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The effect of a community crash reenactment program on teen alcohol awareness and behavior 社区车祸重演计划对青少年酒精意识和行为的影响
IF 1.8 Q2 PEDIATRICS Pub Date : 2019-07-01 DOI: 10.2147/AHMT.S191079
J. Hafner, B. Bleess, Michelle Folake Famakinwa, Huaping Wang, Monica L. Coleman
Background: Motor vehicle crashes (MVCs) are the leading cause of death in US teens, encompassing greater than one in three deaths. Mock crash reenactments have been used to promote awareness in communities about the effects of drinking and driving. The majority of these programs are for alcohol injury prevention, target high school students, and often involve a scenario of a student driving while under the influence (DUI) and sustaining a fatal car crash. Objective: The purpose of this study is to evaluate the effectiveness of a regional mock crash reenactment upon the students’ drinking and driving knowledge and behaviors. Methods: An observational pre-post study was conducted. The survey had seven five-point Likert-scale questions (1 being strongly disagree and 5 strongly agree) measuring outcomes. Students were surveyed before and after the crash reenactment concerning their knowledge and attitudes related to drinking and driving. The survey also included questions that queried participant’s age, gender, alcohol consumption history, and seatbelt usage. Results: The final study population included 947 pre-surveys and 840 post-surveys. Students demonstrated no significant increase in knowledge-based drinking and driving questions. However, after the reenactment program, students were 1.39 times less likely to report drinking and driving in the future or that they would get into a car with someone who would drive drunk. Students were 1.7 times more likely to report thinking about the risks associated with drinking and driving after participating in the program. Conclusion: After viewing a mock crash reenactment, students reported they were less likely to drink and drive in the future or get into a car with someone who would drive drunk, and were more likely often think the risks associated with drinking and driving.
背景:机动车碰撞(MVCs)是美国青少年死亡的主要原因,包括超过三分之一的死亡。模拟车祸重演被用来提高社区对酒后驾车影响的认识。这些项目中的大多数是针对高中生的酒精伤害预防项目,通常涉及学生在酒后驾车(DUI)的情况下发生致命车祸。目的:本研究旨在评估区域模拟车祸重演对学生酒后驾驶知识和行为的有效性。方法:采用观察性前后研究。该调查有七个五分的Likert量表问题(1个强烈不同意,5个强烈同意)来衡量结果。学生们在车祸重演前后接受了调查,了解他们对酒后驾驶的知识和态度。调查还包括询问参与者年龄、性别、饮酒史和安全带使用情况的问题。结果:最终研究人群包括947个预调查和840个后调查。学生们在以知识为基础的饮酒和驾驶问题上没有显著增加。然而,在重演项目之后,学生们报告未来酒后驾车或与醉酒驾驶的人一起上车的可能性降低了1.39倍。参加该项目后,学生报告思考饮酒和驾驶相关风险的可能性是其他学生的1.7倍。结论:在观看了模拟车祸重演后,学生们报告说,他们未来不太可能酒后驾车,也不太可能与醉酒驾驶的人一起上车,而且更有可能经常思考与酒后驾车相关的风险。
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引用次数: 2
Social stigma and self-perception in adolescents with tourette syndrome 青少年抽动秽语综合征的社会污名与自我认知
IF 1.8 Q2 PEDIATRICS Pub Date : 2019-06-01 DOI: 10.2147/AHMT.S175765
J. H. Cox, A. Nahar, C. Termine, M. Agosti, U. Balottin, S. Seri, A. Cavanna
Abstract Tourette syndrome (TS) is a complex neurodevelopmental disorder characterized by multiple motor and vocal tics, which commonly presents with multiple behavioral problems, including co-morbid attention-deficit and hyperactivity disorder and obsessive-compulsive disorder. Both tics and co-morbid conditions have been shown to potentially affect patients’ health-related quality of life. While TS typically presents in childhood, its manifestations peak in severity during adolescence, a critical period in which affected individuals are exposed to potential stigma from peers. Physical and behavioral manifestations can also contribute to stigma, which subsequently leads to poorer health outcomes, discrimination, and a reduced willingness to seek help. The available evidence suggests that young patients with TS can experience reduced social acceptance from peers and difficulties establishing relationships. There is also evidence that some health care professionals share the unhelpful belief that young patients with TS should be disciplined in order to correct their disruptive behavior, based on the erroneous assumption that tics can be consciously controlled. Studies focussed on self-perception in patients with TS have yielded inconsistent results, with some studies showing problems in the domains of self-concept and self-esteem. Feelings of isolation, loneliness, and experiences of bullying have been reported more consistently. Interventions are required to reduce misconceptions about the condition and thus reduce stigma through targeted education and behavioral interventions. A multi-faceted approach that focuses on educating children, adults, and educators about TS would be beneficial to help alleviate stigma. This can be combined with self-advocacy and tailored psychological therapies for young patients with TS. The present paper reviews the current literature on stigma and self-perception in adolescents with TS in order to inform clinical decisions about management strategies and possible interventions to improve health-related quality of life.
摘要抽动秽语综合征(TS)是一种以多发性运动和发声抽搐为特征的复杂神经发育障碍,通常表现为多重行为问题,包括合并症注意缺陷多动障碍和强迫症。抽搐和合并症都有可能影响患者健康相关的生活质量。虽然TS通常出现在儿童时期,但其严重程度在青春期达到顶峰,这是受影响个体暴露于同龄人潜在耻辱的关键时期。身体和行为表现也可能导致污名化,从而导致较差的健康结果、歧视和寻求帮助的意愿降低。现有证据表明,患有TS的年轻患者可能会经历同伴社会接受度降低和建立人际关系困难。也有证据表明,一些卫生保健专业人员认为,患有TS的年轻患者应该受到纪律处分,以纠正他们的破坏性行为,这是基于抽搐可以有意识地控制的错误假设。关注TS患者自我感知的研究得出了不一致的结果,一些研究显示了自我概念和自尊领域的问题。孤立感、孤独感和欺凌经历的报告更加一致。需要采取干预措施,减少对该病的误解,从而通过有针对性的教育和行为干预减少耻辱感。多层面的方法侧重于对儿童、成人和教育工作者进行有关TS的教育,将有助于减轻耻辱感。这可以与自我倡导和针对年轻TS患者的量身定制的心理治疗相结合。本文回顾了目前关于青少年TS患者的耻辱感和自我感知的文献,以便为临床决策提供管理策略和可能的干预措施,以改善与健康相关的生活质量。
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引用次数: 31
Older siblings' influence on sexual behavior of high school adolescents in Mekelle, northern Ethiopia. 埃塞俄比亚北部Mekelle高中生哥哥姐姐对性行为的影响。
IF 1.8 Q2 PEDIATRICS Pub Date : 2019-05-27 eCollection Date: 2019-01-01 DOI: 10.2147/AHMT.S196080
Mebrahtom Haftu, Haftu Berhe, Kinfe Tesfay, Martha Gebremeskel

Background: Older siblings are one of the key sources of beliefs about sexual activity, including safe sexual practices, and can even exert pressure to engage in sexual activities. This effect persists beyond parental supervision and peer pressure. Despite this, although a considerable body of research has examined parental and peer influence, comparable data on older sibling influence on younger adolescent sexual behaviors are scant, and this area needs in-depth analysis. Objective: The objective of this study was to assess older siblings' influence on sexual behavior of high school adolescents in Mekelle, northern Ethiopia in 2017-2018. Methods: A cross-sectional study design was used, and a total of 285 adolescents who had ever had sex were sampled randomly from selected schools. Data were entered into Epi-info version 07 and exported to and analyzed with SPSS version 22. Means ± SD, frequency, percentage, and cross-tabulation were used to describe the result. Bivariate and multivariate logistic regression was fitted to compute older sibling influence. Results: Perceiving older sibling sexual behavior as risky increased adolescents' likelihood of engaging in risky sexual behavior. (AOR 4.52, 95% CI 2.59-7.89) whereas high intimacy with an older sibling (AOR 0.32, 95% CI 0.17-0.59) decreased the odds of risky sexual behavior (AOR 0.59, 95% CI 0.30-0.92). Conclusion: Older siblings had an influence on the sexual behavior of youngr adolescents. Perceiving older sibling sexual behavior as healthy and high sibling intimacy may serve as protective factors; however, risky sexual behavior of an older sibling can increase high school adolescents' likelihood for same. As such, families should realize that elders can affect their younger siblings' behavior, included the former in family strategies, and give them responsibility to protect their younger siblings.

背景:年长的兄弟姐妹是关于性活动(包括安全性行为)的信念的主要来源之一,甚至可以施加参与性活动的压力。这种影响超出了父母的监督和同伴的压力。尽管如此,尽管有相当多的研究考察了父母和同伴的影响,但关于年长兄弟姐妹对年轻青少年性行为影响的可比数据很少,这一领域需要深入分析。目的:本研究的目的是评估2017-2018年埃塞俄比亚北部Mekelle市哥哥姐姐对高中青少年性行为的影响。方法:采用横断面研究设计,从选定的学校随机抽取285名曾发生过性行为的青少年。数据输入Epi-info 07版,导出到SPSS 22版并用其进行分析。平均值±SD、频率、百分比和交叉表用于描述结果。拟合双变量和多变量逻辑回归来计算年长兄弟姐妹的影响。结果:将哥哥姐姐的性行为视为危险行为会增加青少年从事危险性行为的可能性。(AOR 4.52,95%CI 2.59-7.89),而与年长兄弟姐妹的高度亲密关系(AOR 0.32,95%CI 0.17-0.59)降低了危险性行为的几率(AOR 0.59,95%CI 0.30-0.92)。结论:年长兄弟姐妹对青少年的性行为有影响。将年长的兄弟姐妹的性行为视为健康和高度的兄弟姐妹亲密关系可能是保护因素;然而,年长兄弟姐妹的危险性行为会增加高中生发生这种行为的可能性。因此,家庭应该意识到长辈会影响他们弟弟妹妹的行为,将前者纳入家庭策略,并赋予他们保护弟弟妹妹的责任。
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引用次数: 2
Evaluating the prevalence of diabetes mellitus subtypes in childhood cancer survivors: a systematic review protocol. 评估儿童癌症幸存者中糖尿病亚型的患病率:一项系统评价方案。
IF 1.8 Q2 PEDIATRICS Pub Date : 2019-04-26 eCollection Date: 2019-01-01 DOI: 10.2147/AHMT.S199449
Sondra Song Jie Chen, Ajantha Nadarajah, Laura Banfield, Adam Fleming, Lehana Thabane, Carol Portwine, M Constantine Samaan

Objectives: The number of children who survive cancer is reaching new record levels, thanks to improved management strategies. However, this population is predisposed to chronic health conditions including cardiovascular disease and type 2 diabetes, yet the full scale of these diagnoses in this population is unclear. This protocol describes the conduct of a systematic review to report on the prevalence of diabetes mellitus (DM) subtypes in childhood cancer survivors. Methods: Searches will be conducted in MEDLINE, Embase, CINAHL, Cochrane Database of Systematic Reviews, and Cochrane Central Register of Controlled Trials. We will also search gray literature in Theses A&I, ProQuest Dissertations, and Web of Science as well as clinicaltrials.gov. Screening search results and data abstraction will be done independently by two reviewers. We will conduct a meta-analysis if two studies have similar designs, populations, methods, and outcome measures reported. Results: The findings of this systematic review will provide insights into the scale of diabetes in childhood cancer survivors to allow the prioritization of subpopulations that need specific interventions to screen, prevent, and treat DM. This will likely lead to improved outcomes in childhood cancer survivors.

目标:由于管理策略的改进,癌症存活儿童的数量达到了新的记录水平。然而,这一人群易患慢性疾病,包括心血管疾病和2型糖尿病,但这些疾病在这一人群中的全部诊断情况尚不清楚。本研究方案描述了一项关于儿童癌症幸存者中糖尿病(DM)亚型患病率的系统综述。方法:在MEDLINE、Embase、CINAHL、Cochrane系统评价数据库和Cochrane中央对照试验注册库中进行检索。我们还将在thesema&i、ProQuest dissertation、Web of Science以及clinicaltrials.gov中检索灰色文献。筛选搜索结果和数据提取将由两位审稿人独立完成。如果两项研究有相似的设计、人群、方法和结果测量,我们将进行荟萃分析。结果:本系统综述的发现将为儿童癌症幸存者的糖尿病规模提供见解,以便优先考虑需要特定干预措施来筛查、预防和治疗糖尿病的亚群。这可能会改善儿童癌症幸存者的预后。
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引用次数: 1
Determinants of adolescents reproductive health service utilization in Ethiopia: a systematic review of quantitative evidence. 埃塞俄比亚青少年利用生殖健康服务的决定因素:定量证据系统回顾。
IF 1.7 Q2 PEDIATRICS Pub Date : 2019-04-18 eCollection Date: 2019-01-01 DOI: 10.2147/AHMT.S193219
Gelila Abraham, Kiddus Yitbarek, Sudhakar Narayan Morankar

Purpose: Adolescents in Ethiopia face many health problems which emanate from low knowledge and awareness of their reproductive health (RH), though there are additional factors contributing to the problem. Provision of adequate, friendly, and quality RH services to this group of young people is vital to have healthy and productive generation. This systematic review aimed to assemble the top obtainable evidence for the determinants of adolescent RH services utilization in Ethiopia. Methods: Systematic review of literature searches in major databases, MEDLINE, CINAHL, EMBASE, and Popline was conducted. English language articles published from 2010 onwards were sought. Socio-demographic and behavioral related outcomes were our interest. Fixed effect model with mantel Haenszel method was used to conduct meta-analysis using Revman5 software. Records were assessed for eligibility by two independent reviewers, with a third reviewer resolving disagreements. Result: Four community-based cross-sectional studies were included in the review. Results of the meta-analysis showed that adolescents whose educational level was primary were 57% less likely to use RH services than adolescents whose educational level was secondary and above. In-school adolescents were 2.39 more likely to utilize Family Planning services than adolescents who were out-of-school. Moreover, adolescents who ever discussed on RH issues with relatives/family/health workers were 3.63 more likely to utilize the services than adolescents who did not discuss with anyone else. Conclusion: We found adolescents' educational level; schooling status and ever discussion on RH issues were associated with RH service utilization in Ethiopia. Health information/education should be given in a regular manner to adolescents in schools and out of school on the availability and need for RH services. Developing the culture of discussion on RH issues within the community may help adolescents to be aware and utilize the available services.

目的:埃塞俄比亚的青少年面临许多健康问题,这些问题源于他们对生殖健康(RH)的知 识和认识不足,尽管还有其他因素造成了这一问题。为这群年轻人提供充分、友好和优质的生殖健康服务,对于拥有健康和富有成效的下一代至关重要。本系统综述旨在收集有关埃塞俄比亚青少年利用生殖健康服务的决定因素的最新证据。方法:对主要数据库 MEDLINE、CINAHL、EMBASE 和 Popline 中的文献检索进行了系统回顾。检索对象为 2010 年以后发表的英文文章。我们关注的是与社会人口学和行为相关的结果。使用Revman5软件,采用固定效应模型和Mantel Haenszel方法进行荟萃分析。记录由两名独立审稿人进行资格评估,第三名审稿人负责解决分歧。结果四项基于社区的横断面研究被纳入综述。荟萃分析的结果表明,受教育程度为小学的青少年使用生殖健康服务的可能性比受教育程度为中学及以上的青少年低 57%。在校青少年使用计划生育服务的几率比失学青少年高出 2.39。此外,曾与亲属/家人/卫生工作者讨论生殖健康问题的青少年使用服务的可能性比未与他人讨论的青少年高出 3.63。结论我们发现,在埃塞俄比亚,青少年的受教育水平、就学情况和曾经讨论过生殖健康问题与生殖健康服务的利用率有关。应定期向校内外青少年提供健康信息/教育,让他们了解生殖健康服务的可用性和必要性。在社区内形成讨论生殖健康问题的风气可能有助于青少年了解和利用现有的服务。
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引用次数: 0
Mobile phone, social media usage, and perceptions of delivering a social media safer sex intervention for adolescents: results from two countries. 手机、社交媒体使用和对为青少年提供社交媒体安全性行为干预的看法:来自两个国家的结果。
IF 1.8 Q2 PEDIATRICS Pub Date : 2019-03-28 eCollection Date: 2019-01-01 DOI: 10.2147/AHMT.S185041
Judith B Cornelius, Charlene Whitaker-Brown, Tamara Neely, Anna Kennedy, Florence Okoro

Purpose: Rates of sexually transmitted infections among adolescents remain high in the United States and Botswana. Mobile phone density rates in Botswana exceed those of the United States. Yet, in both countries, safer sex information continues to be delivered primarily via face-to-face curricula such as Becoming a Responsible Teen and Living as a Safe Teen. While social media shows promise as a medium for delivering risk-reduction information to youth, few studies have been conducted in either country to assess its effectiveness. This study examines adolescents in both countries, their mobile phone and social media usage, and their perceptions of safer sex interventions delivered via social media. Design and methods: Three focus groups were conducted with 28 adolescents 13-18 years of age who lived in the United States (n=14) and Botswana (n=14). Data analysis was ongoing, which informed the data collection process. After the first group, no additional revisions were made to the focus group protocol. An abridged method of analyzing the data was employed. Results: Adolescents in all groups discussed peer pressure and connectedness with mobile phones and social media and had general knowledge of STIs and HIV. The adolescents agreed that adaptation of risk reduction interventions for mobile phone and social media delivery was warranted, and they shared ideas for adaptation. Practice implications: Our findings provide a starting point for researchers interested in developing a social media intervention with global implications for sexual health promotion.

目的:在美国和博茨瓦纳,青少年的性传播感染率仍然很高。博茨瓦纳的移动电话密度超过了美国。然而,在这两个国家,安全性行为信息继续主要通过面对面的课程,如成为一个负责任的青少年和作为一个安全的青少年生活来传递。虽然社交媒体有望成为向青少年提供降低风险信息的媒介,但在这两个国家都很少进行评估其有效性的研究。这项研究调查了这两个国家的青少年,他们的手机和社交媒体使用情况,以及他们对通过社交媒体提供的安全性行为干预措施的看法。设计与方法:对28名13-18岁的美国青少年(n=14)和博茨瓦纳青少年(n=14)进行了三个焦点小组的研究。正在进行数据分析,这为数据收集过程提供了信息。在第一组之后,没有对焦点小组协议作进一步修订。采用了一种简化的方法来分析数据。结果:所有组的青少年讨论同伴压力和与手机和社交媒体的联系,并对性传播感染和艾滋病毒有一般的了解。青少年们一致认为,有必要对减少风险的干预措施进行调整,以适应移动电话和社交媒体的传播,他们分享了适应的想法。实践意义:我们的研究结果为有兴趣开发具有全球性健康促进意义的社交媒体干预的研究人员提供了一个起点。
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引用次数: 16
Attitudes and perceived barriers toward healthy lifestyle behaviors in Jordanian adolescents: a developing country perspective. 约旦青少年对健康生活方式行为的态度和感知障碍:发展中国家视角。
IF 1.7 Q2 PEDIATRICS Pub Date : 2019-03-28 eCollection Date: 2019-01-01 DOI: 10.2147/AHMT.S181001
Nihaya A Al-Sheyab, Mahmoud A Alomari, Audai A Hayajneh, Smita Shah

Background and aims: There is an urgent need to address the role of healthy diet and behaviors promoting health among school adolescents in order to tailor appropriate interventions in Jordanian schools. This study aims to evaluate the reliability and validity of the Arabic version of Students As LifeStyle Activists (SALSA) survey alongside Jordanian adolescents' attitudes and perceived barriers to healthy eating and physical activity.

Methods: This study uses baseline data from a randomized controlled trial recruiting school students from 29 male and 27 female public high schools that have grades 7 and 8. Cronbach's alpha and principal components analysis/factor analysis were used to check reliability and validity. Numbers, percentages, and chi square were used to explore healthy diet and physical activities preferences among Jordanian school students and determine gender differences for all evaluated items.

Results: The Arabic version-SALSA survey has acceptable Cronbach's alpha values (>0.78) for most of its scales. Five scales were derived from the Arabic version-SALSA survey using principal components analysis/factor analysis (factors loading above 0.3). A higher proportion of female students agreed that "healthy food makes you more comfortable" compared to male students (44% vs 36%, P<0.05). Few Jordanian high school students held positive attitudes toward healthy food. This study identified both social and personal barriers to exercise among Jordanian adolescents, including lack of skills for physical activity, easy access and low cost of fast food, scarce opportunities for physical activity, and lack of peers and friends.

Conclusion: Interventions should be tailored to health attitudes and beliefs of Jordanian school students in parallel with improving physical resources and enhancing peer and/or friend support.

背景和目的:迫切需要解决健康饮食和行为对学校青少年健康的促进作用,以便在约旦学校制定适当的干预措施。本研究旨在评估阿拉伯语版“生活方式活动家学生”(SALSA)调查的可靠性和有效性,以及约旦青少年对健康饮食和体育活动的态度和感知障碍。方法:这项研究使用了一项随机对照试验的基线数据,该试验招募了29名男性和27名女性公立高中的7年级和8年级学生。使用Cronbachα和主成分分析/因子分析来检验信度和有效性。使用数字、百分比和卡方来探索约旦学校学生的健康饮食和体育活动偏好,并确定所有评估项目的性别差异。结果:阿拉伯语版SALSA调查的大多数量表具有可接受的Cronbachα值(>0.78)。阿拉伯版SALSA调查采用主成分分析/因子分析(因子负荷大于0.3)得出了五个量表。与男生相比,女生同意“健康食品让你更舒服”的比例更高(44%对36%,P结论:干预措施应针对约旦学校学生的健康态度和信仰,同时改善物质资源和加强同伴和/或朋友的支持。
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引用次数: 0
Effect of dance on lower-limb range of motion in young people with cerebral palsy: a blinded randomized controlled clinical trial. 舞蹈对年轻脑瘫患者下肢活动范围的影响:一项盲法随机对照临床试验。
IF 1.8 Q2 PEDIATRICS Pub Date : 2019-03-27 eCollection Date: 2019-01-01 DOI: 10.2147/AHMT.S177867
Lavinia Teixeira-Machado, Josimari M DeSantana

Purpose: One of the most limiting conditions in cerebral palsy (CP) is the impairment in musculoskeletal mobility. CP may impair the ability to perform efficient movements. The aim of this trial was to investigate the effect of dance on the range of motion (ROM) of lower limbs in young people with CP.

Patients and methods: the randomized clinical trial consisted of two groups: dance group (DG) and control group (CG). Both of them underwent a 1-hour treatment, twice a week, for 2 months. Sanny® pendulum fleximeter was used to measure ROM in pre- and posttreatment. The applied procedures in both groups were conducted at suitable locations. Twenty-six participants were allocated to these two groups of study.

Results: In DG, the sampling variances showed improvements in all lower limb joints and axes of movements (P<0.05). In CG, there was increase in passive ROM in some lower limb joints (P≤0.05).

Conclusion: Physical intervention is imperative to improve ROM. It seems dance practice can contribute to CP corporal mobility in a positive way.

Clinical trial number: Nº CAAE-06154012.4.0000.0058-12, number 98.993.

目的:脑瘫(CP)最限制的条件之一是肌肉骨骼活动能力的损害。CP可能会损害进行有效运动的能力。本试验的目的是探讨舞蹈对年轻cp患者下肢活动范围(ROM)的影响。患者和方法:随机临床试验分为两组:舞蹈组(DG)和对照组(CG)。两例患者均接受1小时治疗,每周2次,疗程2个月。采用Sanny®摆式挠度计测量预处理和后处理的ROM。两组的应用程序均在合适的地点进行。26名参与者被分配到这两组研究中。结果:在DG组,所有下肢关节和运动轴的抽样方差均有改善(PP≤0.05)。结论:身体干预是改善ROM的必要条件,舞蹈练习对CP的身体活动有积极的促进作用。临床试验编号:NºCAAE-06154012.4.0000.0058-12,编号98.993。
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引用次数: 7
The creation of a national coalition to target adolescent idiopathic scoliosis: a meeting report. 建立针对青少年特发性脊柱侧凸的全国联盟:会议报告。
IF 1.8 Q2 PEDIATRICS Pub Date : 2019-02-22 eCollection Date: 2019-01-01 DOI: 10.2147/AHMT.S199489
Milena Cioana, Devin Peterson, Paul Missiuna, Ron El-Hawary, Timothy Carey, Murray A Potter, Laura Banfield, Lehana Thabane, M Constantine Samaan

In this report, we document the discussions and recommendations of a national conference designed to create a coalition to tackle adolescent idiopathic scoliosis (AIS) held on June 6 and 7, 2017 in Hamilton, ON, Canada. The goal of the establishment of this coalition is to join the efforts of patients, parents, physicians, researchers and other stakeholders to identify stakeholders' perspectives and to categorize gaps in knowledge and target further AIS research and clinical care priorities. The participants' main priorities included focus on shared decision making regarding clinical and research priorities between the stakeholders on the clinical, research and policy sides with patients and families. In addition, improvements in the dissemination of information via digital platforms and identification of cost-effective screening strategies that may help early identification and intervention were also recognized as a priority. Commitment was reached to form a national coalition to understand the determinants of this condition and enhance patient outcomes through improved clinical care and research efforts.

在本报告中,我们记录了2017年6月6日至7日在加拿大安大略省汉密尔顿举行的全国会议的讨论和建议,该会议旨在建立一个解决青少年特发性脊柱侧凸(AIS)的联盟。建立该联盟的目标是联合患者、家长、医生、研究人员和其他利益攸关方的努力,确定利益攸关方的观点,对知识差距进行分类,并确定进一步的AIS研究和临床护理重点。与会者的主要优先事项包括关注临床、研究和政策方面的利益相关者与患者和家属之间关于临床和研究优先事项的共同决策。此外,通过数字平台改进信息传播和确定可能有助于早期发现和干预的具有成本效益的筛查战略也被认为是一个优先事项。各方承诺组建一个国家联盟,以了解该病的决定因素,并通过改进临床护理和研究工作来改善患者的预后。
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引用次数: 2
Assent and consent in pediatric and adolescent research: school children's perspectives. 同意和同意在儿科和青少年研究:学校儿童的观点。
IF 1.8 Q2 PEDIATRICS Pub Date : 2019-02-11 eCollection Date: 2019-01-01 DOI: 10.2147/AHMT.S185553
Nihaya A Al-Sheyab, Mahmoud A Alomari, Omar F Khabour, Khulood K Shattnawi, Karem H Alzoubi

Background: School students' views and perceptions of informed parental consent and child assent about child participation in research in the Middle East are not known.

Methods: Focus group interviews were conducted to understand high school students' perspectives toward child and adolescent assents and consents in research including the importance of, and depth of information needed in consent and assent, and perception toward written vs verbal consent and assent.

Results: The majority of students agreed that it is necessary to take parental approval and that they would not participate in research if their parents refused. Furthermore, the majority of male students agreed that if the research requires only questionnaires to be completed, then child's approval is sufficient whereas measures, such as blood sugar screening required approval from both the parent and child. Females believed it is enough to provide parental consent to participate in research unless information provided is adequate, then child approval is enough. All students stressed the importance of including detailed information; however, parental consent needs to have more detailed information than child assent.

Conclusion: Parts of the students' perceptions were congruent, whereas other views were not congruent with proper conduct of pediatric research. Such a situation warrants further research and actions.

背景:在中东地区,学生对父母知情同意和儿童知情同意的看法和看法尚不清楚。方法:采用焦点小组访谈法,了解高中生在研究中对儿童和青少年同意和同意的看法,包括同意和同意中所需信息的重要性和深度,以及对书面同意和同意与口头同意的看法。结果:大多数学生认为有必要征得父母的同意,如果父母拒绝,他们将不参与研究。此外,大多数男学生同意,如果研究只需要完成问卷,那么孩子的同意是足够的,而措施,如血糖筛查需要父母和孩子的同意。女性认为,除非提供的信息足够充分,否则父母同意参与研究就足够了,然后孩子同意就足够了。所有学生都强调了包含详细信息的重要性;然而,父母的同意需要比孩子的同意提供更详细的信息。结论:部分学生的看法是一致的,而其他观点与正确开展儿科研究不一致。这种情况值得进一步研究和采取行动。
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引用次数: 6
期刊
Adolescent Health Medicine and Therapeutics
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