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State-Level Education Quality and Trajectories of Cognitive Function by Race and Educational Attainment. 州级教育质量与按种族和受教育程度划分的认知功能轨迹》(State-Level Education Quality and Trajectories of Cognitive Function by Race and Educational Attainment)。
IF 4.1 2区 医学 Q1 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-01 Epub Date: 2024-07-10 DOI: 10.1111/1468-0009.12709
Katrina M Walsemann, Heide Jackson, Emily Abbruzzi, Jennifer A Ailshire

Policy Points Education-cognition research overlooks the role of education quality in shaping cognitive function at midlife and older ages, even though quality may be more responsive to federal and state investment in public schooling than attainment. For older US adults who attended school during the early to mid-20th century, the quality of US education improved considerably as federal and state investment increased. Ensuring access to high-quality primary and secondary education may protect against poor cognitive function at midlife and older ages, particularly among Black Americans and persons who complete less education. It may also play an important role in reducing health inequities.

Context: Although educational attainment is consistently associated with better cognitive function among older adults, we know little about how education quality is related to cognitive function. This is a key gap in the literature given that the quality of US education improved considerably during the early to mid-20th century as state and federal investment increased. We posit that growing up in states with higher-quality education systems may protect against poor cognitive function, particularly among Black adults and adults who completed fewer years of school.

Methods: We used prospective data on cognitive function from the Health and Retirement Study linked to historical data on state investment in public schools, restricting our sample to non-Hispanic White and Black adults born between 1914 and 1959 (19,096 White adults and 4,625 Black adults). Using race-stratified linear mixed models, we considered if state-level education quality was associated with level and decline in cognitive function and if these patterns differed by years of schooling and race.

Findings: Residing in states with higher-resourced education systems during childhood was associated with better cognitive function, particularly among those who completed less than 12 years of schooling, regardless of race. For White adults, higher-resourced state education systems were associated with higher scores of total cognitive function and episodic memory, but there were diminishing returns as resources increased to very high levels. For Black adults, the relationship between state education resources and cognitive function varied by age with positive associations in midlife and generally null or negative associations at the oldest ages.

Conclusions: Federal and state investment in public schools may provide students with opportunities to develop important cognitive resources during schooling that translate into better cognitive function in later life, especially among marginalized populations.

政策要点 教育-认知研究忽视了教育质量在塑造中老年认知功能方面的作用,尽管教育质量可能比学业成绩更能反映联邦和州对公立学校教育的投资。对于 20 世纪早期至中期上学的美国老年人来说,随着联邦和州政府投资的增加,美国的教育质量有了很大提高。确保获得高质量的初等和中等教育,可防止中年和老年时认知功能低下,尤其是美国黑人和受教育程度较低的人。它还可能在减少健康不平等方面发挥重要作用:尽管受教育程度一直与老年人认知功能的改善相关,但我们对教育质量与认知功能的关系却知之甚少。鉴于美国的教育质量在 20 世纪早期到中期随着州政府和联邦政府投资的增加而大幅提高,这是文献中的一个重要空白。我们认为,在教育系统质量较高的州长大可能会避免认知功能低下,尤其是在黑人成年人和受教育年限较短的成年人中:我们使用了《健康与退休研究》(Health and Retirement Study)中有关认知功能的前瞻性数据以及各州对公立学校投资的历史数据,并将样本限制为 1914 年至 1959 年间出生的非西班牙裔白人和黑人成年人(19096 名白人成年人和 4625 名黑人成年人)。利用种族分层线性混合模型,我们研究了州一级的教育质量是否与认知功能的水平和下降有关,以及这些模式是否因受教育年限和种族而有所不同:无论种族如何,童年时期居住在教育资源较丰富的州与认知功能较好有关,特别是在那些完成学校教育少于 12 年的人中。对于白人成年人来说,资源较丰富的州教育系统与较高的认知功能总分和外显记忆分数有关,但当资源增加到非常高的水平时,回报就会递减。对于黑人成年人来说,州教育资源与认知功能之间的关系因年龄而异,中年时呈正相关,而在最年长时一般呈负相关:结论:联邦和州对公立学校的投资可为学生提供机会,在学校教育期间开发重要的认知资源,这些资源可转化为日后更好的认知功能,尤其是在边缘化人群中。
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引用次数: 0
Impacts of State-Level Opioid Review Programs on Injured Workers and Their Health Care Providers: A Qualitative Study in Washington and Ohio. 州级阿片类药物审查计划对受伤工人及其医疗服务提供者的影响:华盛顿州和俄亥俄州的定性研究。
IF 4.1 2区 医学 Q1 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-01 Epub Date: 2024-06-11 DOI: 10.1111/1468-0009.12705
Tasleem J Padamsee, Courtni Montgomery, Stefan Kienzle, Jeremy B Straughn, Andrea Elmore, Deborah L Fulton-Kehoe, Beryl Schulman, Thomas M Wickizer, Gary M Franklin
<p><p>Policy Points Workers' compensation agencies have instituted opioid review policies to reduce unsafe prescribing. Providers reported more limited and cautious prescribing than in the past; both patients and providers reported collaborative pain-management relationships and satisfactory pain control for patients. Despite the fears articulated by pharmaceutical companies and patient advocates, opioid review programs have not generally resulted in unmanaged pain or reduced function in patients, anger or resistance from patients or providers, or damage to patient-provider relationships or clinical autonomy. Other insurance providers with broad physician networks may want to consider similar quality-improvement efforts to support safe opioid prescribing.</p><p><strong>Context: </strong>Unsafe prescribing practices have been among the central causes of improper reception of opioids, unsafe use, and overdose in the United States. Workers' compensation agencies in Washington and Ohio have implemented opioid review programs (ORPs)-a form of quality improvement based on utilization review-to curb unsafe prescribing. Evidence suggests that such regulations indeed reduce unsafe prescribing, but pharmaceutical companies and patient advocates have raised concerns about negative impacts that could also result. This study explores whether three core sets of problems have actually come to pass: (1) unmanaged pain or reduced function among patients, (2) anger or resistance to ORPs from patients or providers, and (3) damage to patient-provider relationships or clinical autonomy.</p><p><strong>Methods: </strong>In-depth semistructured interviews were conducted with 48 patients (21 from Washington, 27 from Ohio) and 32 providers (18 from Washington, 14 from Ohio) who were purposively sampled to represent a range of injury and practice types. Thematic coding was conducted with codebooks developed using both inductive and deductive approaches.</p><p><strong>Findings: </strong>The consequences of opioid regulations have been generally positive: providers report more limited prescribing and a focus on multimodal pain control; patients report satisfactory pain control and recovery alongside collaborative relationships with providers. Participants attribute these patterns to a broad environment of opioid caution; they do not generally perceive workers' compensation policies as distinctly impactful. Both patients and providers comment frequently on the difficult aspects of interacting with workers' compensation agencies; effects of these range from simple inconvenience to delays in care, unmanaged pain, and reduced potential for physical recovery.</p><p><strong>Conclusions: </strong>In general, the three types of feared negative impacts have not come to pass for either patients or providers. Although interacting with workers' compensation agencies involves difficulties typical of interacting with other insurers, opioid controls seem to have generally positive effects
政策要点 工人赔偿机构已经制定了阿片类药物审查政策,以减少不安全的处方。医疗服务提供者表示,与过去相比,他们开出的处方更加有限和谨慎;患者和医疗服务提供者都表示,双方建立了合作的疼痛管理关系,患者的疼痛控制效果令人满意。尽管制药公司和患者权益倡导者表达了他们的担忧,但阿片类药物审查计划一般不会导致患者疼痛得不到控制或功能减退,不会引起患者或医疗服务提供者的愤怒或抵制,也不会损害患者与医疗服务提供者的关系或临床自主权。其他拥有广泛医生网络的保险提供商可能会考虑采取类似的质量改进措施,以支持阿片类药物的安全处方:不安全的处方行为是美国阿片类药物接收不当、使用不安全和用药过量的主要原因之一。华盛顿州和俄亥俄州的工伤赔偿机构实施了阿片类药物审查计划(ORPs)--一种基于使用审查的质量改进形式,以遏制不安全处方。有证据表明,此类规定确实减少了不安全处方的开具,但制药公司和患者权益倡导者也对可能产生的负面影响表示担忧。本研究探讨了三类核心问题是否真的发生了:(1)患者的疼痛得不到控制或功能减退;(2)患者或医疗服务提供者对 ORPs 感到愤怒或抵触;以及(3)患者与医疗服务提供者的关系或临床自主权受到损害:对 48 名患者(21 名来自华盛顿州,27 名来自俄亥俄州)和 32 名医疗服务提供者(18 名来自华盛顿州,14 名来自俄亥俄州)进行了深入的半结构式访谈。采用归纳法和演绎法编制的编码手册进行了主题编码:阿片类药物管理条例的影响总体上是积极的:医疗服务提供者报告说,他们开出了更有限的处方,并注重多模式疼痛控制;患者报告说,他们对疼痛控制和康复以及与医疗服务提供者的合作关系感到满意。参与者将这些模式归因于对阿片类药物持谨慎态度的大环境;他们普遍认为工伤赔偿政策不会产生明显影响。患者和医疗服务提供者经常谈到与工伤赔偿机构互动的困难之处;这些影响包括简单的不便、护理延误、疼痛得不到控制以及身体恢复潜力下降等:总的来说,患者和医疗服务提供者所担心的三种负面影响都没有发生。尽管与工伤赔偿机构互动时会遇到与其他保险公司互动时常见的困难,但阿片类药物管制措施似乎总体上产生了积极的影响,并得到了普遍的好评。
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引用次数: 0
Policy Recommendations for Coordinated and Sustainable Growth of the Behavioral Health Workforce. 关于行为健康工作人员队伍协调和可持续增长的政策建议。
IF 4.1 2区 医学 Q1 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-01 Epub Date: 2024-07-23 DOI: 10.1111/1468-0009.12711
Briana S Last, Erika L Crable

Policy Points Demand for behavioral health services outpaces the capacity of the existing workforce, and the unmet need for behavioral health services is expected to grow. This paper summarizes research and policy evidence demonstrating that the long-standing challenges that impede behavioral health workforce development and retention (i.e., low wages, high workloads, training gaps) are being replicated by growing efforts to expand the workforce through task-sharing delivery to nonspecialist behavioral health providers (e.g., peer specialists, promotores de salud). In this paper, we describe policy opportunities to sustain behavioral health workforce growth to meet demand while supporting fair wages, labor protections, and rigorous training.

政策要点 对行为健康服务的需求超过了现有劳动力的能力,预计未得到满足的行为健康服务需求还将增长。本文总结的研究和政策证据表明,长期以来阻碍行为健康人才队伍发展和保留的挑战(即工资低、工作量大、培训缺口),正通过向非专业行为健康服务提供者(如同伴专家、健康促进者)提供任务分担服务的方式不断扩大人才队伍。在本文中,我们阐述了在支持公平工资、劳动保护和严格培训的同时,维持行为健康劳动力增长以满足需求的政策机遇。
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引用次数: 0
Asking MultiCrit Questions: A Reflexive and Critical Framework to Promote Health Data Equity for the Multiracial Population. 提出多重批判性问题:促进多种族人口健康数据平等的反思性和批判性框架》(A Reflexive and Critical Framework to Promote Health Data Equity for the Multiracial Population)。
IF 4.8 2区 医学 Q1 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-06-01 Epub Date: 2024-02-29 DOI: 10.1111/1468-0009.12696
Tracy Lam-Hine, Sarah Forthal, Candice Y Johnson, Helen B Chin

Policy Points Health equity work primarily centers monoracial populations; however, the rapid growth of the Multiracial population and increasingly clear health disparities affecting the people in that population complicate our understanding of racial health equity. Limited resources exist for health researchers and professionals grappling with this complexity, likely contributing to the relative dearth of health literature describing the Multiracial population. We introduce a question-based framework built on core principles from Critical Multiracial Theory (MultiCrit) and Critical Race Public Health Praxis, designed for researchers, clinicians, and policymakers to encourage health data equity for the Multiracial population.

政策要点 健康公平工作主要以单一种族人口为中心;然而,多种族人口的快速增长以及影响该人口的健康差距日益明显,使我们对种族健康公平的理解变得更加复杂。健康研究人员和专业人员在应对这一复杂问题时所获得的资源有限,这可能是导致描述多种族人口的健康文献相对匮乏的原因之一。我们介绍了一个基于问题的框架,该框架建立在批判性多种族理论(MultiCrit)和批判性种族公共卫生实践的核心原则之上,专为研究人员、临床医生和政策制定者设计,旨在促进多种族人口的健康数据公平。
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引用次数: 0
Multisector Collaboration vs. Social Democracy for Addressing Social Determinants of Health. 解决健康的社会决定因素的多部门合作与社会民主。
IF 4.8 2区 医学 Q1 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-06-01 Epub Date: 2023-12-29 DOI: 10.1111/1468-0009.12685
Seth A Berkowitz

Policy Points Multisector collaboration, the dominant approach for responding to health harms created by adverse social conditions, involves collaboration among health care insurers, health care systems, and social services organizations. Social democracy, an underused alternative, seeks to use government policy to shape the civil (e.g., civil rights), political (e.g., voting rights), and economic (e.g., labor market institutions, property rights, and the tax-and-transfer system) institutions that produce health. Multisector collaboration may not achieve its goals, both because the collaborations are difficult to accomplish and because it does not seek to transform social conditions, only to mitigate their harms. Social democracy requires political contestation but has greater potential to improve population health and health equity.

政策要点 多部门合作是应对不利社会条件对健康造成伤害的主要方法,涉及医疗保险公司、医疗保健系统和社会服务组织之间的合作。社会民主是一种未被充分利用的替代方法,它试图利用政府政策来塑造产生健康的公民(如公民权利)、政治(如投票权)和经济(如劳动力市场制度、财产权和税收与转移制度)制度。多部门合作可能无法实现其目标,一是因为合作难以实现,二是因为它并不寻求改变社会状况,而只是减轻其危害。社会民主需要政治竞争,但在改善人口健康和卫生公平方面具有更大的潜力。
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引用次数: 0
Toward a Climate-Ready Health Care System: Institutional Motivators and Workforce Engagement. 实现气候就绪的医疗保健系统:机构动机与员工参与。
IF 4.8 2区 医学 Q1 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-06-01 Epub Date: 2024-01-16 DOI: 10.1111/1468-0009.12687
Caleb Dresser, Zachary Johns, Avery Palardy, Sarah McKINNON, Suellen Breakey, Ana M Viamonte Ros, Patrice K Nicholas

Policy Points The US health care system faces mounting pressure to reduce greenhouse gas emissions and adapt to the impacts of climate change; motivated institutions and an engaged health care workforce are essential to the development, implementation, and maintenance of a climate-ready US health care system. Health care workers have numerous profession-specific and role-specific opportunities to address the causes and impacts of climate change. Policies must address institutional barriers to change and create incentives aligned with climate readiness goals. Institutions and individuals can support climate readiness by integrating content on the health care implications of climate change into educational curricula.

政策要点 美国医疗保健系统在减少温室气体排放和适应气候变化影响方面面临着越来越大的压力;积极主动的机构和参与其中的医疗保健队伍对于发展、实施和维护一个气候就绪的美国医疗保健系统至关重要。医护人员在应对气候变化的成因和影响方面拥有众多特定职业和特定角色的机会。政策必须解决阻碍变革的制度性障碍,并建立与气候就绪目标相一致的激励机制。机构和个人可以通过将气候变化对医疗保健的影响纳入教育课程来支持气候就绪。
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引用次数: 0
Assessing the Impact of the 340B Drug Pricing Program: A Scoping Review of the Empirical, Peer-Reviewed Literature. 评估 340B 药品定价计划的影响:同行评议文献实证范围综述》(A Scoping Review of the Empirical, Peer-Reviewed Literature.
IF 4.8 2区 医学 Q1 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-06-01 Epub Date: 2024-01-28 DOI: 10.1111/1468-0009.12691
Timothy W Levengood, Rena M Conti, Sean Cahill, Megan B Cole
<p><p>Policy Points The 340B Drug Pricing Program accounts for roughly 1 out of every 100 dollars spent in the $4.3 trillion US health care industry. Decisions affecting the program will have wide-ranging consequences throughout the US safety net. Our scoping review provides a roadmap of the questions being asked about the 340B program and an initial synthesis of the answers. The highest-quality evidence indicates that nonprofit, disproportionate share hospitals may be using the 340B program in margin-motivated ways, with inconsistent evidence for increased safety net engagement; however, this finding is not consistent across other hospital types and public health clinics, which face different incentive structures and reporting requirements.</p><p><strong>Context: </strong>Despite remarkable growth and relevance of the 340B Drug Pricing Program to current health care practice and policy debate, academic literature examining 340B has lagged. The objectives of this scoping review were to summarize i) common research questions published about 340B, ii) what is empirically known about 340B and its implications, and iii) remaining knowledge gaps, all organized in a way that is informative to practitioners, researchers, and decision makers.</p><p><strong>Methods: </strong>We conducted a scoping review of the peer-reviewed, empirical 340B literature (database inception to March 2023). We categorized studies by suitability of their design for internal validity, type of covered entity studied, and motivation-by-scope category.</p><p><strong>Findings: </strong>The final yield included 44 peer-reviewed, empirical studies published between 2003 and 2023. We identified 15 frequently asked research questions in the literature, across 6 categories of inquiry-motivation (margin or mission) and scope (external, covered entity, and care delivery interface). Literature with greatest internal validity leaned toward evidence of margin-motivated behavior at the external environment and covered entity levels, with inconsistent findings supporting mission-motivated behavior at these levels; this was particularly the case among participating disproportionate share hospitals (DSHs). However, included case studies were unanimous in demonstrating positive effects of the 340B program for carrying out a provider's safety net mission.</p><p><strong>Conclusions: </strong>In our scoping review of the 340B program, the highest-quality evidence indicates nonprofit, DSHs may be using the 340B program in margin-motivated ways, with inconsistent evidence for increased safety net engagement; however, this finding is not consistent across other hospital types and public health clinics, which face different incentive structures and reporting requirements. Future studies should examine heterogeneity by covered entity types (i.e., hospitals vs. public health clinics), characteristics, and time period of 340B enrollment. Our findings provide additional context to current health policy disc
政策要点 340B 药品定价计划约占美国 4.3 万亿美元医疗保健行业每 100 美元支出中的 1%。影响该计划的决策将对整个美国安全网产生广泛的影响。我们的范围综述提供了有关 340B 计划问题的路线图,并对答案进行了初步归纳。质量最高的证据表明,非营利性、比例过大的医院可能会在利润的驱动下使用 340B 计划,但关于安全网参与度提高的证据并不一致;然而,这一结论在其他类型的医院和公共卫生诊所中并不一致,因为它们面临着不同的激励结构和报告要求:背景:尽管 340B 药品定价计划取得了长足发展,并与当前的医疗实践和政策辩论密切相关,但研究 340B 的学术文献却十分滞后。本范围综述的目的是总结 i) 已发表的有关 340B 的常见研究问题;ii) 有关 340B 及其影响的经验知识;iii) 尚存在的知识差距,所有这些都以对从业人员、研究人员和决策者具有参考价值的方式进行组织:我们对经同行评审的 340B 实证文献进行了一次范围界定审查(从数据库建立到 2023 年 3 月)。我们按照内部有效性设计的适宜性、所研究的承保实体类型以及按范围类别划分的动机对研究进行了分类:最终结果包括 2003 年至 2023 年间发表的 44 项经同行评审的实证研究。我们在文献中发现了 15 个常见的研究问题,涉及 6 个调查类别--动机(边际或使命)和范围(外部、承保实体和医疗服务界面)。内部有效性最高的文献倾向于证明在外部环境和承保实体层面存在以利润为动机的行为,而支持在这些层面存在以使命为动机的行为的研究结果并不一致;这在参与的不成比例份额医院(DSHs)中尤为明显。然而,所纳入的案例研究一致表明,340B 计划对医疗服务提供者履行安全网使命具有积极作用:在我们对 340B 计划进行的范围审查中,最高质量的证据表明非营利性 DSH 医院可能会以利润为动机的方式使用 340B 计划,但关于安全网参与度提高的证据并不一致;然而,这一结论在其他医院类型和公共卫生诊所中并不一致,因为它们面临不同的激励结构和报告要求。未来的研究应根据承保实体的类型(即医院与公共卫生诊所)、特征和 340B 注册的时间段来研究异质性。我们的研究结果为当前有关 340B 计划的卫生政策讨论提供了更多的背景资料。
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引用次数: 0
Policy Interventions to Enhance Medical Care for People With Obesity in the United States-Challenges, Opportunities, and Future Directions. 加强美国肥胖症患者医疗保健的政策干预--挑战、机遇和未来方向。
IF 4.8 2区 医学 Q1 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-06-01 Epub Date: 2024-02-08 DOI: 10.1111/1468-0009.12693
James René Jolin, Minsoo Kwon, Elizabeth Brock, Jonathan Chen, Aisha Kokan, Ryan Murdock, Fatima Cody Stanford

Policy Points Health policymakers have insufficiently addressed care for people with obesity (body mass index ≥ 30 kg/m2) in the United States. Current federal policies targeting obesity medications reflect this unfortunate reality. We argue for a novel policy framework to increase access to effective obesity therapeutics and care, recognizing that, though prevention is critical, the epidemic proportions of obesity in the United States warrant immediate interventions to augment care. Reducing barriers to and improving the quality of existing anti-obesity medications, intensive behavioral therapy, weight management nutrition and dietary counseling, and bariatric surgery are critical. Moreover, to ensure continuity of care and patient-clinician trust, combating physician and broader weight stigma must represent a central component of any viable obesity care agenda.

政策要点 在美国,卫生政策制定者对肥胖症患者(体重指数≥ 30 kg/m2)的护理工作重视不够。目前针对肥胖症药物的联邦政策反映了这一不幸的现实。我们主张建立一个新的政策框架,以增加获得有效肥胖症治疗和护理的机会,同时认识到,尽管预防至关重要,但美国肥胖症的流行比例需要立即采取干预措施来加强护理。减少现有抗肥胖药物、强化行为疗法、体重管理营养和饮食咨询以及减肥手术的障碍并提高其质量至关重要。此外,为了确保护理的连续性和病人与医生之间的信任,消除医生和更广泛的体重耻辱感必须成为任何可行的肥胖症护理议程的核心组成部分。
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引用次数: 0
Revising the Logic Model Behind Health Care's Social Care Investments. 修订医疗保健社会护理投资背后的逻辑模型。
IF 4.8 2区 医学 Q1 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-06-01 Epub Date: 2024-01-25 DOI: 10.1111/1468-0009.12690
Laura M Gottlieb, Danielle Hessler, Holly Wing, Alejandra Gonzalez-Rocha, Yuri Cartier, Caroline Fichtenberg

Policy Points This article summarizes recent evidence on how increased awareness of patients' social conditions in the health care sector may influence health and health care utilization outcomes. Using this evidence, we propose a more expansive logic model to explain the impacts of social care programs and inform future social care program investments and evaluations.

政策要点 本文总结了最近的一些证据,说明医疗保健部门提高对患者社会状况的认识可能会影响健康和医疗保健的使用效果。利用这些证据,我们提出了一个更广泛的逻辑模型来解释社会医疗项目的影响,并为未来的社会医疗项目投资和评估提供参考。
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引用次数: 0
Changing US Support for Public Health Data Use Through Pandemic and Political Turmoil. 在大流行和政治动荡中改变美国对公共卫生数据使用的支持。
IF 4.8 2区 医学 Q1 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-06-01 Epub Date: 2024-05-13 DOI: 10.1111/1468-0009.12700
Cason D Schmit, Brian N Larson, Thomas Tanabe, Mahin Ramezani, Q I Zheng, Hye-Chung Kum

Policy Points This study examines the impact of several world-changing events in 2020, such as the pandemic and widespread racism protests, on the US population's comfort with the use of identifiable data for public health. Before the 2020 election, there was no significant difference between Democrats and Republicans. However, African Americans exhibited a decrease in comfort that was different from other subgroups. Our findings suggest that the public remained supportive of public health data activities through the pandemic and the turmoil of 2020 election cycle relative to other data use. However, support among African Americans for public health data use experienced a unique decline compared to other demographic groups.

Context: Recent legislative privacy efforts have not included special provisions for public health data use. Although past studies documented support for public health data use, several global events in 2020 have raised awareness and concern about privacy and data use. This study aims to understand whether the events of 2020 affected US privacy preferences on secondary uses of identifiable data, focusing on public health and research uses.

Methods: We deployed two online surveys-in February and November 2020-on data privacy attitudes and preferences using a choice-based-conjoint analysis. Participants received different data-use scenario pairs-varied by the type of data, user, and purpose-and selected scenarios based on their comfort. A hierarchical Bayes regression model simulated population preferences.

Findings: There were 1,373 responses. There was no statistically significant difference in the population's data preferences between February and November, each showing the highest comfort with population health and research data activities and the lowest with profit-driven activities. Most subgroups' data preferences were comparable with the population's preferences, except African Americans who showed significant decreases in comfort with population health and research.

Conclusions: Despite world-changing events, including a pandemic, we found bipartisan public support for using identifiable data for public health and research. The decreasing support among African Americans could relate to the increased awareness of systemic racism, its harms, and persistent disparities. The US population's preferences support including legal provisions that permit public health and research data use in US laws, which are currently lacking specific public health use permissions.

政策要点 本研究探讨了 2020 年几件改变世界的事件(如大流行病和广泛的种族主义抗议)对美国民众在公共卫生方面使用可识别数据的舒适度的影响。在 2020 年大选之前,民主党人和共和党人之间没有明显差异。然而,非裔美国人的舒适度有所下降,这与其他亚群有所不同。我们的研究结果表明,相对于其他数据的使用,公众在大流行病和 2020 年选举周期的动荡中仍然支持公共卫生数据活动。然而,与其他人口群体相比,非裔美国人对公共卫生数据使用的支持率出现了独特的下降:近期的隐私立法工作并未包含针对公共卫生数据使用的特别规定。尽管过去的研究记录了对公共卫生数据使用的支持,但 2020 年发生的几起全球性事件提高了人们对隐私和数据使用的认识和关注。本研究旨在了解 2020 年发生的事件是否影响了美国对可识别数据二次使用的隐私偏好,重点关注公共卫生和研究用途:我们在 2020 年 2 月和 11 月使用基于选择的联合分析方法对数据隐私的态度和偏好进行了两次在线调查。参与者收到了不同的数据使用场景配对--根据数据类型、用户和目的而有所不同--并根据他们的舒适度选择场景。分层贝叶斯回归模型模拟了人群偏好:共收到 1,373 份回复。在二月和十一月之间,人们对数据的偏好没有明显的统计学差异,每个人对人口健康和研究数据活动的舒适度最高,而对利润驱动型活动的舒适度最低。除非洲裔美国人对人口健康和研究数据活动的舒适度明显下降外,大多数亚群的数据偏好与人口偏好相当:尽管发生了包括大流行病在内的改变世界的事件,但我们发现两党公众都支持将可识别数据用于公共卫生和研究。非裔美国人的支持率下降可能与他们对系统性种族主义、其危害和持续存在的差异的认识提高有关。美国民众的偏好支持在美国法律中纳入允许使用公共卫生和研究数据的法律条款,而美国法律目前还缺乏具体的公共卫生使用许可。
{"title":"Changing US Support for Public Health Data Use Through Pandemic and Political Turmoil.","authors":"Cason D Schmit, Brian N Larson, Thomas Tanabe, Mahin Ramezani, Q I Zheng, Hye-Chung Kum","doi":"10.1111/1468-0009.12700","DOIUrl":"10.1111/1468-0009.12700","url":null,"abstract":"<p><p>Policy Points This study examines the impact of several world-changing events in 2020, such as the pandemic and widespread racism protests, on the US population's comfort with the use of identifiable data for public health. Before the 2020 election, there was no significant difference between Democrats and Republicans. However, African Americans exhibited a decrease in comfort that was different from other subgroups. Our findings suggest that the public remained supportive of public health data activities through the pandemic and the turmoil of 2020 election cycle relative to other data use. However, support among African Americans for public health data use experienced a unique decline compared to other demographic groups.</p><p><strong>Context: </strong>Recent legislative privacy efforts have not included special provisions for public health data use. Although past studies documented support for public health data use, several global events in 2020 have raised awareness and concern about privacy and data use. This study aims to understand whether the events of 2020 affected US privacy preferences on secondary uses of identifiable data, focusing on public health and research uses.</p><p><strong>Methods: </strong>We deployed two online surveys-in February and November 2020-on data privacy attitudes and preferences using a choice-based-conjoint analysis. Participants received different data-use scenario pairs-varied by the type of data, user, and purpose-and selected scenarios based on their comfort. A hierarchical Bayes regression model simulated population preferences.</p><p><strong>Findings: </strong>There were 1,373 responses. There was no statistically significant difference in the population's data preferences between February and November, each showing the highest comfort with population health and research data activities and the lowest with profit-driven activities. Most subgroups' data preferences were comparable with the population's preferences, except African Americans who showed significant decreases in comfort with population health and research.</p><p><strong>Conclusions: </strong>Despite world-changing events, including a pandemic, we found bipartisan public support for using identifiable data for public health and research. The decreasing support among African Americans could relate to the increased awareness of systemic racism, its harms, and persistent disparities. The US population's preferences support including legal provisions that permit public health and research data use in US laws, which are currently lacking specific public health use permissions.</p>","PeriodicalId":49810,"journal":{"name":"Milbank Quarterly","volume":" ","pages":"463-502"},"PeriodicalIF":4.8,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11176408/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140917385","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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Milbank Quarterly
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