Pub Date : 2023-01-01DOI: 10.1080/07347332.2022.2102958
Meghan K McInnis, Caroline F Pukall
Purpose: To investigate the relationship among sexual functioning, sexual script flexibility, and sexual satisfaction in individuals diagnosed with prostate cancer.
Design: Cross-sectional online survey.
Participants: Sixty-one men diagnosed with localized prostate cancer.
Methods: Online survey of sexual functioning, sexual script flexibility, and sexual satisfaction. Ordinal logistic regression investigated predictors of sexual satisfaction.
Findings: Greater sexual script flexibility was associated with a greater likelihood of being sexually satisfied.
Conclusions: Helping patients explore different ways of being sexual after treatment could help with sexual satisfaction maintenance.
Implications: Patients' sexual satisfaction may benefit from discussions of issues related to sexuality and ways to work around treatment-related sexual dysfunction with healthcare providers.
{"title":"Sexual script flexibility after a prostate cancer diagnosis: Implications for sexual satisfaction.","authors":"Meghan K McInnis, Caroline F Pukall","doi":"10.1080/07347332.2022.2102958","DOIUrl":"https://doi.org/10.1080/07347332.2022.2102958","url":null,"abstract":"<p><strong>Purpose: </strong>To investigate the relationship among sexual functioning, sexual script flexibility, and sexual satisfaction in individuals diagnosed with prostate cancer.</p><p><strong>Design: </strong>Cross-sectional online survey.</p><p><strong>Participants: </strong>Sixty-one men diagnosed with localized prostate cancer.</p><p><strong>Methods: </strong>Online survey of sexual functioning, sexual script flexibility, and sexual satisfaction. Ordinal logistic regression investigated predictors of sexual satisfaction.</p><p><strong>Findings: </strong>Greater sexual script flexibility was associated with a greater likelihood of being sexually satisfied.</p><p><strong>Conclusions: </strong>Helping patients explore different ways of being sexual after treatment could help with sexual satisfaction maintenance.</p><p><strong>Implications: </strong>Patients' sexual satisfaction may benefit from discussions of issues related to sexuality and ways to work around treatment-related sexual dysfunction with healthcare providers.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":"41 3","pages":"267-276"},"PeriodicalIF":2.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9634403","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Methods: Data were summarized descriptively and with logistic regression analyses.
Findings: Sixteen percent of patients had completed ACP prior to meeting with the oncology social worker (OSW). Twenty percent of patients agreed to complete a health care proxy (HCP) after receiving culturally-tailored education in their language of origin from the OSW, while 75% remained open to ongoing consideration of ACP and HCP completion.
Conclusions: This study illuminates how Chinese immigrants engage in ACP discussions in an oncology setting.
Implications for psychosocial provider: OSWs can play an integral role in advocating, educating, and intervening with this population and can assist the interdisciplinary team in understanding the importance of the cultural differences, even if the OSW's primary language differs from that of a patient's.
{"title":"Lessons learned from a social worker's approach to advance care planning discussions with Chinese-immigrant oncology outpatients.","authors":"Mi Zhou, Toby Bressler, Alan Weinberg, Alison Snow","doi":"10.1080/07347332.2022.2103486","DOIUrl":"https://doi.org/10.1080/07347332.2022.2103486","url":null,"abstract":"<p><strong>Purpose: </strong>To examine Chinese-immigrant cancer patients' openness to advance care planning (ACP) in an outpatient oncology setting.</p><p><strong>Design: </strong>Retrospective review of social work assessment data.</p><p><strong>Sample: </strong>150 Chinese-immigrant patient charts were reviewed (55% Cantonese, 45% Mandarin).</p><p><strong>Methods: </strong>Data were summarized descriptively and with logistic regression analyses.</p><p><strong>Findings: </strong>Sixteen percent of patients had completed ACP prior to meeting with the oncology social worker (OSW). Twenty percent of patients agreed to complete a health care proxy (HCP) after receiving culturally-tailored education in their language of origin from the OSW, while 75% remained open to ongoing consideration of ACP and HCP completion.</p><p><strong>Conclusions: </strong>This study illuminates how Chinese immigrants engage in ACP discussions in an oncology setting.</p><p><strong>Implications for psychosocial provider: </strong>OSWs can play an integral role in advocating, educating, and intervening with this population and can assist the interdisciplinary team in understanding the importance of the cultural differences, even if the OSW's primary language differs from that of a patient's.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":"41 3","pages":"277-285"},"PeriodicalIF":2.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9688884","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Purpose: To better understand the current salaries and student loan debt levels among oncology social workers (OSWs).
Design: Cross-sectional study using online survey.
Sample: OSWs across a variety of cancer care settings in the U.S. (n = 1055).
Methods: Salary and debt were collected via single ordinal variables. Crosstabs and chi-square tests were used to examine whether salary and debt differ by demographic and work-related characteristics.
Findings: Median OSW salaries ranged from $60,001 to $70,000. Three-fourths of OSWs reported having student loan debt. Younger and recently graduated OSWs and OSWs of color were more likely to have greater student loan debt than their counterparts.
Conclusions: Relative low salary and debt burden have important implications for securing a current and future OSW workforce.
Implications for psychosocial policy: Adequate reimbursement and loan repayment opportunities for frontline OSWs will better secure this workforce. Advocacy efforts to identify OSWs qualified for loan forgiveness programs are warranted.
{"title":"Salary and student loan debt for oncology social workers: Findings from the oncology social work competencies, opportunities, roles and expertise (CORE) survey.","authors":"Ting Guan, Brad Zebrack, Shirley Otis-Green, Grace DesJardins","doi":"10.1080/07347332.2022.2101906","DOIUrl":"https://doi.org/10.1080/07347332.2022.2101906","url":null,"abstract":"<p><strong>Purpose: </strong>To better understand the current salaries and student loan debt levels among oncology social workers (OSWs).</p><p><strong>Design: </strong>Cross-sectional study using online survey.</p><p><strong>Sample: </strong>OSWs across a variety of cancer care settings in the U.S. (<i>n</i> = 1055).</p><p><strong>Methods: </strong>Salary and debt were collected via single ordinal variables. Crosstabs and chi-square tests were used to examine whether salary and debt differ by demographic and work-related characteristics.</p><p><strong>Findings: </strong>Median OSW salaries ranged from $60,001 to $70,000. Three-fourths of OSWs reported having student loan debt. Younger and recently graduated OSWs and OSWs of color were more likely to have greater student loan debt than their counterparts.</p><p><strong>Conclusions: </strong>Relative low salary and debt burden have important implications for securing a current and future OSW workforce.</p><p><strong>Implications for psychosocial policy: </strong>Adequate reimbursement and loan repayment opportunities for frontline OSWs will better secure this workforce. Advocacy efforts to identify OSWs qualified for loan forgiveness programs are warranted.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":"41 2","pages":"196-209"},"PeriodicalIF":2.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10853815","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-01Epub Date: 2022-08-16DOI: 10.1080/07347332.2022.2108743
Maya Atlas, Tae L Hart
Purpose/objectives: To examine the extent to which religious/spiritual coping moderates the association between stress appraisals and hope among patients with colorectal cancer.
Design/research approach: A longitudinal, prospective examination of hope, stress appraisals of cancer, and religious/spiritual coping through self-report questionnaires at baseline, 6-months, and 12-months post-surgery.
Sample/participants: One hundred thirty-nine newly diagnosed patients with colorectal cancer recruited from tertiary medical centers.
Findings: Challenge and threat appraisals predicted hope. Only the relationship between hope and challenge appraisals was significantly moderated by coping through religion/spirituality, such that those who were both low on challenge and low in religious/spiritual coping reported the lowest hope.
Conclusions/interpretation: Hope is predicted by how people appraise their cancer. Hope was lowest among participants who reported both low challenge appraisals and religious/spiritual coping.
Implications for psychosocial providers: Understanding how patients appraise their cancer and use religion/spirituality to cope may help providers understand which patients are at risk for low hope.
{"title":"Appraisals of cancer, religious/spiritual coping, and hope in patients with colorectal cancer.","authors":"Maya Atlas, Tae L Hart","doi":"10.1080/07347332.2022.2108743","DOIUrl":"10.1080/07347332.2022.2108743","url":null,"abstract":"<p><strong>Purpose/objectives: </strong>To examine the extent to which religious/spiritual coping moderates the association between stress appraisals and hope among patients with colorectal cancer.</p><p><strong>Design/research approach: </strong>A longitudinal, prospective examination of hope, stress appraisals of cancer, and religious/spiritual coping through self-report questionnaires at baseline, 6-months, and 12-months post-surgery.</p><p><strong>Sample/participants: </strong>One hundred thirty-nine newly diagnosed patients with colorectal cancer recruited from tertiary medical centers.</p><p><strong>Findings: </strong>Challenge and threat appraisals predicted hope. Only the relationship between hope and challenge appraisals was significantly moderated by coping through religion/spirituality, such that those who were both low on challenge and low in religious/spiritual coping reported the lowest hope.</p><p><strong>Conclusions/interpretation: </strong>Hope is predicted by how people appraise their cancer. Hope was lowest among participants who reported both low challenge appraisals and religious/spiritual coping.</p><p><strong>Implications for psychosocial providers: </strong>Understanding how patients appraise their cancer and use religion/spirituality to cope may help providers understand which patients are at risk for low hope.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":"41 3","pages":"337-354"},"PeriodicalIF":2.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9931936/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9626104","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Background: Similar to the side effects of cancer treatment, financial toxicity (FT) can affect the quality of life of patients, which has attracted increasing attention in the field of oncology. Despite the fact that the estimated prevalence and risk factors of FT are widely reported, these results have not been synthesized.
Objectives: This review is aimed to systematically assess the prevalence and risk factors of self-reported FT.
Design: Systematic review and meta-analyses.
Data sources: A computer search of English literature was conducted using databases of PubMed, EMBASE, Web of Science, PsycINFO, and CINAHL, and reference lists of the qualified articles were also included between January 2010 and September 2021. Observational studies that reported the prevalence or risk factors of FT using subjective measures were included.
Methods: The systematic review was guided by the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) statement. The risk of bias was assessed by the NIH observational cohort and cross-sectional study quality assessment tool. The data were extracted by two reviewers and listed in a descriptive table for meta-analyses.
Results: In the 22 studies available for meta-analyses of pooled prevalence of FT, the result was estimated to be 45% (95% CI: 38% to 53%, I2 = 97.3%, P < 0.001) based on a random-effects model. The pooled analysis identified 9 potential risk factors of FT (7 in β and 8 in OR): low income (OR = 2.48, 95% CI: 1.72 to 3.24, I2 = 3.1%, P < 0.001), greater annual OOP (β = -4.26, 95% CI: -6.95 to -1.57, I2 = 0%, P = 0.002), younger age (OR = 2.05, 95% CI: 1.56 to 2.54, I2 = 0%, P < 0.001), no private insurance (OR = 1.69, 95% CI: 1.02 to 2.37, I2 = 0%, P < 0.001), unmarried (OR = 1.10, 95% CI: 0.95 to 1.25, I2 = 53,3%, P < 0.001), nonwhite (OR = 1.59, 95% CI: 1.33 to 1.85, I2 = 0%, P < 0.001), advanced cancer (β = -4.74, 95% CI: -6.90 to -2.57, I2 = 0%, P < 0.001), unemployed (β = -2.90, 95% CI: -5.71 to -0.63, I2 = 75,7%, P < 0.001), more recent diagnosis (OR = 1.31, 95% CI: 1.04 to 1.57, I2 = 0%, P < 0.001).
Conclusion: This systematic review reported a pooled prevalence of self-reported FT of 45%. Low income, greater annual OOP (Out of pocket), younger age, unmarried, unemployed, nonwhite, no private insurance, advanced cancer, and more recent diagnosis constituted risk factors for self-reported FT. The research on risk factors for FT can provide a theoretical basis for medical staff to evaluate and intervene in the FT among cancer survivors.
背景:与癌症治疗的副作用类似,金融毒性(financial toxicity, FT)也会影响患者的生活质量,越来越受到肿瘤学领域的关注。尽管FT的估计患病率和危险因素被广泛报道,但这些结果尚未被综合。目的:本综述旨在系统地评估自我报告ft的患病率和危险因素。设计:系统综述和荟萃分析。数据来源:计算机检索PubMed、EMBASE、Web of Science、PsycINFO、CINAHL等数据库的英文文献,并纳入2010年1月至2021年9月间符合条件的文章参考文献列表。使用主观测量报告FT患病率或危险因素的观察性研究被纳入。方法:采用系统评价和荟萃分析首选报告项目(PRISMA)声明进行系统评价。偏倚风险通过NIH观察队列和横断面研究质量评估工具进行评估。数据由两位审稿人提取,并列在描述表中进行meta分析。22个研究可供荟萃分析的结果:汇集英国《金融时报》,结果是估计为45% (95% CI: 38%至53%,I2 = 97.3%, P 2 = 3.1%, P 2 = 0%, P = 0.002),年轻的年龄(或= 2.05,95%置信区间CI: 1.56 - 2.54, I2 = 0%, P 2 = 0%, P 2 = 53岁3%,P 2 = 0%, P 2 = 0%, P = 75, 7%, P 2 = 0%, P结论:这个系统回顾报告汇集了自我报告的英国《金融时报》的患病率为45%。收入低、年自费高、年龄小、未婚、无业、非白人、无私人保险、癌症晚期、诊断时间较晚构成自报FT的危险因素。对FT危险因素的研究可以为医务人员评估和干预癌症幸存者的FT提供理论依据。
{"title":"Prevalence and risk factors of self-reported financial toxicity in cancer survivors: A systematic review and meta-analyses.","authors":"Hua Jiang, Jianxia Lyu, Wenxuan Mou, Luxi Jiang, Yu Zeng, Ying Liu, Aiping Hu, Qinghua Jiang","doi":"10.1080/07347332.2022.2142877","DOIUrl":"https://doi.org/10.1080/07347332.2022.2142877","url":null,"abstract":"<p><strong>Background: </strong>Similar to the side effects of cancer treatment, financial toxicity (FT) can affect the quality of life of patients, which has attracted increasing attention in the field of oncology. Despite the fact that the estimated prevalence and risk factors of FT are widely reported, these results have not been synthesized.</p><p><strong>Objectives: </strong>This review is aimed to systematically assess the prevalence and risk factors of self-reported FT.</p><p><strong>Design: </strong>Systematic review and meta-analyses.</p><p><strong>Data sources: </strong>A computer search of English literature was conducted using databases of PubMed, EMBASE, Web of Science, PsycINFO, and CINAHL, and reference lists of the qualified articles were also included between January 2010 and September 2021. Observational studies that reported the prevalence or risk factors of FT using subjective measures were included.</p><p><strong>Methods: </strong>The systematic review was guided by the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) statement. The risk of bias was assessed by the NIH observational cohort and cross-sectional study quality assessment tool. The data were extracted by two reviewers and listed in a descriptive table for meta-analyses.</p><p><strong>Results: </strong>In the 22 studies available for meta-analyses of pooled prevalence of FT, the result was estimated to be 45% (95% CI: 38% to 53%, I<sup>2</sup> = 97.3%, P < 0.001) based on a random-effects model. The pooled analysis identified 9 potential risk factors of FT (7 in β and 8 in OR): low income (OR = 2.48, 95% CI: 1.72 to 3.24, I<sup>2</sup> = 3.1%, P < 0.001), greater annual OOP (β = -4.26, 95% CI: -6.95 to -1.57, I<sup>2</sup> = 0%, P = 0.002), younger age (OR = 2.05, 95% CI: 1.56 to 2.54, I<sup>2</sup> = 0%, P < 0.001), no private insurance (OR = 1.69, 95% CI: 1.02 to 2.37, I<sup>2</sup> = 0%, P < 0.001), unmarried (OR = 1.10, 95% CI: 0.95 to 1.25, I<sup>2</sup> = 53,3%, P < 0.001), nonwhite (OR = 1.59, 95% CI: 1.33 to 1.85, I<sup>2</sup> = 0%, P < 0.001), advanced cancer (β = -4.74, 95% CI: -6.90 to -2.57, I<sup>2</sup> = 0%, P < 0.001), unemployed (β = -2.90, 95% CI: -5.71 to -0.63, I<sup>2</sup> = 75,7%, P < 0.001), more recent diagnosis (OR = 1.31, 95% CI: 1.04 to 1.57, I<sup>2</sup> = 0%, P < 0.001).</p><p><strong>Conclusion: </strong>This systematic review reported a pooled prevalence of self-reported FT of 45%. Low income, greater annual OOP (Out of pocket), younger age, unmarried, unemployed, nonwhite, no private insurance, advanced cancer, and more recent diagnosis constituted risk factors for self-reported FT. The research on risk factors for FT can provide a theoretical basis for medical staff to evaluate and intervene in the FT among cancer survivors.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":"41 4","pages":"457-474"},"PeriodicalIF":2.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9684508","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-01Epub Date: 2022-01-18DOI: 10.1080/07347332.2021.2011530
Anao Zhang, Addie Weaver, Emily Walling, Brad Zebrack, Nina Jackson Levin, Beth Stuchell, Joseph Himle
Objectives: Technology-assisted Cognitive Behavioral Therapy (tCBT) has significant potentials to provide engaging and accessible depression treatment for adolescents and young adults (AYAs) coping with cancer. This study evaluated the feasibility and preliminary efficacy of an engaging and tailorable tCBT - Mind Your Total Health (MYTH) - for AYA cancer survivors' depression.
Methods: Seventeen AYAs diagnosed with cancer were randomly assigned to either the intervention (MYTH) or control group. The intervention group (n = 10) received eight weekly 30-35 minutes coach-assisted tCBT (MYTH), while the control group (n = 7) received active control, BeatingtheBlues (BtB).
Results: Eight out of ten participants in the MYTH group completed at least six out of eight sessions, suggesting strong feasibility (80% completion rate) among AYAs with cancer. Efficacy outcomes indicated that participants in the MYTH group reported significant pre- and post-treatment reduction in depression, t(9) = 5.25, p < 0.001, and anxiety, t(9)=5.07, p < 0.001. Notably, participants in the MYTH group reported significantly lower post-treatment depression than participants in the BtB group, t(15) = 2.40, p < 0.05. The between-group difference reflected a significant between-group treatment effect size, d = 1.12, p < 0.05.
Discussion: This engaging, tailorable, and coach-assisted tCBT intervention is promising in alleviating depression and anxiety among AYA cancer survivors. Future research needs to include larger sample size and a more diverse patient population.
{"title":"Evaluating an engaging and coach-assisted online cognitive behavioral therapy for depression among adolescent and young adult cancer survivors: A pilot feasibility trial.","authors":"Anao Zhang, Addie Weaver, Emily Walling, Brad Zebrack, Nina Jackson Levin, Beth Stuchell, Joseph Himle","doi":"10.1080/07347332.2021.2011530","DOIUrl":"10.1080/07347332.2021.2011530","url":null,"abstract":"<p><strong>Objectives: </strong>Technology-assisted Cognitive Behavioral Therapy (tCBT) has significant potentials to provide engaging and accessible depression treatment for adolescents and young adults (AYAs) coping with cancer. This study evaluated the feasibility and preliminary efficacy of an engaging and tailorable tCBT - Mind Your Total Health (MYTH) - for AYA cancer survivors' depression.</p><p><strong>Methods: </strong>Seventeen AYAs diagnosed with cancer were randomly assigned to either the intervention (MYTH) or control group. The intervention group (n = 10) received eight weekly 30-35 minutes coach-assisted tCBT (MYTH), while the control group (n = 7) received active control, BeatingtheBlues (BtB).</p><p><strong>Results: </strong>Eight out of ten participants in the MYTH group completed at least six out of eight sessions, suggesting strong feasibility (80% completion rate) among AYAs with cancer. Efficacy outcomes indicated that participants in the MYTH group reported significant pre- and post-treatment reduction in depression, <i>t</i>(9) = 5.25, <i>p</i> < 0.001, and anxiety, <i>t</i>(9)=5.07, <i>p</i> < 0.001. Notably, participants in the MYTH group reported significantly lower post-treatment depression than participants in the BtB group, <i>t</i>(15) = 2.40, <i>p</i> < 0.05. The between-group difference reflected a significant between-group treatment effect size, <i>d</i> = 1.12, <i>p</i> < 0.05.</p><p><strong>Discussion: </strong>This engaging, tailorable, and coach-assisted tCBT intervention is promising in alleviating depression and anxiety among AYA cancer survivors. Future research needs to include larger sample size and a more diverse patient population.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":"41 1","pages":"20-42"},"PeriodicalIF":2.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10599691/pdf/nihms-1934224.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10632119","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-01DOI: 10.1080/07347332.2022.2086092
Michal Yaffe Ornstein, Edwa Friedlander, Shir Katz, Ronit Elhasid
To assess COVID-19-pandemic related anxiety and emotional-behavioral difficulties among oncologic children and their caregivers.
Prospective cohort study conducted from March to November 2020.
76 pediatric oncological and 28 nonmalignant hematological patients aged 1.6-23.4 years and their caregivers.
A total of 104 families completed an age-specific self-report psychological assessment; of these, 20 oncologic families completed the assessment at two time points.
Ten percent of the caregivers and 13.9% of the patients reported anxiety disorder. Additionally, 3.1% of the caregivers reported behavioral difficulties. No significant differences emerged between patients' self-reports and caregivers' reports. No differences emerged between oncological and nonmalignant hematological participants.
The prevalence of anxiety associated with the COVID-19 pandemic was similar to the reported prevalence of anxiety following a diagnosis of pediatric malignancy.
Real-time assessment of psychological effects revealed no COVID-19-associated anxiety. Nonetheless, late effects will need to be monitored.
{"title":"Prospective assessment of anxiety among pediatric oncology patients and their caregivers during the COVID-19 pandemic a cohort study.","authors":"Michal Yaffe Ornstein, Edwa Friedlander, Shir Katz, Ronit Elhasid","doi":"10.1080/07347332.2022.2086092","DOIUrl":"https://doi.org/10.1080/07347332.2022.2086092","url":null,"abstract":"<p><p>To assess COVID-19-pandemic related anxiety and emotional-behavioral difficulties among oncologic children and their caregivers.</p><p><p>Prospective cohort study conducted from March to November 2020.</p><p><p>76 pediatric oncological and 28 nonmalignant hematological patients aged 1.6-23.4 years and their caregivers.</p><p><p>A total of 104 families completed an age-specific self-report psychological assessment; of these, 20 oncologic families completed the assessment at two time points.</p><p><p>Ten percent of the caregivers and 13.9% of the patients reported anxiety disorder. Additionally, 3.1% of the caregivers reported behavioral difficulties. No significant differences emerged between patients' self-reports and caregivers' reports. No differences emerged between oncological and nonmalignant hematological participants.</p><p><p>The prevalence of anxiety associated with the COVID-19 pandemic was similar to the reported prevalence of anxiety following a diagnosis of pediatric malignancy.</p><p><p>Real-time assessment of psychological effects revealed no COVID-19-associated anxiety. Nonetheless, late effects will need to be monitored.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":"41 2","pages":"182-195"},"PeriodicalIF":2.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10784960","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Abstract Objectives: To explore the difficulties parents face when understanding their children’s reactions to parental cancer and parents’ reactions to their children’s perceived needs. Research approach: Qualitative interviews with cancer patients and their partners. Participants: Eleven patients and seven partners took part. Their children were aged 1-15 years. Eight patients were mothers and cancer was diagnosed median 28 (7-104) months ago. Methodological approach: Inductive analysis with systematic text condensation. Conclusions: Parents were groping in the dark when understanding their children’s reactions. They observed signs of distress in their children, but often avoided communication about emotional reactions. We suggest parental difficulties in containing own and children’s emotions as an important cause for this situation. Implications: Parents lacked relevant support offers for the family as a unit. Identification of children’s difficulties cannot be based on parental evaluation alone. We suggest family support as part of standard care for patients with minor children.
{"title":"How is my child doing - parental understanding of their children when a parent has cancer.","authors":"Anette Hauskov Graungaard, Marit Hafting, Annette Sofie Davidsen, Kirsten Lykke","doi":"10.1080/07347332.2021.2013386","DOIUrl":"https://doi.org/10.1080/07347332.2021.2013386","url":null,"abstract":"Abstract Objectives: To explore the difficulties parents face when understanding their children’s reactions to parental cancer and parents’ reactions to their children’s perceived needs. Research approach: Qualitative interviews with cancer patients and their partners. Participants: Eleven patients and seven partners took part. Their children were aged 1-15 years. Eight patients were mothers and cancer was diagnosed median 28 (7-104) months ago. Methodological approach: Inductive analysis with systematic text condensation. Conclusions: Parents were groping in the dark when understanding their children’s reactions. They observed signs of distress in their children, but often avoided communication about emotional reactions. We suggest parental difficulties in containing own and children’s emotions as an important cause for this situation. Implications: Parents lacked relevant support offers for the family as a unit. Identification of children’s difficulties cannot be based on parental evaluation alone. We suggest family support as part of standard care for patients with minor children.","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":"41 1","pages":"43-58"},"PeriodicalIF":2.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9198078","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-01Epub Date: 2022-12-14DOI: 10.1080/07347332.2022.2149374
Meredith Doherty, Jessica Jacoby, Francesca Gany
Purpose: Despite widespread reports of cancer-related financial hardship, hospital financial assistance programs are underutilized.
Approach: Rapid qualitative research.
Sample: Gynecologic oncology patients with recurrent or metastatic disease, under 65 years old, and Comprehensive Score for Financial Toxicity of 26 or under.
Methods: Semi-structured interviews to elicit (1) financial assistance awareness/knowledge, (2) barriers to accessing assistance, and (3) suggestions for improving access. We analyzed the transcripts using thematic analysis: open coding, consensus building/codebook, and identification of salient themes.
Findings: We interviewed 25 patients and identified four barriers and three suggestions for improving access. Barriers: lack of awareness, perceptions of ineligibility, fear of negative consequences, and being overwhelmed. Suggestions: simplifying financial processes, providing individualized assistance, and being more proactive by intervening earlier.
Conclusion: Increase access by reducing stigma, misconceptions, and more proactively engaging at-risk patients.
Implications for psychosocial providers: Patients may be too afraid or overwhelmed to ask for help. A more proactive, psychosocial approach is needed.
{"title":"\"<i>I wish I knew about these programs before!</i>\" A brief report exploring barriers to financial assistance reported by gynecological oncology patients.","authors":"Meredith Doherty, Jessica Jacoby, Francesca Gany","doi":"10.1080/07347332.2022.2149374","DOIUrl":"10.1080/07347332.2022.2149374","url":null,"abstract":"<p><strong>Purpose: </strong>Despite widespread reports of cancer-related financial hardship, hospital financial assistance programs are underutilized.</p><p><strong>Approach: </strong>Rapid qualitative research.</p><p><strong>Sample: </strong>Gynecologic oncology patients with recurrent or metastatic disease, under 65 years old, and Comprehensive Score for Financial Toxicity of 26 or under.</p><p><strong>Methods: </strong>Semi-structured interviews to elicit (1) financial assistance awareness/knowledge, (2) barriers to accessing assistance, and (3) suggestions for improving access. We analyzed the transcripts using thematic analysis: open coding, consensus building/codebook, and identification of salient themes.</p><p><strong>Findings: </strong>We interviewed 25 patients and identified four barriers and three suggestions for improving access. Barriers: lack of awareness, perceptions of ineligibility, fear of negative consequences, and being overwhelmed. Suggestions: simplifying financial processes, providing individualized assistance, and being more proactive by intervening earlier.</p><p><strong>Conclusion: </strong>Increase access by reducing stigma, misconceptions, and more proactively engaging at-risk patients.</p><p><strong>Implications for psychosocial providers: </strong>Patients may be too afraid or overwhelmed to ask for help. A more proactive, psychosocial approach is needed.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":"41 5","pages":"493-501"},"PeriodicalIF":2.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10322634/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10156106","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2023-01-01Epub Date: 2022-08-12DOI: 10.1080/07347332.2022.2107467
Kelly Tan, Barbara Fredrickson, Hudson Santos, William Wood, Todd Schwartz, Deborah Mayer
Purpose: To describe caregiver psychological processing during the 12 weeks after transplant and the potential role of positive emotions in caregiving experiences.
Methods: We conducted a longitudinal qualitative descriptive study and interviewed 11 BMT caregivers monthly for 12-weeks post-transplant about their experiences and psychological processing. We analyzed 38 interviews using directed content analysis based on guiding theories and inductive in vivo coding to develop themes.
Results: The majority of participants appraised caregiving as a challenge that needed to be met. Caregivers described feeling positive emotions throughout the time after transplant (gratitude, interest, and hope). We identified two new themes: mirroring (caregiver feelings reflecting patient status) and emotion regulation (hiding negative emotions and displaying positive emotions when with the patient).
Implications: Findings provide further evidence that interventions focused on emotion regulation and positive emotion experiences during caregiving to reduce the negative effects of caregiving related stress may be promising.
{"title":"Psychological processing among caregivers of allogeneic bone marrow transplant recipients: Qualitative findings from a longitudinal study.","authors":"Kelly Tan, Barbara Fredrickson, Hudson Santos, William Wood, Todd Schwartz, Deborah Mayer","doi":"10.1080/07347332.2022.2107467","DOIUrl":"10.1080/07347332.2022.2107467","url":null,"abstract":"<p><strong>Purpose: </strong>To describe caregiver psychological processing during the 12 weeks after transplant and the potential role of positive emotions in caregiving experiences.</p><p><strong>Methods: </strong>We conducted a longitudinal qualitative descriptive study and interviewed 11 BMT caregivers monthly for 12-weeks post-transplant about their experiences and psychological processing. We analyzed 38 interviews using directed content analysis based on guiding theories and inductive in vivo coding to develop themes.</p><p><strong>Results: </strong>The majority of participants appraised caregiving as a challenge that needed to be met. Caregivers described feeling positive emotions throughout the time after transplant (gratitude, interest, and hope). We identified two new themes: mirroring (caregiver feelings reflecting patient status) and emotion regulation (hiding negative emotions and displaying positive emotions when with the patient).</p><p><strong>Implications: </strong>Findings provide further evidence that interventions focused on emotion regulation and positive emotion experiences during caregiving to reduce the negative effects of caregiving related stress may be promising.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":"41 3","pages":"321-336"},"PeriodicalIF":2.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9922335/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9632442","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}