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Supply and demand: Brokerage as the new tango in home care. 供求关系:中介是家庭护理的新探戈。
IF 2.2 4区 医学 Q1 NURSING Pub Date : 2024-07-01 Epub Date: 2024-06-24 DOI: 10.1111/nin.12649
Jenny Mee, Linda Jones, Jeong-Ah Kim

The performance of home care globally is significantly impacted by the political reforms in the public and private sectors. This research investigated the Australian contexts of home care quality and the use of "brokerage" during times of change. The research utilised a qualitative post-structural approach to gather data about home care service provision through conducting semi-structured interviews of 10 Australian home care business leaders. What emerged in the discourse was how central to everyday practices was the need for business leaders to network and 'dance a political tango' to ensure quality in service provision. Illuminated was how the leaders pushed back against governmental and economic structures by using models of brokerage to compensate for economic and staffing deficiencies. This is essential for the ongoing improvement and performance of home care in the Australian social arena of caring for our most vulnerable consumers.

在全球范围内,家庭护理的绩效受到公共和私营部门政治改革的重大影响。本研究调查了澳大利亚的居家护理质量情况以及变革时期 "中介 "的使用情况。研究采用了定性后结构方法,通过对 10 名澳大利亚家庭护理企业领导人进行半结构化访谈,收集有关家庭护理服务提供情况的数据。访谈中发现,在日常实践中,企业领导者需要建立网络并 "跳政治探戈",以确保服务质量。领导者如何利用经纪模式来弥补经济和人员方面的不足,从而对政府和经济结构进行反击,这一点很有启发性。这对于在澳大利亚社会舞台上不断改善和提高家庭护理服务质量,照顾最弱势的消费者至关重要。
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引用次数: 0
A suffering body, hidden away from others: The experience of being long-term bedridden with severe myalgic encephalomyelitis/chronic fatigue syndrome in childhood and adolescence. 痛苦的身体,远离他人:童年和青少年时期患严重肌痛性脑脊髓炎/慢性疲劳综合征而长期卧床的经历。
IF 2.2 4区 医学 Q1 NURSING Pub Date : 2024-07-01 Epub Date: 2024-01-27 DOI: 10.1111/nin.12625
Silje Helen Krabbe, Wenche Schrøder Bjorbækmo, Anne Marit Mengshoel, Unni Sveen, Karen Synne Groven

In this article, we present findings from a qualitative study examining how young women experience being long-term bedridden with myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS), during childhood and adolescence. The aim is to explore how young women who fell ill with ME/CFS during childhood and adolescence look back on their lived experience of being long-term bedridden from the vantage point of being fully or partially recovered. Informed by a phenomenological theoretical perspective, the researchers applied a narrative methodological approach involving the analysis of interviews with 13 women, aged 16-29 years at the time of the interview. Attention was particularly paid to how participants structured their narratives and to the events (telling moments) they identified as important. Four major storylines were developed: Ambivalent responses to the presence of others; A body on the edge of life; An eternity in the dark; and Recasting painful memories of being bedridden and alone. Based on our findings, we argue that the experience of being long-term bedridden with ME/CFS during childhood and adolescence can be understood and communicated as a plot in which individuals find themselves pushed to the extreme limit of suffering and loneliness.

在本文中,我们将介绍一项定性研究的结果,该研究探讨了患有肌痛性脑脊髓炎(ME)(又称慢性疲劳综合症(CFS))的年轻女性在童年和青春期如何体验长期卧床的经历。该研究旨在探讨在童年和青少年时期患上肌痛性脑脊髓炎/慢性疲劳综合症的年轻女性如何从完全或部分康复的角度回顾其长期卧床的生活经历。在现象学理论视角的指导下,研究人员采用叙事方法对 13 名女性(访谈时年龄为 16-29 岁)进行了访谈分析。研究人员特别关注参与者如何组织她们的叙述,以及她们认为重要的事件(讲述时刻)。研究形成了四个主要故事情节:对他人存在的矛盾反应;生命边缘的躯体;黑暗中的永恒;重塑卧床和孤独的痛苦记忆。根据我们的研究结果,我们认为,在童年和青少年时期长期卧床的 ME/CFS 患者的经历可以被理解为一个情节,在这个情节中,个体发现自己被推向了痛苦和孤独的极致。
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引用次数: 0
How can strategies based on performance measurement and feedback support changes in nursing practice? A theoretical reflection drawing on Habermas' social perspective. 基于绩效衡量和反馈的战略如何支持护理实践的变革?从哈贝马斯的社会视角进行理论思考。
IF 2.2 4区 医学 Q1 NURSING Pub Date : 2024-07-01 Epub Date: 2024-02-26 DOI: 10.1111/nin.12628
Emilie Dufour, Arnaud Duhoux

Strategies based on performance measurement and feedback are commonly used to support quality improvement among nurses. These strategies require practice change, which, for nurses, rely to a large extent on their capacity to coordinate with each other effectively. However, the levers for coordinated action are difficult to mobilize. This discussion paper offers a theoretical reflection on the challenges related to coordinating nurses' actions in the context of practice changes initiated by performance measurement and feedback strategies. We explore how Jürgen Habermas' theory of Communicative Action may shed light on the issues underlying nurses' collective actions and self-determination in practice change and the implications for the design of strategies based on performance measurement and feedback. Based on this theory, we propose differences between communicative and functional coordination according to the nature of the actions and the purposes involved. The domains of action underlying these coordination processes, which Habermas referred to as the lifeworld and the system, are then used to draw a parallel with aspects of nursing practice. Further exploration of these concepts allows us to consider the tensions between the demands of the system and the self-determination of nurses within their practice.

以绩效衡量和反馈为基础的战略通常用于支持护士提高工作质量。这些战略要求改变做法,对护士来说,这在很大程度上取决于他们相互之间有效协调的能力。然而,协调行动的杠杆难以调动。本讨论文件从理论上反思了在绩效考核和反馈策略引发的实践变革中,护士协调行动所面临的挑战。我们探讨了于尔根-哈贝马斯(Jürgen Habermas)的 "沟通行动"(Communicative Action)理论如何揭示护士在实践变革中的集体行动和自我决定的基本问题,以及对基于绩效考核和反馈的策略设计的影响。基于这一理论,我们根据行动的性质和所涉及的目的,提出了沟通协调和功能协调之间的区别。哈贝马斯将这些协调过程所依据的行动领域称为生活世界和系统,并将其与护理实践的各个方面相提并论。对这些概念的进一步探讨使我们能够考虑系统要求与护士在实践中的自我决定之间的紧张关系。
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引用次数: 0
The emergence of cultural safety within kidney care for Indigenous Peoples in Australia. 澳大利亚土著居民肾脏护理中出现的文化安全问题。
IF 2.2 4区 医学 Q1 NURSING Pub Date : 2024-07-01 Epub Date: 2024-03-12 DOI: 10.1111/nin.12626
Melissa Arnold-Ujvari, Elizabeth Rix, Janet Kelly

Cultural safety is increasingly recognised as imperative to delivering accessible and acceptable healthcare for First Nations Peoples within Australia and in similar colonised countries. A literature review undertaken to inform the inaugural Caring for Australians with Renal Insufficiency (CARI) guidelines for clinically and culturally safe kidney care for Aboriginal and Torres Strait Islander peoples revealed a timeline of the emergence of culturally safe kidney care in Australia. Thirty years ago, kidney care literature was purely biomedically focused, with culture, family and community viewed as potential barriers to patient 'compliance' with treatment. The importance of culturally informed care was increasingly recognised in the mid-1990s, with cultural safety within kidney care specifically cited from 2014 onwards. The emergence timeline is discussed in this paper in relation to the five principles of cultural safety developed by Māori nurse Irihapeti Ramsden in Aotearoa/New Zealand. These principles are critical reflection, communication, minimising power differences, decolonisation and ensuring one does not demean or disempower. For the kidney care workforce, culturally safe care requires ongoing critical reflection, deep active listening skills, decolonising approaches and the eradication of institutional racism. Cultural safety is the key to truly working in partnership, increasing Indigenous Governance, respectful collaboration and redesigning kidney care.

人们日益认识到,要为澳大利亚及类似殖民地国家的原住民提供方便、可接受的医疗保健服务,就必须确保文化安全。为了向首部《关爱澳大利亚肾功能不全患者》(CARI)指南提供信息,我们对土著居民和托雷斯海峡岛民的临床和文化安全肾脏护理进行了文献综述,发现了澳大利亚文化安全肾脏护理的兴起时间线。三十年前,肾脏护理文献纯粹以生物医学为重点,文化、家庭和社区被视为患者 "遵从 "治疗的潜在障碍。20 世纪 90 年代中期,人们逐渐认识到文化护理的重要性,并从 2014 年起在肾脏护理中特别提到了文化安全。本文将结合毛利护士伊里哈佩蒂-拉姆斯登(Irihapeti Ramsden)在奥特亚罗瓦/新西兰提出的文化安全五项原则,对这一时间线的出现进行讨论。这些原则包括批判性反思、沟通、尽量缩小权力差异、去殖民化以及确保不贬低或削弱他人的权力。对于肾脏护理工作者来说,文化安全护理需要持续的批判性反思、深入积极的倾听技巧、非殖民化方法以及根除制度性种族主义。文化安全是真正开展合作、加强土著治理、尊重合作和重新设计肾脏护理的关键。
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引用次数: 0
Finding meaning in complex care nursing in a hospital setting. 在医院环境中寻找复杂护理的意义。
IF 2.2 4区 医学 Q1 NURSING Pub Date : 2024-07-01 Epub Date: 2024-03-20 DOI: 10.1111/nin.12633
Felice Borghmans, Stella Laletas, Venesser Fernandes, Harvey Newnham

This study explores the experiences of nurses that provide 'complex', generalist healthcare in hospital settings. Complex care is described as care for patients experiencing acute issues additional to multimorbidity, ageing or psychosocial complexity. Nurses are the largest professional group of frontline healthcare workers and patients experiencing chronic conditions are overrepresented in acute care settings. Research exploring nurses' experiences of hospital-based complex care is limited, however. This study aims to add to what is known currently. Four 'complex care' nurses undertook in-depth semistructured interviews and their narratives were analysed using the conceptual framework of complex adaptive phenomenology. Two overarching themes constituting the 'essence' of complex care nursing were identified: Contextual factors and attribute/value-based elements. Creating meaningful patient outcomes and feeling part of a team were experienced as fulfilling, whereas time constraints, institutional settings and systemic barriers to comprehensive caregiving diminished the experience of providing complex care. Overall, work meaning presented as a dynamic phenomenon, shaped by personal and professional values, local settings and systemic factors. It is recommended that more expansive research be undertaken to explore the experience of complex care for nurses. Such knowledge can contribute to initiatives that draw a skilled, effective and engaged hospital-based complex care nursing workforce.

本研究探讨了在医院环境中提供 "复杂 "全科医疗服务的护士的经验。所谓 "复杂护理",是指为那些因多发病、老龄化或心理社会复杂性而面临其他急性问题的患者提供护理。护士是一线医护人员中最大的专业群体,在急症护理环境中,慢性病患者的比例过高。然而,探索护士在医院复杂护理中的经验的研究十分有限。本研究旨在补充目前已知的研究成果。对四名 "复杂护理 "护士进行了深入的半结构式访谈,并采用复杂适应现象学的概念框架对她们的叙述进行了分析。研究确定了构成复杂护理 "本质 "的两大主题:背景因素和基于属性/价值的要素。创造对患者有意义的结果和感觉自己是团队的一员被认为是有成就感的,而时间限制、机构设置和全面护理的系统性障碍则削弱了提供复杂护理的体验。总之,工作意义是一种动态现象,受个人和专业价值观、当地环境和系统因素的影响。建议开展更广泛的研究,探索护士的复杂护理体验。这方面的知识有助于采取主动行动,吸引一支技术娴熟、高效和参与医院复杂护理的护理队伍。
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引用次数: 0
A guide to understanding big data for the nurse scientist: A discursive paper. 护士科学家了解大数据指南:一篇论述性论文。
IF 2.2 4区 医学 Q1 NURSING Pub Date : 2024-07-01 Epub Date: 2024-06-12 DOI: 10.1111/nin.12648
Henry Ofori Duah, Samantha Boch, Sara Arter, Nichole Nidey, Joshua Lambert

Big data refers to extremely large data generated at high volume, velocity, variety, and veracity. The nurse scientist is uniquely positioned to leverage big data to suggest novel hypotheses on patient care and the healthcare system. The purpose of this paper is to provide an introductory guide to understanding the use and capability of big data for nurse scientists. Herein, we discuss the practical, ethical, social, and educational implications of using big data in nursing research. Some practical challenges with the use of big data include data accessibility, data quality, missing data, variable data standards, fragmentation of health data, and software considerations. Opposing ethical positions arise with the use of big data, and arguments for and against the use of big data are underpinned by concerns about confidentiality, anonymity, and autonomy. The use of big data has health equity dimensions and addressing equity in data is an ethical imperative. There is a need to incorporate competencies needed to leverage big data for nursing research into advanced nursing educational curricula. Nursing science has a great opportunity to evolve and embrace the potential of big data. Nurse scientists should not be spectators but collaborators and drivers of policy change to better leverage and harness the potential of big data.

大数据是指以高容量、高速度、多样性和真实性产生的超大数据。护士科学家在利用大数据对患者护理和医疗保健系统提出新的假设方面具有得天独厚的优势。本文旨在为护士科学家了解大数据的使用和能力提供入门指南。在此,我们将讨论在护理研究中使用大数据的实践、伦理、社会和教育意义。使用大数据面临的一些实际挑战包括数据的可访问性、数据质量、数据缺失、数据标准不一、健康数据碎片化以及软件方面的考虑。使用大数据会产生对立的伦理立场,支持和反对使用大数据的论点都是基于对保密性、匿名性和自主性的担忧。大数据的使用涉及健康公平问题,解决数据公平问题是伦理方面的当务之急。有必要将利用大数据进行护理研究所需的能力纳入高级护理教育课程。护理科学拥有发展和拥抱大数据潜力的大好机会。护理科学家不应是旁观者,而应是政策变革的合作者和推动者,以更好地利用和驾驭大数据的潜力。
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引用次数: 0
"There is nothing to protect us from dying": Black women's perceived sense of safety accessing pregnancy and intrapartum care. "没有什么能保护我们不死":黑人妇女对怀孕和产前护理的安全感。
IF 2.2 4区 医学 Q1 NURSING Pub Date : 2024-07-01 Epub Date: 2024-03-27 DOI: 10.1111/nin.12638
Priscilla N Boakye, Nadia Prendergast

Pregnancy and childbirth have become a dangerous journey for Black women as harrowing stories of death and near-death experiences resonate within Black communities. While the causes of pregnancy-related morbidity and mortality are well documented, little is known about how Black Canadian women feel protected from undesirable maternal health outcomes when accessing and receiving pregnancy and intrapartum care. This critical qualitative inquiry sheds light on Black women's perceived sense of safety in accessing pregnancy and intrapartum care. Twenty-four in-depth interviews were conducted with Black women who were pregnant or had given birth. Five interconnected themes were generated through thematic analysis: (1) There is a lot of prejudice towards us, (2) We are treated as sick bodies, (3) There is a lot of stereotypes towards us, (4) Our care is lacking in quality, and (5) We feel unsafe in the healthcare system. These themes highlight the perils faced by Black women accessing pregnancy and intrapartum care. The right to safe motherhood and equitable care for Black women should be a national priority in Canada to avert a looming crisis.

对黑人妇女来说,怀孕和分娩已成为一段危险的旅程,因为在黑人社区中,死亡和濒临死亡的惨痛经历时有发生。虽然与妊娠有关的发病率和死亡率的原因有据可查,但人们对加拿大黑人妇女在获得和接受孕期和产期护理时如何感觉自己受到了保护,从而避免了不良的孕产妇健康后果却知之甚少。这项重要的定性调查揭示了黑人妇女在获得孕期和产前护理时的安全感。我们对怀孕或分娩的黑人妇女进行了 24 次深入访谈。通过主题分析,得出了五个相互关联的主题:(1)对我们有很多偏见;(2)我们被当作病人对待;(3)对我们有很多成见;(4)我们的护理质量不高;(5)我们在医疗保健系统中感到不安全。这些主题凸显了黑人妇女在获得孕期和产前护理时所面临的危险。黑人妇女的安全孕产权和公平护理应成为加拿大的国家优先事项,以避免迫在眉睫的危机。
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引用次数: 0
How much do we know about nursing care delivery models in a hospital setting? A mapping review. 我们对医院环境中的护理服务模式了解多少?图谱回顾。
IF 2.2 4区 医学 Q1 NURSING Pub Date : 2024-07-01 Epub Date: 2024-03-27 DOI: 10.1111/nin.12636
Klara Geltmeyer, Kristof Eeckloo, Laurence Dehennin, Emma De Meester, Sigrid De Meyer, Eva Pape, Margot Vanmeenen, Veerle Duprez, Simon Malfait

To deal with the upcoming challenges and complexity of the nursing profession, it is deemed important to reflect on our current organization of care. However, before starting to rethink the organization of nursing care, an overview of important elements concerning nursing care organization, more specifically nursing models, is necessary. The aim of this study was to conduct a mapping review, accompanied by an evidence map to map the existing literature, to map the field of knowledge on a meta-level and to identify current research gaps concerning nursing models in a hospital setting. Next to nursing models, two other organizational correlates seem to be of importance when looking at the organization of nursing care: nurse staffing and skill mix. Although it seems that in recent research, the theoretical focus on the organization of nursing care has been left behind, the increasingly complex healthcare environment might gain from the use of nursing theory, or in this case, care delivery models. As almost no fundamental studies have been done toward the combination of care delivery models, nurse staffing, and skill mix, those elements should be taken into account to fully capture the organization of nursing care in future research.

为了应对护理专业即将面临的挑战和复杂性,对我们目前的护理组织进行反思被认为是非常重要的。然而,在开始重新思考护理组织之前,有必要对有关护理组织的重要因素,更具体地说是护理模式进行概述。本研究的目的是通过证据图谱对现有文献进行图谱回顾,绘制元层面的知识领域图谱,并找出当前有关医院环境中护理模式的研究缺口。在研究护理组织时,除护理模式外,另外两个组织相关因素似乎也很重要:护士编制和技能组合。虽然在最近的研究中,护理组织的理论重点似乎被抛在了脑后,但日益复杂的医疗环境可能会从护理理论的使用中获益,或者在这种情况下,从护理模式中获益。由于几乎没有针对护理服务模式、护士人员配备和技能组合的基础研究,因此在未来的研究中应考虑到这些因素,以全面把握护理组织。
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引用次数: 0
Understanding person‐centered care within a complex social context: A qualitative study of Saudi Arabian acute care nursing 在复杂的社会背景下理解以人为本的护理:沙特阿拉伯急症护理定性研究
IF 2.3 4区 医学 Q1 NURSING Pub Date : 2024-06-21 DOI: 10.1111/nin.12650
Mashael Hasan Alamrani, Shira Birnbaum
Policy reforms implemented in Saudi Arabia in recent years aim to modernize the culture and infrastructure of healthcare delivery and are expected to integrate person‐ and patient‐centered care principles throughout the national healthcare system. However, in a complex multicultural environment where most nurses are international migrant workers, unique challenges emerge that frame the delivery of care. Better understanding is needed about what nurses perceive to be high‐quality, person‐centered care in Saudi Arabia and how they manage to enact it in practice. Semi‐structured interviews were conducted with 21 nurses working in two tertiary hospitals in Riyadh, the capital city. Participants included Saudi citizens (n = 9) and expatriates (n = 12) who were asked to describe their perceptions of quality nursing care and explain the obstacles that they encounter in providing such care. Nurses reported extensive efforts to achieve individualized, empathetic, developmentally appropriate care. Their descriptions of care aligned with principles of patient‐centeredness in care but were not separable from challenges at the patient, organizational, and regional levels, including staffing and supplies shortages, gaps in regional care coordination, inadequate language translation services, variability in cultural beliefs about healthcare communication, and overt discrimination against expatriate workers. Nurses reported creative strategies to achieve professional nursing values while navigating a dynamic landscape of constraints. The findings add to literature suggesting that person‐centeredness in care cannot be understood outside the social and organizational conditions that shape it.
沙特阿拉伯近年来实施的政策改革旨在实现医疗保健服务文化和基础设施的现代化,并有望在整个国家医疗保健系统中融入以人为本和以病人为中心的护理原则。然而,在一个复杂的多元文化环境中,大多数护士都是国际移民工人,因此出现了一些独特的挑战,对医疗服务的提供造成了一定的影响。我们需要更好地了解在沙特阿拉伯,护士们认为什么是高质量的、以人为本的护理,以及她们在实践中是如何做到这一点的。我们对在首都利雅得两家三级医院工作的 21 名护士进行了半结构化访谈。受访者包括沙特公民(9 人)和外籍人士(12 人),他们被要求描述自己对优质护理的看法,并解释在提供此类护理时遇到的障碍。护士们报告说,她们为实现个性化、移情、适合发展的护理做出了大量努力。她们对护理工作的描述符合以病人为中心的护理原则,但与病人、组织和地区层面的挑战是分不开的,这些挑战包括人员和物资短缺、地区护理协调方面的差距、语言翻译服务不足、关于医疗保健沟通的文化观念差异以及对外籍员工的公开歧视。护士们报告说,她们采取了创造性的策略来实现专业护理价值,同时应对各种动态的限制因素。这些研究结果补充了文献中的观点,即护理工作中的以人为本不能脱离社会和组织条件来理解。
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引用次数: 0
What is the purpose of nurse education (and what should it be)? 护士教育的目的是什么(应该是什么)?
IF 2.3 4区 医学 Q1 NURSING Pub Date : 2024-04-30 DOI: 10.1111/nin.12640
Freya Collier‐Sewell, Sebastian Monteux
Can we take the purpose of nurse education for granted, and, more importantly, should we? That is the issue at stake in this paper. The question of purpose is conspicuously absent in the nursing literature; our aim here is to urge that it not be overlooked by demonstrating its importance to the future of nursing. We approach the question of nurse education's purpose in concrete and speculative terms through two distinct yet interrelated questions: what is the purpose of nurse education? and what should it be? Amidst the complexity and uncertainty of our time, we cast doubt on the adequacy of manualised and regulated approaches—ubiquitous in nurse education—to prepare nurses who can meet the challenges of contemporary practice. We also assert that transgressive approaches to education, as the antithesis of manualisation, reach the same impasse by (over)predetermining what the educational ‘output’ will be. To move beyond this impasse, we draw on the theory of Gert Biesta and Ron Barnett to contrast cultivation and existential‐type education. In so doing, we do not seek to provide ‘answers’ to nurse education's purpose but, rather, raise the profile of what we believe is a right and proper question for the discipline to grapple with.
我们能否将护士教育的目的视为理所当然,更重要的是,我们是否应该这样做?这就是本文要讨论的问题。目的问题在护理文献中明显缺失;我们在此的目的是通过展示其对护理未来的重要性,敦促大家不要忽视这一问题。我们通过两个不同但又相互关联的问题来具体和推测护士教育的目的:护士教育的目的是什么?在我们时代的复杂性和不确定性中,我们对护士教育中普遍存在的手工化和规范化方法是否足以培养出能够应对当代实践挑战的护士表示怀疑。我们还断言,作为手工化的对立面,超越性的教育方法(过度)预先确定了教育的 "产出",从而陷入了同样的僵局。为了打破这一僵局,我们借鉴了格特-比埃斯塔(Gert Biesta)和罗恩-巴内特(Ron Barnett)的理论,将培养型教育与存在型教育进行了对比。在这样做的过程中,我们并不是要为护士教育的目的提供 "答案",而是要提高我们对这门学科所要解决的一个正确而恰当的问题的认识。
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引用次数: 0
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