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The fertility timing gap: the intended and real timing of childbirth. 生育时间差距:预期生育时间和实际生育时间。
IF 1.5 3区 社会学 Q1 Medicine Pub Date : 2024-05-01 Epub Date: 2024-02-15 DOI: 10.1017/S002193202400004X
Jitka Slabá, Jiřina Kocourková, Anna Šťastná

The fertility gap, which indicates the difference between the planned and actual number of children born, can be explained by the shift in parenthood to older ages and is associated with the non-attainment of one's intended reproductive plans. This paper focuses on the gap in the timing of entry into parenthood, i.e. between the planned and actual age at the birth of the first child. The study is based on data from the Women 2016 survey which re-interviewed women of fertile age from the second wave of the Czech Generations & Gender Survey conducted in 2008. At the population level, the fertility timing gap differs across generations. While for Czech women born between 1966 and 1971 the planned age exceeded the actual observed age by one year, the realisation of fertility occurred two years later than planned for the youngest generation (1983-1990) included in the study. At the individual level, the later-than-planned realisation of fertility was found to be related primarily to partner-related factors.

生育率差距是指计划生育子女数与实际生育子女数之间的差距,其原因是生育子女的年龄偏大,并与未实现预期生育计划有关。本文重点研究了生育时间上的差距,即计划生育年龄与实际生育年龄之间的差距。研究基于 2016 年妇女调查的数据,该调查对 2008 年捷克世代与性别调查第二波的育龄妇女进行了重新访谈。在人口层面,各代人的生育时间差距有所不同。1966 年至 1971 年间出生的捷克妇女的计划生育年龄比实际观察年龄高出一岁,而研究中最年轻的一代(1983 年至 1990 年)的生育实现时间比计划晚了两年。在个人层面上,晚于计划的生育率主要与伴侣相关因素有关。
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引用次数: 0
The biological standard of living of Korean men under Confucianism, colonialism, capitalism, and communism. 朝鲜男性在儒教、殖民主义、资本主义和共产主义统治下的生物生活水平。
IF 1.5 3区 社会学 Q1 Medicine Pub Date : 2024-05-01 Epub Date: 2023-11-29 DOI: 10.1017/S0021932023000275
Daniel J Schwekendiek, Seongho Jun, James B Lewis, Heejin Park, Seong-Jin Choi

This study focuses on analysing the heights of 10,953 Korean men aged 20 to 40 years who were measured during the Joseon dynasty, the Japanese colonialisation period, and the contemporary period, the latter including both North and South Korea. This study thus provides rare long-term statistical evidence on how biological living standards have developed over several centuries, encompassing Confucianism, colonialism, capitalism, and communism. Using error bar analysis of heights for each historical sample period, this study confirms that heights rose as economic performance improved. For instance, economically poorer North Koreans were expectedly shorter, by about 6 cm, than their peers living in the developed South. Similarly, premodern inhabitants of present-day South Korea, who produced a gross domestic product (GDP) per capita below the world average, were about 4 cm shorter than contemporary South Koreans, who have a mean income above the world average. Along similar lines, North Koreans, who have a GDP per capita akin to that of the premodern Joseon dynasty, have not improved much in height. On the contrary, mean heights of North Koreans were even slightly below (by about 2.4 cm) heights of Joseon dynasty Koreans. All in all, the heights follow a U-shaped pattern across time, wherein heights were lowest during the colonial era. Heights bounced back to Joseon dynasty levels during the interwar period, a time period where South Korea benefitted from international aid, only to rise again and surpass even premodern levels under South Korea's flourishing market economy.

这项研究的重点是分析10953名20至40岁的韩国男性的身高,他们是在朝鲜王朝、日本殖民时期和当代(包括朝鲜和韩国)测量的。因此,这项研究为几个世纪以来生物生活水平的发展提供了罕见的长期统计证据,包括儒家思想、殖民主义、资本主义和共产主义。通过对每个历史样本时期的身高进行误差条分析,本研究证实,随着经济表现的改善,身高也会上升。例如,经济上较贫穷的朝鲜人预计比生活在发达的韩国的同龄人矮6厘米左右。同样,人均国内生产总值(GDP)低于世界平均水平的前现代韩国居民,比平均收入高于世界平均水平的当代韩国人矮约4厘米。与此类似,人均国内生产总值(GDP)与前现代的朝鲜王朝相当的朝鲜人,在身高上也没有多大进步。相反,北韩人的平均身高甚至比朝鲜人低2.4厘米。总而言之,随着时间的推移,高度呈u形,其中殖民时期的高度最低。在两次世界大战之间的时期,韩国从国际援助中受益,其高度反弹到了朝鲜王朝的水平,但在韩国蓬勃发展的市场经济下,这一水平再次上升,甚至超过了前现代的水平。
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引用次数: 0
Revisiting the predisposing, enabling, and need factors of unsafe abortion in India using the Heckman Probit model. 使用Heckman Probit模型重新审视印度不安全堕胎的易感因素,使能因素和需求因素。
IF 1.5 3区 社会学 Q1 Medicine Pub Date : 2024-05-01 Epub Date: 2023-11-20 DOI: 10.1017/S002193202300024X
Margubur Rahaman, Avijit Roy, Pradip Chouhan, Kailash Chandra Das, Md Juel Rana

Unsafe abortion refers to induced abortions performed without trained medical assistance. While previous studies have investigated predictors of unsafe abortion in India, none have addressed these factors with accounting sample selection bias. This study aims to evaluate the contributors to unsafe abortion in India by using the latest National Family Health Survey data conducted during 2019-2021, incorporating the adjustment of sample selection bias. The study included women aged 15 to 49 who had terminated their most recent pregnancy within five years prior to the survey (total weighted sample (N) = 4,810). Descriptive and bivariate statistics and the Heckman Probit model were employed. The prevalence of unsafe abortion in India was 31%. Key predictors of unsafe abortion included women's age, the gender composition of their living children, gestation stage, family planning status, and geographical region. Unsafe abortions were typically performed in the early stages of gestation, often involving self-administered medication. The primary reasons cited were unintended pregnancies and health complications. This study underscores the urgent need for targeted interventions that take into account regional, demographic, and social dynamics influencing abortion practices in India.

不安全堕胎是指在没有受过训练的医疗援助的情况下进行的人工流产。虽然以前的研究已经调查了印度不安全堕胎的预测因素,但没有一个研究涉及这些因素,并考虑到样本选择偏差。本研究旨在利用2019-2021年进行的最新全国家庭健康调查数据,对印度不安全堕胎的影响因素进行评估,并对样本选择偏差进行调整。该研究包括年龄在15至49岁之间,在调查前5年内终止最近一次妊娠的妇女(总加权样本(N) = 4810)。采用描述性统计和双变量统计以及Heckman Probit模型。印度不安全堕胎的发生率为31%。不安全人工流产的主要预测因素包括妇女的年龄、其在世子女的性别构成、妊娠期、计划生育状况和地理区域。不安全堕胎通常在妊娠早期进行,通常涉及自我用药。提到的主要原因是意外怀孕和健康并发症。这项研究强调迫切需要有针对性的干预措施,考虑到影响印度堕胎做法的区域、人口和社会动态。
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引用次数: 0
Consanguinity in northwest Pakistan: evidence of temporal decline. 巴基斯坦西北部的近亲关系:时间性衰退的证据。
IF 1.5 3区 社会学 Q1 Medicine Pub Date : 2024-05-01 Epub Date: 2024-02-05 DOI: 10.1017/S0021932024000026
Sajid Malik, Anisa Bibi, Rubbiya Farid, Sidra Khan, Javaid Awan, Atta Ur Rehman

Pakistan has a high burden of hereditary and congenital anomalies and their incidence rate almost doubles against the background of parental consanguinity. Consanguineous unions (CU) are customary in Pakistan and deeply rooted socio-cultural norms favour CU. This study aimed to elucidate the determinants and temporal change in CU in four northwestern populations of Pakistan. In a cross-sectional study, data on marital union types, bio-demographic factors, and paternal consanguinity were collected from 6,323 ever-married individuals in four districts of northwest Pakistan: Haripur, Muzaffarabad, Mansehra, and Shangla. We used descriptive statistics and multivariable logistic regression analysis. The CU were calculated to be 55%, and inbreeding coefficient F (ICF) was estimated to be 0.029. Eight factors, including district, rural origin, age of husband, occupational group of husband, literacy of husband, parental consanguinity, exchange marriage, and extended family type, were found to be significant predictors of consanguinity in the multivariable logistic regression analysis. The rate of consanguinity decreased significantly in the younger age categories of individuals. The rate of CU was seen to be declining over time and in marriages that started 'before 1980' and 'after 2010', respectively, and there was a decline in ICF from 0.030 to 0.027. These analyses also showed that the literacy rate improved, the average age at marriage increased, and the frequency of exchange marriages decreased over time. This study employs a sizable first-hand dataset to demonstrate a lowering CU rate in northwest Pakistan. It is anticipated that the burden of inherited and congenital anomalies may likely to diminish in the study populations along with the fall in ICF.

巴基斯坦的遗传性和先天性畸形负担沉重,在父母近亲结婚的背景下,其发病率几乎翻了一番。近亲结婚(CU)是巴基斯坦的习俗,根深蒂固的社会文化规范有利于近亲结婚。本研究旨在阐明巴基斯坦西北部四种人群中近亲结婚的决定因素和时间变化。在一项横断面研究中,我们从巴基斯坦西北部四个地区(哈里普尔、穆扎法拉巴德、曼塞赫拉和香格里拉)的 6323 名已婚者中收集了有关婚姻结合类型、生物人口学因素和父系血缘关系的数据。我们采用了描述性统计和多变量逻辑回归分析。经计算,CU 为 55%,近亲繁殖系数 F (ICF) 估计为 0.029。在多变量逻辑回归分析中发现,地区、农村籍贯、丈夫年龄、丈夫职业类别、丈夫文化程度、父母近亲结婚、交换婚姻和大家庭类型等八个因素是近亲结婚的重要预测因素。年龄越小,近亲结婚率越低。随着时间的推移,在 "1980 年以前 "和 "2010 年以后 "开始的婚姻中,近亲结婚率呈下降趋势,ICF 从 0.030 下降到 0.027。这些分析还表明,随着时间的推移,识字率提高了,平均结婚年龄增加了,交换婚姻的频率降低了。这项研究采用了大量的第一手数据,证明巴基斯坦西北部的 CU 率有所下降。预计随着 ICF 的下降,研究人群中遗传性和先天性畸形的负担可能会减轻。
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引用次数: 0
Social inequities in food deserts and food swamps in a northeastern Brazilian capital. 巴西东北部首府食物荒漠和食物沼泽中的社会不平等现象。
IF 1.5 3区 社会学 Q1 Medicine Pub Date : 2024-05-01 Epub Date: 2024-02-28 DOI: 10.1017/S0021932024000087
Jennyffer Mayara Lima da Silva, Juliana Souza Oliveira, Daniely Casagrande Borges, Olívia Souza Honório, Larissa Loures Mendes, Raquel Canuto

This study identified food deserts and swamps, investigating their associations with socioeconomic and demographic conditions. This ecological study was conducted using data from urban census tracts in the city of Recife, which were considered the unit of analysis. Information on food retail was obtained from government sources in 2019. Census tracts below the 25th percentile in the density of healthy food retail (i.e., those that predominantly sell natural or minimally processed foods, mixed businesses, and super- and hypermarkets) were classified as food deserts. Census tracts above the 25th percentile in the density of unhealthy food retail (i.e., those selling primarily ultra-processed foods) were considered food swamps. The socioeconomic and demographic conditions of the census tracts were evaluated using variables from the 2010 census (per capita income, average income, race, literacy of the head of household, and the availability of essential services) and the Health Vulnerability Index. Census tracts considered food deserts (28.5%) were more vulnerable, characterized by lower income and access to essential services, more illiterate residents and more minorities (Black/Indigenous/mixed race). Food swamps (73.47%) were more prevalent in less vulnerable neighbourhoods characterized by higher percentages of literate residents and Whites, greater purchasing power, and better basic sanitation. The characteristics of Recife's food deserts and swamps demonstrate social inequalities in the food environment. Public facilities could play a vital role in promoting healthy eating within food deserts. Additionally, future implementation of taxes on ultra-processed foods and the provision of tax subsidies to natural or minimally processed food sellers might contribute to fostering healthier dietary choices.

这项研究确定了食物荒漠和沼泽,调查了它们与社会经济和人口状况的关联。这项生态研究使用了累西腓市城市人口普查区的数据,该普查区被视为分析单位。有关食品零售的信息来自 2019 年的政府资料。健康食品零售密度低于第 25 百分位数的人口普查区(即主要销售天然或微量加工食品、混合型企业以及超级市场和大型超市的人口普查区)被归类为食品荒漠。不健康食品零售密度高于第 25 百分位数的人口普查区(即主要销售超加工食品的人口普查区)被视为食品沼泽。利用 2010 年人口普查的变量(人均收入、平均收入、种族、户主识字率和基本服务的可用性)和健康脆弱性指数,对人口普查区的社会经济和人口状况进行了评估。被认为是食物荒漠的人口普查区(28.5%)更加脆弱,其特点是收入较低,无法获得基本服务,文盲居民较多,少数民族(黑人/土著/混血)较多。食物沼泽(73.47%)则更多地出现在弱势程度较低的居民区,其特点是识字居民和白人比例较高,购买力较强,基本卫生条件较好。累西腓食物荒漠和沼泽的特点表明了食物环境中的社会不平等。公共设施在促进食物沙漠地区的健康饮食方面可以发挥重要作用。此外,未来对超加工食品征税以及向天然或微量加工食品销售商提供税收补贴,可能有助于促进人们选择更健康的饮食。
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引用次数: 0
Widowhood status, morbidity, and mortality in India: evidence from a follow-up survey. 印度的寡妇状况、发病率和死亡率:来自后续调查的证据。
IF 1.5 3区 社会学 Q1 Medicine Pub Date : 2024-05-01 Epub Date: 2023-10-26 DOI: 10.1017/S0021932023000226
Babul Hossain, K S James

A known health effect of widowhood is an increased mortality risk among surviving spouses, with gender- and age-specific observations. While morbidity conditions with socio-economic factors may exacerbate the effect of widowhood on mortality, no research has attempted to predict mortality among the widowed over the married population with the presence of morbidity in India. Thus, the present study concurrently examines marital status and health in the Indian setting, bringing substantial empirical evidence to explore the link between marital status, morbidity, and mortality. The study used prospective data from India Human Development Survey (IHDS) wave 1 (2004-2005) and wave 2 (2011-2012). In total, 82,607 individuals aged 25 years and above were considered for the analysis. To present the preliminary findings, descriptive statistics and bivariate analysis were used. Using multivariable logistic regression, the interaction effect of marital status and morbidity status was estimated to predict the likelihood of mortality. Across all socio-economic groups, widowed individuals reporting any morbidity had a higher mortality proportion than married people. Young widowers with any morbidity are more susceptible to increased mortality. Asthma among young widowers and cardiovascular diseases among elderly widowers significantly elevate the probability of mortality. However, older widowed women with diabetes had a lower probability of mortality than older married women with diabetes. The widowers' disadvantage in mortality and morbidity may be attributable to less care-receiving and the greater incidence of unhealthy lifestyle practices during the post-widowhood period, indicating the need for more research.

根据特定性别和年龄的观察,丧偶对健康的一个已知影响是幸存配偶的死亡率增加。虽然有社会经济因素的发病情况可能会加剧丧偶对死亡率的影响,但没有研究试图预测印度有发病率的丧偶人口的死亡率高于已婚人口。因此,本研究同时考察了印度环境中的婚姻状况和健康状况,为探索婚姻状况、发病率和死亡率之间的联系提供了大量实证证据。该研究使用了印度人类发展调查第1波(2004-2005年)和第2波(2011-2012年)的前瞻性数据。总共考虑了82607名年龄在25岁及以上的人进行分析。为了呈现初步结果,使用了描述性统计和双变量分析。使用多变量逻辑回归,估计婚姻状况和发病状况的交互作用,以预测死亡的可能性。在所有社会经济群体中,报告任何发病率的寡居者的死亡率都高于已婚者。有任何发病率的年轻鳏夫更容易增加死亡率。年轻鳏夫的哮喘和老年鳏夫的心血管疾病显著提高了死亡率。然而,患有糖尿病的老年丧偶妇女的死亡率低于患有糖尿病的已婚老年妇女。鳏夫在死亡率和发病率方面处于不利地位,这可能是因为在守寡后时期,接受护理的人数较少,不健康生活方式的发生率较高,这表明需要进行更多的研究。
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引用次数: 0
Latina paradox in Spain? Arrival-cohort effects on the birthweight of newborns of Latina mothers. 西班牙的拉丁裔悖论?抵达人群对拉丁裔母亲新生儿出生体重的影响。
IF 1.5 3区 社会学 Q1 Medicine Pub Date : 2024-05-01 Epub Date: 2024-02-29 DOI: 10.1017/S0021932024000099
Chiara Dello Iacono, Miguel Requena, Mikolaj Stanek

This study analyses the arrival-cohort effects on the newborn birthweight of Latina women residing in Spain. First, it has been tested whether women of Latin American origin in Spain have an advantage in terms of birth outcomes, a pattern previously documented in the United States and referred to as the 'Latin American paradox'. Second, it has been examined whether this health advantage of Latina mothers varies by arrival cohort.A novel database provided by the Spanish National Statistics Office that links the 2011 Census with Natural Movement of the Population records from January 2011 to December 2015 has been used. Poisson regression models were applied to test for differences in the incidence rates of low birthweight (LBW) and high birthweight (HBW) among children of Latina and native mothers, controlling for various demographic, socio-economic, and birth characteristics.Two distinct arrival-cohort effects on perinatal health were observed. On one hand, first-generation Latina women were found to be at a lower risk of giving birth to LBW infants; however, they experienced a higher incidence of HBW during the study period. Second, Latina women of 1.5 generation, likely stressed by increased exposure to the receiving country, exhibited adverse birthweight results.

本研究分析了居住在西班牙的拉美裔妇女的抵达队列对新生儿出生体重的影响。首先,我们检验了西班牙的拉美裔妇女是否在出生结果方面具有优势,这种模式以前在美国被记录下来,并被称为 "拉美悖论"。研究使用了西班牙国家统计局提供的一个新型数据库,该数据库将 2011 年人口普查与 2011 年 1 月至 2015 年 12 月的人口自然流动记录联系在一起。在控制了各种人口、社会经济和出生特征的情况下,应用泊松回归模型检验了拉丁裔母亲和本地母亲所生子女的低出生体重(LBW)和高出生体重(HBW)发生率的差异。一方面,第一代拉丁裔妇女生育低体重儿的风险较低;但在研究期间,她们的高体重儿发生率较高。其次,第 1.5 代拉丁裔妇女可能因更多地接触接收国的环境而受到影响,她们的出生体重结果不佳。
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引用次数: 0
Volga German surnames and Alzheimer’s disease in Argentina: an epidemiological perspective 阿根廷的伏尔加德意志姓氏与阿尔茨海默病:流行病学视角
IF 1.5 3区 社会学 Q1 Medicine Pub Date : 2024-04-29 DOI: 10.1017/s002193202400018x
Arturo Leonardo Morales, Marcelo Isidro Figueroa, Pablo Navarro, Estela Raquel Chaves, Anahí Ruderman, José Edgardo Dipierri, Virginia Ramallo

The N141I variant (PSEN1 gene) is associated with familial forms of early-onset Alzheimer’s disease (AD) in descendants of Volga Germans, whose migration to Argentina is well documented. As a proxy for geographic origin, surnames can be a valuable tool in population studies. The 2015 Argentine Electoral Registry provided geographic data for 30,530,194 individuals, including 326,922 with Volga German surnames. Between 2005 and 2017, the Ministry of Health recorded 4,115,216 deaths, of which 17,226 were attributed to AD and related causes. The study used both diachronic and synchronic data to identify patterns of territorial distribution and co-spatiality, using Moran’s I and generalised linear model statistics. The frequency of surnames of Volga German origin accounts for 43.53% of the variation in deaths from AD and three clusters of high non-random frequency were found. Almost 150 years later, people descending from the Volga migration remain highly concentrated and may have a different risk of developing AD. The identification of spatial patterns provides reliable guidance for medical research and highlights the importance of specific health policies for particular populations.

N141I变体(PSEN1基因)与伏尔加日耳曼人(Volga Germans)后裔的家族性早发性阿尔茨海默病(AD)有关,而伏尔加日耳曼人移居阿根廷的情况有据可查。作为地理来源的替代物,姓氏可以成为人口研究的重要工具。2015 年阿根廷选举登记处提供了 30,530,194 人的地理数据,其中包括 326,922 个伏尔加德裔姓氏。2005 年至 2017 年间,卫生部记录了 4,115,216 例死亡,其中 17,226 例归因于急性心肌梗死及相关原因。该研究利用莫兰 I 统计法和广义线性模型统计法,同时使用非同步数据和同步数据来确定地域分布和共同空间的模式。伏尔加德裔姓氏的频率占公元前死亡变异的 43.53%,并发现了三个非随机频率较高的群集。近 150 年后的今天,伏尔加河流域移民的后裔仍然高度集中,而且可能有不同的罹患渐冻人症的风险。空间模式的确定为医学研究提供了可靠的指导,并凸显了针对特定人群制定特定健康政策的重要性。
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引用次数: 0
Height growth of Mexican boys by geographic region: an evaluation based on nationally representative data of ENSANUT 2012 and 2018 按地理区域分列的墨西哥男童身高增长情况:基于 ENSANUT 2012 年和 2018 年全国代表性数据的评估
IF 1.5 3区 社会学 Q1 Medicine Pub Date : 2024-04-22 DOI: 10.1017/s0021932024000166
Luis Alberto Flores, Luz Dinorah González Castell, Sudip Datta Banik
Existing research on human growth in Mexico is regionally focused, creating a gap in the understanding of growth patterns of children and adolescents at national level and regional variation. The objective of the present study was to characterize the height growth curve of the Mexican population by geographic area and to cluster the states of the Mexican Republic according to their somatic maturation characteristics, based on a national representative sample of boys. Data on age, height, socioeconomic level, and geographic area of 18,219 boys were obtained from the National Health and Nutrition Survey 2012 (ENSANUT) and ENSANUT 2018, carried out in 32 Mexican states. Both surveys had representative samples. Preece–Baines 1 model was applied to fit height growth curves. Biological parameters were estimated; principal component analysis and cluster analysis were performed to group Mexican states based on these biological parameters. The estimated age at peak height velocity (PHV) was 12.3 years in the sample. Significant regional differences in the timing and tempo of PHV among Mexican boys were observed. Boys in the northern region experienced PHV at an earlier age and had a shorter duration of growth compared with boys in the central and southern regions. Boys in the central region had a longer duration of growth and a later age of PHV compared with the boys in the southern region. The cluster that included the southern states of the country showed estimated lower adult height and earlier somatic maturation. A lower height was found in the low and low-middle socioeconomic levels compared with the medium-high and high socioeconomic levels. Future research in Mexico should focus on longitudinal studies to analyse the timing and tempo of growth and maturation, considering the impacts of environmental and genetic factors. Public health strategies should account for geographic variations.
墨西哥现有的人体生长研究主要集中在地区层面,因此在了解全国儿童和青少年的生长模式和地区差异方面存在差距。本研究的目的是根据具有全国代表性的男童样本,按地理区域描述墨西哥人口的身高增长曲线特征,并根据墨西哥共和国各州的体格成熟特征对其进行分组。18219名男孩的年龄、身高、社会经济水平和地理区域数据来自2012年全国健康与营养调查(ENSANUT)和2018年全国健康与营养调查(ENSANUT),这两项调查在墨西哥32个州进行。两项调查的样本均具有代表性。采用 Preece-Baines 1 模型拟合身高增长曲线。对生物参数进行了估算;根据这些生物参数对墨西哥各州进行了主成分分析和聚类分析。样本中身高速度峰值(PHV)的估计年龄为 12.3 岁。在墨西哥男孩中,身高峰值出现的时间和节奏存在明显的地区差异。与中部和南部地区的男童相比,北部地区的男童出现身高峰值的年龄较早,生长持续时间较短。与南部地区的男孩相比,中部地区男孩的生长持续时间较长,出现 PHV 的年龄较晚。包括该国南部各州在内的群组显示,估计的成年身高较低,躯体成熟较早。与中高和高社会经济水平相比,低社会经济水平和中低社会经济水平的儿童身高较低。墨西哥未来的研究应侧重于纵向研究,以分析生长和成熟的时间和节奏,同时考虑环境和遗传因素的影响。公共卫生战略应考虑地域差异。
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引用次数: 0
The experiences of familial mental illness stigma among individuals living with mental illnesses 精神疾病患者的家庭精神疾病污名化经历
IF 1.5 3区 社会学 Q1 Medicine Pub Date : 2024-04-17 DOI: 10.1017/s0021932024000154
Joseph Adu, Abram Oudshoorn, Kelly Anderson, Carrie Anne Marshall, Heather Stuart
Persons with mental illnesses may experience stigma from their immediate family members in addition to other forms of stigma. Using semi-structured interviews, we investigated experiences of familial mental illness stigma among 15 people diagnosed with mental illnesses in a mid-sized city in Canada. We identified five themes that speak to participants’ experiences of familial mental illness stigma and ways to reduce it. The themes include the following: diagnosis as a ‘double-edged sword,’ potential familial isolation, familial stigma as societal stigma localized, stories of acceptance, and confronting potential familial mental illness stigma. Participants’ narratives indicate that familial mental illness stigma is rooted in the broader social or public stigma, which sees its way into familial relations as well. This stigma takes various forms, including relationship bias or unfair treatment, breakdown in romantic relationships, loss of status, verbal and emotional abuse, exclusion from decision-making, and alienation within their immediate and extended families. Familial mental illness stigma experiences negatively impact participant’s psychological well-being and personal empowerment. However, participants also shared ways that family members create supportive environments or actively confront or prevent stigma. Overall, this study has contributed to knowledge on mental illness stigma, particularly familial mental illness stigma from the perspective of participants living with a mental illness in a high-income country. Suggestions for future research include a focus on strategies to prevent ongoing familial mental illness stigma and large-scale studies to explore familial mental illness stigma to understand why families might perpetrate stigma.
除了其他形式的污名化之外,精神疾病患者还可能遭受来自其直系亲属的污名化。通过半结构式访谈,我们调查了加拿大一个中等城市中 15 名被诊断患有精神疾病的人的家庭精神疾病污名化经历。我们发现了五个主题,这些主题反映了参与者对家族性精神病污名化的经历以及减少污名化的方法。这些主题包括:诊断是一把 "双刃剑"、潜在的家庭隔离、家庭鄙视是社会鄙视的地方化、接受的故事以及面对潜在的家庭精神疾病鄙视。参与者的叙述表明,家庭精神疾病烙印植根于更广泛的社会或公众烙印中,这种烙印也渗透到了家庭关系中。这种成见有多种形式,包括关系偏见或不公平待遇、恋爱关系破裂、丧失地位、言语和情感虐待、被排除在决策之外,以及在直系亲属和大家庭中被疏远。家庭精神疾病污名化的经历对参与者的心理健康和个人能力产生了负面影响。然而,参与者也分享了家庭成员创造支持性环境或积极对抗或防止污名化的方法。总之,本研究从高收入国家精神疾病患者的角度出发,对精神疾病污名化,尤其是家庭精神疾病污名化的认识做出了贡献。对未来研究的建议包括:关注预防持续性家庭精神疾病成见的策略,以及开展大规模的研究来探索家庭精神疾病成见,以了解家庭可能造成成见的原因。
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引用次数: 0
期刊
Journal of Biosocial Science
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