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Clinical and echographic parameters as risk factors for atrial fibrilation in patients with hypertophic cardiomyopathy 临床和超声参数是肥厚型心肌病患者发生心房颤动的风险因素
IF 2.9 3区 医学 Q2 CARDIAC & CARDIOVASCULAR SYSTEMS Pub Date : 2024-07-17 DOI: 10.1093/eurjcn/zvae098.003
C Panagiotou, E Marinopoulos, S Linardos
Introduction Hypertrophic cardiomyopathy is the most prevalent inherited cardiomyopathy characterized by left ventricular hypertrophy and manifests with atrial fibrillation in 25% of patients, correlating with heightened morbidity and mortality rates. Purpose To investigate the clinical and echocardiographic parameters associated with the occurrence and progression of atrial fibrillation in patients diagnosed with hypertrophic cardiomyopathy. Material and Methods The study sample consisted of 72 patients with hypertrophic cardiomyopathy attending the Hereditary Heart Disease Unit at a tertiary cardiac surgery center. Thorough examination of patients' medical records was conducted. Results Myocardial fibrosis was observed in 68.1% of the patients. Analysis of the data revealed that atrial fibrillation (AF) episodes were more prevalent in older individuals (p=0.035) with a lower ejection fraction (p=0.003). Additionally, a larger left atrial diameter of 49.8mm (p<0.001), functional stage according to NYHA III (p=0.015), a history of syncope/pre-syncope events (p=0.018), patients with an implanted pacemaker/defibrillator (p=0.003), and those with known coronary artery disease factors (p=0.032), particularly dyslipidemia (p=0.049) and diabetes mellitus (p=0.027), were associated with higher AF incidence. Conclusions . This study underscores the importance of recognizing clinical and echocardiographic factors that contribute to atrial fibrillation risk in hypertrophic cardiomyopathy, enabling early identification of high-risk individuals and implementation of preventive strategies to reduce the frequency of atrial fibrillation episodes and associated complications.
导言 肥厚型心肌病是最常见的遗传性心肌病,以左心室肥厚为特征,25% 的患者表现为心房颤动,与发病率和死亡率升高相关。目的 研究被诊断为肥厚型心肌病的患者心房颤动发生和发展的相关临床和超声心动图参数。材料和方法 研究样本由 72 名肥厚型心肌病患者组成,他们都曾在一家三级心脏外科中心的遗传性心脏病科就诊。对患者的病历进行了彻底检查。结果 68.1%的患者出现心肌纤维化。数据分析显示,年龄较大(P=0.035)、射血分数较低(P=0.003)的患者更容易发生心房颤动(AF)。此外,左心房直径大于 49.8 毫米(p<0.001)、根据 NYHA III 进行功能分期(p=0.015)、有晕厥/晕厥前事件史(p=0.018)、植入起搏器/除颤器的患者(p=0.003)、已知冠状动脉疾病因素(p=0.032),尤其是血脂异常(p=0.049)和糖尿病(p=0.027)的患者与房颤发生率较高有关。结论 .本研究强调了识别肥厚型心肌病患者心房颤动风险的临床和超声心动图因素的重要性,从而能够早期识别高危人群并实施预防策略,降低心房颤动发作频率和相关并发症。
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引用次数: 0
The importance of family nurses' participation in the local program of cardiological prevention in Wroclaw 家庭护士参与弗罗茨瓦夫当地心脏病预防计划的重要性
IF 2.9 3区 医学 Q2 CARDIAC & CARDIOVASCULAR SYSTEMS Pub Date : 2024-07-17 DOI: 10.1093/eurjcn/zvae098.064
M Krysa
In Poland, cardiac prevention programs minimize the nurse's role in health education related the patient's lifestyle change. Following the experience of Swedish primary health care, the Health Department of the City Hall in Wrocław was the first local government to launch a long-term, ten-year preventive cardiology program in 1998. Aim of the study To present the participation of family nurses in the implementation of population intervention program in cardiological prevention among the inhabitants of Wrocław. Material and method The general practitioners from Wrocław and a group of 100 family nurses participated in the preventative program. The overall goal of the program was to assess risk factors for cardiovascular disease. Each patient was provided with education by the nurse. To conduct the nursing visit, a procedure was used that took into account the structure criteria and the a unified procedure criteria. The nurses analyzed the norms of laboratory test results, blood pressure, heart rate, weight, height, fiber and fat intake, and calculated BMI and WHR. The nurses used a health profile. If a patient was considered a person from a higher risk group, they provided referred the patient to a general practitioner. Conclusions In local prevention program, residents were motivated to modify health behaviors through nursing diagnosis and assessment. The close place of residence and direct contact with the patient made it possible to provide health education focused on first-degree prevention. However, patient health education requires organization, time and communication skills, which is why it is so important to prepare staff to implement preventive programs and finance them from local funds. The new role of a health educator becomes an opportunity to change the perception of the traditional role of nursing.
在波兰,心脏预防计划最大限度地减少了护士在与患者生活方式改变相关的健康教育中的作用。借鉴瑞典初级医疗保健的经验,弗罗茨瓦夫市政府卫生部于 1998 年率先在当地政府启动了一项为期十年的长期心脏病预防计划。研究目的 介绍家庭护士参与实施弗罗茨瓦夫居民心脏病预防人口干预计划的情况。材料和方法 弗罗茨瓦夫的全科医生和 100 名家庭护士参与了该预防计划。该计划的总体目标是评估心血管疾病的风险因素。护士对每位患者进行教育。在进行护理访视时,采用了一种考虑到结构标准和统一程序标准的程序。护士们分析了实验室检查结果、血压、心率、体重、身高、纤维和脂肪摄入量的标准,并计算了体重指数(BMI)和胸围(WHR)。护士们使用健康档案。如果患者被认为属于高危人群,他们会将患者转介给全科医生。结论 在当地的预防计划中,通过护理诊断和评估,居民有了改变健康行为的动力。由于居住地较近并与患者直接接触,因此可以提供以一级预防为重点的健康教育。然而,患者健康教育需要组织、时间和沟通技巧,这也是为什么让员工做好实施预防计划的准备并从当地资金中为其提供资助是如此重要。健康教育者的新角色成为改变人们对传统护理角色看法的契机。
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引用次数: 0
How is digital technology used to facilitate shared decision-making between healthcare professionals and patients in cardiovascular care? A scoping review 在心血管护理中,如何利用数字技术促进医护人员和患者共同决策?范围审查
IF 2.9 3区 医学 Q2 CARDIAC & CARDIOVASCULAR SYSTEMS Pub Date : 2024-07-17 DOI: 10.1093/eurjcn/zvae098.125
D Leysen, E Propst, H Mcgowan, F Pfannerstill, R Crutzen, S Kulnik
Introduction Shared decision-making (SDM) is a patient-centred approach in healthcare that emphasizes patient involvement in the decision-making process. Digital technologies (DTs), like Mobile apps and website tools, are on the rise in cardiovascular care (CVC) and healthcare in general. But DTs can play a role in facilitating SDM, for example, with tools such as decision aids (DAs) for patients and quality check frameworks for Health care professionals (HCPs). The aim of this scoping review (ScR) was to identify the types of DTs used to facilitate SDM within the field of CVC and the analysis of how support for SDM is implemented in these technologies; to examine the conceptualizations of SDM utilized in DTs and determine the theories underlying these conceptualizations within the field of CVC; and to present designs, methods, and outcomes of published evaluation studies concerning DTs for SDM within the field of CVC. Methods For this scoping review (ScR), ten databases were searched: eight biomedical and two technical databases between January 2022 and March 2022. After deduplicating the literature, the screening was conducted by the author and was independently double-screened by one of the four contributors. The selected articles were then analysed by the author on SDM and DT. Results From the initial 5719 search results, finished on the 6th of March 2023. 48 articles were included in this ScR. The PRISMA flow diagram is presented in Figure 1. All 48 articles were included after the screening report on one of the 31 applications selected in this ScR. The characteristics of the DTs of the applications were analysed as presented in Table 1. The SDM was all about treatment options, except only one application was on screening tests. Only one application made a direct reference to an SDM model, all the others hat references to literature Defining and explaining SDM. There is an ambiguous outcome of significance in the reported evaluative studies of these applications. making it important to evaluate which characteristics of DTs are efficacious in the variability of the clinical setting. Conclusion There has been an increase in DTs to facilitate SDM in CVC over the past years. Within the scientific literature, there is recognition of a variety of DT characteristics and outcomes of the evaluative studies. It is important to reflect users' needs to choose the right application. It is valuable for developers to see which characteristics of DTs add value to applications.Table 1.Characteristics of DTs
导言 共同决策(SDM)是一种以患者为中心的医疗方法,强调患者参与决策过程。数字技术(DTs),如移动应用程序和网站工具,在心血管护理(CVC)和一般医疗保健中的应用日益增多。但是,数字技术可以在促进 SDM 方面发挥作用,例如为患者提供决策辅助工具(DA),为医疗保健专业人员(HCP)提供质量检查框架。本次范围界定综述(ScR)的目的是:确定用于促进CVC领域SDM的DT类型,并分析这些技术是如何实现对SDM的支持的;检查DT中使用的SDM概念,并确定这些概念在CVC领域的基础理论;介绍已发表的有关CVC领域SDM的DT的评估研究的设计、方法和结果。方法 本次范围界定综述(ScR)共检索了十个数据库:八个生物医学数据库和两个技术数据库,检索时间为 2022 年 1 月至 2022 年 3 月。在对文献进行复制后,由作者进行筛选,并由四位撰稿人中的一位独立进行双重筛选。然后,作者对所选文章进行了SDM和DT分析。结果 在 2023 年 3 月 6 日完成的最初 5719 条搜索结果中,有 48 条被纳入本科学研究报告。48 篇文章被纳入本科学研究。PRISMA 流程图见图 1。所有 48 篇文章都是在对本 ScR 选定的 31 项应用中的一项进行筛选报告后收录的。表 1 分析了这些应用的 DTs 特征。SDM 都是关于治疗方案的,只有一篇是关于筛查试验的。只有一份申请直接引用了 SDM 模型,其他所有申请都引用了定义和解释 SDM 的文献。在这些应用的评估研究报告中,结果的意义并不明确。因此,评估 DT 的哪些特征在多变的临床环境中具有疗效非常重要。结论 过去几年中,用于促进 CVC SDM 的 DT 不断增加。在科学文献中,人们认识到了各种 DT 的特点和评估研究的结果。重要的是要反映用户的需求,以选择合适的应用。对于开发人员来说,了解 DT 的哪些特征可为应用程序增值也很有价值。
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引用次数: 0
Nurse-lead ambulatory follow-up of patients with heart failure compared to physician-guided management - experience of a single academic center 护士领导的心力衰竭患者门诊随访与医生指导的管理相比--一个学术中心的经验
IF 2.9 3区 医学 Q2 CARDIAC & CARDIOVASCULAR SYSTEMS Pub Date : 2024-07-17 DOI: 10.1093/eurjcn/zvae098.020
M Georgieva, M R Rushid, Y T Yotov
Background The follow-up of patients with chronic heart failure by a nurse in an outpatient clinic showed to be as effective as physician management for clinical and prognostic improvement of patients with chronic heart failure (CHF). The role of nurses is important and would improve the general condition of patients. Aim To determine the effect of nurse-lead ambulatory follow-up of patients with heart failure –when compared with physician-guided management of patients with CHF. Participants and methods Overall, 72 patients with HF were included in a structured ambulatory program after hospital discharge following the OptimizeHF Care Program protocol, with the active participation of a nurse in it. The patients were divided into two groups – group A – mostly managed by a trained nurse, and group B – predominantly led by a cardiologist with the helpof the nurse. Advice on diet and physical activity for all patients was provided by the nurse according to an established protocol and in accordance with current recommendations for non-pharmacology behavior in heart failure at the beginning of follow-up and at each visit.We use self-reported readiness of patients to comply with dietary and physical activity guidelines to measure adherence to the program at the end of the follow-up period. Results The patients in group A (21) were insignificantly more often females, with slightly higher ejection fraction, and a little bit older tjhn group B (61). After a 6-month follow-up, 61 finished the program. There was no significant difference in the outcomes – death or hospitalizations, between the groups . In group A, the improvement in the NT-pro BNP levels was more pronounced –94.7% vs 74.4% in group B (p=0.024). Numerically, nurse-lead patients had more often improvement in their functional capacity with 1 NYHA class – 95% vs 84% (p=0.23). Both groups had similar improvement in the 6-minute walking test and there was no difference in hemodynamic measurements and laboratory tests. The majority of the patients followed the advice for diet and physical activity – 81.7%. There was no significant difference in this indicator between the group managed by the nurse and that by the physician. The same similarity was recorded in the drug therapy at the end of the follow–up. Conclusions Our results confirm that the nurse-lead program for ambulatory management of patients with CHF is effective and safe compared to physician management and can be applied in various health systems. This will increase the importance of the health care professionals in the HF team.
背景 由门诊护士对慢性心力衰竭患者进行随访,结果显示,在改善慢性心力衰竭(CHF)患者的临床和预后方面,其效果不亚于医生的管理。护士的作用非常重要,可改善患者的总体状况。目的 确定由护士领导的对心衰患者的非住院随访与由医生指导的对 CHF 患者的管理相比效果如何。参与者和方法 72 名心力衰竭患者出院后,在护士的积极参与下,按照 "优化心力衰竭护理计划 "的方案,参加了一项有组织的流动计划。患者被分为两组--A 组主要由训练有素的护士管理,B 组主要由心脏病专家在护士的帮助下管理。所有患者的饮食和体育锻炼建议均由护士按照既定方案提供,并在随访开始时和每次就诊时根据心力衰竭非药物治疗行为的当前建议提供。结果 A 组患者(21 人)中,女性患者明显较多,射血分数略高,年龄略大于 B 组(61 人)。经过 6 个月的随访,61 人完成了计划。两组在死亡或住院等结果上没有明显差异。在 A 组中,NT-pro BNP 水平的改善更为明显,为 94.7%,而 B 组为 74.4%(P=0.024)。从数字上看,护士指导的患者的功能能力改善更多,NYHA分级为1级--95%对84%(P=0.23)。两组患者在 6 分钟步行测试中的改善情况相似,在血液动力学测量和实验室测试中也没有差异。大多数患者遵循了饮食和体育锻炼建议--81.7%。护士管理组和医生管理组在这一指标上没有明显差异。在随访结束后的药物治疗方面也有相同的记录。结论 我们的研究结果证实,与医生管理相比,护士领导的慢性阻塞性肺病患者门诊管理计划既有效又安全,可以在各种医疗系统中应用。这将提高医护人员在高血压团队中的重要性。
{"title":"Nurse-lead ambulatory follow-up of patients with heart failure compared to physician-guided management - experience of a single academic center","authors":"M Georgieva, M R Rushid, Y T Yotov","doi":"10.1093/eurjcn/zvae098.020","DOIUrl":"https://doi.org/10.1093/eurjcn/zvae098.020","url":null,"abstract":"Background The follow-up of patients with chronic heart failure by a nurse in an outpatient clinic showed to be as effective as physician management for clinical and prognostic improvement of patients with chronic heart failure (CHF). The role of nurses is important and would improve the general condition of patients. Aim To determine the effect of nurse-lead ambulatory follow-up of patients with heart failure –when compared with physician-guided management of patients with CHF. Participants and methods Overall, 72 patients with HF were included in a structured ambulatory program after hospital discharge following the OptimizeHF Care Program protocol, with the active participation of a nurse in it. The patients were divided into two groups – group A – mostly managed by a trained nurse, and group B – predominantly led by a cardiologist with the helpof the nurse. Advice on diet and physical activity for all patients was provided by the nurse according to an established protocol and in accordance with current recommendations for non-pharmacology behavior in heart failure at the beginning of follow-up and at each visit.We use self-reported readiness of patients to comply with dietary and physical activity guidelines to measure adherence to the program at the end of the follow-up period. Results The patients in group A (21) were insignificantly more often females, with slightly higher ejection fraction, and a little bit older tjhn group B (61). After a 6-month follow-up, 61 finished the program. There was no significant difference in the outcomes – death or hospitalizations, between the groups . In group A, the improvement in the NT-pro BNP levels was more pronounced –94.7% vs 74.4% in group B (p=0.024). Numerically, nurse-lead patients had more often improvement in their functional capacity with 1 NYHA class – 95% vs 84% (p=0.23). Both groups had similar improvement in the 6-minute walking test and there was no difference in hemodynamic measurements and laboratory tests. The majority of the patients followed the advice for diet and physical activity – 81.7%. There was no significant difference in this indicator between the group managed by the nurse and that by the physician. The same similarity was recorded in the drug therapy at the end of the follow–up. Conclusions Our results confirm that the nurse-lead program for ambulatory management of patients with CHF is effective and safe compared to physician management and can be applied in various health systems. This will increase the importance of the health care professionals in the HF team.","PeriodicalId":50493,"journal":{"name":"European Journal of Cardiovascular Nursing","volume":"10 1","pages":""},"PeriodicalIF":2.9,"publicationDate":"2024-07-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141745288","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Experience of integrating mobile applications in the self-management of patients with heart failure 在心力衰竭患者的自我管理中整合移动应用程序的经验
IF 2.9 3区 医学 Q2 CARDIAC & CARDIOVASCULAR SYSTEMS Pub Date : 2024-07-17 DOI: 10.1093/eurjcn/zvae098.096
M Kinjo, A Higashitsuji, M Sano, S Okada, T Majima
Background Self-management in patients with heart failure is important in terms of their prognosis and quality of life. The use of mobile applications in the self-management of patients with heart failure has been suggested to improve their knowledge of the disease and quality of life. However, there are limited data on the experiences of patients with heart failure when mobile applications are integrated into their routine as a self-management intervention. Purpose We aimed to determine the experiences of patients with heart failure who incorporated the use of mobile applications as a self-management intervention. Methods In this qualitative cross-sectional study, participants were purposive-sampled at a university hospital, and semi-structured interviews were conducted with both male and female patients, aged 40–70 years, with a diagnosis of chronic heart failure (ACCF/AHA stage C). Data were collected between December 2022 and April 2023. All interviews were audio-recorded and transcribed verbatim, followed by content analyses. The mobile application used in this study recorded and managed patients’ subjective symptoms and daily life as cloud data and allowed healthcare professionals to access the data using a dedicated terminal. Results Four themes were identified from the data: 1) patients used the mobile application in their own way through trial and error; 2) the support of healthcare professionals through the mobile application increased patients’ sense of self-efficacy; 3) using the mobile application made them feel secure as they always felt connected; and 4) some patients struggled to incorporate new technology into their self-management. Most participants in this study had a positive experience of using the mobile application for self-management in their own way with the support of healthcare professionals, including gaining a sense of self-efficacy and security. On the other hand, some patients had a negative experience, such as not looking at the mobile application for a while or discontinuing self-management because they felt burdened by the introduction of this new self-management method. Conclusions Both positive and negative aspects of the experiences of patients with heart failure with adopting a mobile application for self-management were identified. Psychological support is essential when patients incorporate mobile applications into their routine as a self-management intervention.
背景心力衰竭患者的自我管理对其预后和生活质量非常重要。有人建议在心力衰竭患者的自我管理中使用移动应用程序,以提高他们对疾病的认识和生活质量。然而,关于心力衰竭患者将移动应用作为自我管理干预措施纳入日常工作时的体验的数据却很有限。目的 我们旨在了解心力衰竭患者使用移动应用作为自我管理干预措施的经历。方法 在这项横断面定性研究中,我们在一家大学医院进行了有目的的抽样,并对年龄在40-70岁之间、诊断为慢性心力衰竭(ACCF/AHA C期)的男性和女性患者进行了半结构化访谈。数据收集时间为 2022 年 12 月至 2023 年 4 月。所有访谈均进行了录音和逐字转录,随后进行了内容分析。本研究使用的移动应用程序以云数据的形式记录和管理患者的主观症状和日常生活,并允许医护人员使用专用终端访问这些数据。结果 从数据中发现了四个主题:1)患者通过不断尝试,以自己的方式使用移动应用程序;2)医护人员通过移动应用程序提供的支持增强了患者的自我效能感;3)使用移动应用程序让他们感到安全,因为他们始终感觉与外界保持联系;以及4)一些患者在将新技术融入自我管理方面遇到困难。本研究的大多数参与者在医护人员的支持下,以自己的方式使用移动应用程序进行自我管理,包括获得自我效能感和安全感,都获得了积极的体验。另一方面,一些患者则有负面体验,比如有一段时间不看手机应用软件,或者因为觉得引入这种新的自我管理方法给自己带来了负担而中断了自我管理。结论 在心力衰竭患者采用手机应用进行自我管理的经历中,既有积极的一面,也有消极的一面。当患者将手机应用作为自我管理干预措施纳入日常工作时,心理支持是必不可少的。
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引用次数: 0
Fatigue in women after percutaneous coronary intervention - results from CONCARDPCI 经皮冠状动脉介入治疗后女性的疲劳--CONCARDPCI 的结果
IF 2.9 3区 医学 Q2 CARDIAC & CARDIOVASCULAR SYSTEMS Pub Date : 2024-07-17 DOI: 10.1093/eurjcn/zvae098.094
M Hamre, T R Pettersen, I Valaker, T Wentzel-Larsen, T M Norekvaal
Background Better and more efficient treatment have led to decreased mortality rates and shorter hospital stays in patients with coronary artery disease (CAD). Nevertheless, fatigue is a prominent and distressing symptom in patients with CAD more frequently reported in women. Therefore, further investigation through follow-up studies focusing on women and fatigue in the context of CAD is imperative to address this knowledge gap and enhance clinical outcomes. Purpose To investigate fatigue in women with CAD at baseline, 2, 6 and 12 months after percutaneous coronary intervention (PCI), and to determine whether self-reported health, and clinical and sociodemographic characteristics are associated with fatigue after PCI. Methods CONCARDPCI is a multicentre, prospective cohort study including 3417 consecutive patients after PCI. Of these, 22% (n=746) were women and included in this analysis. Clinical data were collected from patients’ medical records and national registries. Sociodemographic characteristics were self-reported at baseline registration. Self-reported health was assessed with RAND-12 Item Short Form Health Survey (RAND-12) and the Myocardial Infarction Dimensional Assessment Scale (MIDAS). Fatigue was measured with a Visual Analogue Fatigue scale providing scores from 0-10 with higher scores indicating higher levels of fatigue. Patient-reported outcomes measures were completed at baseline and 2-, 6- and 12 months after hospital discharge. Results A substantial proportion was living alone (39%), retired (55%) or had three or more comorbidities (67%). Meanage was 68 years (SD 10). Age was significantly associated with fatigue at baseline (p<0.001), 6 months (p=0.002) and 12 months (p<0.001) in the RAND-12 model and at 2 months (p=0.018) and 12 months (p= 0.003) in the MIDAS model. Cohabitation status was significantly associated with fatigue at baseline (p=0.001), 2 months (p=0.033) and 12 months (p=0.016) in the RAND-12 model and at 2 months (p=0.032) in the MIDAS model. The degree of fatigue was at the highest level at baseline (5.2, SD 2.7) but was still present after one year (4.4, SD 2.6) (p≤0.004 for all comparisons). In RAND-12, self-reported physical health was associated with fatigue (p <0.001 for all comparisons). Furthermore, mental health was associated with fatigue at all meassuring time points (p<0.001- p=0.006). In MIDAS, physical health was associated with fatigue (p<0.001 for all comparisons). Conclusion A substantial proportion of women reported challenges with fatigue long after hospital discharge. Therefore, healthcare providers must identify the most vulnerable patients and tailor interventions accordingly. Person-centered treatment strategies may be developed by identifying factors associated with fatigue, such as age, cohabitation status, and self-reported physical and mental health.
背景 冠状动脉疾病(CAD)患者的死亡率下降,住院时间缩短,而更好、更有效的治疗方法也使患者的死亡率下降,住院时间缩短。然而,疲劳是冠状动脉疾病患者的一个突出和令人痛苦的症状,在女性患者中报告得更多。因此,为了填补这一知识空白并提高临床疗效,必须通过后续研究进一步调查女性患者在冠状动脉粥样硬化症(CAD)情况下的疲劳症状。目的 调查女性 CAD 患者在基线、经皮冠状动脉介入治疗(PCI)后 2 个月、6 个月和 12 个月的疲劳情况,并确定自我报告的健康状况、临床和社会人口特征是否与 PCI 后的疲劳有关。方法 CONCARDPCI 是一项多中心、前瞻性队列研究,包括 3417 名 PCI 后的连续患者。其中,22%(n=746)的患者为女性,并纳入本分析。临床数据来自患者的医疗记录和国家登记处。社会人口学特征是在基线登记时自我报告的。自我健康评估采用兰德-12项简表健康调查(RAND-12)和心肌梗死维度评估量表(MIDAS)。疲劳程度采用视觉模拟疲劳量表进行测量,分值为 0-10 分,分值越高疲劳程度越高。患者报告结果的测量在基线和出院后 2、6 和 12 个月完成。结果 大部分患者为独居(39%)、退休(55%)或患有三种或三种以上并发症(67%)。平均年龄为 68 岁(SD 10)。在 RAND-12 模型中,年龄与基线(p<0.001)、6 个月(p=0.002)和 12 个月(p<0.001)的疲劳度有明显关系;在 MIDAS 模型中,年龄与 2 个月(p=0.018)和 12 个月(p= 0.003)的疲劳度有明显关系。在 RAND-12 模型中,同居状况与基线(p=0.001)、2 个月(p=0.033)和 12 个月(p=0.016)的疲劳程度有明显相关性;在 MIDAS 模型中,同居状况与 2 个月(p=0.032)的疲劳程度有明显相关性。基线时的疲劳程度最高(5.2,标准差 2.7),但一年后仍然存在(4.4,标准差 2.6)(所有比较的 p 均小于 0.004)。在 RAND-12 中,自我报告的身体健康与疲劳相关(所有比较的 p &p;lt;0.001)。此外,在所有测量时间点上,心理健康都与疲劳有关(p<0.001- p=0.006)。在 MIDAS 中,身体健康与疲劳相关(所有比较均为 p<0.001)。结论 有相当一部分妇女在出院后很长时间内都会感到疲劳。因此,医疗服务提供者必须识别最易受伤害的患者,并相应地调整干预措施。可以通过识别与疲劳相关的因素,如年龄、同居状况、自我报告的身体和精神健康状况等,制定以人为本的治疗策略。
{"title":"Fatigue in women after percutaneous coronary intervention - results from CONCARDPCI","authors":"M Hamre, T R Pettersen, I Valaker, T Wentzel-Larsen, T M Norekvaal","doi":"10.1093/eurjcn/zvae098.094","DOIUrl":"https://doi.org/10.1093/eurjcn/zvae098.094","url":null,"abstract":"Background Better and more efficient treatment have led to decreased mortality rates and shorter hospital stays in patients with coronary artery disease (CAD). Nevertheless, fatigue is a prominent and distressing symptom in patients with CAD more frequently reported in women. Therefore, further investigation through follow-up studies focusing on women and fatigue in the context of CAD is imperative to address this knowledge gap and enhance clinical outcomes. Purpose To investigate fatigue in women with CAD at baseline, 2, 6 and 12 months after percutaneous coronary intervention (PCI), and to determine whether self-reported health, and clinical and sociodemographic characteristics are associated with fatigue after PCI. Methods CONCARDPCI is a multicentre, prospective cohort study including 3417 consecutive patients after PCI. Of these, 22% (n=746) were women and included in this analysis. Clinical data were collected from patients’ medical records and national registries. Sociodemographic characteristics were self-reported at baseline registration. Self-reported health was assessed with RAND-12 Item Short Form Health Survey (RAND-12) and the Myocardial Infarction Dimensional Assessment Scale (MIDAS). Fatigue was measured with a Visual Analogue Fatigue scale providing scores from 0-10 with higher scores indicating higher levels of fatigue. Patient-reported outcomes measures were completed at baseline and 2-, 6- and 12 months after hospital discharge. Results A substantial proportion was living alone (39%), retired (55%) or had three or more comorbidities (67%). Meanage was 68 years (SD 10). Age was significantly associated with fatigue at baseline (p<0.001), 6 months (p=0.002) and 12 months (p<0.001) in the RAND-12 model and at 2 months (p=0.018) and 12 months (p= 0.003) in the MIDAS model. Cohabitation status was significantly associated with fatigue at baseline (p=0.001), 2 months (p=0.033) and 12 months (p=0.016) in the RAND-12 model and at 2 months (p=0.032) in the MIDAS model. The degree of fatigue was at the highest level at baseline (5.2, SD 2.7) but was still present after one year (4.4, SD 2.6) (p≤0.004 for all comparisons). In RAND-12, self-reported physical health was associated with fatigue (p <0.001 for all comparisons). Furthermore, mental health was associated with fatigue at all meassuring time points (p<0.001- p=0.006). In MIDAS, physical health was associated with fatigue (p<0.001 for all comparisons). Conclusion A substantial proportion of women reported challenges with fatigue long after hospital discharge. Therefore, healthcare providers must identify the most vulnerable patients and tailor interventions accordingly. Person-centered treatment strategies may be developed by identifying factors associated with fatigue, such as age, cohabitation status, and self-reported physical and mental health.","PeriodicalId":50493,"journal":{"name":"European Journal of Cardiovascular Nursing","volume":"64 1","pages":""},"PeriodicalIF":2.9,"publicationDate":"2024-07-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141744976","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Influence of different electrode placement patterns on electromagnetic interference generated by Left Ventricular Assist Devices (LVADs) during electrocardiogram performance 不同电极放置模式对左心室辅助装置(LVAD)在心电图执行过程中产生的电磁干扰的影响
IF 2.9 3区 医学 Q2 CARDIAC & CARDIOVASCULAR SYSTEMS Pub Date : 2024-07-17 DOI: 10.1093/eurjcn/zvae098.045
L Pina Astete, M L Buelga Suarez, M I Munoz Gomez, P Rodriguez Sanchez, A Tur Sainz, N Penaranda Romero, J Garcia Montalvo, A Rebolleda Sanchez, G L Alonso Salinas
Background Heart failure (HF), with an incidence of approximately 3/1000 person-years, often progresses to advanced stages where symptoms persist despite treatment. In such cases, mechanical circulatory assist devices, particularly left ventricular assist devices (LVADs) in ambulatory patients, enhance survival and quality of life. These LVADs generate electromagnetic interference, resulting in noise artefacts in conventional electrocardiograms (ECGs). The conventional ECG should be configured with a low-pass filter of 150 Hz and a high-pass filter of 0.05 Hz, as recommended by the American Heart Association/American College of Cardiology/Heart Rhythm Society. LVADs, such as the HeartMate 3 (Abbott®), typically operate at a rotational speed of 5000 to 6000 rpm, corresponding to oscillatory frequencies of 83.3 to 100 Hz. Objective To assess the impact of various surface electrode placement strategies and modifications to the low-pass filter on the electromagnetic interference produced by LVADs. Methods We conducted an observational study involving seven patients with HeartMate 3 adjusted to various rotational speeds (refer to Table 1). Three distinct electrode placement schemes (AHA, Mason Likar, and modified Torso) were employed for the frontal plane leads. The horizontal plane leads remained unmodified. Each patient underwent a total of 6 ECGs, corresponding to each of the aforementioned schemes. ECG recordings were performed using a high-pass filter set at 0.05 Hz and a low-pass filter set at 150 Hz. Additionally, a set of ECGs was obtained by modifying the low-pass filter to 40 Hz for further analysis. Results Figure 1 displays ECGs obtained from a male with a HeartMate 3 operating at 4600 rpm or 76.6 Hz. This device employs an algorithm to generate an "artificial pulse" by cyclically accelerating and decelerating the pump speed by 2000 rpm every 2 seconds, resulting in rotational speeds of 2600 rpm and 6600 rpm (43.3 Hz and 110 Hz, respectively). No specific placement scheme demonstrated consistent noise reduction across all cases, likely due to inter-individual variability resulting from factors such as the final position of the LVAD the rpm in each case, and the thoracic impedance of each patient. However, the modification of the low-pass filter to 40 Hz yielded a noteworthy improvement in noise reduction across all cases. In our limited sample, this adjustment did not pose issues for ECG interpretation. Nevertheless, it is essential to acknowledge that excessively low filter settings may not only eliminate noise but also potentially discard clinically relevant high-frequency signals (e.g., pacemaker spikes, large amplitude Rs, QRS notches). Conclusions Individualizing the electrode placement scheme is crucial for minimizing noise generated by LVADs. The adjustment of the low-pass filter to 40 Hz could generally prove beneficial in reducing artifact generation, despite the clinical limitations it may entail.
背景心力衰竭(HF)的发病率约为 3/1000 人/年,通常会发展到晚期阶段,尽管经过治疗,但症状依然存在。在这种情况下,机械循环辅助装置,尤其是用于非卧床患者的左心室辅助装置(LVAD),可提高患者的生存率和生活质量。这些左心室辅助装置会产生电磁干扰,导致常规心电图(ECG)出现噪声伪影。根据美国心脏协会/美国心脏病学会/心律学会的建议,常规心电图应配置 150 Hz 的低通滤波器和 0.05 Hz 的高通滤波器。HeartMate 3 (Abbott®) 等 LVAD 通常以每分钟 5000 到 6000 转的转速运行,相应的振荡频率为 83.3 到 100 赫兹。目的 评估各种表面电极放置策略和低通滤波器修改对 LVAD 产生的电磁干扰的影响。方法 我们进行了一项观察性研究,涉及七名患者,他们的 HeartMate 3 调整到了不同的转速(参见表 1)。正面导联采用了三种不同的电极放置方案(AHA、Mason Likar 和改进的 Torso)。水平面导联保持不变。每位患者共接受了 6 次心电图检查,与上述每种方案相对应。心电图记录使用的高通滤波器设置为 0.05 Hz,低通滤波器设置为 150 Hz。此外,还通过将低通滤波器调至 40 赫兹获得了一组心电图,用于进一步分析。结果 图 1 显示的是一名男性使用 HeartMate 3 以 4600 rpm 或 76.6 Hz 的频率采集的心电图。该设备采用了一种算法,通过每 2 秒将泵速循环加速和减速 2000 rpm 来产生 "人工脉冲",从而产生 2600 rpm 和 6600 rpm 的转速(分别为 43.3 Hz 和 110 Hz)。在所有病例中,没有一种特定的放置方案能一致地降低噪音,这可能是由于个体间的差异性造成的,如 LVAD 的最终位置、每个病例的转速以及每位患者的胸腔阻抗等因素。不过,将低通滤波器调整到 40 Hz 后,所有病例的降噪效果都有显著改善。在我们有限的样本中,这一调整并未对心电图解读造成问题。不过,必须承认的是,过低的滤波器设置不仅可能消除噪音,还有可能忽略与临床相关的高频信号(如起搏器尖峰、大振幅 Rs、QRS 波口)。结论 个性化的电极放置方案对于最大限度地降低 LVAD 产生的噪音至关重要。将低通滤波器的频率调整到 40 Hz,尽管可能会带来一些临床限制,但总体上还是有利于减少伪影的产生。
{"title":"Influence of different electrode placement patterns on electromagnetic interference generated by Left Ventricular Assist Devices (LVADs) during electrocardiogram performance","authors":"L Pina Astete, M L Buelga Suarez, M I Munoz Gomez, P Rodriguez Sanchez, A Tur Sainz, N Penaranda Romero, J Garcia Montalvo, A Rebolleda Sanchez, G L Alonso Salinas","doi":"10.1093/eurjcn/zvae098.045","DOIUrl":"https://doi.org/10.1093/eurjcn/zvae098.045","url":null,"abstract":"Background Heart failure (HF), with an incidence of approximately 3/1000 person-years, often progresses to advanced stages where symptoms persist despite treatment. In such cases, mechanical circulatory assist devices, particularly left ventricular assist devices (LVADs) in ambulatory patients, enhance survival and quality of life. These LVADs generate electromagnetic interference, resulting in noise artefacts in conventional electrocardiograms (ECGs). The conventional ECG should be configured with a low-pass filter of 150 Hz and a high-pass filter of 0.05 Hz, as recommended by the American Heart Association/American College of Cardiology/Heart Rhythm Society. LVADs, such as the HeartMate 3 (Abbott®), typically operate at a rotational speed of 5000 to 6000 rpm, corresponding to oscillatory frequencies of 83.3 to 100 Hz. Objective To assess the impact of various surface electrode placement strategies and modifications to the low-pass filter on the electromagnetic interference produced by LVADs. Methods We conducted an observational study involving seven patients with HeartMate 3 adjusted to various rotational speeds (refer to Table 1). Three distinct electrode placement schemes (AHA, Mason Likar, and modified Torso) were employed for the frontal plane leads. The horizontal plane leads remained unmodified. Each patient underwent a total of 6 ECGs, corresponding to each of the aforementioned schemes. ECG recordings were performed using a high-pass filter set at 0.05 Hz and a low-pass filter set at 150 Hz. Additionally, a set of ECGs was obtained by modifying the low-pass filter to 40 Hz for further analysis. Results Figure 1 displays ECGs obtained from a male with a HeartMate 3 operating at 4600 rpm or 76.6 Hz. This device employs an algorithm to generate an \"artificial pulse\" by cyclically accelerating and decelerating the pump speed by 2000 rpm every 2 seconds, resulting in rotational speeds of 2600 rpm and 6600 rpm (43.3 Hz and 110 Hz, respectively). No specific placement scheme demonstrated consistent noise reduction across all cases, likely due to inter-individual variability resulting from factors such as the final position of the LVAD the rpm in each case, and the thoracic impedance of each patient. However, the modification of the low-pass filter to 40 Hz yielded a noteworthy improvement in noise reduction across all cases. In our limited sample, this adjustment did not pose issues for ECG interpretation. Nevertheless, it is essential to acknowledge that excessively low filter settings may not only eliminate noise but also potentially discard clinically relevant high-frequency signals (e.g., pacemaker spikes, large amplitude Rs, QRS notches). Conclusions Individualizing the electrode placement scheme is crucial for minimizing noise generated by LVADs. The adjustment of the low-pass filter to 40 Hz could generally prove beneficial in reducing artifact generation, despite the clinical limitations it may entail.","PeriodicalId":50493,"journal":{"name":"European Journal of Cardiovascular Nursing","volume":"18 1","pages":""},"PeriodicalIF":2.9,"publicationDate":"2024-07-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141744977","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Patients' perspectives on feedback interventions to support adherence to long-term medication: a systematic review with thematic synthesis of qualitative evidence 患者对支持坚持长期服药的反馈干预措施的看法:对定性证据进行专题综合的系统性综述
IF 2.9 3区 医学 Q2 CARDIAC & CARDIOVASCULAR SYSTEMS Pub Date : 2024-07-17 DOI: 10.1093/eurjcn/zvae098.031
B Kobson, R Paterson, J Hanley, A Mair, A Dima, N Rea
Background Medication optimisation is a global issue with up to 50% of people not taking medicines as prescribed. Numerous interventions have been developed to address this, many of them including feedback on behaviour and outcomes. Understanding patients’ views on such interventions is essential for successful adoption and use. Purpose The purpose of this systematic review is to: (1) Understand patients’ perspectives and experiences of medication adherence feedback interventions and (2) Identify barriers and facilitators which influence their implementation within practice. Methods CINAHL, MEDLINE, EMBASE, PubMED, PsycINFO and Google Scholar were systematically searched to identify relevant studies. The inclusion criteria included; studies with qualitative or mixed method designs describing patients’ perspectives on medication adherence feedback interventions, primary studies with adult participants on long-term medications and studies involving interventions suitable for self-management in primary or community care. Quality assessment was completed using the Mixed Methods Appraisal Tool. The review was reported using the PRISMA and conducted using ENTREQ guidelines. Data were extracted and analysed using thematic synthesis (NVivo 20). Findings were presented narratively. Results From the 1,031 records screened, ten studies were included. Five studies were conducted in the United States, two in the United Kingdom, and one in the Netherlands, Canada, and Tanzania, respectively. Medication adherence interventions included the use of therapeutic drug monitoring methods and digital adherence technologies such as mHealth and eHealth for people living with asthma, HIV, coronary heart disease, hypertension, and type 2 diabetes. Patients found interventions acceptable if they were simple to use, allowed control over data sharing options, incorporated audio visual cues, and provided emotional and motivational support. Building trust between patients and healthcare providers and the resulting benefit of shared decision-making were also considered key factors for intervention success. However, developing interventions without user input was identified as a potential barrier to intervention implementation. Patients expressed an overall desire to have interventions tailored to meet their personal needs and preferences, highlighting the importance of placing user needs at the centre of intervention development. Conclusion Placing user needs at the centre of adherence intervention development is crucial for successful implementation. Further research which facilitates user involvement in co-designing interventions to compliment patients’ characteristics and preferences would be key for intervention implementation.
背景用药优化是一个全球性问题,高达 50%的人未按处方用药。为解决这一问题,已经开发了许多干预措施,其中许多包括行为和结果反馈。了解患者对此类干预措施的看法对于成功采纳和使用干预措施至关重要。目的 本系统综述旨在:(1) 了解患者对用药依从性反馈干预措施的看法和经验;(2) 确定影响干预措施在实践中实施的障碍和促进因素。方法 对 CINAHL、MEDLINE、EMBASE、PubMED、PsycINFO 和 Google Scholar 进行系统检索,以确定相关研究。纳入标准包括:描述患者对用药依从性反馈干预措施看法的定性或混合方法设计研究、以长期用药的成人参与者为对象的初级研究以及涉及适合初级或社区护理中自我管理的干预措施的研究。质量评估采用混合方法评估工具完成。综述采用 PRISMA 报告,并根据 ENTREQ 指南进行。采用专题综合法(NVivo 20)提取和分析数据。研究结果以叙述方式呈现。结果 从筛选出的 1,031 条记录中,共纳入了 10 项研究。其中五项研究在美国进行,两项在英国进行,一项分别在荷兰、加拿大和坦桑尼亚进行。对哮喘、艾滋病、冠心病、高血压和 2 型糖尿病患者的用药依从性干预包括使用治疗药物监测方法和数字依从性技术,如移动医疗和电子医疗。患者认为,如果干预措施简单易用、允许控制数据分享选项、包含视听提示并提供情感和动力支持,那么这些干预措施是可以接受的。在患者和医疗服务提供者之间建立信任以及由此带来的共同决策的好处也被认为是干预成功的关键因素。然而,在没有用户意见的情况下制定干预措施被认为是实施干预措施的潜在障碍。患者总体上表示希望干预措施能满足他们的个人需求和偏好,这突出了将用户需求置于干预措施开发中心的重要性。结论 将使用者的需求置于坚持干预措施开发的中心对于成功实施至关重要。进一步开展研究,促进用户参与共同设计干预措施,以满足患者的特点和偏好,将是干预措施实施的关键。
{"title":"Patients' perspectives on feedback interventions to support adherence to long-term medication: a systematic review with thematic synthesis of qualitative evidence","authors":"B Kobson, R Paterson, J Hanley, A Mair, A Dima, N Rea","doi":"10.1093/eurjcn/zvae098.031","DOIUrl":"https://doi.org/10.1093/eurjcn/zvae098.031","url":null,"abstract":"Background Medication optimisation is a global issue with up to 50% of people not taking medicines as prescribed. Numerous interventions have been developed to address this, many of them including feedback on behaviour and outcomes. Understanding patients’ views on such interventions is essential for successful adoption and use. Purpose The purpose of this systematic review is to: (1) Understand patients’ perspectives and experiences of medication adherence feedback interventions and (2) Identify barriers and facilitators which influence their implementation within practice. Methods CINAHL, MEDLINE, EMBASE, PubMED, PsycINFO and Google Scholar were systematically searched to identify relevant studies. The inclusion criteria included; studies with qualitative or mixed method designs describing patients’ perspectives on medication adherence feedback interventions, primary studies with adult participants on long-term medications and studies involving interventions suitable for self-management in primary or community care. Quality assessment was completed using the Mixed Methods Appraisal Tool. The review was reported using the PRISMA and conducted using ENTREQ guidelines. Data were extracted and analysed using thematic synthesis (NVivo 20). Findings were presented narratively. Results From the 1,031 records screened, ten studies were included. Five studies were conducted in the United States, two in the United Kingdom, and one in the Netherlands, Canada, and Tanzania, respectively. Medication adherence interventions included the use of therapeutic drug monitoring methods and digital adherence technologies such as mHealth and eHealth for people living with asthma, HIV, coronary heart disease, hypertension, and type 2 diabetes. Patients found interventions acceptable if they were simple to use, allowed control over data sharing options, incorporated audio visual cues, and provided emotional and motivational support. Building trust between patients and healthcare providers and the resulting benefit of shared decision-making were also considered key factors for intervention success. However, developing interventions without user input was identified as a potential barrier to intervention implementation. Patients expressed an overall desire to have interventions tailored to meet their personal needs and preferences, highlighting the importance of placing user needs at the centre of intervention development. Conclusion Placing user needs at the centre of adherence intervention development is crucial for successful implementation. Further research which facilitates user involvement in co-designing interventions to compliment patients’ characteristics and preferences would be key for intervention implementation.","PeriodicalId":50493,"journal":{"name":"European Journal of Cardiovascular Nursing","volume":"50 1","pages":""},"PeriodicalIF":2.9,"publicationDate":"2024-07-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141745138","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The lived experience of loneliness and social isolation in patients with pulmonary arterial hypertension: A phenomenological study 肺动脉高压患者孤独和社会隔离的生活体验:现象学研究
IF 2.9 3区 医学 Q2 CARDIAC & CARDIOVASCULAR SYSTEMS Pub Date : 2024-07-17 DOI: 10.1093/eurjcn/zvae098.051
N C Cedrone, M L Lommi, I G Gangemi, P I Iovino, E V Vellone
Background Pulmonary arterial hypertension (PAH) is a rare, complex and chronic disease, characterised by a mean pulmonary arterial pressure at rest above 20 mmHg, determined through right heart catheterisation. As the disease progresses, symptoms (e.g., chest pain, syncope, respiratory distress) occur, which negatively impact quality of life. Moreover, symptoms of PAH can impair activities of daily living and social functions, leading to social isolation and loneliness. So far the experience of social isolation and loneliness in PAH patients. Purpose To explore the lived experience of social isolation and loneliness in patients with PAH. Methods A multicentre descriptive phenomenological study was conducted with semi-structured interviews driven by the Middle Range Theory of Social Isolation. This study followed the COREQ guidelines, and data analysis was conducted using the Elo and Kyngäs method. Results Seventeen patients (mean age 55,3 years; range 21-83 years; n=3 male) recruited from specialized clinics or patient associations across different Italian regions, participated in the interviews. The results show that patients with a marked symptomatology experience daily moments of loneliness and social isolation that inevitably impact the quality of life. While, patients with a mild symptomatology or with drug support can lead a life similar to that before diagnosis. Three main categories emerged. First, within the main category of loneliness emerged generic categories including emotions associated with loneliness (anger, depression, frustration, guilt, fear)as well as the influence of loneliness on the disease and the various strategies to limit it. Second, for the main category of social isolation were also identified other generic categories including networks of support of the person with PAH (family, social and work), emotions related to social isolation (dismissal and pretend to be well) and the influence of social isolation on the path of illness. Finally, generic categories related to well-being, autonomy, health, self-care activity or health promotion performed by the patient emerged for the main quality of life category. Conclusion The findings of this study contribute to a more in depth understanding of the factors influencing the quality of life of patients with PAH and enlighten the design of interventions aimed at improving their condition. Integration of these results with quantitative data regarding the extent of the influence of loneliness and social isolation is warranted.
背景肺动脉高压(PAH)是一种罕见、复杂的慢性疾病,其特征是通过右心导管检查确定静息时平均肺动脉压高于 20 mmHg。随着病情的发展,患者会出现各种症状(如胸痛、晕厥、呼吸困难),对生活质量造成负面影响。此外,PAH 的症状会影响日常生活和社交功能,导致社交孤立和孤独。到目前为止,PAH 患者的社会隔离和孤独体验尚不清楚。目的 探讨 PAH 患者社交孤立和孤独的生活体验。方法 根据社会隔离的中程理论(Middle Range Theory of Social Isolation)进行半结构式访谈,开展一项多中心描述性现象学研究。该研究遵循了 COREQ 指南,并使用 Elo 和 Kyngäs 方法进行了数据分析。结果 从意大利不同地区的专科诊所或患者协会招募的 17 名患者(平均年龄 55.3 岁;年龄范围 21-83 岁;男性 3 人)参加了访谈。结果显示,症状明显的患者每天都会经历孤独和社会隔离的时刻,这不可避免地影响了他们的生活质量。而症状轻微或有药物支持的患者则可以过上与诊断前相似的生活。研究结果主要分为三类。首先,在 "孤独 "这一主要类别中,出现了一些通用类别,包括与孤独有关的情绪(愤怒、抑郁、沮丧、内疚、恐惧)以及孤独对疾病的影响和限制孤独的各种策略。其次,对于社会隔离这一主要类别,还确定了其他通用类别,包括 PAH 患者的支持网络(家庭、社会和工作)、与社会隔离有关的情绪(被解雇和假装健康)以及社会隔离对疾病的影响。最后,在主要的生活质量类别中,出现了与患者的幸福感、自主性、健康、自我护理活动或健康促进有关的通用类别。结论 本研究的结果有助于更深入地了解影响 PAH 患者生活质量的因素,并对设计旨在改善患者病情的干预措施有所启发。有必要将这些结果与有关孤独和社会隔离影响程度的定量数据相结合。
{"title":"The lived experience of loneliness and social isolation in patients with pulmonary arterial hypertension: A phenomenological study","authors":"N C Cedrone, M L Lommi, I G Gangemi, P I Iovino, E V Vellone","doi":"10.1093/eurjcn/zvae098.051","DOIUrl":"https://doi.org/10.1093/eurjcn/zvae098.051","url":null,"abstract":"Background Pulmonary arterial hypertension (PAH) is a rare, complex and chronic disease, characterised by a mean pulmonary arterial pressure at rest above 20 mmHg, determined through right heart catheterisation. As the disease progresses, symptoms (e.g., chest pain, syncope, respiratory distress) occur, which negatively impact quality of life. Moreover, symptoms of PAH can impair activities of daily living and social functions, leading to social isolation and loneliness. So far the experience of social isolation and loneliness in PAH patients. Purpose To explore the lived experience of social isolation and loneliness in patients with PAH. Methods A multicentre descriptive phenomenological study was conducted with semi-structured interviews driven by the Middle Range Theory of Social Isolation. This study followed the COREQ guidelines, and data analysis was conducted using the Elo and Kyngäs method. Results Seventeen patients (mean age 55,3 years; range 21-83 years; n=3 male) recruited from specialized clinics or patient associations across different Italian regions, participated in the interviews. The results show that patients with a marked symptomatology experience daily moments of loneliness and social isolation that inevitably impact the quality of life. While, patients with a mild symptomatology or with drug support can lead a life similar to that before diagnosis. Three main categories emerged. First, within the main category of loneliness emerged generic categories including emotions associated with loneliness (anger, depression, frustration, guilt, fear)as well as the influence of loneliness on the disease and the various strategies to limit it. Second, for the main category of social isolation were also identified other generic categories including networks of support of the person with PAH (family, social and work), emotions related to social isolation (dismissal and pretend to be well) and the influence of social isolation on the path of illness. Finally, generic categories related to well-being, autonomy, health, self-care activity or health promotion performed by the patient emerged for the main quality of life category. Conclusion The findings of this study contribute to a more in depth understanding of the factors influencing the quality of life of patients with PAH and enlighten the design of interventions aimed at improving their condition. Integration of these results with quantitative data regarding the extent of the influence of loneliness and social isolation is warranted.","PeriodicalId":50493,"journal":{"name":"European Journal of Cardiovascular Nursing","volume":"39 1","pages":""},"PeriodicalIF":2.9,"publicationDate":"2024-07-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141745139","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Evaluation of the compliance of diet plans and nutritional advice generated by artificial intelligence with guidelines for cardiac patients 评估人工智能生成的饮食计划和营养建议与心脏病患者指南的一致性
IF 2.9 3区 医学 Q2 CARDIAC & CARDIOVASCULAR SYSTEMS Pub Date : 2024-07-17 DOI: 10.1093/eurjcn/zvae098.120
M Sloma Krzeslak, O Kowalski
Introduction In response to the increasing demand for personalization in cardiac dietetics, tools based on artificial intelligence (AI) are gaining popularity. We assess the compliance of AI-generated nutritional advice and diet plans with current dietary standards. Objective The study aims to evaluate whether nutritional advice and diet plans created by AI for heart disease patients align with the recommended caloric intake and macronutrient ratios, based on current dietary guidelines. Methods Using selected AI tools, nutritional advice and diet plans were generated for defined dietary scenarios corresponding to specific cardiac diagnoses. The analysis included assessing the caloric content and macronutrient composition (protein, fat, carbohydrates) compared to current guidelines. Results The analysis showed that the majority of the AI-generated diet plans and nutritional advice were compliant with dietary recommendations, with an >75% compliance rate for caloric content and macronutrient ratios. However, instances of non-compliance were discovered, suggesting a need for further adjustment of AI algorithms. Conclusions AI tools demonstrate potential in creating personalized diet plans for cardiac patients but require optimization to fully meet current dietary guidelines. The study highlights the importance of integrating dietary knowledge into the design process of AI tools, which is crucial for providing high-quality nutritional support.
导言:随着心脏营养学对个性化需求的不断增加,基于人工智能(AI)的工具越来越受欢迎。我们评估了人工智能生成的营养建议和饮食计划是否符合当前的饮食标准。目的 本研究旨在评估人工智能为心脏病患者创建的营养建议和饮食计划是否符合当前饮食指南推荐的热量摄入和宏量营养素比例。方法 使用选定的人工智能工具,根据特定心脏病诊断的饮食情况生成营养建议和饮食计划。分析包括评估热量含量和宏量营养素组成(蛋白质、脂肪、碳水化合物)与现行指南的比较。结果 分析表明,人工智能生成的大部分饮食计划和营养建议都符合饮食建议,热量含量和宏量营养素比例的符合率为 75%。不过,也发现了不符合建议的情况,这表明需要进一步调整人工智能算法。结论 人工智能工具在为心脏病患者制定个性化饮食计划方面显示出潜力,但需要优化才能完全符合当前的饮食指南。这项研究强调了将饮食知识融入人工智能工具设计过程的重要性,这对提供高质量的营养支持至关重要。
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European Journal of Cardiovascular Nursing
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