Pub Date : 2025-01-01Epub Date: 2024-10-28DOI: 10.1080/07347332.2024.2419663
Maria Ödling, Anna Jervaeus, Yvonne Wengström, Abby R Rosenberg, Joyce P Yi-Frazier, Jeanette Winterling
Objective: To describe the adaptation and feasibility of the Swedish version of the Promoting Resilience in Stress Management (PRISM) intervention among adolescents and young adults (AYAs) newly diagnosed with cancer.
Methods: PRISM is a 5-session, manualized program designed to strengthen AYAs individual resources for managing stress by promoting resilience skills: stress-management, goal-setting, cognitive reframing and meaning-making. It is delivered 1:1 by an interventionist via video-visits. PRISM was developed in the US and adapted for a Swedish population. A feasibility study was conducted looking at recruitment, retention, acceptability of the intervention (evaluation survey and exit interviews) and pre- and post- exploratory psychosocial outcome measures (resilience, global health, emotional functioning and rehabilitation needs). Participants were recruited from a comprehensive cancer center in Sweden.
Results: Of the 31 eligible individuals (16-30 years), 20 (65%) agreed to participate and 11 (55%) completed PRISM. Eighty-six percent (6/7) of the participants who completed the evaluation survey thought that the order of the modules and the content were "very good or good". The AYAs that participated in the exit interviews expressed that the programme contributed new knowledge and for some confirmed previous knowledge, which was valuable both during and after participation. The role of the interventionist was stressed as important to support participants through the programme. Suggestions for the future included making PRISM more personalized. Exploratory quantitative analyses suggested improved mean scores regarding resilience, global health and emotional functioning from pre- to post-intervention.
Conclusions: This study suggests that participating in PRISM has the potential to guide AYAs during the initial period after a cancer diagnosis. Further work to make PRISM more personalized might increase AYAs' interest in, and completion of, PRISM.
{"title":"Adaptation and feasibility of the Swedish Promoting Resilience in Stress Management intervention targeting adolescents and young adults newly diagnosed with cancer.","authors":"Maria Ödling, Anna Jervaeus, Yvonne Wengström, Abby R Rosenberg, Joyce P Yi-Frazier, Jeanette Winterling","doi":"10.1080/07347332.2024.2419663","DOIUrl":"10.1080/07347332.2024.2419663","url":null,"abstract":"<p><strong>Objective: </strong>To describe the adaptation and feasibility of the Swedish version of the Promoting Resilience in Stress Management (PRISM) intervention among adolescents and young adults (AYAs) newly diagnosed with cancer.</p><p><strong>Methods: </strong>PRISM is a 5-session, manualized program designed to strengthen AYAs individual resources for managing stress by promoting resilience skills: stress-management, goal-setting, cognitive reframing and meaning-making. It is delivered 1:1 by an interventionist <i>via</i> video-visits. PRISM was developed in the US and adapted for a Swedish population. A feasibility study was conducted looking at recruitment, retention, acceptability of the intervention (evaluation survey and exit interviews) and pre- and post- exploratory psychosocial outcome measures (resilience, global health, emotional functioning and rehabilitation needs). Participants were recruited from a comprehensive cancer center in Sweden.</p><p><strong>Results: </strong>Of the 31 eligible individuals (16-30 years), 20 (65%) agreed to participate and 11 (55%) completed PRISM. Eighty-six percent (6/7) of the participants who completed the evaluation survey thought that the order of the modules and the content were \"very good or good\". The AYAs that participated in the exit interviews expressed that the programme contributed new knowledge and for some confirmed previous knowledge, which was valuable both during and after participation. The role of the interventionist was stressed as important to support participants through the programme. Suggestions for the future included making PRISM more personalized. Exploratory quantitative analyses suggested improved mean scores regarding resilience, global health and emotional functioning from pre- to post-intervention.</p><p><strong>Conclusions: </strong>This study suggests that participating in PRISM has the potential to guide AYAs during the initial period after a cancer diagnosis. Further work to make PRISM more personalized might increase AYAs' interest in, and completion of, PRISM.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"513-529"},"PeriodicalIF":1.5,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142510317","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-01-01Epub Date: 2025-02-03DOI: 10.1080/07347332.2025.2454497
Chelsea S Rapoport, Alyssa K Choi, Siloh Radovsky, Melinda A Chen, Mary Devereaux, Megan Korhummel, Shea O'Donnell, Vanessa L Malcarne, Dennis J Kuo
Objective: To evaluate the feasibility and acceptability of a virtual therapeutic writing intervention for AYAs with cancer.
Methods: A single-arm pilot study of the intervention was conducted at Rady Children's Hospital San Diego. The six-session intervention was facilitated by a writing coach over two to three months, during which time participants produced written work regarding their experiences with cancer. Primary outcomes were measures of acceptability and feasibility, assessed via quantitative and qualitative methods.
Results: Study enrollment and retention rates were 75% and 83%, respectively. Participants rated all intervention sessions as highly enjoyable, helpful, useful, and satisfactory. Qualitatively, participants reported that the intervention helped them cope with their cancer and they would recommend the study to others with cancer.
Conclusions: This virtual therapeutic writing study is feasible and acceptable among AYAs with cancer. A randomized controlled trial should be conducted to test the efficacy of the intervention for improving psychosocial outcomes.
{"title":"A mixed methods pilot study of a virtual therapeutic writing intervention for adolescent/young adults with cancer.","authors":"Chelsea S Rapoport, Alyssa K Choi, Siloh Radovsky, Melinda A Chen, Mary Devereaux, Megan Korhummel, Shea O'Donnell, Vanessa L Malcarne, Dennis J Kuo","doi":"10.1080/07347332.2025.2454497","DOIUrl":"10.1080/07347332.2025.2454497","url":null,"abstract":"<p><strong>Objective: </strong>To evaluate the feasibility and acceptability of a virtual therapeutic writing intervention for AYAs with cancer.</p><p><strong>Methods: </strong>A single-arm pilot study of the intervention was conducted at Rady Children's Hospital San Diego. The six-session intervention was facilitated by a writing coach over two to three months, during which time participants produced written work regarding their experiences with cancer. Primary outcomes were measures of acceptability and feasibility, assessed via quantitative and qualitative methods.</p><p><strong>Results: </strong>Study enrollment and retention rates were 75% and 83%, respectively. Participants rated all intervention sessions as highly enjoyable, helpful, useful, and satisfactory. Qualitatively, participants reported that the intervention helped them cope with their cancer and they would recommend the study to others with cancer.</p><p><strong>Conclusions: </strong>This virtual therapeutic writing study is feasible and acceptable among AYAs with cancer. A randomized controlled trial should be conducted to test the efficacy of the intervention for improving psychosocial outcomes.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"664-681"},"PeriodicalIF":1.5,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143123596","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-01-01Epub Date: 2024-10-07DOI: 10.1080/07347332.2024.2410929
Hermioni L Amonoo, Elizabeth Daskalakis, Jeffrey A Lam, Emma D Wolfe, Michelle Guo, Henry K Onyeaka, Richard A Newcomb, Anna Barata, Pia Maria Ghanime, Emma P Keane, Annabella C Boardman, Corey Cutler, William F Pirl, John R Peteet, Lisa M Gudenkauf, Stephanie J Lee, Jeff C Huffman, Areej El-Jawahri
Purpose: To examine the associations between state positive psychological well-being (PPWB) constructs, mood, and quality of life (QOL) in hematopoietic stem cell transplantation (HSCT) survivors.
Design: The study was a secondary analysis of cross-sectional data.
Sample/methods: We analyzed self-report data assessing positive affect, flourishing, QOL, depression and anxiety, and PTSD symptoms from 158 allogeneic HSCT recipients at day-100 post-transplant enrolled in supportive care studies.
Findings: Univariate analysis showed that factors associated with greater levels of various state PPWB constructs include older age, disability status, greater social support, and presence of graft-versus-host disease. Multivariate analysis showed that state PPWB constructs-greater levels of positive affect and flourishing-were significantly associated with better QOL and lower PTSD, anxiety, and depression symptomatology.
Implications: Our findings suggest that longitudinal studies are needed to examine the links between state PPWB constructs and HSCT outcomes, which may inform population specific interventions and opportunities to improve outcomes.
目的:研究造血干细胞移植(HSCT)幸存者的积极心理状态(PPWB)、情绪和生活质量(QOL)之间的关联:设计:本研究是对横断面数据的二次分析:我们分析了参加支持性护理研究的158名异体造血干细胞移植受者在移植后第100天的自我报告数据,这些数据评估了积极情绪、蓬勃发展、QOL、抑郁和焦虑以及创伤后应激障碍症状:单变量分析表明,与PPWB各种状态结构水平较高相关的因素包括年龄较大、残疾状况、社会支持较多以及存在移植物抗宿主疾病。多变量分析表明,状态 PPWB 构建--更高水平的积极情绪和蓬勃发展--与更好的 QOL 以及更低的创伤后应激障碍、焦虑和抑郁症状明显相关:我们的研究结果表明,有必要开展纵向研究,以检查PPWB状态结构与造血干细胞移植结果之间的联系,从而为特定人群的干预措施和改善结果的机会提供信息。
{"title":"Association between positive affect, flourishing, quality of life, and psychological distress in allogeneic hematopoietic stem cell transplantation.","authors":"Hermioni L Amonoo, Elizabeth Daskalakis, Jeffrey A Lam, Emma D Wolfe, Michelle Guo, Henry K Onyeaka, Richard A Newcomb, Anna Barata, Pia Maria Ghanime, Emma P Keane, Annabella C Boardman, Corey Cutler, William F Pirl, John R Peteet, Lisa M Gudenkauf, Stephanie J Lee, Jeff C Huffman, Areej El-Jawahri","doi":"10.1080/07347332.2024.2410929","DOIUrl":"10.1080/07347332.2024.2410929","url":null,"abstract":"<p><strong>Purpose: </strong>To examine the associations between state positive psychological well-being (PPWB) constructs, mood, and quality of life (QOL) in hematopoietic stem cell transplantation (HSCT) survivors.</p><p><strong>Design: </strong>The study was a secondary analysis of cross-sectional data.</p><p><strong>Sample/methods: </strong>We analyzed self-report data assessing positive affect, flourishing, QOL, depression and anxiety, and PTSD symptoms from 158 allogeneic HSCT recipients at day-100 post-transplant enrolled in supportive care studies.</p><p><strong>Findings: </strong>Univariate analysis showed that factors associated with greater levels of various state PPWB constructs include older age, disability status, greater social support, and presence of graft-versus-host disease. Multivariate analysis showed that state PPWB constructs-greater levels of positive affect and flourishing-were significantly associated with better QOL and lower PTSD, anxiety, and depression symptomatology.</p><p><strong>Implications: </strong>Our findings suggest that longitudinal studies are needed to examine the links between state PPWB constructs and HSCT outcomes, which may inform population specific interventions and opportunities to improve outcomes.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"373-388"},"PeriodicalIF":1.5,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11973235/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142382031","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-01-01Epub Date: 2024-06-19DOI: 10.1080/07347332.2024.2367696
Marytere Meléndez, Paulo G Lanausse, Adriel E Miranda, Graciela Vega, Ana L Mulero Portela
Purspose: Self-perceived body image may impact women's well-being and levels of depressive symptomatology after cancer-related treatment. The Body Appreciation Scale-2 (BAS-2) is a 10-item, unidimensional tool used to assess body appreciation, a facet of body image. A culturally relevant version of the BAS-2 was needed for the Spanish spoken in Puerto Rico. A cross-cultural adaptation of the BAS-2 for Spanish spoken in Puerto Rico was conducted and tested its psychometric properties, using a methodological design. It was hypothesized that the BAS-2 adapted for Puerto Rican Spanish would have an internal consistency with a Cronbach α value greater than 0.70 and a unidimensional structure; and that body appreciation would be positively and significantly correlated to mental health and would be negatively and significantly correlated to depression and body mass index.
Methods: One hundred-nine participants were recruited with a diagnosis of breast cancer (stages 0 to III) who completed adjuvant curative therapy at least two months to five years prior to recruitment.
Results: Participants had an average age of 61.5 years (SD = 7.1), and 64.2% had a bachelor's degree or higher educational level. The internal consistency of the BAS-2 adapted for the Puerto Rican Spanish was Cronbach α = 0.92. Exploratory factor analysis indicated one-dimensionality of the test. Body appreciation was negatively correlated with higher levels of depressive symptomatology and with a higher body mass index, and positively correlated with higher levels of mental health.
Conclusion: The BAS-2 adapted for the Spanish of Puerto Rico is a psychometrically sound instrument to assess body image.
{"title":"The Body Appreciation Scale-2: Psychometric evaluation of the Puerto Rican Spanish version among women aged ≥ 50 years who are breast cancer survivors.","authors":"Marytere Meléndez, Paulo G Lanausse, Adriel E Miranda, Graciela Vega, Ana L Mulero Portela","doi":"10.1080/07347332.2024.2367696","DOIUrl":"10.1080/07347332.2024.2367696","url":null,"abstract":"<p><strong>Purspose: </strong>Self-perceived body image may impact women's well-being and levels of depressive symptomatology after cancer-related treatment. The Body Appreciation Scale-2 (BAS-2) is a 10-item, unidimensional tool used to assess body appreciation, a facet of body image. A culturally relevant version of the BAS-2 was needed for the Spanish spoken in Puerto Rico. A cross-cultural adaptation of the BAS-2 for Spanish spoken in Puerto Rico was conducted and tested its psychometric properties, using a methodological design. It was hypothesized that the BAS-2 adapted for Puerto Rican Spanish would have an internal consistency with a Cronbach α value greater than 0.70 and a unidimensional structure; and that body appreciation would be positively and significantly correlated to mental health and would be negatively and significantly correlated to depression and body mass index.</p><p><strong>Methods: </strong>One hundred-nine participants were recruited with a diagnosis of breast cancer (stages 0 to III) who completed adjuvant curative therapy at least two months to five years prior to recruitment.</p><p><strong>Results: </strong>Participants had an average age of 61.5 years (SD = 7.1), and 64.2% had a bachelor's degree or higher educational level. The internal consistency of the BAS-2 adapted for the Puerto Rican Spanish was Cronbach α = 0.92. Exploratory factor analysis indicated one-dimensionality of the test. Body appreciation was negatively correlated with higher levels of depressive symptomatology and with a higher body mass index, and positively correlated with higher levels of mental health.</p><p><strong>Conclusion: </strong>The BAS-2 adapted for the Spanish of Puerto Rico is a psychometrically sound instrument to assess body image.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"157-172"},"PeriodicalIF":1.5,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11655708/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141427954","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-01-01Epub Date: 2024-08-20DOI: 10.1080/07347332.2024.2384441
Antoine Belnez, Charlotte Bauquier, Maëva Piton, Ombeline Fayard, Camille Golfier, Caroline Besson, Hervé Ghesquières, Marie Préau
Purpose: This study questions the quality of life of young to mid-life hematology patients during lockdowns in France.
Method: Fifteen semi-structured interviews were conducted in 2022.
Findings: Thematic content analysis identified three main themes: (1) regulating fear of COVID-19 during the health crisis, (2) maintaining relationships and fostering social support during the pandemic, and (3) removing the stigma of cancer with COVID-19: a positive factor for patients' quality of life.
Interpretation: Study participants experienced the restrictions imposed on the entire population in the face of COVID-19 in various ways, including positive events. In fact, for some, the lockdown situation allowed them to better "fit in" and feel less stigmatized because of their patient status. Indeed, lifestyles specific to them became common barrier gestures to the whole population.
Implications for psychosocial providers or policy: The results underline the importance of broadening the communication fields and fostering psychosocial skills in these patients.
{"title":"Experiencing the COVID-19 health crisis: Quality of life of young to mid-life hematology patients.","authors":"Antoine Belnez, Charlotte Bauquier, Maëva Piton, Ombeline Fayard, Camille Golfier, Caroline Besson, Hervé Ghesquières, Marie Préau","doi":"10.1080/07347332.2024.2384441","DOIUrl":"10.1080/07347332.2024.2384441","url":null,"abstract":"<p><strong>Purpose: </strong>This study questions the quality of life of young to mid-life hematology patients during lockdowns in France.</p><p><strong>Method: </strong>Fifteen semi-structured interviews were conducted in 2022.</p><p><strong>Findings: </strong>Thematic content analysis identified three main themes: (1) regulating fear of COVID-19 during the health crisis, (2) maintaining relationships and fostering social support during the pandemic, and (3) removing the stigma of cancer with COVID-19: a positive factor for patients' quality of life.</p><p><strong>Interpretation: </strong>Study participants experienced the restrictions imposed on the entire population in the face of COVID-19 in various ways, including positive events. In fact, for some, the lockdown situation allowed them to better \"fit in\" and feel less stigmatized because of their patient status. Indeed, lifestyles specific to them became common barrier gestures to the whole population.</p><p><strong>Implications for psychosocial providers or policy: </strong>The results underline the importance of broadening the communication fields and fostering psychosocial skills in these patients.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"265-277"},"PeriodicalIF":1.5,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142005535","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-01-01Epub Date: 2025-06-06DOI: 10.1080/07347332.2025.2515064
Katie Darabos, Lamia P Barakat, Lisa A Schwartz
Purpose: Adolescents and young adults with cancer (AYA) are faced with making several cancer-related decisions daily (e.g. managing pain/fatigue). Many of these decisions involve uncertainty (e.g. feeling uninformed about alternatives, feeling unsupported about making a choice), even under ideal conditions that have implications for health (e.g. wear and tear on the body). The present study examined relationships between decisional conflict within cancer-related decision-making and physiological responding.
Methods: Participants included 18 AYAs on active cancer treatment, diagnosed within the past 2 years. Participation included two days of salivary samples (assessing cortisol) followed by a 7-day collection of decisional conflict within cancer-related decision-making. Associations between decisional conflict and the cortisol awakening response (CAR) were examined.
Results: Decisional conflict was significantly associated with a smaller (i.e. blunted) cortisol awakening response, reflecting cortisol dysregulation.
Conclusion: Results from this study add to an emerging body of literature focused on the role of decisional conflict and physiological stress responding enhancing our understanding of decisional processes that may impact stress systems among AYAs undergoing cancer treatment.
{"title":"Decisional conflict and physiological dysregulation among adolescents and young adults with cancer.","authors":"Katie Darabos, Lamia P Barakat, Lisa A Schwartz","doi":"10.1080/07347332.2025.2515064","DOIUrl":"10.1080/07347332.2025.2515064","url":null,"abstract":"<p><strong>Purpose: </strong>Adolescents and young adults with cancer (AYA) are faced with making several cancer-related decisions daily (e.g. managing pain/fatigue). Many of these decisions involve uncertainty (e.g. feeling uninformed about alternatives, feeling unsupported about making a choice), even under ideal conditions that have implications for health (e.g. wear and tear on the body). The present study examined relationships between decisional conflict within cancer-related decision-making and physiological responding.</p><p><strong>Methods: </strong>Participants included 18 AYAs on active cancer treatment, diagnosed within the past 2 years. Participation included two days of salivary samples (assessing cortisol) followed by a 7-day collection of decisional conflict within cancer-related decision-making. Associations between decisional conflict and the cortisol awakening response (CAR) were examined.</p><p><strong>Results: </strong>Decisional conflict was significantly associated with a smaller (i.e. blunted) cortisol awakening response, reflecting cortisol dysregulation.</p><p><strong>Conclusion: </strong>Results from this study add to an emerging body of literature focused on the role of decisional conflict and physiological stress responding enhancing our understanding of decisional processes that may impact stress systems among AYAs undergoing cancer treatment.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"903-913"},"PeriodicalIF":1.5,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12354157/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144250287","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-01-01Epub Date: 2025-07-12DOI: 10.1080/07347332.2025.2523776
Rachel H Adler
{"title":"Positionality in psychosocial oncology: Reflections on becoming an insider.","authors":"Rachel H Adler","doi":"10.1080/07347332.2025.2523776","DOIUrl":"10.1080/07347332.2025.2523776","url":null,"abstract":"","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"914-916"},"PeriodicalIF":1.5,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144620878","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-01-01Epub Date: 2024-06-14DOI: 10.1080/07347332.2024.2364670
Agnes Shu Sze Chong, Mahadir Ahmad, Hamidah Alias, Rizuana Iqbal Hussain, Afifi Lateh, Caryn Mei Hsien Chan
Introduction: Childhood cancer caregivers report psychological distress and unmet psychosocial needs, affecting outcomes for their children. An experimental study was carried out to measure the effectiveness of an intervention in addressing traumatic stress, depression and anxiety.
Methods: Caregivers (n = 59) of children with ALL were allocated to both groups (intervention, n = 29; TAU control, n = 30) via the SNOSE method. The intervention is a physical copy of a 2-week psychosocial self-help guidebook. Scores on the PCL-5, BDI and BAI were recorded at baseline, post-intervention and 1-month follow-up.
Results: There was a statistically significant difference in traumatic stress symptoms post intervention (F(1, 57) = 5.760, p = .020, np2 = 0.093) in favor of the intervention group. No statistical significance was found for its effect at one-month follow-up, overall depression and anxiety.
Conclusion: A psychosocial module developed for caregivers of children with ALL was found to be effective in reducing symptoms of traumatic stress and potentially depression. However, the maintenance of its effectiveness and the effectiveness on anxiety requires further study.
{"title":"An intervention module for caregivers of children with acute lymphoblastic leukemia (ALL).","authors":"Agnes Shu Sze Chong, Mahadir Ahmad, Hamidah Alias, Rizuana Iqbal Hussain, Afifi Lateh, Caryn Mei Hsien Chan","doi":"10.1080/07347332.2024.2364670","DOIUrl":"10.1080/07347332.2024.2364670","url":null,"abstract":"<p><strong>Introduction: </strong>Childhood cancer caregivers report psychological distress and unmet psychosocial needs, affecting outcomes for their children. An experimental study was carried out to measure the effectiveness of an intervention in addressing traumatic stress, depression and anxiety.</p><p><strong>Methods: </strong>Caregivers (<i>n</i> = 59) of children with ALL were allocated to both groups (intervention, <i>n</i> = 29; TAU control, <i>n</i> = 30) via the SNOSE method. The intervention is a physical copy of a 2-week psychosocial self-help guidebook. Scores on the PCL-5, BDI and BAI were recorded at baseline, post-intervention and 1-month follow-up.</p><p><strong>Results: </strong>There was a statistically significant difference in traumatic stress symptoms post intervention (<i>F</i>(1, 57) = 5.760, <i>p</i> = .020, <i>n<sub>p</sub></i><sup>2</sup> = 0.093) in favor of the intervention group. No statistical significance was found for its effect at one-month follow-up, overall depression and anxiety.</p><p><strong>Conclusion: </strong>A psychosocial module developed for caregivers of children with ALL was found to be effective in reducing symptoms of traumatic stress and potentially depression. However, the maintenance of its effectiveness and the effectiveness on anxiety requires further study.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"73-87"},"PeriodicalIF":1.5,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141318604","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-01-01Epub Date: 2025-03-13DOI: 10.1080/07347332.2025.2476142
Sarah Stolker, Kyle A Pitzer, Cathryn Koplitz, George Demiris, Shannon M Canfield, Debra Parker Oliver, Karla T Washington
Background: Family caregivers of patients with cancer face numerous challenges, leading to a heightened risk of psychological distress. Problem-solving abilities of cancer caregivers may influence coping and be relevant in anticipating the level of support needed from palliative care.
Objective: Researchers sought to evaluate the relationship between problem-solving dimensions and psychological distress, specifically symptoms of anxiety and depression, among family caregivers of cancer patients receiving outpatient palliative care.
Methods: Researchers conducted a cross-sectional exploratory study using data from an ongoing multisite clinical trial. Using block-wise linear regression models, they examined the relationship between psychological distress and problem-solving dimensions.
Results: Results identified positive significant associations between negative problem orientation and symptoms of anxiety and depression, and between avoidance problem-solving style and symptoms of depression.
Conclusion: Study results shed light on maladaptive problem-solving as influential in cancer caregiver coping, especially as it relates to risk of psychological distress.
{"title":"Relationship between problem solving dimensions and psychological distress among cancer caregivers.","authors":"Sarah Stolker, Kyle A Pitzer, Cathryn Koplitz, George Demiris, Shannon M Canfield, Debra Parker Oliver, Karla T Washington","doi":"10.1080/07347332.2025.2476142","DOIUrl":"10.1080/07347332.2025.2476142","url":null,"abstract":"<p><strong>Background: </strong>Family caregivers of patients with cancer face numerous challenges, leading to a heightened risk of psychological distress. Problem-solving abilities of cancer caregivers may influence coping and be relevant in anticipating the level of support needed from palliative care.</p><p><strong>Objective: </strong>Researchers sought to evaluate the relationship between problem-solving dimensions and psychological distress, specifically symptoms of anxiety and depression, among family caregivers of cancer patients receiving outpatient palliative care.</p><p><strong>Methods: </strong>Researchers conducted a cross-sectional exploratory study using data from an ongoing multisite clinical trial. Using block-wise linear regression models, they examined the relationship between psychological distress and problem-solving dimensions.</p><p><strong>Results: </strong>Results identified positive significant associations between negative problem orientation and symptoms of anxiety and depression, and between avoidance problem-solving style and symptoms of depression.</p><p><strong>Conclusion: </strong>Study results shed light on maladaptive problem-solving as influential in cancer caregiver coping, especially as it relates to risk of psychological distress.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"808-822"},"PeriodicalIF":1.5,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12354087/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143626390","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2025-01-01Epub Date: 2024-10-12DOI: 10.1080/07347332.2024.2398095
Chiara Acquati, Qi Chen, Elizabeth K Arthur, Jennifer B Reese, Jessica R Gorman
Purpose: This study aimed to develop the Partner Version of the Self-Efficacy to Communicate about Sex and Intimacy (SECSI-PV) scale.
Methods: Candidate items derived from the patient version of the instrument were refined with input from an expert panel specializing in sexual health, psychosocial oncology, and instrument development (n = 6). Partners (n = 17) of female cancer survivors participated in cognitive interviews to assess the revised scale's content validity.
Results: Transcripts were analyzed qualitatively. Participants endorsed the items as relevant, clear, and appropriate.
Conclusions: The present work illustrates the iterative development of the SECSI-PV scale. The study highlights the importance of including partners in sexual health discussions and emphasizes the need for psychosocial interventions supporting partners' confidence communicating about sexuality and intimacy. Additional research is recommended to validate the instrument in larger samples encompassing cancer types that are not sex-based and partners from diverse backgrounds, including sexual and gender minority groups.
{"title":"Development of the Partner Version of the Self-Efficacy to Communicate about Sex and Intimacy (SECSI-PV) Scale in the Context of Cancer Survivorship.","authors":"Chiara Acquati, Qi Chen, Elizabeth K Arthur, Jennifer B Reese, Jessica R Gorman","doi":"10.1080/07347332.2024.2398095","DOIUrl":"10.1080/07347332.2024.2398095","url":null,"abstract":"<p><strong>Purpose: </strong>This study aimed to develop the Partner Version of the Self-Efficacy to Communicate about Sex and Intimacy (SECSI-PV) scale.</p><p><strong>Methods: </strong>Candidate items derived from the patient version of the instrument were refined with input from an expert panel specializing in sexual health, psychosocial oncology, and instrument development (<i>n</i> = 6). Partners (<i>n</i> = 17) of female cancer survivors participated in cognitive interviews to assess the revised scale's content validity.</p><p><strong>Results: </strong>Transcripts were analyzed qualitatively. Participants endorsed the items as relevant, clear, and appropriate.</p><p><strong>Conclusions: </strong>The present work illustrates the iterative development of the SECSI-PV scale. The study highlights the importance of including partners in sexual health discussions and emphasizes the need for psychosocial interventions supporting partners' confidence communicating about sexuality and intimacy. Additional research is recommended to validate the instrument in larger samples encompassing cancer types that are not sex-based and partners from diverse backgrounds, including sexual and gender minority groups.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"337-355"},"PeriodicalIF":1.5,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142477635","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}