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Care-giving experiences of parents of young people with PMLD and complex healthcare needs in the transition to adulthood years: a qualitative poetic synthesis. 青少年PMLD和复杂的医疗保健需求的父母在过渡到成年期的照顾经验:一个定性的诗意综合。
IF 1.4 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2023-11-29 DOI: 10.1080/17533015.2023.2288058
Katharine Slade, Rachel L Shaw, Michael Larkin, Gemma Heath
OBJECTIVE To synthesise qualitative research exploring the care-giving experiences of parents of young people with profound and multiple learning disabilities (PMLD) and complex healthcare needs, in the transition to adulthood years. METHOD Four databases were systematically searched: Scopus, WoS Core Collection, Medline and SciELO. Included papers were assessed for quality and thematically synthesised. Findings are presented in the form of free-verse poems. RESULTS Nineteen papers from eight countries were included. Analysis generated three themes: interdependency of parent and child, where parents retained responsibility for their child's care; apprehension regarding sharing and shifting responsibility between parents and professionals; an uncertain future in terms of care provision. CONCLUSIONS Parents are concerned about the future care of their children. Training professionals in alternative and effective communication is fundamental to successful transition. Encouraging discussions about advanced care planning may also alleviate parental concerns and ensure good outcomes for young people with PMLD.
目的:通过综合定性研究,探讨有深度和多重学习障碍(PMLD)和复杂医疗保健需求的青少年在过渡到成年期的父母照顾经验。方法:系统检索Scopus、WoS Core Collection、Medline和SciELO 4个数据库。对纳入的论文的质量和主题综合进行了评估。研究结果以自由诗的形式呈现。结果:共纳入来自8个国家的19篇论文。分析产生了三个主题:父母与子女的相互依赖,父母保留照顾子女的责任;担心在父母和专业人员之间分担和转移责任;医疗服务的未来不确定。结论:家长对子女未来的照顾较为关注。培训专业人员进行替代性和有效的沟通是成功过渡的基础。鼓励对高级护理计划的讨论也可以减轻父母的担忧,并确保患有PMLD的年轻人得到良好的结果。
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引用次数: 0
Dementia Arts Mapping: observational methods for documenting impacts of poetry and recreation in care settings. 痴呆症艺术制图:记录护理环境中诗歌和娱乐影响的观察方法。
IF 1.4 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2023-11-26 DOI: 10.1080/17533015.2023.2283530
Daniel B Kaplan, Gary Glazner

Background: Long-term care homes for older and disabled adults, including those who are living with dementia, facilitate a diversity of recreational activities and program as social interventions. The relationships between interventional elements and participant impacts are not well understood.

Methods: This paper explores a poetry methodology and reports the findings from a pilot test of Dementia Arts Mapping, a novel ethnographic observational technique, to better understand impacts of poetry and recreation on people living with dementia in long-term care settings. Between 2017 and 2020, at 17 skilled nursing facilities throughout Wisconsin, researchers situated within care homes observed participants during diverse activities.

Results: We found poetry workshops surpassed other activities in eliciting self-expression.

Conclusions: Dementia Arts Mapping is an effective instrument for generating insights about dementia care and may be further enhanced for future use in research to inform care provision to foster meaningful engagement with people with dementia.

背景:老年人和残疾人的长期护理院,包括那些患有痴呆症的人,促进了各种娱乐活动和项目,作为社会干预措施。干预因素与参与者影响之间的关系尚不清楚。方法:本文探索了一种诗歌方法,并报告了痴呆症艺术测绘(一种新颖的民族志观察技术)试点测试的结果,以更好地了解诗歌和娱乐对长期护理环境中的痴呆症患者的影响。2017年至2020年期间,在威斯康星州的17家专业护理机构,位于养老院的研究人员在不同的活动中观察了参与者。结果:我们发现诗歌工作坊在激发自我表达方面优于其他活动。结论:痴呆症艺术测绘是一种有效的工具,可以产生关于痴呆症护理的见解,并且可以进一步增强,以便在未来的研究中使用,为护理提供信息,以促进与痴呆症患者的有意义的接触。
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引用次数: 0
Exploring the impact of expressive therapies on military veterans with PTSD: A systematic review. 探讨表达疗法对退伍军人PTSD的影响:一项系统综述。
IF 1.4 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2023-11-24 DOI: 10.1080/17533015.2023.2284197
Sarah Bailey Poor, Savannah Rae Ryan, Allison Nicole Sortino, Jane Frances Armour, Anna Brooke Livingston, Michaelea Anne Pass

Background: Post-traumatic stress disorder (PTSD) is common in military veterans and presents as distress, anxiety, or depression due to a traumatic event. Expressive therapies are an emerging intervention used to enhance the quality of life by addressing the cognitive, emotional, and behavioral aspects of individuals.

Methods: Five databases were searched from 2014 to 2022 with search terms addressing the expressive therapies of art, dance, drama, music, and writing, and military veterans with PTSD.

Results: One hundred eighty-seven articles were screened and 16 articles qualified for review. Articles were categorized based on the following results: decrease in PTSD symptoms, veterans' triggered responses, participants recommending expressive therapy/finding it helpful, and increased well-being and/or quality of life.

Conclusions: Results found that expressive therapies are effective in reducing PTSD symptoms in military veterans. However, more research is recommended to fully support the use of expressive therapies in PTSD treatment.

背景:创伤后应激障碍(PTSD)在退伍军人中很常见,表现为创伤事件引起的痛苦、焦虑或抑郁。表达疗法是一种新兴的干预手段,用于通过解决个体的认知、情感和行为方面来提高生活质量。方法:检索2014 - 2022年5个数据库,检索词涉及艺术、舞蹈、戏剧、音乐、写作和PTSD退伍军人的表达疗法。结果:共筛选了187篇文献,有16篇符合综述条件。文章根据以下结果分类:减少PTSD症状,退伍军人的触发反应,参与者推荐表达疗法/发现它有帮助,以及增加幸福感和/或生活质量。结论:结果发现表达疗法在减轻退伍军人创伤后应激障碍症状方面是有效的。然而,需要更多的研究来充分支持表达疗法在PTSD治疗中的应用。
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引用次数: 0
Effects of choir singing on physiological stress in Japanese older adults: its relationship with cognitive functioning and subjective well-being. 合唱对日本老年人生理压力的影响:与认知功能和主观幸福感的关系。
IF 1.4 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2023-10-04 DOI: 10.1080/17533015.2023.2258934
Haruka Shoda, Ken-Ichi Tabei, Makiko Abe, Jun Nakahara, Shoko Yasuda, Aaron Williamon, Tadao Isaka

Background: Leisure activities are believed to contribute to healthy ageing. We compared the effects of choir singing and go playing on cortisol levels in Japanese older adults. We also examined its relevance to the older adults' emotional affect and cognitive performance.

Methods: Thirty-six older adults participated either in choir or go playing, within a 2 (groups)×2 (time points) design. Dependent measures included levels of salivary cortisol, as well as key psychological, cognitive, and neuropsychological measures.

Results: A significant two-way interaction was observed, showing that levels of salivary cortisol decreased for the choir but increased for the go groups. The decrease in salivary cortisol for the choir group correlated with the participant's negative affect and their degree of cognitive impairment.

Conclusion: Choir singing has the potential to reduce Japanese older adults' physiological stress. The decreases can be seen more prominently for people with stronger negative affect and cognitive impairment. Further research is required to replicate these effects.

背景:休闲活动被认为有助于健康老龄化。我们比较了唱诗班和围棋对日本老年人皮质醇水平的影响。我们还研究了它与老年人的情绪影响和认知表现的相关性。方法:36名老年人在2(组)×2(时间点)的设计内参加合唱团或围棋。依赖性测量包括唾液皮质醇水平,以及关键的心理、认知和神经心理学测量。结果:观察到显著的双向相互作用,表明唱诗班的唾液皮质醇水平降低,但围棋组的唾液皮质醇含量增加。唱诗班组唾液皮质醇的下降与参与者的负面情绪及其认知障碍程度相关。结论:合唱具有减轻日本老年人生理压力的潜力。负面情绪和认知障碍更强的人可以更明显地看到这种下降。需要进一步的研究来复制这些影响。
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引用次数: 0
"Unplug to recharge": accessing respite through song in a culturally and linguistically diverse perinatal context. “拔掉插头充电”:在文化和语言多样化的围产期背景下,通过歌曲获得喘息。
IF 1.4 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2023-10-01 Epub Date: 2022-12-13 DOI: 10.1080/17533015.2022.2140684
Charulatha Mani

Background: This original, qualitative study examines the ways in which the concept of respite is expressed and experienced through the activity of singing in refugee mothers, new and expectant, in a perinatal healthcare setting in Logan, Queensland.

Methods: Data were collected using a multi-method approach using field notes, yarning circles, and semi-structured interviews. Reflexive Thematic Analysis (TA) yielded themes influenced also by literature on singing, wellbeing, health inequities, and the conceptual lens of respite.

Results: The research found that singing afforded respite for mothers across four dimensions, allowing for safe spaces, me time, new direction, and immersion. Respite and singing are identified here as strength-based and cultural solutions to wellbeing. No negative effects were reported.

Conclusions: The article discusses implications for socially-mediated healthcare in culturally diverse contexts. The idea of "song" enables access to a space of sanctuary wherein health inequities can be tackled in meaningful and decolonising ways.

背景:这项原始的定性研究考察了在昆士兰洛根的围产期医疗环境中,难民母亲(无论是新生儿还是孕妇)通过唱歌来表达和体验喘息概念的方式。反思性主题分析(TA)产生的主题也受到有关唱歌、幸福、健康不平等和喘息概念视角的文献的影响。结果:研究发现,唱歌在四个维度上为母亲提供了喘息的机会,包括安全的空间、自我时间、新的方向和沉浸感。呼吸和唱歌在这里被认为是基于力量和文化的幸福解决方案。未报告任何负面影响。结论:文章讨论了在不同文化背景下社会中介医疗保健的含义。“歌曲”的理念使人们能够进入一个避难所,在那里,可以以有意义和非殖民化的方式解决健康不平等问题。
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引用次数: 0
How participatory arts can contribute to Dutch older adults' wellbeing - revisiting a taxonomy of arts interventions for people with dementia. 参与式艺术如何为荷兰老年人的福祉做出贡献——重新审视痴呆症患者的艺术干预分类。
IF 1.4 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2023-06-01 DOI: 10.1080/17533015.2022.2035417
Yosheng Liu, Barbara Groot, Lieke de Kock, Tineke Abma, Christine Dedding

Background: A growing body of evidence suggests the positive impact of arts on health and wellbeing. The mechanisms underlying the impact however, remain overlooked.

Methods: 38 Semi-structured interviews were held with 30 older adults and 10 artists, involved in five participatory art projects in the Netherlands. Case-based framework and cross-over analyses were done on the basis of Cousins et al.'s taxonomy.

Results: Participatory art initiatives contributed to the wellbeing of older adults in a complex interplay with the artist, art form, group of participants, material aspects and continuity of activities. A welcoming environment appeared a consistent underlying mechanism for participants to grow on a personal and artistic level, connect with others and feel supported in their psychosocial wellbeing.

Conclusion: This article demonstrates the important social function participatory art can have for older adults, and argues for the importance of a thorough consideration of the context wherein underlying mechanisms and outcomes emerge.

背景:越来越多的证据表明艺术对健康和幸福有积极影响。然而,这种影响背后的机制仍然被忽视。方法:对荷兰5个参与式艺术项目的30名老年人和10名艺术家进行38次半结构化访谈。基于案例的框架和交叉分析是在Cousins等人的分类法的基础上进行的。结果:参与式艺术倡议通过与艺术家、艺术形式、参与者群体、物质方面和活动连续性的复杂相互作用,促进了老年人的福祉。一个温馨的环境似乎是参与者在个人和艺术水平上成长的一致的潜在机制,与他人联系,并在他们的社会心理健康中感受到支持。结论:本文展示了参与式艺术对老年人的重要社会功能,并论证了彻底考虑潜在机制和结果出现的背景的重要性。
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引用次数: 5
Connecting the dots: The state of arts and health in Singapore. 连接点:新加坡的艺术和健康状况。
IF 1.4 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2023-06-01 DOI: 10.1080/17533015.2021.2005643
Michael Koon Boon Tan, Chao Min Tan, Soon Guan Tan, Joanne Yoong, Brent Gibbons

Background: This article examines the state of the field of arts and health in Singapore and identifies the drivers that have shaped its development to date, adding new insights from Asia to the growing international literature in this area. Methods: Various methods, including an online survey and in-depth focus groups were used. Results: We find that the field in Singapore is rapidly growing, with a proliferation of activities across the arts and culture, healthcare, and social care sectors in recent decades fostered by various policy developments, increased funding and new peer-to-peer networking. Nevertheless, several issues persist, including inconsistent understanding and conceptualisation of the field as a whole across multiple stakeholders, limited research capacity and training platforms, and lack of professional recognition. Conclusions: We provide recommendations for further action, including developing arts and health literacy and research capacity, investing in efforts to bridge education and practice, and focusing on formalising and elevating professional standards.

背景:本文考察了新加坡艺术和健康领域的现状,并确定了迄今为止塑造其发展的驱动因素,为这一领域日益增长的国际文献增加了来自亚洲的新见解。方法:采用在线调查和深度焦点小组等多种方法。结果:我们发现新加坡的这一领域正在迅速发展,近几十年来,在各种政策发展、资金增加和新的点对点网络的推动下,艺术和文化、医疗保健和社会护理部门的活动激增。然而,一些问题仍然存在,包括多个利益相关者对整个领域的理解和概念化不一致,有限的研究能力和培训平台,以及缺乏专业认可。结论:我们提出了进一步行动的建议,包括发展艺术和健康素养以及研究能力,投资于弥合教育和实践的努力,并注重规范化和提高专业标准。
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引用次数: 5
"We are still doing some magic": Exploring the effectiveness of online therapeutic clowning. “我们仍然在做一些魔术”:探索在线治疗小丑的有效性。
IF 1.4 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2023-06-01 DOI: 10.1080/17533015.2022.2047745
Melissa Holland, Maria-Elena Fiorito, Maï-Li Gravel, Sarah McLeod, Jenna Polson, Natalia Incio Serra, Stefanie Blain-Moraes

Background: Therapeutic clowns use embodied practices to engage with clients, their families and healthcare staff to empower patients and create therapeutic relationships. This study explored the effectiveness of a virtual therapeutic clown initiative.

Methods: Thirteen therapeutic clowns participated in a semi-structured interview to discuss their experiences with online clowning; additionally, four dyads consisting of a clown duo and a client explored multiple perspectives of a shared online clowning experience. Data were analyzed according to the six core competencies of therapeutic clowning.

Results: Although all therapeutic clowns and caregivers reported challenges and limitations with the medium, virtual therapeutic clowning was effective for empowering clients and forming therapeutic relationships. Clowns successfully used many strategies to maintain their core clowning competencies in the virtual environment.

Conclusions: Virtual clowning may be more beneficial for some clients than in-person clowning and has the potential to extend therapeutic clowning beyond its traditional domains of practice.

背景:治疗小丑使用具身实践与客户,他们的家人和医护人员接触,以赋予患者权力并建立治疗关系。本研究探讨了虚拟治疗小丑计划的有效性。方法:对13名治疗性小丑进行半结构化访谈,探讨他们的网络小丑经历;此外,由小丑二人组和客户组成的四个二人组探索了共享在线小丑体验的多个视角。根据治疗性小丑的六项核心能力对数据进行分析。结果:尽管所有治疗小丑和护理人员都报告了这种媒介的挑战和局限性,但虚拟治疗小丑对于增强客户的能力和形成治疗关系是有效的。小丑成功地使用了许多策略来保持他们在虚拟环境中的核心小丑能力。结论:虚拟小丑可能比真人小丑对一些客户更有益,并且有可能将治疗性小丑扩展到传统的实践领域之外。
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引用次数: 7
Exploring the potential of creative museum-led activities to support stroke In-patient rehabilitation and wellbeing: A pilot mixed-methods study. 探索创造性博物馆活动的潜力,以支持中风住院患者的康复和福祉:一项试点混合方法研究。
IF 1.4 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2023-06-01 DOI: 10.1080/17533015.2022.2032224
Nuala Morse, L J Thomson, E Elsden, H Rogers, H J Chatterjee

Background: This paper proposes a framework for studying the potential of museum-led interventions for supporting stroke rehabilitation goals.

Methods: The intervention was based on Kirvevold et al.'s model for interventions for post-stroke wellbeing. Mixed-methods data wqas collected to review benefits in a pilot study, including retrospective video observations for six sessions with four patients; interviews with patients, carers and facilitators; pre-post patient assessments; and facilitator diaries.

Results: Systematic analysis of videos showed high levels of concentration and engagement with museum objects, low levels of social interaction, and positive or neutral mood throughout. Thematic qualitative analysis suggested patients felt engaged in meaningful activities, which lifted negative mood, provided positive distraction from the ward, and increased self-esteem, including belief in patient abilities.

Conclusion: Further research is needed to fully establish the potential of museum-led interventions for stroke rehabilitation.

背景:本文提出了一个框架,用于研究博物馆主导的干预措施对支持卒中康复目标的潜力。方法:干预基于Kirvevold等人的卒中后健康干预模型。收集了混合方法的数据来回顾试点研究的益处,包括对4名患者进行6次回顾性视频观察;与病人、护理人员和辅导员进行访谈;患者前后评估;还有促进者日记。结果:对视频的系统分析显示,他们对博物馆物品的注意力和参与度较高,社交互动水平较低,整个过程中情绪积极或中性。专题定性分析表明,患者感到参与有意义的活动,这可以解除负面情绪,提供积极的病房分心,并增加自尊,包括对患者能力的信念。结论:需要进一步的研究来充分确定博物馆主导的卒中康复干预的潜力。
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引用次数: 1
The effect of dance on physical health and cognition in community dwelling older adults: A systematic review and meta-analysis. 舞蹈对社区老年人身体健康和认知的影响:系统回顾和荟萃分析。
IF 1.4 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Pub Date : 2023-06-01 DOI: 10.1080/17533015.2022.2093929
Amanda M Clifford, Joanne Shanahan, Jennifer McKee, Triona Cleary, Aoife O'Neill, Marie O'Gorman, Quinette Louw, Orfhlaith Ní Bhriain

Background: Dancing is an attractive form of exercise among older adults and may positively influence physical and psychosocial health. The aim of this systematic review was to synthesize the evidence examining the dance prescription and effectiveness of dance in community dwelling older adults.

Methods: Eight databases were searched to identify randomized controlled trials that evaluated the effectiveness of dance programs on community-dwelling older adults from 2007 to December 2020. Data regarding participants, dance programs and outcomes of interest were extracted and narratively synthesized. A meta-analysis was performed on the outcome data where possible.

Results: Twenty-two studies met the inclusion criteria, of those 15 were deemed to be fair quality and 7 high quality using the PEDro scale. Nineteen studies included in the meta-analysis found that dancing can improve mobility and endurance compared to no intervention and afforded equivalent outcomes compared to other exercise programs.

Conclusion: The findings suggest that dance is an effective, safe and viable activity for community-dwelling older adults..

背景:舞蹈是老年人中一种有吸引力的运动形式,可能对身体和心理健康产生积极影响。本系统综述的目的是综合证据检验舞蹈处方和舞蹈在社区居住的老年人的有效性。方法:检索了8个数据库,以确定2007年至2020年12月期间评估舞蹈项目对社区居住老年人有效性的随机对照试验。有关参与者、舞蹈项目和兴趣结果的数据被提取和叙述合成。在可能的情况下对结果数据进行荟萃分析。结果:22项研究符合纳入标准,其中15项研究使用PEDro量表被认为是一般质量,7项研究被认为是高质量。荟萃分析中包含的19项研究发现,与不进行干预相比,跳舞可以提高活动能力和耐力,与其他锻炼项目相比,舞蹈可以提供相同的结果。结论:研究结果表明,舞蹈是一种有效、安全、可行的社区老年人活动。
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引用次数: 5
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