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Provision of low-vision rehabilitation services in Saudi Arabia 在沙特阿拉伯提供低视力康复服务
IF 0.8 Q4 OPHTHALMOLOGY Pub Date : 2023-02-19 DOI: 10.1177/02646196231154468
Essam S Almutleb, Saif K Almutairi, R. Almutairi, A. Almustanyir, Mosaad M Alhassan, A. Alsaqr, Balsam A Alabdulqader
The prevalence of low vision is expected to increase at the national and international levels, given the aging population and the association between the prevalence of ocular disease(s) and increasing age. Thus, it is important to establish knowledge of the distribution, adequacy, and quality of available low vision rehabilitation services nationally and internationally. This will in turn help prioritize eyecare plans and initiatives, and thus deliver effective services. This cross-sectional study enumerated and surveyed all local government and information regarding the geographic location of each participating entity, entity affiliation, availability and types of low vision rehabilitation services, types of providers, and referral patterns were determined. The results of the current study showed that only 4% of the entities provided low vision rehabilitation services and most (75%) were located in the central region. Additionally, the majority of the services (95%) were basic optometric rehabilitation services whereas other services were either rarely offered or not offered at all. Overall, the current low vision rehabilitation services in Saudi Arabia are inadequate to meet the increasing prevalence of the low vision population. Thus, careful planning of eyecare services is required to meet this demand.
考虑到人口老龄化以及眼病患病率与年龄增长之间的关系,低视力的患病率预计将在国家和国际层面增加。因此,了解国内外现有低视力康复服务的分布、充分性和质量是非常重要的。这将有助于确定眼科保健计划和倡议的优先次序,从而提供有效的服务。这项横断面研究列举并调查了所有地方政府,并确定了有关每个参与实体的地理位置、实体隶属关系、低视力康复服务的可用性和类型、提供者类型和转诊模式的信息。目前的研究结果表明,只有4%的实体提供低视力康复服务,大多数(75%)位于中部地区。此外,大部分服务(95%)是基本的视光康复服务,而其他服务则很少或根本没有提供。总体而言,沙特阿拉伯目前的低视力康复服务不足以满足日益普遍的低视力人群。因此,需要仔细规划眼科护理服务,以满足这一需求。
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引用次数: 0
Exploratory and confirmatory factor analysis of the Persian version of the low-vision quality-of-life questionnaire 波斯语版低视力生活质量问卷的探索性和验证性因素分析
IF 0.8 Q4 OPHTHALMOLOGY Pub Date : 2023-02-19 DOI: 10.1177/02646196231154473
Javad Heravian Shandiz, Hamed Momeni Moghaddam, J. Wolffsohn, Maliheh Karimpour
Most of the vision quality assessment questionnaires are in English. None of the low-vision-related quality-of-life questionnaires have been translated or developed in Persian. It will help Persian optometrists and ophthalmologists to assess improvement of visual function and quality of life during their low-vision rehabilitation programs. In this study, we aimed to translate the low-vision quality-of-life (LVQOL) questionnaire in Persian language and apply exploratory factor analysis (EFA) and confirmatory factor analysis (CFA) to assess the construct validity and fit model. Translation and cultural adjustment of the English language LVQOL questionnaire to Persian was undertaken. Overall, 100 low-vision patients were participated to validate and model the assessment questionnaire by both EFA and CFA methods. Complementary EFA and CFA results provide detailed information about item and scale performance of the Persian LVQOL. EFA showed Items 15, 16, and 21 which had factor loadings lower than 0.3. The modified model had the comparative fit index (CFI) and root mean square error of approximation (RMSEA) of 0.89 and 0.06, respectively. The translation, adjustment, and fit analysis of the LVQOL questionnaire into Persian were successful and it will be valuable in both clinical practice and research.
大多数视力质量评估问卷是英文的。所有与低视力相关的生活质量问卷都没有波斯语翻译或编写。它将帮助波斯验光师和眼科医生在他们的低视力康复计划中评估视觉功能和生活质量的改善。本研究将低视力生活质量(LVQOL)问卷翻译成波斯语,并运用探索性因子分析(EFA)和验证性因子分析(CFA)来评估建构效度和拟合模型。对英语LVQOL问卷进行波斯语翻译和文化调整。总共有100名低视力患者参与,通过EFA和CFA方法对评估问卷进行验证和建模。补充的EFA和CFA结果提供了波斯LVQOL项目和量表性能的详细信息。EFA显示项目15、16、21的因子负荷均小于0.3。修正模型的比较拟合指数(CFI)和近似均方根误差(RMSEA)分别为0.89和0.06。LVQOL问卷的波斯语翻译、调整和拟合分析是成功的,在临床实践和研究中都有价值。
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引用次数: 1
Heterogeneity in social participation among young people with vision impairment 青少年视力障碍患者社会参与的异质性
IF 0.8 Q4 OPHTHALMOLOGY Pub Date : 2023-02-03 DOI: 10.1177/02646196231152340
E.C.M. Heppe, C. van Klaveren, I. Cornelisz, C. Schuengel, S. Kef
Young people may adapt to vision impairment (VI) in a variety of ways. To explore heterogeneity in social participation, data were mined for distinct patterns. Existing data from 258 young people with VI, aged between 26 and 44 years ( M = 35.3 years; SD = 5.07), were clustered. Social participation was measured by four closed-ended questions and the Social Network Map. Loneliness was measured by the De Jong Gierveld Loneliness scale. K-medoids clustering with the Partitioning Around Medoids (PAM) algorithm was used to cluster social participation variables and age.Eight clusters were identified, with participants in the two largest clusters, clusters 1 ( n = 84) and 2 ( n = 50), scoring high on almost all social participation outcomes. Participants in cluster 8 ( n = 14) had the lowest social participation scores. However, also over half of the participants in clusters 4, 5, 6, and 7 experienced feelings of loneliness. Findings demonstrate considerable heterogeneity in social participation among young people with VI, which however does not link to loneliness. These variations in social participation underline the need for a differentiated approach to address needs of young people with VI.
年轻人可能会以各种方式适应视力障碍。为了探索社会参与的异质性,我们挖掘了不同模式的数据。现有数据来自258名患有VI的年轻人,年龄在26至44岁之间(M = 35.3岁;SD = 5.07),均为聚类。社会参与是通过四个封闭式问题和社交网络地图来衡量的。孤独感由De Jong Gierveld孤独感量表测量。采用K-medoids聚类算法对社会参与变量和年龄进行聚类。我们确定了8个群体,其中两个最大群体的参与者,即群体1 (n = 84)和群体2 (n = 50),在几乎所有的社会参与结果中得分都很高。第8组的参与者(n = 14)的社会参与得分最低。然而,在4、5、6和7组中,也有超过一半的参与者感到孤独。研究结果表明,患有VI的年轻人在社会参与方面存在相当大的异质性,但这与孤独无关。社会参与方面的这些差异突出表明,需要采取有区别的办法来解决患有VI的青年人的需求。
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引用次数: 0
Perceptions on the use of distance learning by families of children with visual impairment and deafblindness 视力障碍和聋盲儿童家庭对使用远程学习的看法
IF 0.8 Q4 OPHTHALMOLOGY Pub Date : 2023-02-03 DOI: 10.1177/02646196221149565
Amy T Parker, Angelica Inman, Faith Yeung, Kelsey Ostrander, Matt Bullen
The purpose of our qualitative study was to explore what distance-based teaching and learning practices have been supportive to students with visual impairments and their families. Using purposive sampling, interviews, and qualitative analysis, we found that supportive approaches for distance learning (DL) included parental involvement and participation, as well as tailored instructional approaches and accommodations for the student. In some instances, DL was identified as being more supportive for immune-compromised children. Negative facets of the practice included diminished richness in socializing, and the lack of certain strengths of in-person education. Families’ experiences ranged from finding DL helpful, to considering the practice as unfit for their child’s education, as well as a poor fit for family life. Flags for future research include family preparation for future DL needs, including culturally-diverse families in research opportunities, and evaluating what DL supports lead to improved outcomes for children and families.
我们定性研究的目的是探讨远程教学和学习实践对视障学生及其家庭的支持。通过有目的的抽样、访谈和定性分析,我们发现支持远程学习(DL)的方法包括家长的参与和参与,以及为学生量身定制的教学方法和住宿。在某些情况下,DL被认为对免疫功能低下的儿童更有帮助。这种做法的消极方面包括减少了社交的丰富性,以及缺乏面对面教育的某些优势。家庭的经历从发现DL有帮助,到认为这种做法不适合他们孩子的教育,也不适合家庭生活。未来研究的标志包括家庭对未来DL需求的准备,包括研究机会中的文化多样性家庭,以及评估DL支持的内容会改善儿童和家庭的结果。
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引用次数: 0
Visual and cognitive profiles in children with and without cerebral visual impairment 有和无脑视力障碍儿童的视觉和认知特征
IF 0.8 Q4 OPHTHALMOLOGY Pub Date : 2023-02-03 DOI: 10.1177/02646196221149564
J. Zihl, L. Unterberger, Myriam Lippenberger
Reliable differentiation of visual-perceptual difficulties in children with and without cerebral visual impairment (CVI) can often pose a diagnostic challenge. We, therefore, assessed the visual-perceptual profile in 94 children with and 77 children without suspected CVI between the ages of 8 and 17 years in a non-clinical setting, using a screening questionnaire and standardized visual-perceptual tests. Children with suspected CVI reported more frequently greater visual difficulties, had lower visual acuity, and were significantly impaired in visual search tests, in visual form and object perception, in visual space perception, and in visual text processing. There were no significant differences between groups in stereopsis, fixation stability, motility, horizontal saccadic eye movements, and convergence and accommodation. Cognitive performance in auditory attention and verbal short-term and working memory was similar in both groups. Our results indicate that the use of an appropriate questionnaire and specific visual-perceptual tests enables valid diagnostic detection of CVI. The additional use of cognitive tests also allows differentiation between primary and secondary impairments in visual perception.
在有或没有脑性视觉障碍(CVI)的儿童中,视觉知觉困难的可靠鉴别常常是一项诊断挑战。因此,我们在非临床环境中,使用筛选问卷和标准化视觉感知测试,评估了94名8至17岁的疑似CVI儿童和77名无疑似CVI儿童的视觉感知特征。疑似CVI的儿童更频繁地报告有更大的视觉困难,视力较低,并且在视觉搜索测试、视觉形式和物体感知、视觉空间感知和视觉文本处理方面明显受损。各组在立体视觉、注视稳定性、运动、水平跳眼运动、趋同和调节方面无显著差异。两组在听觉注意、言语短期记忆和工作记忆方面的认知表现相似。我们的研究结果表明,使用适当的问卷和特定的视觉感知测试可以有效地诊断检测CVI。额外使用认知测试还可以区分视觉感知的原发性和继发性损伤。
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引用次数: 1
Non-visual teaching skills and strategies orientation and mobility instructors who are blind use to ensure the safety of the students with visual impairment 非视觉教学技巧和策略,定向和行动的盲人教师使用,以确保视障学生的安全
IF 0.8 Q4 OPHTHALMOLOGY Pub Date : 2023-02-03 DOI: 10.1177/02646196231152343
N. Griffin-Shirley, Laura A. Bozeman, Phoebe A. Okungu, The Nguyen, Chinomso Ihenagwam
In this qualitative study, three participants were observed and recorded while teaching in a variety of environments. The purpose of this study was to confirm the findings of the interviews and to learn more about these non-visual teaching skills and strategies. Using an observation checklist, the research team met on a weekly basis to view and code the recordings from January to April 2022. Member checks were completed by all participants via Zoom meetings. The participants were three males who were visually impaired employed at rehabilitation centers for individuals with low vision/blindness. Four themes emerged from the analysis of the observation data: auditory monitoring, tactile monitoring, instructor positioning, and Structured Discovery Cane Travel (SDCT®). The results of this study demonstrate the connection between the current study and the previous three studies completed by the research team. It is evident that the participants engaged in different strategies to monitor safety and promote independent travel for their students. Non-visual skills were an important component for SDCT that all participants utilized. The findings of this study can be used by university faculty from orientation and mobility (O&M) personnel preparation programs as a resource when they have students with visual impairment in blindfold/simulation cane courses. This research also supported faculty to identify best teaching practices among all programs and to integrate these practices into their curricula to strengthen their programs. For success in life, teachers of students with visual impairment and O&M instructors need to promote self-advocacy.
在这个定性研究中,三个参与者在不同的环境中进行教学时的观察和记录。本研究的目的是为了证实访谈的结果,并进一步了解这些非视觉教学技巧和策略。研究小组使用观察清单,从2022年1月到4月每周开会一次,查看和编码录音。成员检查由所有参与者通过Zoom会议完成。参与者是三名视障男性,他们受雇于低视力/失明人士康复中心。从观察数据的分析中出现了四个主题:听觉监测、触觉监测、教练定位和结构化发现手杖旅行(SDCT®)。本研究的结果证明了本研究与课题组之前完成的三项研究之间的联系。很明显,参与者采取了不同的策略来监控安全和促进学生的自由行。非视觉技能是所有参与者使用的SDCT的重要组成部分。本研究的结果可作为大学定向与移动(O&M)人员准备项目的教师在有视障学生参加蒙眼/模拟手杖课程时使用的资源。这项研究还支持教师在所有课程中确定最佳教学实践,并将这些实践整合到他们的课程中,以加强他们的课程。为了在生活中取得成功,视障学生的教师和O&M讲师需要促进自我宣传。
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引用次数: 0
Frequency of visual impairment in autistic children of autism school of Lahore, Pakistan 巴基斯坦拉合尔自闭症学校自闭症儿童视力受损的频率
IF 0.8 Q4 OPHTHALMOLOGY Pub Date : 2023-01-26 DOI: 10.1177/02646196221145367
Nida Amin, Muhammad Tariq, Memoona Arshad, M. A. Cheema
Autism is a condition in which abnormal development of the brain takes place, manifesting in the first 3 years of life. Visual impairment is one of the major factors of autism spectrum disorder (ASD), and measurement of visual impairment is necessary for proper management of the disorder. The purpose of this study is to determine the frequency of visual impairment associated with ASD in Lahore Pakistan. A descriptive cross-sectional study was conducted. A convenient and purposive sample of 127 students enrolled in various autism schools of Lahore was enrolled. Written informed consent of teacher’s autistic children was taken. Children having diseases like cerebral palsy, other developmental disorders, and/or serious cognitive disability were excluded from this study. Participant’s undergone ocular assessment including visual acuity, ocular motility examination, refraction, and fundoscopy. Data analysis was performed using SPSS-20 and Pearson’s chi-square analysis was conducted to determine the associations of refractive error and squint with ASD. A total of 127 participants were included in this study, of which 77 (60.6%) were male and 50 (39.4%) were female. More than 60% were emmetropes (having no refractive errors), 19 (15%) were having myopes, 15 (11.8%) were hypermetropic, and 9 (7.1%) were Astigmatic, while 20 were diagnosed with a squint. The major cause of visual impairment in autistic children was refractive errors 33.8% and squint 15.7%. A high frequency of visual impairment was present in autistic children in Lahore autistic schools. As vision is a basic right so we have to pay attention also toward autistic children, in that way every child should have screened for factors that are responsible for visual impairments, Identifying refractive errors in these children early and providing appropriate corrective lenses may help optimize their visual functioning and impact their activities of daily life positively.
自闭症是一种大脑发育异常的情况,表现在生命的前3年。视觉障碍是自闭症谱系障碍(ASD)的主要影响因素之一,对自闭症谱系障碍进行视觉障碍检测是正确治疗自闭症谱系障碍的必要条件。本研究的目的是确定巴基斯坦拉合尔与ASD相关的视力障碍的频率。进行了描述性横断面研究。选取了拉合尔各自闭症学校的127名学生作为方便而有目的的样本。教师的自闭症儿童的书面知情同意书。患有脑瘫、其他发育障碍和/或严重认知障碍等疾病的儿童被排除在本研究之外。受试者接受视力评估,包括视力、眼球运动检查、屈光和眼底镜检查。采用SPSS-20进行数据分析,Pearson卡方分析确定屈光不正和斜视与ASD的关系。本研究共纳入127名受试者,其中男性77人(60.6%),女性50人(39.4%)。超过60%的患者为无屈光不正的远视,19例(15%)为近视,15例(11.8%)为远视,9例(7.1%)为散光,20例诊断为斜视。自闭症儿童视力损害的主要原因是屈光不正(33.8%)和斜视(15.7%)。拉合尔自闭症学校自闭症儿童出现视力障碍的频率较高。因为视力是一项基本权利,所以我们也必须关注自闭症儿童,这样每个孩子都应该筛查导致视力障碍的因素,及早发现这些孩子的屈光不正,提供适当的矫正镜片,可能有助于优化他们的视觉功能,对他们的日常生活活动产生积极影响。
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引用次数: 1
Feasibility of measuring eye–hand coordination in children with developmental delay using Sanet Vision Integrator 用Sanet视觉积分仪测量发育迟缓儿童眼手协调能力的可行性
IF 0.8 Q4 OPHTHALMOLOGY Pub Date : 2023-01-26 DOI: 10.1177/02646196221148321
Ranindita Saha, Karthik Bhushan, PremNandhini Satgunam
Eye–hand coordination is a visuomotor task that enables one to look, localize, and touch objects. Eye–hand coordination is known to be poor in children with developmental delay. In this study, we assessed the feasibility of measuring eye–hand coordination task in children with developmental delay using Sanet Vision Integrator (SVI), a commercially available device. Children (age: 3–16 years) with developmental delay and their age-similar typically developing peers were enrolled. White circles (5.5°) on a black background were presented on the SVI touch screen monitor. Participants popped these circles by touching it. Reaction time, accuracy, and an overall performance score were computed. Participants could perform the task from 4 years of age and with visual acuity 20/400 (6/120) or better. This resulted in 85% (17/20) of children with developmental delay and 95% (19/20) of typically developing children completing the task. Children with developmental delay were significantly ( p < .001) less accurate (56%) and took longer (2.63 s) to complete the task when compared with their peers (accuracy = 93%, reaction time = 1.46 s). The overall performance score of children with developmental delay was also lower than their peers by a factor of 3.3. Eye–hand coordination performance can be measured and quantified with SVI. The quantification of speed and accuracy is possible and a unitary measure combining speed-accuracy can be computed. The task can be performed both by typically developing children and by children with developmental delay. Thus, it is feasible to measure eye–hand coordination using SVI. Such quantification will be useful for children undergoing interdisciplinary therapies for their medical conditions.
眼手协调是一项视觉运动任务,它使人能够观察、定位和触摸物体。众所周知,发育迟缓儿童的手眼协调能力较差。在本研究中,我们评估了使用市售设备Sanet Vision Integrator (SVI)测量发育迟缓儿童眼手协调任务的可行性。发育迟缓的儿童(年龄:3-16岁)和他们年龄相仿的典型发育同伴被招募。在SVI触摸屏显示器上显示黑色背景上的白色圆圈(5.5°)。参与者通过触摸这些圆圈来弹出这些圆圈。计算反应时间、准确度和总体表现得分。参与者可以从4岁开始执行任务,视力为20/400(6/120)或更高。这导致85%(17/20)的发育迟缓儿童和95%(19/20)的正常发育儿童完成了任务。发育迟缓儿童完成任务的准确率(56%)显著低于同龄儿童(准确率为93%,反应时间为1.46 s) (p < 0.001)。发育迟缓儿童的整体表现得分也比同龄儿童低3.3倍。眼手协调能力可以用SVI进行测量和量化。速度和精度的量化是可能的,可以计算出速度和精度的统一度量。这项任务既可以由正常发育的儿童完成,也可以由发育迟缓的儿童完成。因此,用SVI测量手眼协调是可行的。这种量化将有助于儿童接受跨学科治疗的医疗条件。
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引用次数: 0
Turning a blind eye? Removing barriers to science and mathematics education for students with visual impairments 视而不见?消除视力障碍学生接受科学和数学教育的障碍
IF 0.8 Q4 OPHTHALMOLOGY Pub Date : 2023-01-26 DOI: 10.1177/02646196221149561
Cicely Hayes, M. Proulx
With complex, visual concepts prevailing in science and mathematics curricula, these subjects are often inaccessible to students with visual impairments (VI), leading to their underrepresentation in science, technology, engineering and mathematics (STEM) careers. While researchers have identified strategies that can facilitate students with VI’s learning within special schools, less is known about how students with VI access science and mathematics within a mainstream context, even though this is where the majority are educated. This seems important to address given the additional barrier students with VI face within mainstream schools, including negative attitudes from mainstream teachers. Consequently, the current study was conducted to explore how students with VI’s access to and learning of science and mathematics can be improved within the mainstream context. Two interviews were conducted with qualified teachers of children and young people with vision impairment (QTVIs), revealing the importance of classroom adaptations, such as hands-on experience and increased lesson time, to facilitate students with VI’s learning of science and mathematics. These findings are discussed in relation to policy and practice, suggesting mainstream teachers should be trained to make small but effective adaptations in their teaching, and that students with VI are given the opportunity to learn skills needed to become independent learners.
由于科学和数学课程中普遍存在复杂的视觉概念,这些科目往往是视力障碍(VI)学生无法学习的,导致他们在科学、技术、工程和数学(STEM)职业生涯中的代表性不足。虽然研究人员已经确定了可以促进特殊学校中具有VI的学生学习的策略,但对于具有VI的学生如何在主流环境中接触科学和数学知之甚少,尽管这是大多数人接受教育的地方。考虑到VI学生在主流学校面临的额外障碍,包括主流教师的消极态度,这一点似乎很重要。因此,本研究旨在探讨在主流背景下,如何提高VI学生对科学和数学的接触和学习。我们对有视力障碍的儿童和青少年(QTVIs)的合格教师进行了两次访谈,揭示了课堂适应的重要性,例如实践经验和增加上课时间,以促进VI学生学习科学和数学。这些发现与政策和实践有关,建议主流教师应该接受培训,在教学中做出小而有效的调整,并且给予VI学生学习成为独立学习者所需技能的机会。
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引用次数: 0
Exploring the lived experiences of (un)employment among visually impaired persons in Nigeria: Implications for policy and practice 探讨尼日利亚视障人士(联合国)就业的生活经历:对政策和实践的影响
IF 0.8 Q4 OPHTHALMOLOGY Pub Date : 2023-01-12 DOI: 10.1177/02646196221148331
Emeka Patrick Okonji, P. Okonji, Elyse M. Connors, J. Leja
Blind people have been consistently underemployed in Nigeria. There have been recent policy initiatives, and programmes especially by the federal government and the Lagos state government, aimed at improving the unemployment situation of people with disabilities, but not much success has been recorded. This study explored the views of blind individuals about their (un)employment experiences to understand their challenges and proffer solutions. The study employed a qualitative approach, conducting one-to-one unstructured qualitative interviews with 22 blind and visually impaired adults aged between 18 and 55 years. Verbatim transcripts of the interviews were analysed using the thematic analysis approach. Four major themes emerged: describing participants’ views on discrimination and lack of inclusive processes in recruitment; perceived gaps with policy enforcement; inadequate support systems for vocational skills training and entrepreneurship; as well as general views on life, society, and hopes for future employment opportunities. The most common barrier to employment mentioned by participants was the misconception by employers that being blind meant being unable to work. There was a general lack of confidence and trust in recent policies seeking to address structural barriers to visually impaired people’s employment goals. Real solutions and specific policy changes were desired.
在尼日利亚,盲人一直没有充分就业。最近,特别是联邦政府和拉各斯州政府提出了旨在改善残疾人失业状况的政策倡议和方案,但没有取得多大成功。本研究探讨了盲人对其(非)就业经历的看法,以了解他们面临的挑战并提供解决方案。该研究采用了定性方法,对22名年龄在18岁至55岁之间的盲人和视力受损的成年人进行了一对一的非结构化定性访谈。使用专题分析方法对访谈的逐字记录进行了分析。出现了四个主要主题:描述与会者对招聘中歧视和缺乏包容性进程的看法;政策执行方面的差距;职业技能培训和创业支助制度不足;以及对生活、社会的总体看法,以及对未来就业机会的希望。与会者提到的最常见的就业障碍是雇主错误地认为失明意味着不能工作。人们普遍对最近旨在解决妨碍视障人士实现就业目标的结构性障碍的政策缺乏信心和信任。需要真正的解决办法和具体的政策变化。
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引用次数: 0
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British Journal of Visual Impairment
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