?最后,文章认为,这些妇女愿意公开分享她们的故事,构成了一种重要的多媒体活动干预形式--视觉的、声音的和表演的--在乳腺癌运动的发展中发挥着关键作用。
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引用次数: 0
The Poetic Wavelength—Tuning into the Meaningful Poetics of Psychosis 诗意的波长--走进有意义的精神病诗学
IF 0.9 N/A HUMANITIES, MULTIDISCIPLINARY Pub Date : 2024-09-12 DOI: 10.1007/s10912-024-09896-4
Mark Pearson

Despite the emerging evidence base to support the therapeutic potential of creative writing and poetry for a variety of mental health problems, the therapeutic potential of poetry for people who have experienced psychosis remains poorly understood. The paper argues that by considering psychosis as meaningful poetics, this epistemological shift has the potential to foster curious inquiry and increase opportunities for meaningful dialogue. The paper introduces and explores the concept of the ‘poetic wavelength’, building on the previously established notion of the psychotic wavelength, which proposes that others need to ‘tune in’ to what is being communicated through psychosis. The concept of the poetic wavelength suggests that the reading and writing of poetry may support this process of ‘tuning in’ both for those experiencing psychosis and those working therapeutically with them.

尽管新出现的证据支持创意写作和诗歌对各种心理健康问题的治疗潜力,但人们对诗歌对精神病患者的治疗潜力仍然知之甚少。本文认为,通过将精神病视为有意义的诗学,这种认识论上的转变有可能促进好奇心的探究,并增加有意义对话的机会。本文以之前建立的精神病波长概念为基础,介绍并探讨了 "诗意波长 "的概念,该概念认为其他人需要 "调整 "自己,以适应精神病所传达的信息。诗歌波长 "的概念表明,诗歌的阅读和写作可以帮助精神病患者和治疗人员 "调整 "这一过程。
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引用次数: 0
New Chaotic Reality: Creative Writing Workshops for Long COVID Patients. 新混乱现实:为 COVID 长期患者举办的创意写作讲习班。
IF 1.2 N/A HUMANITIES, MULTIDISCIPLINARY Pub Date : 2024-09-09 DOI: 10.1007/s10912-024-09891-9
Ed Garland

In a widely cited 2017 study, Robinson et al. (2017) found that 'emotionally expressive' writing makes physical wounds heal faster when compared to writing that did not engage the emotions. The Writing Long COVID project at Aberystwyth University engaged similar territory in a recent pilot study. Participants' writing activities explored how literary production can affect a person's experience of this new chronic condition, as well as contribute to our understanding of its symptoms. In this short essay, I show how we designed a course of short-duration online workshops that increased accessibility for people with Long COVID-related fatigue. I also argue that future Long COVID creative activities should let their timing, venue, content, and structure be influenced by the preferences of the Long COVID patient. The preliminary study suggests that the traditional parameters of the writing workshop, including its duration, could deter participation in potentially beneficial creative activities.

在 2017 年一项被广泛引用的研究中,罗宾逊等人(2017 年)发现,与没有调动情感的写作相比,"情感表达型 "写作能使身体伤口愈合得更快。阿伯里斯特威斯大学的 "长期写作"(Writing Long COVID)项目在最近的一项试点研究中也涉及了类似的领域。参与者的写作活动探讨了文学创作如何影响人们对这种新型慢性疾病的体验,以及如何促进我们对其症状的理解。在这篇短文中,我将展示我们是如何设计一门短期在线研讨会课程,以提高长期慢性阻塞性肺病相关疲劳患者的可及性。我还认为,未来的 Long COVID 创造性活动应根据 Long COVID 患者的喜好来安排时间、地点、内容和结构。初步研究表明,写作工作坊的传统参数(包括持续时间)可能会阻碍人们参与可能有益的创造性活动。
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引用次数: 0
Edvard Munch and the Medicalization of Modern Life: Towards a Curatorial Medical Humanities. 爱德华-蒙克与现代生活的医学化:迈向策展医学人文。
IF 1.2 N/A HUMANITIES, MULTIDISCIPLINARY Pub Date : 2024-09-04 DOI: 10.1007/s10912-024-09893-7
Allison Morehead
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引用次数: 0
"Undoubtedly a race, but they are not human": Immuno-politics and the Recognition of the Jew as Pathogenic Nonself in Art Spiegelman's Maus. "无疑是一个种族,但他们不是人":免疫政治学与承认犹太人是阿特-斯皮盖尔曼《毛斯》中的非自我致病体。
IF 1.2 N/A HUMANITIES, MULTIDISCIPLINARY Pub Date : 2024-09-04 DOI: 10.1007/s10912-024-09881-x
Arindam Nandi

This article engages with the immuno-political juxtaposition of the healthy self and the pathogenic other to critically examine the representation of Nazis and Jews in Art Spiegelman's Pulitzer Prize-winning graphic novel Maus (1996). Written as a postmemory narrative, Maus recounts the horrors experienced by the author's father Vladek Spiegelman as a survivor of the Holocaust that claimed an approximate six million Jewish lives. Beginning with the years leading up to World War II, Spiegelman's novel reimagines the discrimination, dislocation, and dehumanization suffered by Vladek and his family at various prison camps in Nazi-occupied Poland before being transferred to Auschwitz. Deploying an immuno-political reading of Maus, this article investigates how the Third Reich undertook a systematic extermination of the Jewish race by construing them as immunological nonself or pathogenic others. It further argues that Nazism's fantasy of constructing a racially aseptic German identity by eradicating the Jews as vermin or parasites was reinforced by the late nineteenth-century eugenicist ideologies of racial hygiene. This article finally considers how policies of excessive immunization that was deployed by Nazi biopolitics against the Jewish community, as well as exercised by the Jews to survive the Holocaust, eventually assumed the form of an autoimmune pathology that culminated with the attempted destruction of the entire medico-juridical infrastructure of the German Reich on the one hand and the fostering of suicidal tendencies by the Jewish survivors on the other.

本文从免疫政治的角度,将健康的自我与致病的他者并置,批判性地研究了阿特-斯皮盖尔曼(Art Spiegelman)获得普利策奖的图画小说《毛斯》(Maus,1996 年)中纳粹和犹太人的形象。毛斯》以后记忆叙事的形式,叙述了作者的父亲弗拉迪克-斯皮格尔曼作为大屠杀幸存者所经历的恐怖,大屠杀夺去了约六百万犹太人的生命。斯皮格尔曼的小说从第二次世界大战前的岁月开始,再现了弗拉迪克和他的家人在被转移到奥斯威辛集中营之前,在纳粹占领下的波兰各个战俘营所遭受的歧视、颠沛流离和非人待遇。本文通过对《毛斯》的免疫政治学解读,研究了第三帝国是如何将犹太人视为免疫学上的非自我或致病的他者,从而对犹太人进行系统性灭绝的。文章进一步指出,纳粹主义幻想通过将犹太人作为害虫或寄生虫消灭来构建种族无菌的德国身份,而 19 世纪末优生主义的种族卫生意识形态强化了这一幻想。本文最后探讨了纳粹生物政治学针对犹太社区实施的过度免疫政策,以及犹太人为在大屠杀中幸存而实施的过度免疫政策,最终是如何形成一种自身免疫病理学,最终导致一方面试图摧毁德意志帝国的整个医疗-法学基础设施,另一方面又助长了犹太幸存者的自杀倾向。
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引用次数: 0
Moses's Code. 摩西法典
IF 1.2 N/A HUMANITIES, MULTIDISCIPLINARY Pub Date : 2024-09-02 DOI: 10.1007/s10912-024-09887-5
Elizabeth Toll

In this narrative essay, a happenstance encounter with a journal article rekindles the author's intense memories of a cardiac resuscitation 25 years earlier during internship. Recollections of observations, emotions, and professional interactions around this event prompt reflection about the painful experiences from training that remain seared into memory and the value of  these formative moments across a professional lifetime.

在这篇叙事性文章中,作者偶然邂逅了一篇期刊论文,重新唤起了他对 25 年前实习期间一次心脏复苏的强烈回忆。对这一事件的观察、情感和专业互动的回忆,引发了作者对培训期间痛苦经历的反思,这些痛苦经历已深深烙印在记忆中,而这些成长时刻的价值贯穿了作者的职业生涯。
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引用次数: 0
When Loneliness Came to Visit. 当孤独来拜访时
IF 1.2 N/A HUMANITIES, MULTIDISCIPLINARY Pub Date : 2024-09-01 Epub Date: 2024-06-07 DOI: 10.1007/s10912-024-09857-x
Marina Makram
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引用次数: 0
Medical Humanities and Disability Studies: In/Disciplines, by Stuart Murray. London: Bloomsbury Academic, 2023. 医学人文与残疾研究:In/Disciplines, by Stuart Murray.伦敦:布鲁姆斯伯里学术出版社,2023 年。
IF 1.2 N/A HUMANITIES, MULTIDISCIPLINARY Pub Date : 2024-09-01 Epub Date: 2024-05-11 DOI: 10.1007/s10912-024-09851-3
Kristi L Kirschner
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引用次数: 0
Justice, Equity, Diversity, Inclusion, and Belonging: A Health Humanities Consortium Initiative. 正义、公平、多样性、包容和归属感:健康人文联合会倡议。
IF 1.2 N/A HUMANITIES, MULTIDISCIPLINARY Pub Date : 2024-09-01 Epub Date: 2024-07-25 DOI: 10.1007/s10912-024-09854-0
Sarah L Berry, Samantha Chipman, Melanie E Gregg, Hailey Haffey, Neşe Devenot, Juliet McMullin

The Justice, Equity, Diversity, Inclusion, and Belonging (JEDIB) committee formed in 2022 in order to support diversity and inclusion in the Health Humanities Consortium and to advance best practices for equity and inclusion in the field of medical and health humanities. This Forum Essay describes our first year of work, including participant-led commitment statement crafting and strategic planning. Health humanities-specific JEDIB work is described in detail in essays about disability justice; gender, sex, sexuality, and reproductive justice; and Indigeneity from a decolonial standpoint. The authors offer transferable techniques for other organizations and institutions with particular attention to heath care and health professions education. Another essay analyzes US institutional and demographic data to show that as an academic program, health humanities gives robust indicators of contributing significantly to student diversity and inclusive success in higher education and medical education. The Forum closes with a reflection on joining the work of equity and inclusion and what new priorities and awareness can emerge to inform health equity scholarship and epistemic justice.

正义、公平、多样性、包容性和归属感(JEDIB)委员会成立于 2022 年,旨在支持健康人文联合会的多样性和包容性,并推动医学和健康人文领域的公平和包容性最佳实践。本论坛论文介绍了我们第一年的工作,包括由参与者主导的承诺声明起草和战略规划。在有关残疾公正、性别、性和生殖公正以及从非殖民化角度看土著性的文章中,详细介绍了 JEDIB 在健康人文方面的具体工作。作者为其他组织和机构提供了可借鉴的技术,尤其关注医疗保健和卫生专业教育。另一篇文章分析了美国的机构和人口数据,表明作为一门学术课程,健康人文科学在高等教育和医学教育中为学生的多样性和包容性成功做出了巨大贡献。论坛最后对加入公平与包容工作进行了反思,并提出了新的优先事项和认识,为健康公平学术研究和认识论正义提供了参考。
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引用次数: 0
A New Construct in Undergraduate Medical Education Health Humanities Outcomes: Humanistic Practice. 医学本科教育健康人文成果的新结构:人文实践。
IF 1.2 N/A HUMANITIES, MULTIDISCIPLINARY Pub Date : 2024-09-01 Epub Date: 2024-05-16 DOI: 10.1007/s10912-024-09847-z
Rebecca L Volpe, Bernice L Hausman, Katharine B Dalke

Proposed educational outcomes for the health humanities in medical education range from empathy to visual thinking skills to social accountability. This lack of widely agreed-upon high-level curricular goals limits humanities educators' ability to design purposeful curricula toward clear, common ends and threatens justifications for scarce curricular time. We propose a novel approach to the hoped-for outcomes of health humanities training in medical schools, which has the potential to encompass traditional health humanities knowledge, skills, and behaviors while also being concrete and measurable: humanistic practice. Humanistic practice, adapted from the concept of ethical sensitivity, is an intentional process of applying humanities knowledge and skills to a clinical scenario by 1) noticing that the scenario requires humanities knowledge or skills, 2) informing one's clinical and interpersonal strategy and behavior with humanities knowledge or skills, 3) reflecting on the effectiveness of the strategy and behavior, and 4) reorienting to develop new approaches for future practice. The construct of humanistic practice may help address some of the foundational problems in health humanities outcomes research since it transcends the traditional diverse content domains in the health humanities, can link patient and provider experiences, and may bridge the divide among the additive, curative, and intrinsic epistemic positions of humanities to medical education.

医学教育中健康人文教育成果的建议范围很广,从移情到形象思维技能,再到社会责任。由于缺乏广泛认同的高层次课程目标,限制了人文教育者设计目的明确、目标一致的课程的能力,并威胁到稀缺课程时间的合理性。我们为医学院校健康人文培训的预期成果提出了一种新的方法,它有可能涵盖传统的健康人文知识、技能和行为,同时也是具体和可衡量的:人文实践。人文实践改编自伦理敏感性的概念,是一种有意识地将人文知识和技能应用于临床情景的过程,具体做法是:1)注意到该情景需要人文知识或技能;2)用人文知识或技能指导自己的临床和人际交往策略与行为;3)反思策略与行为的有效性;4)调整方向,为未来的实践开发新的方法。人文实践的概念可以帮助解决健康人文成果研究中的一些基本问题,因为它超越了传统健康人文的不同内容领域,可以将患者和提供者的经验联系起来,并可以弥合医学教育中人文的附加、治疗和内在认识论立场之间的鸿沟。
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引用次数: 0
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Journal of Medical Humanities
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