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'A Smaller Mask': Freedom and Authenticity in Autistic Space. 更小的面具》:自闭症空间中的自由与真实。
IF 1.5 4区 医学 Q2 ANTHROPOLOGY Pub Date : 2023-09-01 Epub Date: 2022-06-26 DOI: 10.1007/s11013-022-09794-1
Ben Belek

Autscape is an autistic-led conference, organised annually in varying locations around England. Governed by a strict set of rules and regulations, Autscape is a social and spatial setup explicitly devised to accommodate the tendencies, sensitivities, and preferences of people on the autism spectrum. It is a design, in other words-as organisers and participants alike often profess-for an altogether autistic space. The uniqueness of the event, and consequently its value to anthropological theory, lies in the shared imagination of the setting by those who inhabit it as one in which neurotypical masks, otherwise worn daily in keeping with hegemonic society's expectation of conformity, can finally be removed. I introduce the concept of un-festival as a means of depicting this event, similar to festival in its goals of defiance and inversion, but different from-and in important ways, opposite to-festival in its style and architecture, in the dispositions it encourages and mobilises, and in its potential implications. The un-festival offers a powerful comment on this moment in history, whereby masks are no longer seen as an item that affords freedom, but as one that stifles it. While Autscape participants remain doubtful as to the actual effect of this event on neurotypical society, they do nevertheless express a desire that this project will have some longstanding effects. That once a space has been designed for autistic people that considers their specific needs and tendencies, autism may then finally cease to be interpreted through a neuro-normative prism and freed to be understood in autistic people's own terms.

Autscape 是一个由自闭症患者主导的会议,每年在英格兰的不同地点举办。Autscape 有一套严格的规则和条例,是一种社交和空间设置,明确设计用于适应自闭症谱系人士的倾向、敏感性和偏好。换句话说,正如组织者和参与者经常宣称的那样,这是一个完全自闭症空间的设计。该活动的独特性,以及它对人类学理论的价值,就在于居住在其中的人们对这一环境的共同想象,在这一环境中,神经症患者的面具终于可以摘下了,否则他们每天都要戴着这些面具,以符合霸权社会对一致性的期望。我提出了 "非节日 "的概念,以此来描绘这一事件。"非节日 "与 "节日 "的目标相似,都是为了反抗和反转,但在风格和建筑上、在鼓励和调动的倾向上,以及在潜在的影响上,"非节日 "都与 "节日 "不同,而且在某些重要方面,"非节日 "与 "节日 "截然相反。在这一历史时刻,面具不再被视为赋予自由的物品,而是被视为扼杀自由的物品。虽然 Autscape 的参与者仍然对这一活动对神经畸形社会的实际影响心存疑虑,但他们确实表达了希望这一项目能产生一些长期影响的愿望。一旦为自闭症患者设计了一个考虑到他们特殊需求和倾向的空间,那么自闭症最终可能就不再被神经规范棱镜所解释,而是被解放出来,以自闭症患者自己的方式来理解。
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引用次数: 0
Organized Care as Antidote to Organized Violence: An Engaged Clinical Ethnography of the Los Angeles County Jail System. 有组织的护理作为有组织暴力的解毒剂:洛杉矶县监狱系统的临床人种志。
IF 1.7 4区 医学 Q1 Social Sciences Pub Date : 2023-06-30 DOI: 10.1007/s11013-023-09827-3
Jeremy Levenson, Shamsher Samra

The field of medical action extends beyond the clinical encounter. Rather, clinical encounters are organized by wider regimes of governance and expertise, and broader geographies of care, abandonment and violence. Clinical encounters in penal institutions condense and render visible the fundamental situatedness of all clinical care. This article considers the complexity of clinical action in carceral institutions and their wider geographies through an examination of the crisis of mental health care in jails, an issue of significant public concern in the United States and much of the world. We present findings from our engaged, collaborative clinical ethnography, which was informed by and seeking to inform already existing collective struggles. Revisiting the concept of "pragmatic solidarity" (Farmer in Partner to the poor: a Paul Farmer reader, University of California Press, Berkeley, 2010) in an era of "carceral humanitarianism" (Gilmore in Futures of Black Radicalism, Verso, New York, 2017, see also Kilgore in Repackaging mass incarceration, Counterpunch, June 6-8, http://www.counterpunch.org/2014/06/06/repackaging-mass-incarceration/ , 2014), we draw on theorists who consider prisons to be institutions of "organized violence" (Gilmore and Gilmore in: Heatherton and Camp (eds) Policing the planet: why the policing crisis led to Black lives matter, Verso, New York, 2016). We argue that clinicians may have an important role in joining struggles for "organized care" that can counter institutions of organized violence.

医疗行动的领域超出了临床接触。相反,临床接触是由更广泛的管理和专业知识制度以及更广泛的护理、遗弃和暴力地理区域组织的。刑罚机构的临床接触浓缩并使所有临床护理的基本情况可见。本文通过对监狱精神卫生保健危机的考察,考虑了监狱机构临床行动的复杂性及其更广泛的地理位置,这是美国和世界许多地区公众关注的一个重大问题。我们展示了我们参与的、合作的临床人种学的发现,这些发现是由已经存在的集体斗争提供的,并试图为其提供信息。重新审视“务实团结”的概念(农民与穷人合作;在一个“监狱人道主义”的时代(吉尔摩《黑人激进主义的未来》,纽约Verso, 2017年,另见基尔戈《重新包装大规模监禁》,《反击》,6月6日至8日,http://www.counterpunch.org/2014/06/06/repackaging-mass-incarceration/, 2014年),我们借鉴了认为监狱是“有组织暴力”机构的理论家(吉尔摩和吉尔摩《希瑟顿和坎普》(主编)治安管理地球:为什么警察危机导致黑人生命重要,Verso,纽约,2016)。我们认为,临床医生可能在加入“有组织护理”的斗争中发挥重要作用,这些斗争可以对抗有组织的暴力机构。
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引用次数: 1
Senses of Touch: The Absence and Presence of Touch in Health Care Encounters of Patients with Mental Illness. 触觉:精神疾病患者在医疗护理中的触觉缺失与存在。
IF 1.7 4区 医学 Q1 Social Sciences Pub Date : 2023-06-01 DOI: 10.1007/s11013-022-09770-9
Iben Emilie Christensen, Mette Bech Risør, Lone Grøn, Susanne Reventlow

Touch is a fundamental sense and the most unexplored of the five senses, despite its significance for everything we do in relation to ourselves and others. Studies have shown that touch generates trust, care and comfort and is essential for constituting the body. Based on ethnographic fieldwork, this study explores the absence and presence of touch in interactions between people with mental illness and professionals, in health care encounters with general practitioners, neurologists and physiotherapists, as well as masseurs. We found that touch and physical examination of patients with mental illness is absent in health care encounters, leaving the patients with feelings of being out of place, misunderstood, less socially approved and less worthy of trust. Drawing on Honneth and Guenther, we conclude that touch and being touched is an essential dimension of recognition-both of the patients' bodily sensations and symptoms and of them as human beings, detached from the psychiatric label-as well as contributing to the constitution of self and personhood. These findings confirm that touch works as an existential hinge that affirms a connection between the patient, the body and others and gives a sense of time, space and existence.

触觉是一种基本的感觉,也是五种感觉中最未被探索的,尽管它对我们所做的与自己和他人有关的一切都很重要。研究表明,触摸产生信任、关怀和舒适,是构成身体的必要条件。基于民族志的田野调查,本研究探讨了在精神疾病患者与专业人员的互动中,在与全科医生、神经科医生、物理治疗师以及按摩师的卫生保健接触中,触摸的缺失和存在。我们发现,精神疾病患者的触摸和身体检查在医疗保健中缺席,让患者感到格格不入,被误解,不被社会认可,不值得信任。根据Honneth和Guenther的研究,我们得出结论,触摸和被触摸是认知的一个重要维度——无论是对病人的身体感觉和症状,还是对他们作为脱离精神病学标签的人,都是如此——同时也有助于自我和人格的构成。这些发现证实,触摸作为一种存在的铰链,确认了患者、身体和他人之间的联系,并赋予了时间、空间和存在感。
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引用次数: 1
Experiences of Mothers Who Relinquished Their Child for Adoption in Pakistan: A Qualitative Study. 巴基斯坦弃婴母亲的经验:一项质性研究。
IF 1.7 4区 医学 Q1 Social Sciences Pub Date : 2023-06-01 DOI: 10.1007/s11013-022-09773-6
Aalia Gulzar, Faiza Safdar

The literature suggests long-term consequences and lack of support for birthmothers following relinquishment of their child for adoption (Memarnia in Listening to the experience of birth mothers whose children have been taken into care or adopted, 2014). But there was not any work done to study in-depth experiences of birthmothers after giving away their child in Pakistan. So, the purpose of the present study was to explore the experiences of mothers who relinquished their child for adoption. As the present study was intended to explore lived experiences of a particular group, the phenomenological research design was used to conduct this qualitative study. An interview protocol was devised to explore the experiences of birthmothers. The sample was comprised of five birthmothers who relinquished their child for adoption and fulfilled the criteria. Semi-structured interviews were conducted with the birthmothers, and all the interviews were audio-recorded and transcribed before analysis. Interpretive Phenomenological Analysis (IPA) was used to interpret the transcripts of interviews. Further, data verification was done through peer scrutiny, by debriefing sessions with the supervisor, and enriches the description of the phenomenon. Four main themes were emerged: Reasons to Relinquish, Psychological Distress, Coping Strategies, and Disenfranchised Grief. The study present that the experience of relinquishment has a negative impact on birthmother and highlights the need for proper measures to regulate the process of adoption and involvement of psychologists during the process of adoption. Moreover, it stresses the need for acknowledgment of the experience and psychological services for birthmothers who relinquish their child.

文献表明,在放弃孩子被收养后,生母会受到长期的影响和缺乏支持(《倾听孩子被照顾或收养的生母的经历》,2014年)。但是,在巴基斯坦,没有任何深入研究生母在放弃孩子后的经历的工作。因此,本研究的目的是探索那些放弃孩子被收养的母亲的经历。由于本研究旨在探讨特定群体的生活经验,本研究采用现象学研究设计进行定性研究。制定了一项访谈协议,以探讨生母的经历。样本由五位生母组成,她们放弃了自己的孩子供人收养,并符合标准。对生母进行半结构化访谈,所有访谈录音并抄写后进行分析。采用解释现象学分析(IPA)对访谈笔录进行解释。此外,数据核查是通过同行审查,通过与主管的汇报会议进行的,并丰富了对这一现象的描述。主要有四个主题:放弃的理由、心理困扰、应对策略和被剥夺权利的悲伤。研究表明,放弃的经历对生母有负面影响,并强调需要采取适当措施来规范收养过程,并在收养过程中让心理学家参与。此外,它强调有必要承认放弃孩子的生母的经历和心理服务。
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引用次数: 1
Does "Susto" Really Exist? Indigenous Knowledge and Fright Disorders Among Q'eqchi' Maya in Belize. “Susto”真的存在吗?伯利兹Q'eqchi'玛雅人的土著知识和恐惧障碍。
IF 1.7 4区 医学 Q1 Social Sciences Pub Date : 2023-06-01 DOI: 10.1007/s11013-022-09777-2
James B Waldram, Andrew R Hatala

Susto is one of the most common disorders referenced in the medical anthropological and cultural psychiatric literature. This article questions if "susto" as understood in cultural psychiatric terms, especially in the Diagnostic and Statistical Manual of the American Psychiatric Association (DSM), is in fact a single "cultural concept of distress." There is extensive cross-cultural and intracultural variability regarding fright-related disorders in the ethnographic literature. What is often labeled "susto" may be in reality a variety of distinct disorders, or lacking in the two signature components found in the cultural psychiatric literature: the existence of a "fright," and subsequent soul loss. There has been significant polysemic and geographical drift in the idiom label, the result of colonialism in Mesoamerica, which has overlayed but not necessarily supplanted local knowledge. Using data from fifteen years of research with Q'eqchi' (Maya) healers and their patients, we demonstrate how important variability in signs, symptoms, diagnosis, treatment, and prognosis of fright-related disorders renders any simple declaration that this is a singular "susto" problematic. We argue for a careful consideration of the knowledge of Indigenous medical specialists charged with treating fright-related disorders and against the inclination to view variability as insignificant. Such consideration suggests that Indigenous forms of fright-related disorder are not susto as presented commonly in the DSM and cultural psychiatric literature.

Susto是医学人类学和文化精神病学文献中最常见的疾病之一。这篇文章质疑,在精神病学文化术语中,特别是在美国精神病学协会的诊断和统计手册(DSM)中,“susto”是否实际上是一个单一的“痛苦文化概念”。在民族志文献中,关于与恐惧有关的疾病存在广泛的跨文化和文化差异。通常被贴上“susto”标签的东西实际上可能是各种不同的疾病,或者缺乏文化精神病学文献中发现的两个标志性组成部分:“恐惧”的存在,以及随后的灵魂丧失。在中美洲殖民主义的影响下,习语标签出现了明显的多义性和地理漂移,覆盖了当地知识,但不一定取代了当地知识。通过对Q'eqchi'(玛雅)治疗师和他们的病人15年的研究数据,我们证明了与恐惧相关的疾病在体征、症状、诊断、治疗和预后方面的可变性是多么重要,这使得任何简单地宣称这是一个单一的“susto”问题。我们主张仔细考虑负责治疗与恐惧有关的疾病的土著医学专家的知识,反对认为可变性无关紧要的倾向。这样的考虑表明,土著形式的恐惧相关障碍并不像DSM和文化精神病学文献中普遍呈现的那样。
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引用次数: 2
"Guys with Big Muscles Have Misplaced Priorities": Masculinities and Muscularities in Young South Korean Men's Body Image. “肌肉发达的男人有错误的优先权”:年轻韩国男性的身体形象中的男子气概和肌肉。
IF 1.7 4区 医学 Q1 Social Sciences Pub Date : 2023-06-01 DOI: 10.1007/s11013-022-09784-3
Lawrence Monocello

Men's body image is an issue of increasing importance as related illnesses continue to grow in prevalence around the world. However, cross-cultural attention to men's body image experiences has been relatively understudied. Based on data derived from cognitive anthropological methods of cultural domain analysis, I develop the concept of "muscularities" to more effectively examine the expectations inherent in multifarious models of body image men continuously navigate. Related to but distinct from "masculinities"-the recognition of culture-bound hierarchies of ways of doing-being a man-"muscularities" attends to the culturally particular ways in which muscles are conceived and evaluated as indices of socioeconomic status, intelligence, social skills, and professionalism, to name a few. Young South Korean men's experiences of chan'gŭnyuk ("small muscle") and manŭn kŭnyuk ("large muscle") challenge universalist assumptions about the kinds of muscles people value in global perspective, demonstrate the necessity of recognizing multiple muscularities in research, and encourage new directions of inquiry that attend to the consequences of variable embodiments of muscularities.

随着相关疾病在全球范围内的流行,男性的身体形象日益成为一个重要的问题。然而,跨文化关注男性身体形象体验的研究相对不足。基于来自文化领域分析的认知人类学方法的数据,我发展了“肌肉”的概念,以更有效地检查男性不断导航的各种身体形象模型中固有的期望。“肌肉”与“男子气概”有关,但又不同于“男子气概”——承认作为一个男人的行为方式受文化限制的等级制度——“肌肉”关注的是文化上特定的方式,在这种方式中,肌肉被视为社会经济地位、智力、社交技能和专业精神等指标。年轻的韩国男性在chan'gŭnyuk(“小肌肉”)和manŭn kŭnyuk(“大肌肉”)上的经历挑战了人们在全球视野中对肌肉类型的普遍看法,证明了在研究中认识到多种肌肉的必要性,并鼓励了新的研究方向,即关注肌肉的不同表现形式的后果。
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引用次数: 2
The New ICD-11 Prolonged Grief Disorder Guidelines in Japan: Findings and Implications from Key Informant Interviews. 日本新的ICD-11延长悲伤障碍指南:来自关键信息提供者访谈的发现和含义。
IF 1.7 4区 医学 Q1 Social Sciences Pub Date : 2023-06-01 DOI: 10.1007/s11013-022-09781-6
Clare Killikelly, Anna Hasenöhrl, Eva-Maria Stelzer, Andreas Maercker

Prolonged grief disorder (PGD) is a new mental health disorder, recently introduced in the International Classification of Diseases (ICD-11), World Health Organization Classification of Diseases (WHO). The new ICD-11 guidelines reflect an emerging wave of interest in the global applicability of mental disorders. However, the selection of diagnostic core features in different cultural contexts has yet to be determined. Currently, there is debate in the field over the global applicability of these guidelines. Using semi-structured interviews with 14 key informants, we explored the acceptability of ICD-11 guidelines for PGD according to Japanese health professionals as key informants. The interviews revealed symptoms of grief possibly missing in the ICD-11 PGD guidelines including somatization and concepts such as hole in the heart. Additionally, sociocultural barriers such as stigma and beliefs about the social desirability of emotions may challenge patients' and clinicians' acceptance of the new ICD-11 criteria.

长期性悲伤障碍(PGD)是最近被纳入《国际疾病分类》(ICD-11)、《世界卫生组织疾病分类》(WHO)的一种新的精神健康障碍。新的ICD-11指南反映了对精神障碍全球适用性的新兴趣浪潮。然而,在不同的文化背景下,诊断核心特征的选择尚未确定。目前,该领域对这些准则的全球适用性存在争议。通过对14名关键信息提供者的半结构化访谈,我们探讨了作为关键信息提供者的日本卫生专业人员对ICD-11 PGD指南的可接受性。访谈揭示了ICD-11 PGD指南中可能遗漏的悲伤症状,包括躯体化和心脏穿孔等概念。此外,社会文化障碍,如耻辱感和对情绪的社会可取性的信念,可能会挑战患者和临床医生对新的ICD-11标准的接受。
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引用次数: 2
Minding our Minds: Obsessive-Compulsiveness, Psychiatry, and Psychology. 注意我们的思想:强迫症,精神病学和心理学。
IF 1.7 4区 医学 Q1 Social Sciences Pub Date : 2023-06-01 DOI: 10.1007/s11013-022-09767-4
Lawrence D Blum

Obsessive-compulsive features are commonly found in high-achieving people including psychiatrists, psychologists, and scientists. These traits have a substantial but unrecognized cultural influence on psychiatric and psychological science and practice. This article reviews obsessive-compulsive mechanisms and discusses the ways they both promote and impede psychiatric and psychological science and practice. It examines them in relation to two of the dominant psychiatric and psychological paradigms of our era, the Diagnostic and Statistical Manual (DSM), and Cognitive-Behavioral Therapy. Finally, the article suggests that better awareness of our collective obsessive-compulsive tendencies can facilitate a cultural shift toward a broader, more useful science of mind and brain, as well as therapies informed by more comprehensive scientific understanding.

强迫性特征常见于高成就人士,包括精神病学家、心理学家和科学家。这些特征对精神病学和心理科学和实践产生了实质性但未被认识到的文化影响。这篇文章回顾了强迫症的机制,并讨论了它们促进和阻碍精神病学和心理科学与实践的方式。它将它们与我们这个时代两种主要的精神病学和心理学范式——诊断与统计手册(DSM)和认知行为疗法——联系起来进行检验。最后,这篇文章指出,更好地认识我们的集体强迫症倾向,可以促进文化向更广泛、更有用的心灵和大脑科学的转变,以及通过更全面的科学理解提供的治疗方法。
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引用次数: 0
Hallucinations and Hallucinogens: Psychopathology or Wisdom? 幻觉和致幻剂:精神病理学还是智慧?
IF 1.7 4区 医学 Q1 Social Sciences Pub Date : 2023-06-01 DOI: 10.1007/s11013-022-09814-0
José Carlos Bouso, Genís Ona, Maja Kohek, Rafael G Dos Santos, Jaime E C Hallak, Miguel Ángel Alcázar-Córcoles, Joan Obiols-Llandrich

Hallucinations are currently associated almost exclusively with psychopathological states. While it is evident that hallucinations can indicate psychopathology or neurological disorders, we should remember that hallucinations also commonly occur in people without any signs of psychopathology. A similar case occurs in the case of hallucinogenic drugs, which have been long associated with psychopathology and insanity. However, during the last decades a huge body of research has shown that certain kinds of hallucinations, exerted by hallucinogenic drugs, may serve to improve mental health. We propose that, in light of historical, epidemiological, and scientific research, hallucinations can be better characterized as a common phenomenon associated sometimes with psychopathology but also with functional and even beneficial outcomes. In the last sections of the manuscript, we extend our argument, suggesting that hallucinations can offer a via regia to knowledge of the mind and the world. This radical shift in the cultural interpretation of hallucinations could have several implications for fields such as drug policy, civil law, and psychiatry, as well as for the stigma associated with mental disorders.

目前,幻觉几乎完全与精神病理状态有关。虽然很明显,幻觉可以表明精神病理或神经障碍,但我们应该记住,幻觉也通常发生在没有任何精神病理迹象的人身上。类似的情况发生在致幻剂的情况下,长期以来,它一直与精神病理和精神错乱有关。然而,在过去的几十年里,大量的研究表明,某些由致幻剂引起的幻觉可能有助于改善心理健康。我们建议,根据历史、流行病学和科学研究,幻觉可以被更好地描述为一种常见现象,有时与精神病理有关,但也与功能甚至有益的结果有关。在手稿的最后部分,我们扩展了我们的论点,认为幻觉可以提供通往心灵和世界知识的途径。这种对幻觉的文化解释的根本转变可能会对药物政策、民法和精神病学等领域产生影响,也会对与精神障碍有关的耻辱产生影响。
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引用次数: 2
The Evolving Culture Concept in Psychiatric Cultural Formulation: Implications for Anthropological Theory and Psychiatric Practice. 精神病学文化建构中的文化概念演变:对人类学理论和精神病学实践的启示。
IF 1.7 4区 医学 Q1 Social Sciences Pub Date : 2023-06-01 DOI: 10.1007/s11013-023-09821-9
Neil Krishan Aggarwal

For thirty years, psychiatrists and anthropologists have collaborated to improve the validity of psychiatric diagnosis. This collaboration has produced the DSM-IV Outline for Cultural Formulation (OCF) and the DSM-5 Cultural Formulation Interview (CFI). Nonetheless, some anthropologists have critiqued the concept of culture in DSM-5 as too focused on patient meanings and not on clinician practices. This article traces the evolution of the culture concept from DSM-IV through DSM-5-TR by analyzing publications from the American Psychiatric Association on the OCF and CFI alongside scholarship in psychiatry and anthropology. DSM-IV relied on a culture concept of coherent ethnic communities sharing coherent cultures, primarily for minoritized ethnoracial individuals in the United States. Changing demographics and newer immigration patterns around the world deminoritized the culture concept for DSM-5. After George Floyd's death and demands for social justice, the culture concept in DSM-5-TR emphasized social structures. The article proposes an intersubjective model of culture through which patients and clinicians work through similarities and differences. It recommends a revised formulation that attends to clinician practices such as communicating, diagnosing, recommending treatments, and documenting, beyond collecting patient meanings. It also raises the question of whether an intersubjective model of culture prompts reconsiderations of culture-related text in other sections of the DSM. The social sciences can redirect attention to the clinician's culture of biomedicine to close patient health disparities.

三十年来,精神病学家和人类学家一直在合作提高精神病诊断的有效性。这一合作产生了DSM-IV文化提纲(OCF)和DSM-5文化提纲访谈(CFI)。尽管如此,一些人类学家批评DSM-5中的文化概念过于关注患者的意义,而不是临床医生的实践。本文通过分析美国精神病学协会关于OCF和CFI的出版物以及精神病学和人类学的奖学金,追溯了从DSM-IV到DSM-5-TR的文化概念的演变。DSM-IV依赖于一个文化概念,即连贯的民族社区共享连贯的文化,主要针对美国的少数民族个体。世界各地不断变化的人口结构和较新的移民模式使DSM-5的文化概念减少。在弗洛伊德去世和社会正义的要求之后,DSM-5-TR中的文化概念强调社会结构。本文提出了一种主体间文化模型,通过这种模型,患者和临床医生可以通过异同进行工作。它建议一个修订后的配方,除了收集患者的含义外,还应关注临床医生的实践,如沟通、诊断、推荐治疗和记录。它还提出了一个问题,即文化的主体间性模型是否会促使人们重新考虑DSM其他部分中与文化相关的文本。社会科学可以将注意力转移到临床医生的生物医学文化上,以缩小患者的健康差距。
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引用次数: 1
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Culture Medicine and Psychiatry
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