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Treatment for multiple myeloma in hospital at home: clinical characteristics and patient care pathways. 多发性骨髓瘤在家庭医院的治疗:临床特点和患者护理途径。
IF 1.4 Q2 Nursing Pub Date : 2022-04-01 Epub Date: 2022-01-03 DOI: 10.1080/01621424.2021.2023063
Bénédicte Mittaine-Marzac, Matthieu De Stampa, Odile Marquestaut, Alexandre Georges, Joel Ankri, Philippe Aegerter

While most patients receive anticancer injection in a conventional hospital, some are treated in hospital at home. Given the lack of data, we seek to determine the clinical characteristics and care pathways of patients benefiting from hospital at home (HAH) for anticancer injection. A longitudinal scheme was conducted about patients with multiple myeloma (MM) starting bortezomib-based regimens in HAH in 2015 with a follow-up to September 2019. 154 patients received bortezomib at home with a mean age of 70.6 years, 72.7% over 65y-old and, a median Karnofsky Performans Status of 70. One-third of the elderly lived alone, 16.1% required domestic help. After a 24-month follow-up, 77.9% of patients were alive. The median overall survival was not reached at 4 years. Between 42.1% and 48.1% of patients returned to HAH for a new line of treatment. Patients were mainly independent and "fit." The involvement of HAH was achieved without safety issues nor compromise long-term outcomes. However, the real-world patterns highlighted that only a small proportion of patients returned to HAH for a new treatment line.

虽然大多数患者在传统医院接受抗癌注射,但有些患者在家中接受治疗。鉴于缺乏数据,我们试图确定从家庭医院(HAH)中受益的患者的临床特征和护理途径。对2015年在HAH开始以硼替佐米为基础的方案的多发性骨髓瘤(MM)患者进行了纵向方案,随访至2019年9月。154例患者在家中接受硼替佐米治疗,平均年龄为70.6岁,72.7%的患者年龄超过65岁,Karnofsky评分中位数为70。三分之一的长者独居,16.1%的长者需要家务协助。经过24个月的随访,77.9%的患者存活。中位总生存期未达到4年。42.1%到48.1%的患者回到医院接受新的治疗。患者主要是独立且“健康”的。HAH的介入在没有安全问题的情况下实现,也没有影响长期结果。然而,现实世界的模式强调,只有一小部分患者返回到HAH新的治疗线。
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引用次数: 1
Medication errors and processes to reduce them in care homes in the United Kingdom: a scoping review. 药物错误和过程,以减少他们在护理院在英国:范围审查。
IF 1.4 Q2 Nursing Pub Date : 2022-04-01 Epub Date: 2022-01-24 DOI: 10.1080/01621424.2021.2007196
Malcolm William Irons, Asa Auta, Jane Caroline Portlock, Andrea Manfrin

Medicines-related incidents are a leading cause of preventable harm across all patient groups, including care home residents. Despite national guidance, there is little information on assessing medication error rates and evaluating changes to reduce them. This review explored the scientific and gray literature on medicine-related incidents, causation and evaluation of changes in care homes in the United Kingdom. The research identified 2951 documents, 32 analyzed; some of them covered more than one area. Seven reported rate and causes, eleven causes, eleven made recommendations, and four reported the evaluation of changes to processes and systems. Three areas emerged; 1) medicine-related incident rates ranged between 1% and 38%, 2) incident rates increased where formulations were not tablets or capsules ranging from 12% to 50% depending on the formulation, 3) three evaluations of changes aimed at reducing medicine incidents. Therefore, information on medicine-related incidents in care homes is available, but not systematically described.

药物相关事件是所有患者群体(包括护理院居民)可预防伤害的主要原因。尽管有国家指导,但关于评估用药错误率和评估减少错误率的变化的信息很少。这篇综述探讨了科学和灰色文献的医学相关事件,因果关系和评估的变化在英国的养老院。该研究确定了2951份文件,分析了32份;其中一些覆盖了不止一个区域。7个报告了比率和原因,11个报告了原因,11个提出了建议,4个报告了对过程和系统变化的评估。出现了三个领域;1)药物相关的事件发生率在1%到38%之间,2)非片剂或胶囊制剂的事件发生率增加,根据制剂的不同,从12%到50%不等,3)旨在减少药物事件的三个变化评估。因此,关于护理院中与药物有关的事件的信息是可用的,但没有系统地描述。
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引用次数: 1
Belonging through a communicative lens in dementia caregiving: qualitative study of autobiographical caregivers narratives 痴呆症护理中的交际归属:自传体护理者叙事的定性研究
IF 1.4 Q2 Nursing Pub Date : 2022-03-28 DOI: 10.1080/01621424.2022.2053769
Sabrina Singh
ABSTRACT This qualitative study examined 23 autobiographical narratives to understand how dementia caregivers discursively construct a sense of belonging through In this study, belonging is understood as an individual feeling valued by a group that is communicatively enacted by both the individual and members of the group. This exploratory study revealed two characteristics of belonging as a communicative concept: (a) two-way street and (b) multi-faceted. Findings suggest that belonging is a more nuanced concept than previously thought.
摘要:这项定性研究考察了23种自传体叙事,以了解痴呆症护理者如何通过话语构建归属感。在这项研究中,归属感被理解为一种由群体重视的个人感觉,由个人和群体成员共同传播。这项探索性研究揭示了归属作为一种交际概念的两个特征:(a)双向性和(b)多方面性。研究结果表明,归属感是一个比以前认为的更微妙的概念。
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引用次数: 0
Psychometric properties of the Persian version of the attitude scale for home care: a study of reliability and validity. 波斯语家庭护理态度量表的心理测量特性:信度和效度研究。
IF 1.4 Q2 Nursing Pub Date : 2022-01-01 Epub Date: 2021-09-01 DOI: 10.1080/01621424.2021.1972891
Fatemeh Jafari Pour, Behnam Alizadeh, Pınar Duru, Leila Masoudiyekta, Bita Falahi, Tahereh Toulabi

It is important to evaluate nursing students' attitudes toward home care to improve home health nursing profession and increase the number of nursing students willing to work in home care in the future. However, there is no valid and reliable scale for measuring attitudes toward this care method in Iran. This study aimed to determine the psychometric properties of the Persian version of the Attitude Scale for Home Care (ASHC) for nursing students. Data were collected from 280 nursing students. A methodological study was conducted to assess face, content and construct validity and reliability. The results showed good content validity. Only item 17 was considered unfavorable and was omitted. After excluding three items in the confirmatory factor analysis, a 25-item model with good fit indices was obtained. Cronbach's alpha showed a high internal consistency. This is a valid and reliable scale for assessing nursing students' attitudes toward home care.

评估护生对家庭护理的态度,对提高家庭健康护理专业水平,增加未来愿意从事家庭护理工作的护生人数具有重要意义。然而,在伊朗没有有效和可靠的量表来衡量对这种护理方法的态度。本研究旨在确定波斯语版家庭护理态度量表(ASHC)对护理学生的心理测量特性。数据收集自280名护理专业学生。本研究采用方法学研究方法,对研究内容、内容、结构的效度和信度进行评估。结果显示内容效度良好。只有项目17被认为不利,被省略。在验证性因子分析中剔除3个项目后,得到一个拟合指标较好的25项模型。克朗巴赫的alpha值显示出高度的内部一致性。这是一份有效可靠的评估护生家庭护理态度的量表。
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引用次数: 0
Examining variation in state spending on medicaid long-term services and supports for older adults. 检查各州在医疗补助长期服务和老年人支持方面的支出差异。
IF 1.4 Q2 Nursing Pub Date : 2022-01-01 DOI: 10.1080/01621424.2021.2004286
George Mellgard, Claire Ankuda, Omari-Khalid Rahman, Amy Kelley

State Medicaid programs are the largest source of funding for long-term services and supports (LTSS). We characterized states across quartiles of mean LTSS spending for individuals ≥65 and used the Health and Retirement Study to examine the demographic, functional, and caregiving characteristics across these quartiles. Individuals in states with lower Medicaid spending on LTSS reported more family and friend caregiving hours and were more likely to be from racial and ethnic minority groups. Continued work is needed to improve Medicaid LTSS policy to better support vulnerable populations, particularly in lower quartile states.

州医疗补助计划是长期服务和支持(LTSS)的最大资金来源。我们描述了65岁以上个体LTSS平均支出的四分位数,并使用健康与退休研究来检查这些四分位数的人口统计、功能和护理特征。在LTSS上医疗补助支出较低的州,个人报告了更多的家庭和朋友照顾时间,并且更有可能来自种族和少数民族群体。需要继续改进医疗补助长期保障政策,以更好地支持弱势群体,特别是在低四分位数州。
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引用次数: 0
No thank you to humanized robots: attitudes to care robots in elder care services. 不,感谢人性化机器人:老年人护理服务中对护理机器人的态度。
IF 1.4 Q2 Nursing Pub Date : 2022-01-01 Epub Date: 2022-03-20 DOI: 10.1080/01621424.2022.2052221
Rose-Marie Johansson-Pajala, Viktoria Zander, Christine Gustafsson, Annelie Gusdal

The growing older population will increase the demands on the health and welfare systems, including elder care services. One way of meeting these growing service needs is to shift from traditional care services to technologically oriented services. Robotic innovations are gradually being introduced to elder care services. The aim was to explore attitudes toward the use of care robots in elder care services - specifically focusing on situations and interaction, influence, and emotions in interaction with care robots. Data were obtained from visitors at a welfare technology fair (n = 124). The results show that the most negative attitudes concerned if the care robots were humanized and had emotions. The attitudes toward interacting with care robots in general were predominately positive. In conclusion, concrete usage scenarios in elder care services need to be detected, based both on users' needs, digital literacy and on the maturity of the technology itself.

日益增长的老年人口将增加对卫生和福利系统的需求,包括老年人护理服务。满足这些日益增长的服务需求的一种方法是从传统的护理服务转向以技术为导向的服务。机器人创新正逐渐被引入老年人护理服务。目的是探索人们对在老年人护理服务中使用护理机器人的态度——特别关注与护理机器人互动的情况和互动、影响和情绪。数据来自福利技术博览会的参观者(n = 124)。结果表明,最负面的态度与护理机器人是否人性化和是否有情感有关。总的来说,与护理机器人互动的态度主要是积极的。综上所述,需要根据用户的需求、数字素养和技术本身的成熟度来发现养老服务中的具体使用场景。
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引用次数: 3
Effects of activity tracker-based counselling and live-web exercise on breast cancer survivors' sleep and waking time during Italy's COVID-19 lockdown. 在意大利COVID-19封锁期间,基于活动追踪器的咨询和实时网络锻炼对乳腺癌幸存者睡眠和清醒时间的影响。
IF 1.4 Q2 Nursing Pub Date : 2022-01-01 Epub Date: 2021-10-15 DOI: 10.1080/01621424.2021.1984362
Andrea Di Blasio, Teresa Morano, Federica Lancia, Gianluca Viscioni, Angelo Di Iorio, Simona Grossi, Ettore Cianchetti, Roberto Pippi, Stefano Gobbo, Marco Bergamin, Anna D'eugenio, Laura Masini, Massimo Rinaldi, Antonino Grassadonia, Anastasios Vamvakis, Giorgio Napolitano

The aim of the study was to compare the effects of weekly personal feedback, based on objectively measured physical activity, on daily sleep in breast cancer survivors (BCS) with those of an intervention that also included online supervised physical exercise sessions (OSPES). BCS benefiting from both personal feedback and OSPES (n = 24), from pre-lockdown (T0) to the first month (T1) of the national lockdown, experienced an increase in both total (p ≤ 0.001) and restorative (p ≤ 0.001) sleep time, inverting their trend from the first month of lockdown to its end (total sleeping time T1 vs. T2 0.01 ≤ p < .001, T1 vs. T3 p ≤ 0.001; restorative sleeping time T1 vs. T2 0.05 ≤ p < .01, T1 vs. T3 p ≤ 0.001). Supportive technology, together with the reception of weekly tailored advice and OSPES seems to improve both quality and quantity of sleep.

该研究的目的是比较每周个人反馈(基于客观测量的体育活动)对乳腺癌幸存者(BCS)每日睡眠的影响,以及包括在线监督体育锻炼课程(OSPES)的干预。从封锁前(T0)到全国封锁第一个月(T1),受益于个人反馈和OSPES (n = 24)的BCS患者的总睡眠时间(p≤0.001)和恢复性睡眠时间(p≤0.001)均有所增加,与封锁第一个月至封锁结束的趋势相反(总睡眠时间T1与T2相比0.01≤p < 0.01, T1与T3相比p≤0.001)。支持性技术,加上每周接受量身定制的建议和OSPES,似乎可以提高睡眠的质量和数量。
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引用次数: 6
Community support groups for men living with depression: barriers and facilitators in access and engagement with services. 男性抑郁症社区支持小组:获取和参与服务的障碍和促进因素。
IF 1.4 Q2 Nursing Pub Date : 2022-01-01 Epub Date: 2021-10-07 DOI: 10.1080/01621424.2021.1984361
Rebecca Gosling, Sarah Parry, Vasileios Stamou

Approximately 10% of the general population will experience depression in adulthood. Concerningly, men with depression are more likely to take their own lives and less likely to seek professional support. Given men's preference for community-based support, this study employed interviews with service providers to explore the barriers and facilitators involved in community support groups for men living with depression. Nine interviews were conducted with service providers across Greater Manchester, UK. Data were analyzed via thematic analysis and revealed four themes: 'Mental Health as a Weakness,' 'Empowering Practice,' 'Trust and Security' and 'Group Support as a Gateway to Treatment.' Men living with depression experience identity conflict, which reduces help-seeking. Community support groups facilitate access and engagement with treatment by providing safe spaces to resolve internal conflicts. Gender-specific group support may facilitate access to support and address long waiting lists of statutory services. Implications for practice, policy and future research are discussed.

大约10%的人在成年后会经历抑郁症。令人担忧的是,患有抑郁症的男性更有可能结束自己的生命,而不太可能寻求专业支持。鉴于男性对社区支持的偏好,本研究通过对服务提供者的访谈来探讨社区支持团体对男性抑郁症患者的障碍和促进因素。对英国大曼彻斯特地区的服务提供商进行了九次访谈。通过专题分析对数据进行分析,揭示了四个主题:“作为弱点的心理健康”、“授权实践”、“信任与安全”和“作为治疗门户的群体支持”。患有抑郁症的男性会经历身份冲突,这会减少寻求帮助的机会。社区支持团体通过提供解决内部冲突的安全空间,促进获得和参与治疗。针对性别的团体支助可便利获得支助和解决法定服务的长时间等候名单问题。讨论了对实践、政策和未来研究的启示。
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引用次数: 1
Informal family caregiver experiences with publicly funded home care in Ontario. 安大略省公共资助家庭护理的非正式家庭护理经验。
IF 1.4 Q2 Nursing Pub Date : 2022-01-01 Epub Date: 2021-11-29 DOI: 10.1080/01621424.2021.2006849
Alla Yakerson

Publicly funded home care in Ontario, Canada, is a critical component of the health care system. Over the last few decades the sector has undergone numerous reforms impacting the funding and provision of services. In light of this, the purpose of this study was to examine the lived experiences of informal family caregivers who seek in-home publicly funded care for their relatives. In doing so, the goal was to understand the circumstances and challenges faced by these individuals in accessing care and obtaining respite from their duties. This knowledge is fundamental to the health care system which seeks to prevent institutionalization as well as to minimize health care costs associated with the physical and psychological outcomes of informal caregiving.

在加拿大安大略省,公共资助的家庭护理是卫生保健系统的重要组成部分。在过去的几十年里,该部门经历了许多影响资金和服务提供的改革。鉴于此,本研究的目的是研究那些寻求家庭公费照顾的非正式家庭照顾者的生活经历。这样做的目的是了解这些人在获得护理和缓期履行职责方面所面临的情况和挑战。这一知识是卫生保健系统的基础,该系统旨在防止制度化,并最大限度地减少与非正式护理的身体和心理结果相关的卫生保健费用。
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引用次数: 1
Caring callers: the impact of the telephone reassurance program on homebound older adults during COVID-19. 关怀的呼叫者:2019冠状病毒病期间电话安抚计划对居家老年人的影响
IF 1.4 Q2 Nursing Pub Date : 2021-10-01 Epub Date: 2021-11-07 DOI: 10.1080/01621424.2021.1997861
Kathy Lee, Noelle Fields, Jessica Cassidy, Venieca Kusek, Gretchen Feinhals, Melanie Calhoun

During the COVID-19 pandemic, older adults experienced great levels of social isolation and feelings of loneliness. We developed a telephone reassurance program, Caring Callers, to provide a weekly phone call to socially isolated older adults. Dyads were created which comprised of a Senior Companion volunteer and a homebound older adult. Using a mixed methods approach, we examined the program's impact on homebound older adults. The participants were satisfied with the program and showed a significant increase in overall health. They discussed social and emotional benefits of the program and other benefits that they gained from community resources. Due to the vulnerability of the participants, this telephone-based intervention seemed feasible without technological barriers. It is critical that aging service providers recognize the resourcefulness and relatability of older adult volunteers and utilize them to continue to support socially isolated older adults during an unprecedented event affecting people's isolation.

在2019冠状病毒病大流行期间,老年人经历了严重的社会孤立和孤独感。我们开发了一个电话安抚计划,“关怀来电者”,每周给社会孤立的老年人打电话。我们创建了两组,其中一组是老年伴侣志愿者,另一组是居家老人。采用混合方法,我们检查了该计划对居家老年人的影响。参与者对该计划感到满意,整体健康状况显著改善。他们讨论了这个项目在社会和情感上的好处,以及他们从社区资源中获得的其他好处。由于参与者的脆弱性,这种基于电话的干预似乎是可行的,没有技术障碍。至关重要的是,老龄服务提供者认识到老年志愿者的足智多谋和相关性,并利用他们在影响人们孤立的前所未有的事件中继续支持社会孤立的老年人。
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引用次数: 5
期刊
HOME HEALTH CARE SERVICES QUARTERLY
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