Pub Date : 2024-11-05DOI: 10.1080/17533015.2024.2421430
Ama de-Graft Aikins, Olutobi Sanuade, Francis Agyei, Rita Fatric Bewong, Bernard Akoi-Jackson
Background: This review documents arts applied to health interventions and health research in Ghana, examines evidence of their impact on health outcomes, and identifies research and practice gaps.
Methods: Eight databases (MEDLINE, Academic Search Complete, CINAHL, Health Source: Nursing/Academic Edition, Humanities International Complete, Scopus, African Journals Online and PsycINFO) were searched for articles published between 2000 and 2022. Following screening, seventeen articles reporting sixteen eligible studies were selected.
Results: Ten art forms (including comedy, music, theatre) were applied to eight health conditions (including HIV/AIDS, mental illness, COVID-19). Most studies involved artists and artist-researchers. The majority of studies were cross-sectional. Impact was reported on health education, illness management and community health development. Some studies engaged with health policy communities, but none reported impact on health policy change.
Conclusion: Creative arts have a reported measurable impact on selected health outcomes in Ghana. Participatory arts-based projects have the greatest potential for sustainable and transformational social health impact.
{"title":"Applying arts to health interventions and health research in Ghana: a scoping review.","authors":"Ama de-Graft Aikins, Olutobi Sanuade, Francis Agyei, Rita Fatric Bewong, Bernard Akoi-Jackson","doi":"10.1080/17533015.2024.2421430","DOIUrl":"https://doi.org/10.1080/17533015.2024.2421430","url":null,"abstract":"<p><strong>Background: </strong>This review documents arts applied to health interventions and health research in Ghana, examines evidence of their impact on health outcomes, and identifies research and practice gaps.</p><p><strong>Methods: </strong>Eight databases (MEDLINE, Academic Search Complete, CINAHL, Health Source: Nursing/Academic Edition, Humanities International Complete, Scopus, African Journals Online and PsycINFO) were searched for articles published between 2000 and 2022. Following screening, seventeen articles reporting sixteen eligible studies were selected.</p><p><strong>Results: </strong>Ten art forms (including comedy, music, theatre) were applied to eight health conditions (including HIV/AIDS, mental illness, COVID-19). Most studies involved artists and artist-researchers. The majority of studies were cross-sectional. Impact was reported on health education, illness management and community health development. Some studies engaged with health policy communities, but none reported impact on health policy change.</p><p><strong>Conclusion: </strong>Creative arts have a reported measurable impact on selected health outcomes in Ghana. Participatory arts-based projects have the greatest potential for sustainable and transformational social health impact.</p>","PeriodicalId":45944,"journal":{"name":"Arts & Health","volume":" ","pages":"1-20"},"PeriodicalIF":1.8,"publicationDate":"2024-11-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142584671","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-10-30DOI: 10.1080/17533015.2024.2420822
Kristin Losvik Sørensen, Niklas Hald, Rose Mari Olsen, Kristin B Ørjasæter
Background: Actors face a demanding entertainment industry characterised by understaffing, precarious working conditions, temporary contracts, intense work pressure, and rigorous performance expectations. These challenges create barriers in their workday and influence their health and well-being.
Methods: This qualitative study involved in-depth interviews with 14 actors from across Norway with diverse backgrounds and acting experiences.
Results: Through a reflective lifeworld research analysis, the essential phrase "to always be relevant" was identified. This essence consists of four components: understanding informal professional structures, being available for the industry, maintaining a good reputation, and always being in motion.
Conclusions: The mantra "always be relevant" serves actors as both a necessary guide to sustaining themselves in an insecure and unpredictable industry and as a source of detriment due to its potential to blur the boundaries between work and leisure. This blurriness is also a core to chronic stress that might promote ill health.
{"title":"\"Always be relevant\": a phenomenological study of the actor's workday.","authors":"Kristin Losvik Sørensen, Niklas Hald, Rose Mari Olsen, Kristin B Ørjasæter","doi":"10.1080/17533015.2024.2420822","DOIUrl":"https://doi.org/10.1080/17533015.2024.2420822","url":null,"abstract":"<p><strong>Background: </strong>Actors face a demanding entertainment industry characterised by understaffing, precarious working conditions, temporary contracts, intense work pressure, and rigorous performance expectations. These challenges create barriers in their workday and influence their health and well-being.</p><p><strong>Methods: </strong>This qualitative study involved in-depth interviews with 14 actors from across Norway with diverse backgrounds and acting experiences.</p><p><strong>Results: </strong>Through a reflective lifeworld research analysis, the essential phrase \"to always be relevant\" was identified. This essence consists of four components: understanding informal professional structures, being available for the industry, maintaining a good reputation, and always being in motion.</p><p><strong>Conclusions: </strong>The mantra \"always be relevant\" serves actors as both a necessary guide to sustaining themselves in an insecure and unpredictable industry and as a source of detriment due to its potential to blur the boundaries between work and leisure. This blurriness is also a core to chronic stress that might promote ill health.</p>","PeriodicalId":45944,"journal":{"name":"Arts & Health","volume":" ","pages":"1-14"},"PeriodicalIF":1.8,"publicationDate":"2024-10-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142548202","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-10-25DOI: 10.1080/17533015.2024.2419921
Emma C Palmer-Cooper, Rose Seneviratne, Evie Woodford
Background: Mindfulness-based interventions can successfully improve wellbeing in young adults. Mindful colouring is an applied mindfulness practice and improves short-term wellbeing. Less evidence is available about the effectiveness of regular, self-guided colouring. We investigated a self-guided two-week colouring intervention for university student wellbeing.
Methods: One-hundred and forty university students completed a minimum of 10-min self-guided colouring, six times over two weeks. Participants were assessed at baseline and two-week follow-up using self-report measures of wellbeing, relating to quality of life, perceived stress, anxiety, depression, and mindfulness.
Results: Colouring significantly improved all measures of mental health, wellbeing and mindfulness in students who completed at least six sessions of self-guided colouring.
Conclusion: Colouring is an accessible activity that can improve student wellbeing when carried out regularly over two weeks. Future research should investigate the impact of longer-term colouring practice on wellbeing, and the effect of this intervention in the general adult population.
{"title":"Can self-guided colouring improve university student wellbeing, mental health, and mindfulness?","authors":"Emma C Palmer-Cooper, Rose Seneviratne, Evie Woodford","doi":"10.1080/17533015.2024.2419921","DOIUrl":"https://doi.org/10.1080/17533015.2024.2419921","url":null,"abstract":"<p><strong>Background: </strong>Mindfulness-based interventions can successfully improve wellbeing in young adults. Mindful colouring is an applied mindfulness practice and improves short-term wellbeing. Less evidence is available about the effectiveness of regular, self-guided colouring. We investigated a self-guided two-week colouring intervention for university student wellbeing.</p><p><strong>Methods: </strong>One-hundred and forty university students completed a minimum of 10-min self-guided colouring, six times over two weeks. Participants were assessed at baseline and two-week follow-up using self-report measures of wellbeing, relating to quality of life, perceived stress, anxiety, depression, and mindfulness.</p><p><strong>Results: </strong>Colouring significantly improved all measures of mental health, wellbeing and mindfulness in students who completed at least six sessions of self-guided colouring.</p><p><strong>Conclusion: </strong>Colouring is an accessible activity that can improve student wellbeing when carried out regularly over two weeks. Future research should investigate the impact of longer-term colouring practice on wellbeing, and the effect of this intervention in the general adult population.</p>","PeriodicalId":45944,"journal":{"name":"Arts & Health","volume":" ","pages":"1-14"},"PeriodicalIF":1.8,"publicationDate":"2024-10-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142510150","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-10-21DOI: 10.1080/17533015.2024.2419113
Michael Koon Boon Tan, Ashley Barnes
Increasing evidence highlights the benefits and importance of discussing End-of-Life (EoL), yet many people struggle to talk openly about death and dying. This practice-based report details the development of Dying Matters, an applied theatre performance designed to encourage EoL conversations with loved ones. The combination of lived experience monologues and reflection activities appeared to provide an inspiring and supportive experience. The team observed many attendees actively taking moments during the performance to ponder and write their response to EoL preferences prompts. Further application of this work is recommended to engage a broader community and to enhance healthcare professional training.
{"title":"Dying matters - innovating spaces to foster end-of-life discussions with applied theatre.","authors":"Michael Koon Boon Tan, Ashley Barnes","doi":"10.1080/17533015.2024.2419113","DOIUrl":"https://doi.org/10.1080/17533015.2024.2419113","url":null,"abstract":"<p><p>Increasing evidence highlights the benefits and importance of discussing End-of-Life (EoL), yet many people struggle to talk openly about death and dying. This practice-based report details the development of <i>Dying Matters</i>, an applied theatre performance designed to encourage EoL conversations with loved ones. The combination of lived experience monologues and reflection activities appeared to provide an inspiring and supportive experience. The team observed many attendees actively taking moments during the performance to ponder and write their response to EoL preferences prompts. Further application of this work is recommended to engage a broader community and to enhance healthcare professional training.</p>","PeriodicalId":45944,"journal":{"name":"Arts & Health","volume":" ","pages":"1-10"},"PeriodicalIF":1.8,"publicationDate":"2024-10-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142477334","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-10-10DOI: 10.1080/17533015.2024.2408023
Katey Warran, Pilar Letrondo, Martin Robertson, Lisa Sinclair, Emma Smith, Emili Åström, Emily Davis, Bethany Whiteside, Heather Wilkinson
Background: There is a gap in the field of dance for dementia regarding how to engage in and improve equitable, moral, and rights-based ways of working with those with lived experience to co-design research priorities. We set out to create a collaborative research agenda for this field.
Methods: A series of collaborative activities were conducted, including an in-person workshop (n = 59 people), online workshop (n = 23 people), digital communications, podcasts, and co-writing, including with people living with dementia (PLWD), health and social care professionals, artists, arts organisational representatives, and academic researchers.
Results: Three key themes were constructed: 1) Improving access to dance participation; 2) Prioritising co-produced approaches; and 3) Enabling innovation in measurement and methods.
Conclusion: This is the first co-produced agenda for the field of dance for dementia. Underpinned by diverse perspectives and lived experience, it outlines themes and associated research questions that can be used in future research.
{"title":"What are the research priorities in dance for dementia? A co-created agenda to support equitable research.","authors":"Katey Warran, Pilar Letrondo, Martin Robertson, Lisa Sinclair, Emma Smith, Emili Åström, Emily Davis, Bethany Whiteside, Heather Wilkinson","doi":"10.1080/17533015.2024.2408023","DOIUrl":"https://doi.org/10.1080/17533015.2024.2408023","url":null,"abstract":"<p><strong>Background: </strong>There is a gap in the field of dance for dementia regarding how to engage in and improve equitable, moral, and rights-based ways of working with those with lived experience to co-design research priorities. We set out to create a collaborative research agenda for this field.</p><p><strong>Methods: </strong>A series of collaborative activities were conducted, including an in-person workshop (<i>n</i> = 59 people), online workshop (<i>n</i> = 23 people), digital communications, podcasts, and co-writing, including with people living with dementia (PLWD), health and social care professionals, artists, arts organisational representatives, and academic researchers.</p><p><strong>Results: </strong>Three key themes were constructed: 1) Improving access to dance participation; 2) Prioritising co-produced approaches; and 3) Enabling innovation in measurement and methods.</p><p><strong>Conclusion: </strong>This is the first co-produced agenda for the field of dance for dementia. Underpinned by diverse perspectives and lived experience, it outlines themes and associated research questions that can be used in future research.</p>","PeriodicalId":45944,"journal":{"name":"Arts & Health","volume":" ","pages":"1-23"},"PeriodicalIF":1.8,"publicationDate":"2024-10-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142477335","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-10-09DOI: 10.1080/17533015.2024.2410811
Ilaria Pina, Laura Britten, Sarah Astill
Background: The COVID-19 outbreak meant that people were unable to attend art-based community classes such as dance. In response, activities transitioned to digital modes of delivery. In this study, we aimed to explore the feasibility, inclusivity, and impact of transitioning to an online dance class.
Methods: Thirty community-dwelling older adults (59-84 years old) were recruited from community groups in Yorkshire (UK). Participants completed an online survey at baseline and after attending 8 weeks of online dance classes. The survey captured perceived benefits on physical activity and mental wellbeing. Two separate focus groups (N = 12) were conducted to explore if the online dance transition could be an opportunity to keep this group active and socially connected.
Results: Survey data revealed no significant difference in the amount of time engaged in physical activity, but mental wellbeing significantly improved. Themes from the focus groups included holistic wellbeing related to the experience of dance, inclusive participation of online dance, and online dance facilitating social connection and sense of belonging.
Conclusions: The research provided insight into the online transition of a dance class for older adults, especially regarding inclusivity, sense of belonging and social connection.
{"title":"\"We're still seeing people on the screen, we still keeping our bodies moving\": exploring the transition from face to face to online dance classes for community-dwelling older adults during the COVID-19 pandemic.","authors":"Ilaria Pina, Laura Britten, Sarah Astill","doi":"10.1080/17533015.2024.2410811","DOIUrl":"https://doi.org/10.1080/17533015.2024.2410811","url":null,"abstract":"<p><strong>Background: </strong>The COVID-19 outbreak meant that people were unable to attend art-based community classes such as dance. In response, activities transitioned to digital modes of delivery. In this study, we aimed to explore the feasibility, inclusivity, and impact of transitioning to an online dance class.</p><p><strong>Methods: </strong>Thirty community-dwelling older adults (59-84 years old) were recruited from community groups in Yorkshire (UK). Participants completed an online survey at baseline and after attending 8 weeks of online dance classes. The survey captured perceived benefits on physical activity and mental wellbeing. Two separate focus groups (<i>N</i> = 12) were conducted to explore if the online dance transition could be an opportunity to keep this group active and socially connected.</p><p><strong>Results: </strong>Survey data revealed no significant difference in the amount of time engaged in physical activity, but mental wellbeing significantly improved. Themes from the focus groups included holistic wellbeing related to the experience of dance, inclusive participation of online dance, and online dance facilitating social connection and sense of belonging.</p><p><strong>Conclusions: </strong>The research provided insight into the online transition of a dance class for older adults, especially regarding inclusivity, sense of belonging and social connection.</p>","PeriodicalId":45944,"journal":{"name":"Arts & Health","volume":" ","pages":"1-14"},"PeriodicalIF":1.8,"publicationDate":"2024-10-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142394152","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-10-01Epub Date: 2023-11-02DOI: 10.1080/17533015.2023.2273490
Felipe Agudelo-Hernández, Marcela Guapacha Montoya
Background: For mental disorders Mutual Aid Groups (MAG) have been proposed, however, these have lack of methodologies that approach the needs of young people. The aim of the present study was to determine the impact of MAG in rural and semi-urban environments, developed through poetry, on the improvement of mental health.
Methods: A quasi-experimental study was carried out in Caldas, Colombia. 171 adolescents participated, divided into 10 MAG. Child Behavior Checklist 4-18 (CBCL/4-18) was used and the nuclear components of the MAG were applied, adding elements of introduction to poetry, creation and group rituals.
Results: Statistically significant associations (P < .001) were found between the number of sessions and the reduction of symptoms, as well as a decrease in Internalizing Problems and Social problems, after participating in the groups.
Conclusion: Poetry applied to the core components of the MAG can improve psychiatric symptoms in adolescents.
{"title":"Poetry in youth mutual aid groups for recovery in rural and semi-urban environments.","authors":"Felipe Agudelo-Hernández, Marcela Guapacha Montoya","doi":"10.1080/17533015.2023.2273490","DOIUrl":"10.1080/17533015.2023.2273490","url":null,"abstract":"<p><strong>Background: </strong>For mental disorders Mutual Aid Groups (MAG) have been proposed, however, these have lack of methodologies that approach the needs of young people. The aim of the present study was to determine the impact of MAG in rural and semi-urban environments, developed through poetry, on the improvement of mental health.</p><p><strong>Methods: </strong>A quasi-experimental study was carried out in Caldas, Colombia. 171 adolescents participated, divided into 10 MAG. Child Behavior Checklist 4-18 (CBCL/4-18) was used and the nuclear components of the MAG were applied, adding elements of introduction to poetry, creation and group rituals.</p><p><strong>Results: </strong>Statistically significant associations (<i>P</i> < .001) were found between the number of sessions and the reduction of symptoms, as well as a decrease in Internalizing Problems and Social problems, after participating in the groups.</p><p><strong>Conclusion: </strong>Poetry applied to the core components of the MAG can improve psychiatric symptoms in adolescents.</p>","PeriodicalId":45944,"journal":{"name":"Arts & Health","volume":" ","pages":"340-357"},"PeriodicalIF":1.8,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"71427771","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-10-01Epub Date: 2023-09-12DOI: 10.1080/17533015.2023.2251513
Vitalis Im, Rogério M Pinto
Well-being is defined as the multi-dimensional experience of positive emotions, as well as life satisfaction, autonomy, and purpose. This scoping review examines the impact of musical practices on the well-being of incarcerated individuals and uniquely contributes to the literature by focusing on the relationship between music and power in carceral settings and by expounding on the ways in which musical practices both facilitate and inhibit experiences of well-being. Our review contributes to this body of literature by proposing three distinct ways musical practices may affect well-being: (1) Musical Practices and Psychological Outcomes, (2) Musical Practices and Identity Formation and (3) Musical Practices and Power.
{"title":"Music and well-being in carceral settings: a scoping review.","authors":"Vitalis Im, Rogério M Pinto","doi":"10.1080/17533015.2023.2251513","DOIUrl":"10.1080/17533015.2023.2251513","url":null,"abstract":"<p><p>Well-being is defined as the multi-dimensional experience of positive emotions, as well as life satisfaction, autonomy, and purpose. This scoping review examines the impact of musical practices on the well-being of incarcerated individuals and uniquely contributes to the literature by focusing on the relationship between music and power in carceral settings and by expounding on the ways in which musical practices both facilitate and inhibit experiences of well-being. Our review contributes to this body of literature by proposing three distinct ways musical practices may affect well-being: (1) Musical Practices and Psychological Outcomes, (2) Musical Practices and Identity Formation and (3) Musical Practices and Power.</p>","PeriodicalId":45944,"journal":{"name":"Arts & Health","volume":" ","pages":"249-265"},"PeriodicalIF":1.8,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10268341","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-10-01Epub Date: 2023-09-04DOI: 10.1080/17533015.2023.2252003
Renate Oepen, Harald Gruber
Background: This review aims to identify and analyse studies on art-based interventions and art therapy that are intended to promote better physical, mental and social health outcomes in culturally and linguistically diverse migrant populations.
Method: A systematic literature review was used to address the following questions: 1) What published studies over the past five years examined health outcomes? 2) What are the identifying characteristics of the studies? 3) What kinds of effect did these studies describe? 4) What implications do the findings have for future research in this field?
Results: Art-based interventions and art therapy can significantly reduce traumatic stress symptoms and anxiety, enhance well-being by giving people greater life satisfaction and hope, and improve the social behaviour of children and adolescents.
Conclusion: In order to address humanitarian concerns in this field, researchers may apply innovative approaches to engage people from a refugee background in meaningful reflections on their lives.
{"title":"Art-based interventions and art therapy to promote health of migrant populations - a systematic literature review of current research.","authors":"Renate Oepen, Harald Gruber","doi":"10.1080/17533015.2023.2252003","DOIUrl":"10.1080/17533015.2023.2252003","url":null,"abstract":"<p><strong>Background: </strong>This review aims to identify and analyse studies on art-based interventions and art therapy that are intended to promote better physical, mental and social health outcomes in culturally and linguistically diverse migrant populations.</p><p><strong>Method: </strong>A systematic literature review was used to address the following questions: 1) What published studies over the past five years examined health outcomes? 2) What are the identifying characteristics of the studies? 3) What kinds of effect did these studies describe? 4) What implications do the findings have for future research in this field?</p><p><strong>Results: </strong>Art-based interventions and art therapy can significantly reduce traumatic stress symptoms and anxiety, enhance well-being by giving people greater life satisfaction and hope, and improve the social behaviour of children and adolescents.</p><p><strong>Conclusion: </strong>In order to address humanitarian concerns in this field, researchers may apply innovative approaches to engage people from a refugee background in meaningful reflections on their lives.</p>","PeriodicalId":45944,"journal":{"name":"Arts & Health","volume":" ","pages":"266-284"},"PeriodicalIF":1.8,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10156804","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-10-01Epub Date: 2023-09-11DOI: 10.1080/17533015.2023.2254328
Richard Gorman, Bobbie Farsides, Maria Bonner
Background: Collage is a modality of expression which involves repurposing and juxtaposing fragments. Our aim was to explore both how and what collage, as an arts-based research method, might contribute to enlivening understandings of the experiences of families affected by rare conditions.
Methods: During 10 weeks of collaging workshops participants created artistic representations of their experiences. The methodology produced a convivial atmosphere where participants talked openly about everyday challenges.
Results: The collages and conversations produced offer a means through which to consider the complex and multiple positions which families affected by rare disease interpolate. Particularly, the collages prompt cross-cutting thematic reflections on motherhood and care, the challenges of being heard, and balancing family life alongside medicalisation.
Conclusions: The opportunity to convey topics and feelings through a medium which was both tentatively open yet conceptually complex allowed the broaching of sensitive and elusive themes in a safe, expressive, and non-threatening manner.
{"title":"Crafting representations of rare disease: collage as qualitative inquiry.","authors":"Richard Gorman, Bobbie Farsides, Maria Bonner","doi":"10.1080/17533015.2023.2254328","DOIUrl":"10.1080/17533015.2023.2254328","url":null,"abstract":"<p><strong>Background: </strong>Collage is a modality of expression which involves repurposing and juxtaposing fragments. Our aim was to explore both how and what collage, as an arts-based research method, might contribute to enlivening understandings of the experiences of families affected by rare conditions.</p><p><strong>Methods: </strong>During 10 weeks of collaging workshops participants created artistic representations of their experiences. The methodology produced a convivial atmosphere where participants talked openly about everyday challenges.</p><p><strong>Results: </strong>The collages and conversations produced offer a means through which to consider the complex and multiple positions which families affected by rare disease interpolate. Particularly, the collages prompt cross-cutting thematic reflections on motherhood and care, the challenges of being heard, and balancing family life alongside medicalisation.</p><p><strong>Conclusions: </strong>The opportunity to convey topics and feelings through a medium which was both tentatively open yet conceptually complex allowed the broaching of sensitive and elusive themes in a safe, expressive, and non-threatening manner.</p>","PeriodicalId":45944,"journal":{"name":"Arts & Health","volume":" ","pages":"285-302"},"PeriodicalIF":1.8,"publicationDate":"2024-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11418904/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10193900","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}