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Sexual script flexibility after a prostate cancer diagnosis: Implications for sexual satisfaction. 前列腺癌诊断后的性脚本灵活性:对性满意度的影响。
IF 2.1 4区 医学 Q4 PSYCHOLOGY, SOCIAL Pub Date : 2023-01-01 DOI: 10.1080/07347332.2022.2102958
Meghan K McInnis, Caroline F Pukall

Purpose: To investigate the relationship among sexual functioning, sexual script flexibility, and sexual satisfaction in individuals diagnosed with prostate cancer.

Design: Cross-sectional online survey.

Participants: Sixty-one men diagnosed with localized prostate cancer.

Methods: Online survey of sexual functioning, sexual script flexibility, and sexual satisfaction. Ordinal logistic regression investigated predictors of sexual satisfaction.

Findings: Greater sexual script flexibility was associated with a greater likelihood of being sexually satisfied.

Conclusions: Helping patients explore different ways of being sexual after treatment could help with sexual satisfaction maintenance.

Implications: Patients' sexual satisfaction may benefit from discussions of issues related to sexuality and ways to work around treatment-related sexual dysfunction with healthcare providers.

目的:探讨前列腺癌患者的性功能、性书写灵活性和性满意度之间的关系。设计:横断面在线调查。参与者:61名确诊为局限性前列腺癌的男性。方法:在线调查性功能、性脚本灵活性和性满意度。序贯逻辑回归研究了性满意度的预测因子。研究发现:更大的性脚本灵活性与更大的性满意度相关。结论:帮助患者在治疗后探索不同的性生活方式有助于性满意度的维持。含义:患者的性满意度可能受益于与医疗保健提供者讨论与性有关的问题以及如何解决与治疗相关的性功能障碍。
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引用次数: 1
Lessons learned from a social worker's approach to advance care planning discussions with Chinese-immigrant oncology outpatients. 社工与中国移民肿瘤科门诊病人提前讨论护理计划的经验教训。
IF 2.1 4区 医学 Q4 PSYCHOLOGY, SOCIAL Pub Date : 2023-01-01 DOI: 10.1080/07347332.2022.2103486
Mi Zhou, Toby Bressler, Alan Weinberg, Alison Snow

Purpose: To examine Chinese-immigrant cancer patients' openness to advance care planning (ACP) in an outpatient oncology setting.

Design: Retrospective review of social work assessment data.

Sample: 150 Chinese-immigrant patient charts were reviewed (55% Cantonese, 45% Mandarin).

Methods: Data were summarized descriptively and with logistic regression analyses.

Findings: Sixteen percent of patients had completed ACP prior to meeting with the oncology social worker (OSW). Twenty percent of patients agreed to complete a health care proxy (HCP) after receiving culturally-tailored education in their language of origin from the OSW, while 75% remained open to ongoing consideration of ACP and HCP completion.

Conclusions: This study illuminates how Chinese immigrants engage in ACP discussions in an oncology setting.

Implications for psychosocial provider: OSWs can play an integral role in advocating, educating, and intervening with this population and can assist the interdisciplinary team in understanding the importance of the cultural differences, even if the OSW's primary language differs from that of a patient's.

目的:调查中国移民癌症患者在门诊肿瘤环境中对预先护理计划(ACP)的开放程度。设计:回顾社会工作评估数据。样本:回顾了150名中国移民患者的病历(55%广东话,45%普通话)。方法:对资料进行描述性总结和逻辑回归分析。结果:16%的患者在与肿瘤社会工作者(OSW)会面之前完成了ACP。20%的患者同意在接受OSW以其原籍语言进行的文化定制教育后完成卫生保健代理(HCP),而75%的患者仍对继续考虑完成ACP和HCP持开放态度。结论:本研究阐明了中国移民如何在肿瘤学背景下参与ACP讨论。对社会心理服务提供者的启示:OSW可以在倡导、教育和干预这一人群方面发挥不可或缺的作用,并且可以帮助跨学科团队理解文化差异的重要性,即使OSW的主要语言与患者的主要语言不同。
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引用次数: 1
Salary and student loan debt for oncology social workers: Findings from the oncology social work competencies, opportunities, roles and expertise (CORE) survey. 肿瘤社会工作者的工资和学生贷款债务:来自肿瘤社会工作能力、机会、角色和专业知识(CORE)调查的结果。
IF 2.1 4区 医学 Q4 PSYCHOLOGY, SOCIAL Pub Date : 2023-01-01 DOI: 10.1080/07347332.2022.2101906
Ting Guan, Brad Zebrack, Shirley Otis-Green, Grace DesJardins

Purpose: To better understand the current salaries and student loan debt levels among oncology social workers (OSWs).

Design: Cross-sectional study using online survey.

Sample: OSWs across a variety of cancer care settings in the U.S. (n = 1055).

Methods: Salary and debt were collected via single ordinal variables. Crosstabs and chi-square tests were used to examine whether salary and debt differ by demographic and work-related characteristics.

Findings: Median OSW salaries ranged from $60,001 to $70,000. Three-fourths of OSWs reported having student loan debt. Younger and recently graduated OSWs and OSWs of color were more likely to have greater student loan debt than their counterparts.

Conclusions: Relative low salary and debt burden have important implications for securing a current and future OSW workforce.

Implications for psychosocial policy: Adequate reimbursement and loan repayment opportunities for frontline OSWs will better secure this workforce. Advocacy efforts to identify OSWs qualified for loan forgiveness programs are warranted.

目的:更好地了解肿瘤社会工作者(osw)目前的工资和学生贷款债务水平。设计:采用在线调查的横断面研究。样本:美国各种癌症护理机构的osw (n = 1055)。方法:采用单序变量法收集工资和债务。使用交叉表和卡方检验来检验工资和债务是否因人口统计学和工作相关特征而不同。调查结果:OSW的工资中位数从60001美元到70000美元不等。四分之三的ows报告有学生贷款债务。年轻的和刚毕业的osw和有色人种的osw比他们的同行更有可能有更多的学生贷款债务。结论:相对较低的工资和债务负担对确保当前和未来的OSW劳动力具有重要意义。对社会心理政策的影响:为前线osw提供充分的报销和贷款偿还机会将更好地确保这一劳动力。为确定有资格获得贷款减免计划的osw而进行的宣传工作是有必要的。
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引用次数: 1
Appraisals of cancer, religious/spiritual coping, and hope in patients with colorectal cancer. 结直肠癌患者对癌症、宗教/精神应对和希望的评价。
IF 2.1 4区 医学 Q4 PSYCHOLOGY, SOCIAL Pub Date : 2023-01-01 Epub Date: 2022-08-16 DOI: 10.1080/07347332.2022.2108743
Maya Atlas, Tae L Hart

Purpose/objectives: To examine the extent to which religious/spiritual coping moderates the association between stress appraisals and hope among patients with colorectal cancer.

Design/research approach: A longitudinal, prospective examination of hope, stress appraisals of cancer, and religious/spiritual coping through self-report questionnaires at baseline, 6-months, and 12-months post-surgery.

Sample/participants: One hundred thirty-nine newly diagnosed patients with colorectal cancer recruited from tertiary medical centers.

Findings: Challenge and threat appraisals predicted hope. Only the relationship between hope and challenge appraisals was significantly moderated by coping through religion/spirituality, such that those who were both low on challenge and low in religious/spiritual coping reported the lowest hope.

Conclusions/interpretation: Hope is predicted by how people appraise their cancer. Hope was lowest among participants who reported both low challenge appraisals and religious/spiritual coping.

Implications for psychosocial providers: Understanding how patients appraise their cancer and use religion/spirituality to cope may help providers understand which patients are at risk for low hope.

目的/目标:研究宗教/精神应对在多大程度上调节结直肠癌患者的压力评估与希望之间的关联:通过基线、术后 6 个月和 12 个月的自我报告问卷,对希望、癌症压力评估和宗教/精神应对进行纵向前瞻性研究:139 名新确诊的结直肠癌患者来自三级医疗中心:挑战和威胁评估预测了希望。只有希望和挑战评价之间的关系受到宗教/精神应对方式的显著调节,因此那些挑战低和宗教/精神应对方式低的人报告的希望最低:人们如何评价自己的癌症会影响希望。对社会心理服务提供者的意义:对社会心理服务提供者的启示:了解患者如何评价自己的癌症以及如何利用宗教/精神应对癌症,有助于服务提供者了解哪些患者有希望渺茫的风险。
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引用次数: 0
Prevalence and risk factors of self-reported financial toxicity in cancer survivors: A systematic review and meta-analyses. 癌症幸存者自我报告的财务毒性的患病率和危险因素:系统回顾和荟萃分析。
IF 2.1 4区 医学 Q4 PSYCHOLOGY, SOCIAL Pub Date : 2023-01-01 DOI: 10.1080/07347332.2022.2142877
Hua Jiang, Jianxia Lyu, Wenxuan Mou, Luxi Jiang, Yu Zeng, Ying Liu, Aiping Hu, Qinghua Jiang

Background: Similar to the side effects of cancer treatment, financial toxicity (FT) can affect the quality of life of patients, which has attracted increasing attention in the field of oncology. Despite the fact that the estimated prevalence and risk factors of FT are widely reported, these results have not been synthesized.

Objectives: This review is aimed to systematically assess the prevalence and risk factors of self-reported FT.

Design: Systematic review and meta-analyses.

Data sources: A computer search of English literature was conducted using databases of PubMed, EMBASE, Web of Science, PsycINFO, and CINAHL, and reference lists of the qualified articles were also included between January 2010 and September 2021. Observational studies that reported the prevalence or risk factors of FT using subjective measures were included.

Methods: The systematic review was guided by the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) statement. The risk of bias was assessed by the NIH observational cohort and cross-sectional study quality assessment tool. The data were extracted by two reviewers and listed in a descriptive table for meta-analyses.

Results: In the 22 studies available for meta-analyses of pooled prevalence of FT, the result was estimated to be 45% (95% CI: 38% to 53%, I2 = 97.3%, P < 0.001) based on a random-effects model. The pooled analysis identified 9 potential risk factors of FT (7 in β and 8 in OR): low income (OR = 2.48, 95% CI: 1.72 to 3.24, I2 = 3.1%, P < 0.001), greater annual OOP (β = -4.26, 95% CI: -6.95 to -1.57, I2 = 0%, P = 0.002), younger age (OR = 2.05, 95% CI: 1.56 to 2.54, I2 = 0%, P < 0.001), no private insurance (OR = 1.69, 95% CI: 1.02 to 2.37, I2 = 0%, P < 0.001), unmarried (OR = 1.10, 95% CI: 0.95 to 1.25, I2 = 53,3%, P < 0.001), nonwhite (OR = 1.59, 95% CI: 1.33 to 1.85, I2 = 0%, P < 0.001), advanced cancer (β = -4.74, 95% CI: -6.90 to -2.57, I2 = 0%, P < 0.001), unemployed (β = -2.90, 95% CI: -5.71 to -0.63, I2 = 75,7%, P < 0.001), more recent diagnosis (OR = 1.31, 95% CI: 1.04 to 1.57, I2 = 0%, P < 0.001).

Conclusion: This systematic review reported a pooled prevalence of self-reported FT of 45%. Low income, greater annual OOP (Out of pocket), younger age, unmarried, unemployed, nonwhite, no private insurance, advanced cancer, and more recent diagnosis constituted risk factors for self-reported FT. The research on risk factors for FT can provide a theoretical basis for medical staff to evaluate and intervene in the FT among cancer survivors.

背景:与癌症治疗的副作用类似,金融毒性(financial toxicity, FT)也会影响患者的生活质量,越来越受到肿瘤学领域的关注。尽管FT的估计患病率和危险因素被广泛报道,但这些结果尚未被综合。目的:本综述旨在系统地评估自我报告ft的患病率和危险因素。设计:系统综述和荟萃分析。数据来源:计算机检索PubMed、EMBASE、Web of Science、PsycINFO、CINAHL等数据库的英文文献,并纳入2010年1月至2021年9月间符合条件的文章参考文献列表。使用主观测量报告FT患病率或危险因素的观察性研究被纳入。方法:采用系统评价和荟萃分析首选报告项目(PRISMA)声明进行系统评价。偏倚风险通过NIH观察队列和横断面研究质量评估工具进行评估。数据由两位审稿人提取,并列在描述表中进行meta分析。22个研究可供荟萃分析的结果:汇集英国《金融时报》,结果是估计为45% (95% CI: 38%至53%,I2 = 97.3%, P 2 = 3.1%, P 2 = 0%, P = 0.002),年轻的年龄(或= 2.05,95%置信区间CI: 1.56 - 2.54, I2 = 0%, P 2 = 0%, P 2 = 53岁3%,P 2 = 0%, P 2 = 0%, P = 75, 7%, P 2 = 0%, P结论:这个系统回顾报告汇集了自我报告的英国《金融时报》的患病率为45%。收入低、年自费高、年龄小、未婚、无业、非白人、无私人保险、癌症晚期、诊断时间较晚构成自报FT的危险因素。对FT危险因素的研究可以为医务人员评估和干预癌症幸存者的FT提供理论依据。
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引用次数: 2
Evaluating an engaging and coach-assisted online cognitive behavioral therapy for depression among adolescent and young adult cancer survivors: A pilot feasibility trial. 在青少年和年轻癌症幸存者中评估参与和教练辅助的在线认知行为疗法:一项试点可行性试验。
IF 2.1 4区 医学 Q4 PSYCHOLOGY, SOCIAL Pub Date : 2023-01-01 Epub Date: 2022-01-18 DOI: 10.1080/07347332.2021.2011530
Anao Zhang, Addie Weaver, Emily Walling, Brad Zebrack, Nina Jackson Levin, Beth Stuchell, Joseph Himle

Objectives: Technology-assisted Cognitive Behavioral Therapy (tCBT) has significant potentials to provide engaging and accessible depression treatment for adolescents and young adults (AYAs) coping with cancer. This study evaluated the feasibility and preliminary efficacy of an engaging and tailorable tCBT - Mind Your Total Health (MYTH) - for AYA cancer survivors' depression.

Methods: Seventeen AYAs diagnosed with cancer were randomly assigned to either the intervention (MYTH) or control group. The intervention group (n = 10) received eight weekly 30-35 minutes coach-assisted tCBT (MYTH), while the control group (n = 7) received active control, BeatingtheBlues (BtB).

Results: Eight out of ten participants in the MYTH group completed at least six out of eight sessions, suggesting strong feasibility (80% completion rate) among AYAs with cancer. Efficacy outcomes indicated that participants in the MYTH group reported significant pre- and post-treatment reduction in depression, t(9) = 5.25, p < 0.001, and anxiety, t(9)=5.07, p < 0.001. Notably, participants in the MYTH group reported significantly lower post-treatment depression than participants in the BtB group, t(15) = 2.40, p < 0.05. The between-group difference reflected a significant between-group treatment effect size, d = 1.12, p < 0.05.

Discussion: This engaging, tailorable, and coach-assisted tCBT intervention is promising in alleviating depression and anxiety among AYA cancer survivors. Future research needs to include larger sample size and a more diverse patient population.

目的:技术支持的认知行为治疗(tCBT)在为应对癌症的青少年和年轻人(AYA)提供参与和可获得的抑郁症治疗方面具有重要潜力。这项研究评估了参与和可定制的tCBT——注意你的总体健康(MYTH)——治疗AYA癌症幸存者抑郁症的可行性和初步疗效。方法:将17例诊断为癌症的AYA随机分为干预组(MYTH)和对照组。干预组(n = 10) 收到8周30-35 分钟教练辅助tCBT(MYTH),而对照组(n = 7) 获得主动控制,击败蓝调(BtB)。结果:在MYTH组中,十分之八的参与者至少完成了八次会议中的六次,这表明在患有癌症的AYA中具有很强的可行性(完成率为80%)。疗效结果表明,MYTH组的参与者在治疗前和治疗后抑郁症状显著减少,t(9)=5.25,p t(9)=5.07,p t(15)=2.40,p d = 1.12,p 讨论:这种引人入胜、可定制和教练辅助的tCBT干预有望缓解AYA癌症幸存者的抑郁和焦虑。未来的研究需要包括更大的样本量和更多样化的患者群体。
{"title":"Evaluating an engaging and coach-assisted online cognitive behavioral therapy for depression among adolescent and young adult cancer survivors: A pilot feasibility trial.","authors":"Anao Zhang,&nbsp;Addie Weaver,&nbsp;Emily Walling,&nbsp;Brad Zebrack,&nbsp;Nina Jackson Levin,&nbsp;Beth Stuchell,&nbsp;Joseph Himle","doi":"10.1080/07347332.2021.2011530","DOIUrl":"10.1080/07347332.2021.2011530","url":null,"abstract":"<p><strong>Objectives: </strong>Technology-assisted Cognitive Behavioral Therapy (tCBT) has significant potentials to provide engaging and accessible depression treatment for adolescents and young adults (AYAs) coping with cancer. This study evaluated the feasibility and preliminary efficacy of an engaging and tailorable tCBT - Mind Your Total Health (MYTH) - for AYA cancer survivors' depression.</p><p><strong>Methods: </strong>Seventeen AYAs diagnosed with cancer were randomly assigned to either the intervention (MYTH) or control group. The intervention group (n = 10) received eight weekly 30-35 minutes coach-assisted tCBT (MYTH), while the control group (n = 7) received active control, BeatingtheBlues (BtB).</p><p><strong>Results: </strong>Eight out of ten participants in the MYTH group completed at least six out of eight sessions, suggesting strong feasibility (80% completion rate) among AYAs with cancer. Efficacy outcomes indicated that participants in the MYTH group reported significant pre- and post-treatment reduction in depression, <i>t</i>(9) = 5.25, <i>p</i> < 0.001, and anxiety, <i>t</i>(9)=5.07, <i>p</i> < 0.001. Notably, participants in the MYTH group reported significantly lower post-treatment depression than participants in the BtB group, <i>t</i>(15) = 2.40, <i>p</i> < 0.05. The between-group difference reflected a significant between-group treatment effect size, <i>d</i> = 1.12, <i>p</i> < 0.05.</p><p><strong>Discussion: </strong>This engaging, tailorable, and coach-assisted tCBT intervention is promising in alleviating depression and anxiety among AYA cancer survivors. Future research needs to include larger sample size and a more diverse patient population.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":"41 1","pages":"20-42"},"PeriodicalIF":2.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10599691/pdf/nihms-1934224.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10632119","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 7
Prospective assessment of anxiety among pediatric oncology patients and their caregivers during the COVID-19 pandemic a cohort study. COVID-19大流行期间儿科肿瘤患者及其护理人员焦虑的前瞻性评估:一项队列研究
IF 2.1 4区 医学 Q4 PSYCHOLOGY, SOCIAL Pub Date : 2023-01-01 DOI: 10.1080/07347332.2022.2086092
Michal Yaffe Ornstein, Edwa Friedlander, Shir Katz, Ronit Elhasid

To assess COVID-19-pandemic related anxiety and emotional-behavioral difficulties among oncologic children and their caregivers.

Prospective cohort study conducted from March to November 2020.

76 pediatric oncological and 28 nonmalignant hematological patients aged 1.6-23.4 years and their caregivers.

A total of 104 families completed an age-specific self-report psychological assessment; of these, 20 oncologic families completed the assessment at two time points.

Ten percent of the caregivers and 13.9% of the patients reported anxiety disorder. Additionally, 3.1% of the caregivers reported behavioral difficulties. No significant differences emerged between patients' self-reports and caregivers' reports. No differences emerged between oncological and nonmalignant hematological participants.

The prevalence of anxiety associated with the COVID-19 pandemic was similar to the reported prevalence of anxiety following a diagnosis of pediatric malignancy.

Real-time assessment of psychological effects revealed no COVID-19-associated anxiety. Nonetheless, late effects will need to be monitored.

评估肿瘤儿童及其照顾者与covid -19大流行相关的焦虑和情绪行为困难。前瞻性队列研究于2020年3月至11月进行,76例1.6-23.4岁的儿童肿瘤患者和28例非恶性血液病患者及其护理人员。共有104个家庭完成了特定年龄的自我报告心理评估;其中,20个肿瘤家庭在两个时间点完成了评估。10%的护理人员和13.9%的患者报告有焦虑症。此外,3.1%的照顾者报告了行为困难。患者自我报告与护理人员报告之间无显著差异。肿瘤和非恶性血液学参与者之间没有差异。与COVID-19大流行相关的焦虑患病率与报告的儿科恶性肿瘤诊断后的焦虑患病率相似。对心理影响的实时评估显示,没有与covid -19相关的焦虑。尽管如此,后期影响仍需加以监测。
{"title":"Prospective assessment of anxiety among pediatric oncology patients and their caregivers during the COVID-19 pandemic a cohort study.","authors":"Michal Yaffe Ornstein,&nbsp;Edwa Friedlander,&nbsp;Shir Katz,&nbsp;Ronit Elhasid","doi":"10.1080/07347332.2022.2086092","DOIUrl":"https://doi.org/10.1080/07347332.2022.2086092","url":null,"abstract":"<p><p>To assess COVID-19-pandemic related anxiety and emotional-behavioral difficulties among oncologic children and their caregivers.</p><p><p>Prospective cohort study conducted from March to November 2020.</p><p><p>76 pediatric oncological and 28 nonmalignant hematological patients aged 1.6-23.4 years and their caregivers.</p><p><p>A total of 104 families completed an age-specific self-report psychological assessment; of these, 20 oncologic families completed the assessment at two time points.</p><p><p>Ten percent of the caregivers and 13.9% of the patients reported anxiety disorder. Additionally, 3.1% of the caregivers reported behavioral difficulties. No significant differences emerged between patients' self-reports and caregivers' reports. No differences emerged between oncological and nonmalignant hematological participants.</p><p><p>The prevalence of anxiety associated with the COVID-19 pandemic was similar to the reported prevalence of anxiety following a diagnosis of pediatric malignancy.</p><p><p>Real-time assessment of psychological effects revealed no COVID-19-associated anxiety. Nonetheless, late effects will need to be monitored.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":"41 2","pages":"182-195"},"PeriodicalIF":2.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10784960","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 3
How is my child doing - parental understanding of their children when a parent has cancer. 我的孩子怎么样了——当父母患癌症时,父母对孩子的理解。
IF 2.1 4区 医学 Q4 PSYCHOLOGY, SOCIAL Pub Date : 2023-01-01 DOI: 10.1080/07347332.2021.2013386
Anette Hauskov Graungaard, Marit Hafting, Annette Sofie Davidsen, Kirsten Lykke
Abstract Objectives: To explore the difficulties parents face when understanding their children’s reactions to parental cancer and parents’ reactions to their children’s perceived needs. Research approach: Qualitative interviews with cancer patients and their partners. Participants: Eleven patients and seven partners took part. Their children were aged 1-15 years. Eight patients were mothers and cancer was diagnosed median 28 (7-104) months ago. Methodological approach: Inductive analysis with systematic text condensation. Conclusions: Parents were groping in the dark when understanding their children’s reactions. They observed signs of distress in their children, but often avoided communication about emotional reactions. We suggest parental difficulties in containing own and children’s emotions as an important cause for this situation. Implications: Parents lacked relevant support offers for the family as a unit. Identification of children’s difficulties cannot be based on parental evaluation alone. We suggest family support as part of standard care for patients with minor children.
探讨父母在理解孩子对父母癌症的反应和父母对孩子感知需求的反应时所面临的困难。对癌症患者及其伴侣进行定性访谈。11名患者和7名伴侣参与了研究。他们的孩子年龄在1-15岁之间。8名患者为母亲,平均28个月(7-104个月)前确诊为癌症。系统的文本浓缩归纳分析。父母在理解孩子的反应时是在黑暗中摸索。他们观察到孩子的痛苦迹象,但往往避免沟通情绪反应。我们认为父母难以控制自己和孩子的情绪是造成这种情况的重要原因。父母缺乏对家庭作为一个整体的相关支持。识别儿童的困难不能仅仅基于父母的评价。我们建议将家庭支持作为有未成年子女患者标准护理的一部分。
{"title":"How is my child doing - parental understanding of their children when a parent has cancer.","authors":"Anette Hauskov Graungaard,&nbsp;Marit Hafting,&nbsp;Annette Sofie Davidsen,&nbsp;Kirsten Lykke","doi":"10.1080/07347332.2021.2013386","DOIUrl":"https://doi.org/10.1080/07347332.2021.2013386","url":null,"abstract":"Abstract Objectives: To explore the difficulties parents face when understanding their children’s reactions to parental cancer and parents’ reactions to their children’s perceived needs. Research approach: Qualitative interviews with cancer patients and their partners. Participants: Eleven patients and seven partners took part. Their children were aged 1-15 years. Eight patients were mothers and cancer was diagnosed median 28 (7-104) months ago. Methodological approach: Inductive analysis with systematic text condensation. Conclusions: Parents were groping in the dark when understanding their children’s reactions. They observed signs of distress in their children, but often avoided communication about emotional reactions. We suggest parental difficulties in containing own and children’s emotions as an important cause for this situation. Implications: Parents lacked relevant support offers for the family as a unit. Identification of children’s difficulties cannot be based on parental evaluation alone. We suggest family support as part of standard care for patients with minor children.","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":"41 1","pages":"43-58"},"PeriodicalIF":2.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9198078","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
"I wish I knew about these programs before!" A brief report exploring barriers to financial assistance reported by gynecological oncology patients. “我希望我以前知道这些项目!”一份简短的报告探讨了妇科肿瘤患者报告的经济援助障碍。
IF 2.1 4区 医学 Q4 PSYCHOLOGY, SOCIAL Pub Date : 2023-01-01 Epub Date: 2022-12-14 DOI: 10.1080/07347332.2022.2149374
Meredith Doherty, Jessica Jacoby, Francesca Gany

Purpose: Despite widespread reports of cancer-related financial hardship, hospital financial assistance programs are underutilized.

Approach: Rapid qualitative research.

Sample: Gynecologic oncology patients with recurrent or metastatic disease, under 65 years old, and Comprehensive Score for Financial Toxicity of 26 or under.

Methods: Semi-structured interviews to elicit (1) financial assistance awareness/knowledge, (2) barriers to accessing assistance, and (3) suggestions for improving access. We analyzed the transcripts using thematic analysis: open coding, consensus building/codebook, and identification of salient themes.

Findings: We interviewed 25 patients and identified four barriers and three suggestions for improving access. Barriers: lack of awareness, perceptions of ineligibility, fear of negative consequences, and being overwhelmed. Suggestions: simplifying financial processes, providing individualized assistance, and being more proactive by intervening earlier.

Conclusion: Increase access by reducing stigma, misconceptions, and more proactively engaging at-risk patients.

Implications for psychosocial providers: Patients may be too afraid or overwhelmed to ask for help. A more proactive, psychosocial approach is needed.

目的:尽管与癌症相关的经济困难报道广泛,但医院的经济援助计划没有得到充分利用。方法:快速定性研究。样本:65岁以下患有复发或转移性疾病的妇科肿瘤患者 年龄,财务毒性综合评分为26分或以下。方法:半结构化访谈,以引出(1)财政援助意识/知识,(2)获得援助的障碍,以及(3)改善获得援助的建议。我们使用主题分析来分析转录本:开放编码、建立共识/代码簿和识别显著主题。研究结果:我们采访了25名患者,确定了四个障碍和三条改善准入的建议。障碍:缺乏意识、对无资格的认知、对负面后果的恐惧以及不知所措。建议:简化财务流程,提供个性化援助,并通过尽早干预更加积极主动。结论:通过减少污名化、误解和更积极地参与高危患者来增加获得机会。对心理社会服务提供者的影响:患者可能过于害怕或不知所措,无法寻求帮助。需要采取更加积极主动的心理社会方法。
{"title":"\"<i>I wish I knew about these programs before!</i>\" A brief report exploring barriers to financial assistance reported by gynecological oncology patients.","authors":"Meredith Doherty, Jessica Jacoby, Francesca Gany","doi":"10.1080/07347332.2022.2149374","DOIUrl":"10.1080/07347332.2022.2149374","url":null,"abstract":"<p><strong>Purpose: </strong>Despite widespread reports of cancer-related financial hardship, hospital financial assistance programs are underutilized.</p><p><strong>Approach: </strong>Rapid qualitative research.</p><p><strong>Sample: </strong>Gynecologic oncology patients with recurrent or metastatic disease, under 65 years old, and Comprehensive Score for Financial Toxicity of 26 or under.</p><p><strong>Methods: </strong>Semi-structured interviews to elicit (1) financial assistance awareness/knowledge, (2) barriers to accessing assistance, and (3) suggestions for improving access. We analyzed the transcripts using thematic analysis: open coding, consensus building/codebook, and identification of salient themes.</p><p><strong>Findings: </strong>We interviewed 25 patients and identified four barriers and three suggestions for improving access. Barriers: lack of awareness, perceptions of ineligibility, fear of negative consequences, and being overwhelmed. Suggestions: simplifying financial processes, providing individualized assistance, and being more proactive by intervening earlier.</p><p><strong>Conclusion: </strong>Increase access by reducing stigma, misconceptions, and more proactively engaging at-risk patients.</p><p><strong>Implications for psychosocial providers: </strong>Patients may be too afraid or overwhelmed to ask for help. A more proactive, psychosocial approach is needed.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":"41 5","pages":"493-501"},"PeriodicalIF":2.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10322634/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10156106","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 1
Psychological processing among caregivers of allogeneic bone marrow transplant recipients: Qualitative findings from a longitudinal study. 异体骨髓移植受者照顾者的心理处理:一项纵向研究的定性结果。
IF 2.1 4区 医学 Q4 PSYCHOLOGY, SOCIAL Pub Date : 2023-01-01 Epub Date: 2022-08-12 DOI: 10.1080/07347332.2022.2107467
Kelly Tan, Barbara Fredrickson, Hudson Santos, William Wood, Todd Schwartz, Deborah Mayer

Purpose: To describe caregiver psychological processing during the 12 weeks after transplant and the potential role of positive emotions in caregiving experiences.

Methods: We conducted a longitudinal qualitative descriptive study and interviewed 11 BMT caregivers monthly for 12-weeks post-transplant about their experiences and psychological processing. We analyzed 38 interviews using directed content analysis based on guiding theories and inductive in vivo coding to develop themes.

Results: The majority of participants appraised caregiving as a challenge that needed to be met. Caregivers described feeling positive emotions throughout the time after transplant (gratitude, interest, and hope). We identified two new themes: mirroring (caregiver feelings reflecting patient status) and emotion regulation (hiding negative emotions and displaying positive emotions when with the patient).

Implications: Findings provide further evidence that interventions focused on emotion regulation and positive emotion experiences during caregiving to reduce the negative effects of caregiving related stress may be promising.

目的:描述移植后 12 周内护理人员的心理过程,以及积极情绪在护理经历中的潜在作用:我们开展了一项纵向定性描述研究,在移植后的 12 周内,每月对 11 名 BMT 护理人员进行访谈,了解他们的经历和心理过程。我们采用基于指导理论的定向内容分析法和归纳式活体编码法对 38 个访谈进行了分析,以形成主题:大多数参与者认为护理是一项需要应对的挑战。护理人员描述了他们在移植后的整个过程中感受到的积极情绪(感激、兴趣和希望)。我们发现了两个新的主题:镜像(护理人员的感受反映出患者的状态)和情绪调节(与患者在一起时隐藏消极情绪并表现出积极情绪):研究结果进一步证明,在护理过程中采取以情绪调节和积极情绪体验为重点的干预措施,以减少与护理相关的压力所带来的负面影响,可能大有可为。
{"title":"Psychological processing among caregivers of allogeneic bone marrow transplant recipients: Qualitative findings from a longitudinal study.","authors":"Kelly Tan, Barbara Fredrickson, Hudson Santos, William Wood, Todd Schwartz, Deborah Mayer","doi":"10.1080/07347332.2022.2107467","DOIUrl":"10.1080/07347332.2022.2107467","url":null,"abstract":"<p><strong>Purpose: </strong>To describe caregiver psychological processing during the 12 weeks after transplant and the potential role of positive emotions in caregiving experiences.</p><p><strong>Methods: </strong>We conducted a longitudinal qualitative descriptive study and interviewed 11 BMT caregivers monthly for 12-weeks post-transplant about their experiences and psychological processing. We analyzed 38 interviews using directed content analysis based on guiding theories and inductive in vivo coding to develop themes.</p><p><strong>Results: </strong>The majority of participants appraised caregiving as a challenge that needed to be met. Caregivers described feeling positive emotions throughout the time after transplant (gratitude, interest, and hope). We identified two new themes: mirroring (caregiver feelings reflecting patient status) and emotion regulation (hiding negative emotions and displaying positive emotions when with the patient).</p><p><strong>Implications: </strong>Findings provide further evidence that interventions focused on emotion regulation and positive emotion experiences during caregiving to reduce the negative effects of caregiving related stress may be promising.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":"41 3","pages":"321-336"},"PeriodicalIF":2.1,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9922335/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9632442","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 2
期刊
Journal of Psychosocial Oncology
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