首页 > 最新文献

Issues in Law & Medicine最新文献

英文 中文
Neurorights: The Debate About New Legal Safeguards to Protect the Mind. 《神经权利:关于保护思想的新法律保障的辩论》。
IF 0.9 4区 医学 Q3 LAW Pub Date : 2022-01-01
Timo Istace

Unprecedented efforts are made to research and develop technologies that are directly connected to the brain and allow us to access, monitor, investigate, assess, manipulate or stimulate neural processes. This exciting development holds many valuable prospects in the medical context and in other fields of daily life such as entertainment, security or criminal justice. However, it also raises major concerns among ethicists and human rights advocates, who argue that fundamental interests are put at risk as these neurotechnologies result in a growing accessibility and influenceability of the mind. In this article, I will describe how neurotechnologies may affect fundamental interests and how this concern led to the emergence of the concept of neurorights within human rights doctrine and policy. I will first outline the current state of the art and the prospects of neurotechnology, and discuss how this technology impacts the mind. Second, I will examine how this in turn may impact our mental privacy, autonomy, authenticity, personal identity, the self, and non-discrimination. Finally, I will show how these concerns prompted initiatives to establish neurorights as new human rights offering appropriate legal safeguards that protect the human mind against unwanted interference by neurotechnology.

人们付出了前所未有的努力来研究和开发直接与大脑相连的技术,使我们能够访问、监测、调查、评估、操纵或刺激神经过程。这一令人兴奋的发展在医疗环境和其他日常生活领域(如娱乐、安全或刑事司法)具有许多宝贵的前景。然而,这也引起了伦理学家和人权倡导者的重大担忧,他们认为,由于这些神经技术导致大脑的可及性和影响力越来越大,根本利益受到威胁。在本文中,我将描述神经技术如何影响基本利益,以及这种关注如何导致人权理论和政策中神经权利概念的出现。我将首先概述当前的艺术状态和神经技术的前景,并讨论这项技术如何影响思想。其次,我将研究这反过来会如何影响我们的精神隐私、自主性、真实性、个人身份、自我和非歧视。最后,我将展示这些担忧如何促使人们主动将神经权利确立为新的人权,提供适当的法律保障,保护人类思想免受神经技术的不必要干扰。
{"title":"Neurorights: The Debate About New Legal Safeguards to Protect the Mind.","authors":"Timo Istace","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>Unprecedented efforts are made to research and develop technologies that are directly connected to the brain and allow us to access, monitor, investigate, assess, manipulate or stimulate neural processes. This exciting development holds many valuable prospects in the medical context and in other fields of daily life such as entertainment, security or criminal justice. However, it also raises major concerns among ethicists and human rights advocates, who argue that fundamental interests are put at risk as these neurotechnologies result in a growing accessibility and influenceability of the mind. In this article, I will describe how neurotechnologies may affect fundamental interests and how this concern led to the emergence of the concept of neurorights within human rights doctrine and policy. I will first outline the current state of the art and the prospects of neurotechnology, and discuss how this technology impacts the mind. Second, I will examine how this in turn may impact our mental privacy, autonomy, authenticity, personal identity, the self, and non-discrimination. Finally, I will show how these concerns prompted initiatives to establish neurorights as new human rights offering appropriate legal safeguards that protect the human mind against unwanted interference by neurotechnology.</p>","PeriodicalId":48665,"journal":{"name":"Issues in Law & Medicine","volume":"37 1","pages":"95-114"},"PeriodicalIF":0.9,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9088252","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The First Thousand Days of Life. 生命最初的一千天。
IF 0.9 4区 医学 Q3 LAW Pub Date : 2022-01-01
George Mulcaire-Jones, Robert Scanlon

The first thousand days of life, composing the 270 days of pregnancy and the first two years (730 days) of life, is at once a critical and vulnerable time for human development. It is a time in which the human person is to a large extent "embodied," becoming the integrated mind-brain-body-spirit that defines every human being. This embodiment is set in motion at fertilization and continues with the unfolding development of the embryo. By six weeks in utero, the brain is forming via ongoing neurogenesis, neuronal migration, synaptogenesis, and myelination. By the age of two the brain will be 80 percent of its adult size. As the brain develops, it connects to other developing body systems including the immune, endocrine, metabolic, gastrointestinal, cardiovascular and musculoskeletal systems. In this process of interconnection, a human being is shaped by both internal and external environments, both at the stage of the fetus and the stage of the infant. Human well-being and flourishing depends upon making these first thousand days as safe, secure, and healthy as possible. Physician practices, local health policy, and global health advocacy should focus on optimizing the first thousand days. This should include pre-conception care, pregnancy, safe birth, infant nutrition and fostering secure emotional and relational attachments.

生命的最初1000天,包括怀孕的270天和生命的头两年(730天),是人类发展的关键和脆弱时期。这是一个人类在很大程度上“具体化”的时代,成为定义每个人的心智-大脑-身体-精神的综合。该实施例在受精时启动,并随着胚胎的展开发育而继续。在子宫内6周时,大脑通过持续的神经发生、神经元迁移、突触发生和髓鞘形成。到两岁时,大脑的大小将是成人的80%。随着大脑的发育,它与其他发育中的身体系统相连,包括免疫系统、内分泌系统、代谢系统、胃肠道系统、心血管系统和肌肉骨骼系统。在这个相互联系的过程中,一个人是由内部和外部环境共同塑造的,既包括胎儿阶段,也包括婴儿阶段。人类的福祉和繁荣取决于使最初的一千天尽可能安全、可靠和健康。医生实践、地方卫生政策和全球卫生宣传应将重点放在优化最初的1000天上。这应包括孕前护理、怀孕、安全分娩、婴儿营养和培养安全的情感和关系依恋。
{"title":"The First Thousand Days of Life.","authors":"George Mulcaire-Jones,&nbsp;Robert Scanlon","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>The first thousand days of life, composing the 270 days of pregnancy and the first two years (730 days) of life, is at once a critical and vulnerable time for human development. It is a time in which the human person is to a large extent \"embodied,\" becoming the integrated mind-brain-body-spirit that defines every human being. This embodiment is set in motion at fertilization and continues with the unfolding development of the embryo. By six weeks in utero, the brain is forming via ongoing neurogenesis, neuronal migration, synaptogenesis, and myelination. By the age of two the brain will be 80 percent of its adult size. As the brain develops, it connects to other developing body systems including the immune, endocrine, metabolic, gastrointestinal, cardiovascular and musculoskeletal systems. In this process of interconnection, a human being is shaped by both internal and external environments, both at the stage of the fetus and the stage of the infant. Human well-being and flourishing depends upon making these first thousand days as safe, secure, and healthy as possible. Physician practices, local health policy, and global health advocacy should focus on optimizing the first thousand days. This should include pre-conception care, pregnancy, safe birth, infant nutrition and fostering secure emotional and relational attachments.</p>","PeriodicalId":48665,"journal":{"name":"Issues in Law & Medicine","volume":"37 2","pages":"249-256"},"PeriodicalIF":0.9,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10524693","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Abortion and Public Policy: Review of U.S. Catholic Bishops' Teaching and the Future. 堕胎与公共政策:回顾美国天主教主教的教导与未来。
IF 0.9 4区 医学 Q3 LAW Pub Date : 2022-01-01
Michael A Taylor

The U.S. Roman Catholic bishops have been earnest participants in the contemporary public policy debate on abortion. This article reviews the bishops' main policy documents in which the Church's teaching on abortion is applied, first, within the context of the debate on abortion policy that was underway in the states before Roe v. Wade, and, second, within the grave and challenging situation thereafter when a right to abortion was made the law of the land. Whether discussing court cases, statutory law, human life bills, or various proposals to amend the Constitution, the bishops raised up a broad vision of full protection in law for all human beings, born and unborn, and promoted a comprehensive program of education, pastoral care, public policy, and prayer. Building off this review the article concludes with some initial reflections on the Dobbs world in which the Court has returned the abortion issue to the people and their elected representatives.

美国罗马天主教的主教们一直是当代关于堕胎的公共政策辩论的积极参与者。本文回顾了主教们的主要政策文件,在这些文件中,教会对堕胎的教导得到了应用,首先,在罗伊诉韦德案之前,各州正在进行的关于堕胎政策的辩论的背景下,其次,在堕胎权被制定为土地法之后,在严重和具有挑战性的情况下。无论是讨论法庭案件、成文法、人类生命法案,还是各种修改宪法的提案,主教们都提出了一个广泛的愿景,即在法律上充分保护所有人,包括出生的和未出生的人,并推动了一个全面的教育、教牧关怀、公共政策和祈祷计划。在这一审查的基础上,文章最后对多布斯世界进行了一些初步思考,在这个世界中,法院将堕胎问题归还给了人民和他们选出的代表。
{"title":"Abortion and Public Policy: Review of U.S. Catholic Bishops' Teaching and the Future.","authors":"Michael A Taylor","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>The U.S. Roman Catholic bishops have been earnest participants in the contemporary public policy debate on abortion. This article reviews the bishops' main policy documents in which the Church's teaching on abortion is applied, first, within the context of the debate on abortion policy that was underway in the states before <i>Roe v. Wade</i>, and, second, within the grave and challenging situation thereafter when a right to abortion was made the law of the land. Whether discussing court cases, statutory law, human life bills, or various proposals to amend the Constitution, the bishops raised up a broad vision of full protection in law for all human beings, born and unborn, and promoted a comprehensive program of education, pastoral care, public policy, and prayer. Building off this review the article concludes with some initial reflections on the <i>Dobbs</i> world in which the Court has returned the abortion issue to the people and their elected representatives.</p>","PeriodicalId":48665,"journal":{"name":"Issues in Law & Medicine","volume":"37 2","pages":"129-164"},"PeriodicalIF":0.9,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10524690","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Alta Fixsler: Medico-legal Paternalism in UK Paediatric Best Interest Decisions. Alta Fixsler:英国儿科最佳利益决策中的医疗法律家长主义。
IF 0.9 4区 医学 Q3 LAW Pub Date : 2022-01-01
Michal Pruski

The case of Alta Fixsler, where a judge ruled that withdrawing life sustaining care was in her best interest rather than transferring her to Israel, as her parents wanted, is the latest in a series of controversial paediatric best interest decisions. Using this case, as well as some other recent cases, I argue that the UK exhibits a high degree of medico-legal paternalism in best interest decisions, even though paternalism seems to be ubiquitously negatively perceived in medical ethics. Firstly, I explain what I mean by medico-legal paternalism and defend my claim that this phenomenon is present in the UK. I then argue that at least philosophically (rather than legally) such a situation is impossible to justify in a secular state and that how we treat paediatric best interest decisions is very different from other areas of medical law. Lastly, I discuss proposals that aim to rectify this situation.

法官裁定撤销维持生命护理符合她的最大利益,而不是像她父母希望的那样将她转移到以色列,这是一系列有争议的儿科最佳利益决定中最新的一个。利用这个案例,以及最近的一些其他案例,我认为英国在最佳利益决策中表现出高度的医疗法律家长式作风,尽管家长式作风似乎在医学伦理中无处不在地被认为是负面的。首先,我解释了我所说的医学法律家长主义是什么意思,并为我的观点辩护,即这种现象在英国是存在的。然后我认为,至少在哲学上(而不是法律上),这种情况在世俗国家是不可能证明的,我们如何对待儿科最佳利益决定与其他医疗法领域非常不同。最后,我讨论了旨在纠正这种情况的建议。
{"title":"Alta Fixsler: Medico-legal Paternalism in UK Paediatric Best Interest Decisions.","authors":"Michal Pruski","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>The case of Alta Fixsler, where a judge ruled that withdrawing life sustaining care was in her best interest rather than transferring her to Israel, as her parents wanted, is the latest in a series of controversial paediatric best interest decisions. Using this case, as well as some other recent cases, I argue that the UK exhibits a high degree of medico-legal paternalism in best interest decisions, even though paternalism seems to be ubiquitously negatively perceived in medical ethics. Firstly, I explain what I mean by medico-legal paternalism and defend my claim that this phenomenon is present in the UK. I then argue that at least philosophically (rather than legally) such a situation is impossible to justify in a secular state and that how we treat paediatric best interest decisions is very different from other areas of medical law. Lastly, I discuss proposals that aim to rectify this situation.</p>","PeriodicalId":48665,"journal":{"name":"Issues in Law & Medicine","volume":"37 1","pages":"81-94"},"PeriodicalIF":0.9,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9088253","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Practice Guideline 11: A Detailed Examination of the Data on Surgical Abortion and Preterm Birth. 实践指南11:手术流产和早产数据的详细检查。
IF 0.9 4区 医学 Q3 LAW Pub Date : 2022-01-01

Overwhelming evidence from 168 studies over fifty years points to a clear dose-response relationship between surgical abortion and subsequent preterm birth. The 2018 National Academy of Sciences report considered only five of these 168 studies and represents a biased sample that underreports a significant association between surgical abortion and subsequent preterm birth. The purpose of this document is to review the quality of the data on this effect, review the size of this effect, and portray an accurate assessment of the data to improve informed consent prior to surgical abortion.

50年来168项研究的压倒性证据表明,手术流产与随后的早产之间存在明确的剂量-反应关系。2018年美国国家科学院的报告只考虑了这168项研究中的5项,并且代表了一个有偏见的样本,低估了手术流产与随后的早产之间的重要关联。本文件的目的是审查这一影响的数据质量,审查这一影响的大小,并描绘一个准确的数据评估,以改善手术流产前的知情同意。
{"title":"Practice Guideline 11: A Detailed Examination of the Data on Surgical Abortion and Preterm Birth.","authors":"","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>Overwhelming evidence from 168 studies over fifty years points to a clear dose-response relationship between surgical abortion and subsequent preterm birth. The 2018 National Academy of Sciences report considered only five of these 168 studies and represents a biased sample that underreports a significant association between surgical abortion and subsequent preterm birth. The purpose of this document is to review the quality of the data on this effect, review the size of this effect, and portray an accurate assessment of the data to improve informed consent prior to surgical abortion.</p>","PeriodicalId":48665,"journal":{"name":"Issues in Law & Medicine","volume":"37 2","pages":"189-220"},"PeriodicalIF":0.9,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10588532","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Balancing the Needs of Society and the Individual Patient. 平衡社会和个体患者的需求。
IF 0.9 4区 医学 Q3 LAW Pub Date : 2022-01-01
Marilyn Singleton

In line with the Oath of Hippocrates, the American Medical Association (AMA) code of ethics states that the duty to advocate for the patient is paramount. However, many instances in healthcare expose a discrepancy between the needs of society and the needs of individual patients. Given that society is merely a collection of individuals, one's personal physician is uniquely qualified to devise solutions that can resolve that conflict. This essay will discuss the potential overreach of public health interventions and solutions that ethically serve societal interests to help physicians maintain their duty to individual patients' health and confidentiality.

根据希波克拉底誓言,美国医学协会(AMA)的道德准则规定,为病人辩护的责任是至高无上的。然而,在医疗保健领域的许多实例暴露了社会需求与个体患者需求之间的差异。鉴于社会只是个体的集合体,个人的私人医生是唯一有资格设计解决冲突的方案的人。这篇文章将讨论潜在的公共卫生干预和解决方案,道德服务于社会利益,以帮助医生保持他们的责任,个别病人的健康和保密。
{"title":"Balancing the Needs of Society and the Individual Patient.","authors":"Marilyn Singleton","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>In line with the Oath of Hippocrates, the American Medical Association (AMA) code of ethics states that the duty to advocate for the patient is paramount. However, many instances in healthcare expose a discrepancy between the needs of society and the needs of individual patients. Given that society is merely a collection of individuals, one's personal physician is uniquely qualified to devise solutions that can resolve that conflict. This essay will discuss the potential overreach of public health interventions and solutions that ethically serve societal interests to help physicians maintain their duty to individual patients' health and confidentiality.</p>","PeriodicalId":48665,"journal":{"name":"Issues in Law & Medicine","volume":"37 2","pages":"241-248"},"PeriodicalIF":0.9,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10515367","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Committee Opinion 11: Non-Representation of Pro-Life OB/GYNs in the American College of Obstetricians and Gynecologists. 委员会意见11:在美国妇产科医师学会中没有反堕胎的妇产科医师代表。
IF 0.9 4区 医学 Q3 LAW Pub Date : 2022-01-01

The American College of Obstetricians and Gynecologists (ACOG) is the default professional organization for obstetricians and gynecologists in the United States. Unfortunately, ACOG's policy and treatment of abortion is more radical than a large section of the country's obstetricians and gynecologists. ACOG has functionally ceased to represent this section of physicians, as its voice no longer speaks in unison with theirs. Worse still, ACOG has actively opposed obstetricians and gynecologists who do not agree with their radical policy, or who advocate for individual rights to choose not to refer for abortion. This document describes ACOG's abortion policy and outlines the events that led to non-representation.

美国妇产科医师学会(ACOG)是美国妇产科医师默认的专业组织。不幸的是,ACOG对堕胎的政策和治疗比国内大部分妇产科医生都要激进。ACOG在功能上已经不再代表这部分医生,因为它的声音不再与他们的声音一致。更糟糕的是,ACOG积极反对那些不同意他们激进政策的妇产科医生,或者那些主张个人选择不堕胎的权利的医生。本文件描述了ACOG的堕胎政策,并概述了导致无代表的事件。
{"title":"Committee Opinion 11: Non-Representation of Pro-Life OB/GYNs in the American College of Obstetricians and Gynecologists.","authors":"","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>The American College of Obstetricians and Gynecologists (ACOG) is the default professional organization for obstetricians and gynecologists in the United States. Unfortunately, ACOG's policy and treatment of abortion is more radical than a large section of the country's obstetricians and gynecologists. ACOG has functionally ceased to represent this section of physicians, as its voice no longer speaks in unison with theirs. Worse still, ACOG has actively opposed obstetricians and gynecologists who do not agree with their radical policy, or who advocate for individual rights to choose not to refer for abortion. This document describes ACOG's abortion policy and outlines the events that led to non-representation.</p>","PeriodicalId":48665,"journal":{"name":"Issues in Law & Medicine","volume":"37 2","pages":"221-230"},"PeriodicalIF":0.9,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10515366","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
What is NOT an Abortion? 什么不是堕胎?
IF 0.9 4区 医学 Q3 LAW Pub Date : 2022-01-01
Jeffrey Wright
{"title":"What is NOT an Abortion?","authors":"Jeffrey Wright","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":48665,"journal":{"name":"Issues in Law & Medicine","volume":"37 2","pages":"175-178"},"PeriodicalIF":0.9,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9471063","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The New Sexual Revolution: Protecting Our Children from the Hedonistic Dangers of "Comprehensive Sex Education". 新的性革命:保护我们的孩子免受“综合性教育”带来的享乐主义危害。
IF 0.9 4区 医学 Q3 LAW Pub Date : 2022-01-01
Joseph Zanga

Children currently comprise just under 23% of our population but remain 100% of our future. It is therefore incumbent on us to ensure the most healthful future possible for them. This paper presents an evidence-based "K-12 Standard for Optimal Sexual Development" to encourage the education of children about sex risk avoidance (SRA) behaviors such as monogamy, relationship skills, and healthy psychological traits as an alternative to Comprehensive Sex Education (CSE) which is not based on age-appropriate sexual milestones or behaviors.

儿童目前只占总人口的不到23%,但仍是我们未来的100%。因此,我们有责任确保他们有一个尽可能健康的未来。本文提出了一个基于证据的“K-12最佳性发展标准”,以鼓励对儿童进行性风险规避(SRA)行为的教育,如一夫一妻制,关系技巧和健康的心理特征,作为不基于适龄性里程碑或性行为的全面性教育(CSE)的替代方案。
{"title":"The New Sexual Revolution: Protecting Our Children from the Hedonistic Dangers of \"Comprehensive Sex Education\".","authors":"Joseph Zanga","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>Children currently comprise just under 23% of our population but remain 100% of our future. It is therefore incumbent on us to ensure the most healthful future possible for them. This paper presents an evidence-based \"K-12 Standard for Optimal Sexual Development\" to encourage the education of children about sex risk avoidance (SRA) behaviors such as monogamy, relationship skills, and healthy psychological traits as an alternative to Comprehensive Sex Education (CSE) which is not based on age-appropriate sexual milestones or behaviors.</p>","PeriodicalId":48665,"journal":{"name":"Issues in Law & Medicine","volume":"37 2","pages":"233-236"},"PeriodicalIF":0.9,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10524691","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Reform of the Newborn Screening Policy: Spinal Muscular Atrophy. 新生儿筛查政策的改革:脊髓性肌萎缩症。
IF 0.9 4区 医学 Q3 LAW Pub Date : 2021-01-01
Blanka Bartos

One in every 10,000 children is born with SMA and half of them will not even live two years. It is a hereditary genetic disorder, where the muscles die. If it is discovered just after birth, newborns can get the newest medicines to maintain their health. Unlike some other common genetic diseases (e.g. Down-Syndrome), SMA can be screened prior to pregnancy to determine whether the parents are carriers. In Hungary, people have urged reform, due to the baby Zente case, whose story has reached millions. Australia and Germany have also discovered the need for screenings. However, the US has already introduced newborn screening for SMA, far ahead of European countries. National policies should adhere to the same path to contribute to appropriate family planning and to make the treatment available as soon as needed to provide a longer and better life for sick infants.

每一万名儿童中就有一名患有先天性肌肉萎缩症,其中一半甚至活不过两年。这是一种遗传性遗传病,肌肉会死亡。如果刚出生就被发现,新生儿可以得到最新的药物来保持他们的健康。与其他一些常见的遗传性疾病(如唐氏综合症)不同,SMA可以在怀孕前进行筛查,以确定父母是否为携带者。在匈牙利,由于婴儿赞特案,人们敦促改革,他的故事已经触及数百万人。澳大利亚和德国也发现了筛查的必要性。然而,美国已经引入了新生儿SMA筛查,远远领先于欧洲国家。国家政策应坚持同样的道路,促进适当的计划生育,并在需要时尽早提供治疗,以便为患病婴儿提供更长久和更好的生活。
{"title":"The Reform of the Newborn Screening Policy: Spinal Muscular Atrophy.","authors":"Blanka Bartos","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>One in every 10,000 children is born with SMA and half of them will not even live two years. It is a hereditary genetic disorder, where the muscles die. If it is discovered just after birth, newborns can get the newest medicines to maintain their health. Unlike some other common genetic diseases (e.g. Down-Syndrome), SMA can be screened prior to pregnancy to determine whether the parents are carriers. In Hungary, people have urged reform, due to the baby Zente case, whose story has reached millions. Australia and Germany have also discovered the need for screenings. However, the US has already introduced newborn screening for SMA, far ahead of European countries. National policies should adhere to the same path to contribute to appropriate family planning and to make the treatment available as soon as needed to provide a longer and better life for sick infants.</p>","PeriodicalId":48665,"journal":{"name":"Issues in Law & Medicine","volume":"36 2","pages":"211-220"},"PeriodicalIF":0.9,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10524698","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
期刊
Issues in Law & Medicine
全部 Acc. Chem. Res. ACS Applied Bio Materials ACS Appl. Electron. Mater. ACS Appl. Energy Mater. ACS Appl. Mater. Interfaces ACS Appl. Nano Mater. ACS Appl. Polym. Mater. ACS BIOMATER-SCI ENG ACS Catal. ACS Cent. Sci. ACS Chem. Biol. ACS Chemical Health & Safety ACS Chem. Neurosci. ACS Comb. Sci. ACS Earth Space Chem. ACS Energy Lett. ACS Infect. Dis. ACS Macro Lett. ACS Mater. Lett. ACS Med. Chem. Lett. ACS Nano ACS Omega ACS Photonics ACS Sens. ACS Sustainable Chem. Eng. ACS Synth. Biol. Anal. Chem. BIOCHEMISTRY-US Bioconjugate Chem. BIOMACROMOLECULES Chem. Res. Toxicol. Chem. Rev. Chem. Mater. CRYST GROWTH DES ENERG FUEL Environ. Sci. Technol. Environ. Sci. Technol. Lett. Eur. J. Inorg. Chem. IND ENG CHEM RES Inorg. Chem. J. Agric. Food. Chem. J. Chem. Eng. Data J. Chem. Educ. J. Chem. Inf. Model. J. Chem. Theory Comput. J. Med. Chem. J. Nat. Prod. J PROTEOME RES J. Am. Chem. Soc. LANGMUIR MACROMOLECULES Mol. Pharmaceutics Nano Lett. Org. Lett. ORG PROCESS RES DEV ORGANOMETALLICS J. Org. Chem. J. Phys. Chem. J. Phys. Chem. A J. Phys. Chem. B J. Phys. Chem. C J. Phys. Chem. Lett. Analyst Anal. Methods Biomater. Sci. Catal. Sci. Technol. Chem. Commun. Chem. Soc. Rev. CHEM EDUC RES PRACT CRYSTENGCOMM Dalton Trans. Energy Environ. Sci. ENVIRON SCI-NANO ENVIRON SCI-PROC IMP ENVIRON SCI-WAT RES Faraday Discuss. Food Funct. Green Chem. Inorg. Chem. Front. Integr. Biol. J. Anal. At. Spectrom. J. Mater. Chem. A J. Mater. Chem. B J. Mater. Chem. C Lab Chip Mater. Chem. Front. Mater. Horiz. MEDCHEMCOMM Metallomics Mol. Biosyst. Mol. Syst. Des. Eng. Nanoscale Nanoscale Horiz. Nat. Prod. Rep. New J. Chem. Org. Biomol. Chem. Org. Chem. Front. PHOTOCH PHOTOBIO SCI PCCP Polym. Chem.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
0
微信
客服QQ
Book学术公众号 扫码关注我们
反馈
×
意见反馈
请填写您的意见或建议
请填写您的手机或邮箱
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
现在去查看 取消
×
提示
确定
Book学术官方微信
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术
文献互助 智能选刊 最新文献 互助须知 联系我们:info@booksci.cn
Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。
Copyright © 2023 Book学术 All rights reserved.
ghs 京公网安备 11010802042870号 京ICP备2023020795号-1