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Journal of Bioethical Inquiry最新文献

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A Critical Interpretive Review of the Theoretical Literature Related to Healthcare Codes of Ethics. 医疗卫生伦理规范相关理论文献的批判性解释性回顾。
IF 1.5 3区 哲学 Q2 ETHICS Pub Date : 2025-08-07 DOI: 10.1007/s11673-025-10452-5
Ryan Essex, Lydia Mainey, Francine Gonzales-Walters, Phil Gurnett, Sharon Marie Weldon

Codes of ethics have a long history in healthcare and, for many, are important documents. Codes however have also been extensively criticized for a range of reasons, from the guidance they provide to their meta-ethical assumptions. This review sought to explore the theoretical literature to critically examine the function of codes in healthcare, with a particular focus on their strengths and shortcomings in relation to these functions. A systematic search was combined with a critical interpretive review. The final sample included twenty-four papers. Results of this synthesis suggest that codes fulfil multiple purposes, from providing guidance on ethical issues, to assertions about acceptable and unacceptable behaviour, to establishing and maintaining the status and identity of the professions. Codes also fulfil a number of social purposes, conveying information to the public and others. The extent to which a code does each of these things varies substantially however. We discuss these functions in relation to the many critiques that have been advanced in relation to these documents. We then put these findings into conversation with the broader literature on codes and discuss the challenges that this presents for normative analysis, namely in needing to first identify what a code should do before assessing its shortcomings. If the primary purpose of a code of ethics is to provide guidance, many fail here, the devil is in the detail however. To what extent should codes provide guidance?

道德规范在医疗保健领域有着悠久的历史,对许多人来说,是重要的文件。然而,由于各种原因,从它们提供的指导到它们的元伦理假设,代码也受到了广泛的批评。本综述旨在探索理论文献,以批判性地检查代码在医疗保健中的功能,特别关注它们与这些功能相关的优点和缺点。系统的搜索与批判性的解释性回顾相结合。最后的样本包括24篇论文。这种综合的结果表明,守则实现了多种目的,从提供道德问题的指导,到对可接受和不可接受的行为的断言,再到建立和维持职业的地位和身份。守则还实现了一些社会目的,向公众和其他人传递信息。然而,一个代码完成这些事情的程度有很大的不同。我们在讨论这些功能的同时,也讨论了与这些文件相关的许多批评。然后,我们将这些发现与关于代码的更广泛的文献进行对话,并讨论这为规范分析带来的挑战,即在评估代码的缺点之前需要首先确定代码应该做什么。如果道德准则的主要目的是提供指导,那么许多道德准则在这方面都失败了,然而,问题在于细节。准则应该在多大程度上提供指导?
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引用次数: 0
Ethical Issues and Recommendations in Psychedelic Research and Practice: A Scoping Review. 致幻剂研究和实践中的伦理问题和建议:范围审查。
IF 1.5 3区 哲学 Q2 ETHICS Pub Date : 2025-08-07 DOI: 10.1007/s11673-025-10454-3
N Brittain, N Higgins, M Barber, W Choi, A Carter, J Gardner

The rapid growth in psychedelic research raises novel ethical challenges for both research and psychedelic-assisted therapy. Despite these challenges, there is no consensus among researchers, clinicians, patients, and regulators on how these ethical issues may be avoided or managed. This study aimed to identify key ethical issues in psychedelic research and practice in the literature. A scoping review was performed, identifying fifty-one relevant articles. Content analysis revealed five main ethical concerns in the literature: 1) standards of practice, 2) equity, 3) integrity, 4) cultural appropriation, and 5) epistemic justice. A consultation workshop highlighted several key concerns that were neglected in the literature: 1) post-trial care, 2) lack of consensus on models of care and psychedelic practitioner competencies, and 3) how current research and its associated ethical issues will be translated into practice. Based on these findings the following future directions are recommended: designing clear competency frameworks, increased consultation with Indigenous and priority populations (e.g. ethnic and cultural minorities, under-served groups), guidelines for Indigenous recognition, management of post-trial care in clinical trials, and adequate governance of psychedelic prescribing practices.

迷幻药研究的快速发展对研究和迷幻药辅助治疗提出了新的伦理挑战。尽管存在这些挑战,研究人员、临床医生、患者和监管机构对如何避免或管理这些伦理问题尚未达成共识。本研究旨在确定文献中致幻剂研究和实践中的关键伦理问题。进行了范围审查,确定了51篇相关文章。内容分析揭示了文献中的五个主要伦理问题:1)实践标准,2)公平,3)诚信,4)文化挪用,5)认识正义。一个咨询研讨会强调了文献中被忽视的几个关键问题:1)试验后护理,2)缺乏对护理模式和致幻剂从业者能力的共识,以及3)当前研究及其相关伦理问题将如何转化为实践。基于这些发现,建议未来的方向如下:设计明确的能力框架,增加与土著和优先人群(例如种族和文化少数群体,服务不足群体)的咨询,土著认可指南,临床试验中的试验后护理管理,以及对迷幻药处方实践的适当治理。
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引用次数: 0
"Please, Just Don't Leave Me Alone." A Cry for More Humanity in our Care. “求你了,别丢下我一个人。”呼吁更多的人道关怀。
IF 1.5 3区 哲学 Q2 ETHICS Pub Date : 2025-08-04 DOI: 10.1007/s11673-025-10450-7
Samuel R Falkson

In a world where physicians are experiencing unprecedented burn-out, our communities are progressively losing trust in the medical system, and healthcare costs continually increase to astronomical levels without improving outcomes, it seems clear that we need to make changes in how we care for our patients. Current healthcare conditions can evoke nostalgia for an idealized past, where physicians were valued members of their communities, making house calls, doing all they could to comprehensively support their neighbours in health and life. As a young physician who envisioned such a career where I could apply my years of hard work and studying towards helping those around me in their moments of greatest need, I often feel that the system we have built thwarts this ideal at every turn. Here I share a story from my intern year of training that marked me, demonstrating just how disconnected we are becoming from our patients. My story involves a clinical situation with which I believe many can relate, highlighting the dire need for us clinicians to care with more humanity.

在一个医生正在经历前所未有的职业倦怠的世界里,我们的社区正在逐渐失去对医疗系统的信任,医疗保健费用不断增加到天文数字水平,而结果却没有改善,很明显,我们需要改变我们照顾病人的方式。当前的医疗条件可以唤起人们对理想化的过去的怀念,在那里,医生是社区的重要成员,出诊,尽其所能全面支持邻居的健康和生活。作为一名年轻的医生,我曾设想过这样一种职业,我可以用我多年的辛勤工作和学习来帮助我周围的人,在他们最需要的时候,我经常觉得我们建立的体系在每一个转折点都阻碍了这一理想。在这里,我分享我实习那年的一个故事,这个故事给我留下了深刻的印象,它证明了我们与病人之间是多么的脱节。我的故事涉及到一个临床情况,我相信很多人都能与之联系起来,强调我们临床医生迫切需要更多的人道关怀。
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引用次数: 0
Reflections on Epistemic Injustice to Advance Person-Centred Care Through the Experiences of Persons with Chronic Pain. 反思认识上的不公正,以推进以人为本的护理,通过经验的人与慢性疼痛。
IF 1.5 3区 哲学 Q2 ETHICS Pub Date : 2025-07-29 DOI: 10.1007/s11673-025-10457-0
Felix Gabathuler, Kristina Würth, Martina Hodel, Andrea Glässel, Nikola Biller-Andorno, Bettina Schwind

Rationale: Persons with chronic pain report that their voices are marginalized in healthcare, despite efforts to achieve person-centred care.

Aims and objectives: This study aims to explore the healthcare experiences of persons with chronic pain through the lens of epistemic injustice to advance person-centred care.

Method: A secondary analysis of cross-sectional interviews with twenty German-speaking Swiss participants, originally collected as part of the DIPEx Switzerland project, was conducted. Data were examined using thematic analysis.

Results: Results revealed two overarching themes. Under Epistemic Challenges, participants felt dismissed, misunderstood, or relegated to passive roles by a system privileging quantifiable measures over subjective experiences. This overreliance on objective data fosters epistemic injustice by discounting patient testimonies and perpetuating systemic inadequacies. Under Epistemic Opportunities, participants reported more effective knowledge exchange when their expertise was acknowledged, empathy was shown, and professionals recognized their own limitations.

Conclusions: Findings underscore the need to balance objective assessments with patients' subjective perspectives, recognizing persons with chronic pains as legitimate collaborators. By integrating their lived expertise, healthcare systems may mitigate epistemic injustices and provide more empathetic, effective care.

理由:患有慢性疼痛的人报告说,尽管努力实现以人为本的护理,但他们的声音在医疗保健中被边缘化。目的和目的:本研究旨在探讨慢性疼痛患者的医疗保健经验,通过认识不公正的镜头,以推进以人为本的护理。方法:对20名德语瑞士参与者的横断面访谈进行了二次分析,这些参与者最初是作为DIPEx瑞士项目的一部分收集的。使用专题分析对数据进行了审查。结果:结果揭示了两个总体主题。在认知挑战(Epistemic Challenges)中,参与者感到被忽视、被误解,或者被一个重视可量化措施而不是主观经验的系统降级为被动角色。这种对客观数据的过度依赖,通过忽视病人的证词和使系统性的不足永久化,助长了认识上的不公正。在认知机会下,参与者报告说,当他们的专业知识得到承认,同情被展示,专业人员认识到自己的局限性时,他们的知识交流更有效。结论:研究结果强调需要平衡客观评估和患者的主观观点,认识到慢性疼痛患者是合法的合作者。通过整合他们的生活专业知识,医疗保健系统可以减轻认识上的不公正,并提供更多的同理心,有效的护理。
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引用次数: 0
Review of Ethics in Pharmacy Practice: A Practical Guide : Sullivan, D.M., C. Douglas C., Anderson, J.W. Cole (eds). 2021. Ethics in pharmacy practice: A practical guide. Switzerland: Springer Nature. ISBN 978-3-030-72171-8. 伦理审查在药学实践:实用指南:沙利文,d.m., C道格拉斯C,安德森,J.W.科尔(编)。2021. 药学实践中的伦理学:实用指南。瑞士:施普林格大自然。ISBN 978-3-030-72171-8。
IF 1.8 3区 哲学 Q2 ETHICS Pub Date : 2025-06-04 DOI: 10.1007/s11673-025-10461-4
Hisham E Hasan

Ethics in Pharmacy Practice: A Practical Guide offers a comprehensive and timely resource for navigating the complex ethical challenges faced by pharmacists. This book presents a thorough exploration of ethical decision-making through a blend of moral philosophy and real-world case studies, making it accessible to both students and practicing professionals. Divided into two sections, the text covers fundamental ethical principles, before delving into contemporary issues like reproductive healthcare, end-of-life decisions, vaccine ethics, and the ethical implications of emerging technologies. Its practical approach ensures that readers can apply these ethical concepts directly to their practice. Ideal for pharmacy educators and students, the book serves as both a textbook for academic study and a guide for addressing everyday ethical dilemmas. However, its coverage of rapidly evolving topics may require periodic updates to remain relevant. This work is an essential resource for those seeking to enhance their ethical decision-making skills in an ever-evolving healthcare environment.

药学实践中的伦理:实用指南为药剂师面临的复杂伦理挑战提供了全面而及时的资源。这本书通过道德哲学和现实世界的案例研究的融合,提出了伦理决策的彻底探索,使学生和实践专业人士都可以访问。全书分为两个部分,在深入探讨生殖保健、临终决定、疫苗伦理和新兴技术的伦理影响等当代问题之前,涵盖了基本的伦理原则。它的实用方法确保读者可以将这些伦理概念直接应用到他们的实践中。理想的药学教育工作者和学生,这本书作为学术研究的教科书和解决日常道德困境的指南。然而,它对快速发展主题的报道可能需要定期更新以保持相关性。这项工作是一个重要的资源,为那些寻求提高他们的道德决策技能,在不断发展的医疗保健环境。
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引用次数: 0
Towards an Ethical Analysis of Research in One Health (EAROH). 实现统一健康研究伦理分析 (EAROH)。
IF 1.8 3区 哲学 Q2 ETHICS Pub Date : 2025-06-01 Epub Date: 2024-12-13 DOI: 10.1007/s11673-024-10406-3
Zohar Lederman

The COVID-19 and Monkeypox pandemics and the ongoing Marburg outbreak in Rwanda provide a stark reminder of the importance of espousing a One Health (OH) approach to zoonoses as well as other public health and global health issues. Recent years have in fact seen an exponential rise in biomedical and public health journals and publications explicitly adopting the name of OH. Not all research that pertains to be OH however is indeed OH research, insofar as it does not comply with the proclaimed OH goals of benefiting humans, animals, and the environment. Thus, to ensure such compliance a checklist or toolkit for an ethical analysis of research in OH (EAROH) should be required prior to publication in scientific journals or grant applications. Such a toolkit should be developed by a working group of scholars with expertise in OH ethics, animal ethics, and environmental ethics.

2019冠状病毒病和猴痘大流行以及正在卢旺达暴发的马尔堡疫情鲜明地提醒我们,在人畜共患疾病以及其他公共卫生和全球卫生问题上支持“同一个健康”方针的重要性。事实上,近年来,生物医学和公共卫生期刊和出版物明确采用OH的名称呈指数级增长。然而,并不是所有关于OH的研究都是真正的OH研究,只要它不符合OH所宣称的造福人类、动物和环境的目标。因此,为了确保这种合规性,在发表在科学期刊或资助申请之前,应该要求对OH (EAROH)研究进行伦理分析的清单或工具包。这样的工具包应该由具有OH伦理、动物伦理和环境伦理专业知识的学者组成的工作组来开发。
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引用次数: 0
Ethical Issues in Memory Modification Technology: A Scoping Review. 记忆修改技术的伦理问题:范围审查。
IF 1.8 3区 哲学 Q2 ETHICS Pub Date : 2025-06-01 Epub Date: 2024-10-17 DOI: 10.1007/s11673-024-10371-x
Junjie Yang

Memory modification technology (MMT) refers to the use of neurotechnologies to intervene in memories. Many scholars have reflected on the ethical issues in MMT, but a comprehensive review of this topic has not been seen. This article presents the first scoping review study of ethical issues in MMT using a bibliometric and systematic approach. After thorough examination, 133 records of key literature are included in this scoping review. Six core ethical themes are extracted: (1) self, identity, and authenticity; (2) autonomy and informed consent; (3) welfare and happiness; (4) safety and risks; (5) responsibility and obligation; (6) social and legal justice. More detailed analyses are conducted on the moral stances and reasons held by different scholars concerning these ethical themes. As can be seen, current debates exhibit certain shortcomings, including ambiguous ethical concepts and a restricted scope of analysis. Therefore, we call for deeper reflections on the philosophical foundations, more precise definitions of ethical terms, and more comprehensive examinations of neurotechnological applications, in order to better address the ethical challenges in the future.

记忆改造技术(MMT)是指利用神经技术对记忆进行干预。许多学者对 MMT 的伦理问题进行了反思,但尚未看到对这一主题的全面综述。本文首次采用文献计量学和系统方法对 MMT 中的伦理问题进行了范围综述研究。经过深入研究,133 篇重要文献记录被纳入此次范围界定综述。提取了六个核心伦理主题:(1) 自我、身份和真实性;(2) 自主和知情同意;(3) 福利和幸福;(4) 安全和风险;(5) 责任和义务;(6) 社会和法律公正。不同学者对这些伦理主题所持的道德立场和理由进行了更详细的分析。可以看出,当前的辩论存在一些缺陷,包括伦理概念模糊不清和分析范围有限。因此,我们呼吁对哲学基础进行更深入的思考,对伦理术语进行更精确的定义,对神经技术的应用进行更全面的研究,以便更好地应对未来的伦理挑战。
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引用次数: 0
Ethical Dilemmas and Value Conflicts Experienced by Japanese Social Workers Supporting Older People. 日本养老社会工作者的伦理困境与价值冲突。
IF 1.8 3区 哲学 Q2 ETHICS Pub Date : 2025-06-01 Epub Date: 2025-06-12 DOI: 10.1007/s11673-025-10421-y
C Unozawa, M Tsuruwaka

Background Social workers (SWs) who support older people encounter ethical dilemmas and experience value conflicts when working with other professionals while fulfilling their responsibilities. We explored these experiences by interviewing SWs engaged in care for older people in Japan. Methods We conducted a qualitative interview survey with a targeted sample, employing a narrative analysis method. The participants included twenty-one SWs (four male, seventeen female) employed across acute-care hospitals, convalescent rehabilitation hospitals, home healthcare, and nursing homes. Results SWs described experiences of ethical dilemmas in supporting older people due to conflicting obligations and value priorities. They highly prioritize understanding the life backgrounds and values of patients to be able to discharge their duty to advocate patient autonomy and promote the best interest of the patients. However, SWs faced ethical dilemmas due to their responsibility to the organization, conflicting obligations toward the patient's family versus the patient's wishes, and differing prioritized values compared with medical professionals who prioritize the patient's physical function. Additionally, the relationship between SWs and medical professionals poses challenges in addressing these ethical dilemmas. Conclusion It is crucial to appreciate the significance of individuals from diverse professions by comprehending their respective roles and specialties, fostering equitable relationships, and capitalizing on their distinct expertise through collaboration.

支持长者的社工在履行职责的同时,与其他专业人士合作时,会遇到道德困境和价值观冲突。我们通过采访在日本从事老年人护理工作的社会福利工作者来探索这些经历。方法采用叙事分析法,对有针对性的样本进行定性访谈调查。参与者包括21名社会服务人员(4名男性,17名女性),他们分别在急症护理医院、康复医院、家庭保健和疗养院工作。结果社会福利工作者描述了由于义务和价值优先冲突而导致的支持老年人的道德困境的经历。他们高度重视了解患者的生活背景和价值观,以便能够履行自己的职责,倡导患者的自主权,促进患者的最大利益。然而,由于他们对组织的责任,对患者家庭的义务与患者的意愿相冲突,以及与优先考虑患者身体功能的医疗专业人员不同的优先价值观,SWs面临着伦理困境。此外,社会福利工作者和医疗专业人员之间的关系对解决这些道德困境提出了挑战。通过理解来自不同职业的个人的各自角色和专长,培养公平的关系,并通过合作利用他们独特的专业知识,认识他们的重要性至关重要。
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引用次数: 0
Complex Decision-Making in Paediatric Intensive Care: A Discussion Paper and Suggested Model. 儿科重症监护中的复杂决策:讨论文件和建议模式。
IF 1.8 3区 哲学 Q2 ETHICS Pub Date : 2025-06-01 Epub Date: 2024-10-04 DOI: 10.1007/s11673-024-10381-9
Melanie Jansen, Katie M Moynihan, Lisa S Taylor, Shreerupa Basu

Paediatric Intensive Care Units (PICU) are complex interdisciplinary environments where challenging, high stakes decisions are frequently encountered. We assert that appropriate decisions are more likely to be made if the decision-making process is comprehensive, reasoned, and grounded in thoughtful deliberation. Strategies to overcome barriers to high quality decision-making including, cognitive and implicit bias, group think, inadequate information gathering, and poor quality deliberation should be incorporated. Several general frameworks for decision-making exist, but specific guidance is scarce. In this paper, we provide specific guidance on collaborative complex decision-making for PICUs. The proposed approach is on principles of procedural justice and pragmatic hermeneutics. The process encompasses set-up/planning, information gathering, question formulation, analysis (perspectives, values, and principles), action plan development, decision documentation, and a review and appeal mechanism. The process can be adapted to suit other clinical contexts. Research evaluating the process, exploring how best to develop education for clinicians, and how to build a culture that values high quality deliberation, is worthwhile.

儿科重症监护室(PICU)是一个复杂的跨学科环境,在这里经常会遇到具有挑战性的高风险决策。我们认为,如果决策过程全面、合理,并以深思熟虑为基础,就更有可能做出适当的决策。应采取各种策略来克服阻碍高质量决策的障碍,包括认知和隐性偏见、群体思维、信息收集不足以及审议质量低下。目前已有几个通用的决策框架,但具体的指导却很少。在本文中,我们将为 PICU 的复杂决策协作提供具体指导。所建议的方法基于程序公正和实用诠释学的原则。该流程包括设置/规划、信息收集、问题提出、分析(观点、价值观和原则)、行动计划制定、决策记录以及审查和上诉机制。该流程可根据其他临床情况进行调整。对该流程进行评估、探索如何更好地开展临床医生教育以及如何建立重视高质量审议的文化,这些都值得研究。
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引用次数: 0
The Instrumentalization of Public Health Issues for Propaganda by the Far-Right. 极右翼利用公共卫生问题进行宣传。
IF 1.8 3区 哲学 Q2 ETHICS Pub Date : 2025-06-01 Epub Date: 2024-10-02 DOI: 10.1007/s11673-024-10388-2
L Cordeiro-Rodrigues, D Landon Cole, D Duan

Political opportunism of the far-right threatens the efficacy of public health policies and political stability in general. In this commentary, we outline some of the ways that the European far-right has misused public health concerns as propaganda tools. This is a significant threat to the goals of making health and science more inclusive, and we recommend some policies for mitigating the racist effect of the far-right. Notably, we recommend (a) transparency in health policies and robust implementation of the rule of law, (b) the use of operative public values and human rights in health policy making, and (c) investment in decolonizing mindsets which may be corrosive of health policies.

极右翼的政治机会主义威胁着公共卫生政策的有效性和总体政治稳定。在这篇评论中,我们概述了欧洲极右翼滥用公共卫生问题作为宣传工具的一些方式。这是对使卫生和科学更具包容性这一目标的重大威胁,我们建议采取一些政策来减轻极右翼的种族主义影响。值得注意的是,我们建议:(a) 卫生政策要透明,并大力实施法治;(b) 在制定卫生政策时使用有效的公共价值观和人权;(c) 对可能腐蚀卫生政策的非殖民化思维进行投资。
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引用次数: 0
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Journal of Bioethical Inquiry
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