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Proches aidants en psychiatrie : quelle (in)adéquation entre besoins et offres de soutien ? 精神病学中的家庭照护者:需求与提供的支持之间存在什么(不匹配)?
IF 0.3 4区 医学 Q4 Medicine Pub Date : 2024-01-01 DOI: 10.3917/spub.242.0045
Kim Lê Van, Shyhrete Rexhaj, Claire Coloni-Terrapon, Martina Alves, Krzysztof Skuza

Introduction: Informal caregivers play a vital role in supporting people with severe mental illness. However, this role can leave informal caregivers with significant unmet needs. The aim of this qualitative study is to identify the extent to which the support offered to informal caregivers in adult psychiatry in French-speaking Switzerland meets their needs.

Method: Individual semi-structured interviews and focus groups were conducted with informal caregivers, mental health professionals, and service providers. The data were analyzed by theme.

Results: The need for assistance and the need for information are two themes identified as prevalent among informal caregivers. Despite a consensus on the need for more support and information, informal caregivers, service providers, and health professionals do not assign the same importance to specific aspects of these themes. Suggestions for improving practices at the institutional, socio-political, and civil-society levels are put forward. Given the diversity of viewpoints on the priority needs of informal caregivers, there is a risk of offering support that only partially corresponds to the difficulties encountered by informal caregivers.

Conclusions: Matching support and needs remains a major challenge. Agreeing on a consensual definition of support and information needs and proposing tailored approaches could make it possible to develop support services that meet the actual needs of informal caregivers.

导言:非正规护理人员在为重性精神病患者提供支持方面发挥着至关重要的作用。然而,这一角色可能会使非正式照护者的大量需求得不到满足。本定性研究旨在确定瑞士法语区成人精神科为非正规照护者提供的支持在多大程度上满足了他们的需求:方法:对非正式照护者、精神健康专业人员和服务提供者进行了个人半结构化访谈和焦点小组讨论。对数据进行了主题分析:结果:需要帮助和需要信息是非正式照顾者普遍关注的两个主题。尽管在需要更多支持和信息这一点上达成了共识,但非正式照顾者、服务提供者和医疗专业人员对这些主题的具体方面的重视程度并不相同。我们提出了在机构、社会政治和公民社会层面改进做法的建议。鉴于对非正规护理人员的优先需求存在不同观点,因此提供的支持有可能只能部分满足非正规护理人员遇到的困难:结论:使支持与需求相匹配仍然是一项重大挑战。就支持和信息需求的定义达成共识,并提出量身定制的方法,将有可能开发出满足非正规护理人员实际需求的支持服务。
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引用次数: 0
Représentations sociales de l’incontinence urinaire : une enquête auprès de la population française. 尿失禁的社会表征:法国人口调查。
IF 0.3 4区 医学 Q4 Medicine Pub Date : 2024-01-01 DOI: 10.3917/spub.242.0023
Lea Peroni, Didier Armaingaud, Monique Rothan-Tondeur

Introduction: Urinary incontinence is a major public health problem. Although, as a condition, it is well documented in the literature, there is little information on its social representations. The study of its representations could make it possible to improve the way it is handled and the treatment suffers receive.

Purpose of the research: The aim of this study was to understand the representations of the general French population on the subject of urinary incontinence.

Methods: This involved carrying out a declarative quantitative study using questionnaires. To do this, 1803 people were surveyed all over France. First, a descriptive statistical analysis was carried out using the participants’ socio-demographic data. Second, a logistic regression-type association was made between the dependent and independent variables.

Results: Urinary incontinence elicits a certain level of disgust in the general population. Still a taboo subject, it seems to be of little interest to some members of the population. The condition is also often poorly understood, especially by men, the younger generations, and the inhabitants of urban areas in western France.

Conclusions: This quantitative study helped shed key light on the French population’s perceptions of urinary incontinence and the methods of prevention available. It also helped determine the participant profiles associated with these representations. Going forward, it seems worthwhile to focus on informing and educating these populations on the subject.

导言:尿失禁是一个重大的公共健康问题。虽然文献中对尿失禁这种疾病有大量记载,但有关其社会表现的信息却很少。对尿失禁的社会表征进行研究,可以改善对尿失禁的处理方式以及尿失禁患者所接受的治疗:研究目的:本研究旨在了解法国普通民众对尿失禁问题的看法:方法:采用问卷调查的方式进行陈述性定量研究。为此,我们在法国各地对 1803 人进行了调查。首先,利用参与者的社会人口数据进行了描述性统计分析。其次,在因变量和自变量之间进行了逻辑回归式关联分析:结果:尿失禁在普通人群中引起了一定程度的反感。尿失禁仍是一个禁忌话题,一些人似乎对此兴趣不大。此外,人们对尿失禁的了解也很少,尤其是男性、年轻一代和法国西部城市居民:这项定量研究有助于了解法国人对尿失禁的看法以及现有的预防方法。它还有助于确定与这些表述相关的参与者特征。展望未来,似乎值得重点对这些人群进行这方面的宣传和教育。
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引用次数: 0
Tuberculose résistante au Burkina Faso : audit organisationnel et enquête de satisfaction. 布基纳法索的耐药性结核病:组织审计和满意度调查。
IF 0.3 4区 医学 Q4 Medicine Pub Date : 2024-01-01 DOI: 10.3917/spub.242.0097
Ziemlé Clément Méda, Gwladys Sanou Teys, Combary Adjima, Cheick Ahmed Ouattara, Hervé Hien, Bernard Ilboudo, Gueswende Léon Blaise Savadogo

Introduction: Drug-resistant tuberculosis is a public health priority and shortcomings in health services can make matters worse.

Purpose of the research: The aim of the study was to carry out an organizational audit inspired by the accreditation standards of the Agence nationale d’accréditation et d’évaluation en santé (ANAEH) (French National Agency for Health Accreditation and Assessment) for the management of resistant tuberculosis patients and to determine the level of patient satisfaction in order to identify any failings and possible solutions.

Results: The overall audit score was 63.2 percent for the Centre hospitalier universitaire Yalgado Ouédraogo (CHUYO) (Yalgado Ouédraogo University Hospital) and 59.8 percent for the Centre de lutte anti-tuberculose (CLAT) (French Tuberculosis Prevention Center). The problems raised were related to “intake, equipment, and infrastructure,” “patient rights and information,” and “management and administration.” Overall, patients were satisfied with their care. The majority of them noted that the care centers were safe and equipped with toilets that, in addition to improving hygiene, should take account of the specific nature of different illnesses and genders. The patients indicated that their privacy was relatively well respected, but that the quality of the meals provided remains unsatisfactory. Treatment was free, notwithstanding certain paraclinical examinations. Most of the patients and service providers were unaware of the cost of tuberculosis treatment. Non-compliance with treatment, thought to stem from the adverse side effects of anti-tuberculosis drugs, was cited as the main cause of resistance.

Conclusions: A number of operational shortcomings exist in the management of patients with resistant tuberculosis, stemming from unfamiliarity with the treatment protocol. The application of the patient-centered approach could allow for the fight against tuberculosis, especially its resistant form, to be waged more effectively.

导言:耐药性结核病是公共卫生的一个优先事项,而医疗服务方面的缺陷会使情况变得更糟:研究目的:本研究的目的是根据法国国家卫生认证与评估机构(ANAEH)的认证标准,对耐药性结核病患者的管理进行一次组织审计,并确定患者的满意度,以便找出不足之处和可能的解决方案:亚尔加多-乌阿让戈大学医院(CHUYO)的总体审核得分率为 63.2%,法国结核病预防中心(CLAT)的总体审核得分率为 59.8%。提出的问题涉及:“接收、设备和基础设施”“患者权利和信息”以及“管理和行政”。他们中的大多数人指出,护理中心很安全,并配备了厕所,除了改善卫生条件外,还应考虑到不同疾病和性别的特殊性。病人表示,他们的隐私得到了相对较好的尊重,但膳食质量仍不能令人满意。治疗是免费的,尽管有一些辅助检查。大多数病人和服务提供者都不知道结核病治疗的费用。抗结核药物的副作用被认为是导致耐药性的主要原因:结论:由于不熟悉治疗方案,在管理耐药性结核病患者方面存在许多操作缺陷。采用以病人为中心的方法可以更有效地防治结核病,尤其是抗药性结核病。
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引用次数: 0
Co-construire un projet de recherche en oncologie avec les personnes concernées : retour d’expérience et leçons apprises. 与相关人员共同构建肿瘤研究项目:反馈与经验教训。
IF 0.3 4区 医学 Q4 Medicine Pub Date : 2024-01-01
Léa Baillat, Charlotte Bauquier, Myriam Pannard, Maëva Piton, Chantal Denieul, Murielle Sevenne, Annick Gerard, Mouna Mouline, Stéphanie Jean-Daubias, Guillemette Jacob, Marie Préau

Citizen participation in cancer research is growing intensively. In this context, the IMPAQT research project aims to promote the participation of (former) cancer patients in all stages of research. It was in response to the needs of the patient-researchers of the IMPAQT research group that the Perce-Neige project was developed. Based on the principles of community participation and collaboration, this project has a dual objective: methodological, aimed at understanding collaboration and characterizing the community approach, and empirical, which concerns caregivers’ perceptions of cognitive disorders related to cancer treatments. All the methodological tools aimed at meeting these objectives were co-constructed by the entire IMPAQT group. The research participation of the people concerned enables a novel way of linking expert and experiential knowledge and necessitates specific modes of organization. Also, the co-construction of research and methodological tools requires a regular updating of knowledge, as well as a capacity for reflection and an openness to reconsidering the approach. It also appears that the mobilization of the people concerned, who possess experiential knowledge, raises emotional issues. In conclusion, the participation of the people concerned in research constitutes an essential lever in the identification, elaboration, and social and psychosocial contextualization of health issues in cancerology.

公民参与癌症研究的程度正在不断提高。在此背景下,IMPAQT 研究项目旨在促进(前)癌症患者参与研究的各个阶段。Perce-Neige 项目正是为了满足 IMPAQT 研究小组患者研究人员的需求而开发的。该项目以社区参与和合作原则为基础,具有双重目标:一是方法论目标,旨在了解合作和社区方法的特点;二是实证目标,涉及护理人员对与癌症治疗有关的认知障碍的看法。所有旨在实现这些目标的方法工具都是由整个 IMPAQT 小组共同设计的。相关人员的研究参与是将专家知识和经验知识联系起来的一种新方式,也需要特定的组织模式。此外,共同构建研究和方法工具需要定期更新知识,以及反思能力和重新考虑方法的开放性。此外,动员拥有经验知识的相关人员似乎也会引发情感问题。总之,有关人员参与研究是确定、阐述癌症学中的健康问题并使之社会化和社会心 理化的重要杠杆。
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引用次数: 0
Expérience d’un processus participatif autour d’un programme de recherche-action au Mali. 马里围绕研究--行动方案开展参与进程的经验。
IF 0.3 4区 医学 Q4 Medicine Pub Date : 2024-01-01
Laurence Touré, Mamadou Ba

Introduction: Mali has implemented social protection initiatives in the context of universal health coverage, including the RAMED (medical assistance plan).

Purpose of the research: This article describes the participatory process involving researchers and national technical staff as part of an action-research program linked to this policy.

Results: The process allowed the interests of the target public, those living in poverty, to take priority over individual and institutional interests, without, however, allowing for their active participation. Despite this positive outcome, the recommendations were not taken on board.

Conclusion: The main failure of this process was its political component, but there is still time to address this.

导言:马里在全民医保的背景下实施了社会保护举措,包括医疗援助计划(RAMED):本文介绍了研究人员和国家技术人员的参与过程,该过程是与该政策相关的行动研究计划的一部分:结果:这一过程使目标公众(生活贫困者)的利益优先于个人和机构的利益,但没有让他们积极参与。尽管取得了这一积极成果,但建议并未得到采纳:结论:这一进程的主要失败在于其政治成分,但仍有时间来解决这一问题。
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引用次数: 0
La recherche avec des monstres : contextualisation politique des recherches participatives. 有怪物的研究:参与式研究的政治背景。
IF 0.3 4区 医学 Q4 Medicine Pub Date : 2024-01-01
Anna Baleige

The recent rise in the visibility of participatory research has contributed to reshaping its epistemic frameworks. The challenges it faces provide the opportunity to study the power dynamics within research systems. This paper therefore discusses the links between health research, participatory research, and political context. Conducted from the perspective of a service-user/survivor researcher inspired by survivor research, the context analysis is based on a critical approach to user participation in two participatory research projects carried out in collaboration with the World Health Organization. The context is considered in light of the political circumstances, goals, and issues that affect the environment in which participatory research operates. The author argues that the practical, ethical, and methodological challenges of participatory research have less to do with epistemic issues than they do with research’s role as a social practice. By neglecting these political issues in favor of epistemic interrogations, research participates in knowledge subjugation, at the expense of affected communities. Taking into account social power struggles within research highlights the need for the development of research directly carried out by service users.

最近,参与式研究的知名度不断提高,这有助于重塑其认识论框架。它所面临的挑战为研究系统内部的权力动态提供了机会。因此,本文讨论了健康研究、参与式研究和政治背景之间的联系。在幸存者研究的启发下,本文从服务用户/幸存者研究者的角度出发,以用户参与与世界卫生组织合作开展的两个参与式研究项目的批判性方法为基础,进行了背景分析。作者根据影响参与式研究运作环境的政治环境、目标和问题来考虑背景。作者认为,参与式研究在实践、伦理和方法论方面的挑战与认识论问题的关系不大,而与研究作为一种社会实践的作用的关系更大。由于忽视了这些政治问题而偏向于对认识论的质疑,研究参与了知识的征服,牺牲了受影响社区的利益。将研究中的社会权力斗争纳入考虑范围,凸显了由服务用户直接开展研究的必要性。
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引用次数: 0
De « Faire avec » à « Faire ensemble », déconstruire la recherche pour mieux travailler en collaboration. 从 "与人合作 "到 "共同合作",解构研究,改进合作工作。
IF 0.3 4区 医学 Q4 Medicine Pub Date : 2024-01-01
Irwin Hecker, Anne-Fleur Jacquemot, Hélène Tréhard

Objective: To explore the implications of shifting from the concept of “doing with” to one of “doing together” in the field of public health research in France, with a focus on the necessary transformation of the researcher’s role and stance.

Methods: This article draws in particular on the conclusions of the seminar “‘Doing with’: What effect on my stance as a researcher in public health?” held within the framework of the Doctoral Network in Public Health at the École des Hautes Études en Santé Publique (EHESP).

Results: This article underscores the importance of deconstructing and then reconstructing the conception of research to better incorporate the “Doing together” approach in the field of public health. “Doing together” requires a shift in the balance of knowledge and consideration of the goals of all stakeholders. Our researcher stance must be rethought to enable the expression and recognition of experiential knowledge.

Conclusions: These questions seem to us to be essential in the construction of public health research, both as an object of research and as an individual reflection.

目的探讨在法国公共卫生研究领域从 "与“一起做”的概念转变为 "与“一起做”的概念的影响,重点关注研究人员角色和立场的必要转变:本文特别借鉴了“‘Doing with’研讨会的结论:‘Doingwith’:对我作为公共卫生研究人员的立场有何影响?”在公共卫生高级研究学院(EHESP)公共卫生博士网络框架内举行:本文强调了解构和重构研究概念的重要性,以便在公共卫生领域更好地采用 "共同行动 "的方法。我们必须重新思考研究者的立场,以便能够表达和认可经验知识:在我们看来,无论是作为研究对象还是作为个人反思,这些问题都是构建公共卫生研究的关键。
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引用次数: 0
Évaluation de l’offre de soins en situation d’urgence basée sur la mise en place des postes de santé avancés dans la ville de Djibo, Burkina Faso, avril 2022. 2022 年 4 月,在布基纳法索吉博镇设立高级保健站的基础上对紧急护理服务进行评估。
IF 0.3 4区 医学 Q4 Medicine Pub Date : 2024-01-01
Hamed Sidwaya Ouedraogo, Yewayan Larba Berenger Kabore, Noaga Sawadogo, Massoudou H Maiga, Abdoul-Guaniyi Sawadogo, Richard P Salou, Judicaël K Ouedraogo, Simon Sanou, Léonie Claudine Lougue/Sorgho

Introduction: The town of Djibo in Burkina Faso has been facing a security and humanitarian crisis since 2015. The internally displaced populations who have taken refuge there have several needs, including health care. The establishment of advanced health posts is part of the health-nutrition service delivery strategy adopted to address these needs. We evaluated the contribution of these advanced health posts in terms of availability, access to care, and beneficiary satisfaction.

Methodology: We conducted a mixed descriptive and analytical cross-sectional study from May 1, 2021 to January 30, 2022 on the host population, internally displaced people, health workers, and selected health facilities in Djibo. It involved 422 people for the quantitative component. The quantitative data, including those from 2016 to 2020, were analyzed using Epi Info software, version 7.2.3.1, and completed by a qualitative component.

Results: Of the nine peripheral structures studied, seven were advanced health posts offering basic care such as prenatal and postnatal consultations, infant monitoring, and vaccination. Nutritional interventions were inadequate in some of these advanced health posts. Geographic access was satisfactory, but financial access was not.

Conclusion: The strategy made it possible to meet basic health care needs in this crisis context, but financial access must be improved.

导言:自 2015 年以来,布基纳法索吉博镇一直面临着安全和人道主义危机。在那里避难的境内流离失所者有多项需求,其中包括医疗保健。设立高级保健站是为满足这些需求而采取的健康营养服务提供战略的一部分。我们评估了这些高级保健站在可用性、医疗服务的可及性和受益人满意度方面的贡献:我们于 2021 年 5 月 1 日至 2022 年 1 月 30 日对吉博的东道国人口、境内流离失所者、卫生工作者和选定的卫生机构进行了描述性和分析性混合横截面研究。定量研究涉及 422 人。定量数据(包括 2016 年至 2020 年的数据)使用 Epi Info 软件 7.2.3.1 版进行分析,并由定性部分完成:在研究的九个外围机构中,有七个是高级保健站,提供产前和产后咨询、婴儿监测和疫苗接种等基本医疗服务。其中一些高级保健站的营养干预措施不足。地理上的可及性令人满意,但经济上的可及性却不尽人意:结论:在危机情况下,该战略能够满足基本的医疗保健需求,但必须改善资金状况。
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引用次数: 0
Évaluation du risque par les professionnels de la santé et les équipes de secours lors d’incidents chimiques. 卫生专业人员和应急小组在化学品事故中的风险评估。
IF 0.3 4区 医学 Q4 Medicine Pub Date : 2024-01-01
Michèle Rasoloharimahefa-Rasamoela, Catherine Bouland

Context: The literature review highlights that joint preparation and training of first aid responders is necessary to deal with a major chemical incident. Improved knowledge of exposure assessments makes it possible to estimate the risk and adjust immediate measures. The aim of this paper is to summarize recommendations for assessing exposure during chemical incidents that require emergency responses. Actions allowing the chemical contamination to be better anticipated and health protection to be optimized were analyzed.

Methodology: A review of the literature was conducted, and research questions were formulated using the PECO method. The PRISMA method was used to select the literature.

Results and discussion: The selected papers (n=16) show that preparation for chemical incidents in terms of individual and collective protective equipment, and knowledge of the risk assessment process remain lacking. We propose training to master the steps of risk assessment. Our analysis also points out the importance of monitoring the state of the environment after a chemical incident, allowing adjusted measures to protect the health of the exposed population and vulnerable groups in particular. This monitoring must be accurate and dynamic to provide realistic recommendations during the intervention phase.

Conclusions: All first-aid responders and health workers knowing the risk assessment process should result in improvements: in the use of protective measures in time and space, the delimitation of exposure to contamination, and the characterization of the risk.

背景:文献综述强调,为应对重大化学事故,有必要对急救人员进行联合准备和培训。提高对接触评估的认识可以估计风险并调整即时措施。本文旨在总结在需要采取紧急应对措施的化学事故中评估接触情况的建议。本文分析了可更好地预测化学污染和优化健康保护的措施:对文献进行了综述,并使用 PECO 方法提出了研究问题。结果与讨论:所选文献(n=16)表明,在个人和集体防护设备方面,化学事故的准备工作以及风险评估过程的知识仍然缺乏。我们建议开展培训,以掌握风险评估的步骤。我们的分析还指出,必须在化学事故发生后对环境状况进行监测,以便调整措施,保护暴露人群,特别是弱势群体的健康。这种监测必须准确、动态,以便在干预阶段提供切合实际的建议:结论:所有急救人员和卫生工作者了解风险评估流程后,应能在以下方面有所改进:在时间和空间上采取保护措施、划定污染接触范围以及确定风险特征。
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引用次数: 0
Déprotection sanitaire des étrangers, de quoi la démission d’Aurélien Rousseau est-elle le nom ? 奥雷利安-卢梭辞职的原因是什么?
IF 0.3 4区 医学 Q4 Medicine Pub Date : 2024-01-01 DOI: 10.3917/spub.242.0095
David Zucman

In late December 2023, the French parliament debated legislation that would endanger access to state medical aid (AME) for seriously ill migrants living undocumented in France. The limits of an over-restrictive approach to health care are well known: poorer access to care, additional burden on public hospitals, and the weakening of the whole system. The risks weigh particularly heavily on migrants living with HIV. Yet we know that the number of HIV-positive diagnoses continues to rise among men who have sex with men and who were born abroad. This situation raises public health concerns and risks undermining the ethical foundations of medicine. The French health minister, Aurélien Rousseau, resigned the day after the bill was passed last December, having repeatedly stated his opposition to measures abolishing or weakening AME. In doing so, he demonstrated his commitment to the humanist foundations of medicine, setting an example for all political leaders.

2023 年 12 月底,法国议会就一项立法展开辩论,该立法将危及在法国生活的无 证重病移民获得国家医疗援助(AME)的机会。众所周知,过度限制医疗保健的局限性在于:更难获得医疗服务、增加公立医院的负担以及削弱整个系统。感染艾滋病毒的移民面临的风险尤其严重。然而,我们知道,在男男性行为者和在国外出生的人中,被诊断出艾滋病毒呈阳性的人数持续上升。这种情况引发了公共卫生问题,并有可能破坏医学的道德基础。法国卫生部长卢梭(Aurélien Rousseau)在去年 12 月法案通过的第二天就辞职了,他曾多次表示反对废除或削弱 AME 的措施。他这样做表明了他对医学人文基础的承诺,为所有政治领导人树立了榜样。
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引用次数: 0
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