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Developmental Medicine and Child Neurology最新文献

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Effectiveness of Cognitive Orientation to daily Occupational Performance for autistic children with developmental coordination disorder. 认知定向对患有发育协调障碍的自闭症儿童日常职业表现的效果。
IF 3.8 2区 医学 Q1 CLINICAL NEUROLOGY Pub Date : 2025-02-01 Epub Date: 2024-08-14 DOI: 10.1111/dmcn.16058
Melika Kangarani-Farahani, Sandy Thompson-Hodgetts, Jill G Zwicker

Aim: To determine if the Cognitive Orientation to daily Occupational Performance (CO-OP) intervention is effective in improving motor skills of autistic children with developmental coordination disorder (DCD), and whether motor gains are maintained 3 months after therapy.

Method: In this quasi-experimental study, we recruited 27 autistic children (8-12 years) with DCD without intellectual disability. The treatment group received CO-OP intervention once weekly for 10 weeks, focusing on three child-chosen motor goals. The waitlist group received CO-OP 3 months later. Outcome measures included the Canadian Occupational Performance Measure (child ratings of motor performance and satisfaction), Performance Quality Rating Scale (therapist-observed movement quality), and the Bruninks-Oseretsky Test of Motor Proficiency, Second Edition (motor ability).

Results: Non-parametric analyses showed significant improvements (p < 0.013) in all outcomes. Follow-up analysis revealed significant improvements in performance (p < 0.001, W = 0.69), satisfaction (p < 0.001, W = 0.72), and movement quality (p < 0.001, W = 0.62). Despite slight declines at follow-up, overall improvements from pretest remained evident.

Interpretation: The CO-OP intervention effectively improved motor skills of autistic children.

目的:确定 "日常职业表现认知定向"(CO-OP)干预是否能有效提高患有发育协调障碍(DCD)的自闭症儿童的运动技能,以及治疗3个月后运动技能的提高是否能保持:在这项准实验研究中,我们招募了 27 名患有发育协调障碍但无智力障碍的自闭症儿童(8-12 岁)。治疗组接受 CO-OP 干预,每周一次,为期 10 周,重点是三个由儿童选择的运动目标。候补名单组在 3 个月后接受 CO-OP。结果测量包括加拿大职业表现测量(儿童对运动表现和满意度的评分)、表现质量评分量表(治疗师观察到的运动质量)和布鲁宁克斯-奥塞雷斯基运动能力测试第二版(运动能力):结果:非参数分析表明,CO-OP 干预显著提高了运动能力(p):CO-OP 干预疗法有效提高了自闭症儿童的运动技能。
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引用次数: 0
The CO-OP Approach: A transdiagnostic perspective. CO-OP 方法:跨诊断视角。
IF 3.8 2区 医学 Q1 CLINICAL NEUROLOGY Pub Date : 2025-02-01 Epub Date: 2024-10-01 DOI: 10.1111/dmcn.16107
Emmanuel Madieu, Noémi Cantin
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引用次数: 0
Informed consent in assisted reproductive technology: Implications for pediatric clinicians. 辅助生殖技术中的知情同意:对儿科临床医生的影响。
IF 3.8 2区 医学 Q1 CLINICAL NEUROLOGY Pub Date : 2025-02-01 Epub Date: 2024-12-12 DOI: 10.1111/dmcn.16205
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引用次数: 0
Quantifying neurobehavioral profiles across neurodevelopmental genetic syndromes and idiopathic neurodevelopmental disorders. 量化神经发育遗传综合征和特发性神经发育障碍的神经行为特征。
IF 3.8 2区 医学 Q1 CLINICAL NEUROLOGY Pub Date : 2025-02-01 Epub Date: 2024-12-12 DOI: 10.1111/dmcn.16204
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引用次数: 0
Sexual and reproductive health education for patients with myelomeningocele. 对脊髓脊膜膨出症患者进行性健康和生殖健康教育。
IF 3.8 2区 医学 Q1 CLINICAL NEUROLOGY Pub Date : 2025-02-01 Epub Date: 2024-12-12 DOI: 10.1111/dmcn.16207
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引用次数: 0
Typical and atypical MRI patterns of rare brain disorders: The challenge of low numbers. 罕见脑部疾病的典型和非典型磁共振成像模式:数量少的挑战。
IF 3.8 2区 医学 Q1 CLINICAL NEUROLOGY Pub Date : 2025-02-01 Epub Date: 2024-08-02 DOI: 10.1111/dmcn.16049
Nicole I Wolf, Marc Engelen, Marjo S van der Knaap
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引用次数: 0
Diagnostic work-up in malformations of cortical development. 皮质发育畸形的诊断检查。
IF 3.8 2区 医学 Q1 CLINICAL NEUROLOGY Pub Date : 2025-02-01 Epub Date: 2024-12-12 DOI: 10.1111/dmcn.16206
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引用次数: 0
Experiences of health services for adults with cerebral palsy, their support people, and service providers. 脑瘫成人、其辅助人员和服务提供者对医疗服务的体验。
IF 3.8 2区 医学 Q1 CLINICAL NEUROLOGY Pub Date : 2025-02-01 Epub Date: 2024-07-19 DOI: 10.1111/dmcn.16037
Manjula Manikandan, Claire Kerr, Jennifer Fortune, Michael Walsh, Jennifer Ryan, Aisling Walsh

Aim: To explore the experiences of health services among adults with cerebral palsy (CP) in Ireland, from the perspectives of adults with CP, their support people, and service providers.

Method: A qualitative descriptive study design was used. In-depth semi-structured interviews were conducted between March and August 2021 with adults with CP, people who supported them, and health professionals. Thematic analysis was used to evaluate the data.

Results: Twenty-one adults with CP, seven support people (family carer[s], spouse or partner, or friend), and 15 service providers participated in the study. Adults had a mean age of 38 years 5 months (range 22-58 years) and were classified in Gross Motor Function Classification System levels I to V. Five themes were identified from the data: (1) access challenges in adult services; (2) knowledge and understanding of CP; (3) support people's role and care burden; (4) communication and interaction in adult services; and (5) health system challenges.

Conclusion: Adults with CP in Ireland face multiple challenges accessing the health services they need. Services were reported to be inadequate, with limited resources and understanding of CP. Participants highlighted a need for system-level interventions, including enhanced training for health professionals to effectively meet the needs of adults with CP.

目的:从患有脑瘫(CP)的成年人、他们的支持者和服务提供者的角度,探讨爱尔兰患有脑瘫(CP)的成年人对医疗服务的体验:方法:采用定性描述研究设计。在 2021 年 3 月至 8 月期间,对患有脑瘫的成年人、支持他们的人和医疗专业人员进行了深入的半结构式访谈。研究采用主题分析法对数据进行评估:21 名成年脊髓灰质炎患者、7 名支持者(家庭照顾者、配偶或伴侣或朋友)和 15 名服务提供者参与了研究。从数据中确定了五个主题:(1) 获得成人服务的挑战;(2) 对 CP 的认识和理解;(3) 辅助人员的角色和护理负担;(4) 成人服务中的沟通和互动;以及 (5) 医疗系统的挑战:结论:爱尔兰的成年 CP 患者在获得所需的医疗服务方面面临多重挑战。据报告,服务不足,资源有限,对 CP 的了解也有限。与会者强调需要采取系统层面的干预措施,包括加强对医疗专业人员的培训,以有效满足患有脑瘫的成年人的需求。
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引用次数: 0
Machine learning derived physical activity in preschool children with developmental coordination disorder. 机器学习衍生学龄前儿童发育协调障碍的身体活动。
IF 3.8 2区 医学 Q1 CLINICAL NEUROLOGY Pub Date : 2025-02-01 Epub Date: 2024-12-22 DOI: 10.1111/dmcn.16223
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引用次数: 0
Reverse transcriptase inhibitors in Aicardi-Goutières syndrome: A crossover clinical trial. aicardii - gouti<e:1>综合征的逆转录酶抑制剂:一项交叉临床试验
IF 3.8 2区 医学 Q1 CLINICAL NEUROLOGY Pub Date : 2025-02-01 Epub Date: 2024-12-22 DOI: 10.1111/dmcn.16222
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引用次数: 0
期刊
Developmental Medicine and Child Neurology
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