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Friendships Through Inclusive Postsecondary Education Programs: Perspectives of Current and Former Students With Intellectual and Developmental Disabilities. 通过包容性的高等教育项目建立友谊:有智力和发育障碍的当前和以前的学生的观点。
IF 1.8 3区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2021-12-01 DOI: 10.1352/1934-9556-59.6.487
Stephanie Spruit, Erik W Carter

The formation of friendships is central to the college experience. Yet little is known about the relationships young adults with intellectual and developmental disabilities form through their inclusive postsecondary education programs or maintain after graduation. We interviewed 12 current students and alumni about their social networks and their views regarding friendships. Participants shared their perspectives on the multiple meaning of friendship, the size and composition of their social networks, and the areas in which college has positively impacted their social lives. We offer recommendations for research and practice aimed at understanding and enhancing friendship formation within the inclusive higher education movement.

友谊的形成是大学生活的核心。然而,对于有智力和发育障碍的年轻人通过他们的包容性高等教育项目形成或在毕业后保持的关系,我们知之甚少。我们采访了12名在校学生和校友,了解他们的社交网络以及他们对友谊的看法。参与者分享了他们对友谊的多重意义、社交网络的规模和组成,以及大学对他们社交生活产生积极影响的领域的看法。我们为研究和实践提供建议,旨在理解和加强包容性高等教育运动中友谊的形成。
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引用次数: 0
Training Healthcare Professionals to Work With People With Intellectual and Developmental Disabilities. 培训医疗保健专业人员与智力和发育障碍人士一起工作。
IF 1.8 3区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2021-12-01 DOI: 10.1352/1934-9556-59.6.446
Sydnie E Smith, Hannah P McCann, Richard C Urbano, Elisabeth M Dykens, Robert M Hodapp

This study assessed 155 healthcare providers, from nine disciplines, who work professionally with people with intellectual and developmental disabilities (IDD). Using a national, web-based survey, respondents rated their experience, comfort, and competence in treating individuals with different disability types and preferred methods of continuing education; respondents also provided suggestions for attracting others to work with the IDD population. Findings revealed that experiences, comfort, and competence were all higher concerning persons with autism spectrum disorder (ASD) and intellectual disability (ID), lower for those with deaf-blindness. Overall, levels of experience exceeded levels of comfort, which in turn exceeded levels of competence. The most helpful venues for continued training involved day-to-day contact with persons with IDD, which also characterized open-ended responses. Research and practical implications are discussed.

这项研究评估了来自9个学科的155名医疗保健提供者,他们的专业工作是与智力和发育障碍(IDD)患者一起工作。通过一项全国性的基于网络的调查,受访者对他们在治疗不同残疾类型的个人和首选的继续教育方法方面的经验、舒适度和能力进行了评分;答复者还就如何吸引其他人与缺碘症患者一起工作提出了建议。研究结果显示,自闭症谱系障碍(ASD)和智力残疾(ID)患者的体验、舒适度和能力都较高,而聋盲患者的体验、舒适度和能力则较低。总的来说,经验水平超过了舒适水平,而舒适水平又超过了能力水平。继续培训最有帮助的场所是与缺碘症患者进行日常接触,这也是开放式答复的特点。讨论了研究和实际意义。
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引用次数: 4
Exploring Patterns of Advocacy and Well-Being of Parents of Children With Intellectual and Developmental Disabilities. 探索智力和发育障碍儿童家长的倡导和福利模式。
IF 1.8 3区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2021-12-01 DOI: 10.1352/1934-9556-59.6.459
Kristina Rios, Janeth Aleman-Tovar, Meghan Burke

Advocacy is often an expectation for parents of children with intellectual and developmental disabilities (IDD). However, little is known about how advocacy may impact parent well-being, including stress, family dynamics, and marital relationships. By exploring the effects of advocacy on well-being, interventions can be implemented to support both the advocacy and well-being of parents of children with IDD. To this end, the purpose of the study was to explore the pattern between positive and negative advocacy experiences of parents of children with IDD and the well-being of parents, families, and marriages. Semi-structured interviews were conducted with 38 parents of children with IDD. Regardless of the nature (i.e., positive, or negative) of the advocacy experience, participants reported that advocacy increased their stress. When the advocacy experience was positive, some participants reported improved family quality of life. Also, regardless of the nature of the advocacy experience, some participants reported feeling frustration within their marital relationships. Implications for future research and practice are discussed.

倡导往往是对智力和发育障碍儿童父母的期望。然而,关于倡导如何影响父母的幸福,包括压力、家庭动态和婚姻关系,我们知之甚少。通过探索宣传对福祉的影响,可以实施干预措施,以支持缺碘症儿童父母的宣传和福祉。为此,本研究的目的是探讨缺碘症儿童的父母的积极和消极倡导经历与父母、家庭和婚姻的幸福之间的模式。对38名缺碘症儿童的父母进行了半结构化访谈。无论倡导经验的性质如何(即积极或消极),参与者报告说,倡导增加了他们的压力。当宣传经验是积极的,一些参与者报告说家庭生活质量得到改善。此外,不管倡导经历的性质如何,一些参与者报告说他们在婚姻关系中感到沮丧。讨论了对未来研究和实践的启示。
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引用次数: 1
Presidential Address: The Next Generation Workforce, A Call to Action 总统讲话:下一代劳动力,行动呼吁
IF 1.8 3区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2021-11-23 DOI: 10.1352/1934-9556-59.6.502
Elisa F. Velardo
It is my great honor to close the 145 meeting of the American Association on Intellectual and Developmental Disabilities (AAIDD) and speak to you on this year’s theme, ‘‘Addressing Workforce Challenges: Promising Trends in Policy, Practice, and Research.’’ When I first chose this topic, I could not have predicted the workforce challenges that would be presented to each of us over this past year due to the impact of Covid 19. I chose this year’s theme for a much more personal reason. I was experiencing the medical, clinical, administrative, and direct support workforce through a new lens. A lens that would further shape my appreciation and offer me insight into some possibilities for the future. I recall the day vividly. In May 2017, my dad was diagnosed with dementia. We went to his favorite restaurant for lunch to celebrate his 87 birthday with his siblings, and then onto the VA hospital for a medical appointment. He had been spending more and more time at my house and I was getting concerned about him being alone. He had recently had his driver’s license revoked and was focused on getting it back. He needed a letter from his physician. I knew that he would not be getting his license back. Dr. Lawrence knew us well. She had been his primary care physician at the VA for many years. She knew how he prided himself on being in excellent health. She worked to adjust his metformin as his diabetes improved as he aged. Without a word spoken between us, I knew that she could sense my concern. She listened to my dad and suggested we meet with the social worker who could assess his ability to drive. Though I knew that he was forgetting things, it was not until I witnessed him take the cognitive assessment test that I realized the extent of his impairment. He could not tell the time on the clock, he could not recall the current president, and he certainly could not remember 5 words ‘‘Person, woman, man, camera, TV.’’ However, he was charming and flirtatious, and I realized he was very proficient at deflecting the questions and pretending to understand. At that time, I had been providing services and supports to people with intellectual and developmental disabilities (IDD) for 31 years. I had been a direct support professional in large institutional settings and in individualized community-based settings. I had coordinated in-home and out-ofhome respite for families. I had been in leadership roles ranging from Program Director to Executive Director. I had studied public policy at the Heller School at Brandeis University and earned a Master’s in Management of Human Services with a focus on Intellectual and Developmental Disabilities. But in that moment, my roles reversed from professional to family member, from service provider to service recipient. In the following three years, I would assist my dad to utilize in-home supports, respite, adult day habilitation, occupational therapy, physical therapy, speech therapy, self-directed supports, environmental adapt
我非常荣幸地结束了美国智力和发育障碍协会(AAIDD)的145次会议,并就今年的主题“应对劳动力挑战:政策、实践和研究的前景趋势”与大家交谈当我第一次选择这个话题时,我无法预测由于新冠肺炎19的影响,在过去的一年里,我们每个人都会面临劳动力挑战。我选择今年的主题更多是出于个人原因。我通过一个新的视角体验了医疗、临床、行政和直接支持工作人员。这个镜头将进一步塑造我的欣赏,并让我深入了解未来的一些可能性。我清楚地记得那一天。2017年5月,我父亲被诊断出患有痴呆症。我们去了他最喜欢的餐厅吃午饭,和他的兄弟姐妹一起庆祝他的87岁生日,然后去了弗吉尼亚州的医院进行医疗预约。他在我家待的时间越来越多,我开始担心他一个人。他最近被吊销了驾驶执照,他正集中精力把执照要回来。他需要医生的一封信。我知道他不会拿回驾照的。劳伦斯博士很了解我们。多年来,她一直是他在弗吉尼亚州的初级保健医生。她知道他是如何以身体健康而自豪的。随着他的糖尿病随着年龄的增长而好转,她努力调整他的二甲双胍。我们之间一句话也没说,我知道她能感觉到我的关心。她听了我父亲的话,建议我们去见一位社会工作者,他可以评估他的驾驶能力。虽然我知道他忘记了事情,但直到我看到他参加认知评估测试,我才意识到他的损伤程度。他记不清时钟上的时间,记不起现任总统,当然也记不起“人、女人、男人、相机、电视”这五个字。然而,他很迷人,很轻浮,我意识到他非常擅长转移问题和假装理解。当时,我已经为智力和发育残疾人士提供服务和支持31年了。我曾是大型机构和个性化社区环境中的直接支持专业人员。我在家里和家外为家人提供了协调的休息时间。我曾担任过从项目总监到执行总监的领导职务。我曾在布兰迪斯大学海勒学院学习公共政策,并获得了人力服务管理硕士学位,重点关注智力和发育障碍。但在那一刻,我的角色从专业人员转变为家庭成员,从服务提供者转变为服务接受者。在接下来的三年里,我将帮助父亲利用家庭支持、喘息、成人日适应训练、职业治疗、物理治疗、言语治疗、自我指导支持、环境适应、交通服务、辅助技术、精神病学、社会工作、住院康复,最后是长期护理。
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引用次数: 0
Resúmenes al Español. 英文摘要。
IF 1.8 3区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2021-11-23 DOI: 10.1352/1934-9556-54.4.297
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引用次数: 0
Résumés en Français. 法语摘要。
IF 1.8 3区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2021-10-26 DOI: 10.1352/1934-9556-54.1.77
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引用次数: 0
Toward Freedom and Dignity: Comments on the Occasion of the Publication of the 12th Edition of the AAIDD Definition and Classification Manual. 走向自由和尊严:对《艾滋病定义和分类手册》第12版出版之际的评论。
IF 1.8 3区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2021-10-01 DOI: 10.1352/1934-9556-59.5.376
Michael L Wehmeyer

Dr. Wehmeyer provides a reflection on how the 12th edition AAIDD Definition, Diagnosis, Classification, and Systems of Supports Manual might move the field of intellectual disability forward.

Wehmeyer博士提供了关于第12版AAIDD定义、诊断、分类和支持系统手册如何推动智障领域向前发展的思考。
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引用次数: 0
National Dementia Capable Care Training: A Model Implementation and Evaluation. 国家痴呆能力护理培训:模式实施与评价。
IF 1.8 3区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2021-10-01 DOI: 10.1352/1934-9556-59.5.422
Yumi Shirai, Kathleen Bishop, Melissa Kushner

With a growing need for specialized training for direct caregivers and support staff of persons with intellectual and developmental disabilities (IDD) affected by dementia, the National Task Group on Developmental Disabilities and Dementia Practices (NTG) developed a comprehensive evidence-informed Dementia Capable Care Training (DCCT). To overcome the challenge of the training length and cost, and to extend its dissemination, the Sonoran Center developed a shorter version of the NTG-DCCT while retaining its core components, and implemented it in seven cities in the U. S. Southwest (N = 368). The pre- and post-training evaluation (n =260) demonstrated that the short version of the NTG-DCCT is effective in significantly improving participants' knowledge and/or confidence in dementia capable care. The follow-up semi-structured interviews of participants (n = 7) provide some insights.

随着对受痴呆症影响的智力和发育残疾者(IDD)的直接照护者和支持人员进行专业培训的需求日益增长,发育残疾和痴呆症实践国家工作组(NTG)制定了一项全面的循证痴呆能力护理培训(DCCT)。为了克服培训时间和成本的挑战,并扩大其传播范围,索诺兰中心在保留核心内容的同时开发了一个更短版本的NTG-DCCT,并在美国西南部的七个城市实施(N = 368)。训练前和训练后的评估(n =260)表明,短版本的NTG-DCCT在显著提高参与者对痴呆能力护理的知识和/或信心方面是有效的。对参与者的后续半结构化访谈(n = 7)提供了一些见解。
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引用次数: 1
Job Interview and Vocational Outcomes Among Transition-Age Youth Receiving Special Education Pre-Employment Transition Services. 接受特殊教育就业前过渡服务的过渡年龄青年的求职面试与职业结果。
IF 1.7 3区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2021-10-01 DOI: 10.1352/1934-9556-59.5.405
Matthew J Smith, Kari Sherwood, Shannon Blajeski, Brittany Ross, Justin D Smith, Neil Jordan, Leann Dawalt, Lauren Bishop, Marc S Atkins

Vocational outcomes among transition-age youth receiving special education services are critically poor and have only incrementally improved since the implementation of the Workforce Innovation Opportunity Act. Few studies highlight whether interviewing may be critical to obtaining vocational outcomes such as competitive employment or internships. This study evaluated vocational interviewing and outcomes among 656 transition-age youth receiving special education pre-employment transition services from 47 schools. Results suggest 20.8% of these youth were currently employed, and 88.8% of these employed youth interviewed prior to obtaining their job, which is higher than anecdotal evidence suggests and speaks to the importance of job interview skills as an intervention target for special education pre-employment transition services. We discuss the implications and directions for further study.

接受特殊教育服务的过渡年龄青年的职业成果非常差,而且自《劳动力创新机会法》实施以来只有逐步改善。很少有研究强调面试是否对获得职业成果(如竞争性就业或实习)至关重要。本研究对来自47所学校的656名接受特殊教育职前过渡服务的过渡年龄青少年进行了职业访谈和结果评估。结果表明,20.8%的青年目前有工作,88.8%的就业青年在找到工作之前接受了面试,这比轶事证据表明的要高,并且说明了面试技能作为特殊教育就业前过渡服务干预目标的重要性。最后讨论了进一步研究的意义和方向。
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引用次数: 0
Resúmenes al Español. 英文摘要。
IF 1.8 3区 医学 Q2 EDUCATION, SPECIAL Pub Date : 2021-10-01 DOI: 10.1352/1934-9556-59.5.438
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引用次数: 0
期刊
Intellectual and Developmental Disabilities
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