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Adaptation and feasibility of the Swedish Promoting Resilience in Stress Management intervention targeting adolescents and young adults newly diagnosed with cancer. 瑞典 "促进压力管理中的复原力 "干预措施的适应性和可行性,针对新诊断出癌症的青少年。
IF 1.5 4区 医学 Q4 PSYCHOLOGY, SOCIAL Pub Date : 2025-01-01 Epub Date: 2024-10-28 DOI: 10.1080/07347332.2024.2419663
Maria Ödling, Anna Jervaeus, Yvonne Wengström, Abby R Rosenberg, Joyce P Yi-Frazier, Jeanette Winterling

Objective: To describe the adaptation and feasibility of the Swedish version of the Promoting Resilience in Stress Management (PRISM) intervention among adolescents and young adults (AYAs) newly diagnosed with cancer.

Methods: PRISM is a 5-session, manualized program designed to strengthen AYAs individual resources for managing stress by promoting resilience skills: stress-management, goal-setting, cognitive reframing and meaning-making. It is delivered 1:1 by an interventionist via video-visits. PRISM was developed in the US and adapted for a Swedish population. A feasibility study was conducted looking at recruitment, retention, acceptability of the intervention (evaluation survey and exit interviews) and pre- and post- exploratory psychosocial outcome measures (resilience, global health, emotional functioning and rehabilitation needs). Participants were recruited from a comprehensive cancer center in Sweden.

Results: Of the 31 eligible individuals (16-30 years), 20 (65%) agreed to participate and 11 (55%) completed PRISM. Eighty-six percent (6/7) of the participants who completed the evaluation survey thought that the order of the modules and the content were "very good or good". The AYAs that participated in the exit interviews expressed that the programme contributed new knowledge and for some confirmed previous knowledge, which was valuable both during and after participation. The role of the interventionist was stressed as important to support participants through the programme. Suggestions for the future included making PRISM more personalized. Exploratory quantitative analyses suggested improved mean scores regarding resilience, global health and emotional functioning from pre- to post-intervention.

Conclusions: This study suggests that participating in PRISM has the potential to guide AYAs during the initial period after a cancer diagnosis. Further work to make PRISM more personalized might increase AYAs' interest in, and completion of, PRISM.

目的描述瑞典版 "促进压力管理中的复原力(PRISM)"干预措施在新诊断出癌症的青少年中的适应性和可行性:PRISM是一项为期5个疗程的手册化计划,旨在通过促进抗压技能(压力管理、目标设定、认知重塑和意义建构)来加强青少年和年轻人管理压力的个人资源。该计划由干预专家通过视频访问的方式进行 1 对 1 的指导。PRISM 由美国开发,并针对瑞典人口进行了调整。我们进行了一项可行性研究,考察了干预的招募、保留、可接受性(评估调查和退出访谈)以及前后探索性社会心理结果测量(复原力、整体健康、情绪功能和康复需求)。参与者是从瑞典的一家综合癌症中心招募的:在符合条件的 31 人(16-30 岁)中,20 人(65%)同意参加,11 人(55%)完成了 PRISM。在完成评估调查的参与者中,86%(6/7)认为模块顺序和内容 "非常好或好"。参加结业访谈的青少年表示,该计划提供了新的知识,对一些人来说,确认了以前的知识,这在参与期间和之后都很有价值。与会者强调,干预者的作用对于支持参与者完成计划非常重要。对未来的建议包括使 PRISM 更加个性化。探索性定量分析显示,从干预前到干预后,恢复力、整体健康和情绪功能的平均得分均有所提高:本研究表明,在确诊癌症后的初期,参与 PRISM 有可能为青少年提供指导。进一步提高 PRISM 的个性化程度可能会提高亚裔美国人对 PRISM 的兴趣和完成率。
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引用次数: 0
A mixed methods pilot study of a virtual therapeutic writing intervention for adolescent/young adults with cancer. 一项针对患有癌症的青少年/年轻人的虚拟治疗性写作干预的混合方法试点研究。
IF 1.5 4区 医学 Q4 PSYCHOLOGY, SOCIAL Pub Date : 2025-01-01 Epub Date: 2025-02-03 DOI: 10.1080/07347332.2025.2454497
Chelsea S Rapoport, Alyssa K Choi, Siloh Radovsky, Melinda A Chen, Mary Devereaux, Megan Korhummel, Shea O'Donnell, Vanessa L Malcarne, Dennis J Kuo

Objective: To evaluate the feasibility and acceptability of a virtual therapeutic writing intervention for AYAs with cancer.

Methods: A single-arm pilot study of the intervention was conducted at Rady Children's Hospital San Diego. The six-session intervention was facilitated by a writing coach over two to three months, during which time participants produced written work regarding their experiences with cancer. Primary outcomes were measures of acceptability and feasibility, assessed via quantitative and qualitative methods.

Results: Study enrollment and retention rates were 75% and 83%, respectively. Participants rated all intervention sessions as highly enjoyable, helpful, useful, and satisfactory. Qualitatively, participants reported that the intervention helped them cope with their cancer and they would recommend the study to others with cancer.

Conclusions: This virtual therapeutic writing study is feasible and acceptable among AYAs with cancer. A randomized controlled trial should be conducted to test the efficacy of the intervention for improving psychosocial outcomes.

目的:评价虚拟书写治疗性介入治疗aya肿瘤的可行性和可接受性。方法:在圣地亚哥雷迪儿童医院进行了一项单臂试验研究。在为期六次的干预中,一名写作教练在两到三个月的时间里为参与者提供了便利,在此期间,参与者写出了关于他们患癌症经历的书面作品。主要结果是通过定量和定性方法评估可接受性和可行性。结果:研究入组率为75%,保留率为83%。参与者认为所有的干预过程都是非常愉快的、有帮助的、有用的和令人满意的。从质量上讲,参与者报告说干预帮助他们应对癌症,他们会向其他癌症患者推荐这项研究。结论:这种虚拟治疗性书写研究在患有癌症的aya患者中是可行和可接受的。应该进行一项随机对照试验来检验干预对改善心理社会结局的有效性。
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引用次数: 0
Association between positive affect, flourishing, quality of life, and psychological distress in allogeneic hematopoietic stem cell transplantation. 同种异体造血干细胞移植中积极情绪、蓬勃发展、生活质量和心理困扰之间的关系。
IF 1.5 4区 医学 Q4 PSYCHOLOGY, SOCIAL Pub Date : 2025-01-01 Epub Date: 2024-10-07 DOI: 10.1080/07347332.2024.2410929
Hermioni L Amonoo, Elizabeth Daskalakis, Jeffrey A Lam, Emma D Wolfe, Michelle Guo, Henry K Onyeaka, Richard A Newcomb, Anna Barata, Pia Maria Ghanime, Emma P Keane, Annabella C Boardman, Corey Cutler, William F Pirl, John R Peteet, Lisa M Gudenkauf, Stephanie J Lee, Jeff C Huffman, Areej El-Jawahri

Purpose: To examine the associations between state positive psychological well-being (PPWB) constructs, mood, and quality of life (QOL) in hematopoietic stem cell transplantation (HSCT) survivors.

Design: The study was a secondary analysis of cross-sectional data.

Sample/methods: We analyzed self-report data assessing positive affect, flourishing, QOL, depression and anxiety, and PTSD symptoms from 158 allogeneic HSCT recipients at day-100 post-transplant enrolled in supportive care studies.

Findings: Univariate analysis showed that factors associated with greater levels of various state PPWB constructs include older age, disability status, greater social support, and presence of graft-versus-host disease. Multivariate analysis showed that state PPWB constructs-greater levels of positive affect and flourishing-were significantly associated with better QOL and lower PTSD, anxiety, and depression symptomatology.

Implications: Our findings suggest that longitudinal studies are needed to examine the links between state PPWB constructs and HSCT outcomes, which may inform population specific interventions and opportunities to improve outcomes.

目的:研究造血干细胞移植(HSCT)幸存者的积极心理状态(PPWB)、情绪和生活质量(QOL)之间的关联:设计:本研究是对横断面数据的二次分析:我们分析了参加支持性护理研究的158名异体造血干细胞移植受者在移植后第100天的自我报告数据,这些数据评估了积极情绪、蓬勃发展、QOL、抑郁和焦虑以及创伤后应激障碍症状:单变量分析表明,与PPWB各种状态结构水平较高相关的因素包括年龄较大、残疾状况、社会支持较多以及存在移植物抗宿主疾病。多变量分析表明,状态 PPWB 构建--更高水平的积极情绪和蓬勃发展--与更好的 QOL 以及更低的创伤后应激障碍、焦虑和抑郁症状明显相关:我们的研究结果表明,有必要开展纵向研究,以检查PPWB状态结构与造血干细胞移植结果之间的联系,从而为特定人群的干预措施和改善结果的机会提供信息。
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引用次数: 0
The Body Appreciation Scale-2: Psychometric evaluation of the Puerto Rican Spanish version among women aged ≥ 50 years who are breast cancer survivors. 身体鉴赏量表-2:波多黎各西班牙语版本在年龄≥ 50 岁的乳腺癌幸存者中的心理测量评估。
IF 1.5 4区 医学 Q4 PSYCHOLOGY, SOCIAL Pub Date : 2025-01-01 Epub Date: 2024-06-19 DOI: 10.1080/07347332.2024.2367696
Marytere Meléndez, Paulo G Lanausse, Adriel E Miranda, Graciela Vega, Ana L Mulero Portela

Purspose: Self-perceived body image may impact women's well-being and levels of depressive symptomatology after cancer-related treatment. The Body Appreciation Scale-2 (BAS-2) is a 10-item, unidimensional tool used to assess body appreciation, a facet of body image. A culturally relevant version of the BAS-2 was needed for the Spanish spoken in Puerto Rico. A cross-cultural adaptation of the BAS-2 for Spanish spoken in Puerto Rico was conducted and tested its psychometric properties, using a methodological design. It was hypothesized that the BAS-2 adapted for Puerto Rican Spanish would have an internal consistency with a Cronbach α value greater than 0.70 and a unidimensional structure; and that body appreciation would be positively and significantly correlated to mental health and would be negatively and significantly correlated to depression and body mass index.

Methods: One hundred-nine participants were recruited with a diagnosis of breast cancer (stages 0 to III) who completed adjuvant curative therapy at least two months to five years prior to recruitment.

Results: Participants had an average age of 61.5 years (SD = 7.1), and 64.2% had a bachelor's degree or higher educational level. The internal consistency of the BAS-2 adapted for the Puerto Rican Spanish was Cronbach α = 0.92. Exploratory factor analysis indicated one-dimensionality of the test. Body appreciation was negatively correlated with higher levels of depressive symptomatology and with a higher body mass index, and positively correlated with higher levels of mental health.

Conclusion: The BAS-2 adapted for the Spanish of Puerto Rico is a psychometrically sound instrument to assess body image.

目的:自我认知的身体形象可能会影响女性在接受癌症相关治疗后的幸福感和抑郁症状水平。身体鉴赏量表-2(BAS-2)是一个包含 10 个项目的单维度工具,用于评估身体鉴赏能力,这是身体形象的一个方面。BAS-2 需要一个适合波多黎各西班牙语的文化版本。针对波多黎各西班牙语对 BAS-2 进行了跨文化改编,并采用方法学设计对其心理测量特性进行了测试。根据假设,为波多黎各西班牙语改编的 BAS-2 将具有内部一致性(Cronbach α 值大于 0.70)和单维结构;身体欣赏与心理健康呈显著正相关,与抑郁和体重指数呈显著负相关:招募了 19 名确诊为乳腺癌(0 至 III 期)且在招募前至少 2 个月至 5 年内完成辅助治疗的参与者:参与者的平均年龄为 61.5 岁(SD = 7.1),64.2% 的参与者拥有学士学位或更高学历。根据波多黎各西班牙语改编的 BAS-2 的内部一致性为 Cronbach α = 0.92。探索性因素分析表明该测试具有单维性。身体欣赏与抑郁症状水平较高和身体质量指数较高呈负相关,与心理健康水平较高呈正相关:结论:根据波多黎各西班牙语改编的 BAS-2 是一种心理测量学上可靠的身体形象评估工具。
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引用次数: 0
Experiencing the COVID-19 health crisis: Quality of life of young to mid-life hematology patients. 经历 COVID-19 健康危机:中青年血液病患者的生活质量。
IF 1.5 4区 医学 Q4 PSYCHOLOGY, SOCIAL Pub Date : 2025-01-01 Epub Date: 2024-08-20 DOI: 10.1080/07347332.2024.2384441
Antoine Belnez, Charlotte Bauquier, Maëva Piton, Ombeline Fayard, Camille Golfier, Caroline Besson, Hervé Ghesquières, Marie Préau

Purpose: This study questions the quality of life of young to mid-life hematology patients during lockdowns in France.

Method: Fifteen semi-structured interviews were conducted in 2022.

Findings: Thematic content analysis identified three main themes: (1) regulating fear of COVID-19 during the health crisis, (2) maintaining relationships and fostering social support during the pandemic, and (3) removing the stigma of cancer with COVID-19: a positive factor for patients' quality of life.

Interpretation: Study participants experienced the restrictions imposed on the entire population in the face of COVID-19 in various ways, including positive events. In fact, for some, the lockdown situation allowed them to better "fit in" and feel less stigmatized because of their patient status. Indeed, lifestyles specific to them became common barrier gestures to the whole population.

Implications for psychosocial providers or policy: The results underline the importance of broadening the communication fields and fostering psychosocial skills in these patients.

目的:本研究探讨了法国中青年血液病患者在禁闭期间的生活质量:方法:2022 年进行了 15 次半结构式访谈:主题内容分析确定了三大主题:(1)在健康危机期间调节对COVID-19的恐惧;(2)在大流行期间维持人际关系和促进社会支持;(3)通过COVID-19消除癌症的耻辱感:患者生活质量的积极因素:研究参与者以各种方式(包括积极事件)体验了 COVID-19 给整个人群带来的限制。事实上,对一些人来说,封锁的环境使他们能够更好地 "融入 "社会,并减少因其病人身份而受到的侮辱。事实上,他们特有的生活方式成了整个人群共同的障碍姿态:研究结果强调了拓宽沟通领域和培养这些病人的社会心理技能的重要性。
{"title":"Experiencing the COVID-19 health crisis: Quality of life of young to mid-life hematology patients.","authors":"Antoine Belnez, Charlotte Bauquier, Maëva Piton, Ombeline Fayard, Camille Golfier, Caroline Besson, Hervé Ghesquières, Marie Préau","doi":"10.1080/07347332.2024.2384441","DOIUrl":"10.1080/07347332.2024.2384441","url":null,"abstract":"<p><strong>Purpose: </strong>This study questions the quality of life of young to mid-life hematology patients during lockdowns in France.</p><p><strong>Method: </strong>Fifteen semi-structured interviews were conducted in 2022.</p><p><strong>Findings: </strong>Thematic content analysis identified three main themes: (1) regulating fear of COVID-19 during the health crisis, (2) maintaining relationships and fostering social support during the pandemic, and (3) removing the stigma of cancer with COVID-19: a positive factor for patients' quality of life.</p><p><strong>Interpretation: </strong>Study participants experienced the restrictions imposed on the entire population in the face of COVID-19 in various ways, including positive events. In fact, for some, the lockdown situation allowed them to better \"fit in\" and feel less stigmatized because of their patient status. Indeed, lifestyles specific to them became common barrier gestures to the whole population.</p><p><strong>Implications for psychosocial providers or policy: </strong>The results underline the importance of broadening the communication fields and fostering psychosocial skills in these patients.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"265-277"},"PeriodicalIF":1.5,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142005535","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Decisional conflict and physiological dysregulation among adolescents and young adults with cancer. 青少年和青年癌症患者的决策冲突和生理失调。
IF 1.5 4区 医学 Q4 PSYCHOLOGY, SOCIAL Pub Date : 2025-01-01 Epub Date: 2025-06-06 DOI: 10.1080/07347332.2025.2515064
Katie Darabos, Lamia P Barakat, Lisa A Schwartz

Purpose: Adolescents and young adults with cancer (AYA) are faced with making several cancer-related decisions daily (e.g. managing pain/fatigue). Many of these decisions involve uncertainty (e.g. feeling uninformed about alternatives, feeling unsupported about making a choice), even under ideal conditions that have implications for health (e.g. wear and tear on the body). The present study examined relationships between decisional conflict within cancer-related decision-making and physiological responding.

Methods: Participants included 18 AYAs on active cancer treatment, diagnosed within the past 2 years. Participation included two days of salivary samples (assessing cortisol) followed by a 7-day collection of decisional conflict within cancer-related decision-making. Associations between decisional conflict and the cortisol awakening response (CAR) were examined.

Results: Decisional conflict was significantly associated with a smaller (i.e. blunted) cortisol awakening response, reflecting cortisol dysregulation.

Conclusion: Results from this study add to an emerging body of literature focused on the role of decisional conflict and physiological stress responding enhancing our understanding of decisional processes that may impact stress systems among AYAs undergoing cancer treatment.

目的:患有癌症的青少年和年轻人(AYA)每天都面临着做出一些与癌症相关的决定(例如管理疼痛/疲劳)。这些决定中有许多涉及不确定性(例如,感觉不了解其他选择,感觉做出选择时得不到支持),即使是在对健康有影响的理想条件下(例如,对身体的磨损)。本研究考察了癌症相关决策中的决策冲突与生理反应之间的关系。方法:参与者包括18名在过去2年内确诊的积极接受癌症治疗的AYAs。参与者包括两天的唾液样本(评估皮质醇),然后是7天的癌症相关决策中的决策冲突收集。决策冲突和皮质醇觉醒反应(CAR)之间的关系进行了检验。结果:决策冲突与较小的皮质醇觉醒反应(即钝化)显著相关,反映了皮质醇失调。结论:本研究的结果为关注决策冲突和生理应激反应的作用的新兴文献提供了补充,增强了我们对可能影响接受癌症治疗的aya应激系统的决策过程的理解。
{"title":"Decisional conflict and physiological dysregulation among adolescents and young adults with cancer.","authors":"Katie Darabos, Lamia P Barakat, Lisa A Schwartz","doi":"10.1080/07347332.2025.2515064","DOIUrl":"10.1080/07347332.2025.2515064","url":null,"abstract":"<p><strong>Purpose: </strong>Adolescents and young adults with cancer (AYA) are faced with making several cancer-related decisions daily (e.g. managing pain/fatigue). Many of these decisions involve uncertainty (e.g. feeling uninformed about alternatives, feeling unsupported about making a choice), even under ideal conditions that have implications for health (e.g. wear and tear on the body). The present study examined relationships between decisional conflict within cancer-related decision-making and physiological responding.</p><p><strong>Methods: </strong>Participants included 18 AYAs on active cancer treatment, diagnosed within the past 2 years. Participation included two days of salivary samples (assessing cortisol) followed by a 7-day collection of decisional conflict within cancer-related decision-making. Associations between decisional conflict and the cortisol awakening response (CAR) were examined.</p><p><strong>Results: </strong>Decisional conflict was significantly associated with a smaller (i.e. blunted) cortisol awakening response, reflecting cortisol dysregulation.</p><p><strong>Conclusion: </strong>Results from this study add to an emerging body of literature focused on the role of decisional conflict and physiological stress responding enhancing our understanding of decisional processes that may impact stress systems among AYAs undergoing cancer treatment.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"903-913"},"PeriodicalIF":1.5,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12354157/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144250287","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Positionality in psychosocial oncology: Reflections on becoming an insider. 社会心理肿瘤学中的定位:关于成为内部人士的思考。
IF 1.5 4区 医学 Q4 PSYCHOLOGY, SOCIAL Pub Date : 2025-01-01 Epub Date: 2025-07-12 DOI: 10.1080/07347332.2025.2523776
Rachel H Adler
{"title":"Positionality in psychosocial oncology: Reflections on becoming an insider.","authors":"Rachel H Adler","doi":"10.1080/07347332.2025.2523776","DOIUrl":"10.1080/07347332.2025.2523776","url":null,"abstract":"","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"914-916"},"PeriodicalIF":1.5,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144620878","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
An intervention module for caregivers of children with acute lymphoblastic leukemia (ALL). 针对急性淋巴细胞白血病(ALL)患儿护理人员的干预模块。
IF 1.5 4区 医学 Q4 PSYCHOLOGY, SOCIAL Pub Date : 2025-01-01 Epub Date: 2024-06-14 DOI: 10.1080/07347332.2024.2364670
Agnes Shu Sze Chong, Mahadir Ahmad, Hamidah Alias, Rizuana Iqbal Hussain, Afifi Lateh, Caryn Mei Hsien Chan

Introduction: Childhood cancer caregivers report psychological distress and unmet psychosocial needs, affecting outcomes for their children. An experimental study was carried out to measure the effectiveness of an intervention in addressing traumatic stress, depression and anxiety.

Methods: Caregivers (n = 59) of children with ALL were allocated to both groups (intervention, n = 29; TAU control, n = 30) via the SNOSE method. The intervention is a physical copy of a 2-week psychosocial self-help guidebook. Scores on the PCL-5, BDI and BAI were recorded at baseline, post-intervention and 1-month follow-up.

Results: There was a statistically significant difference in traumatic stress symptoms post intervention (F(1, 57) = 5.760, p = .020, np2 = 0.093) in favor of the intervention group. No statistical significance was found for its effect at one-month follow-up, overall depression and anxiety.

Conclusion: A psychosocial module developed for caregivers of children with ALL was found to be effective in reducing symptoms of traumatic stress and potentially depression. However, the maintenance of its effectiveness and the effectiveness on anxiety requires further study.

简介儿童癌症照护者报告了心理困扰和未得到满足的社会心理需求,这影响了他们孩子的治疗效果。我们开展了一项实验研究,以衡量针对创伤压力、抑郁和焦虑的干预措施的有效性:通过SNOSE方法将ALL患儿的照顾者(n = 59)分配到两组(干预组,n = 29;TAU对照组,n = 30)。干预措施是一份为期2周的社会心理自助指导手册。在基线、干预后和1个月的随访中记录了PCL-5、BDI和BAI的得分:干预后创伤应激症状的差异有统计学意义(F(1, 57) = 5.760, p = .020, np2 = 0.093),干预组更有利。在一个月的随访、总体抑郁和焦虑方面,干预效果没有统计学意义:结论:为ALL患儿护理人员开发的心理社会模块可有效减轻创伤性应激症状,并有可能减轻抑郁症状。结论:为ALL患儿的照顾者开发的心理社会模块能有效减轻创伤应激症状和潜在的抑郁症状,但其有效性的维持和对焦虑的影响还需要进一步研究。
{"title":"An intervention module for caregivers of children with acute lymphoblastic leukemia (ALL).","authors":"Agnes Shu Sze Chong, Mahadir Ahmad, Hamidah Alias, Rizuana Iqbal Hussain, Afifi Lateh, Caryn Mei Hsien Chan","doi":"10.1080/07347332.2024.2364670","DOIUrl":"10.1080/07347332.2024.2364670","url":null,"abstract":"<p><strong>Introduction: </strong>Childhood cancer caregivers report psychological distress and unmet psychosocial needs, affecting outcomes for their children. An experimental study was carried out to measure the effectiveness of an intervention in addressing traumatic stress, depression and anxiety.</p><p><strong>Methods: </strong>Caregivers (<i>n</i> = 59) of children with ALL were allocated to both groups (intervention, <i>n</i> = 29; TAU control, <i>n</i> = 30) via the SNOSE method. The intervention is a physical copy of a 2-week psychosocial self-help guidebook. Scores on the PCL-5, BDI and BAI were recorded at baseline, post-intervention and 1-month follow-up.</p><p><strong>Results: </strong>There was a statistically significant difference in traumatic stress symptoms post intervention (<i>F</i>(1, 57) = 5.760, <i>p</i> = .020, <i>n<sub>p</sub></i><sup>2</sup> = 0.093) in favor of the intervention group. No statistical significance was found for its effect at one-month follow-up, overall depression and anxiety.</p><p><strong>Conclusion: </strong>A psychosocial module developed for caregivers of children with ALL was found to be effective in reducing symptoms of traumatic stress and potentially depression. However, the maintenance of its effectiveness and the effectiveness on anxiety requires further study.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"73-87"},"PeriodicalIF":1.5,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141318604","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Relationship between problem solving dimensions and psychological distress among cancer caregivers. 癌症照顾者问题解决维度与心理困扰的关系
IF 1.5 4区 医学 Q4 PSYCHOLOGY, SOCIAL Pub Date : 2025-01-01 Epub Date: 2025-03-13 DOI: 10.1080/07347332.2025.2476142
Sarah Stolker, Kyle A Pitzer, Cathryn Koplitz, George Demiris, Shannon M Canfield, Debra Parker Oliver, Karla T Washington

Background: Family caregivers of patients with cancer face numerous challenges, leading to a heightened risk of psychological distress. Problem-solving abilities of cancer caregivers may influence coping and be relevant in anticipating the level of support needed from palliative care.

Objective: Researchers sought to evaluate the relationship between problem-solving dimensions and psychological distress, specifically symptoms of anxiety and depression, among family caregivers of cancer patients receiving outpatient palliative care.

Methods: Researchers conducted a cross-sectional exploratory study using data from an ongoing multisite clinical trial. Using block-wise linear regression models, they examined the relationship between psychological distress and problem-solving dimensions.

Results: Results identified positive significant associations between negative problem orientation and symptoms of anxiety and depression, and between avoidance problem-solving style and symptoms of depression.

Conclusion: Study results shed light on maladaptive problem-solving as influential in cancer caregiver coping, especially as it relates to risk of psychological distress.

背景:癌症患者的家庭照顾者面临着许多挑战,导致心理困扰的风险增加。癌症护理者解决问题的能力可能影响应对,并与预期从姑息治疗所需的支持水平相关。目的:研究在接受门诊姑息治疗的癌症患者的家庭照顾者中,问题解决维度与心理困扰,特别是焦虑和抑郁症状之间的关系。方法:研究人员利用一项正在进行的多地点临床试验的数据进行了横断面探索性研究。他们使用分块线性回归模型,检验了心理困扰和解决问题维度之间的关系。结果:消极问题取向与焦虑抑郁症状、回避问题解决方式与抑郁症状之间存在显著正相关。结论:研究结果揭示了解决适应不良问题对癌症护理人员应对的影响,特别是与心理困扰风险相关的问题。
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引用次数: 0
Development of the Partner Version of the Self-Efficacy to Communicate about Sex and Intimacy (SECSI-PV) Scale in the Context of Cancer Survivorship. 在癌症幸存者背景下开发伴侣版性与亲密沟通自我效能量表(SECSI-PV)。
IF 1.5 4区 医学 Q4 PSYCHOLOGY, SOCIAL Pub Date : 2025-01-01 Epub Date: 2024-10-12 DOI: 10.1080/07347332.2024.2398095
Chiara Acquati, Qi Chen, Elizabeth K Arthur, Jennifer B Reese, Jessica R Gorman

Purpose: This study aimed to develop the Partner Version of the Self-Efficacy to Communicate about Sex and Intimacy (SECSI-PV) scale.

Methods: Candidate items derived from the patient version of the instrument were refined with input from an expert panel specializing in sexual health, psychosocial oncology, and instrument development (n = 6). Partners (n = 17) of female cancer survivors participated in cognitive interviews to assess the revised scale's content validity.

Results: Transcripts were analyzed qualitatively. Participants endorsed the items as relevant, clear, and appropriate.

Conclusions: The present work illustrates the iterative development of the SECSI-PV scale. The study highlights the importance of including partners in sexual health discussions and emphasizes the need for psychosocial interventions supporting partners' confidence communicating about sexuality and intimacy. Additional research is recommended to validate the instrument in larger samples encompassing cancer types that are not sex-based and partners from diverse backgrounds, including sexual and gender minority groups.

目的:本研究旨在开发伴侣版性与亲密沟通自我效能(SECSI-PV)量表:根据性健康、社会心理肿瘤学和工具开发专家小组(n = 6)的意见,对患者版工具中的候选项目进行了改进。女性癌症幸存者的伴侣(n = 17)参加了认知访谈,以评估修订后量表的内容效度:结果:对访谈记录进行了定性分析。结果:对笔录进行了定性分析,参与者认为量表项目相关、清晰、适当:本研究说明了 SECSI-PV 量表的迭代开发过程。该研究强调了让伴侣参与性健康讨论的重要性,并强调了需要采取心理干预措施,以支持伴侣在性生活和亲密关系方面进行交流的信心。建议开展更多的研究,在更大的样本中验证该工具,包括非性别癌症类型和来自不同背景的伴侣,包括性少数群体和性别少数群体。
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引用次数: 0
期刊
Journal of Psychosocial Oncology
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