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Unmet Healthcare Need Due to Cost Concerns among U.S. Transgender and Gender-Expansive Adults: Results from a National Survey. 未满足的医疗保健需求,由于成本问题在美国跨性别和性别膨胀的成年人:来自全国调查的结果。
IF 1.5 4区 社会学 Q1 SOCIAL WORK Pub Date : 2021-11-16 DOI: 10.1093/hsw/hlab029
Luisa Kcomt, Kevin M Gorey, Betty Jo Barrett, Dana S Levin, Jill Grant, Sean Esteban McCabe

This study examines past-year unmet healthcare need due to cost experienced by transgender and gender-expansive (TGE) adults in the United States in the context of the Patient Protection and Affordable Care Act (ACA). It also aims to estimate the importance of having health insurance among TGE Americans (transgender men, transgender women, nonbinary/genderqueer people, and cross-dressers). Data were from the 2015 U.S. Transgender Survey (N = 19,157 adults, aged 25 to 64 years). Multivariable logistic regression models were used to determine the adjusted odds ratios (AOR) and 95 percent confidence intervals (CI) of TGE individuals' past-year unmet healthcare need due to cost. Although the majority (86.8 percent) reported seeing a doctor or healthcare provider in the past year, 32.1 percent reported past-year unmet healthcare need due to cost. One in six respondents (17.1 percent) was uninsured and almost one-third (29.8 percent) were at/near poverty. The prevalence of unmet healthcare need was greater among the uninsured (65.1 percent) than among the insured (25.2 percent). Compared with transgender women, nonbinary/genderqueer people (AOR = 1.31, 95% CI [1.18, 1.46]) and transgender men (AOR = 1.30, 95% CI [1.18, 1.42]) had greater odds of unmet healthcare need due to cost. Social workers can lobby to fully enact the ACA by underscoring affordability and availability as important dimensions of healthcare access for TGE populations.

本研究在《患者保护和平价医疗法案》(ACA)的背景下,调查了美国跨性别和性别膨胀(TGE)成年人过去一年因成本而未满足的医疗需求。它还旨在估计TGE美国人(跨性别男性、跨性别女性、非二元性别/性别酷儿人群和变装者)拥有医疗保险的重要性。数据来自2015年美国跨性别调查(N = 19,157名年龄在25至64岁之间的成年人)。使用多变量逻辑回归模型确定TGE个体过去一年因成本而未满足的医疗保健需求的调整优势比(AOR)和95%置信区间(CI)。尽管大多数人(86.8%)表示在过去一年中看过医生或医疗保健提供者,但32.1%的人表示,由于成本原因,过去一年中未满足医疗保健需求。六分之一的受访者(17.1%)没有保险,近三分之一(29.8%)处于或接近贫困。未得到满足的医疗保健需求在无保险人群中(65.1%)比在有保险人群中(25.2%)更为普遍。与跨性别女性相比,非二元性/性别酷儿人群(AOR = 1.31, 95% CI[1.18, 1.46])和跨性别男性(AOR = 1.30, 95% CI[1.18, 1.42])因成本原因而未满足医疗需求的几率更大。社会工作者可以通过强调可负担性和可用性作为TGE人群获得医疗保健的重要方面来游说全面制定ACA。
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引用次数: 6
Hospital Parenting Support for Adults with Incurable End-Stage Cancer: Multidisciplinary Health Professional Perspectives. 医院对患有无法治愈的终末期癌症的成人的育儿支持:多学科的健康专业观点。
IF 1.5 4区 社会学 Q1 SOCIAL WORK Pub Date : 2021-11-16 DOI: 10.1093/hsw/hlab024
Vera Steiner, Lynette Joubert, Aron Shlonsky, Anita Morris

Patients with incurable end-stage cancer (IESC) who are parenting minor-age children often experience parenting-related distress. Parenting concerns are not always addressed as part of routine hospital-based psychosocial care. Currently, there is a lack multidisciplinary health professional (HP) perspectives in this area. An exploratory study of hospital-based HP perspectives of adult patients' and coparents' parenting experiences, support needs, and parenting supportive care practice was conducted. Twelve multidisciplinary HPs from one Australian tertiary hospital participated in a semistructured focus group and interviews. Data were audio recorded, transcribed, and analyzed using thematic analysis. Results showed HPs were cognizant of patients' and coparents' diverse parenting support needs and experiences and other aspects that comprise best practice. However, multilevel organization, HP, and patient/coparent barriers impeded optimal practice. Barriers included a nonsystemized approach to screening patients' parenting status and parenting support needs, inadequate resources, limited professional support, hospital environment, and parent psychosocial factors. This article provides feasible options for addressing practice barriers. Reviewing what factors influence optimal parenting focus from interdisciplinary HP perspectives helped identify potential strategies that could influence a shift from medical-focused care to more holistic family-focused patient care.

患有无法治愈的晚期癌症(IESC)的患者在养育未成年子女时经常经历与养育子女相关的痛苦。在以医院为基础的常规心理社会护理中,并不总是处理育儿问题。目前,在这一领域缺乏多学科卫生专业人员(HP)的观点。本研究以医院为基础,对成人患者和父母的育儿经验、支持需求和育儿支持护理实践进行探索性研究。来自澳大利亚一家三级医院的12名多学科hp参加了半结构化焦点小组和访谈。对数据进行录音、转录并使用专题分析进行分析。结果表明,卫生保健提供者认识到患者和父母不同的养育支持需求和经验,以及构成最佳实践的其他方面。然而,多层次组织、HP和患者/父母障碍阻碍了最佳实践。障碍包括筛查患者养育状况和养育支持需求的非系统化方法、资源不足、专业支持有限、医院环境和父母心理社会因素。本文为解决实践障碍提供了可行的选择。从跨学科的HP角度回顾影响最佳育儿重点的因素有助于确定可能影响从以医疗为中心的护理转向更全面的以家庭为中心的患者护理的潜在策略。
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引用次数: 2
Family Identity and Roles in the Context of Li-Fraumeni Syndrome: "No One's Like Us Mutants". Li-Fraumeni 综合症背景下的家庭身份和角色:"没有人像我们一样是变种人"。
IF 1.5 4区 社会学 Q1 SOCIAL WORK Pub Date : 2021-11-16 DOI: 10.1093/hsw/hlab032
Catherine Wilsnack, Jennifer L Young, Shana L Merrill, Victoria Groner, Jennifer T Loud, Renee C Bremer, Mark H Greene, Payal P Khincha, Allison Werner-Lin

Li-Fraumeni syndrome (LFS) is a rare hereditary cancer syndrome in which individuals have a significantly increased risk of developing multiple cancers throughout the life span. An LFS diagnosis may shift the individual's sense of self and tolerance of cancer risk as they engage in cancer screening and cancer prevention activities. This study examined the impact of family identity on health decision making, communication, and role function. Forty-five families completed one or more interviews during an annual, protocol-specific cancer screening study. An interdisciplinary team analyzed 66 interviews using interpretive description and modified grounding theory. Thematically, identity emerged as an evolving construct regarding self and/or family, embedded in historical and ongoing experiences with LFS. Notions of individual and shared family identities guided decision making related to healthcare and influenced interpersonal communication and role function between supportive networks and families. Alignment between individual, family, and generational identities may shape engagement in genetic testing, risk management, and family life. Medical teams that are unequipped to address the psychosocial challenges that LFS populations face may include mental health professionals on interprofessional care teams to navigate risk management and consequential familial conflict.

李-弗劳米尼综合征(LFS)是一种罕见的遗传性癌症综合征,患者终生罹患多种癌症的风险显著增加。在参与癌症筛查和癌症预防活动时,LFS 诊断可能会改变患者的自我意识和对癌症风险的承受能力。本研究探讨了家庭认同对健康决策、沟通和角色功能的影响。在每年一次的特定癌症筛查研究中,45 个家庭完成了一次或多次访谈。一个跨学科小组利用解释性描述和修正的基础理论对 66 个访谈进行了分析。从主题上看,身份认同是一种关于自我和/或家庭的不断发展的建构,蕴含在与 LFS 有关的历史和持续经历中。个人和共同家庭身份的概念指导着与医疗保健相关的决策,并影响着支持性网络和家庭之间的人际沟通和角色功能。个人、家庭和代际认同之间的一致性可能会影响基因检测、风险管理和家庭生活的参与度。医疗团队如果不具备应对 LFS 群体所面临的社会心理挑战的能力,可以在跨专业医疗团队中加入心理健康专业人员,以引导风险管理和随之而来的家庭冲突。
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引用次数: 0
Values Not Our Own: Interrogating Psychosocial Suitability in the Transplant Social Work Assessment. 价值观不是我们自己的:对移植社会工作评估中的心理社会适宜性的质疑。
IF 1.5 4区 社会学 Q1 SOCIAL WORK Pub Date : 2021-11-16 DOI: 10.1093/hsw/hlab028
Sinthu Srikanthan
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引用次数: 1
Self-Care Insights from COVID-19. 来自COVID-19的自我保健见解。
IF 1.5 4区 社会学 Q1 SOCIAL WORK Pub Date : 2021-11-16 DOI: 10.1093/hsw/hlab030
Christine M Rine
N ot surprisingly, a great deal of literature continues to emerge that addresses the effects of COVID-19 on various populations of interest to social work policy and practice. A substantial number of such articles have been and will be published in Health & Social Work and other journals central to the discipline. This growing body of literature addresses a wide range of presenting concerns across varied settings with attention to particular disparities faced by vulnerable populations. While the focus of social work practice centers around the needs of those we serve, it is essential to consider how COVID-19 has affected—and may enduringly affect—us, both as individuals and professionals. The challenges faced by social workers during the pandemic are far-reaching and unique to each of us. As a profession, social work has been confronted with an increase in mental, behavioral, and physical health concerns among those with whom we work; overwhelming job demands that carry the expectation of maintaining productivity while adapting to physical distancing protocols; rising social inequities; a worldwide atmosphere suffused in complex grief; anxieties about personal safety and that of our loved ones; expanding responsibilities in caring for children and other family members; and the innumerable ethical dilemmas that come with this intricate combination of obligations (McClain, 2020). It is certainly no wonder that social worker wellness, work–life balance, and selfcare feel monumentally difficult to consider, no less to achieve. The pressure to do so can in itself be experienced as just another unreachable expectation or chore rather than a benefit. The familiar airline instructions “Please place the mask over your own mouth and nose before assisting others” come to mind. Yet, these routine safety precautions fall short as we should not wait for the unexpected, emergency situations or global pandemics to employ self-care strategies. The importance of wellness has long been a consistent part of our training and continual professional development that is supported by the National Association of Social Workers (NASW, 2021) Code of Ethics as professional responsibility to ensure ethical practice (Downing et al., 2021). COVID-19 brought the necessity of self-care practices to the forefront and tested our ability to use them, often while working and living in the same space. The standard recipe—taking time for oneself, maintaining social connections, seeking support, setting boundaries, self-reflecting, taking measures to prevent burnout—can be difficult to attain or maintain in the best circumstances. While facing the additional stressors introduced by a global pandemic, these recommendations can feel insufficient and be easily brushed aside in the moment. Complicating matters, various physical distancing, quarantine, and isolation procedures forced us to reimagine how these strategies can be implemented safely while maintaining their effectiveness. For exa
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引用次数: 0
Chronic Medical Conditions as Predictors of the Likelihood of PTSD among Black Adults: Preparing for the Aftermath of COVID-19. 慢性疾病作为黑人成年人PTSD可能性的预测因素:为COVID-19的后果做准备。
IF 1.5 4区 社会学 Q1 SOCIAL WORK Pub Date : 2021-11-16 DOI: 10.1093/hsw/hlab025
Paul Archibald, Roland Thorpe

The relationship between chronic medical conditions and PTSD within-race in Black adults is not well understood and there exists a dearth of empirical research investigating the gender differences. Cross-sectional data from the National Survey of American Life were used to examine the relationship between PTSD and obesity, hypertension, diabetes, heart disease, and asthma (five of the most commonly identified COVID-19 underlying medical conditions) among Black adults in the United States. Results from modified Poisson regression analyses revealed that Black adults across all three groups (overall, male, and female samples) who reported two or more chronic medical conditions had a higher prevalence of PTSD than those who reported zero or one. Black men with obesity, diabetes, or heart disease and Black women with asthma had a higher prevalence of PTSD than those who did not report obesity, diabetes, heart disease, or asthma. Findings from this study underscore the need to alert social workers to the potential relationship between obesity, diabetes, or heart disease and PTSD for Black men and asthma and PTSD for Black women to help develop culturally appropriate biopsychosocial-spiritual assessments, with a measured focus on Black men based on their comparatively worse health status.

黑人成人慢性疾病与创伤后应激障碍的种族内关系尚不清楚,缺乏对性别差异的实证研究。来自美国生活全国调查的横断面数据被用来研究美国黑人成年人中创伤后应激障碍与肥胖、高血压、糖尿病、心脏病和哮喘(五种最常见的COVID-19潜在医疗条件)之间的关系。修正泊松回归分析的结果显示,在所有三组(总体、男性和女性样本)中,报告有两种或两种以上慢性疾病的黑人成年人患PTSD的比例高于报告没有或一种慢性疾病的黑人。患有肥胖、糖尿病或心脏病的黑人男性和患有哮喘的黑人女性患创伤后应激障碍的比例高于未患有肥胖、糖尿病、心脏病或哮喘的黑人男性。这项研究的发现强调,有必要提醒社会工作者注意黑人男性的肥胖、糖尿病或心脏病与创伤后应激障碍之间的潜在关系,以及黑人女性的哮喘和创伤后应激障碍之间的关系,以帮助发展文化上适当的生物、心理、社会、精神评估,并根据黑人男性相对较差的健康状况,对他们进行有针对性的关注。
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引用次数: 2
Having to "Hold It": Factors That Influence the Avoidance of Using Public Bathrooms among Transgender People. 不得不“憋着”:影响变性人避免使用公共厕所的因素。
IF 1.5 4区 社会学 Q1 SOCIAL WORK Pub Date : 2021-11-16 DOI: 10.1093/hsw/hlab027
Justin Evan Lerner

Transgender people often avoid going to the bathroom in public, at work, and at school because they are afraid of facing problems while using them. Utilizing the 2015 U.S. Transgender Survey, the largest sample to date with transgender people, this study (N = 25,694) aimed to understand the factors associated with avoiding bathroom usage as well as how the avoidance may impact the health of transgender people. Logistic regression was used to examine factors associated with avoidance of bathrooms. More than six out of 10 transgender people avoided using public bathrooms. Being questioned about a person's bathroom choice, gender identity, perception of gender identity, previous experiences of discrimination, suicidal ideation, and serious psychological distress were found to be associated with avoidance of public bathrooms due to fears of having problems when using them. Gender-neutral bathrooms that are safe and accessible for transgender people need to be more available and accessible in the United States.

跨性别者经常避免在公共场所、工作场所和学校上厕所,因为他们害怕在使用时遇到问题。利用2015年美国跨性别调查,这是迄今为止最大的跨性别人群样本,这项研究(N = 25,694)旨在了解避免使用洗手间的相关因素,以及避免使用洗手间如何影响跨性别人群的健康。使用逻辑回归来检查与回避洗手间相关的因素。超过六成的跨性别者避免使用公共厕所。研究发现,当被问及厕所选择、性别认同、对性别认同的看法、之前的歧视经历、自杀念头和严重的心理困扰时,由于担心在使用时出现问题而避免使用公共厕所。在美国,跨性别者需要更多安全、方便使用的中性浴室。
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引用次数: 2
Social Work Care in Traumatic Brain Injury and Substance Use Disorder Treatment: A Capacity-Building Model. 创伤性脑损伤和物质使用障碍治疗中的社会工作护理:一个能力建设模型。
IF 1.5 4区 社会学 Q1 SOCIAL WORK Pub Date : 2021-11-16 DOI: 10.1093/hsw/hlab023
Kathryn A Coxe, Erica K Pence, Njeri Kagotho

Co-occurring traumatic brain injury (TBI) and substance use disorders (SUD) are a major public health concern, yet TBI is often underrecognized within SUD treatment organizations. Social workers in these organizations are well positioned to deliver tailored treatment, but little is known about what social workers are doing to address the needs of these clients. The purpose of this study was to examine current social work practices in providing care to clients with co-occurring TBI and SUD. Using grounded theory methodology, authors conducted semistructured interviews with 17 licensed social workers employed in various SUD treatment settings. Transcript coding was conducted through an iterative process and data were analyzed using NVivo (version 12.0). Results demonstrated that social workers lack basic knowledge on the relationship between TBI and SUD. Additional barriers to providing care included lack of skills to identify history of TBI, lack of community resources, poor agency collaboration, and access-to-care restrictions. Social workers identified their primary roles as advocacy, care coordination, and serving on multidisciplinary teams. These results informed development of a capacity-building model, with recommendations for social work situated in each level of the socioecological framework. This study has important implications for building workforce capacity and collaborative care systems to improve client outcomes.

共同发生的创伤性脑损伤(TBI)和物质使用障碍(SUD)是一个主要的公共卫生问题,但在SUD治疗机构中,TBI往往未得到充分认识。这些组织的社会工作者有能力提供量身定制的治疗,但很少有人知道社会工作者正在做些什么来满足这些客户的需求。本研究的目的是考察当前社会工作在为同时发生TBI和SUD的客户提供护理方面的实践。采用扎根理论方法,作者对17名在不同SUD治疗环境中工作的持牌社会工作者进行了半结构化访谈。通过迭代过程对转录本进行编码,并使用NVivo (version 12.0)对数据进行分析。结果表明,社会工作者对创伤性脑损伤与SUD之间的关系缺乏基本的认识。提供护理的其他障碍包括缺乏识别创伤性脑损伤病史的技能、缺乏社区资源、机构合作不佳以及获得护理的限制。社会工作者认为他们的主要角色是倡导、护理协调和服务于多学科团队。这些结果为能力建设模式的发展提供了信息,并为社会生态框架的每个层面的社会工作提出了建议。本研究对建立劳动力能力和协作护理系统以改善客户结果具有重要意义。
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引用次数: 4
Student Mental Health: A Guide for Teachers, School and District Leaders, School Psychologists and Nurses, Social Workers, Counselors, and Parents. William Dikel 学生心理健康:教师、学校和地区领导、学校心理学家和护士、社会工作者、辅导员和家长指南。William Dikel
IF 1.5 4区 社会学 Q1 SOCIAL WORK Pub Date : 2021-10-06 DOI: 10.1093/hsw/hlab022
M. Smith
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引用次数: 3
Direct Caregiving in Older Adults: How Systems of Care Perpetuate the Grand Challenges and What Social Workers Can Do about It. 老年人的直接照护:照护系统如何延续巨大的挑战以及社会工作者能做些什么。
IF 1.5 4区 社会学 Q1 SOCIAL WORK Pub Date : 2021-08-05 DOI: 10.1093/hsw/hlab017
Nancy Kusmaul, Stephanie P Wladkowski

Direct care workers (DCWs) provide personal care, emotional support, and companionship, helping older adults maintain quality lives. DCWs earn low wages, have little training, and experience high turnover rates. While the demand for DCWs grows, real wages continue to fall. Undervaluing DCWs threatens the continuity and quality of care that older adults receive. Through the social work grand challenges lens, this article discusses two qualitative studies, in home care (n = 24) and nursing homes (n = 23), that demonstrate that while DCWs help advance long and productive lives, they experience extreme economic inequality and lack equal opportunity and justice. The article concludes with a discussion of social work's role in advancing opportunity and justice.

直接护理工作者(DCWs)提供个人护理、情感支持和陪伴,帮助老年人保持高质量的生活。dcw的工资很低,几乎没有受过培训,并且经历了很高的离职率。虽然对临时工的需求在增长,但实际工资却在持续下降。对家庭看护的低估威胁到老年人接受护理的连续性和质量。通过社会工作巨大挑战的视角,本文讨论了两项定性研究,分别是家庭护理(n = 24)和养老院(n = 23),这些研究表明,尽管家庭护理人员有助于延长寿命和提高生活效率,但他们经历了极端的经济不平等,缺乏平等的机会和正义。文章最后讨论了社会工作在促进机会和正义方面的作用。
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引用次数: 2
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Health & Social Work
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