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International Journal of Qualitative Studies on Health and Well-Being最新文献

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Promoting mental health in higher education: towards a model of well-being factors in emerging adulthood. 促进高等教育中的心理健康:建立新兴成年期幸福因素模型。
IF 2.1 4区 医学 Q2 NURSING Pub Date : 2024-12-01 Epub Date: 2024-10-02 DOI: 10.1080/17482631.2024.2408831
Ariadna Martínez-García, Susana Valverde-Montesino, Mercedes García-García

Purpose: This study aims to contribute to the development of a theoretical model that is useful for enhancing well-being/positive mental health with pedagogical resources that enable the acquisition of skills and knowledge, particularly during Emerging Adulthood.

Methods: This paper enquires into the role of well-being promotion in higher education following the dual-factor model of mental health difficulties and wellbeing. The study narratively reviews the main well-being models and presents a compared theoretical synthesis examining the dimensions that promote or facilitate the presence of well-being using a promotion approach.

Results: The study identifies 14 dimensions involved in wellbeing-emotional, psychological and social factors-that can be potentially improved through learning processes. Drawing on empirical and theoretical studies on emerging adult population, a factorial model is proposed. Preliminary factor interactions are examined paying close attention to the cognitive processes that explain or affect their relationship with well-being, the possible correlations between them and particularities of emerging adults.

Conclusion: Wellbeing factors can be particularly targeted by educational promotion, as they can be developed through learning processes. An integrative model that provides a broad perspective can assist in pedagogical design and defining educational goals for these learning processes involved in wellbeing promotion.

目的:本研究旨在通过教学资源,促进技能和知识的获取,尤其是在 "成年期"(Emerging Adultthood)期间,为建立一个有助于提高幸福感/积极心理健康的理论模型做出贡献:本文根据心理健康困难和幸福感的双因素模型,探究了促进幸福感在高等教育中的作用。研究以叙述的方式回顾了主要的幸福感模型,并提出了一个比较性的理论综述,使用促进方法研究了促进或推动幸福感存在的维度:研究确定了福祉涉及的 14 个方面--情感、心理和社会因素--可通过学习过程加以改善。根据对新兴成人群体的经验和理论研究,提出了一个因子模型。研究了初步的因素相互作用,密切关注解释或影响这些因素与幸福感关系的认知过程、这些因素之间可能存在的相关性以及新兴成人的特殊性:结论:幸福因素可以通过学习过程得到发展,因此是教育促进活动的特别目标。一个提供广阔视角的综合模型可以帮助教学设计和确定教育目标,以促进这些涉及幸福感的学习过程。
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引用次数: 0
Being able to think when caught in the maelstrom - how adolescents used mindfulness when facing exams. 陷入漩涡时仍能思考--青少年面对考试时如何运用正念。
IF 2.1 4区 医学 Q2 NURSING Pub Date : 2024-12-01 Epub Date: 2024-07-05 DOI: 10.1080/17482631.2024.2375660
Ingrid Dundas, Per-Einar Binder

Purpose: Research indicates that exam anxiety may decline with mindfulness-based interventions but there is a lack of research on adolescents' accounts of the processes involved. We explored high-school students' descriptions of how they perceived and applied mindfulness in managing anxiety-inducing thoughts related to academic performance following an 8-week Mindfulness-Based Stress Reduction (MBSR) course.

Method: Post-course individual semi-structured interviews with 22 high school students (2 males, mean age 17.8 years) were transcribed verbatim and analysed using reflexive thematic analysis.

Results: The analyses identified six themes: (1) Noticing and attending to the attention-binding "maelstrom" of anxious thoughts and feelings (2) Attending to the breath to cope with the maelstrom, (3) "removing" and "getting rid of" anxious thoughts (4) Being able to "think" (5) awareness of more helpful thoughts, and (6) Agency and control. The findings are discussed in light of the Buddhist notion of "unwholesome thoughts" and the distinction between thought suppression and the use of breathing as a benign distraction. We propose that mindfulness encompasses both a receptive, nonjudgmental awareness and an active, intentional redirection of attention.

Conclusion: Mindfulness training aided participants by enhancing their capacity to disengage from fear-engaging thoughts, thereby maintaining them within their window of tolerance and facilitating cognitive processing.

研究目的研究表明,基于正念的干预措施可降低考试焦虑,但缺乏对青少年描述相关过程的研究。我们探讨了高中生在参加为期 8 周的正念减压(MBSR)课程后,如何看待和运用正念来管理与学习成绩有关的焦虑想法:方法:对 22 名高中生(2 名男生,平均年龄 17.8 岁)进行课后个人半结构式访谈,并逐字逐句地记录下来,然后使用反思性主题分析法进行分析:分析确定了六个主题:(1) 注意到并关注焦虑想法和感受的注意力束缚 "漩涡",(2) 关注呼吸以应对漩涡,(3) "去除 "和 "摆脱 "焦虑想法,(4) 能够 "思考",(5) 意识到更有用的想法,以及 (6) 代理和控制。我们根据佛教中 "不健康想法 "的概念,以及思想抑制和将呼吸作为良性分散注意力的方法之间的区别,对研究结果进行了讨论。我们认为,正念既包括接受性的、非判断性的意识,也包括积极的、有意识的注意力转移:正念训练通过提高参与者脱离恐惧想法的能力来帮助他们,从而使他们保持在可容忍的范围内并促进认知处理。
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引用次数: 0
How occupational physicians pay attention to the values of employees: a qualitative study. 职业医师如何关注员工的价值观:一项定性研究。
IF 2.1 4区 医学 Q1 Nursing Pub Date : 2024-12-01 Epub Date: 2024-06-24 DOI: 10.1080/17482631.2024.2370069
Pepijn R Hagenaar, Willem van Rhenen, Arjan W Braam, Lars van Tuin

Purpose: The Dutch Association for Occupational Medicine considers employee values to be an essential pillar in occupational medicine. The occupational physician should focus on what an employee finds valuable. However, it is unclear how occupational physicians comply with this policy and pay attention to employee values. The present study aims to fill this gap by mapping to what extent occupational physicians pay attention to employee values.

Method: We used an exploratory qualitative research method through in-depth interviews with 10 Dutch occupational physicians. Additionally, two non-participating observations were conducted.

Results & conclusion: The results show that values remain mostly implicit and are applied intuitively or unconsciously but not explicitly. Hence, the ethical requirements of the Dutch Association for Occupational Medicine policy remain underexposed and under-executed. Multiple facets foster or impede a conversation about values. As far values were mentioned they were mainly extrinsic, social, and prestige-oriented. Intrinsic values were hardly mentioned. However, a few occupational physicians explicitly stated that they pay attention to values and reported that heeding to employee values contributes to better collaboration and decision-making with the employee. We argue that paying attention to intrinsic values may improve the overall work quality of occupational physicians and benefit employee well-being.

目的:荷兰职业医学协会认为,员工价值观是职业医学的重要支柱。职业医师应关注员工认为有价值的东西。然而,目前尚不清楚职业医师是如何遵守这一政策并关注员工价值观的。本研究旨在通过了解职业医师对员工价值观的关注程度来填补这一空白:我们采用了探索性定性研究方法,对 10 名荷兰职业医师进行了深入访谈。此外,还进行了两次非参与性观察:结果表明,价值观大多是隐性的,是凭直觉或无意识地应用,而不是明确地应用。因此,荷兰职业医学协会政策中的道德要求仍未得到充分暴露和执行。多种因素促进或阻碍了关于价值观的对话。就提及的价值观而言,它们主要是外在的、社会的和以声望为导向的价值观。内在价值几乎未被提及。然而,少数职业医师明确表示他们关注价值观,并称关注员工价值观有助于与员工更好地合作和决策。我们认为,关注内在价值可以提高职业医师的整体工作质量,并有利于员工的福祉。
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引用次数: 0
Beyond troubled and untroubled positions - an intersectional analysis of siblings who are bereaved by drug-related deaths' meaning-making stories about their deceased brothers and sisters. 超越困扰和不困扰的立场--对因毒品相关死亡而失去亲人的兄弟姐妹关于其已故兄弟姐妹的意义建构故事的交叉分析。
IF 2.1 4区 医学 Q2 NURSING Pub Date : 2024-12-01 Epub Date: 2024-06-26 DOI: 10.1080/17482631.2024.2372864
Gunhild Meen, Monika Alvestad Reime, Sari Lindeman, Lillian Bruland Selseng

Purpose: This study investigates how social categories work and intersect in siblings bereaved by drug-related deaths' (DRDs) stories about their relationships to their deceased brother or sister. The sociocultural embedded process of making meaning of the relationship with the deceased individual is essential in adapting to the loss. However, insight into such experiences of siblings bereaved by a DRD is scarce. Previous research has suggested that DRDs may be stigmatized life experiences for bereaved family members, and this paper furthers understanding of the experiences and issues involved in losing a sibling in a stigmatized death.

Methods: An intersectional analysis is applied to interviews with 14 bereaved siblings. By investigating and displaying how different categories intertwine, various positionings are identified.

Findings: Categorization of the deceased siblings as "addicts" constructs a troubled position. However, when "addict" intersects with the categories "unique," "sibling," and "uncle," the troubled subject's position as an "addict" can be concealed.

Conclusions: Normative conceptions of addiction and DRDs produce troubled subject positions. By intermingling the category of "addict" with other categories, less problematic positions are created. Still, intersections of categories can also construct further complexities of remorse and self-blame for the bereaved siblings.

目的:本研究调查了因毒品相关死亡而丧亲的兄弟姐妹(DRDs)讲述他们与已故兄弟或姐妹的关系时,社会类别是如何发挥作用和相互交织的。在适应失去亲人的痛苦过程中,社会文化所蕴含的使与亡者的关系具有意义的过程是至关重要的。然而,对失去 DRD 的兄弟姐妹的这种经历的了解却很少。以前的研究表明,对于失去亲人的家庭成员来说,罹患 DRD 可能是一种被污名化的人生经历,本文将进一步了解在被污名化的死亡中失去兄弟姐妹所涉及的经历和问题:方法:本文采用交叉分析法对 14 名丧亲兄妹进行了访谈。通过调查和展示不同类别如何相互交织,确定了各种定位:将逝去的兄弟姐妹归类为 "瘾君子 "构建了一种令人不安的立场。然而,当 "成瘾者 "与 "独特的"、"兄弟姐妹 "和 "叔叔 "等类别交织在一起时,陷入困境的主体作为 "成瘾者 "的立场就会被掩盖:结论:关于成瘾和 DRD 的规范性概念产生了问题主体的立场。通过将 "瘾君子 "这一类别与其他类别相混合,可以创造出问题较少的立场。然而,类别的交叉也会为失去亲人的兄弟姐妹带来更多复杂的悔恨和自责。
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引用次数: 0
Impact on mental health and well-being of the dialogic literary gathering among women in a primary healthcare centre. 对话式文学聚会对初级保健中心妇女心理健康和幸福感的影响。
IF 2.1 4区 医学 Q2 NURSING Pub Date : 2024-12-01 Epub Date: 2024-06-28 DOI: 10.1080/17482631.2024.2370901
Maria Padrós-Cuxart, Alba Crespo-López, Garazi Lopez de Aguileta, Carla Jarque-Mur

There is strong scientific evidence on the academic, cognitive, social, and emotional benefits of Dialogic Literary Gatherings (DLG) for diverse people in a wide range of settings. However, the transference of DLG to a primary healthcare centre has not yet been studied. To address this gap a case study was conducted on the impact of a DLG in a primary healthcare centre on participants' mental health and wellbeing from the perception of participants and professionals involved in it. To that end, four daily life stories and a focus group with women participating in the DLG, most of them over 75 years old with no higher education, were conducted, as well as two in-depth interviews, one with the DLG facilitator and one with the director of the health centre. Results show that participants perceived their mental health and wellbeing improved thanks to the functioning and type of dialogue in the DLG, promoting friendships, support and solidarity. Participants also reported that, by being aware of their capabilities in the DLG, they became agents of transformation within their families and environments, turning relationships between healthcare professionals and patients more egalitarian. These findings hold implications for public health and healthcare centres.

有大量科学证据表明,对话式文学聚会(DLG)在学术、认知、社交和情感方面对各种环境下的不同人群都有益处。然而,关于将对话式文学聚会(DLG)应用于初级医疗保健中心的研究尚未开展。为了填补这一空白,我们开展了一项案例研究,从参与者和参与其中的专业人员的角度,探讨在初级医疗保健中心举办的 DLG 对参与者心理健康和幸福感的影响。为此,研究人员编写了四个日常生活故事,并与参加 "每日联络组 "的妇女(其中大多数人超过 75 岁,未受过高等教育)进行了一次焦点小组讨论,还进行了两次深入访谈,一次是对 "每日联络组 "主持人的访谈,另一次是对保健中心主任的访谈。结果显示,参与者认为他们的心理健康和福祉得到了改善,这要归功于 DLG 的功能和对话类型,它促进了友谊、支持和团结。参与者还报告说,通过在联络小组中认识到自己的能力,他们成为了家庭和环境变革的推动者,使医护人员和病人之间的关系变得更加平等。这些研究结果对公共卫生和医疗保健中心具有启示意义。
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引用次数: 0
Family caregiver experiences and needs across health conditions, relationships, and the lifespan: a Qualitative analysis. 跨越健康状况、人际关系和生命周期的家庭照顾者经历和需求:定性分析。
IF 2.1 4区 医学 Q2 NURSING Pub Date : 2024-12-01 Epub Date: 2024-01-11 DOI: 10.1080/17482631.2023.2296694
Sarah A Neller, Megan Thomas Hebdon, Emily Wickens, Debra L Scammon, Rebecca L Utz, Kara B Dassel, Alexandra L Terrill, Lee Ellington, Anne V Kirby

Purpose: The purpose of this study was to understand the lived experiences of family caregivers who provide care to individuals across a broad range of ages, caregiving relationships, and health conditions and/or disabilities. Family caregiver research is typically siloed by health condition or by caregiving relationship, leaving gaps in understanding similarities and differences among caregivers.

Methods: We hosted three virtual focus groups with diverse family caregivers (n = 26) caring for an individual with a long-term disability and/or health condition(s). We conducted a qualitative thematic analysis using an iterative, inductive process.

Results: Participants primarily expressed shared experiences, despite having unique caregiving situations. We identified themes among a) caregiver experiences: Trying to Do It All, Balancing Complex Emotions, Managing Expectations, and Adjusting to Changes Over Time and b) caregiver needs: Longing for Breaks and Self-Care; Lacking Help, Support and Resources; and Desiring Understanding and Recognition.

Conclusions: These findings emphasize that many elements of the caregiving experience transcend care recipient age, condition, and relationship and are applicable to clinicians, researchers, and policy makers. The evidence of shared caregiver experiences can guide efficiencies in policy and practice (e.g., pooling of existing resources, expansion of interventions) to meet the needs of a broader population of caregivers.

目的:本研究旨在了解家庭照顾者的生活经历,他们为不同年龄、照顾关系、健康状况和/或残疾的人提供照顾。对家庭照顾者的研究通常是按健康状况或照顾关系孤立进行的,因此在了解照顾者之间的异同方面存在差距:我们主持了三个虚拟焦点小组,成员包括照顾长期残疾和/或健康问题患者的不同家庭照顾者(n = 26)。我们采用迭代归纳法进行了定性主题分析:结果:尽管照顾者的情况各不相同,但他们主要表达了共同的经历。我们确定了 a) 照顾者经历的主题:尝试做所有的事情、平衡复杂的情绪、管理期望和适应随着时间的推移而发生的变化;以及 b) 照顾者的需求:b. 照顾者的需求:渴望休息和自我照顾;缺乏帮助、支持和资源;渴望理解和认可:这些研究结果强调,护理经验中的许多要素都超越了受护理者的年龄、状况和关系,适用于临床医生、研究人员和政策制定者。护理者共同经历的证据可以指导政策和实践的效率(如集中现有资源、扩大干预范围),以满足更多护理者的需求。
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引用次数: 0
The experiences of family members of persons with intellectual disabilities who used residential care homes during the COVID-19 pandemic. 2019冠状病毒病大流行期间使用寄宿护理院的智障人士家庭成员的经历。
IF 1.8 4区 医学 Q1 Nursing Pub Date : 2024-12-01 Epub Date: 2023-12-06 DOI: 10.1080/17482631.2023.2288100
Montserrat Puig Llobet, Montserrat Roca Roger, Teresa Nicolàs Silva, Gemma Pérez Gimenez, Zaida Agüera, Maria-Teresa Lluch Canut, Juan Francisco Roldan Merino, Carmen Moreno Arroyo, Marta Prats Arimon, Maria Aurelia Sánchez Ortega, Xavier Domènech Mascaró, Miguel Angel Hidalgo Blanco, Antonio Moreno Poyato

Background: The global COVID-19 pandemic has shown the vulnerability of some population groups, including persons with intellectual and developmental disabilities (IDD).

Aim: The present paper will provide more clarity and understanding of the experiences of family members of persons with IDD housed in residential facilities in Catalonia within the period of maximum restrictions during the COVID-19 pandemic.

Methods and procedures: Semi-structured interviews were conducted using an interpretive phenomenological qualitative approach. Study participants consisted of 14 relatives of IDD individuals who were institutionalized in residence facilities or homes. The guiding questions emerged from group discussions with relatives of those with IDD who did not participate in the subsequent interviews. Drawing from this group, the factors that were identified to have had the greatest impact on their lives were later used to guide the interviews. Data collection was carried out in face-to-face individual interviews that were recorded together with the observations of two researchers between February and October 2022.

Results: Our analysis identified 4 main themes that developed into additional factors: the decision to stay at home or in the residence, fear, illness, and protocol. Individuals with IDD lost their daily routines, suffered from social isolation, and did not understand the situation.

Conclusion: The results of this study allow for a better understanding of the experiences of families of persons with IDD in residential centres during the lockdown by identifying their needs and how to better support them in the future.

Outcomes and results: Knowledge and understanding of these events should allow for better management of similar situations in the future.

背景:2019冠状病毒病(COVID-19)全球大流行显示出一些人群的脆弱性,包括智力和发育障碍者(IDD)。目的:本文将更清晰地了解在2019冠状病毒病大流行期间,居住在加泰罗尼亚住宅设施中的IDD患者的家庭成员的经历。方法和步骤:采用解释现象学定性方法进行半结构化访谈。研究参与者包括14名IDD患者的亲属,他们被安置在养老院或家中。指导性问题来自与缺碘症患者亲属的小组讨论,他们没有参加随后的访谈。从这个群体中,确定对他们的生活影响最大的因素后来被用来指导访谈。数据收集是通过面对面的个人访谈进行的,并在2022年2月至10月期间与两位研究人员的观察结果一起记录。结果:我们的分析确定了4个主要主题,这些主题发展成其他因素:决定留在家里或住所,恐惧,疾病和协议。缺碘症患者失去了日常生活,遭受社会孤立,而且不了解情况。结论:本研究的结果有助于更好地了解禁闭期间居住在收容中心的缺碘症患者家庭的经历,确定他们的需求以及如何在未来更好地为他们提供支持。结果和结果:对这些事件的认识和理解应该有助于将来更好地管理类似情况。
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引用次数: 0
Strategies to mitigate moral distress as reported by eldercare professionals. 老年护理专业人员报告的减轻道德困扰的策略。
IF 1.8 4区 医学 Q1 Nursing Pub Date : 2024-12-01 Epub Date: 2024-02-19 DOI: 10.1080/17482631.2024.2315635
Tiina Koivisto, Maria Paavolainen, Nina Olin, Eveliina Korkiakangas, Jaana Laitinen

Eldercare workers experience higher levels of moral distress than other health and social care service workers. Moral distress is a psychological response to a morally challenging event. Very little is known about moral distress in the context of eldercare and about the mechanisms of preventing or mitigating moral distress. This qualitative study was conducted as part of the "Ensuring the availability of staff and the attractiveness of the sector in eldercareservices" project in Finland in 2021. The data were from 39 semi-structured interviews. This qualitative interview data were examined using two-stage content analysis. The key finding of this study, as reported by eldercare professionals, is that strategies to mitigate moral distress can be found at all organizational levels : organizational, workplace and individual. The tools that emerged from the interviews fell into four main categories:) organizational support and education 2) peer support 3) improving self-care and competence and 4) defending patients. The main identified categories confirmed the earlier findings but the qualitative, rich research interview data provided new insights into a little-studied topic: mitigating moral distress in eldercare. The main conclusion is that, in order to mitigate moral distress, ethical competence needs to be strengthened at all organizational levels.

与其他医疗和社会护理服务工作者相比,老年护理工作者的道德困扰程度更高。道德困扰是对道德挑战事件的一种心理反应。人们对老年护理工作中的道德困扰以及预防或减轻道德困扰的机制知之甚少。这项定性研究是 2021 年在芬兰开展的 "确保养老服务人员的可用性和该行业的吸引力 "项目的一部分。数据来自 39 个半结构化访谈。采用两阶段内容分析法对定性访谈数据进行了研究。根据老年护理专业人员的报告,本研究的主要发现是,减轻道德困扰的策略可以在组织、工作场所和个人等各个层面找到。访谈中发现的工具主要分为四类:1)组织支持和教育 2)同伴支持 3)提高自我护理和能力 4)为患者辩护。已确定的主要类别证实了之前的研究结果,但定性、丰富的研究访谈数据为一个鲜有研究的主题提供了新的见解:减轻老年护理中的道德困扰。主要结论是,为了减轻道德困扰,需要在所有组织层面加强道德能力。
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引用次数: 0
A comprehensive analysis of well-being frameworks applied in Australia and their suitability for Indigenous peoples. 全面分析澳大利亚采用的福祉框架及其对土著人民的适用性。
IF 1.8 4区 医学 Q1 Nursing Pub Date : 2024-12-01 Epub Date: 2024-03-04 DOI: 10.1080/17482631.2024.2321646
Kamaljit K Sangha, Yonatan Dinku, Robert Costanza, Anne Poelina

Purpose: Well-being is a complex, multi-dimensional, dynamic, and evolving concept, covering social, economic, health, cultural and spiritual dimensions of human living, and often used synonymously with happiness, life satisfaction, prosperity, and quality of life. We review the existing key wellbeing frameworks applied in Australia both for the wider public and Indigenous peoples. The aim is to provide a comprehensive overview of various applied frameworks, along with a critical analysis of domains or dimensions comprising those frameworks, and to analyse the role of nature in those frameworks.

Methodology: We conducted a critical analysis of the main frameworks applied in Australia to date to measure the well-being of the mainstream (mainly non-Indigenous) and Indigenous populations. This study is particularly timely given the Australian Government's interest in revising the well-being frameworks as mentioned in the Government "Measuring What Matters" statement.

Results: The existing well-being frameworks in Australia either overlook or hardly consider the role of nature and its services which are important to support human well-being. Likewise, for Indigenous peoples "Country" (Indigenous clan land) is vital for their well-being as their living is imbued with "Country". The role of nature/"Country" needs to be considered in revising the well-being frameworks, indicators and measures to inform and develop appropriate policies and programs in Australia.

Conclusion: To develop appropriate welfare policies and programs for achieving socio-economic and other wellbeing outcomes, it is essential to evolve and conceptualize wellbeing frameworks (and related indicators and measures) in line with people's contemporary values, particularly considering the role of nature and its services.

目的:幸福是一个复杂、多维、动态和不断发展的概念,涵盖人类生活的社会、经济、健康、文化和精神层面,通常与幸福、生活满意度、繁荣和生活质量同义。我们回顾了澳大利亚适用于广大公众和土著居民的现有主要福祉框架。目的是对各种应用框架进行全面概述,同时对构成这些框架的领域或维度进行批判性分析,并分析自然在这些框架中的作用:我们对迄今为止澳大利亚用于衡量主流人口(主要是非土著居民)和土著居民福祉的主要框架进行了批判性分析。澳大利亚政府在 "衡量重要因素 "的政府声明中提到,澳大利亚政府有意修订福祉框架,因此这项研究尤为及时:结果:澳大利亚现有的福祉框架忽视或几乎不考虑自然及其服务的作用,而自然及其服务对支持人类福祉非常重要。同样,对土著人来说,"国家"(土著氏族土地)对他们的福祉至关重要,因为他们的生活与 "国家 "息息相关。在修订澳大利亚的福利框架、指标和措施时,需要考虑自然/"国家 "的作用,以便为制定适当的政策和计划提供信息:为了制定适当的福利政策和计划以实现社会经济和其他福利成果,必须根据人们的当代价值观来发展和构思福利框架(以及相关指标和措施),特别是要考虑到自然及其服务的作用。
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引用次数: 0
Experiences of facilitators and barriers for fulfilment of human needs when living with restless legs syndrome: a qualitative study. 不宁腿综合症患者在满足人类需求方面遇到的促进因素和障碍:一项定性研究。
IF 1.8 4区 医学 Q1 Nursing Pub Date : 2024-12-01 Epub Date: 2024-05-12 DOI: 10.1080/17482631.2024.2348884
Elzana Odzakovic, Monika Allgurin, Lise-Lotte Jonasson, Sandra Öberg, Bengt Fridlund, Martin Ulander, Jonas Lind, Anders Broström

Purpose: Restless Legs Syndrome (RLS) is a widespread condition that affects sleep leading to daytime sleepiness, depression, and reduced quality of life. This study aims to determine and describe how patients with RLS experience their everyday life, with a focus on facilitators and barriers related to Maslow's hierarchical theory of human needs.

Method: Semi-structured interviews were analysed with qualitative content analysis resulting in facilitators and barriers affecting the fulfilment of the five human needs.

Results: Addressing RLS symptoms through medications and a quiet sleep environment fulfils psychological needs. Control over RLS symptoms, engagement in activities, trust in treatments, and social support meet safety and security needs. Social inclusion, close relationships, and meaningful interactions fulfil a sense of belongingness and love needs despite RLS. Competence in managing RLS, effective self-care strategies, confident communication, and trust-building support esteem needs. Finally, comprehensive understanding through person-centred interventions and coping fulfils the self-actualization needs in managing RLS.

Conclusion: Holistic and person-centred interventions, including facilitators for the fulfilment of physiological, psychological, and social needs could help healthcare professionals to provide holistic care.

目的:多动腿综合征(RLS)是一种影响睡眠的常见疾病,会导致白天嗜睡、抑郁和生活质量下降。本研究旨在确定并描述 RLS 患者如何体验日常生活,重点关注与马斯洛人类需求层次理论相关的促进因素和障碍:方法:对半结构式访谈进行定性内容分析,得出影响满足五种人类需求的促进因素和障碍:通过药物和安静的睡眠环境解决 RLS 症状满足了心理需求。对 RLS 症状的控制、参与活动、对治疗的信任以及社会支持满足了安全和保障需求。社会包容、亲密关系和有意义的互动满足了 RLS 患者对归属感和爱的需求。管理 RLS 的能力、有效的自我护理策略、自信的沟通和信任的建立则能满足自尊的需求。最后,通过以人为本的干预措施和应对方法进行全面了解,可以满足在管理 RLS 过程中的自我实现需求:结论:以人为本的综合干预措施,包括满足生理、心理和社会需求的促进因素,可帮助医护人员提供整体护理。
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International Journal of Qualitative Studies on Health and Well-Being
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