Pub Date : 2022-01-01DOI: 10.20986/medpal.2022.1321/2022
André Filipe Oliveira dos Santos, Abel García Abejas, H. Martins, �ngels Salvador Verg�s
Introduction: Telemedicine or telehealth are similar concepts that define the use of telecommunication technologies in delivering specialized medical services at a distance. The palliative care setting offers new opportunities to enhance communication and support patients and their families at the end of life. However, there are ethical implications in the
{"title":"Telemedicina aplicada a los cuidados paliativos, implicaciones éticas y beneficios: una revisión sistemática","authors":"André Filipe Oliveira dos Santos, Abel García Abejas, H. Martins, �ngels Salvador Verg�s","doi":"10.20986/medpal.2022.1321/2022","DOIUrl":"https://doi.org/10.20986/medpal.2022.1321/2022","url":null,"abstract":"Introduction: Telemedicine or telehealth are similar concepts that define the use of telecommunication technologies in delivering specialized medical services at a distance. The palliative care setting offers new opportunities to enhance communication and support patients and their families at the end of life. However, there are ethical implications in the","PeriodicalId":49831,"journal":{"name":"Medicina Paliativa","volume":"77 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"68140164","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-01-01DOI: 10.20986/medpal.2022.1293/2021
M. Lacasta, Joaquín T Limonero, Orla Keegan, Irene Murphy, Inger Benkel, Barbara Monroe ,, Mai-Britt Guldin
Objetive: To describe and compare the type and characteristics of bereavement care in Europe and Spain. As well as, update and identify advances in Spain to improve care for grief. Method: Observational, descriptive, prospective and comparative study. Made from data from the EAPC bereavement group relating to Spain, collected through a questionnaire consisting of 54 questions in 6 sections: background; support; personal; access, levels of care; community aspects; resources and care model. Distributed by online mail through the EAPC to 56 national PC associations. Comparisons between Europe and Spain were made using Pearson's χ2 test. Results: Bereavement care is offered in 83 % of the 314 responding services in Europe and in 73 % of 56 services in Spain, with similar data to previous Spanish studies. Most services correspond to hospital units. The type of support or specialized intervention depends on the level of care in both groups. In Europe, 27 % have National Grief Guides in their country, in Spain 61 % of the services, which facilitates action. “Formal risk instruments” are used by only a quarter of the services. Conclusions: This study presents an advance and a future challenge in bereavement care in Europe and Spain. Data has shown that bereavement care is not part of all services. The number of responses to the questionnaires has not increased nor have the services in Spain increased. Both in Europe and in Spain, it is necessary to continue promoting, formalizing and increasing services with attention to grief, as an essential part of palliative care services.
{"title":"Atención al duelo en los servicios españoles de cuidados paliativos: estudio comparativo con otros países europeos","authors":"M. Lacasta, Joaquín T Limonero, Orla Keegan, Irene Murphy, Inger Benkel, Barbara Monroe ,, Mai-Britt Guldin","doi":"10.20986/medpal.2022.1293/2021","DOIUrl":"https://doi.org/10.20986/medpal.2022.1293/2021","url":null,"abstract":"Objetive: To describe and compare the type and characteristics of bereavement care in Europe and Spain. As well as, update and identify advances in Spain to improve care for grief. Method: Observational, descriptive, prospective and comparative study. Made from data from the EAPC bereavement group relating to Spain, collected through a questionnaire consisting of 54 questions in 6 sections: background; support; personal; access, levels of care; community aspects; resources and care model. Distributed by online mail through the EAPC to 56 national PC associations. Comparisons between Europe and Spain were made using Pearson's χ2 test. Results: Bereavement care is offered in 83 % of the 314 responding services in Europe and in 73 % of 56 services in Spain, with similar data to previous Spanish studies. Most services correspond to hospital units. The type of support or specialized intervention depends on the level of care in both groups. In Europe, 27 % have National Grief Guides in their country, in Spain 61 % of the services, which facilitates action. “Formal risk instruments” are used by only a quarter of the services. Conclusions: This study presents an advance and a future challenge in bereavement care in Europe and Spain. Data has shown that bereavement care is not part of all services. The number of responses to the questionnaires has not increased nor have the services in Spain increased. Both in Europe and in Spain, it is necessary to continue promoting, formalizing and increasing services with attention to grief, as an essential part of palliative care services.","PeriodicalId":49831,"journal":{"name":"Medicina Paliativa","volume":"1 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"68138785","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-01-01DOI: 10.20986/medpal.2022.1298/2021
Anna TORNÉ COROMINA, Ester FONTSERE CANDELL, Rut CABESTANY MONTIA, Ramona Nicoleta Sandu, Alba MARQUEZ QUIÑONERO, Ester GOUTAN ROURA, J. Amblàs Novellas
{"title":"De la edad cronológica a la fragilidad: ¿un nuevo paradigma en la valoración de las personas con enfermedad oncológica atendidas en unidades de cuidados paliativos?","authors":"Anna TORNÉ COROMINA, Ester FONTSERE CANDELL, Rut CABESTANY MONTIA, Ramona Nicoleta Sandu, Alba MARQUEZ QUIÑONERO, Ester GOUTAN ROURA, J. Amblàs Novellas","doi":"10.20986/medpal.2022.1298/2021","DOIUrl":"https://doi.org/10.20986/medpal.2022.1298/2021","url":null,"abstract":"","PeriodicalId":49831,"journal":{"name":"Medicina Paliativa","volume":"10 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"68138623","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-01-01DOI: 10.20986/medpal.2022.1347/2022
Enrique Sáez, Isnelda Hernández Riascos, Salvador Martín Utrilla, Olga Forero Rincón, Laura Cubero Plazas, Pilar Medrano Abalos
{"title":"Análisis de la relevancia percibida del trabajo de planificación compartida de la atención a través de la instrumentalización con cartas","authors":"Enrique Sáez, Isnelda Hernández Riascos, Salvador Martín Utrilla, Olga Forero Rincón, Laura Cubero Plazas, Pilar Medrano Abalos","doi":"10.20986/medpal.2022.1347/2022","DOIUrl":"https://doi.org/10.20986/medpal.2022.1347/2022","url":null,"abstract":"","PeriodicalId":49831,"journal":{"name":"Medicina Paliativa","volume":"1 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"68140984","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-01-01DOI: 10.20986/medpal.2022.1299/2021
C. Alcaide, Marta Osuna-Marco, Marta Villa-Alcázar, José Miguel Cárdenas-Rebollo, Blanca Herrero-Velasco, Rosa Alonso-Gutiérrez, B. López-Ibor
{"title":"Radioterapia paliativa pediátrica","authors":"C. Alcaide, Marta Osuna-Marco, Marta Villa-Alcázar, José Miguel Cárdenas-Rebollo, Blanca Herrero-Velasco, Rosa Alonso-Gutiérrez, B. López-Ibor","doi":"10.20986/medpal.2022.1299/2021","DOIUrl":"https://doi.org/10.20986/medpal.2022.1299/2021","url":null,"abstract":"","PeriodicalId":49831,"journal":{"name":"Medicina Paliativa","volume":"1 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"68138673","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-01-01DOI: 10.20986/medpal.2022.1283/2021
Pedro Olmedo Ballester, Nieves María García Berenguer, Daniel Lloret Irles
{"title":"Necesidades psicosociales en Cuidados Paliativos de las personas con Esclerosis Lateral Amiotrófica, familiares y cuidadoras. Una revisión de revisiones","authors":"Pedro Olmedo Ballester, Nieves María García Berenguer, Daniel Lloret Irles","doi":"10.20986/medpal.2022.1283/2021","DOIUrl":"https://doi.org/10.20986/medpal.2022.1283/2021","url":null,"abstract":"","PeriodicalId":49831,"journal":{"name":"Medicina Paliativa","volume":"1 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"68137930","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-01-01DOI: 10.20986/medpal.2022.1325/2022
M. Abián
{"title":"Sí, hay vida después de la muerte","authors":"M. Abián","doi":"10.20986/medpal.2022.1325/2022","DOIUrl":"https://doi.org/10.20986/medpal.2022.1325/2022","url":null,"abstract":"","PeriodicalId":49831,"journal":{"name":"Medicina Paliativa","volume":"1 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"68139691","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2022-01-01DOI: 10.20986/medpal.2022.1330/2022
Marta Castro Peraza, K. Valdés, Lilia Maria Ortega Gonzales
Introduction: Attention to HIV/AIDS infection in Cuba as a chronic disease demands integrative solutions, for which the perspective of palliative care could be an important contribution. Objective: To explore the need for palliative care in hospitalized HIV/AIDS patients by health providers. Method: An observational, cross-sectional study was carried out at the “Pedro Kourí” Institute of Tropical Medicine between March and April 2016, with patients infected by the human immunodeficiency virus in the AIDS stage. The exclusion criteria were the willingness of the patient not to be part of the study and those cases that died 48 hours after admission. The NECPAL questionnaire was applied to the attending physicians to identify patients with palliative care needs. Results: Of the 123 patients studied, 87.8 % were men, under 45 years of age (66.7 %), with more than 10 years of HIV diagnosis (33.3 %). 65.0 % had CD4 + < 200 cells/ml and 87.0 % had detectable CV. The NECPAL instrument yielded 75 patients (61.0 %) with positive identification. The wasting syndrome (p > 0.006, OR 3.9 [95% CI 1.4-10.4]) and the presence of anemia (p > 0.001, OR 4.7 [95 % CI 1.9 -11.8]) were the variables that were related to the positive identification of NECPAL. Conclusions: The NECPAL instrument was useful in detecting palliative needs by medical assistance personnel who care for HIV/AIDS patients, and who do not have training in palliative care.
导言:古巴对艾滋病毒/艾滋病感染的关注是一种慢性病，需要采取综合解决办法，姑息治疗的观点可对此作出重要贡献。目的:探讨医护人员对住院HIV/AIDS患者姑息治疗的需求。方法:2016年3月至4月在“Pedro Kourí”热带医学研究所对艾滋病期人类免疫缺陷病毒感染患者进行观察性横断面研究。排除标准是患者不参与研究的意愿和入院后48小时死亡的病例。采用NECPAL问卷对主治医师进行调查，以确定患者对姑息治疗的需求。结果:在研究的123例患者中，87.8%为男性，年龄在45岁以下(66.7%)，HIV诊断超过10年(33.3%)。65.0% CD4 + < 200 cells/ml, 87.0% CV可检出。NECPAL仪器有75例(61.0%)患者阳性鉴定。消瘦综合征(p < 0.006, OR < 3.9 [95% CI 1.4-10.4])和贫血的存在(p < 0.001, OR < 4.7 [95% CI 1.9 -11.8])是与NECPAL阳性鉴定相关的变量。结论:NECPAL仪器在检测未接受过姑息治疗培训的艾滋病毒/艾滋病患者的医疗援助人员的姑息治疗需求方面是有用的。
{"title":"Necesidad de cuidados paliativos en pacientes VIH/sida en un hospital de tercer nivel en La Habana. Utilidad del cuestionario NECPAL","authors":"Marta Castro Peraza, K. Valdés, Lilia Maria Ortega Gonzales","doi":"10.20986/medpal.2022.1330/2022","DOIUrl":"https://doi.org/10.20986/medpal.2022.1330/2022","url":null,"abstract":"Introduction: Attention to HIV/AIDS infection in Cuba as a chronic disease demands integrative solutions, for which the perspective of palliative care could be an important contribution. Objective: To explore the need for palliative care in hospitalized HIV/AIDS patients by health providers. Method: An observational, cross-sectional study was carried out at the “Pedro Kourí” Institute of Tropical Medicine between March and April 2016, with patients infected by the human immunodeficiency virus in the AIDS stage. The exclusion criteria were the willingness of the patient not to be part of the study and those cases that died 48 hours after admission. The NECPAL questionnaire was applied to the attending physicians to identify patients with palliative care needs. Results: Of the 123 patients studied, 87.8 % were men, under 45 years of age (66.7 %), with more than 10 years of HIV diagnosis (33.3 %). 65.0 % had CD4 + < 200 cells/ml and 87.0 % had detectable CV. The NECPAL instrument yielded 75 patients (61.0 %) with positive identification. The wasting syndrome (p > 0.006, OR 3.9 [95% CI 1.4-10.4]) and the presence of anemia (p > 0.001, OR 4.7 [95 % CI 1.9 -11.8]) were the variables that were related to the positive identification of NECPAL. Conclusions: The NECPAL instrument was useful in detecting palliative needs by medical assistance personnel who care for HIV/AIDS patients, and who do not have training in palliative care.","PeriodicalId":49831,"journal":{"name":"Medicina Paliativa","volume":"1 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"68139776","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Objectives: To conduct a broad literature review in order to: a) propose a grouping and a classification of the different approaches described in the literature to analyse the access and use of palliative care in advanced cancer patients, and b) review the social inequalities examined in the literature in relation to the access and the use of palliative care in advanced cancer patients. Methods: Narrative review using the Embase, CINAHL, and PubMed databases until November 2022. Results: 2,666 articles were retrieved and screened by title and abstract with included studies read in full for data extraction. Five main themes of the different approaches were identified in relation to access and use of palliative care: a) symptom management, b) adequacy and quality of care, c) appropriate palliative care, d) advance care planning and e) place of death. Older people, men, from a minority ethnic group, of low socioeconomic status and residing in rural areas are less likely to access to palliative care to relieve pain and suffering produced from cancer disease and at end of life. Conclusions: Palliative care is considered an essential component to provide comprehensive care throughout the cancer disease continuum. However, despite the existence of scientific evidence that recommends the integration of palliative care from the diagnosis of the disease, age, sex, ethnicity, socioeconomic level and residence create inequity in access and use of palliative care in patients with advanced cancer, producing groups of greater structural vulnerability.
{"title":"Cuidados paliativos y desigualdades sociales en cáncer. Una revisión narrativa de la literatura","authors":"Marina Rodríguez-Gómez, I. Ruiz-Pérez, Vicenta Escrib�-Agüir, Guadalupe Pastor-Moreno, Jesús Henares Montiel","doi":"10.20986/medpal.2022.1358/2022","DOIUrl":"https://doi.org/10.20986/medpal.2022.1358/2022","url":null,"abstract":"Objectives: To conduct a broad literature review in order to: a) propose a grouping and a classification of the different approaches described in the literature to analyse the access and use of palliative care in advanced cancer patients, and b) review the social inequalities examined in the literature in relation to the access and the use of palliative care in advanced cancer patients. Methods: Narrative review using the Embase, CINAHL, and PubMed databases until November 2022. Results: 2,666 articles were retrieved and screened by title and abstract with included studies read in full for data extraction. Five main themes of the different approaches were identified in relation to access and use of palliative care: a) symptom management, b) adequacy and quality of care, c) appropriate palliative care, d) advance care planning and e) place of death. Older people, men, from a minority ethnic group, of low socioeconomic status and residing in rural areas are less likely to access to palliative care to relieve pain and suffering produced from cancer disease and at end of life. Conclusions: Palliative care is considered an essential component to provide comprehensive care throughout the cancer disease continuum. However, despite the existence of scientific evidence that recommends the integration of palliative care from the diagnosis of the disease, age, sex, ethnicity, socioeconomic level and residence create inequity in access and use of palliative care in patients with advanced cancer, producing groups of greater structural vulnerability.","PeriodicalId":49831,"journal":{"name":"Medicina Paliativa","volume":"1 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"68140816","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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