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Influence of Generational Cohorts on the Preferences for Information and Communication Technologies in Latin American Patients with Obstructive Lung Diseases. 代际队列对拉丁美洲阻塞性肺病患者信息和通信技术偏好的影响
IF 4.4 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2020-01-23 eCollection Date: 2020-01-01 DOI: 10.1155/2020/2489890
Ivan Cherrez-Ojeda, Valeria L Mata, Emanuel Vanegas, Miguel Felix, Jonathan A Bernstein, Fanny M Jiménez, Juan Carlos Calderon, Peter Chedraui, Antonio Wd Gavilanes

Background: Advances in information and communication technologies (ICTs) represent a growing platform for the expansion of healthcare related services, but there is little information on how generational differences might account for distinct patterns of use and interest for ICTs. Our study aims to achieve a better understanding on how generational cohorts might influence the use and preferences for ICTs among patients with obstructive lung diseases in Latin America.

Materials and methods: We conducted an anonymous cross-sectional survey-based study, involving 968 patients with obstructive lung diseases (OLD) in Latin America. Patients rated their frequency of use and preferences of ICTs through a modified version of the Michigan Questionnaire. Chi-square test for association and adjusted regression analyses were performed.

Results: Of all, 63.6% of participants had Internet access. Younger generations, in particular Generation Z and Millennials, had the highest rate of Internet access and smartphone ownership, as well as of overall frequency of ICT use. Web-based Internet was found to be the main source to seek information about the disease (36.9%) across all generational cohorts. Generation Z and Millennials presented the highest odds to be interested in using Twitter (OR 31.79 and 8.86) for receiving health-related information, and email (OR 4.87 and 4.86) as the preferred way to ask physicians information related to their disease through ICTs.

Conclusion: Generational cohorts influence the use and preferences for ICTs among patients with obstructive lung diseases. Younger generational cohorts were associated with higher access to the Internet and smartphone ownership, as well as higher interest for using ICTs to receive and ask for health-related information.

背景:信息和通信技术(ict)的进步为扩大医疗保健相关服务提供了一个日益增长的平台,但关于代际差异如何解释ict使用和兴趣的不同模式的信息却很少。我们的研究旨在更好地了解代际队列如何影响拉丁美洲阻塞性肺病患者对ict的使用和偏好。材料和方法:我们进行了一项匿名横断面调查研究,涉及拉丁美洲968例阻塞性肺疾病(OLD)患者。患者通过修改版的密歇根问卷对其使用信息通信技术的频率和偏好进行评分。对关联进行卡方检验和校正回归分析。结果:63.6%的参与者可以上网。年轻一代,尤其是Z世代和千禧一代,拥有互联网和智能手机的比例最高,使用信息通信技术的总体频率也最高。基于网络的互联网被发现是所有世代人群寻求疾病信息的主要来源(36.9%)。Z世代和千禧一代对使用Twitter (OR 31.79和8.86)接收健康相关信息感兴趣的几率最高,而电子邮件(OR 4.87和4.86)是通过ict向医生询问疾病相关信息的首选方式。结论:代际队列影响阻塞性肺病患者对ict的使用和偏好。年轻一代人群上网和智能手机拥有率较高,对使用信息通信技术接收和询问健康相关信息的兴趣也较高。
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引用次数: 2
Wearable Measurement of ECG Signals Based on Smart Clothing. 基于智能服装的可穿戴式心电信号测量。
IF 4.4 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2020-01-18 eCollection Date: 2020-01-01 DOI: 10.1155/2020/6329360
Ming Li, Wei Xiong, Yongjian Li

Smart clothing that can measure electrocardiogram (ECG) signals and monitor the health status of people meets the needs of our increasingly aging society. However, the conventional measurement of ECG signals is complicated and its electrodes can cause irritation to the skin, which makes the conventional measurement method unsuitable for applications in smart clothing. In this paper, a novel wearable measurement of ECG signals is proposed. There are only three ECG textile electrodes knitted into the fabric of smart clothing. The acquired ECG signals can be transmitted to a smartphone via Bluetooth, and they can also be sent out to a PC terminal by a smartphone via WiFi or Internet. To get more significant ECG signals, the ECG differential signal between two electrodes is calculated based on a spherical volume conductor model, and the best positions on the surface of a human body for two textile electrodes to measure ECG signals are simulated by using the body-surface potential mapping (BSPM) data. The results show that position 12 in the lower right and position 11 in the upper left of the human body are the best for the two electrodes to measure ECG signals, and the presented wearable measurement can obtain good performance when one person is under the conditions of sleeping and jogging.

能够测量心电图(ECG)信号并监测人们健康状况的智能服装满足了我们日益老龄化的社会的需求。然而,传统的心电信号测量方法复杂,电极对皮肤有刺激作用,不适合应用于智能服装。本文提出了一种新的可穿戴式心电信号测量方法。智能服装面料中只编织了三个ECG纺织电极。采集到的心电信号可以通过蓝牙传输到智能手机,也可以通过WiFi或互联网由智能手机发送到PC终端。为了获得更显著的心电信号,基于球形体积导体模型计算了两个电极之间的心电差分信号,并利用体表电位映射(BSPM)数据模拟了两个织物电极在人体表面上测量心电信号的最佳位置。结果表明,人体右下方的12位和左上方的11位是两种电极测量心电信号的最佳位置,所提出的可穿戴测量在一人睡眠和慢跑的情况下均能获得较好的性能。
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引用次数: 27
App-Based Tele Ophthalmology: A Novel Method of Rural Eye Care Delivery Connecting Tertiary Eye Care Center and Vision Centers in India. 基于应用程序的远程眼科:一种连接印度三级眼科保健中心和视力中心的农村眼科保健服务的新方法。
IF 4.4 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2019-12-18 eCollection Date: 2019-01-01 DOI: 10.1155/2019/8107064
Anthony Vipin Das, Shravani Mididoddi, Priyanka Kammari, Navya Deepthi Davara, Abhinav Loomba, Rohit Khanna, Mukesh Taneja

Purpose: The study aims to describe a novel method of utilization of the eyeSmart EMR (electronic medical record) app. It describes the demographic distribution, clinical presentation, query requested by the vision technician, and management advised to the patients by using "eyeSmart EMR" app from the vision centers located across a three-tier eye care network in India.

Methods: This is a retrospective review of all patients who required a tele-ophthalmology consultation from January 2017 to August 2018. The demographic, clinical details, and the impact of teleophthalmology using eyeSmart app, in the vision centers of a three-tier eye care network, was analyzed in detail.

Results: A total of 15,001 tele-ophthalmology consults were included which is from January 2017 to August 2018. The mean age was 38 ± 19 years and male to female ratio was 1 : 2. Video calls were performed for 6191 (41.27%) consults and the impact was measured. Additional clinical information was received in 65.61% consults through video call. Medical management was advised in 47.07% of patients and 30.30% were referred to higher centers for medical intervention and 0.59% were referred for surgical intervention, 16.23% were prescribed glasses. No intervention required for 0.69% of cases. Hence nil intervention was advised.

Conclusion: The combination of using tablet and video calls with the help of eyeSmart EMR app is a novel method in teleophthalmology. It helps in connecting the patients at rural areas and the ophthalmologists in higher centers. The use of technology plays a vital role in the appropriate medical management of the patient.

目的:本研究旨在描述一种利用eyeesmart EMR(电子病历)应用程序的新方法。它描述了人口分布、临床表现、视力技术员要求的查询,以及通过使用位于印度三级眼科保健网络的视力中心的“eyeesmart EMR”应用程序向患者提出的管理建议。方法:回顾性分析2017年1月至2018年8月所有需要远程眼科会诊的患者。详细分析了在三级眼科保健网络的视力中心使用eyeSmart应用程序进行远程眼科的人口统计、临床细节和影响。结果:2017年1月至2018年8月共纳入远程眼科会诊15001例。平均年龄38±19岁,男女比例为1:2。对6191例(41.27%)咨询者进行了视频通话,并测量了影响。65.61%的问诊者通过视频电话获得额外的临床信息。47.07%的患者接受了医疗管理,30.30%的患者转诊到高等医疗中心接受医疗干预,0.59%的患者转诊到外科干预,16.23%的患者配戴了处方眼镜。0.69%的病例无需干预。因此不建议干预。结论:利用平板电脑与视频通话相结合,借助eyeSmart EMR app进行远程眼科检查是一种新颖的方法。它有助于将农村地区的患者与高等中心的眼科医生联系起来。技术的使用在患者的适当医疗管理中起着至关重要的作用。
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引用次数: 18
Physicians' Attitude towards The Use of Social Media for Professional Purposes in Saudi Arabia. 沙特阿拉伯医生对出于专业目的使用社交媒体的态度
IF 4.4 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2019-12-02 eCollection Date: 2019-01-01 DOI: 10.1155/2019/6323962
Turki Alanzi, Susan Al-Yami

Purpose: In relation to this research, only a few studies have been carried out around the world. However, in Saudi Arabia, there have been no investigations into this subject. In this sense, the objective of this study was to investigate the physicians' attitudes towards the use of social media for professional purposes in Saudi Arabia.

Methods: A cross-sectional study was conducted among 235 physicians from different regions of Saudi Arabia. The data were collected by means of a survey. The survey questionnaire was distributed using the WhatsApp application. Descriptive statistics were used to analyze the results.

Results: The most common social media used by the respondents was Facebook, and the majority of the participants agreed that social media improved their knowledge and skills. However, most of the participants did not interact with patients using these tools, did not feel comfortable conducting an online consultation, and believed that social media affected the choice of the healthcare provider. Similarly, 30.6% of the respondents opined that it is not appropriate to search online information about patients, and 44.3% of them considered that patients would not trust the medical advice if a physician obtained the information from a website.

Conclusion: The results showed that the majority of the respondents considered that social media improved the knowledge and abilities of physicians. In addition, the respondents reflected that there were ethical issues that must be taken into account when using social media and more than half of them did not interact with their patients employing these tools. The outcomes of this research will help to develop programs directed at the physicians in Saudi Arabia to enhance their knowledge, professional skills, medicine practice, patient-doctor interaction, and handle the risks involved in the use of social media.

目的:关于本研究,在世界范围内只进行了少数研究。然而,在沙特阿拉伯,没有对这一问题进行调查。从这个意义上说,本研究的目的是调查沙特阿拉伯医生对出于专业目的使用社交媒体的态度。方法:对来自沙特阿拉伯不同地区的235名医生进行了横断面研究。这些资料是通过调查收集的。使用WhatsApp应用程序分发调查问卷。采用描述性统计方法对结果进行分析。结果:受访者最常使用的社交媒体是Facebook,大多数参与者认为社交媒体提高了他们的知识和技能。然而,大多数参与者没有使用这些工具与患者互动,对进行在线咨询感到不舒服,并认为社交媒体影响了医疗保健提供者的选择。同样,30.6%的受访者认为在网上搜索患者信息是不合适的,44.3%的受访者认为如果医生从网站上获取信息,患者不会相信医生的医疗建议。结论:结果显示,大多数受访者认为社交媒体提高了医生的知识和能力。此外,受访者反映,在使用社交媒体时必须考虑道德问题,超过一半的人没有与使用这些工具的患者互动。这项研究的结果将有助于制定针对沙特阿拉伯医生的计划,以提高他们的知识,专业技能,医学实践,医患互动,并处理使用社交媒体所涉及的风险。
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引用次数: 31
Multi-Sensor-Fusion Approach for a Data-Science-Oriented Preventive Health Management System: Concept and Development of a Decentralized Data Collection Approach for Heterogeneous Data Sources 面向数据科学的预防性健康管理系统的多传感器融合方法:异构数据源的分散数据收集方法的概念和开发
IF 4.4 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2019-10-08 DOI: 10.1155/2019/9864246
S. Neubert, André Geißler, T. Roddelkopf, R. Stoll, Karl-Heinz Sandmann, Julius Neumann, K. Thurow
Investigations in preventive and occupational medicine are often based on the acquisition of data in the customer's daily routine. This requires convenient measurement solutions including physiological, psychological, physical, and sometimes emotional parameters. In this paper, the introduction of a decentralized multi-sensor-fusion approach for a preventive health-management system is described. The aim is the provision of a flexible mobile data-collection platform, which can be used in many different health-care related applications. Different heterogeneous data sources can be integrated and measured data are prepared and transferred to a superordinated data-science-oriented cloud-solution. The presented novel approach focuses on the integration and fusion of different mobile data sources on a mobile data collection system (mDCS). This includes directly coupled wireless sensor devices, indirectly coupled devices offering the datasets via vendor-specific cloud solutions (as e.g., Fitbit, San Francisco, USA and Nokia, Espoo, Finland) and questionnaires to acquire subjective and objective parameters. The mDCS functions as a user-specific interface adapter and data concentrator decentralized from a data-science-oriented processing cloud. A low-level data fusion in the mDCS includes the synchronization of the data sources, the individual selection of required data sets and the execution of pre-processing procedures. Thus, the mDCS increases the availability of the processing cloud and in consequence also of the higher level data-fusion procedures. The developed system can be easily adapted to changing health-care applications by using different sensor combinations. The complex processing for data analysis can be supported and intervention measures can be provided.
预防医学和职业医学的调查往往基于对客户日常生活数据的采集。这需要方便的测量解决方案,包括生理,心理,身体,有时情绪参数。本文介绍了一种用于预防性健康管理系统的分散多传感器融合方法。其目的是提供一个灵活的移动数据收集平台,可用于许多不同的保健相关应用。可以集成不同的异构数据源,准备测量的数据并将其传输到面向数据科学的超级云解决方案。提出的新方法侧重于在移动数据采集系统(mDCS)上集成和融合不同的移动数据源。这包括直接耦合的无线传感器设备,通过供应商特定的云解决方案(例如,美国旧金山的Fitbit和芬兰埃斯波的诺基亚)提供数据集的间接耦合设备,以及获取主观和客观参数的问卷调查。mDCS的功能是作为用户特定的接口适配器和从面向数据科学的处理云分散的数据集中器。mDCS中的低级数据融合包括数据源的同步、所需数据集的单独选择和预处理程序的执行。因此,mDCS增加了处理云的可用性,从而也增加了更高级别数据融合过程的可用性。通过使用不同的传感器组合,开发的系统可以很容易地适应不断变化的医疗保健应用。为复杂的数据分析处理提供支持,并提供干预措施。
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引用次数: 10
Acceptability and Attitude towards a Mobile-Based Home Exercise Program among Stroke Survivors and Caregivers: A Cross-Sectional Study. 脑卒中幸存者和护理人员对移动家庭运动项目的接受度和态度:一项横断面研究。
IF 4.4 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2019-05-02 eCollection Date: 2019-01-01 DOI: 10.1155/2019/5903106
Amreen Mahmood, Vevita Blaizy, Aparajita Verma, Joel Stephen Sequeira, Dola Saha, Selvam Ramachandran, N Manikandan, Bhaskaran Unnikrishnan, John M Solomon

Background: Stroke is a leading cause of disability and requires continued care after hospital discharge. Mobile-based interventions are suitable to reduce the cost of stroke rehabilitation and facilitate self-management among stroke survivors. However, before attempting to use mobile-based home exercise program, it is crucial to recognize the readiness of stroke survivors and their caregivers to opt for such interventions.

Objective: To assess the acceptability and attitude towards a mobile-based home exercise program among stroke survivors and their primary caregivers.

Methods: A cross-sectional study was conducted among 102 participants to understand their attitude and acceptability towards mobile-based home exercise program. A validated 10-item questionnaire was adapted for the study. The questions which assessed the attitude were rated on a three-point Likert scale, with three denoting agree and one denoting disagree. The acceptability was assessed by their willingness to opt for a mobile-based home program services. A Chi-square analysis and cross-tabulation were performed to test differences between caregivers and patients. A logistic regression was performed to determine the effects of age, gender, and mobile phone on acceptability.

Results: Ninety-two percent of caregivers and 90% of patients showed willingness to opt for mobile-based intervention. Majority of the participants showed a positive attitude towards this mode of treatment. There was no difference in the attitude noted among caregivers and patients (p>0.05) towards mobile-based intervention.

Conclusion: The stroke survivors and caregivers welcomed the concept of mobile-based home exercise program even in a low-resource settings, but further studies to understand treatment and cost-effectiveness of this technology among the stroke survivors would lead to better implementation.

背景:脑卒中是致残的主要原因,出院后需要继续护理。基于移动的干预措施适合于降低卒中康复的成本,并促进卒中幸存者的自我管理。然而,在尝试使用基于移动的家庭锻炼计划之前,认识到中风幸存者及其护理人员是否愿意选择这种干预措施是至关重要的。目的:评估卒中幸存者及其主要照顾者对基于移动的家庭锻炼计划的接受程度和态度。方法:对102名被试进行横断面调查,了解他们对移动家庭运动的态度和接受程度。本研究采用了一份经过验证的10项问卷。评估态度的问题用李克特量表打分,3分表示同意,1分表示不同意。可接受性是通过他们选择基于移动的家庭计划服务的意愿来评估的。采用卡方分析和交叉表来检验护理人员和患者之间的差异。进行逻辑回归以确定年龄、性别和移动电话对可接受性的影响。结果:92%的护理人员和90%的患者表示愿意选择基于移动的干预。大多数参与者对这种治疗方式持积极态度。护理人员和患者对移动干预的态度差异无统计学意义(p>0.05)。结论:即使在资源匮乏的环境下,中风幸存者和护理人员也欢迎基于移动的家庭锻炼项目的概念,但进一步研究了解这项技术在中风幸存者中的治疗和成本效益将导致更好的实施。
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引用次数: 15
Use of a Tablet Attachment in Teleophthalmology for Real-Time Video Transmission from Rural Vision Centers in a Three-Tier Eye Care Network in India: eyeSmart Cyclops. 在印度三级眼保健网络的农村视力中心使用平板附件进行远程眼科实时视频传输:eyeSmart Cyclops。
IF 4.4 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2019-04-01 eCollection Date: 2019-01-01 DOI: 10.1155/2019/5683085
Abhinav Loomba, Sandeep Vempati, NavyaDeepthi Davara, M Shravani, Priyanka Kammari, Mukesh Taneja, Anthony Vipin Das

Purpose: This study describes the development of an attachment for a smart tablet to stream live video information of an eye examination through the slit lamp.

Methods: A tablet attachment was developed that enables the live streaming of video from the slit lamp from the rural vision centers of the LVPEI network. A video streaming solution like Skype Lite was used to transmit the same. The eyeSmart app was utilized for the documentation of the clinical information of the patients.

Results: A tablet attachment of eyeSmart Cyclops was developed and piloted in 3 vision centers of the LVPEI network.

Conclusion: The use of real-time video transmission illustrates a novel teleophthalmology solution in low resource settings to screen rural populations. The ability to transmit live video enables gathering more information than static images.

目的:本研究描述了一种用于智能平板电脑的附件的开发,该附件可以通过裂隙灯传输眼部检查的实时视频信息。方法:开发了一种平板附件,可以实现LVPEI网络农村视觉中心裂隙灯的视频直播。像Skype Lite这样的视频流解决方案被用来传输相同的内容。eyeSmart应用程序用于记录患者的临床信息。结果:在LVPEI网络的3个视觉中心开发并试用了eyeSmart Cyclops平板附着体。结论:实时视频传输的使用说明了在低资源环境下对农村人口进行筛查的一种新型远程眼科解决方案。传输实时视频的能力可以收集比静态图像更多的信息。
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引用次数: 12
Application of Modified PageRank Algorithm for Anomaly Detection in Movements of Older Adults. 改进PageRank算法在老年人运动异常检测中的应用。
IF 4.4 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2019-03-11 eCollection Date: 2019-01-01 DOI: 10.1155/2019/8612021
Shahram Payandeh, Eddie Chiu

It is a well-known statistic that the percentage of our older adult population will globally surpass the other age groups. A majority of the elderly would still prefer to keep an active life style. In support of this life style, various monitoring systems are being designed and deployed to have a seamless integration with the daily living activities of the older adults while preserving various levels of their privacy. Motion tracking is one of these health monitoring systems. When properly designed, deployed, integrated, and analyzed, they can be used to assist in determining some onsets of anomalies in the health of elderly at various levels of their Movements and Activities of Daily Living (MADL). This paper explores how the framework of the PageRank algorithm can be extended for monitoring the global movement patterns of older adults at their place of residence. Through utilization of an existing dataset, the paper shows how the movement patterns between various rooms can be represented as a directed graph with weighted edges. To demonstrate how PageRank can be utilized, a base graph representing a normal pattern can be defined as what can be used for further anomaly detection (e.g., at some instances of observation the measured movement pattern deviates from what is previously defined as a normal pattern). It is shown how the PageRank algorithm can detect simulated change in the pattern of motion when compared with the base-line normal pattern. This feature can offer a practical approach for detecting anomalies in movement patterns associated with older adults in their own place of residence and in support of aging in place paradigm.

这是一个众所周知的统计数据,我们老年人口的百分比将超过全球其他年龄组。大多数老年人仍然喜欢保持积极的生活方式。为了支持这种生活方式,各种监控系统正在设计和部署,以便与老年人的日常生活活动无缝结合,同时保护他们不同程度的隐私。运动跟踪就是其中一种健康监测系统。当适当设计、部署、集成和分析时,它们可用于帮助确定老年人在不同水平的运动和日常生活活动(MADL)中健康异常的一些发作。本文探讨了如何扩展PageRank算法的框架,以监测老年人在其居住地的全球移动模式。利用现有的数据集,展示了如何将不同房间之间的移动模式表示为带有加权边的有向图。为了演示如何利用PageRank,可以将表示正常模式的基础图定义为可用于进一步异常检测的基础图(例如,在某些观察实例中,测量的移动模式偏离了先前定义的正常模式)。它显示了PageRank算法如何在与基线正常模式比较时检测运动模式的模拟变化。该功能可以提供一种实用的方法,用于检测与老年人在自己的居住地相关的运动模式异常,并支持原地老龄化范式。
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引用次数: 6
Corrigendum to "A Way to Understand Inpatients Based on the Electronic Medical Records in the Big Data Environment". 《一种基于大数据环境下电子病历的住院患者认识方法》的勘误表。
IF 4.4 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2019-01-20 eCollection Date: 2019-01-01 DOI: 10.1155/2019/4598179
Hongyi Mao, Yang Sun

[This corrects the article DOI: 10.1155/2017/9185686.].

[这更正了文章DOI: 10.1155/2017/9185686.]。
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引用次数: 1
Patient Perspectives on Health Data Privacy and Management: "Where Is My Data and Whose Is It?" 患者对健康数据隐私和管理的看法:“我的数据在哪里,它是谁的?”
IF 4.4 Q2 HEALTH CARE SCIENCES & SERVICES Pub Date : 2018-12-02 eCollection Date: 2018-01-01 DOI: 10.1155/2018/3838747
Mart Wetzels, Eva Broers, Peter Peters, Loe Feijs, Jos Widdershoven, Mirela Habibovic

New technologies are increasingly evaluated for use within the clinical practice to monitor patients' medical and lifestyle data. This development could contribute to a more personalized approach to patient care and potentially improve health outcomes. To date, patient perspective on this development has mostly been neglected in the literature. Hence, this study aims to shed more light on the patient perspective on health data privacy and management. Focus groups with cardiac patients were done at the Elizabeth TweeSteden Ziekenhuis (ETZ) in the Netherlands as part of the DoCHANGE project. The focus groups were conducted using a semistructured protocol which was organized around three themes: privacy regulations, data storage, and transparency and privacy management. Five focus groups with a total of 23 patients were conducted. The majority of the patients preferred to have access to their medical data; however, the knowledge on who has access to data was limited. Patients indicated that they do not want to share their medical data with health insurance companies or the pharmaceutical industry. Furthermore, most patients do not see the added value of supplementing their medical dossier with lifestyle data. Current findings showed patients prefer access to and control over own data but that the knowledge concerning data privacy and management is limited. Sharing of non-medical health data (e.g.,, physical activity) was considered unnecessary. Future studies should address patient preferences and develop infrastructure which facilitates medical data access for patients.

越来越多的新技术被评估用于临床实践中,以监测患者的医疗和生活方式数据。这一发展可能有助于更个性化的病人护理方法,并有可能改善健康结果。到目前为止,患者对这一发展的看法在文献中大多被忽视。因此,本研究旨在更多地阐明患者对健康数据隐私和管理的看法。作为DoCHANGE项目的一部分,在荷兰的Elizabeth TweeSteden Ziekenhuis (ETZ)对心脏病患者进行了焦点小组研究。焦点小组使用半结构化协议进行,该协议围绕三个主题组织:隐私法规,数据存储以及透明度和隐私管理。共进行了5个焦点组,共23例患者。大多数患者希望能够获得他们的医疗数据;但是,关于谁有权访问数据的知识有限。患者表示,他们不想与健康保险公司或制药行业分享他们的医疗数据。此外,大多数患者没有看到用生活方式数据补充他们的医疗档案的附加价值。目前的研究结果显示,患者更喜欢访问和控制自己的数据,但有关数据隐私和管理的知识有限。共享非医疗健康数据(例如,体育活动)被认为是不必要的。未来的研究应解决患者的偏好,并开发便于患者访问医疗数据的基础设施。
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引用次数: 8
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International Journal of Telemedicine and Applications
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