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Breathing Together: Children Co-constructing Asthma Self-Management in the United States. 共同呼吸:美国儿童共同构建哮喘自我管理。
IF 1.5 4区 医学 Q2 ANTHROPOLOGY Pub Date : 2023-06-01 Epub Date: 2022-02-07 DOI: 10.1007/s11013-022-09766-5
Julie Spray, Jean Hunleth

Pediatric asthma management in the U.S. is primarily oriented around caregivers. As evident in policy, clinical literature and provider practices, this caregiver-centric approach assumes unidirectional transfer of practices and knowledge within particular relational configurations of physicians, caregivers, and children. Reflecting broader societal values and hierarchies, children are positioned as passive recipients of care, as apprentices for future citizenship, and as the responsibility of parents who will train them in the knowledge and labor of asthma management. These ideas, though sometimes contradictory, contribute to a systemic marginalization of children as participants in their health care, leaving a conceptual gap regarding children's inclusion in chronic illness management: what children's roles in their health care are or should be. We address this conceptual gap by asking, what does pediatric asthma management look like when we center children, rather than caregivers in our lens? We draw data from a study of asthma management in St. Louis, Missouri, and Gainesville, Florida, which included 41 caregivers, 24 children, and 12 health-care providers. By asking children to show us how they manage asthma, we find that children actively co-construct health practices within broader interdependencies of care and the structural constraints of childhoods.

美国的儿科哮喘管理主要以护理人员为中心。从政策、临床文献和医疗服务提供者的实践中可以看出,这种以护理者为中心的方法假定了在医生、护理者和儿童的特定关系配置中实践和知识的单向传递。为了反映更广泛的社会价值观和等级制度,儿童被定位为被动的护理接受者、未来公民的学徒,以及父母的责任,父母将培训他们哮喘管理的知识和劳动。这些观点虽然有时相互矛盾,但却导致儿童作为医疗保健的参与者被系统性地边缘化,从而在儿童参与慢性病管理方面留下了概念上的空白:儿童在医疗保健中的角色是什么或应该是什么。为了解决这一概念上的空白,我们提出了这样一个问题:当我们以儿童而非护理人员为中心时,儿科哮喘管理会是什么样子?我们从密苏里州圣路易斯市和佛罗里达州盖恩斯维尔市的一项哮喘管理研究中汲取了数据,其中包括 41 名护理人员、24 名儿童和 12 名医疗服务提供者。通过让儿童向我们展示他们是如何管理哮喘的,我们发现儿童在更广泛的护理相互依存关系和童年的结构限制中积极地共同构建健康实践。
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引用次数: 0
"As Long as I Got a Breath in My Body": Risk and Resistance in Black Maternal Embodiment. “只要我还有一口气”:黑人母性体现中的风险与抵抗。
IF 1.7 4区 医学 Q2 ANTHROPOLOGY Pub Date : 2023-06-01 DOI: 10.1007/s11013-022-09780-7
Sarah E Rubin, Joselyn Hines

"Mothering while black" in Cleveland, Ohio is a radical act. This highly segregated, highly unequal urban environment is replete with the chronic stressors that degrade well-being and diminish survival for Black mothers and their infants; specifically, a maternal mortality rate two and a half times that of their white counterparts and an infant mortality rate nearly three times that of infants born to white mothers. In the midst of such tragedy and disadvantage, Black mothers strive to love and care for their children in ways that mitigate the toxicity of structural racism. The seventeen pregnant and postpartum Black women in this ethnographic study describe transformational experiences with what we label "betterment:" whereby they center their children's perspective and needs, reconsider their social networks, and focus on the future with an unflinching understanding of the constraints of structural racism. Locating betterment alongside other examples of maternal embodiment and through the rich theoretical lens of Black feminist scholars these participant narratives suggest that the toxic effects of racism and the means to resist them are embodied by Black mothers. A nuanced understanding of Black motherhood disrupts public discourses of blame and responsibility that obscure our collective duty to dismantle structural racism.

俄亥俄州克利夫兰市的“黑人母亲”是一项激进的行动。这种高度隔离、高度不平等的城市环境充满了慢性压力源,降低了黑人母亲和她们的婴儿的福祉,减少了他们的生存;具体来说,产妇死亡率是白人的2.5倍,婴儿死亡率是白人母亲所生婴儿的近3倍。在这样的悲剧和劣势中,黑人母亲努力去爱和照顾自己的孩子,以减轻结构性种族主义的毒性。在这项人种学研究中,17名怀孕和产后的黑人妇女描述了我们称之为“改善”的转变经历:她们以孩子的观点和需求为中心,重新考虑自己的社交网络,并以对结构性种族主义约束的坚定理解为重点关注未来。通过黑人女权主义学者丰富的理论视角,这些参与者的叙述将改善与其他母性体现的例子放在一起,表明种族主义的有害影响和抵抗它们的手段都体现在黑人母亲身上。对黑人母亲身份的细致理解,扰乱了关于指责和责任的公共话语,这些话语模糊了我们消除结构性种族主义的集体义务。
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引用次数: 1
Food and Trauma: Anthropologies of Memory and Postmemory. 食物与创伤:记忆与后记忆人类学。
IF 1.7 4区 医学 Q2 ANTHROPOLOGY Pub Date : 2023-06-01 DOI: 10.1007/s11013-022-09785-2
Mattias Strand

Much has been written about the multifaceted significance of food and eating from an anthropological perspective; the same can be said about the role of food in collective identity construction and nation building. In contrast, the nexus of food, memory, psychological trauma, and disordered eating has been less explored. The aim of this interdisciplinary article is to synthesize available knowledge on this topic by engaging with research literature in fields such as food history, anthropology, sociology, and psychiatry as well as autobiographical works, cookbooks, etc. One main section of the article focuses on the role of food and cooking in exile and refuge. Another section deals with the role of food in the aftermath of historical trauma, whereas a final section discusses various works on disordered eating in the wake of traumatic experiences. In sum, the dual nature of food and cooking-at once concrete and abstract, material and symbolic-offers an arena in which ambivalent memories of trauma can take on tangible form. The concept of postmemory may be useful in understanding how food and cooking can function both as a vehicle and as a remedy for intergenerational trauma.

从人类学的角度来看,关于食物和饮食的多方面意义已经写了很多;食物在集体认同建构和国家建设中的作用也是如此。相比之下,食物、记忆、心理创伤和饮食失调之间的联系却很少被探索。这篇跨学科文章的目的是通过与食品史、人类学、社会学、精神病学以及自传作品、烹饪书等领域的研究文献相结合,综合有关该主题的现有知识。文章的一个主要部分侧重于食物和烹饪在流亡和避难中的作用。另一部分讨论了食物在历史创伤后的作用,而最后一部分讨论了创伤经历后饮食失调的各种作品。总之,食物和烹饪的双重本质——既具体又抽象,既物质性又象征性——提供了一个舞台,在这个舞台上,关于创伤的矛盾记忆可以呈现出有形的形式。后记忆的概念可能有助于理解食物和烹饪如何作为代际创伤的载体和补救措施。
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引用次数: 2
"For Me, 'Normality' is Not Normal": Rethinking Medical and Cultural Ideals of Midlife ADHD Diagnosis. “对我来说,‘正常’是不正常的”:重新思考中年ADHD诊断的医学和文化理想。
IF 1.7 4区 医学 Q2 ANTHROPOLOGY Pub Date : 2023-05-06 DOI: 10.1007/s11013-023-09825-5
Lior Tal, Yehuda C Goodman

According to psychiatry, Attention-Deficit/Hyperactivity Disorder (ADHD) is a chronic condition beginning in early life. Psychiatry advocates for early diagnosis to prevent comorbidities that may emerge in untreated cases. "Late"-diagnosis is associated with various hazards that might harm patients' lives and society. Drawing on fieldwork in Israel, we found that 'midlife-ADHDers,' as our informants refer to themselves, express diverse experiences including some advantages of being diagnosed as adults rather than as children. They share what it means to experience "otherness" without an ADHD diagnosis and articulate how being diagnosed "late" detached them from medical and social expectations and allowed some to nurture a unique ill-subjectivity, develop personal knowledge, and invent therapeutic interventions. The timeframe that psychiatry conceives as harmful has been, for some, a springboard to find their own way. This case allows us to rethink 'experiential time'-the meanings of timing and time when psychiatric discourse and subjective narratives intertwine.

根据精神病学,注意力缺陷/多动障碍(ADHD)是一种从生命早期开始的慢性疾病。精神病学提倡早期诊断,以防止在未经治疗的病例中可能出现的合并症。“晚期”诊断与可能危害患者生命和社会的各种危险有关。根据在以色列的实地调查,我们发现“中年多动症患者”(我们的调查对象这样称呼自己)表达了不同的经历,包括被诊断为成年人而不是儿童的一些优势。他们分享了在没有ADHD诊断的情况下体验“他者”的意义,并阐明了“晚”诊断如何将他们从医疗和社会期望中分离出来,并允许一些人培养一种独特的疾病主体性,发展个人知识,并发明治疗干预措施。对一些人来说,精神病学认为有害的时间框架是他们找到自己道路的跳板。这个案例让我们重新思考“经验时间”——当精神病学话语和主观叙事交织在一起时,时间和时间的意义。
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引用次数: 0
Corpses in Clinical Space and the Preposterous Temporality of Pandemic Care. 临床空间中的尸体与流行病护理的前期。
IF 1.5 4区 医学 Q2 ANTHROPOLOGY Pub Date : 2023-04-08 DOI: 10.1007/s11013-023-09817-5
Sheyda M Aboii

Articulations of the chasm between ideal and attainable forms of care surfacing throughout the coronavirus (COVID-19) pandemic have highlighted the proliferation of unceremonious deaths associated with inequitable conditions. This paper reconsiders the preposterous temporality of pandemic care by following corpses in and out of clinical space. Written from the perspective of a MD/PhD student's encounter with a corpse replacing the patient on the medicine ward prior to pandemic onset, this paper asks how corpses might interrupt narratives of clinical care. Sifting through Eugène Ionesco's 1954 play "Amédée," Édouard Glissant's rejection of the tragic heroine, Achille Mbembe's positing of viscerality as autopsy, and David Marriott's theorization of blackness as corpsing among other engagements, I conceptualize how corpses might refigure clinical spaces as preposterous realms wherein distinctions between a before and after falter. Considering the continuities between an apparent before and after, I argue that the contemporary concerns punctuating the pandemic as a unique period in time might not be as contemporary as they first appear. Taking cues from literary analysis and fictional works, I engage the corpse as a figure that prompts a rethinking of what might constitute ideal as well as failed care. I argue that corpses in clinical space signal a critique of the ideal narrative arc, one that centers the medical provider as heroine/hero in the midst of tragedy. Turning to the corpse as an interruptive figure, I ask what this dominant narrative might ultimately demand of its cast of characters-protégé, provider, and patient.

在整个冠状病毒(新冠肺炎)大流行期间,理想和可实现的护理形式之间的鸿沟凸显了与不公平条件相关的不确定死亡的激增。本文通过追踪尸体进出临床空间,重新思考了流行病护理的荒谬时间性。本文从一名医学博士/博士生在新冠疫情爆发前在病房里遇到一具尸体代替病人的角度出发,询问尸体如何打断临床护理的叙述。我仔细阅读了尤金·伊奥内斯科1954年的戏剧《Amédée》、埃杜亚德·格里桑对悲剧女主角的拒绝、阿希尔·姆本贝将内脏视为尸检的观点,以及大卫·马里奥特将黑人视为肥胖的理论等作品,我将尸体如何将临床空间重塑为荒谬的领域,在这些领域中,前后之间的区别会动摇。考虑到明显的前后之间的连续性,我认为,将疫情视为一个独特时期的当代担忧可能不像最初出现的那样具有时代性。从文学分析和虚构作品中得到线索,我将尸体作为一个人物,促使人们重新思考什么可能构成理想以及失败的护理。我认为,临床空间中的尸体标志着对理想叙事弧线的批判,这种叙事弧线以悲剧中的女英雄/英雄为中心。将尸体作为一个打断人的人物,我想知道这种主导叙事最终可能会对其角色阵容提出什么要求。
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引用次数: 0
What About Us? Experiences of Relatives Regarding Physician-Assisted Death for Patients Suffering from Mental Illness: A Qualitative Study. 我们怎么办?精神疾病患者家属对医师协助死亡的经验:一项质性研究。
IF 1.7 4区 医学 Q2 ANTHROPOLOGY Pub Date : 2023-03-01 DOI: 10.1007/s11013-021-09762-1
Rosalie Pronk, D L Willems, S van de Vathorst

Physician-assisted death (PAD) for patients suffering from mental illness is legally permitted in the Netherlands. Although patients' relatives are not entrusted with a legal role, former research revealed that physicians take into account the patient's social context and their well-being, in deciding whether or not to grant the request. However, these studies focussed on relatives' experiences in the context of PAD concerning patients with somatic illness. To date, nothing is known on their experiences in the context of PAD concerning the mentally ill. We studied the experiences of relatives with regard to a PAD request by patients suffering from mental illness. The data for this study were collected through 12 interviews with relatives of patients who have or had a PAD request because of a mental illness. We show that relatives are ambivalent regarding the patient's request for PAD and the following trajectory. Their ambivalence is characterised by their understanding of the wish to die and at the same time hoping that the patient would make another choice. Respondents' experiences regarding the process of the PAD request varied, from positive ('intimate') to negative ('extremely hard'). Some indicated that they wished to be more involved as they believe the road towards PAD should be a joint trajectory. To leave them out during such an important event is not only painful, but also harmful to the relative as it could potentially complicate their grieving process. Professional support during or after the PAD process was wanted by some, but not by all.

医生协助精神疾病患者死亡(PAD)在荷兰是合法的。虽然病人的亲属没有被委托承担法律责任,但以前的研究表明,医生在决定是否同意病人的请求时,会考虑病人的社会背景和他们的健康状况。然而,这些研究主要集中在患有躯体疾病的PAD患者的亲属经历。到目前为止,关于他们在PAD与精神疾病相关的背景下的经验,我们一无所知。我们研究了精神疾病患者的亲属对于PAD请求的经历。这项研究的数据是通过对12位因精神疾病而有或曾有PAD要求的患者亲属的访谈收集的。我们表明,家属是矛盾的关于病人的PAD的要求和以下轨迹。他们的矛盾心理表现在他们理解病人想死的愿望,同时又希望病人能做出另一种选择。受访者对PAD请求过程的体验各不相同,从积极(“亲密”)到消极(“极其困难”)。有些代表团表示,他们希望更多地参与,因为他们认为通往人民民主联盟的道路应该是一条共同的轨道。在如此重要的事件中把他们排除在外不仅是痛苦的,而且对亲属来说也是有害的,因为这可能会使他们的悲伤过程复杂化。在PAD过程中或之后,有些人需要专业支持,但不是所有人都需要。
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引用次数: 5
Nationalism, Authoritarianism, and Medical Mobilization in Post-revolutionary Egypt. 革命后埃及的民族主义、威权主义和医疗动员。
IF 1.7 4区 医学 Q2 ANTHROPOLOGY Pub Date : 2023-03-01 DOI: 10.1007/s11013-022-09802-4
Soha Bayoumi, Sherine Hamdy

In this article, we investigate the links between medical practice and expertise, on the one hand, and nationalist discourses, on the other, in the 2011 Egyptian uprising and the years that followed, which witnessed a consolidation of authoritarianism. We ask how it is that doctors, whose social capital in part rests on their being seen as "apolitical," played a significant role in countering consecutive regimes' acts of violence and denial. We trace the trajectory of the doctors' mobilization in the 2011 uprising and beyond and demonstrate how the doctors drew on their professional expertise and nationalist sentiment in their struggles against a hypernationalistic military state. Borrowing the ideas of immanence and transcendence from religious studies and philosophy, we argue that the doctors put forth an immanent vision of the nation as a force that is manifested in the lives of its citizens, in contrast with the State's transcendent vision of nationalism, in which the nation resides outside of and beyond citizens' lives. Relying on interviews and media analysis, we show how medicine has served as a site of awakening, conversion narratives, and building of bridges in a polarized society where the doctors were able to rely on their "neutral" expertise to present themselves as reliable witnesses, narrators, and actors.

在本文中,我们调查了医疗实践和专业知识之间的联系,一方面,在2011年埃及起义和随后的几年里,另一方面,民族主义话语,这见证了威权主义的巩固。我们想知道,医生的社会资本部分取决于他们被视为“非政治的”,他们是如何在对抗连续政权的暴力和否认行为中发挥重要作用的。我们追溯了2011年起义及之后医生动员的轨迹,并展示了医生如何利用他们的专业知识和民族主义情绪,与一个超民族主义的军事国家作斗争。借用宗教研究和哲学的内在性和超越性的思想,我们认为,医生提出了一种内在的国家愿景,作为一种力量,表现在公民的生活中,与国家的超越性的民族主义愿景形成鲜明对比,在这种愿景中,国家存在于公民的生活之外。通过采访和媒体分析,我们展示了医学如何在一个两极分化的社会中成为一个觉醒、转变叙事和建立桥梁的场所,在这个社会中,医生能够依靠他们“中立”的专业知识,将自己呈现为可靠的证人、叙述者和演员。
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引用次数: 3
Under Pressure: Living with Diabetes in Cairo. 压力之下:开罗的糖尿病患者生活。
IF 1.7 4区 医学 Q2 ANTHROPOLOGY Pub Date : 2023-03-01 DOI: 10.1007/s11013-021-09754-1
Mille Kjærgaard Thorsen

This article is based on 9 months of ethnographic fieldwork carried out in Cairo, Egypt during the years of 2015 and 2017 as part of a research project on the topic of type-2 diabetes. The article examines different understandings of the onset and treatment of type-2 diabetes across people in Cairo living with the condition and their healthcare providers. The article argues that those who are diagnosed with type-2 diabetes primarily relate their condition to experiences of ḍaghṭ (stress or pressure), above any other risk factors. This understanding clashes with healthcare providers who instead link type-2 diabetes primarily to obesity. The article exemplifies these different understandings of type-2 diabetes by drawing on the topic of food specifically, showing how the intake of food is not perceived by those diagnosed with type-2 diabetes as related to their condition in similar ways as is the case among their healthcare providers. As opposed to relating type-2 diabetes to matters of abundance and an excess consumption of food and calories, those in Cairo who are diagnosed with type-2 diabetes instead relate their condition to matters of deprivation and scarcity-as well as the experiences of ḍaghṭ brought on by such potential deprivation and scarcity.

本文基于2015年至2017年期间在埃及开罗进行的为期9个月的民族志田野调查,这是2型糖尿病主题研究项目的一部分。本文研究了开罗2型糖尿病患者及其医疗保健提供者对2型糖尿病发病和治疗的不同理解。这篇文章认为,那些被诊断患有2型糖尿病的人主要将他们的病情与ḍaghṭ(压力或压力)的经历联系起来,而不是其他任何风险因素。这种理解与医疗保健提供者将2型糖尿病主要与肥胖联系起来的观点相冲突。这篇文章举例说明了这些对2型糖尿病的不同理解,具体地通过食物的主题,展示了被诊断为2型糖尿病的人如何不认为食物的摄入与他们的病情有类似的关系,而在他们的医疗保健提供者中也是如此。与将2型糖尿病与食物和卡路里的丰富和过量消耗联系起来相反,开罗那些被诊断为2型糖尿病的人将他们的病情与剥夺和匮乏联系起来——以及由这种潜在的剥夺和匮乏带来的ḍaghṭ经历。
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引用次数: 0
"We All Go a Little Mad Sometimes:" Representations of Insanity in the Films of Alfred Hitchcock. “我们有时都有点疯狂”:阿尔弗雷德·希区柯克电影中精神错乱的表现。
IF 1.7 4区 医学 Q2 ANTHROPOLOGY Pub Date : 2023-03-01 DOI: 10.1007/s11013-022-09789-y
Katarzyna Szmigiero

Themes connected with mental illness and psychiatry frequently feature in the works of Alfred Hitchcock. Some critics believe it is a reflection of the director's own mental health issues. Yet, it is more likely that Hitchcock was inspired by the Gothic tradition and the legacy of Edgar Allan Poe as well as the popularity of psychoanalysis in post war U.S. culture. This article looks at Hitchcock's feature-length films in order to analyse the representation of psychopathic characters as perpetrators of crime and the disturbed mother-child relationships which may lead to mental aberrations. Furthermore, it presents the ways in which Hitchcock subtly undermines popular conceptions about the relationship between mental illness and crime, and the role of psychiatry in explaining unusual behaviour.

与精神疾病和精神病学相关的主题经常出现在阿尔弗雷德·希区柯克的作品中。一些批评人士认为,这反映了导演自己的心理健康问题。然而,希区柯克更有可能受到哥特传统和埃德加·爱伦·坡的遗产以及战后美国文化中精神分析的流行的启发。本文着眼于希区柯克的长篇电影,以分析精神病人物作为罪犯的表现以及可能导致精神失常的母子关系。此外,它还展示了希区柯克如何巧妙地破坏了关于精神疾病和犯罪之间关系的流行观念,以及精神病学在解释异常行为方面的作用。
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引用次数: 0
The Work of Illness in the Aftermath of a 'Surpassing Disaster': Medical Humanities in the Middle East and North Africa. 一场“超越灾难”之后的疾病工作:中东和北非的医学人文。
IF 1.7 4区 医学 Q2 ANTHROPOLOGY Pub Date : 2023-03-01 DOI: 10.1007/s11013-023-09818-4
Omnia El Shakry
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引用次数: 0
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Culture Medicine and Psychiatry
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