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People with mental illness stigmatize mental illness less: A comparison study between a hospital-based sample of people with mental illness and a non-clinical general population sample in urban India. 精神病患者对精神病的污名化程度较低:印度城市精神病患者医院样本与非临床普通人群样本的对比研究。
IF 2.5 3区 医学 Q1 Social Sciences Pub Date : 2023-12-01 Epub Date: 2023-08-07 DOI: 10.1177/13634615231179265
Jean-Francois Trani, Bing-Jie Yen, Alexis Duncan, Parul Bakhshi, Trinley Palmo, Sushrut Jadhav, Smita Deshpande

Evidence shows that stigma negatively influences the quality of life of persons with severe mental illness. Nonetheless, stigma towards mental illness is lower among persons with a lived experience of mental illness compared to the rest of the population. Understanding the association between stigma of mental illness and the mental status of individuals living in urban India and whether this association is moderated by demographic factors opens a new avenue for prevention of social exclusion. Persons diagnosed with schizophrenia, bipolar disorder, or severe unipolar depression (cases, n  =  647) were recruited from among hospital patients in New Delhi between November 2011 and June 2012 and matched with non-psychiatric urban dwellers by age, sex, and location of residence (controls, n  =  649). Propensity score matching with multivariable linear regression was used to test whether stigma towards mental illness, measured by a 13-item Stigma Questionnaire, differed between cases and controls. Cases reported significantly lower stigma scores than controls (b  =  -0.50, p < 0.0001). The strength of the association between mental illness and stigma was not affected after controlling for age, caste, sex, education, and employment status, while wealth marginally reduced the strength of the association. These findings suggest individuals with a lived experience of mental illness, in New Delhi, India, may be more tolerant towards mental illness and support the need to involve persons with lived experience in the development and implementation of health promotional campaigns and programs aimed at reducing stigma towards mental illness.

有证据表明,成见会对严重精神疾病患者的生活质量产生负面影响。然而,与其他人群相比,有精神疾病生活经历的人对精神疾病的成见程度较低。了解对精神病的成见与印度城市居民的精神状态之间的关系,以及这种关系是否会受到人口因素的影响,为防止社会排斥开辟了一条新途径。研究人员在 2011 年 11 月至 2012 年 6 月期间从新德里的医院患者中招募了被诊断为精神分裂症、双相情感障碍或严重单相抑郁症的患者(病例,n = 647),并按年龄、性别和居住地与非精神病患者的城市居民(对照组,n = 649)进行了匹配。采用倾向得分匹配和多变量线性回归来检验病例和对照组之间对精神疾病的成见是否存在差异,该成见由 13 个项目的成见问卷来衡量。病例的耻辱感得分明显低于对照组(b = -0.50,p
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引用次数: 0
"I didn't do it!": Lived experiences of suicide attempts made without perceived intent or volition. "不是我干的!":无意识或无意志企图自杀的亲身经历。
IF 2.5 3区 医学 Q1 Social Sciences Pub Date : 2023-12-01 Epub Date: 2022-11-07 DOI: 10.1177/13634615221126057
Shahnaz Savani, Robin E Gearing

Suicide is considered to be a conscious and intentional act that is carried out within a social and cultural context. This study examines the unique phenomenon of a cluster of suicide attempts conducted without perceived intent, ideation, plan, volition, or agency in a remote province in Central Asia. This study investigated the lived experiences of individuals who made such unintended suicide attempts and examined the differences between these experiences and those of individuals who made their suicide attempt with intent and agency. The authors conducted a secondary analysis of qualitative data originally collected for a prior grounded theory study. The present study examined a specific and unique set of participant experiences related to suicide attempts made without agency. Results found that instances of suicide attempts made without perceived intent by participants included themes of impulsivity, not knowing what happened, feeling out of control, attributing these experiences to the supernatural, and being fearful of such events occurring again. Clinical practice may need to be adapted to address experiences of such unique suicide attempt experiences. In addition, further research is warranted to understand and examine the phenomenon of suicide attempts carried out without perceived intent, ideation, plan, volition, or agency.

自杀被认为是一种在社会和文化背景下有意识的行为。本研究探讨了在中亚一个偏远省份发生的一组自杀未遂事件的独特现象,这组自杀未遂事件没有明显的意图、意念、计划、意志或代理。本研究调查了此类非故意自杀未遂者的生活经历,并研究了这些经历与那些有意图、有主观能动性的自杀未遂者的经历之间的差异。作者对最初为一项基础理论研究收集的定性数据进行了二次分析。本研究考察了一组与无代理自杀未遂相关的特定和独特的参与者经历。研究结果发现,参与者在没有感知到意图的情况下企图自杀的情况包括冲动、不知道发生了什么、感觉失控、将这些经历归因于超自然现象以及害怕此类事件再次发生等主题。临床实践可能需要进行调整,以应对这种独特的自杀未遂经历。此外,还需要开展进一步的研究,以了解和研究在没有可感知的意图、意念、计划、意志或代理的情况下企图自杀的现象。
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引用次数: 0
Understanding Nepali widows' experiences for the adaptation of an instrument to assess Prolonged Grief Disorder. 了解尼泊尔寡妇的经历,以改编评估长期悲伤障碍的工具。
IF 2.5 3区 医学 Q1 Social Sciences Pub Date : 2023-12-01 Epub Date: 2020-12-22 DOI: 10.1177/1363461520949005
Yoona Kim, Damodar Rimal, Angela K C, Sumeera Shrestha, Nagendra P Luitel, Holly G Prigerson, Wietse A Tol, Pamela J Surkan

The experience of grief varies across different cultures and contexts. Women in Nepal who lose their husbands confront discrimination, social isolation, and abuse that influence their experience of grief. Through eight focus group discussions with Nepali widows, we elicited socially sanctioned grief reactions and local idioms used to describe common cognitive, behavioral, and emotional symptoms of grief. Accordingly, modifications to an existing instrument for Prolonged Grief Disorder, the PG-13, are suggested to capture grief symptoms as experienced by Nepali widows. Items in the PG-13 were translated to colloquial Nepali and adapted to maintain comprehensibility, acceptability, relevance, and completeness. Based on the grief-related issues reported in the focus group discussions, the addition of five new items and a new criterion to capture symptoms related to social discrimination are proposed. Widows perceived elevated symptoms one year after the loss to be problematic. It is thus recommended that the duration criterion in the original PG-13 be adjusted from at least six months to at least one year after the loss. These proposed modifications to the instrument should be validated through future psychometric testing.

在不同的文化和背景下,悲伤的体验也各不相同。在尼泊尔,失去丈夫的妇女面临着歧视、社会孤立和虐待,这些都影响着她们的悲伤体验。通过与尼泊尔寡妇进行八次焦点小组讨论,我们了解了社会认可的悲伤反应以及当地用来描述悲伤的常见认知、行为和情绪症状的成语。因此,我们建议对现有的长期悲伤障碍工具 PG-13 进行修改,以捕捉尼泊尔寡妇所经历的悲伤症状。PG-13 中的项目被翻译成尼泊尔口语并进行了调整,以保持可理解性、可接受性、相关性和完整性。根据焦点小组讨论中报告的与悲伤相关的问题,建议增加五个新项目和一个新标准,以捕捉与社会歧视相关的症状。丧偶者认为在失去亲人一年后症状加重是个问题。因此,建议将原 PG-13 中的持续时间标准从丧偶后至少六个月调整为至少一年。对该工具的这些修改建议应通过未来的心理测试进行验证。
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引用次数: 0
Grieving Parents' Meaning-Making Narration in Relation to Value Orientations: A Cross-Cultural Study. 悲伤父母的意义塑造叙述与价值取向的关系:跨文化研究。
IF 2.5 3区 医学 Q1 Social Sciences Pub Date : 2023-12-01 Epub Date: 2020-11-26 DOI: 10.1177/1363461520970735
Daiming Xiu, Andreas Maercker, Clare Killikelly, Yuting Yang, Xiaoming Jia

This study investigated the association between prolonged grief (PG) severity and meaning-making narration in a cross-cultural context, and specifically aimed to illustrate the role of value orientation in shaping the grieving process. 30 Chinese and 22 Swiss parents who lost their child were asked to narrate and appraise specific memories to reflect their self-evaluation of traditional and modern values. The self-reported Prolonged Grief Disorder Scale (ref ICD-11) assessed PG severity. Compared with the Swiss sample, the Chinese sample provided more elaborated memories, which was not associated with symptom severity. Both Chinese and Swiss bereaved parents with more severe PG provided more narratives of loss-related memories, particularly in response to modern values. They also provided more appraisals of negative meanings for self-defining memories, particularly in relation to their traditional values. These findings indicate that, despite cultural differences in narration tendency, PG severity in bereaved parents was associated with the maladaptive integration of autobiographical memories across different cultures, in relation to value orientations. A clinical implication is the potential value of facilitating narrations of grieving clients that center on value orientations to mitigate the hardship of the personal loss.

本研究调查了跨文化背景下长期悲伤(PG)严重程度与意义建构叙述之间的关联,并特别旨在说明价值取向在塑造悲伤过程中的作用。30 位中国父母和 22 位瑞士父母在失去孩子后被要求叙述和评价特定的记忆,以反映他们对传统和现代价值观的自我评价。自我报告的长期悲伤障碍量表(参考 ICD-11)评估了 PG 的严重程度。与瑞士样本相比,中国样本提供了更详尽的回忆,但这与症状严重程度无关。中国和瑞士的丧亲父母都有较严重的 PG,他们提供了更多与损失相关的回忆,尤其是对现代价值观的回应。他们还对自我定义记忆的负面意义提供了更多评价,尤其是与他们的传统价值观相关的评价。这些研究结果表明,尽管在叙述倾向方面存在文化差异,但在不同文化背景下,丧亲父母的 PG 严重程度与自传体记忆的不适应整合有关,与价值取向有关。其临床意义在于,促进悲伤客户以价值取向为中心进行叙述,以减轻个人丧失亲人的痛苦,具有潜在的价值。
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引用次数: 0
Psychiatric disorders in inpatient Ethiopian migrant workers in the United Arab Emirates. 阿拉伯联合酋长国埃塞俄比亚移民工人住院期间的精神障碍。
IF 2.5 3区 医学 Q1 Social Sciences Pub Date : 2023-12-01 Epub Date: 2023-09-27 DOI: 10.1177/13634615231200855
Karim Abdel Aziz, Hawraa Sameer Sajwani, Mohammed Galadari, Abeer Al-Ammari, Jameilah AlHassani, Nawwaf Al-Nuaimi, Mohamed Elhassan Elamin, Dina Aly El-Gabry

Migrant workers have higher rates of mental health problems than non-migrant workers, with Ethiopian migrant workers in the United Arab Emirates appearing to be overrepresented in the psychiatric inpatient population compared with their numbers in the general population. We sought to investigate the pattern of psychiatric inpatient admissions in Ethiopian migrant workers over a 10-year period (2011-2020) in order to highlight demographic and clinical characteristics, and to investigate factors predicting the length of hospital stay. We reported the mean and frequency of demographic and clinical data of Ethiopian psychiatric inpatients at one of the largest governmental hospitals in eastern Abu Dhabi between 2011 and 2020, and investigated factors predicting length of stay in hospital using linear regression. Our results show that Ethiopian expatriates made up 7.9% of all admissions over a 10-year period, had a mean length of hospital stay of almost 20 days, with 98.1% of them being female, 92.8% being domestic workers, 90.1% having a language barrier, 57.4% being single and 55.5.% having one or more recent stressors prior to admission. The most common diagnoses were acute stress reaction (31.6%), psychosis (29.3%), bipolar disorder (14.8%) and adjustment disorder (11.0%). Work-related stress, termination of employment and several clinical factors significantly predicted length of stay in hospital.

移民工人的心理健康问题发生率高于非移民工人,与他们在普通人群中的人数相比,阿拉伯联合酋长国的埃塞俄比亚移民工人在精神病住院人群中的比例似乎过高。我们试图调查埃塞俄比亚移民工人在10年期间(2011-2020年)的精神病住院模式,以突出人口统计学和临床特征,并调查预测住院时间的因素。我们报告了2011年至2020年间阿布扎比东部最大的政府医院之一的埃塞俄比亚精神病住院患者的人口统计和临床数据的平均值和频率,并使用线性回归调查了预测住院时间的因素。我们的研究结果显示,埃塞俄比亚侨民在10年内占所有入院人数的7.9%,平均住院时间近20天,其中98.1%为女性,92.8%为家庭佣工,90.1%有语言障碍,57.4%为单身,55.5%在入院前有一种或多种近期压力源。最常见的诊断是急性应激反应(31.6%)、精神病(29.3%)、双相情感障碍(14.8%)和适应障碍(11.0%)。与工作相关的压力、终止工作和几个临床因素显著预测了住院时间。
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引用次数: 0
"I base my life on sadness": Apparently paradoxical sources of resilience among young Haitians. “我的生活建立在悲伤之上”:海地年轻人恢复力的源泉显然自相矛盾。
IF 2.5 3区 医学 Q1 Social Sciences Pub Date : 2023-12-01 Epub Date: 2023-09-27 DOI: 10.1177/13634615231202094
Kristine Elvevold Andreassen, Anna Luise Kirkengen, May-Lill Johansen

Haitian expressions of resilience also hold deep knowledge of human vulnerability. This longitudinal, qualitative study with young Haitians from urban shantytowns combines ethnographic and participatory methods to explore the complexities behind such idioms. Artistic and creative products made by or with the youth facilitated interviews, focus group discussions, and workshops. Through the life stories of participants and rich ethnographic material, this study presents locally situated idioms of resilience (and distress). By including local social ecology, the idioms were framed as historically and culturally rooted, thus shaping contextual, pragmatic, and gendered coping strategies grounded in embodied experiences of vulnerability and resistance. The study adds essential insights into Haitian resilience, revealing the local logics behind seemingly paradoxical statements. By drafting a conceptual framework for further studies on idioms of resilience, the study also makes a theoretical contribution to international resilience research.

海地人对复原力的表达也深刻了解人类的脆弱性。这项针对来自城市棚户区的海地年轻人的纵向定性研究结合了民族志和参与性方法,探索了这些习语背后的复杂性。由青年人制作或与青年人合作制作的艺术和创意产品为采访、焦点小组讨论和研讨会提供了便利。通过参与者的生活故事和丰富的民族志材料,本研究呈现了当地的韧性(和痛苦)习语。通过纳入当地社会生态,习语被认为具有历史和文化根源,从而形成了基于脆弱和抵抗的具体体验的语境、语用和性别应对策略。这项研究为海地的复原力提供了重要的见解,揭示了看似矛盾的说法背后的地方逻辑。该研究为进一步研究复原力习语起草了一个概念框架,也为国际复原力研究做出了理论贡献。
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引用次数: 0
Perceiving those who are gone: Cultural research on post-bereavement perception or hallucination of the deceased. 感知逝者:关于丧亲后对逝者的感知或幻觉的文化研究。
IF 2.5 3区 医学 Q1 Social Sciences Pub Date : 2023-12-01 Epub Date: 2020-10-11 DOI: 10.1177/1363461520962887
Pablo Sabucedo, Chris Evans, Jacqueline Hayes

Experiencing the continued presence of the deceased is common among the bereaved, whether as a sensory perception or as a felt presence. This phenomenon has been researched from psychological and psychiatric perspectives during the last five decades. Such experiences have been also documented in the ethnographic literature but, despite the extensive cross-cultural research in the area, anthropological data has generally not been considered in the psychological literature about this phenomenon. This paper provides an overview aimed at bridging these two areas of knowledge, and approaches the post-bereavement perception or hallucination of the deceased in cultural context. Ongoing debates are addressed from the vantage point of ethnographic and clinical case study research focusing on the cultural repertoires (in constant flux as cultures change) from which these experiences are labelled as desirable and normal, on the one hand, or as dangerous and pathological, on the other.

无论是作为一种感官知觉,还是作为一种感觉存在,体验逝者的持续存在在丧亲者中都很常见。在过去的五十年里,人们从心理学和精神病学的角度对这种现象进行了研究。人种学文献中也记录了这种体验,但是,尽管在该领域开展了广泛的跨文化研究,有关这一现象的心理学文献一般都没有考虑到人类学数据。本文概述了这两个领域的知识,并从文化背景的角度探讨了丧亲后对逝者的感知或幻觉。本文从人种学和临床病例研究的视角出发,探讨了当前的争论,重点是文化传统(随着文化的变迁而不断变化),根据这些文化传统,这些经历一方面被认为是可取的、正常的,另一方面又被认为是危险的、病态的。
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引用次数: 0
Social poetics as processual engagement: Making visible what matters in social suffering. 作为过程参与的社会诗学:使社会苦难中重要的东西可见。
IF 2.5 3区 医学 Q1 Social Sciences Pub Date : 2023-10-01 Epub Date: 2020-10-20 DOI: 10.1177/1363461520962614
Arlene M Katz

Social and cultural poetics take us beyond language to an embodied sensibility. To explore the relevance of social poetics in medical training, this article uses as an exemplar an innovative program in geriatrics in a residency program in primary care. The program began with a series of meetings in which medical residents consulted community elders invited for their advice and wisdom on healthcare dilemmas as Senior Faculty, effectively becoming co-teachers and co-learners with one another. Through iterative reflection, residents, faculty and community elders all reported feeling struck by the unexpected responses and were often guided and called to action by them to ask new questions, to shift their stance, or offer greater accompaniment and care. These experiences illuminated what might otherwise have passed by unnoticed, particularly in regards to human suffering. The reflecting process made visible what mattered to each actor, shifting from negative assumptions and attitudes about older adults to a positive engagement with them, co-creating new possibilities for participants to articulate their lived experience of illness and healing. These are creative and moral acts, honoring the voices of those seldom invited to speak, resonating with them, acknowledging what matters to each participant, while taking into account wider issues of disparity and social justice.

社会和文化诗学使我们超越语言,进入一种具体化的感性。为了探讨社会诗学在医学培训中的相关性,本文以初级保健住院医师计划中的老年病学创新计划为例。该项目从一系列会议开始,在会议上,住院医生向社区长老咨询他们作为高级教师在医疗保健困境方面的建议和智慧,有效地成为彼此的共同教师和共同学习者。通过反复的反思,居民、教师和社区长老都报告说,他们对意想不到的反应感到震惊,并经常被他们引导和呼吁采取行动,提出新的问题,改变他们的立场,或提供更多的陪伴和照顾。这些经历阐明了可能被忽视的东西,特别是在人类苦难方面。反思的过程让每个参与者都看到了对他们重要的东西,从对老年人的负面假设和态度转变为与他们的积极接触,共同创造了新的可能性,让参与者表达他们的疾病和治疗的生活经历。这些都是创造性和道德的行为,尊重那些很少被邀请发言的人的声音,与他们产生共鸣,承认对每个参与者来说重要的事情,同时考虑到更广泛的差距和社会正义问题。
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引用次数: 0
Seeing and inviting participation in autistic interactions. 看到并邀请参与自闭症患者的互动。
IF 2.5 3区 医学 Q1 Social Sciences Pub Date : 2023-10-01 Epub Date: 2021-09-30 DOI: 10.1177/13634615211009627
Hanne De Jaegher

What does it take to see how autistic people participate in social interactions? And what does it take to support and invite more participation? Western medicine and cognitive science tend to think of autism mainly in terms of social and communicative deficits. But research shows that autistic people can interact with a skill and sophistication that are hard to see when starting from a deficit idea. Research also shows that not only autistic people, but also their non-autistic interaction partners, can have difficulties interacting with each other. To do justice to these findings, we need a different approach to autistic interactions-one that helps everyone see, invite, and support better participation. I introduce such an approach, based on the enactive theory of participatory sense-making and supported by insights from indigenous epistemologies. This approach helps counteract the homogenizing tendencies of the "global mental health" movement, which attempts to erase rather than recognize difference, and often precludes respectful engagements. Based in the lived experiences of people in their socio-cultural-material and interactive contexts, I put forward an engaged-even engaging-epistemology for understanding how we interact across difference. From this perspective, we see participatory sense-making at work across the scientific, diagnostic, therapeutic, and everyday interactions of autistic and non-autistic people, and how everyone can invite and support more of it.

怎样才能看出自闭症患者是如何参与社会互动的呢?怎样才能支持和邀请更多的参与?西方医学和认知科学倾向于认为自闭症主要是社交和沟通缺陷。但研究表明,自闭症患者可以用一种技巧和复杂的方式进行互动,这在从一个有缺陷的想法开始时很难看到。研究还表明,不仅是自闭症患者,还有他们的非自闭症互动伙伴,彼此之间的互动也会有困难。为了公正地对待这些发现,我们需要一种不同的方法来对待自闭症患者的互动——一种帮助每个人看到、邀请并支持更好参与的方法。我介绍了这样一种方法,它基于参与性意义建构的行动理论,并得到本土认识论见解的支持。这种做法有助于抵制“全球心理健康”运动的同质化倾向,这种运动试图消除而不是承认差异,而且往往妨碍尊重的接触。基于人们在其社会文化物质和互动环境中的生活经验,我提出了一种引人入胜的——甚至引人入胜的——认识论,以理解我们如何跨越差异进行互动。从这个角度来看,我们看到了自闭症患者和非自闭症患者在科学、诊断、治疗和日常互动方面的参与性意义创造,以及每个人如何邀请和支持更多的参与性意义创造。
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引用次数: 0
How metaphors shape the particularities of illness and healing experiences. 隐喻如何塑造疾病和治疗经历的特殊性。
IF 2.5 3区 医学 Q1 Social Sciences Pub Date : 2023-10-01 Epub Date: 2020-11-18 DOI: 10.1177/1363461520965424
Raymond W Gibbs

Metaphors are frequently seen in individuals' descriptions of their illness and healing experiences. These figurative phrases are not ornamental, or distracting, but often reveal the particularities of what it is like to be ill or healing. Culture plays a big role in shaping the particular metaphors employed to express one's thoughts about illness and different healing rituals. However, a significant reason why metaphor emerges in illness narratives is because people ordinarily reason via embodied simulation processes in which they imaginatively project themselves into different real-world and fantastic situations, such as imagining one's struggle with cancer as being a complex dance with the disease. These simulations can play a major role in therapeutic interventions to help those who are ill and in distress.

隐喻经常出现在个人对疾病和治疗经历的描述中。这些比喻性的短语不是装饰性的,也不是分散注意力的,而是经常揭示生病或康复的特殊性。文化在塑造用来表达一个人对疾病和不同治疗仪式的想法的特定隐喻方面起着重要作用。然而,隐喻出现在疾病叙述中的一个重要原因是,人们通常通过具体化的模拟过程进行推理,在这个过程中,他们想象自己将自己投射到不同的现实世界和幻想的情境中,比如将自己与癌症的斗争想象成与疾病的复杂舞蹈。这些模拟可以在治疗干预中发挥重要作用,帮助那些生病和痛苦的人。
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引用次数: 0
期刊
Transcultural Psychiatry
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