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The feasibility of a Swiss complex interprofessional intervention to improve the management of procedural pain in neonates in the Finnish context: A qualitative study 在芬兰开展的一项旨在改善新生儿手术疼痛管理的瑞士复杂跨专业干预措施的可行性研究:定性研究
IF 1.9 4区 医学 Q2 NURSING Pub Date : 2024-09-10 DOI: 10.1111/scs.13298
Mariaana Mäki‐Asiala, Colette Balice‐Bourgois, Anna Axelin, Tarja Pölkki
AimTo evaluate the feasibility of the Swiss complex interprofessional intervention, NEODOL© (NEOnato DOLore), for improving the management of procedural pain in neonates in the Finnish context.BackgroundInterprofessional collaboration is important for all professionals involved in the care of neonates and for neonates' parents, to understand the appropriate use of non‐pharmacological and/or pharmacological methods for each pain situation and how to assess pain in real‐life situations. Appropriate methods of pain relief for neonates should be preferred as they protect the development of the neonate's brain.DesignA descriptive qualitative design.MethodData were collected through semi‐structured focus group discussions following the Medical Research Council's framework for evaluation of complex interventions, in this case NEODOL© which aims to improve the procedural pain management of neonates. A purposive sample (n = 13) included eleven professionals representing various professions within Finnish Neonatal Intensive Care Units and two parents of infants who have received care in a Neonatal Intensive Care Unit. Data were analysed using inductive content analysis, and the results were reported in accordance with the COREQ guidelines.ResultsProfessionals' and parents' evaluations suggest that NEODOL© is feasible, because it is consistent and addresses a current need. They assessed its overall content to be relevant and accessible, and its components to be internally coherent. However, they emphasise the need for further evaluation and refinement of the intervention to achieve the desired outcomes and cost‐effectiveness.ConclusionsWhile NEODOL© is considered feasible, it requires further evaluation and refinement in the local context of each hospital before implementation.
背景跨专业合作对于所有参与新生儿护理的专业人员和新生儿父母来说都非常重要,他们需要了解针对每种疼痛情况适当使用非药物和/或药物方法,以及如何在现实生活中评估疼痛。设计采用描述性定性设计。方法按照医学研究委员会的复杂干预评估框架,通过半结构化焦点小组讨论收集数据,在本例中,NEODOL© 的目的是改善新生儿手术疼痛管理。有目的性的样本(n = 13)包括代表芬兰新生儿重症监护病房不同专业的 11 名专业人员和两名曾在新生儿重症监护病房接受护理的婴儿家长。结果专业人员和家长的评价表明,NEODOL© 是可行的,因为它具有连贯性并能满足当前的需求。他们认为,该教材的总体内容具有针对性,易于理解,各组成部分之间具有内在一致性。结论 虽然 NEODOL© 被认为是可行的,但在实施之前还需要根据各医院的具体情况进行进一步的评估和改进。
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引用次数: 0
"I felt so small": A qualitative study of migrant nursing assistants' experiences in Norway. "我感觉自己很渺小":对挪威移民护理助理经历的定性研究。
IF 1.9 4区 医学 Q2 NURSING Pub Date : 2024-09-03 DOI: 10.1111/scs.13302
Heng Wei Khor, Magalie El Hajj, David Lackland Sam, Karen Marie Moland

Background: In the wake of an increasingly ageing population, Norway has a growing need for healthcare workers, especially in nursing homes. This study explored the employment experiences of migrant nursing assistants working in elderly care in Norway.

Methods: A qualitative interview-based study was carried out between March and August 2020. In-depth, semi-structured interviews were performed with 13 purposively selected immigrant nursing assistants working in a nursing home within Western Norway. Data were thematically analysed.

Results: Migrant nursing assistants working in Norwegian elderly care faced mixed experiences. On the one hand, study participants experienced several barriers in their workplace, resulting from insufficient command of the Norwegian language, heavy workload and mistreatment and discrimination by both patients and colleagues. On the other hand, participants cited the financial compensation from work, the meaningfulness derived from helping others and the flexible day-off requests as workplace facilitators. Participants also made continuous efforts to learn the Norwegian language and to build good relations with their co-workers.

Conclusion: There is a need to enhance migrant nursing assistants' positive experiences in the Norwegian eldercare sector by making targeted workplace reforms and fostering a supportive and inclusive environment.

背景:随着人口老龄化的加剧,挪威对医护人员,尤其是养老院医护人员的需求日益增长。本研究探讨了在挪威从事老年护理工作的移民护理助理的就业经历:2020年3月至8月期间开展了一项基于访谈的定性研究。研究人员有针对性地对 13 名在挪威西部一家养老院工作的移民护理助理进行了深入的半结构式访谈。对数据进行了主题分析:在挪威老年护理机构工作的移民护理助理面临着喜忧参半的经历。一方面,研究参与者在工作场所遇到了一些障碍,包括挪威语能力不足、工作量繁重以及受到病人和同事的虐待和歧视。另一方面,参与者认为工作带来的经济补偿、帮助他人的意义以及灵活的休息日要求都是工作场所的促进因素。与会者还不断努力学习挪威语,并与同事建立良好关系:有必要通过有针对性的工作场所改革和营造一个支持性和包容性的环境,加强移民护理助理在挪威老年护理行业的积极体验。
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引用次数: 0
Patient-clinician interactions in shared diabetes/nephrology consultations - A qualitative observation study. 糖尿病/肾脏病共同会诊中患者与医生的互动--定性观察研究。
IF 1.9 4区 医学 Q2 NURSING Pub Date : 2024-09-03 DOI: 10.1111/scs.13299
Leah Sejrup Christensen, Eithne Hayes Bauer, Jette Primdahl

Background: The incidence of chronic disease is increasing worldwide which, in turn, increases the demand for healthcare services. To meet these demands, healthcare systems are adapting their services in order to reduce treatment costs and ensure coherence for patients with multiple diseases. One form of adaptation is shared outpatient consultations between internal medical specialties. However, little is known about how patients interact with multiple clinicians in shared consultations.

Aim: This project aimed to explore how patients with diabetes and chronic kidney disease interact with multiple clinicians in a shared outpatient setting.

Research methods: We performed a qualitative ethnographic study, combining focused participant observations with informal field interviews. We included 17 participants, nine males and eight females with a mean age of 67.3 in the project. The data analysis was guided by Braun and Clarke's reflexive thematic analysis and Arthur Kleinman's theory of illness and disease.

Results: We found one over-arching theme: 'A consultation which encompassed both illness and disease' and four subthemes: (1) 'The medical focal point' pertained to the focus on physiological measurements in dialogue between patients and clinicians. (2) 'The possibility of negotiations' illustrated how decisions about dialysis and pharmacological treatment were based on negotiations. (3) 'Speaking different languages' displayed how patients used alternative illness-based explanations whereas clinicians tended to use biomedical language. (4) 'Perceptions of everyday life' concerned what patients considered was best for them when managing their illness and everyday lives.

Conclusion: Patients present information on how they balance life with physiological and psychosocial challenges. When clinicians employ a biomedical perspective, opportunities to gain information on patients' illness behaviours or cues to negotiate are missed. Patients prioritise functioning on a daily level over following treatment regimes. These findings are tenuous and require verification in similar studies in similar settings.

Short phrases: Shared Outpatient Clinic, Patient-clinician interactions.

背景:全球慢性病发病率不断上升,这反过来又增加了对医疗保健服务的需求。为满足这些需求,医疗保健系统正在调整其服务,以降低治疗成本,确保多种疾病患者的治疗连贯一致。其中一种调整方式是内科专科之间共享门诊咨询。目的:本项目旨在探讨糖尿病和慢性肾病患者在共享门诊环境中如何与多位临床医生互动:我们开展了一项定性人种学研究,将重点参与者观察与非正式实地访谈相结合。我们在项目中纳入了 17 名参与者,其中男性 9 人,女性 8 人,平均年龄为 67.3 岁。数据分析以布劳恩和克拉克的反思性主题分析法以及阿瑟-克莱因曼的疾病理论为指导:我们发现了一个总主题:"包含疾病和疾病的咨询 "和四个副主题:(1) "医学焦点 "涉及病人和临床医生对话中对生理测量的关注。(2) "协商的可能性 "说明了透析和药物治疗的决定是如何通过协商做出的。(3) "使用不同的语言 "展示了患者如何使用基于疾病的其他解释,而临床医生则倾向于使用生物医学语言。(4) "对日常生活的看法 "涉及患者在处理疾病和日常生活时认为什么对他们最有利:患者提供的信息涉及他们如何平衡生活中的生理和心理挑战。当临床医生从生物医学角度出发时,就会错失了解患者疾病行为或协商线索的机会。患者优先考虑日常功能,而不是遵循治疗方案。这些发现并不可靠,需要在类似环境下的类似研究中加以验证:短语:共享门诊、患者与医生的互动。
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引用次数: 0
Excruciating existential suffering and complicated grief: The essence of surviving the suicide of a son or daughter. 难以忍受的生存痛苦和复杂的悲伤:儿子或女儿自杀后的生存本质。
IF 1.9 4区 医学 Q2 NURSING Pub Date : 2024-09-02 DOI: 10.1111/scs.13289
E A Bjornsdottir, S Sigurdardottir, S Halldorsdottir

Background: Suicide is the fourth most common cause of death for the 15-29 age group. Research on the impact of suicide on parents is scarce and, therefore, poorly understood.

Aim: To explore parents' experiences who have lost a son or a daughter due to suicide and their experience of the services available to them.

Methods: This phenomenological study involved 1-2 interviews with ten parents aged 40-65, seven mothers and three fathers in all 13 interviews. The age range of their sons and daughters was 17-37 years when they died.

Results: For the parents, losing a son or a daughter to suicide is an overwhelming life experience characterised by Excruciating existential suffering and complicated grief where they are confronted with deep meaning-making and existential questions without answers since the person who can answer most of them is no longer alive. They, therefore, felt stuck in their grief for up to 4 years. The initial experience was an immense paralysing shock and sense of unreality. The subsequent period was a blur, and they were numb. Then, their psyche and bodies collapsed, and for a long time, they felt no grief processing was taking place. They sorely needed long-term professional trauma-informed support and felt that, in too many cases, they had to reach out for help themselves. They would have liked to see the healthcare system embrace them with more open arms, offer help and be met with information and individualised support.

Conclusions: Standard operating procedures must be installed to support suicide-bereaved parents better. Long-term professional support and trauma-focused care are required following such major trauma, and providing such support could help to reduce their adverse health impacts. Nurses and other health professionals must be better educated on existential suffering in this context.

背景:自杀是 15-29 岁年龄组第四大常见死因。目的:探讨因自杀而丧子或丧女的父母的经历,以及他们对可获得的服务的体验:这项现象学研究对十位 40-65 岁的父母进行了 1-2 次访谈,在所有 13 次访谈中,有七位母亲和三位父亲。他们的儿子和女儿去世时的年龄在 17-37 岁之间:对父母来说,丧子或丧女自杀是一种难以承受的人生经历,其特点是令人痛苦的生存体验和复杂的悲伤,他们面临着深刻的意义和生存问题,却没有答案,因为能够回答这些问题的人已不在人世。因此,他们陷入悲伤的时间长达 4 年。最初的经历是一种巨大的瘫痪冲击和不真实感。随后的时间里,他们变得模糊不清,麻木不仁。然后,他们的心理和身体都崩溃了,在很长一段时间里,他们觉得自己没有进行任何悲伤处理。他们亟需长期的专业创伤支持,并认为在很多情况下,他们不得不自己寻求帮助。他们希望医疗保健系统能张开双臂拥抱他们,提供帮助,并为他们提供信息和个性化支持:结论:必须制定标准操作程序,为自杀者父母提供更好的支持。在遭受此类重大创伤后,需要长期的专业支持和以创伤为重点的护理,提供此类支持有助于减少对健康的不良影响。护士和其他医疗专业人员必须更好地了解在这种情况下存在的痛苦。
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引用次数: 0
SHOULD I STAY OR SHOULD I GO-A rapid qualitative study of principal deteriorating factors experienced by nurses relating to their intentions to leave their current position in a medical hospital department. 我应该留下还是应该离开--对护士在打算离开医院内科现有职位时所经历的主要恶化因素进行的快速定性研究。
IF 1.9 4区 医学 Q2 NURSING Pub Date : 2024-09-01 Epub Date: 2024-03-27 DOI: 10.1111/scs.13246
Connie Berthelsen, Carrinna Aviaja Hansen

Background: High nurse turnover in hospitals is a worldwide problem with dire consequences for patient care such as increased mortality and a decrease in patient safety. A specific effort to retain nurses is urgently needed due to the many vacant nursing positions, especially across the Medical hospital departments.

Aim: To identify the principal deteriorating factors experienced by nurses relating to their intentions to leave the medical department at a university hospital.

Methods: A rapid qualitative research methodology was used. Participants comprised 22 registered nurses employed in five university hospital medical department units. The Rigorous and Accelerated Data Reduction (RADaR) technique was therefore used for data collection through qualitative semi-structured interviews and analysis. COREQ was used for reporting the study.

Results: The RADaR analysis detected a downward spiral of five principal deteriorating factors influencing nurses' intentions to leave their position in the medical department. The factors were resignations from several nursing colleagues combined with too few and inexperienced nurses present during shifts, additional tasks assigned, a management refraining from improving the problematic issues, leading to decisive consequences for patient care and a declining feeling of professional care.

Conclusions: The lack of nurses in the department caused missed nursing care, which affected the nurses' job satisfaction and intentions to leave their positions. Future research initiatives must focus on evaluating successful interventions to maintain the nurses in the positions. Further knowledge, is also needed, to investigate how we can change the downward spiral to a story of retention success.

背景:医院护士流失率高是一个世界性问题,会对病人护理造成严重后果,如增加死亡率和降低病人安全。由于护理职位空缺较多,尤其是医院内科部门的护理职位空缺较多,因此迫切需要采取具体措施留住护士:方法:采用快速定性研究方法。参与者包括 22 名受雇于五所大学医院内科部门的注册护士。因此,采用了严格和加速数据还原(RADaR)技术,通过半结构化定性访谈和分析来收集数据。研究报告采用 COREQ:RADaR 分析发现了影响护士离职意向的五个主要恶化因素。这些因素包括:多位护理同事辞职、轮班护士人数过少且经验不足、分配的任务过多、管理层拒绝改善存在的问题,从而对患者护理造成决定性后果,以及专业护理感下降:科室缺少护士导致护理工作缺失,影响了护士的工作满意度和离职意向。未来的研究计划必须侧重于评估成功的干预措施,以维持护士的职位。此外,还需要进一步了解如何才能将下滑的螺旋式上升转变为成功留住护士的故事。
{"title":"SHOULD I STAY OR SHOULD I GO-A rapid qualitative study of principal deteriorating factors experienced by nurses relating to their intentions to leave their current position in a medical hospital department.","authors":"Connie Berthelsen, Carrinna Aviaja Hansen","doi":"10.1111/scs.13246","DOIUrl":"10.1111/scs.13246","url":null,"abstract":"<p><strong>Background: </strong>High nurse turnover in hospitals is a worldwide problem with dire consequences for patient care such as increased mortality and a decrease in patient safety. A specific effort to retain nurses is urgently needed due to the many vacant nursing positions, especially across the Medical hospital departments.</p><p><strong>Aim: </strong>To identify the principal deteriorating factors experienced by nurses relating to their intentions to leave the medical department at a university hospital.</p><p><strong>Methods: </strong>A rapid qualitative research methodology was used. Participants comprised 22 registered nurses employed in five university hospital medical department units. The Rigorous and Accelerated Data Reduction (RADaR) technique was therefore used for data collection through qualitative semi-structured interviews and analysis. COREQ was used for reporting the study.</p><p><strong>Results: </strong>The RADaR analysis detected a downward spiral of five principal deteriorating factors influencing nurses' intentions to leave their position in the medical department. The factors were resignations from several nursing colleagues combined with too few and inexperienced nurses present during shifts, additional tasks assigned, a management refraining from improving the problematic issues, leading to decisive consequences for patient care and a declining feeling of professional care.</p><p><strong>Conclusions: </strong>The lack of nurses in the department caused missed nursing care, which affected the nurses' job satisfaction and intentions to leave their positions. Future research initiatives must focus on evaluating successful interventions to maintain the nurses in the positions. Further knowledge, is also needed, to investigate how we can change the downward spiral to a story of retention success.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140294928","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
What can nurses learn from patient's needs and wishes when developing an evidence-based quality improvement learning culture? A qualitative study. 在发展以证据为基础的质量改进学习文化时,护士能从病人的需求和愿望中学到什么?一项定性研究。
IF 1.9 4区 医学 Q2 NURSING Pub Date : 2024-09-01 Epub Date: 2024-03-25 DOI: 10.1111/scs.13252
Jeltje Giesen, Ilse Timmerman, Annick Bakker-Jacobs, Marjolein Berings, Getty Huisman-de Waal, Anneke Van Vught, Hester Vermeulen

Background: Patient participation is fundamental in nursing care and has yielded benefits for patient outcomes. However, despite their compassionate care approach, nurses do not always incorporate patients' needs and wish into evidence-based practice, quality improvement or learning activities. Therefore, a shift to continuous quality improvement based on evidence-based practice is necessary to enhance the quality of care. The patient's opinion is an essential part of this process. To establish a more sustainable learning culture for evidence-based quality improvement, it is crucial that nurses learn alongside their patients. However, to promote this, nurses require a deeper understanding of patients' care preferences.

Objective: To explore patients' needs and wishes towards being involved in care processes that nurses can use in developing an evidence-based quality improvement learning culture.

Methods: A qualitative study was conducted in two hospital departments and one community care team. In total, 18 patients were purposefully selected for individual semi-structured interviews with an average of 15 min. A framework analysis based on the fundamental of care framework was utilised to analyse the data deductively. In addition, inductive codes were added to patients' experiences beyond the framework. For reporting this study, the SRQR guideline was used.

Results: Participants needed a compassionate nurse who established and sustained a trusting relationship. They wanted nurses to be present and actively involved during the care delivery. Shared decision-making improved when nurses offered fair, clear and tailored information. Mistrust or a disrupted nurse-patient relationship was found to be time-consuming and challenging to restore.

Conclusions: Results confirmed the importance of a durable nurse-patient relationship and showed the consequences of nurses' communication on shared decision-making. Insights into patients' care preferences are essential to stimulate the development of an evidence-based quality improvement learning culture within nursing teams and for successful implementation processes.

背景:患者参与是护理工作的基础,对患者的治疗效果大有裨益。然而,尽管护士采取了富有同情心的护理方法,但她们并不总是将病人的需求和愿望纳入循证实践、质量改进或学习活动中。因此,为了提高护理质量,有必要转向以循证实践为基础的持续质量改进。在这一过程中,病人的意见是不可或缺的一部分。为了建立一种更可持续的循证质量改进学习文化,护士与病人一起学习至关重要。然而,要促进这一点,护士需要更深入地了解患者的护理偏好:探索患者对参与护理过程的需求和愿望,以便护士在发展循证质量改进学习文化时加以利用:在两个医院科室和一个社区护理团队中开展了一项定性研究。共有 18 名患者被有目的地选中进行半结构式访谈,平均访谈时间为 15 分钟。研究采用基于护理基本框架的框架分析法对数据进行演绎分析。此外,还对框架之外的患者经历添加了归纳代码。本研究报告采用了 SRQR 指南:参与者需要一名富有同情心的护士,能够建立并维持相互信任的关系。他们希望护士在护理过程中在场并积极参与。当护士提供公平、清晰和有针对性的信息时,共同决策会得到改善。研究发现,不信任或中断的护患关系需要耗费大量时间才能恢复:结论:研究结果证实了持久的护患关系的重要性,并显示了护士沟通对共同决策的影响。洞察患者的护理偏好对于促进护理团队内部循证质量改进学习文化的发展和成功实施过程至关重要。
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引用次数: 0
Stress, burnout and coping among nurses working on acute medical wards and in the community: A quantitative study. 在急症病房和社区工作的护士的压力、职业倦怠和应对方法:一项定量研究。
IF 1.9 4区 医学 Q2 NURSING Pub Date : 2024-09-01 Epub Date: 2024-07-08 DOI: 10.1111/scs.13281
Elísabet Hjörleifsdóttir, Þórhalla Sigurðardóttir, Guðmundur Kristján Óskarsson, Eva Charlotte Halapi

Background: Psychological distress can cause burnout, which affects mental and physical well-being. It is important to identify factors associated with psychological distress and physical discomfort and how nurses deal with these problems.

Aim: The aim was to investigate distress, burnout and coping among community nurses (CN) and hospital nurses (HN).

Approach and methods: In this cross-sectional study, 409 nurses completed three questionnaires: Perceived Stress Scale (PSS), Copenhagen Burnout Inventory (CBI) and Ways of Coping (WOC).

Findings: Participants younger than 40 demonstrated significantly more distress and burnout than those older than 40 years. Participants who had moderate and high distress on the PSS were significantly more at risk for experiencing personal, work-related and patient-related burnout. A significant positive correlation was found between distress and behavioural escape-avoidance, cognitive escape-avoidance and distancing. Significant positive correlations were also seen between all the subscales of the CBI and behavioural escape-avoidance, cognitive escape-avoidance and distancing. Positive significant correlation was also obtained between staff resources and distress and personal-related and work-related burnout. Negative correlation was demonstrated between staff resources and patient-related burnout. Participants with longer work experience were less likely to report moderate or high distress, and those who scored higher on personal burnout and behavioural escape-avoidance were more likely to have moderate or high distress.

Conclusion: The results of this study call for increased attention to the younger generation in the nursing profession. The results also validate the need to investigate further the correlation between distress, burnout and coping and how these issues might influence each other among nurses working in the community and hospitals. Findings should be taken with precaution, they do not describe in detail what underlying factors contribute to distress and discomfort found in this study, they do, however, indicate certain coping strategies nurses use to deal with distress and burnout.

背景:心理困扰会导致职业倦怠,影响身心健康。目的:本研究旨在调查社区护士(CN)和医院护士(HN)的心理压力、职业倦怠和应对方法:在这项横断面研究中,409 名护士填写了三份问卷:研究结果:409 名护士填写了三份问卷:感知压力量表(PSS)、哥本哈根职业倦怠量表(CBI)和应对方式(WOC):结果:40 岁以下的参与者比 40 岁以上的参与者表现出更多的压力和职业倦怠。PSS 中度和高度痛苦的参与者在个人、工作相关和患者相关倦怠方面的风险明显更高。苦恼与行为逃避、认知逃避和疏远之间存在明显的正相关。此外,CBI 的所有分量表与行为逃避、认知逃避和疏远之间也存在显著的正相关。员工资源与困扰、个人相关倦怠和工作相关倦怠之间也存在明显的正相关。员工资源与患者相关倦怠之间呈负相关。工作经验较长的参与者报告中度或高度倦怠的可能性较小,而在个人倦怠和逃避行为方面得分较高的参与者更有可能出现中度或高度倦怠:本研究的结果呼吁人们更加关注护理行业中的年轻一代。研究结果还证明,有必要进一步调查在社区和医院工作的护士在困扰、职业倦怠和应对之间的相互关系,以及这些问题可能如何相互影响。研究结果应谨慎对待,因为这些结果并未详细描述本研究中发现的导致困扰和不适的潜在因素,但确实指出了护士在应对困扰和职业倦怠时所采用的某些应对策略。
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引用次数: 0
Facing and dealing with emotional turbulence: Living with newly diagnosed Parkinson's disease. 面对和处理情绪波动:与新诊断出的帕金森病患者一起生活。
IF 1.9 4区 医学 Q2 NURSING Pub Date : 2024-09-01 Epub Date: 2024-03-27 DOI: 10.1111/scs.13258
Catharina Sjödahl Hammarlund, Atika Khalaf, Albert Westergren, Petra Lilja Hagell, Peter Hagell

Introduction: The experiences of living with Parkinson's disease (PD) from the perspective of newly diagnosed persons with PD (PwPD) have not been previously described.

Aim: This study aimed to gain a better understanding of the impact of living with the early stages of PD.

Methods: A qualitative interview study was conducted among nine persons, seven men and two women, from southern Sweden. Participants had a median age of 71 (min-max, 64-77) years and had been diagnosed with PD for a median of 5 (min-max, 2-12) months. Interviews were recorded and analysed using systematic text condensation.

Results: The analysis resulted in one core category, Facing and dealing with emotional turbulence, and four categories with 2-3 subcategories each: Something is wrong (Vague signs of change; Losing control); The going gets tough (Recalling; Lack of motivation); Losing direction (Uncertainties; Frightened of disease progression) and Dealing with life (Avoiding social situations; Hope and despair; Ease worries).

Conclusion: Newly diagnosed PwPD face emotional turbulence with increasing challenges in managing everyday basic needs. Impaired functioning affects self-esteem and identity, which calls for strategies to overcome emotional reactions of embarrassment, frustration and worry. A sense of lost control and direction increased as the future became more uncertain. The participants' emotional burden and struggle to find a reason to go on or some solution to their new situation left them with both hope and despair. Our results suggest that a person-centred needs-based approach may help newly diagnosed PwPD deal with their new life situation.

导言:本研究旨在更好地了解帕金森病早期对患者生活的影响:对瑞典南部的九名患者(七名男性和两名女性)进行了定性访谈研究。参与者的年龄中位数为 71 岁(最小-最大值为 64-77 岁),被诊断出患有帕金森病的时间中位数为 5 个月(最小-最大值为 2-12 个月)。对访谈进行了记录,并采用系统文本压缩法进行了分析:分析得出一个核心类别,即面对和处理情绪波动,以及四个类别,每个类别有 2-3 个子类别:事情不对劲(变化的模糊迹象;失去控制);情况变得艰难(回忆;缺乏动力);失去方向(不确定性;对疾病进展感到恐惧)和应对生活(避免社交场合;希望与绝望;缓解忧虑):结论:新确诊的帕金森病患者面临情绪波动,在满足日常基本需求方面面临越来越多的挑战。功能受损会影响自尊和身份认同,这就需要采取策略来克服尴尬、沮丧和担忧等情绪反应。随着未来变得更加不确定,失控感和方向感也随之增加。参与者的情绪负担和为找到继续前进的理由或解决新情况的办法而进行的斗争,使他们既充满希望又感到绝望。我们的研究结果表明,以人为本、以需求为基础的方法可以帮助新确诊的残疾人应对新的生活状况。
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引用次数: 0
End-of-life conversations for the older person: A concept analysis. 老年人临终对话:概念分析。
IF 1.9 4区 医学 Q2 NURSING Pub Date : 2024-09-01 Epub Date: 2024-05-22 DOI: 10.1111/scs.13263
Wing Ki Agnes Yip, Pui Man Betty Chung, Martin Christensen

Aim: The aim of this concept analysis is to seek clarity as to what end-of-life conversations involve by developing a clear working definition and using model cases to conceptualise the defining attributes of an end-of-life conversations with the older person.

Design: Walker and Avant's eight step approach to Concept Analysis.

Data sources: Four databases were searched, including PubMed, CINAHL, PsycINFO, and Scopus. A total of 339 publications were identified with 30 papers meeting the inclusion criteria and put forward for the final conceptual analysis.

Results: The defining attributes associated with end-of life conversations included (1) an ongoing process of older person empowerment, (2) discussion's concerning values and preferences concerning end-of-life issues, and (3) maintaining an open dialogue between all concerned individuals. Antecedents were associated with the older person is their readiness to talk openly about death and dying. Consequences were identified as having a better understanding of what death and dying may mean to the older person in a more specific manner.

Conclusions: End-of-life conversations are vital in understanding an individual's values and preferences at the end of life, and yet, the concept of the end-of-life conversation has not been well defined in the literature. End-of-life conversations with the older person encompass ongoing discussions and maintaining open dialogue around end-of-life care while developing strategies to promote individual empowerment in making informed choices. Using a conceptual model, aides in addressing aspects of end-of-life conversations and an acknowledgment of the dynamic process of end-of-life conversations.

目的:本概念分析的目的是通过制定一个明确的工作定义,并使用示范案例将与老年人的临终对话的定义属性概念化,从而明确临终对话的内容:设计:Walker 和 Avant 的概念分析八步法:搜索了四个数据库,包括 PubMed、CINAHL、PsycINFO 和 Scopus。共发现 339 篇出版物,其中 30 篇符合纳入标准,并被提交进行最终的概念分析:与生命末期对话相关的决定性因素包括:(1)老年人赋权的持续过程;(2)关于生命末期问题的价值观和偏好的讨论;(3)所有相关人员之间保持开放的对话。前因与老年人是否愿意公开谈论死亡和临终有关。结果是以更具体的方式更好地理解死亡和临终对老年人的意义:生命末期谈话对于了解个人在生命末期的价值观和偏好至关重要,然而,文献中对生命末期谈话的概念还没有很好的定义。与老年人的临终对话包括持续讨论和保持围绕临终关怀的公开对话,同时制定策略以促进个人在做出知情选择时的能力。使用概念模型有助于解决生命末期对话的各个方面,并承认生命末期对话的动态过程。
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引用次数: 0
Evaluation of the Swedish Self-Efficacy in Palliative Care Scale and exploration of nurses' and physicians' self-efficacy in Swedish hospitals: A cross-sectional study. 评估瑞典姑息治疗自我效能感量表,探讨瑞典医院护士和医生的自我效能感:横断面研究。
IF 1.9 4区 医学 Q2 NURSING Pub Date : 2024-09-01 Epub Date: 2024-03-07 DOI: 10.1111/scs.13244
Lisa Granat, Sofia Andersson, Daniel Åberg, Emina Hadziabdic, Anna Sandgren

Background: Previous research found that healthcare professionals had low preparedness for palliative care. Thus, it is necessary to explore healthcare professionals' self-efficacy. The Swedish Self-Efficacy in Palliative Care Scale (SEPC-SE) evaluates readiness in communication, patient management and multidisciplinary teamwork; however, it should be tested on a larger population. Furthermore, the constructs of the SEPC-SE should be compared to that of the original SEPC.

Aim: This study aimed to evaluate the consensus between the construct validity and reliability of the SEPC and the translated and adapted SEPC-SE. Furthermore, it aimed to describe and compare the self-efficacy of nurses and physicians in hospitals and explore the associated factors.

Methods: The nurses (n = 288) and physicians (n = 104) completed the SEPC-SE. Factor analysis with Cronbach's alpha evaluated validity and reliability, and an analysis using the Mann-Whitney U test compared self-efficacy and multiple linear regression-associated factors.

Results: The SEPC-SE revealed three factors with high reliability. Education or experience in specialised palliative care was minor, especially for nurses. Self-efficacy was highest in patient management (nurses, median [md] = 74.57, physicians md = 81.71, p = 0.010) and communication (nurses md = 69.88, physicians md = 77.00, p = 0.141) and lowest in multidisciplinary teamwork (nurses md = 52.44, physicians md = 62.88, p = 0.001). The strongest associations with self-efficacy were education at work and advanced homecare experiences. In addition, there were significant associations between years in the profession, male sex, physicians and university education.

Conclusion: The SEPC-SE is valid and reliable for measuring self-efficacy. Nurses had lower self-efficacy than physicians. Physicians were associated with higher self-efficacy and had more education and experience in palliative care settings, which may explain their levels of self-efficacy.

背景:以往的研究发现,医护人员对姑息关怀的准备程度较低。因此,有必要探究医护人员的自我效能。瑞典姑息治疗自我效能量表(SEPC-SE)可评估医护人员在沟通、患者管理和多学科团队合作方面的准备情况;但该量表应在更大范围的人群中进行测试。目的:本研究旨在评估姑息治疗自我认知量表(SEPC)与经翻译和改编的姑息治疗自我认知量表(SEPC-SE)在构架效度和信度方面的一致性。此外,研究还旨在描述和比较医院护士和医生的自我效能感,并探讨相关因素:护士(288 人)和医生(104 人)完成了 SEPC-SE。使用 Cronbach's alpha 进行因子分析,评估有效性和可靠性;使用 Mann-Whitney U 检验进行分析,比较自我效能感和多元线性回归相关因子:结果:SEPC-SE显示了三个可靠性较高的因素。专业姑息关怀的教育或经验是次要因素,尤其是对护士而言。患者管理(护士,中位数[md] = 74.57,医生,中位数 = 81.71,p = 0.010)和沟通(护士,中位数 = 69.88,医生,中位数 = 77.00,p = 0.141)方面的自我效能感最高,而多学科团队合作(护士,中位数 = 52.44,医生,中位数 = 62.88,p = 0.001)方面的自我效能感最低。与自我效能相关性最强的是工作教育和先进的家庭护理经验。此外,从业年限、男性、医生和大学教育程度之间也有明显的关联:结论:SEPC-SE 在测量自我效能感方面是有效和可靠的。护士的自我效能感低于医生。医生的自我效能感较高,并且在姑息关怀领域受过更多教育、拥有更多经验,这可能是他们自我效能感水平较高的原因。
{"title":"Evaluation of the Swedish Self-Efficacy in Palliative Care Scale and exploration of nurses' and physicians' self-efficacy in Swedish hospitals: A cross-sectional study.","authors":"Lisa Granat, Sofia Andersson, Daniel Åberg, Emina Hadziabdic, Anna Sandgren","doi":"10.1111/scs.13244","DOIUrl":"10.1111/scs.13244","url":null,"abstract":"<p><strong>Background: </strong>Previous research found that healthcare professionals had low preparedness for palliative care. Thus, it is necessary to explore healthcare professionals' self-efficacy. The Swedish Self-Efficacy in Palliative Care Scale (SEPC-SE) evaluates readiness in communication, patient management and multidisciplinary teamwork; however, it should be tested on a larger population. Furthermore, the constructs of the SEPC-SE should be compared to that of the original SEPC.</p><p><strong>Aim: </strong>This study aimed to evaluate the consensus between the construct validity and reliability of the SEPC and the translated and adapted SEPC-SE. Furthermore, it aimed to describe and compare the self-efficacy of nurses and physicians in hospitals and explore the associated factors.</p><p><strong>Methods: </strong>The nurses (n = 288) and physicians (n = 104) completed the SEPC-SE. Factor analysis with Cronbach's alpha evaluated validity and reliability, and an analysis using the Mann-Whitney U test compared self-efficacy and multiple linear regression-associated factors.</p><p><strong>Results: </strong>The SEPC-SE revealed three factors with high reliability. Education or experience in specialised palliative care was minor, especially for nurses. Self-efficacy was highest in patient management (nurses, median [md] = 74.57, physicians md = 81.71, p = 0.010) and communication (nurses md = 69.88, physicians md = 77.00, p = 0.141) and lowest in multidisciplinary teamwork (nurses md = 52.44, physicians md = 62.88, p = 0.001). The strongest associations with self-efficacy were education at work and advanced homecare experiences. In addition, there were significant associations between years in the profession, male sex, physicians and university education.</p><p><strong>Conclusion: </strong>The SEPC-SE is valid and reliable for measuring self-efficacy. Nurses had lower self-efficacy than physicians. Physicians were associated with higher self-efficacy and had more education and experience in palliative care settings, which may explain their levels of self-efficacy.</p>","PeriodicalId":48171,"journal":{"name":"Scandinavian Journal of Caring Sciences","volume":null,"pages":null},"PeriodicalIF":1.9,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140060805","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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Scandinavian Journal of Caring Sciences
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