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Survey of families’ psychosocial needs in the context of pediatric cancer: a first step toward the participatory development of a group intervention 调查小儿癌症家庭的社会心理需求:参与式制定小组干预措施的第一步
IF 2.1 4区 医学 Q4 PSYCHOLOGY, SOCIAL Pub Date : 2024-09-16 DOI: 10.1080/07347332.2024.2404570
Mélina Rivard, Julie Tremblay, Zakaria Mestari, Léandra Desjardins, Élodie Bergeron, Christine Lefebvre
Pediatric cancer is associated with stressors that increase the risk for distress across family members. Psychosocial support varies and may not meet family needs and preferences. This study invest...
小儿癌症与压力有关,这些压力会增加家庭成员遭受痛苦的风险。社会心理支持各不相同,可能无法满足家庭的需求和偏好。本研究投资了...
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引用次数: 0
Disparities in fertility preservation discussions among sexual and gender minority cancer patients and their cancer care providers. 性少数群体和性别少数群体癌症患者及其癌症护理提供者在讨论保留生育力方面的差异。
IF 2.1 4区 医学 Q4 PSYCHOLOGY, SOCIAL Pub Date : 2024-09-11 DOI: 10.1080/07347332.2024.2396466
Imani N Wilson-Shabazz,Christopher W Wheldon,Michael J Hall,Sarah Bauerle Bass
BACKGROUNDCancer providers are advised to inform their reproductive aged patients about fertility preservation given the potential for treatment-related infertility. How consistently fertility preservation discussions (FPDs) occur is understudied in sexual and gender minority (SGM) cancer patients. The effects of bias and heteronormativity may reduce the rate of FPDs. We identified the frequency and correlates of FPD in a sample of SGM cancer patients.METHODSData were from the cross-sectional 2020 OUT National Cancer Survey. The sample was restricted to those diagnosed with cancer between the ages of fifteen and forty-five. FPD was measured with a single item. Multivariable logistic regression was conducted to determine factors significantly associated with FPDs.RESULTSAverage age at cancer diagnosis was 34.97 (SD = 8.34). Respondents were mostly non-Hispanic white (77.6%) and college-educated (63.4%), and 32.6% reported FPDs. In the multivariable model, identifying as lesbian (Adjusted odds ratio [aOR] = 0.49; 95% CI: 0.24-0.99), pansexual (aOR = 0.34; 95% CI:0.12-0.94), or queer (aOR = 0.24; 95% CI: 0.08-0.70) was negatively associated with FPDs compared to bisexuals. Being treated more than ten years ago (aOR = 0.47; 95% CI:0.26-0.85) was also negatively associated with FPDs.CONCLUSIONFindings suggest potential bias against some SGM patients based on sexual orientation identity in FPDs, though changes over the past decade may have increased the frequency of FPD with patients more broadly. More research is needed to investigate why some SGM patients of reproductive age are not being counseled about fertility preservation.
背景考虑到与治疗相关的不孕症的可能性,建议癌症医疗人员告知其育龄患者有关生育力保护的信息。对于性与性别少数群体(SGM)癌症患者如何持续进行生育力保护讨论(FPDs),研究尚不充分。偏见和异性恋的影响可能会降低 FPD 的发生率。我们在 SGM 癌症患者样本中确定了 FPD 的频率和相关因素。样本仅限于年龄在 15 岁至 45 岁之间的确诊癌症患者。FPD 采用单项测量。结果癌症诊断时的平均年龄为 34.97 岁(SD = 8.34)。受访者大多为非西班牙裔白人(77.6%),受过大学教育(63.4%),32.6%的受访者报告了 FPD。在多变量模型中,与双性恋者相比,认同为女同性恋(调整赔率 [aOR] = 0.49;95% CI:0.24-0.99)、泛性恋(aOR = 0.34;95% CI:0.12-0.94)或同性恋者(aOR = 0.24;95% CI:0.08-0.70)与 FPD 负相关。结论研究结果表明,在 FPD 中,基于性取向认同的一些 SGM 患者可能会受到偏见的影响,尽管在过去十年中发生的变化可能增加了更多患者的 FPD 频率。需要进行更多的研究来探讨为什么一些育龄 SGM 患者没有得到有关生育力保存的咨询。
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引用次数: 0
A bibliometric analysis of studies on death anxiety in patients with cancer. 对癌症患者死亡焦虑研究的文献计量分析。
IF 2.1 4区 医学 Q4 PSYCHOLOGY, SOCIAL Pub Date : 2024-09-11 DOI: 10.1080/07347332.2024.2398098
Wen Li,Hongli Li,Jingcheng Wen,Dong Pang,Yuhan Lu,Hong Yang
Purpose: This study evaluates the evolution and focal points of research on death anxiety among cancer patients over the last three decades, utilizing bibliometric analyses.Methods: We analyzed publications related to death anxiety among cancer patients from January 1994 to January 2024 using data from the Web of Science Core Collection. Bibliometric indicators such as the number of publications, leading countries, institutions, and research themes were examined.Results: A total of 2,602 papers from 286 institutions across 97 countries were identified. There has been a significant increase in research interest, particularly between 2014 and 2023, with a peak in 2022. The United States and Harvard University were found to be the most prolific contributors. Major research themes include quality of life, palliative care, mental health, and cancer-specific concerns.Conclusion: The results highlight the rapid development in the field of death anxiety research among cancer patients, with an increase in publications and emerging research themes. However, there is limited international and institutional collaboration. The study underscores the need for enhanced cooperative efforts to advance understanding and research in this area, suggesting directions for future research.
目的:本研究通过文献计量学分析,评估了过去三十年来有关癌症患者死亡焦虑的研究演变和焦点:我们利用科学网核心数据库中的数据分析了 1994 年 1 月至 2024 年 1 月期间与癌症患者死亡焦虑相关的出版物。我们对论文数量、主要国家、机构和研究主题等文献计量指标进行了研究:结果:共发现来自 97 个国家 286 个机构的 2,602 篇论文。研究兴趣明显增加,尤其是在 2014 年至 2023 年期间,2022 年达到高峰。美国和哈佛大学的论文数量最多。主要研究主题包括生活质量、姑息治疗、心理健康和癌症特定问题:研究结果凸显了癌症患者死亡焦虑研究领域的快速发展,出版物和新兴研究主题不断增加。然而,国际间和机构间的合作却很有限。这项研究强调了加强合作的必要性,以促进对这一领域的理解和研究,并为今后的研究指明了方向。
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引用次数: 0
Experiencing the COVID-19 health crisis: Quality of life of young to mid-life hematology patients. 经历 COVID-19 健康危机:中青年血液病患者的生活质量。
IF 1.5 4区 医学 Q4 PSYCHOLOGY, SOCIAL Pub Date : 2024-08-20 DOI: 10.1080/07347332.2024.2384441
Antoine Belnez, Charlotte Bauquier, Maëva Piton, Ombeline Fayard, Camille Golfier, Caroline Besson, Hervé Ghesquières, Marie Préau

Purpose: This study questions the quality of life of young to mid-life hematology patients during lockdowns in France.

Method: Fifteen semi-structured interviews were conducted in 2022.

Findings: Thematic content analysis identified three main themes: (1) regulating fear of COVID-19 during the health crisis, (2) maintaining relationships and fostering social support during the pandemic, and (3) removing the stigma of cancer with COVID-19: a positive factor for patients' quality of life.

Interpretation: Study participants experienced the restrictions imposed on the entire population in the face of COVID-19 in various ways, including positive events. In fact, for some, the lockdown situation allowed them to better "fit in" and feel less stigmatized because of their patient status. Indeed, lifestyles specific to them became common barrier gestures to the whole population.

Implications for psychosocial providers or policy: The results underline the importance of broadening the communication fields and fostering psychosocial skills in these patients.

目的:本研究探讨了法国中青年血液病患者在禁闭期间的生活质量:方法:2022 年进行了 15 次半结构式访谈:主题内容分析确定了三大主题:(1)在健康危机期间调节对COVID-19的恐惧;(2)在大流行期间维持人际关系和促进社会支持;(3)通过COVID-19消除癌症的耻辱感:患者生活质量的积极因素:研究参与者以各种方式(包括积极事件)体验了 COVID-19 给整个人群带来的限制。事实上,对一些人来说,封锁的环境使他们能够更好地 "融入 "社会,并减少因其病人身份而受到的侮辱。事实上,他们特有的生活方式成了整个人群共同的障碍姿态:研究结果强调了拓宽沟通领域和培养这些病人的社会心理技能的重要性。
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引用次数: 0
Using a community-engaged research process to plan, implement, and evaluate a cancer education program to improve knowledge and screening intentions among African American men. 利用社区参与研究过程来规划、实施和评估一项癌症教育计划,以提高非裔美国男性对癌症的认识和筛查意向。
IF 1.5 4区 医学 Q4 PSYCHOLOGY, SOCIAL Pub Date : 2024-08-15 DOI: 10.1080/07347332.2024.2379822
Whitney George, Malakai Miller, Elizabeth C Stewart, Derek Wilus, LaNese Campbell, Bishop Calvin Barlow, Tilicia L Mayo-Gamble, Claudia Barajas, Cornelius Hill, Vincent Johnson, Lawrence Reed, John Williams, Jennifer Cunningham-Erves

Objective: We assessed acceptability, feasibility, and preliminary efficacy of a culturally appropriate, cancer education program to improve cancer knowledge, attitudes, subjective norms, and screening intentions for oropharynx, colon, and prostate cancers among African American men. We detailed the community-engaged research process used for African American men to design, implement, and evaluate the program.

Materials and methods: We recruited 84 (61 in-person, 23 online) African American men over 2-months across 4 churches in Middle Tennessee in 2021. A single group, pre-post-test design was used to evaluate the 2.5-h hybrid program. Scales used were: General self-efficacy for cancer screening; attitudes toward cancer; general cancer knowledge; and subjective norms related to cancer. One-item measured cancer screening intention. Taba robust partial correlation measured the degree of association between changes in means of each explanatory variable with changes in means of each outcome variable. IBM SPSS version 28 and R/RStudio version 3.6.0 was used for data analysis. We conducted three focus groups (n = 17) to assess program acceptability. Microsoft Excel version 26 was used to conduct thematic analysis for this data.

Findings: Quantitative Significant differences were found in the pre/post comparisons of knowledge (mean difference: 0.22; p-value = 0.015), self-efficacy (mean difference: 0.23; p-value < 0.001), and prostate cancer screening intention (mean difference: 0.19; p-value = 0.049) scores. This indicates the mean score for knowledge, self-efficacy, and prostate cancer screening intention was significantly higher post-intervention. Qualitative Focus group themes were: (1) Impact of Program on Participants Psychosocial Health (2) Perspectives on Life after the program. (3) Views on Programmatic Components; (4) Recommendations for Program Improvement.

Conclusions: Results demonstrate our program is feasible, acceptable, and could increase cancer screening intentions and behavior. Psychosocial providers should demonstrate cultural awareness and humility when providing services to address the psychological and social needs for cancer screening among African American men.

目的我们评估了一项文化适宜的癌症教育计划的可接受性、可行性和初步疗效,该计划旨在提高非裔美国男性的癌症知识、态度、主观规范以及口咽癌、结肠癌和前列腺癌筛查意向。我们详细介绍了针对非裔美国男性设计、实施和评估该计划的社区参与研究过程:2021 年,我们在田纳西州中部的 4 个教堂招募了 84 名非洲裔美国男性(61 人亲临现场,23 人在线),历时 2 个月。我们采用了单组、前-后测试设计来评估 2.5 小时的混合项目。使用的量表包括癌症筛查的一般自我效能;对癌症的态度;癌症常识;以及与癌症相关的主观规范。一个项目测量癌症筛查意向。塔巴稳健偏相关测量了每个解释变量的均值变化与每个结果变量的均值变化之间的关联程度。数据分析使用了 IBM SPSS 28 版本和 R/RStudio 3.6.0 版本。我们开展了三个焦点小组(n = 17)来评估项目的可接受性。我们使用 Microsoft Excel 26 版对这些数据进行了专题分析:在知识(平均差异:0.22;P 值 = 0.015)、自我效能(平均差异:0.23;P 值 < 0.001)和前列腺癌筛查意向(平均差异:0.19;P 值 = 0.049)得分的前后比较中发现了显著差异。这表明知识、自我效能和前列腺癌筛查意向的平均得分在干预后显著提高。定性焦点小组的主题是(1) 计划对参与者社会心理健康的影响 (2) 对计划后生活的看法。(3) 对计划内容的看法;(4) 对计划改进的建议:结果表明,我们的计划是可行的、可接受的,并能提高癌症筛查的意向和行为。社会心理服务提供者在提供服务以满足非裔美国男性癌症筛查的心理和社会需求时,应表现出文化意识和谦逊。
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引用次数: 0
The role of emotion regulation through mindfulness in oncological patients: A pilot study. 通过正念调节情绪对肿瘤患者的作用:试点研究。
IF 1.5 4区 医学 Q4 PSYCHOLOGY, SOCIAL Pub Date : 2024-08-10 DOI: 10.1080/07347332.2024.2389094
Carmen Yélamos Agua, Sofía Luque Suárez, María Ruesga García, Rosario Sepulcre Canto, Renmaly Angulo Belisario, Tamara Hernandez Baute, Carlos Hortelano Luna, Sira Izárbez Loriente, Mercedes Márquez Fernández, Montserrat Parejo Espinar, María Isabel Sánchez Jiménez, Ruth San José García, Elísabeth Berzal Pérez

Background: Traditional MBSR or MBTC programs do not delve deeply enough into emotional regulation, which is especially relevant in oncological patients. The aim of this study was to analyze the benefits of a mindfulness-based emotion regulation program in adult oncological patients.

Method: Psycho-oncologists from the AECC developed a mindfulness-based emotion regulation program. The Five Facet Mindfulness Questionnaire (FFMQ), Trait Meta-Mood Scale (TMMS), and Hospital Anxiety and Depression Scale (HADS) were administered before and after the program. A single-group pre-post test design with repeated measures was employed, utilizing the General Linear Model.

Results: Ninety-seven adult cancer patients completed the pre- and post-program assessments. Statistically significant improvements were observed in all FFMQ subscales, increased clarity of emotional discrimination, mood repair, and statistically significant reductions in anxiety and depressive symptoms.

Conclusions: Regardless of the phase of the disease, the results of this study suggest that emotional regulation may improve and anxiety and depressive symptomatology decrease after a mindfulness-based emotion regulation program in oncological patients.

背景:传统的 MBSR 或 MBTC 计划对情绪调节的研究不够深入,而情绪调节与肿瘤患者的关系尤为密切。本研究旨在分析正念情绪调节项目对成年肿瘤患者的益处:方法:AECC 的肿瘤心理学家开发了一个正念情绪调节项目。在项目实施前后,分别进行了五面正念问卷(FFMQ)、特质元情绪量表(TMMS)和医院焦虑抑郁量表(HADS)的测试。采用一般线性模型,进行重复测量的单组前-后测试设计:97名成年癌症患者完成了项目前后的评估。在所有 FFMQ 分量表中都观察到了统计学意义上的明显改善,情绪辨别的清晰度有所提高,情绪得到修复,焦虑和抑郁症状也有统计学意义上的明显减轻:本研究结果表明,无论处于哪个疾病阶段,肿瘤患者在接受正念情绪调节项目后,情绪调节能力都会得到改善,焦虑和抑郁症状也会减轻。
{"title":"The role of emotion regulation through mindfulness in oncological patients: A pilot study.","authors":"Carmen Yélamos Agua, Sofía Luque Suárez, María Ruesga García, Rosario Sepulcre Canto, Renmaly Angulo Belisario, Tamara Hernandez Baute, Carlos Hortelano Luna, Sira Izárbez Loriente, Mercedes Márquez Fernández, Montserrat Parejo Espinar, María Isabel Sánchez Jiménez, Ruth San José García, Elísabeth Berzal Pérez","doi":"10.1080/07347332.2024.2389094","DOIUrl":"https://doi.org/10.1080/07347332.2024.2389094","url":null,"abstract":"<p><strong>Background: </strong>Traditional MBSR or MBTC programs do not delve deeply enough into emotional regulation, which is especially relevant in oncological patients. The aim of this study was to analyze the benefits of a mindfulness-based emotion regulation program in adult oncological patients.</p><p><strong>Method: </strong>Psycho-oncologists from the AECC developed a mindfulness-based emotion regulation program. The Five Facet Mindfulness Questionnaire (FFMQ), Trait Meta-Mood Scale (TMMS), and Hospital Anxiety and Depression Scale (HADS) were administered before and after the program. A single-group pre-post test design with repeated measures was employed, utilizing the General Linear Model.</p><p><strong>Results: </strong>Ninety-seven adult cancer patients completed the pre- and post-program assessments. Statistically significant improvements were observed in all FFMQ subscales, increased clarity of emotional discrimination, mood repair, and statistically significant reductions in anxiety and depressive symptoms.</p><p><strong>Conclusions: </strong>Regardless of the phase of the disease, the results of this study suggest that emotional regulation may improve and anxiety and depressive symptomatology decrease after a mindfulness-based emotion regulation program in oncological patients.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"1-16"},"PeriodicalIF":1.5,"publicationDate":"2024-08-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141914195","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Understanding and tackling cancer inequities: What opportunities does intersectionality offer researchers, policymakers, and providers? A scoping review. 了解并解决癌症不公平问题:交叉性为研究人员、决策者和服务提供者提供了哪些机会?范围综述。
IF 1.5 4区 医学 Q4 PSYCHOLOGY, SOCIAL Pub Date : 2024-08-09 DOI: 10.1080/07347332.2024.2361642
Mar Estupiñán Fdez de Mesa, Afrodita Marcu, Emma Ream, Katriina L Whitaker

Problem identification: We summarised the international evidence relating to the role of intersectionality in patients' lived experience of inequities along the cancer care pathway. We produced guidance to use intersectionality in future research.

Literature search: We included 42 articles published between 1989 to 2023 that used intersectionality to guide the study and interpretation of inequities in cancer care.

Data evaluation/synthesis: Articles predominantly comprised North American (n = 37), followed by European (n = 4) and Asian (n = 1) studies. Similar compounding effects of racism, homophobia, and discrimination across countries exacerbated inequities in cancer care experience and cancer outcomes particularly for women of color and sexual/gender minority groups. Professionals' knowledge, attitudes, and behaviors toward minoritised groups affected patient-provider relationships and influenced cancer patients' psychosocial responses.

Conclusion: Intersectionality provides a framework to assess the personal, interpersonal, and structural processes through which cancer inequities manifest within and across countries.

发现问题:我们总结了有关交叉性在癌症治疗过程中对患者的不公平生活体验所起作用的国际证据。我们制定了在未来研究中使用交叉性的指南:数据评估/综述:文章主要包括北美研究(37 篇),其次是欧洲研究(4 篇)和亚洲研究(1 篇)。种族主义、仇视同性恋和歧视在不同国家产生了类似的复合效应,加剧了癌症护理经验和癌症结果的不平等,尤其是对有色人种妇女和性/性别少数群体而言。专业人员对少数群体的知识、态度和行为影响了患者与医护人员之间的关系,并影响了癌症患者的社会心理反应:交叉性为评估个人、人际和结构性过程提供了一个框架,而癌症不平等现象正是通过这些过程在国内和跨国表现出来的。
{"title":"Understanding and tackling cancer inequities: What opportunities does intersectionality offer researchers, policymakers, and providers? A scoping review.","authors":"Mar Estupiñán Fdez de Mesa, Afrodita Marcu, Emma Ream, Katriina L Whitaker","doi":"10.1080/07347332.2024.2361642","DOIUrl":"10.1080/07347332.2024.2361642","url":null,"abstract":"<p><strong>Problem identification: </strong>We summarised the international evidence relating to the role of intersectionality in patients' lived experience of inequities along the cancer care pathway. We produced guidance to use intersectionality in future research.</p><p><strong>Literature search: </strong>We included 42 articles published between 1989 to 2023 that used intersectionality to guide the study and interpretation of inequities in cancer care.</p><p><strong>Data evaluation/synthesis: </strong>Articles predominantly comprised North American (<i>n</i> = 37), followed by European (<i>n</i> = 4) and Asian (<i>n</i> = 1) studies. Similar compounding effects of racism, homophobia, and discrimination across countries exacerbated inequities in cancer care experience and cancer outcomes particularly for women of color and sexual/gender minority groups. Professionals' knowledge, attitudes, and behaviors toward minoritised groups affected patient-provider relationships and influenced cancer patients' psychosocial responses.</p><p><strong>Conclusion: </strong>Intersectionality provides a framework to assess the personal, interpersonal, and structural processes through which cancer inequities manifest within and across countries.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"1-28"},"PeriodicalIF":1.5,"publicationDate":"2024-08-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141908011","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A powerful safety net: Social support moderates the association of quality of life deficits with suicidal ideation in long-term childhood cancer survivors. 强大的安全网社会支持可调节儿童癌症长期幸存者的生活质量缺陷与自杀意念之间的关联。
IF 1.5 4区 医学 Q4 PSYCHOLOGY, SOCIAL Pub Date : 2024-07-31 DOI: 10.1080/07347332.2024.2379827
Tamara Schwinn, Judith Hirschmiller, Elmar Brähler, Hiltrud Merzenich, Jörg Faber, Philipp S Wild, Manfred E Beutel, Mareike Ernst

Objectives: Cancer survivors are at risk for suicidality. We aimed to expand the knowledge about protective factors and their interplay with risk factors by testing social support as a modifier of the association of Quality of Life (QoL) deficits with suicidal ideation.

Research approach: We surveyed N = 633 childhood cancer survivors (CCS) using validated questionnaires (EORTC Core Quality of Life questionnaire QLQ-C30, Patient Health Questionnaire PHQ-9). The interaction of QoL and social support was investigated using multiple linear regression analysis.

Findings: CCS reporting suicide attempts and current suicidal ideation (SI) had lower QoL. CCS with SI reported less social support. QoL and social support were independently associated with SI and interacted: among CCS with less social support, low QoL was more strongly associated with SI.

Conclusion: The results highlight the need for interdisciplinary survivorship care, and to focus on risk and protective factors to strengthen suicide prevention.

目的:癌症幸存者有自杀风险。我们的目的是通过测试社会支持对生活质量(QoL)缺陷与自杀意念之间关系的调节作用,扩大对保护因素及其与风险因素之间相互作用的了解:我们使用经过验证的问卷(EORTC 核心生活质量问卷 QLQ-C30、患者健康问卷 PHQ-9)对 N = 633 名儿童癌症幸存者(CCS)进行了调查。通过多元线性回归分析研究了生活质量与社会支持之间的相互作用:结果:报告自杀未遂和目前有自杀倾向(SI)的慢性病患者的 QoL 较低。有自杀倾向的社区保健服务人员报告的社会支持较少。QoL 和社会支持与 SI 既独立相关,又相互影响:在社会支持较少的慢性病患者中,低 QoL 与 SI 的关系更为密切:结果强调了跨学科幸存者护理的必要性,以及关注风险和保护因素以加强自杀预防的必要性。
{"title":"A powerful safety net: Social support moderates the association of quality of life deficits with suicidal ideation in long-term childhood cancer survivors.","authors":"Tamara Schwinn, Judith Hirschmiller, Elmar Brähler, Hiltrud Merzenich, Jörg Faber, Philipp S Wild, Manfred E Beutel, Mareike Ernst","doi":"10.1080/07347332.2024.2379827","DOIUrl":"https://doi.org/10.1080/07347332.2024.2379827","url":null,"abstract":"<p><strong>Objectives: </strong>Cancer survivors are at risk for suicidality. We aimed to expand the knowledge about protective factors and their interplay with risk factors by testing social support as a modifier of the association of Quality of Life (QoL) deficits with suicidal ideation.</p><p><strong>Research approach: </strong>We surveyed <i>N</i> = 633 childhood cancer survivors (CCS) using validated questionnaires (EORTC Core Quality of Life questionnaire QLQ-C30, Patient Health Questionnaire PHQ-9). The interaction of QoL and social support was investigated using multiple linear regression analysis.</p><p><strong>Findings: </strong>CCS reporting suicide attempts and current suicidal ideation (SI) had lower QoL. CCS with SI reported less social support. QoL and social support were independently associated with SI and interacted: among CCS with less social support, low QoL was more strongly associated with SI.</p><p><strong>Conclusion: </strong>The results highlight the need for interdisciplinary survivorship care, and to focus on risk and protective factors to strengthen suicide prevention.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"1-18"},"PeriodicalIF":1.5,"publicationDate":"2024-07-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141861249","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Subjective well-being among Iranian breast cancer patients: Exploring the influential role of psychological capital. 伊朗乳腺癌患者的主观幸福感:探索心理资本的影响作用。
IF 1.5 4区 医学 Q4 PSYCHOLOGY, SOCIAL Pub Date : 2024-07-25 DOI: 10.1080/07347332.2024.2381546
Hossein Mohsenipouya, Zohreh Motallebi, Nouraddin Mousavinasab, Alireza Sangani, Nitai Roy, Mohammed A Mamun

Purpose: Breast cancer is a prevalent and emotionally challenging condition that profoundly affects women worldwide. Effectively managing the mental and emotional dimensions of this disease is crucial for the holistic well-being of patients. Psychological capital (PsyCap) has emerged as a pivotal psychological construct with the potential to effectively address these challenges. This study aims to explore the influential role of PsyCap and its constructs on the subjective well-being (SWB) of Iranian breast cancer patients.

Methods: A total of 173 breast cancer patients participated in this study, selected through a random sampling approach. Face-to-face interview data on socio-demographics, PsyCap, and SWB were collected using a structured questionnaire. The analytical procedures encompassed independent sample t-tests, ANOVA tests, Pearson correlation tests, and stepwise multiple regression.

Results: The findings revealed that the majority of participants fell within the 41-50 age group (38.7%), with an average age of 46.50 ± 11.76 years, and 35.8% had tumor growth in the upper left lobe. The average PsyCap score was 107.93 ± 1.52 (out of a possible score of 144), whereas SWB scored 196.51 ± 1.90 (out of 291). Notably, PsyCap showed a positive correlation with SWB (r = 0.119), accounting for approximately 8% of the variance in SWB. The final regression model showed the substantial predictive roles of PsyCap (1.667), self-efficacy (-3.692), age (-2.977), and education (-3.939) in shaping SWB.

Conclusions: Focusing on understanding and addressing factors like PsyCap, self-efficacy, and educational support could improve SWB, offering a potential avenue for comprehensive and individualized psychosocial care for women with breast cancer.

目的:乳腺癌是一种普遍存在且具有情感挑战性的疾病,对全世界的妇女都有深远的影响。有效管理这种疾病的心理和情绪层面对患者的整体健康至关重要。心理资本(PsyCap)已成为一种关键的心理结构,具有有效应对这些挑战的潜力。本研究旨在探讨心理资本及其构建对伊朗乳腺癌患者主观幸福感(SWB)的影响作用:本研究通过随机抽样的方式共选取了 173 名乳腺癌患者。研究采用结构化问卷,通过面对面访谈的方式收集了有关社会人口统计学、PsyCap 和 SWB 的数据。分析程序包括独立样本 t 检验、方差分析检验、皮尔逊相关检验和逐步多元回归:研究结果显示,大多数参与者属于 41-50 岁年龄组(38.7%),平均年龄为(46.50 ± 11.76)岁,35.8%的人肿瘤生长在左上叶。PsyCap 的平均得分为 107.93 ± 1.52(满分为 144 分),而 SWB 的平均得分为 196.51 ± 1.90(满分为 291 分)。值得注意的是,PsyCap 与 SWB 呈正相关(r = 0.119),约占 SWB 变异的 8%。最终回归模型显示,PsyCap(1.667)、自我效能感(-3.692)、年龄(-2.977)和教育程度(-3.939)对 SWB 的形成具有重要的预测作用:重点了解并解决心理上限、自我效能感和教育支持等因素可改善 SWB,从而为乳腺癌女性患者提供全面、个性化的社会心理护理。
{"title":"Subjective well-being among Iranian breast cancer patients: Exploring the influential role of psychological capital.","authors":"Hossein Mohsenipouya, Zohreh Motallebi, Nouraddin Mousavinasab, Alireza Sangani, Nitai Roy, Mohammed A Mamun","doi":"10.1080/07347332.2024.2381546","DOIUrl":"https://doi.org/10.1080/07347332.2024.2381546","url":null,"abstract":"<p><strong>Purpose: </strong>Breast cancer is a prevalent and emotionally challenging condition that profoundly affects women worldwide. Effectively managing the mental and emotional dimensions of this disease is crucial for the holistic well-being of patients. Psychological capital (PsyCap) has emerged as a pivotal psychological construct with the potential to effectively address these challenges. This study aims to explore the influential role of PsyCap and its constructs on the subjective well-being (SWB) of Iranian breast cancer patients.</p><p><strong>Methods: </strong>A total of 173 breast cancer patients participated in this study, selected through a random sampling approach. Face-to-face interview data on socio-demographics, PsyCap, and SWB were collected using a structured questionnaire. The analytical procedures encompassed independent sample <i>t</i>-tests, ANOVA tests, Pearson correlation tests, and stepwise multiple regression.</p><p><strong>Results: </strong>The findings revealed that the majority of participants fell within the 41-50 age group (38.7%), with an average age of 46.50 ± 11.76 years, and 35.8% had tumor growth in the upper left lobe. The average PsyCap score was 107.93 ± 1.52 (out of a possible score of 144), whereas SWB scored 196.51 ± 1.90 (out of 291). Notably, PsyCap showed a positive correlation with SWB (<i>r</i> = 0.119), accounting for approximately 8% of the variance in SWB. The final regression model showed the substantial predictive roles of PsyCap (1.667), self-efficacy (-3.692), age (-2.977), and education (-3.939) in shaping SWB.</p><p><strong>Conclusions: </strong>Focusing on understanding and addressing factors like PsyCap, self-efficacy, and educational support could improve SWB, offering a potential avenue for comprehensive and individualized psychosocial care for women with breast cancer.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"1-17"},"PeriodicalIF":1.5,"publicationDate":"2024-07-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141761640","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The effectiveness of live music intervention on psychological distress among adolescent and young adult patients undergoing hematopoietic stem cell transplantation. 现场音乐干预对接受造血干细胞移植的青少年患者心理压力的影响。
IF 1.5 4区 医学 Q4 PSYCHOLOGY, SOCIAL Pub Date : 2024-07-07 DOI: 10.1080/07347332.2024.2373232
Qian Sun, Ying-Long Duan, Cheng-Yuan Li, Jian-Fei Xie, Andy Sk Cheng

Objective: To explore the effects of live music to decrease psychological distress in adolescent and young adult (AYA) patients undergoing hematopoietic stem cell transplantation (HSCT).

Method: A quasi-experimental study was conducted. Sixty patients undergoing HSCT were divided into two groups, receiving either 4 week of live music (n = 31) or standard care (n = 29). Psychological distress, anxiety, the severity of symptom clusters and symptom interference were measured.

Results: When compared with the immediately and 1 month after intervention, patients in LM intervention group had significantly lower psychological distress and anxiety level than wait-list group. AYA undergoing HSCT reported significantly milder general symptom cluster and neurological symptom cluster at T3 than at baseline.

Conclusions: Live music intervention showed a positive effect on relieving psychological distress and anxiety in AYA patients undergoing HSCT. However, further researches are warranted to explore the effects of live music intervention on symptom cluster.

目的:探讨现场音乐对减轻接受造血干细胞移植(HSCT)的青少年患者心理压力的影响:探讨现场音乐对减轻接受造血干细胞移植(HSCT)的青少年患者心理压力的影响:进行了一项准实验研究。60名接受造血干细胞移植的患者被分为两组,分别接受为期4周的现场音乐(31人)或标准护理(29人)。研究对心理困扰、焦虑、症状群的严重程度和症状干扰进行了测量:结果:与干预刚开始时和干预后 1 个月相比,现场音乐干预组患者的心理压力和焦虑水平明显低于等待组。接受造血干细胞移植的青壮年在T3报告的全身症状群和神经症状群明显轻于基线时:现场音乐干预对缓解接受造血干细胞移植的亚裔患者的心理压力和焦虑有积极作用。结论:现场音乐干预对缓解接受造血干细胞移植的青壮年患者的心理困扰和焦虑有积极作用,但仍需进一步研究现场音乐干预对症状群的影响。
{"title":"The effectiveness of live music intervention on psychological distress among adolescent and young adult patients undergoing hematopoietic stem cell transplantation.","authors":"Qian Sun, Ying-Long Duan, Cheng-Yuan Li, Jian-Fei Xie, Andy Sk Cheng","doi":"10.1080/07347332.2024.2373232","DOIUrl":"https://doi.org/10.1080/07347332.2024.2373232","url":null,"abstract":"<p><strong>Objective: </strong>To explore the effects of live music to decrease psychological distress in adolescent and young adult (AYA) patients undergoing hematopoietic stem cell transplantation (HSCT).</p><p><strong>Method: </strong>A quasi-experimental study was conducted. Sixty patients undergoing HSCT were divided into two groups, receiving either 4 week of live music (<i>n</i> = 31) or standard care (<i>n</i> = 29). Psychological distress, anxiety, the severity of symptom clusters and symptom interference were measured.</p><p><strong>Results: </strong>When compared with the immediately and 1 month after intervention, patients in LM intervention group had significantly lower psychological distress and anxiety level than wait-list group. AYA undergoing HSCT reported significantly milder general symptom cluster and neurological symptom cluster at T3 than at baseline.</p><p><strong>Conclusions: </strong>Live music intervention showed a positive effect on relieving psychological distress and anxiety in AYA patients undergoing HSCT. However, further researches are warranted to explore the effects of live music intervention on symptom cluster.</p>","PeriodicalId":47451,"journal":{"name":"Journal of Psychosocial Oncology","volume":" ","pages":"1-17"},"PeriodicalIF":1.5,"publicationDate":"2024-07-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141555704","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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Journal of Psychosocial Oncology
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