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Young Adults and Parents’ Coping With Duchenne/Becker Muscular Dystrophy: A Focus Group Study 年轻人和父母如何应对杜兴/贝克型肌肉萎缩症:焦点小组研究
Pub Date : 2024-03-26 DOI: 10.1177/21676968241242154
Siwar Makhoul Khoury, Hadas Rosenne, Netanya Mischel, Talia Dor-Wollman, Michal Gudinski-Elyshiv, L. Hamama
Duchenne and Becker muscular dystrophy (DBMD) are genetic disorders that are characterized by progressive muscle weakness. As such, individuals with DBMD may need constant assistance with medical and physical care, which is oftenE provided by their family members. An essential part of patients’ medical management and their parents’ care is to develop appropriate coping strategies. This study focuses on young adults in the developmental period of emerging adulthood and parents, aiming to obtain an in-depth understanding of their coping strategies with DBMD. Qualitative methodology was employed and implemented within three focus groups: one group of young adults (ages 18–23) and two groups of parents. The findings of themes related to young adults and parents coping with DBMD included negative emotions alongside positive perceptions, hope, coping with loneliness in the context of being different, and familial adjustments. Our findings revealed similarities and differences in relation to both young adults’ and parents’ coping strategies, referred to in this study as “adjustments”. It may be advantageous to have an interdisciplinary professional team (i.e., physicians, nurses, and psychologists/social workers) intervene with young adults and parents to get a comprehensive understanding of the impact DBMD has on the multidimensional aspects of their daily functioning and the “adjustments” they employ to cope with DBMD.
杜兴氏和贝克氏肌营养不良症(DBMD)是一种遗传性疾病,其特征是进行性肌无力。因此,DBMD 患者可能需要持续的医疗和身体护理帮助,而这通常是由其家人提供的。制定适当的应对策略是患者医疗管理及其父母护理的重要组成部分。本研究以处于成长期的青壮年及其父母为研究对象,旨在深入了解他们应对 DBMD 的策略。本研究采用了定性方法,并在三个焦点小组中实施:一组为青壮年(18-23 岁),两组为父母。与年轻人和父母应对 DBMD 相关的主题包括消极情绪和积极看法、希望、在与众不同的背景下应对孤独以及家庭调整。我们的研究结果表明,年轻人和父母的应对策略(本研究称之为 "调整")既有相似之处,也有不同之处。让一个跨学科的专业团队(即医生、护士和心理学家/社会工作者)对年轻人和家长进行干预,以全面了解 DBMD 对他们日常功能的多方面影响,以及他们为应对 DBMD 而采取的 "调整 "措施,可能会有所裨益。
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引用次数: 0
Profiles of Black Emerging Adults Exposure to Racism-Based Police Violence and Associated Mental Health Outcomes 接触种族主义警察暴力的黑人新成人概况及相关心理健康结果
Pub Date : 2024-03-26 DOI: 10.1177/21676968241240182
Robert O. Motley, Eric Williamson, Alex L. Pieterse, Madelyn Harris
This study characterizes the profile of Black emerging adults aged 18-29 generated from sociodemographic characteristics and indicators of police contact and exposure to racism-based police violence (RPV), and the relationship between profiles and traumatic stress symptoms. A purposive sample of 300 Black emerging adults was recruited for this exploratory study. Cluster analysis (CA) was performed to generate profiles of this sample. Two distinct profiles emerged from the CA. Cluster 1 is characterized by participants with low rates of police contacts and direct RPV exposure, whereas Cluster 2 consists of participants with higher rates of police contacts and direct RPV exposure. Regression analysis revealed that being in Cluster 2, as opposed to Cluster 1, was associated with increased scores for depression, avoidance, and intrusion symptoms. Findings provide guidance for mental health intervention strategies to combat the psychological impact of RPV exposure for Black emerging adults.
本研究根据社会人口特征、与警察接触的指标和遭受种族主义警察暴力(RPV)的情况,描述了 18-29 岁黑人新成人的特征,以及特征与创伤应激症状之间的关系。这项探索性研究招募了 300 名黑人新成人作为目的性样本。通过聚类分析(CA)生成了该样本的特征。聚类分析得出了两个不同的特征。聚类 1 的特征是参与者接触警察和直接接触 RPV 的比例较低,而聚类 2 则由接触警察和直接接触 RPV 的比例较高的参与者组成。回归分析表明,与群组 1 相比,群组 2 与抑郁、回避和入侵症状得分增加有关。研究结果为心理健康干预策略提供了指导,以消除RPV对黑人新成人造成的心理影响。
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引用次数: 0
“Being Sick Does Not Define You”: Communicated Narrative Sense-Making of Autoimmune Disease in Emerging Adult Women in the U.S. "生病并不能定义你":美国成年女性对自身免疫性疾病的认知叙事
Pub Date : 2023-11-23 DOI: 10.1177/21676968231217781
Jacqueline N. Gunning, Jody Koenig Kellas
The onset of autoimmune disease (AD) in emerging adulthood is a disruptive illness experience that is difficult to make sense of. Compounded by hegemonic ideologies, including the master illness narrative of restitution and stereotype of the hysterical female patient, women with AD struggle with narrative coherency. Guided by the retrospective storytelling heuristic of communicated narrative sense-making theory (CNSM), the present study investigates the meanings, values, and beliefs found in emerging adult women’s narratives of AD onset and diagnosis. Using qualitative in-depth interviews, findings identify how young women experiencing disruptive chronic illness at a formative age make sense and meaning of their experience, highlighting the role of identity (re)construction and resistance to dominant narratives. Framed as lessons learned, themes include rediscovering trust in self, separating self from illness, creating and committing to new normals, challenging assumptions about illness, and recognizing privilege and disparities in care. Theoretical and practical implications are discussed.
自身免疫性疾病(AD)在成年期发病是一种难以理解的破坏性疾病经历。再加上霸权意识形态,包括恢复原状的主要疾病叙事和歇斯底里的女性患者的刻板印象,患有自身免疫性疾病的女性患者在叙事连贯性方面挣扎不已。本研究以沟通式叙事感知理论(CNSM)的回顾性故事启发式为指导,调查了成年女性关于注意力缺失症发病和诊断的叙事中的意义、价值观和信念。通过深入的定性访谈,研究结果确定了在成长阶段经历慢性疾病干扰的年轻女性如何理解其经历和意义,突出了身份(重新)建构和抵制主流叙事的作用。作为经验教训,主题包括重新发现对自我的信任、将自我与疾病区分开来、创建并致力于新的规范、挑战对疾病的假设,以及认识到护理中的特权和差异。讨论了理论和实践意义。
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引用次数: 0
Mental Health in Emerging Adults With ADHD and/or Specific Learning Disabilities: A Scoping Review 患有多动症和/或特殊学习障碍的新成人的心理健康:范围研究
Pub Date : 2023-11-20 DOI: 10.1177/21676968231214837
Gabrielle Wilcox, Arianna M. Gibson, Brittany L. Lindsay, Sonal Prasad, Andrew C. H. Szeto
The transition to adulthood, including mental health, has been a focus of research; however, little is known about the mental health outcomes of emerging adults with high incidence diagnoses including ADHD and specific learning disabilities (SLD). This scoping review describes the current state of the research on our understanding of both positive and negative mental health outcomes in these populations. Results of this scoping found an emphasis on emerging adults with ADHD (78%) over those with SLD (12%) or with ADHD and SLD (10%), and over half focused on those who attended postsecondary institutions despite low percentages of these populations going on to postsecondary education. Studies included frequently provided limited information on race or ethnicity, sex or gender, or ADHD or SLD subtypes. Additionally, there was greater focus on negative mental health outcomes (e.g., anxiety, depression) than positive mental health outcomes (e.g., wellbeing, flourishing). We end by discussing implications for future research.0020.
向成年期的过渡,包括心理健康,一直是研究的重点;然而,对于患有多动症(ADHD)和特殊学习障碍(SLD)等高发病率诊断的新兴成年人的心理健康结果,我们却知之甚少。本范围界定综述描述了我们对这些人群的积极和消极心理健康结果的研究现状。范围界定的结果发现,研究的重点是患有多动症(ADHD)的新成人(78%),而不是患有特殊学习障碍(SLD)的新成人(12%)或患有多动症和特殊学习障碍(SLD)的新成人(10%)。所纳入的研究经常提供有关种族或民族、性别、ADHD 或 SLD 亚型的有限信息。此外,对消极心理健康结果(如焦虑、抑郁)的关注多于对积极心理健康结果(如幸福、兴旺)的关注。最后,我们讨论了未来研究的意义。
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引用次数: 0
Overparenting, Loneliness, and Social Anxiety in Emerging Adulthood: The Mediating Role of Emotion Regulation 成年期的过度养育、孤独感和社交焦虑:情绪调节的中介作用
Pub Date : 2023-11-18 DOI: 10.1177/21676968231215878
Chengfei Jiao, Ming Cui, F. Fincham
Emerging adults frequently report feelings of loneliness and social anxiety owing to changes in their social environment, instabilities, and transitions. One of the risk factors that could contribute to emerging adults’ social well-being is overparenting. We examined the association between overparenting, loneliness, and social anxiety among emerging adults and investigated the potential mediating role of emotion regulation as a mechanism that might account for the association. Overparenting was operationalized as a domain-specific construct comprising various aspects of emerging adults’ lives (i.e., academic, health, financial, and relational). College students (N = 287) participated in a short-term longitudinal study and responded to self-reported measures on overparenting, emotion regulation, loneliness, social anxiety, and demographics. Findings from structural equation modeling suggested that relational overparenting was related to higher levels of loneliness and social anxiety among emerging adults and that this association was mediated by emotion regulation. Implications for future research and practice are discussed.
由于社会环境的变化、不稳定性和过渡性,新成人经常会感到孤独和社交焦虑。过度养育是影响新兴成人社会福祉的风险因素之一。我们研究了过度养育、孤独感和新兴成年人社交焦虑之间的关联,并探讨了情绪调节作为一种机制可能起到的中介作用。过度养育是一个特定领域的概念,包括新兴成人生活的各个方面(即学业、健康、经济和关系)。大学生(N = 287)参加了一项短期纵向研究,并对过度养育、情绪调节、孤独感、社交焦虑和人口统计学进行了自我报告。结构方程模型的研究结果表明,关系型过度养育与新兴成年人较高水平的孤独感和社交焦虑有关,而这种关联是通过情绪调节来调节的。本文讨论了未来研究和实践的意义。
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引用次数: 0
Identity Development of Emerging Adults Revealing Negative Experiences of Their Parents 揭示父母负面经历的新兴成人的身份发展
Pub Date : 2023-11-18 DOI: 10.1177/21676968231217344
Yanping Liu, Wenyi Zhu
This qualitative investigation explored the identity development of emerging adults who revealed their parents’ negative experiences. Participants were 169 Chinese college students (M = 19.83, SD = 1.19, 76.92% women) from southwest China. Thematic analysis of the data which were collected in December 2022 suggests that the participants revealed various parental negative experiences including hardships and poverty, failure and regrets, as well as family scandals and interpersonal conflicts. The participants strived to make meaning out of such experiences and looked into the future to make a difference based on their meaning-making capacities. Such a process leads to both personal identity exploration and family identity negotiation which become foundations for their future family narratives. We created a model of personal and family identity development to capture the process of identity development in revealing parental negative experiences. The findings of this study contribute to the scholarship on family narratives and identity development.
这项定性调查探讨了揭示父母负面经历的新兴成人的身份发展。参与者是来自中国西南地区的 169 名中国大学生(男 = 19.83,女 = 1.19,76.92%)。对 2022 年 12 月收集的数据进行的主题分析表明,参与者揭示了父母的各种负面经历,包括艰辛和贫穷、失败和遗憾,以及家庭丑闻和人际冲突。参与者努力从这些经历中创造意义,并根据自己创造意义的能力展望未来,以期有所作为。这一过程既是个人身份的探索,也是家庭身份的协商,是他们未来家庭叙事的基础。我们创建了一个个人和家庭身份发展模型,以捕捉揭示父母负面经历的身份发展过程。本研究的结果为家庭叙事和身份发展方面的学术研究做出了贡献。
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引用次数: 0
Compromising, Avoiding, or Bullying? A Mixed Method Approach to Understanding Conflict Resolution and Bullying Among Undergraduate Roommates 妥协、回避还是欺凌?用混合方法了解大学生室友间的冲突解决和欺凌行为
Pub Date : 2023-11-17 DOI: 10.1177/21676968231216512
Katrina R. Abela, Avnee Sharma, Danielle M. Law
While living with roommates in residence presents a unique set of challenges for emerging adults who are just beginning to navigate a world of adult responsibilities and are adjusting to living with an often-unfamiliar companion, conflicts become inevitable. Common sources of conflict, such as disputes over cleaning duties or noise levels, combine with still-developing conflict resolution skills to create an escalating environment of hostility that can develop into bullying if not properly addressed. However, what remains relatively understudied is how emerging adults navigate conflict management and how conflict resolution styles mitigate such household conflicts. Employing a multi-methods approach, this study utilized quantitative (i.e., questionnaires) and qualitative (i.e., short answer questions) methods to investigate the relative influence of conflict management styles and social support on roommate victimization and bullying among 804 undergraduate students aged 18–21 years old (79% female; M = 19). Multiple hierarchal linear regressions and thematic analyses were employed to analyze the data. The findings revealed that roommate compromise predicted an increase in roommate victimization and bullying, and an inverse relationship between resolving conflict with self-interest, where increased self-interest predicted lower roommate victimization and bullying. Social support was significantly inversely related to roommate bullying and victimization, such that increased social support tended to mitigate bullying and victimization. Taken in unison, these findings convey while students may believe they are compromising, whether they are requires further investigation. This work highlights the need to teach students how to manage conflict in healthy ways while verifying the continued importance of social support.
对于刚刚开始承担成人责任并适应与不熟悉的同伴一起生活的新成人来说,与室友同住会带来一系列独特的挑战,冲突也在所难免。常见的冲突来源,如对清洁工作或噪音水平的争执,再加上尚在发展中的解决冲突的技能,形成了一种不断升级的敌意环境,如果得不到妥善解决,就会发展成欺凌。然而,对新兴成年人如何处理冲突以及冲突解决方式如何缓解此类家庭冲突的研究相对较少。本研究采用多种方法,利用定量(即问卷调查)和定性(即简答题)方法,调查了冲突管理方式和社会支持对 804 名 18-21 岁本科生(79% 为女性;M=19)室友受害和欺凌行为的相对影响。数据分析采用了多重分层线性回归和主题分析。研究结果显示,室友妥协预示着室友伤害和欺凌行为的增加,解决冲突与自我利益之间存在反向关系,自我利益的增加预示着室友伤害和欺凌行为的减少。社会支持与室友欺凌和受害之间存在明显的反向关系,即社会支持的增加往往会减轻欺凌和受害。综合来看,这些研究结果表明,虽然学生可能认为他们在妥协,但他们是否真的妥协还需要进一步调查。这项研究强调了有必要教导学生如何以健康的方式处理冲突,同时验证了社会支持的持续重要性。
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引用次数: 0
Factor Structure Validation and Measurement Invariance Testing of the Five C’s Model of Positive Youth Development among Emerging Adults in Malaysia 马来西亚青少年积极发展五 C 模型的因子结构验证和测量不变量检验
Pub Date : 2023-11-16 DOI: 10.1177/21676968231215877
Zeinab Zaremohzzabieh, Steven Krauss, K. M. Nouri
While validation of positive youth development (PYD) measures has increased considerably of late, validation of the Five C’s of PYD among emerging adults in non-WEIRD countries remains limited. The main objective of this study was to examine the factor structure, measurement invariance, and criterion-related validity of the Five C’s model of PYD through the use of the Positive Youth Development Inventory (PYDI). Data were collected from 436 university students in Malaysia, with a mean age of 21.19 (SD = 1.19). The findings supported a modified bifactor model of the PYDI, which demonstrated strong measurement invariance across gender and race, but not across age categories. Connection showed the strongest latent factor correlations with the other four C’s. Criterion-related validity was supported through its association with psychological hardiness. The findings demonstrate adequate psychometric properties and cultural applicability of a modified bifactor model of the Five C’s model of PYD among emerging adults in Malaysia.
尽管近来对青少年积极发展(PYD)测量方法的验证大大增加,但在非世界青少年发展报告(WEIRD)国家的新兴成年人中,对青少年积极发展五C模型的验证仍然有限。本研究的主要目的是通过使用积极青年发展量表(PYDI)来检验积极青年发展五 C 模型的因子结构、测量不变性和标准相关效度。数据收集自马来西亚的 436 名大学生,他们的平均年龄为 21.19 岁(标准差 = 1.19)。研究结果支持修改后的PYDI双因素模型,该模型在不同性别和种族之间表现出很强的测量不变性,但在不同年龄段之间则没有。连接与其他四个 C 的潜因子相关性最强。通过与心理坚韧性的关联,标准相关有效性得到了支持。研究结果表明,在马来西亚的新兴成年人中,PYD 五 C 模型的修正双因子模型具有充分的心理计量特性和文化适用性。
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引用次数: 0
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Emerging Adulthood
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