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Investigating functional visual loss in children and adolescents 调查儿童和青少年的功能性视力丧失
IF 0.8 Q4 OPHTHALMOLOGY Pub Date : 2023-01-12 DOI: 10.1177/02646196221148333
R. Schraauwers, Maaike E Ketelaar, P. Sterkenburg
Patients with a functional neurological disorder (FND) experience a lower psychological quality of life and have more mental health concerns. These patients deserve to be treated with a treatment that is evidence-based and proven effective. However, when we look children or adolescents with functional visual disorder (FVD; a subgroup of FND), we see that there is not much evidence for the effectiveness of their treatments. Possible reasons for this lack of evidence and the difficulties in studying children and adolescents with FVD are discussed in this article. This article concludes with possible ways of persuading children and adolescents with FVD in participating in research.
功能性神经障碍(FND)患者的心理生活质量较低,有更多的心理健康问题。这些患者应该得到循证有效的治疗。然而,当我们观察患有功能性视觉障碍的儿童或青少年(FVD;(FND的一个亚组),我们看到没有太多证据表明他们的治疗有效。本文讨论了缺乏证据的可能原因以及研究FVD儿童和青少年的困难。本文总结了说服患有FVD的儿童和青少年参与研究的可能方法。
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引用次数: 0
Eye movement in reading and linguistic processing among bilingualism in oculomotor apraxia in patients with aphasia 语失症患者动眼肌失用症中双语者阅读和语言加工中的眼动
IF 0.8 Q4 OPHTHALMOLOGY Pub Date : 2023-01-05 DOI: 10.1177/02646196221145378
Fazlallah Afshangian, Abbas Rahimi Jaberi, J. Wellington, Sherif Ahmed Kamel Amer, B. Chaurasia, Shokufeh khanzadeh, Hosien Safari, T. Freddi, Ahmad Soltani, Leonardo Zumerkorn Pipek, D. Zimelewicz Oberman, Mehmet Resid onen, Erol Akgul, N. Montemurro, Saeedeh Hajebi Khaniki, Radnoosh Pashmforoosh
The present study compared linguistic processes and eye movement among individuals diagnosed with oculomotor apraxia (OMA) and the influence of bilingualism on OMA. Four patients consisting of one male and three females were diagnosed with OMA, and a group of four healthy individuals, comprising two males and two females who were all right-hand dominant. Also, a group of four stroke patients without ocular apraxia. Findings show that pointing skills in both the first (L1) and second language (L2) have increased, demonstrating statistical significance ( P-value < .001 and P-value = .02, respectively). Also, simple commands over time have increased in L1 and L2, showing statistical significance ( P-value < .01 and P-value < .01, respectively). Naming skills in L1 have increased over time, demonstrating statistical insignificance ( P-value < .01). However, in L2, no statistically significant change was observed ( P-value = .08). This skill in L1 in patients with OMA was significantly reduced compared to the healthy control group ( P-value = .03). Still, patients with OMA showed no statistically significant difference from their healthy counterparts ( P-value = .15). The orthographic ability of patients in L1 during the study period did not statistically change significantly ( P-value = .11). This skill level in L1 between patients with OMA and the healthy control group did not show a statistically significant difference ( P-value = .06). Still, there was a statistically significant change in the healthy control group in L2 ( P-value < .01). These findings suggest that the bilingual does not reflect a general executive in attentional guidance but could reflect more efficient guidance only under specific tasks.
本研究比较了动眼肌失用症(OMA)患者的语言过程和眼球运动,以及双语对OMA的影响。四名患者,包括一名男性和三名女性,被诊断为OMA,而一组四名健康个体,包括两名男性和两名女性,均为右手优势。另外,一组4例卒中患者无眼失用症。结果显示,第一语言(L1)和第二语言(L2)的指向技能都有所提高,具有统计学意义(p值<)。001, p值=。02年,分别)。此外,随着时间的推移,简单的命令在L1和L2中增加,显示出统计学意义(p值<。p值<。分别为01)。L1的命名能力随着时间的推移而增加,但差异无统计学意义(p值< 0.01)。然而,在L2中,没有观察到统计学上显著的变化(p值= .08)。与健康对照组相比,OMA患者L1的这种技能显著降低(p值= 0.03)。尽管如此,OMA患者与健康患者相比没有统计学上的显著差异(p值= 0.15)。L1区患者的正字法书写能力在研究期间无统计学差异(p值= 0.11)。OMA患者与健康对照组L1技能水平差异无统计学意义(p值= 0.06)。健康对照组的L2差异有统计学意义(p值< 0.01)。这些发现表明,双语者在注意力指导方面并不能反映出一般的执行力,而只能在特定任务下反映出更有效的指导。
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引用次数: 0
Self-reported use of technology by orientation and mobility clients in Australia and Malaysia before the COVID-19 pandemic. 在2019冠状病毒病大流行之前,澳大利亚和马来西亚的定向和流动客户自我报告的技术使用情况
IF 0.8 Q4 OPHTHALMOLOGY Pub Date : 2023-01-01 DOI: 10.1177/02646196211019070
Lil Deverell, Jahar Bhowmik, Abdullah Al Mahmud, Bee Theng Lau, Fakir M Amirul Islam, Suku Sukunesan, Chris McCarthy, Denny Meyer

Since the 1960s, many electronic travel aids have been developed for people with low vision or blindness to improve their independent travel skills, but uptake of these specialist devices has been limited. This study investigated what technologies orientation and mobility (O&M) clients in Australia and Malaysia have, use, like, and want to support their travel, to inform technology research and development. This two-phase mixed-methods study surveyed O&M clients face-to-face in Malaysia (n = 9), and online in Australia (n = 50). Participants managed safe walking using a human guide, long cane, or guide dog when their vision was insufficient to see hazards, but a smartphone is now a standard travel aid in both Australia and Malaysia. Participants relied on smartphone accessibility features and identified 108 apps they used for travel: for planning (e.g., public transport timetables), sourcing information in transit (e.g., GPS location and directions, finding a taxi), sensory conversion (e.g., camera-to-voice, voice-to-text, video-to-live description), social connections (e.g., phone, email, Facebook), food (e.g., finding eateries, ordering online), and entertainment (e.g., music, games). They wanted to 'carry less junk', and sought better accessibility features, consistency across platforms, and fast, reliable, real-time information that supports confident, non-visual travel, especially into unfamiliar places.

自20世纪60年代以来,许多电子旅行辅助设备已经为视力低下或失明的人开发出来,以提高他们的独立旅行技能,但这些专业设备的使用受到限制。这项研究调查了澳大利亚和马来西亚的技术导向和移动(O&M)客户拥有、使用、喜欢并希望支持他们的旅行,为技术研发提供信息。这项分两阶段的混合方法研究对马来西亚的运维客户进行了面对面的调查(n = 9) ,在澳大利亚在线(n = 50)。当参与者的视力不足以看到危险时,他们使用人类向导、长手杖或导盲犬进行安全行走,但智能手机现在是澳大利亚和马来西亚的标准旅行辅助工具。参与者依靠智能手机的无障碍功能,确定了108个他们用于旅行的应用程序:用于规划(如公共交通时间表)、在途中获取信息(如GPS位置和方向、找出租车)、感官转换(如摄像头到语音、语音到文本、视频到现场描述)、社交联系(如电话、电子邮件、Facebook),食物(例如,寻找餐馆、在线订购)和娱乐(例如,音乐、游戏)。他们希望“携带更少的垃圾”,并寻求更好的可访问性功能、跨平台的一致性,以及快速、可靠、实时的信息,以支持自信的非视觉旅行,尤其是前往陌生的地方。
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引用次数: 0
Visual impairment in Ethiopia: Systematic review and meta-analysis 埃塞俄比亚的视力障碍:系统回顾和荟萃分析
IF 0.8 Q4 OPHTHALMOLOGY Pub Date : 2022-12-29 DOI: 10.1177/02646196221145358
Nefsu Awoke, Tiwabwork Tekalign, Mistire Teshome Guta, Tsegaye Lolaso Lenjebo, Getahun Dendir, M. S. Obsa, Gedion Asinake, Afwork Alemu Lambebo, M. Bekele
WHO Prevention of Blindness Program launched ‘‘VISION 2020” in 1999 to reduce visual impairment and eradicate avoidable blindness by the year 2020. Ethiopia launched the “VISION 2020” initiative in 2002. This systematic review and meta-analysis aimed to present the national prevalence of visual impairment at the end of “VISION 2020”. Electronic search was conducted on the PubMed, SCOPUS, EMBASE, Web of Science, CINAHL, Google scholar databases for including articles. This systematic review and meta-analysis followed the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines. Endnote reference manager was used for downloading, organizing, and citing articles. Methodological quality was assessed using the Joanna Briggs Institute (JBI) quality appraisal tool for prevalence studies. Statistical analysis was done using the STATA™ software version 14. In this systematic review and meta-analysis, 18 studies involving 14,953 participants were included. The pooled prevalence of visual impairment in Ethiopia after correction for publication bias by Duval and Tweedie’s trim and fill analysis was estimated to be 6.24% (95% confidence interval [CI] = [2.66, 9.82]). The pooled prevalence of visual impairment among school children and adults in Ethiopia was 6.13% (95% CI = [4.27, 7.98]) and 19.89% (95% CI = [10.85, 28.93]), respectively. The most common causes of visual impairment in decreasing order of prevalence were refractive error, cataract, trachoma, glaucoma, and corneal opacity. Amblyopia was the cause of visual impairment among school-age child. The prevalence of visual impairment in Ethiopia was still significant at the end of “VISION 2020” program. Therefore, the program of “VISION 2020” should be extended and other large-scale programs were needed to reduce the prevalence of vision impairment in Ethiopia.
世卫组织预防失明规划于1999年发起了“VISION 2020”,目的是到2020年减少视力损害并根除可避免的失明。埃塞俄比亚于2002年启动了“愿景2020”倡议。本系统综述和荟萃分析旨在展示“VISION 2020”结束时全国视力障碍的患病率。电子检索PubMed、SCOPUS、EMBASE、Web of Science、CINAHL、Google scholar等数据库进行收录。本系统评价和荟萃分析遵循了系统评价和荟萃分析的首选报告项目(PRISMA)指南。Endnote参考管理器用于下载、组织和引用文章。采用乔安娜布里格斯研究所(JBI)流行病学研究质量评估工具评估方法学质量。使用STATA™软件版本14进行统计分析。在这项系统回顾和荟萃分析中,纳入了18项研究,涉及14953名参与者。经Duval和Tweedie 's trim and fill分析校正发表偏倚后,埃塞俄比亚视力障碍的总患病率估计为6.24%(95%置信区间[CI] =[2.66, 9.82])。埃塞俄比亚学龄儿童和成人视力障碍的总患病率分别为6.13% (95% CI =[4.27, 7.98])和19.89% (95% CI =[10.85, 28.93])。最常见的视力损害原因是屈光不正、白内障、沙眼、青光眼和角膜混浊。弱视是学龄儿童视力损害的主要原因。在“VISION 2020”项目结束时,埃塞俄比亚的视力障碍患病率仍然很高。因此,应该扩大“VISION 2020”计划,并需要其他大规模的计划来降低埃塞俄比亚视力障碍的患病率。
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引用次数: 2
Cerebral visual impairment and educational support in the United Kingdom: Understanding thresholds for providing support 英国的脑视觉障碍和教育支持:了解提供支持的阈值
IF 0.8 Q4 OPHTHALMOLOGY Pub Date : 2022-12-29 DOI: 10.1177/02646196221143315
R. Pilling, J. Ravenscroft
Cerebral visual impairment (CVI) is the most common cause of visual impairment in children in the United Kingdom. The mainstay of management is providing strategies and environment adaptations to allow the child to use their vision for learning and independence. It is therefore important to understand educational access policies to facilitate timely and appropriate referral to qualified teachers for learners with visual impairment (QTVI) by ophthalmologists. QTVIs were recruited from VIEW (Visual Impairment England and Wales) and the Scottish Sensory Centre (QTVI organisations) via email, newsletter and social media. Respondents were directed to an online electronic questionnaire. 116 responses were received; this represents around 18% response rate. All services accepted referrals for children with cerebral visual impairment (CVI). The majority of services (97%) did not have a strict visual acuity threshold for children with CVI. There is an inconsistent approach in the diagnosis of CVI across the United Kingdom, with some QTVI expressing concern that this had prevented children with visual dysfunction from accessing help. QTVI indicated they would welcome more referrals for Cerebral VI, at an earlier age, and that a formalised referral pathway would be beneficial. Children with CVI are accepted for support by QTVI/sensory services regardless of visual acuity. Some services welcomed referrals for children undergoing assessment where CVI had yet to be confirmed. However, the formal diagnosis of CVI by an ophthalmologist as a pre-requisite to access services in other areas emphasises the need to improve clinicians’ confidence in the diagnosis of CVI. Ophthalmologists are encouraged to engage with local QTVI/sensory teams to facilitate exchange of information and appropriate and timely referral of children in need.
在英国,脑性视力障碍(CVI)是儿童视力障碍的最常见原因。管理的主要内容是提供策略和环境适应,使儿童能够利用他们的视觉来学习和独立。因此,重要的是要了解教育准入政策,以促进及时和适当的转介给合格的教师为学习者视障(QTVI)的眼科医生。QTVI是通过电子邮件、时事通讯和社交媒体从VIEW(英格兰和威尔士的视觉障碍)和苏格兰感官中心(QTVI组织)招募的。受访者被要求填写一份在线电子问卷。收到116份答复;这代表了大约18%的回复率。所有服务机构都接受脑性视力障碍儿童的转诊。大多数服务机构(97%)对CVI儿童没有严格的视力阈值。在整个英国,CVI的诊断方法不一致,一些QTVI表示担心这阻碍了视力障碍儿童获得帮助。QTVI表示,他们欢迎更多的早期大脑VI的转诊,并且一个正式的转诊途径将是有益的。患有CVI的儿童可以接受QTVI/感官服务的支持,无论视力如何。一些服务机构欢迎转介接受CVI尚未得到确认的评估儿童。然而,眼科医生对CVI的正式诊断作为获得其他领域服务的先决条件,强调了提高临床医生对CVI诊断的信心的必要性。我们鼓励眼科医生与本地的QTVI/感官小组合作,以促进资讯交流,并适时转介有需要的儿童。
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引用次数: 1
The role of habilitation services in the lives of children and adolescents with visual impairments 康复服务在视力受损儿童和青少年生活中的作用
IF 0.8 Q4 OPHTHALMOLOGY Pub Date : 2022-12-29 DOI: 10.1177/02646196221144870
I. Manitsa, Fiona Barlow-Brown
Previous research suggests that children and adolescents with visual impairment may face several challenges in their academic learning and socio-emotional development due to restricted mobility, feelings of loneliness, and dependency on others. Habilitation services attempt to provide support with respect to many of these challenges that may positively impact on well-being and mental health, such as enabling independence in daily tasks, participation in social activities, and developing self-confidence. The literature also shows that individuals who have received educational and vocational rehabilitation support report higher quality of life and more positive self-esteem. Therefore, the primary focus of this study was on the rehabilitation, recreational opportunities, and educational resources provided by vision habilitation services for children and adolescents with visual impairments. The role that these services may play in school and daily life, as well as in the socio-emotional development of children and adolescents with visual impairments was also examined. This research covers the perspectives of professional staff, parents, children, and adolescents and considers both the immediate and potential long-term benefits of these services. The findings of the study highlighted the positive impact that this support has on children and adolescents’ independence, personal-safety, and self-confidence. The findings also indicated the positive impact of this support on the mental health of their families and benefits of providing continued support and expanding these habilitation and recreation services.
先前的研究表明,患有视力障碍的儿童和青少年在学业学习和社会情感发展方面可能面临一些挑战,因为他们的行动能力受到限制,感到孤独,依赖他人。康复服务试图就许多可能对福祉和心理健康产生积极影响的挑战提供支持,例如使人们能够独立完成日常任务、参与社会活动和培养自信心。文献还显示,接受过教育和职业康复支持的个体报告了更高的生活质量和更积极的自尊。因此,本研究主要关注视力康复服务为视力障碍儿童和青少年提供的康复、娱乐机会和教育资源。还研究了这些服务在学校和日常生活中以及在有视力障碍的儿童和青少年的社会情感发展中可能发挥的作用。这项研究涵盖了专业人员、家长、儿童和青少年的观点,并考虑了这些服务的即时和潜在的长期利益。研究结果强调了这种支持对儿童和青少年的独立性、个人安全和自信的积极影响。研究结果还表明,这种支持对其家庭心理健康的积极影响,以及提供持续支持和扩大这些康复和娱乐服务的好处。
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引用次数: 0
Orientation and mobility remote instruction during COVID-19: Best practices, liability, and ethics COVID-19期间的定向和移动远程教学:最佳做法、责任和道德
IF 0.8 Q4 OPHTHALMOLOGY Pub Date : 2022-12-29 DOI: 10.1177/02646196221144871
Stephanie Welch-Grenier, Danene Fast, Justin T. Kaiser, Jasamyn N. DeGrant
This research evaluated the impact of COVID-19 on orientation and mobility (O&M) services for school-aged students, families, and service providers. The survey asked O&M specialists about their instructional practices and decision-making processes regarding remote instruction service provisions, allowances, and district guidelines. The online survey collected data from October to November 2020, with open-ended responses from 166 O&M specialists. A thematic analysis was used to examine and code qualitative responses. Respondents were found to divide remote instruction into two categories, foundational skills and high-level travel skills. A preference for teaching foundational skills during remote instruction was also identified, with concerns for student safety and practitioner liability reported as the deciding factors. Field-specific guidelines and potential legal vulnerabilities regarding remote instruction are considered, with an analysis of negligence and professional liability. Practices used during COVID are also examined according to the COMS Code of Ethics and Scope of Practice. The findings demonstrate the need for field-specific guidance and research-based instructional methods regarding remote instruction. O&M specialists should continue to conduct a thorough risk assessment before utilizing new and unresearched remote instructional methods as a means of acting in the best interest of the student.
本研究评估了COVID-19对学龄学生、家庭和服务提供者的适应和流动(O&M)服务的影响。该调查询问了运维专家关于他们的教学实践和远程教学服务规定、津贴和地区指导方针的决策过程。这项在线调查收集了2020年10月至11月的数据,166名运维专家给出了开放式回答。专题分析用于检查和编码定性反应。被调查者将远程教学分为两类,基础技能和高级旅行技能。在远程教学中,对基础技能教学的偏好也被确定,对学生安全和从业者责任的关注被报告为决定因素。考虑了远程教学的特定领域指导方针和潜在的法律漏洞,并分析了疏忽和专业责任。根据COMS道德准则和业务范围,还对COVID期间使用的做法进行了审查。研究结果表明,需要针对具体领域的指导和基于研究的远程教学方法。在使用新的和未经研究的远程教学方法作为学生最大利益的手段之前,运维专家应该继续进行彻底的风险评估。
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引用次数: 0
A qualitative study on gender barriers to access cataract surgery in rural Gurugram, Haryana, India 印度哈里亚纳邦Gurugram农村白内障手术的性别障碍定性研究
IF 0.8 Q4 OPHTHALMOLOGY Pub Date : 2022-12-29 DOI: 10.1177/02646196221144869
N. Sharma, Chetna Sharma, Ananya Sharma
This study aims to comprehend nuances of gender barriers to access cataract surgery in the rural population of Gurugram district, Haryana, India. Data from 100 male and 100 female cataract surgery patients who underwent surgery at the university-affiliated hospital’s department of ophthalmology were examined. Data on the patients’ ages, the better eye’s and operated eye’s visual acuity, the cataract’s maturity at the time of surgery and the type of cataract surgery chosen were examined. Visual impairment was defined when the better eye’s visual acuity was less than 6/18 (0.32). At the time of surgery, women had a serious visual impairment in the better eye and also opted for a less expensive surgery option. In-depth interviews and focus group discussions were planned to understand the attitude, social norms and nuances of women’s accessibility to cataract surgery. This essay includes a qualitative investigation on access restrictions based on gender.
本研究旨在了解印度哈里亚纳邦Gurugram地区农村人口获得白内障手术的性别障碍的细微差别。研究人员对在该大学附属医院眼科接受白内障手术的100名男性和100名女性患者的数据进行了调查。检查患者的年龄、较好眼和手术眼的视力、手术时白内障的成熟程度和选择的白内障手术类型。好眼视力小于6/18(0.32)为视力障碍。在手术的时候,女性在较好的眼睛有严重的视力障碍,也选择了更便宜的手术选择。计划进行深入访谈和焦点小组讨论,以了解妇女接受白内障手术的态度、社会规范和细微差别。本文包括基于性别的访问限制的定性调查。
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引用次数: 0
Clinical characteristics and causes of vision impairment in a paediatric population in a university-based low vision clinic 一所大学低视力门诊儿科人群视力损害的临床特征及原因分析
IF 0.8 Q4 OPHTHALMOLOGY Pub Date : 2022-12-14 DOI: 10.1177/02646196221143072
N. Rampersad, K. Mashige
Paediatric vision impairment is a significant public health issue because of the associated health and economic consequences. This study aimed to determine the clinical characteristics and causes of vision impairment in paediatric patients who presented to a university-based low vision eye clinic in KwaZulu-Natal. The study used a retrospective design and included all paediatric patients with vision impairment who were younger than 18 years and presented to the university-based low vision eye clinic between January 2015 and December 2019. The sample consisted of 156 children with vision impairment with a similar proportion of males ( n = 82) and females ( n = 74). The mean age of the children was 13.5 ± 2.8 years, with a range of 5–17 years. Based on the best-corrected visual acuity (VA), most of the children ( n = 111) had moderate vision impairment (VA worse than 6/18 to 6/60). The most common causes of paediatric vision impairment included albinism ( n = 54), refractive error ( n = 11), cataract ( n = 10), and glaucoma ( n = 10). The retina ( n = 74) and normal globe ( n = 26) were the most affected anatomical sites. Spectacles were prescribed to almost half of the sample ( n = 76). A total of 126 optical and non-optical devices were recommended with telescopes ( n = 43) and sun-protective measures ( n = 20) being the most common. Paediatric vision impairment can have a negative impact on the quality of life. Local data related to the characteristics of children with vision impairment can be used to enhance the services provided in this university-based low vision clinic. This is important as efforts aimed at early identification, management, and rehabilitation will help minimise functional limitations and improve the quality of life of affected children.
由于相关的健康和经济后果,儿童视力障碍是一个重大的公共卫生问题。本研究旨在确定在夸祖鲁-纳塔尔省一所大学的低视力眼科诊所就诊的儿科患者的临床特征和视力损害的原因。该研究采用回顾性设计,纳入了2015年1月至2019年12月期间在大学低视力眼科诊所就诊的所有18岁以下视力受损的儿科患者。样本由156名视力障碍儿童组成,男性(n = 82)和女性(n = 74)的比例相似。患儿平均年龄13.5±2.8岁,年龄范围5 ~ 17岁。以最佳矫正视力(VA)计算,多数患儿(n = 111)为中度视力障碍(VA > 6/18 ~ 6/60)。儿童视力损害的最常见原因包括白化病(n = 54)、屈光不正(n = 11)、白内障(n = 10)和青光眼(n = 10)。视网膜(n = 74)和正常眼球(n = 26)是受影响最大的解剖部位。几乎一半的样本(n = 76)配戴了眼镜。建议使用126种光学和非光学设备,其中望远镜(n = 43)和防晒措施(n = 20)最为常见。儿童视力障碍会对生活质量产生负面影响。当地与视力障碍儿童的特征相关的数据可以用来提高这个以大学为基础的低视力诊所提供的服务。这一点很重要,因为旨在早期识别、管理和康复的努力将有助于尽量减少功能限制并改善受影响儿童的生活质量。
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引用次数: 0
When one partner can no longer see: Exploring the lived experiences of romantic partners in the context of vision loss 当一个伴侣再也看不见:在视力丧失的背景下探索浪漫伴侣的生活经历
IF 0.8 Q4 OPHTHALMOLOGY Pub Date : 2022-12-01 DOI: 10.1177/02646196221139780
Romain Bertrand, B. Vrkljan, Nicolas Kühne, Linda Charvoz, J. Fournier, M. Masse, Aline Veyre, Nicolas Vuillerme
This qualitative descriptive study aims to explore the lived experience of the adjustment process of couples who face vision loss, investigating the impact of such loss on daily life and the adjustments and adaptations that ensue. To undertake such an exploration, the application of an occupational perspective is relevant where the meaning and purpose partners ascribe to their everyday activities can be investigated. A total of 16 couples living in Western Switzerland were interviewed between January and June 2020. Data collection was carried out with semi-structured face-to-face interview. Three themes emerge from the thematic analysis of transcripts. The first theme emphasizes that either separate or joint everyday activities of partners can be shared within couples, which all give sense to the partnership; the second one shows that vision loss disrupts the engagement of partners in such shared everyday activities. The third theme highlights partners’ efforts to reshape their engagement in their shared everyday activities in order to maintain a sense of couple’s we-ness. While navigating vision loss requires both partners to jointly engage in this process of reshaping, couples described tension that arises because of the partners with vision loss’ growing dependence on the other partner. One’s sense of control when navigating vision loss is critical to adjust to a changing and changed daily life. Further research is needed that focuses on how romantic partners ascribe a shared meaning and purpose to their engagement in everyday activities, separate or joint, and how such meaning and purpose are impacted by the onset or aggravation of one partner’s vision loss.
本定性描述性研究旨在探讨面临视力丧失的夫妻调整过程的生活体验,调查这种丧失对日常生活的影响以及随之而来的调整和适应。为了进行这样的探索,应用职业视角是相关的,在这种视角下,伴侣赋予他们日常活动的意义和目的可以被调查。在2020年1月至6月期间,共有16对居住在瑞士西部的夫妇接受了采访。数据收集采用半结构化的面对面访谈。对文本的主题分析产生了三个主题。第一个主题强调,无论是单独的还是共同的日常活动,都可以在夫妻之间分享,这都赋予了伙伴关系意义;第二项研究表明,视力丧失扰乱了伴侣在这种共同的日常活动中的参与。第三个主题强调夫妻双方努力重塑他们在共同日常活动中的参与度,以保持夫妻之间的亲密感。虽然应对视力下降需要双方共同参与这个重塑过程,但夫妻们描述了由于视力下降的一方越来越依赖另一方而产生的紧张关系。一个人在面对视力丧失时的控制感对于适应不断变化的日常生活至关重要。需要进一步的研究来关注浪漫的伴侣如何将共同的意义和目的归因于他们参与的日常活动,无论是单独的还是共同的,以及这种意义和目的如何受到一方视力丧失的开始或恶化的影响。
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British Journal of Visual Impairment
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