Pub Date : 2021-12-01DOI: 10.1352/1934-9556-59.6.487
Stephanie Spruit, Erik W Carter
The formation of friendships is central to the college experience. Yet little is known about the relationships young adults with intellectual and developmental disabilities form through their inclusive postsecondary education programs or maintain after graduation. We interviewed 12 current students and alumni about their social networks and their views regarding friendships. Participants shared their perspectives on the multiple meaning of friendship, the size and composition of their social networks, and the areas in which college has positively impacted their social lives. We offer recommendations for research and practice aimed at understanding and enhancing friendship formation within the inclusive higher education movement.
{"title":"Friendships Through Inclusive Postsecondary Education Programs: Perspectives of Current and Former Students With Intellectual and Developmental Disabilities.","authors":"Stephanie Spruit, Erik W Carter","doi":"10.1352/1934-9556-59.6.487","DOIUrl":"https://doi.org/10.1352/1934-9556-59.6.487","url":null,"abstract":"<p><p>The formation of friendships is central to the college experience. Yet little is known about the relationships young adults with intellectual and developmental disabilities form through their inclusive postsecondary education programs or maintain after graduation. We interviewed 12 current students and alumni about their social networks and their views regarding friendships. Participants shared their perspectives on the multiple meaning of friendship, the size and composition of their social networks, and the areas in which college has positively impacted their social lives. We offer recommendations for research and practice aimed at understanding and enhancing friendship formation within the inclusive higher education movement.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"59 6","pages":"487-501"},"PeriodicalIF":1.8,"publicationDate":"2021-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39652174","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-12-01DOI: 10.1352/1934-9556-59.6.446
Sydnie E Smith, Hannah P McCann, Richard C Urbano, Elisabeth M Dykens, Robert M Hodapp
This study assessed 155 healthcare providers, from nine disciplines, who work professionally with people with intellectual and developmental disabilities (IDD). Using a national, web-based survey, respondents rated their experience, comfort, and competence in treating individuals with different disability types and preferred methods of continuing education; respondents also provided suggestions for attracting others to work with the IDD population. Findings revealed that experiences, comfort, and competence were all higher concerning persons with autism spectrum disorder (ASD) and intellectual disability (ID), lower for those with deaf-blindness. Overall, levels of experience exceeded levels of comfort, which in turn exceeded levels of competence. The most helpful venues for continued training involved day-to-day contact with persons with IDD, which also characterized open-ended responses. Research and practical implications are discussed.
{"title":"Training Healthcare Professionals to Work With People With Intellectual and Developmental Disabilities.","authors":"Sydnie E Smith, Hannah P McCann, Richard C Urbano, Elisabeth M Dykens, Robert M Hodapp","doi":"10.1352/1934-9556-59.6.446","DOIUrl":"https://doi.org/10.1352/1934-9556-59.6.446","url":null,"abstract":"<p><p>This study assessed 155 healthcare providers, from nine disciplines, who work professionally with people with intellectual and developmental disabilities (IDD). Using a national, web-based survey, respondents rated their experience, comfort, and competence in treating individuals with different disability types and preferred methods of continuing education; respondents also provided suggestions for attracting others to work with the IDD population. Findings revealed that experiences, comfort, and competence were all higher concerning persons with autism spectrum disorder (ASD) and intellectual disability (ID), lower for those with deaf-blindness. Overall, levels of experience exceeded levels of comfort, which in turn exceeded levels of competence. The most helpful venues for continued training involved day-to-day contact with persons with IDD, which also characterized open-ended responses. Research and practical implications are discussed.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"59 6","pages":"446-458"},"PeriodicalIF":1.8,"publicationDate":"2021-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39652175","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-12-01DOI: 10.1352/1934-9556-59.6.459
Kristina Rios, Janeth Aleman-Tovar, Meghan Burke
Advocacy is often an expectation for parents of children with intellectual and developmental disabilities (IDD). However, little is known about how advocacy may impact parent well-being, including stress, family dynamics, and marital relationships. By exploring the effects of advocacy on well-being, interventions can be implemented to support both the advocacy and well-being of parents of children with IDD. To this end, the purpose of the study was to explore the pattern between positive and negative advocacy experiences of parents of children with IDD and the well-being of parents, families, and marriages. Semi-structured interviews were conducted with 38 parents of children with IDD. Regardless of the nature (i.e., positive, or negative) of the advocacy experience, participants reported that advocacy increased their stress. When the advocacy experience was positive, some participants reported improved family quality of life. Also, regardless of the nature of the advocacy experience, some participants reported feeling frustration within their marital relationships. Implications for future research and practice are discussed.
{"title":"Exploring Patterns of Advocacy and Well-Being of Parents of Children With Intellectual and Developmental Disabilities.","authors":"Kristina Rios, Janeth Aleman-Tovar, Meghan Burke","doi":"10.1352/1934-9556-59.6.459","DOIUrl":"https://doi.org/10.1352/1934-9556-59.6.459","url":null,"abstract":"<p><p>Advocacy is often an expectation for parents of children with intellectual and developmental disabilities (IDD). However, little is known about how advocacy may impact parent well-being, including stress, family dynamics, and marital relationships. By exploring the effects of advocacy on well-being, interventions can be implemented to support both the advocacy and well-being of parents of children with IDD. To this end, the purpose of the study was to explore the pattern between positive and negative advocacy experiences of parents of children with IDD and the well-being of parents, families, and marriages. Semi-structured interviews were conducted with 38 parents of children with IDD. Regardless of the nature (i.e., positive, or negative) of the advocacy experience, participants reported that advocacy increased their stress. When the advocacy experience was positive, some participants reported improved family quality of life. Also, regardless of the nature of the advocacy experience, some participants reported feeling frustration within their marital relationships. Implications for future research and practice are discussed.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"59 6","pages":"459-471"},"PeriodicalIF":1.8,"publicationDate":"2021-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39652173","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-11-23DOI: 10.1352/1934-9556-59.6.502
Elisa F. Velardo
It is my great honor to close the 145 meeting of the American Association on Intellectual and Developmental Disabilities (AAIDD) and speak to you on this year’s theme, ‘‘Addressing Workforce Challenges: Promising Trends in Policy, Practice, and Research.’’ When I first chose this topic, I could not have predicted the workforce challenges that would be presented to each of us over this past year due to the impact of Covid 19. I chose this year’s theme for a much more personal reason. I was experiencing the medical, clinical, administrative, and direct support workforce through a new lens. A lens that would further shape my appreciation and offer me insight into some possibilities for the future. I recall the day vividly. In May 2017, my dad was diagnosed with dementia. We went to his favorite restaurant for lunch to celebrate his 87 birthday with his siblings, and then onto the VA hospital for a medical appointment. He had been spending more and more time at my house and I was getting concerned about him being alone. He had recently had his driver’s license revoked and was focused on getting it back. He needed a letter from his physician. I knew that he would not be getting his license back. Dr. Lawrence knew us well. She had been his primary care physician at the VA for many years. She knew how he prided himself on being in excellent health. She worked to adjust his metformin as his diabetes improved as he aged. Without a word spoken between us, I knew that she could sense my concern. She listened to my dad and suggested we meet with the social worker who could assess his ability to drive. Though I knew that he was forgetting things, it was not until I witnessed him take the cognitive assessment test that I realized the extent of his impairment. He could not tell the time on the clock, he could not recall the current president, and he certainly could not remember 5 words ‘‘Person, woman, man, camera, TV.’’ However, he was charming and flirtatious, and I realized he was very proficient at deflecting the questions and pretending to understand. At that time, I had been providing services and supports to people with intellectual and developmental disabilities (IDD) for 31 years. I had been a direct support professional in large institutional settings and in individualized community-based settings. I had coordinated in-home and out-ofhome respite for families. I had been in leadership roles ranging from Program Director to Executive Director. I had studied public policy at the Heller School at Brandeis University and earned a Master’s in Management of Human Services with a focus on Intellectual and Developmental Disabilities. But in that moment, my roles reversed from professional to family member, from service provider to service recipient. In the following three years, I would assist my dad to utilize in-home supports, respite, adult day habilitation, occupational therapy, physical therapy, speech therapy, self-directed supports, environmental adapt
{"title":"Presidential Address: The Next Generation Workforce, A Call to Action","authors":"Elisa F. Velardo","doi":"10.1352/1934-9556-59.6.502","DOIUrl":"https://doi.org/10.1352/1934-9556-59.6.502","url":null,"abstract":"It is my great honor to close the 145 meeting of the American Association on Intellectual and Developmental Disabilities (AAIDD) and speak to you on this year’s theme, ‘‘Addressing Workforce Challenges: Promising Trends in Policy, Practice, and Research.’’ When I first chose this topic, I could not have predicted the workforce challenges that would be presented to each of us over this past year due to the impact of Covid 19. I chose this year’s theme for a much more personal reason. I was experiencing the medical, clinical, administrative, and direct support workforce through a new lens. A lens that would further shape my appreciation and offer me insight into some possibilities for the future. I recall the day vividly. In May 2017, my dad was diagnosed with dementia. We went to his favorite restaurant for lunch to celebrate his 87 birthday with his siblings, and then onto the VA hospital for a medical appointment. He had been spending more and more time at my house and I was getting concerned about him being alone. He had recently had his driver’s license revoked and was focused on getting it back. He needed a letter from his physician. I knew that he would not be getting his license back. Dr. Lawrence knew us well. She had been his primary care physician at the VA for many years. She knew how he prided himself on being in excellent health. She worked to adjust his metformin as his diabetes improved as he aged. Without a word spoken between us, I knew that she could sense my concern. She listened to my dad and suggested we meet with the social worker who could assess his ability to drive. Though I knew that he was forgetting things, it was not until I witnessed him take the cognitive assessment test that I realized the extent of his impairment. He could not tell the time on the clock, he could not recall the current president, and he certainly could not remember 5 words ‘‘Person, woman, man, camera, TV.’’ However, he was charming and flirtatious, and I realized he was very proficient at deflecting the questions and pretending to understand. At that time, I had been providing services and supports to people with intellectual and developmental disabilities (IDD) for 31 years. I had been a direct support professional in large institutional settings and in individualized community-based settings. I had coordinated in-home and out-ofhome respite for families. I had been in leadership roles ranging from Program Director to Executive Director. I had studied public policy at the Heller School at Brandeis University and earned a Master’s in Management of Human Services with a focus on Intellectual and Developmental Disabilities. But in that moment, my roles reversed from professional to family member, from service provider to service recipient. In the following three years, I would assist my dad to utilize in-home supports, respite, adult day habilitation, occupational therapy, physical therapy, speech therapy, self-directed supports, environmental adapt","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"1 1","pages":""},"PeriodicalIF":1.8,"publicationDate":"2021-11-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"44436328","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-11-23DOI: 10.1352/1934-9556-54.4.297
{"title":"Resúmenes al Español.","authors":"","doi":"10.1352/1934-9556-54.4.297","DOIUrl":"https://doi.org/10.1352/1934-9556-54.4.297","url":null,"abstract":"","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"54 4 1","pages":"297-8"},"PeriodicalIF":1.8,"publicationDate":"2021-11-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1352/1934-9556-54.4.297","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"47926128","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-10-26DOI: 10.1352/1934-9556-54.1.77
{"title":"Résumés en Français.","authors":"","doi":"10.1352/1934-9556-54.1.77","DOIUrl":"https://doi.org/10.1352/1934-9556-54.1.77","url":null,"abstract":"","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"54 1 1","pages":"77-8"},"PeriodicalIF":1.8,"publicationDate":"2021-10-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1352/1934-9556-54.1.77","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"42630673","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-10-01DOI: 10.1352/1934-9556-59.5.376
Michael L Wehmeyer
Dr. Wehmeyer provides a reflection on how the 12th edition AAIDD Definition, Diagnosis, Classification, and Systems of Supports Manual might move the field of intellectual disability forward.
{"title":"Toward Freedom and Dignity: Comments on the Occasion of the Publication of the 12th Edition of the AAIDD Definition and Classification Manual.","authors":"Michael L Wehmeyer","doi":"10.1352/1934-9556-59.5.376","DOIUrl":"https://doi.org/10.1352/1934-9556-59.5.376","url":null,"abstract":"<p><p>Dr. Wehmeyer provides a reflection on how the 12th edition AAIDD Definition, Diagnosis, Classification, and Systems of Supports Manual might move the field of intellectual disability forward.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"59 5","pages":"376-379"},"PeriodicalIF":1.8,"publicationDate":"2021-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39440309","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-10-01DOI: 10.1352/1934-9556-59.5.422
Yumi Shirai, Kathleen Bishop, Melissa Kushner
With a growing need for specialized training for direct caregivers and support staff of persons with intellectual and developmental disabilities (IDD) affected by dementia, the National Task Group on Developmental Disabilities and Dementia Practices (NTG) developed a comprehensive evidence-informed Dementia Capable Care Training (DCCT). To overcome the challenge of the training length and cost, and to extend its dissemination, the Sonoran Center developed a shorter version of the NTG-DCCT while retaining its core components, and implemented it in seven cities in the U. S. Southwest (N = 368). The pre- and post-training evaluation (n =260) demonstrated that the short version of the NTG-DCCT is effective in significantly improving participants' knowledge and/or confidence in dementia capable care. The follow-up semi-structured interviews of participants (n = 7) provide some insights.
{"title":"National Dementia Capable Care Training: A Model Implementation and Evaluation.","authors":"Yumi Shirai, Kathleen Bishop, Melissa Kushner","doi":"10.1352/1934-9556-59.5.422","DOIUrl":"https://doi.org/10.1352/1934-9556-59.5.422","url":null,"abstract":"<p><p>With a growing need for specialized training for direct caregivers and support staff of persons with intellectual and developmental disabilities (IDD) affected by dementia, the National Task Group on Developmental Disabilities and Dementia Practices (NTG) developed a comprehensive evidence-informed Dementia Capable Care Training (DCCT). To overcome the challenge of the training length and cost, and to extend its dissemination, the Sonoran Center developed a shorter version of the NTG-DCCT while retaining its core components, and implemented it in seven cities in the U. S. Southwest (N = 368). The pre- and post-training evaluation (n =260) demonstrated that the short version of the NTG-DCCT is effective in significantly improving participants' knowledge and/or confidence in dementia capable care. The follow-up semi-structured interviews of participants (n = 7) provide some insights.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"59 5","pages":"422-435"},"PeriodicalIF":1.8,"publicationDate":"2021-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39439232","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-10-01DOI: 10.1352/1934-9556-59.5.405
Matthew J Smith, Kari Sherwood, Shannon Blajeski, Brittany Ross, Justin D Smith, Neil Jordan, Leann Dawalt, Lauren Bishop, Marc S Atkins
Vocational outcomes among transition-age youth receiving special education services are critically poor and have only incrementally improved since the implementation of the Workforce Innovation Opportunity Act. Few studies highlight whether interviewing may be critical to obtaining vocational outcomes such as competitive employment or internships. This study evaluated vocational interviewing and outcomes among 656 transition-age youth receiving special education pre-employment transition services from 47 schools. Results suggest 20.8% of these youth were currently employed, and 88.8% of these employed youth interviewed prior to obtaining their job, which is higher than anecdotal evidence suggests and speaks to the importance of job interview skills as an intervention target for special education pre-employment transition services. We discuss the implications and directions for further study.
{"title":"Job Interview and Vocational Outcomes Among Transition-Age Youth Receiving Special Education Pre-Employment Transition Services.","authors":"Matthew J Smith, Kari Sherwood, Shannon Blajeski, Brittany Ross, Justin D Smith, Neil Jordan, Leann Dawalt, Lauren Bishop, Marc S Atkins","doi":"10.1352/1934-9556-59.5.405","DOIUrl":"10.1352/1934-9556-59.5.405","url":null,"abstract":"<p><p>Vocational outcomes among transition-age youth receiving special education services are critically poor and have only incrementally improved since the implementation of the Workforce Innovation Opportunity Act. Few studies highlight whether interviewing may be critical to obtaining vocational outcomes such as competitive employment or internships. This study evaluated vocational interviewing and outcomes among 656 transition-age youth receiving special education pre-employment transition services from 47 schools. Results suggest 20.8% of these youth were currently employed, and 88.8% of these employed youth interviewed prior to obtaining their job, which is higher than anecdotal evidence suggests and speaks to the importance of job interview skills as an intervention target for special education pre-employment transition services. We discuss the implications and directions for further study.</p>","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"59 5","pages":"405-421"},"PeriodicalIF":1.7,"publicationDate":"2021-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10732084/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39439234","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2021-10-01DOI: 10.1352/1934-9556-59.5.438
{"title":"Resúmenes al Español.","authors":"","doi":"10.1352/1934-9556-59.5.438","DOIUrl":"https://doi.org/10.1352/1934-9556-59.5.438","url":null,"abstract":"","PeriodicalId":47489,"journal":{"name":"Intellectual and Developmental Disabilities","volume":"59 5","pages":"438-439"},"PeriodicalIF":1.8,"publicationDate":"2021-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39439858","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}