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Food Insecurity, the Food Environment, and COVID-19 in Rural South Carolina. 南卡罗来纳州农村地区的粮食不安全、粮食环境和COVID-19。
IF 2.3 4区 医学 Q3 FAMILY STUDIES Pub Date : 2023-04-01 DOI: 10.1097/FCH.0000000000000355
Samuel L K Baxter, Caitlin E Koob, Cassius M L Hossfeld, Sarah F Griffin, Catherine Mobley, Leslie H Hossfeld

In this study, we explored the relationship between the food environment and food security among rural adults during the COVID-19 pandemic. Researchers, with assistance from community partners, conducted a cross-sectional survey assessing the impact of COVID-19 on food access, food security, and physical activity in 9 rural South Carolina (SC) counties. This survey was administered to a purposive sample (N = 587) from August 2020 to March 2021. The dependent variable was a binary indicator of food insecurity (past 3 months), in accordance with the USDA Household Food Security Survey Module. Independent variables were sociodemographic characteristics, food environment factors (eg, shopping at grocery stores, partial markets, and farmers' markets), and shopping behaviors during the pandemic. Overall, 31% of respondents were food insecure. Food security status differed by income and household composition. Results indicate that the odds of food insecurity were higher for respondents who shopped frequently at partial markets (adjusted odds ratio [AOR] = 1.61, 95% confidence interval [CI]: 1.01-2.56) and shopped more for food before the pandemic than during the pandemic (AOR = 1.68, 95% CI: 1.07-2.64). Findings underscore the importance of examining the relationship between the food environment and food insecurity during COVID-19 in rural settings.

在这项研究中,我们探讨了2019冠状病毒病大流行期间农村成年人的粮食环境与粮食安全之间的关系。在社区合作伙伴的帮助下,研究人员进行了一项横断面调查,评估了COVID-19对南卡罗来纳州9个农村县的粮食获取、粮食安全和身体活动的影响。本调查于2020年8月至2021年3月对目的样本(N = 587)进行。根据美国农业部家庭粮食安全调查模块,因变量是粮食不安全(过去3个月)的二元指标。自变量为社会人口特征、食品环境因素(例如,在杂货店、部分市场和农贸市场购物)以及大流行期间的购物行为。总体而言,31%的答复者处于粮食不安全状态。粮食安全状况因收入和家庭构成而异。结果表明,经常在部分市场购物的受访者出现粮食不安全的几率更高(调整后的优势比[AOR] = 1.61, 95%可信区间[CI]: 1.01-2.56),并且在大流行前购买食品的次数比大流行期间更多(AOR = 1.68, 95% CI: 1.07-2.64)。调查结果强调了在2019冠状病毒病期间研究农村粮食环境与粮食不安全之间关系的重要性。
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引用次数: 0
Parental Sexuality Disclosure, Discrimination, and Depression Among Black Sexual Minority Men and Black Transgender Women. 黑人少数性取向男性和黑人变性女性的父母性取向披露、歧视和抑郁》(Parental Sexuality Disclosure, Discrimination, and Depression Among Black Sexual Minority Men and Black Transgender Women.
IF 1.5 4区 医学 Q3 FAMILY STUDIES Pub Date : 2023-04-01 DOI: 10.1097/FCH.0000000000000360
Rodman E Turpin, Derek T Dangerfield, Temitope Oke, DeMarc A Hickson

Racial and sexuality-based discrimination can induce depressive symptoms among Black sexual minority men and transgender women (BSMM/BTW). BSMM and BTW who disclose their sexuality to parents may be better prepared to cope with discrimination. We explored the relationship between discrimination and depression among BSMM and BTW and whether parental disclosure modified this relationship. Secondary analysis of The MARI Study was used to test the relationship between discrimination and depression modified by level of disclosure of sexuality to parents among 580 BSMM and BTW in Jackson, Mississippi, and Atlanta, Georgia. Bivariate tests and linear regression models were stratified by sexuality disclosure to parents. Discrimination was associated with greater depression, with significant dose-response modification across levels of disclosure. After adjustment, maximum discrimination scores were associated with depression scores 10.7 units higher among participants with very open disclosure (95% CI, 10.4-11.8), 15.3 units higher among participants with somewhat open disclosure (95% CI, 3.7-26.9), and 19.5 units higher among participants with no disclosure (95% CI, 10.2-26.8). Disclosure of sexuality to supportive parents can substantially benefit the mental health of BSMM and BTW. Future studies should explore intervention approaches to providing social support for BSMM and BTW in unsupportive families.

基于种族和性行为的歧视会诱发黑人性少数群体男性和变性女性(BSMM/BTW)的抑郁症状。向父母公开自己性取向的黑人性少数群体男性和变性女性可能会更好地应对歧视。我们探讨了性少数群体男性和变性女性中歧视与抑郁之间的关系,以及父母的披露是否会改变这种关系。我们对 MARI 研究进行了二次分析,以检验密西西比州杰克逊市和佐治亚州亚特兰大市的 580 名 BSMM 和 BTW 中,歧视与抑郁之间的关系是否因向父母公开性行为的程度而有所改变。双变量测试和线性回归模型按照向父母公开性行为的程度进行了分层。歧视与抑郁程度的增加有关,不同披露程度的歧视有显著的剂量-反应修正。经过调整后,在非常公开的参与者中,最大歧视分数与抑郁分数的相关性高出 10.7 个单位(95% CI,10.4-11.8);在略微公开的参与者中,高出 15.3 个单位(95% CI,3.7-26.9);在未公开的参与者中,高出 19.5 个单位(95% CI,10.2-26.8)。向支持自己的父母公开性行为可大大有益于 BSMM 和 BTW 的心理健康。未来的研究应探索为不支持家庭中的 BSMM 和 BTW 提供社会支持的干预方法。
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引用次数: 0
Contrasts of Initial and Gain Scores in Obesity Treatment-Targeted Psychosocial Variables by Women Participants' Weight Change Patterns Over 2 Years. 2年来女性受试者体重变化模式对肥胖治疗目标社会心理变量的初始和增加得分的对比
IF 2.3 4区 医学 Q3 FAMILY STUDIES Pub Date : 2023-01-01 DOI: 10.1097/FCH.0000000000000348
James J Annesi, Francine A Stewart

The typical pattern of weight change associated with behavioral obesity treatments has been some loss in weight through approximately 6 months, followed by near complete regain. However, patterns vary widely across individuals. The objectives are to determine whether recent prediction model-based indications of relations among changes in psychosocial correlates of the weight loss behaviors of physical activity and controlled eating vary by patterns of weight change. Women with obesity enrolled in a community-based behavioral obesity treatment who failed to lose at least 5% of their baseline weight (Minimal Effect group, n = 44), lost 5% or greater and then regained most during months 6 to 24 (Loss/Regain group, n = 42), or lost 5% or greater and then maintained/continued loss (Loss/Loss group n = 42) were evaluated. Improvements in physical activity- and eating-related self-regulation and self-efficacy, mood, and emotional eating over 6 months were significant overall and generally most favorable in the Loss/Loss group and least favorable in the Minimal Effect group. Expected model-based relationships between 6-month changes in the aforementioned psychosocial variables were significant and generally not significantly affected by weight change group. However, group substantially affected the prediction of self-regulation of eating at month 24-a key correlate of long-term weight loss. Findings suggested community-based obesity treatment targets and emphases.

与行为肥胖治疗相关的体重变化的典型模式是在大约6个月的时间里体重有所减轻,然后几乎完全恢复。然而,个体之间的模式差异很大。目的是确定最近基于预测模型的关于身体活动和控制饮食等减肥行为的社会心理相关因素变化之间关系的指示是否会随着体重变化的模式而变化。参与社区行为肥胖治疗的肥胖妇女,如果未能减掉至少5%的基线体重(最小效果组,n = 44),减掉5%或更多,然后在第6至24个月恢复大部分(减肥/恢复组,n = 42),或减掉5%或更多,然后维持/继续减肥(减肥/恢复组n = 42),则进行评估。在6个月的时间里,身体活动和饮食相关的自我调节和自我效能、情绪和情绪性饮食的改善总体上是显著的,通常在减肥组最有利,在最小效果组最不利。上述社会心理变量的6个月变化之间的预期模型关系是显著的,并且通常不受体重变化组的显著影响。然而,小组对第24个月的饮食自我调节预测有很大影响,这是长期减肥的关键相关因素。研究结果建议以社区为基础的肥胖治疗目标和重点。
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引用次数: 1
Materials and Methods for Recruiting Systematically Marginalized Youth and Families for Weight-Management Intervention Trials: Community Stakeholders' Perspectives. 招募系统边缘化青少年和家庭参与体重管理干预试验的材料和方法:社区利益相关者的观点。
IF 2.3 4区 医学 Q3 FAMILY STUDIES Pub Date : 2023-01-01 DOI: 10.1097/FCH.0000000000000352
Heather K Hardin, Anna E Bender, Cheryl M Killion, Shirley M Moore

Rates of overweight and obesity are problematic among systematically marginalized youth; however, these youth and their families are a hard-to-reach research population. The purpose of our study was to identify facilitators and barriers for recruiting systematically marginalized families in youth weight-management intervention research. This study built upon existing evidence through involvement of youth, parents, community agency workers, and school nurses, and an exploration of both recruitment materials and processes. Seven focus groups were conducted with 48 participants from 4 stakeholder groups (youth, parents, school nurses, and community agency workers). A codebook approach to thematic analysis was used to identify key facilitator and barrier themes related to recruitment materials and processes across the stakeholder groups. Ecological systems theory was applied to contextualize the facilitators and barriers identified. Participants reported the need to actively recruit youth in the study through engaging, fun recruitment materials and processes. Participants reported greater interest in recruitment at community-based events, as compared to recruitment through health care providers, underscoring the depth of distrust that this sample group has for the health care system. Recommendations for recruitment materials and processes for weight-management intervention research with systematically marginalized families are proposed.

系统边缘化青少年的超重和肥胖率很成问题;然而,这些青少年及其家庭是很难接触到的研究人群。我们的研究旨在确定在青少年体重管理干预研究中招募系统边缘化家庭的促进因素和障碍。本研究通过青少年、家长、社区机构工作人员和学校护士的参与,以及对招募材料和过程的探索,在现有证据的基础上进行了研究。共开展了 7 个焦点小组,48 名参与者来自 4 个利益相关群体(青少年、家长、学校护士和社区机构工作人员)。我们采用了主题分析的编码本方法,以确定与各利益相关群体的招募材料和过程有关的关键促进因素和障碍主题。生态系统论被应用于确定促进因素和障碍的背景。参与者表示需要通过吸引人的、有趣的招募材料和流程积极招募青少年参与研究。与通过医疗服务提供者进行招募相比,参与者表示对在社区活动中进行招募更感兴趣,这说明该样本群体对医疗系统的不信任程度很深。本文对针对系统边缘化家庭的体重管理干预研究的招募材料和流程提出了建议。
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引用次数: 0
Barriers to and Systems Solutions for Increasing Early Childhood Home Visiting Referrals by Health Care Providers Serving Urban and Rural Communities. 城市和农村社区卫生保健提供者增加儿童早期家访转诊的障碍和系统解决方案。
IF 2.3 4区 医学 Q3 FAMILY STUDIES Pub Date : 2023-01-01 DOI: 10.1097/FCH.0000000000000343
Theresa H Cruz, Leona Woelk, Ivy C Vitanzos Cervantes, Alexis Kaminsky

Early childhood home visiting (ECHV) is an evidence-based prevention strategy that directly impacts maternal and child health by mitigating the poor outcomes associated with socioeconomic disadvantage and adverse childhood experiences that disproportionately affect marginalized populations. Despite its promise, health care providers in many communities do not routinely refer patients to these services. This qualitative study examined barriers to health care providers' referrals to ECHV services and identified systems-level strategies to overcome those barriers through semistructured interviews with 37 health care providers in New Mexico. Most participants were pediatricians or family practice physicians working in hospitals or community-based primary care settings, and the majority served rural communities. Barriers included insufficient knowledge about ECHV programs; lack of trust of program providers; time constraints; concerns about available funding; lack of a standardized referral process; and concerns about stigma and messaging. Five systems-level recommendations were developed to improve practice: (1) educating health care providers; (2) developing messaging prompts for providers to use when talking with patients about ECHV; (3) increasing engagement among providers and ECHV programs; (4) standardizing referral systems within practices; and (5) promoting universal referrals. Additional research is ongoing to determine the degree to which these health promotion strategies increase referrals and participation in ECHV.

幼儿家访是一项以证据为基础的预防战略,通过减轻与社会经济劣势和对边缘人群造成不成比例影响的不良童年经历相关的不良后果,直接影响孕产妇和儿童健康。尽管有这样的承诺,但许多社区的卫生保健提供者并不经常将患者转介到这些服务。本定性研究考察了卫生保健提供者转介到ecv服务的障碍,并通过对新墨西哥州37家卫生保健提供者的半结构化访谈确定了克服这些障碍的系统级策略。大多数参与者是在医院或社区初级保健机构工作的儿科医生或家庭医生,大多数为农村社区服务。障碍包括对ecv项目了解不足;缺乏对项目提供者的信任;时间限制;对可用资金的关注;缺乏标准化的转诊程序;以及对耻辱和信息传递的担忧。提出了五项系统级建议以改进实践:(1)教育卫生保健提供者;(2)开发信息提示,供医护人员在与患者讨论ECHV时使用;(3)提高供应商和ECHV项目之间的参与度;(4)规范内部转诊制度;(5)促进普遍转诊。正在进行进一步的研究,以确定这些健康促进战略在多大程度上增加了转诊和参与ecv。
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引用次数: 2
Statewide Physician Survey Regarding Pediatric Muslim Fasting. 关于儿童穆斯林斋戒的全州医师调查。
IF 2.3 4区 医学 Q3 FAMILY STUDIES Pub Date : 2023-01-01 DOI: 10.1097/FCH.0000000000000351
Emman Dabaja, Muhammad Haidous, Hadeel Shihan, Sara Haidar-El-Atrache

During Ramadan, Muslims fast from dawn to dusk for the duration of the month. The current literature focuses on adults who fast, with little attention to pediatric practices. An anonymous, digital survey was conducted using Qualtrics software and distributed to residents, fellows, or attendings in Michigan in 2019. Overall, 278 participants were included in the analysis, with 87% (242/278) identifying as pediatric trained physicians. In all, 82% (228/278) of physicians identified as non-Muslim and 76% (211/278) had never partaken in the Muslim fast. About 52% (141/273) of participants had at least a moderate amount of exposure to Muslim pediatric patients in their clinical practice. Most physicians (66%; 175/265) reported they never asked their pediatric patients or their families about fasting. About 61% (167/273) of participants rated their understanding of fasting as minimal to none. Another 52% (142/273) of participants reported feeling somewhat or extremely uncomfortable discussing fasting recommendations with their pediatric patients and their families. Our study is the first of its kind in assessing current knowledge and practice regarding pediatric Muslim fasting among physicians in the United States. In addition, it highlights a gap in physicians' understanding and comfort in providing anticipatory guidance for their Muslim patients.

在斋月期间,穆斯林从黎明到黄昏斋戒一个月。目前的文献关注的是禁食的成年人,很少关注儿科实践。2019年,使用Qualtrics软件进行了一项匿名数字调查,并分发给密歇根州的居民、研究员或主治医生。总体而言,278名参与者被纳入分析,其中87%(242/278)被确定为儿科培训医生。总的来说,82%(228/278)被认定为非穆斯林的医生和76%(211/278)从未参加过穆斯林斋戒。约52%(141/273)的参与者在临床实践中至少与穆斯林儿科患者有过中度接触。大多数医生(66%;175/265)报告说,他们从来没有问过儿科患者或他们的家人关于禁食的问题。大约61%(167/273)的参与者认为他们对禁食的理解很少甚至没有。另有52%(142/273)的参与者报告说,与儿科患者及其家人讨论禁食建议时感到有些或非常不舒服。我们的研究是第一个在评估目前的知识和实践有关儿科穆斯林斋戒在美国的医生。此外,它还突出了医生在为穆斯林患者提供预期指导方面的理解和安慰方面的差距。
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引用次数: 1
Differences in Health Care Access, Utilization, and Experiences Among LGBTQ+ Subgroups in the Southern United States. 美国南部LGBTQ+亚群体在医疗保健获取、利用和经验方面的差异
IF 1.5 4区 医学 Q3 FAMILY STUDIES Pub Date : 2023-01-01 Epub Date: 2022-08-08 DOI: 10.1097/FCH.0000000000000340
Natalie R Holt, Elizabeth D Eldridge-Smith, James A Griffin, Lara M Stepleman, Christopher F Drescher, Tracy Casanova

Lesbian, gay, bisexual, transgender, queer, and other sexual and gender minority (LGBTQ+) individuals experience health inequities and barriers to accessing appropriate, affirming care. Little is known about differing health care experiences within the LGBTQ+ population, particularly among individuals living in underserved areas. This study explored health care experiences and utilization among LGBTQ+ subgroups: lesbian and gay cisgender individuals (n = 258), bisexual+ cisgender individuals (n = 71), and transgender and gender-diverse individuals (n = 80). Participants were recruited from a geographic region in South Carolina and Georgia and completed an online survey regarding negative health care experiences, barriers to care, and utilization of different health care venues and services. Results revealed significant differences between LGBTQ+ subgroups, with transgender and gender-diverse participants reporting more discriminatory experiences and greater barriers to care. Bisexual+ cisgender individuals also experienced some disparities compared with lesbian and gay cisgender individuals. Most participants endorsed a need for more competent providers. Findings and recommendations are considered within the context of the Southeastern United States for addressing access and utilization disparities among LGBTQ+ communities.

女同性恋、男同性恋、双性恋、变性人、酷儿和其他性少数群体(LGBTQ+)在获得适当的、肯定的护理方面面临卫生不平等和障碍。人们对LGBTQ+人群中不同的医疗保健经历知之甚少,特别是生活在服务不足地区的个人。本研究探讨LGBTQ+亚群:男女同性恋顺性者(n = 258)、双性恋+顺性者(n = 71)、跨性别者和性别多元者(n = 80)的医疗保健体验和利用情况。参与者从南卡罗来纳州和佐治亚州的一个地理区域招募,并完成了一项关于负面医疗保健经历、护理障碍以及不同医疗保健场所和服务的利用的在线调查。结果显示,LGBTQ+亚组之间存在显著差异,跨性别和性别多样化的参与者报告了更多的歧视经历和更大的护理障碍。双性恋+顺性个体与女同性恋和男同性恋顺性个体相比也存在一些差异。大多数与会者赞同需要更有能力的提供者。调查结果和建议是在美国东南部的背景下考虑的,以解决LGBTQ+社区之间的获取和利用差异。
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引用次数: 0
Perceived Role of Asian Indian Fathers in Florida During Mealtimes: Factors to Consider for Their Involvement in Childhood Obesity Prevention. 佛罗里达亚裔印度父亲在用餐时间的感知角色:考虑他们参与儿童肥胖预防的因素。
IF 2.3 4区 医学 Q3 FAMILY STUDIES Pub Date : 2023-01-01 DOI: 10.1097/FCH.0000000000000342
Priya Krishnakumar, Catherine Coccia

Research has shown that fathers play an important role in children's mealtimes and dietary habits; yet, little is known about the factors that affect how fathers perceive this role, especially among Asian Indians. This study aimed to examine how Asian Indian fathers perceive their role during child mealtimes and the factors that are associated with fathers' mealtime perceptions. Eighty Asian Indian fathers of 6- to 11-year-old children completed an online survey including measures of demographics, acculturation, gender roles, nutrition knowledge, parental self-efficacy, perceived child weight, and the role of father at mealtime (ROFM). Data were analyzed using descriptive statistics and linear regression. Participants perceived a moderately high level of responsibility during child mealtimes. Regression analysis showed that fathers who had higher income, perceived child weight as being higher, and had higher self-efficacy in feeding children healthy food had higher ROFM. Higher father nutrition knowledge was correlated with lower perceived ROFM, indicating a lack of confidence in utilizing their nutrition knowledge during child mealtimes. The results indicate potential targets to improve Asian Indian fathers' involvement during child mealtimes. These results could be utilized to enhance their engagement in child mealtime healthy eating practices and for childhood obesity prevention.

研究表明,父亲在孩子的进餐时间和饮食习惯中起着重要作用;然而,人们对影响父亲如何看待这一角色的因素知之甚少,尤其是在亚洲印度人中。本研究旨在研究亚裔印度父亲如何看待他们在儿童用餐时间的角色,以及与父亲用餐时间观念相关的因素。80名6至11岁孩子的亚洲印度父亲完成了一项在线调查,包括人口统计、文化适应、性别角色、营养知识、父母自我效能感、感知到的孩子体重和父亲在用餐时的角色(ROFM)。数据分析采用描述性统计和线性回归。参与者认为在儿童用餐时间有较高的责任感。回归分析显示,收入越高、对子女体重认知越高、对子女健康食品的自我效能感越高的父亲,其ROFM越高。较高的父亲营养知识与较低的感知ROFM相关,表明在儿童用餐时间利用他们的营养知识缺乏信心。研究结果表明,改善亚裔印度父亲在儿童用餐时间的参与是潜在的目标。这些结果可以用来加强他们在儿童用餐时间健康饮食习惯和儿童肥胖预防方面的参与。
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引用次数: 0
Socioeconomic and Health-Related Factors Affecting Congestive Heart Failure Readmissions. 影响充血性心力衰竭再入院的社会经济和健康相关因素。
IF 2.3 4区 医学 Q3 FAMILY STUDIES Pub Date : 2023-01-01 DOI: 10.1097/FCH.0000000000000350
Jollibyrd M Gusto, Angela W Prehn

Congestive heart failure (CHF) readmissions are frequent and costly but preventable. The purpose of this study was to analyze socioeconomic and health-related factors of CHF readmissions by examining the relationship between 30-day readmissions of individuals with CHF and their payer status, race, ethnicity, primary language spoken, living arrangement, and comorbidities. This retrospective case-control study used secondary data from 450 CHF patients admitted to a not-for-profit Northern Virginia hospital from July 2014 to December 2017. Data were analyzed using χ 2 and logistic regression. Living arrangements and comorbid chronic renal failure (CRF) were statistically significant predictors of CHF readmissions; all other factors were nonsignificant. Patients who lived with family and those in assisted living facilities were less likely to be readmitted than those who lived alone (odds ratio [OR] = 0.2 and 0.5, respectively). Patients without CRF were less likely to be readmitted than those who had CRF (OR = 0.6). This study contributes data to inform community-based health programs tailored toward frequently readmitted individuals due to CHF exacerbation.

充血性心力衰竭(CHF)再入院是频繁和昂贵的,但可以预防。本研究的目的是通过检查CHF患者30天再入院与其付款人身份、种族、民族、主要语言、生活安排和合并症之间的关系,分析CHF再入院的社会经济和健康相关因素。这项回顾性病例对照研究使用了2014年7月至2017年12月在北弗吉尼亚一家非营利性医院住院的450名CHF患者的次要数据。采用χ 2和逻辑回归对数据进行分析。生活安排和合并症慢性肾功能衰竭(CRF)是CHF再入院的有统计学意义的预测因素;其他因素均不显著。与单独生活的患者相比,与家人一起生活和在辅助生活设施中生活的患者再入院的可能性更小(比值比[OR]分别= 0.2和0.5)。无CRF患者再入院的可能性低于有CRF患者(OR = 0.6)。本研究提供的数据为社区卫生计划提供信息,这些计划针对因CHF加重而频繁再入院的个体。
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引用次数: 0
Voices of Women With Lived Experience of Substance Use During Pregnancy: A Qualitative Study of Motivators and Barriers to Recruitment and Retention in Research. 有怀孕期间使用药物经历的妇女的声音:关于招募和保留研究人员的动机和障碍的定性研究。
IF 1.5 4区 医学 Q3 FAMILY STUDIES Pub Date : 2023-01-01 DOI: 10.1097/FCH.0000000000000349
Florence Hilliard, Ellen Goldstein, Kendra Nervik, Kenneth Croes, Pilar N Ossorio, Aleksandra E Zgierska

Despite concerns about negative neurocognitive effects of in utero substance exposure on child and brain development, research in this area is limited. This study gathered perspectives of persons with lived experience of substance use (eg, alcohol, prescription and illicit opioids, and other illicit substances) during a previous pregnancy to determine facilitators and barriers to research engagement in this vulnerable population. We conducted structured, in-depth, individual interviews and 2 focus groups of adult persons with lived experience of substance use during a previous pregnancy. Questions were developed by clinical, research, bioethics, and legal experts, with input from diverse stakeholders. They inquired about facilitators and barriers to research recruitment and retention, especially in long-term studies, with attention to bio-sample and neuroimaging data collection and legal issues. Interviews and focus groups were audio-recorded, transcribed, and analyzed using inductive coding qualitative analysis methods. Ten participants completed in-depth interviews and 7 participated in focus groups. Three main themes emerged as potential barriers to research engagement: shame of using drugs while pregnant, fear of punitive action, and mistrust of health care and research professionals. Facilitative factors included trustworthiness, compassion, and a nonjudgmental attitude among research personnel. Inclusion of gender-concordant recovery peer support specialists as research team members was the most frequently identified facilitator important for helping participants reduce fears and bolster trust in research personnel. In this qualitative study, persons with lived experience of substance use during a previous pregnancy identified factors critical for engaging this population in research, emphasizing the involvement of peer support specialists as research team members.

尽管人们担心子宫内接触药物会对儿童和大脑发育造成负面的神经认知影响,但这方面的研究却十分有限。本研究收集了曾在怀孕期间使用过药物(如酒精、处方和非法阿片类药物以及其他非法药物)的人的观点,以确定这一弱势群体参与研究的促进因素和障碍。我们对曾在怀孕期间使用过药物的成年人进行了结构化、深入的个人访谈和两个焦点小组。问题由临床、研究、生命伦理学和法律专家根据不同利益相关者的意见制定。他们询问了研究人员招募和保留的促进因素和障碍,尤其是在长期研究中,并关注生物样本和神经影像数据的收集以及法律问题。对访谈和焦点小组进行了录音、转录,并采用归纳编码定性分析方法进行了分析。10 名参与者完成了深度访谈,7 名参与者参加了焦点小组。作为参与研究的潜在障碍,出现了三大主题:怀孕期间吸毒的羞耻感、对惩罚行动的恐惧以及对医疗保健和研究专业人员的不信任。促进因素包括研究人员的可信度、同情心和不做评判的态度。将性别一致的康复同伴支持专家纳入研究小组成员是最常被确认的促进因素,这对帮助参与者减少恐惧和增强对研究人员的信任非常重要。在这项定性研究中,曾经在怀孕期间使用过药物的人指出了让这一人群参与研究的关键因素,强调了同伴支持专家作为研究小组成员的参与。
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引用次数: 0
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