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Co-designing for behavioural change: understanding barriers and enablers to addressing sexuality after traumatic brain injury and mapping intervention strategies in a multi-disciplinary rehabilitation unit. 共同设计行为改变:了解解决脑外伤后性行为问题的障碍和促进因素,并绘制多学科康复单位的干预策略图。
IF 0.8 4区 医学 Q4 CLINICAL NEUROLOGY Pub Date : 2024-01-01 DOI: 10.1071/IB23068
Jill H A Hwang, Marina G Downing, Riccarda A G Specht, Jennie L Ponsford

Background Persistent changes in sexuality often follow traumatic brain injury (TBI). However, health professionals remain reticent about discussing sexuality and have reported barriers including uncertainties around whose role it is and limited educational and institutional support. This study employed a co-design and implementation process, aiming to promote team-wide behavioural change, whereby health professionals at a TBI rehabilitation unit would attempt to address sexuality with patients routinely. Methods Focus group sessions with multidisciplinary health professionals were conducted to identify barriers and enablers to behavioural change, identify areas for development, and co-design intervention options. Implementation deliverables were then finalised and provided to the team. The Theoretical Domains Framework was used to map factors influencing behaviours and the Behaviour Change Wheel was used to map interventions. Thematic analysis was used to further analyse barrier themes. Results Thirty-five barriers and eight enablers falling within 12 theoretical domains to behavioural change were identified. Thematic analysis revealed highly correlated barriers in initiating and sustaining change. Nine co-designed intervention options aligned with five intervention functions of the Behaviour Change Wheel, resulting in six final implementation deliverables. Conclusions Barriers were highly interrelated, influencing the approach to implementation deliverables. Simultaneously addressing multiple barriers could potentially alleviate discomfort associated with discussing sexuality. Concerns around initiating change were related to confidence in achieving sustainable changes. Achieving change requires organisational and team-level environmental restructuring and enablement. The next step involves evaluating the effectiveness of the co-design and implementation process in driving behavioural change and potential impacts on patient satisfaction and sexuality outcomes.

背景创伤性脑损伤(TBI)后,性行为往往会发生持续性变化。然而,医疗专业人员对讨论性问题仍然缄默不语,并报告了一些障碍,包括不确定谁在扮演这个角色,以及教育和机构支持有限。本研究采用了共同设计和实施过程,旨在促进整个团队的行为改变,使创伤性脑损伤康复科的医护人员尝试与患者进行常规性讨论。方法 与多学科医护人员进行焦点小组会议,以确定行为改变的障碍和促进因素,确定需要发展的领域,并共同设计干预方案。然后,最终确定并向团队提供实施成果。理论领域框架用于绘制影响行为的因素图,行为改变轮用于绘制干预措施图。专题分析用于进一步分析障碍主题。结果 确定了影响行为改变的 12 个理论领域中的 35 个障碍和 8 个促进因素。主题分析表明,在启动和维持改变方面存在高度相关的障碍。九个共同设计的干预方案与 "行为改变轮 "的五项干预功能相吻合,最终形成了六项实施成果。结论 各种障碍高度相互关联,影响着实施可交付成果的方法。同时解决多种障碍有可能减轻与讨论性问题相关的不适感。对启动变革的担忧与实现可持续变革的信心有关。实现变革需要组织和团队层面的环境重组和赋能。下一步需要评估共同设计和实施过程在推动行为改变方面的有效性,以及对患者满意度和性行为结果的潜在影响。
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引用次数: 0
Co-developing 'The CyberABIlity Scale' to assess vulnerability to cyberscams for people with acquired brain injury: Delphi and cognitive interviews with clinicians and people with acquired brain injury. 共同开发 "网络人际关系量表",用于评估后天性脑损伤患者易受网络诈骗影响的程度:与临床医生和后天性脑损伤患者进行德尔菲和认知访谈。
IF 0.8 4区 医学 Q4 CLINICAL NEUROLOGY Pub Date : 2024-01-01 DOI: 10.1071/IB23065
Jao-Yue J Carminati, Jennie L Ponsford, Kate Rachel Gould

Background Although individuals with acquired brain injury (ABI) may be vulnerable to cyberscams, the lack of existing measures documenting cybersafety behaviours in people with ABI limits our understanding of ABI-specific risk factors, the frequency of this problem, and the ability to evaluate evidence-based interventions. The CyberABIlity Scale was developed to assess vulnerability in people with ABI via self-rated statements and practical scam-identification tasks. This study aimed to develop and refine The CyberABIlity Scale through feedback from clinicians and people with ABI. Methods Scale feedback was collected via three rounds of clinician surveys (n  = 14) using Delphi methods and two rounds of cognitive interviews with participants with ABI (n  = 8). Following each round, feedback was quantitatively and qualitatively summarised, and revisions were made accordingly. Results Key revisions included removing 12 items deemed irrelevant. Instructions and rating scales were revised to improve clarity. Cognitive interviews identified 15 comprehension errors, with further revisions made to support response clarity for participants with ABI. Clinicians and participants with ABI endorsed the content and face validities of The CyberABIlity Scale . Conclusions Following further validation, The CyberABIlity Scale has the potential to be an effective screening measure for online vulnerability for people with ABI within clinical and research settings.

背景 虽然后天性脑损伤(ABI)患者可能容易受到网络诈骗的侵害,但由于缺乏记录 ABI 患者网络安全行为的现有措施,限制了我们对 ABI 患者特定风险因素、这一问题的发生频率以及评估循证干预措施的能力的了解。我们开发了网络安全量表(CyberABIlity Scale),通过自评陈述和实际的骗局识别任务来评估 ABI 患者的脆弱性。本研究旨在通过临床医生和 ABI 患者的反馈意见来开发和完善网络行为能力量表。方法 采用德尔菲法,通过三轮临床医生调查(14 人)和两轮认知访谈(8 人)收集量表反馈。每轮调查后,对反馈意见进行定量和定性总结,并做出相应修订。结果 主要修订包括删除了 12 个被认为不相关的项目。修订了说明和评分量表,以提高清晰度。认知访谈发现了 15 处理解错误,并做了进一步的修订,以支持有 ABI 的参与者做出清晰的回答。临床医生和有 ABI 的参与者均认可网络行为能力量表的内容有效性和表面有效性。结论 经过进一步验证,网络行为能力量表有可能成为临床和研究环境中筛查 ABI 患者网络脆弱性的有效方法。
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引用次数: 0
The many faces of stigma after Acquired Brain Injury: a systematic review. 获得性脑损伤后的多面耻辱:系统回顾。
IF 0.8 4区 医学 Q4 CLINICAL NEUROLOGY Pub Date : 2024-01-01 DOI: 10.1071/IB23076
María-José Bracho, Christian Salas

Background Stigma after Acquired Brain Injury (ABI) has been described as a significant obstacle for the recovery of survivors. Despite its theoretical and clinical relevance, studies dedicated to stigma after ABI are just starting to emerge. The goal of this systematic review was to integrate the existing scientific evidence and develop a model of stigma after brain injury that can guide interventions at different levels. Method Three electronic databases were employed. A search strategy was adapted for each database. Articles that explored stigma in adult ABI populations were included. All articles used quantitative, qualitative or mixed method designs and were published in English, Spanish or Portuguese. Results A total of 21 articles were selected. They considered three types of stigma after ABI: (1) self-stigma, (2) stigma-by-association and (3) public stigma. It was also found that information can be processed at implicit and explicit levels across all three forms of stigma. Definitions of each type of stigma used with ABIs are provided as well as related concepts and theoretical frameworks employed. Evidence emerging from different forms of stigma after ABI is summarised. Conclusion Research on stigma after ABI is heterogeneous, and existing studies have explored its impact at individual, family and public levels. A model of stigma after ABI should consider all these levels as well as the interactions that can occur between them. Future studies should explore how to incorporate stigma management as part of neuropsychological rehabilitation programs.

背景后天性脑损伤(ABI)后的耻辱感被描述为幸存者康复的一大障碍。尽管其理论和临床意义重大,但专门针对 ABI 后污名化的研究才刚刚开始出现。本系统性综述的目的是整合现有的科学证据,建立脑损伤后成见模型,为不同层面的干预措施提供指导。方法 采用三个电子数据库。每个数据库都调整了检索策略。纳入了探讨成人 ABI 群体污名化问题的文章。所有文章均采用定量、定性或混合方法设计,并以英语、西班牙语或葡萄牙语发表。结果 共筛选出 21 篇文章。这些文章考虑了 ABI 后的三种成见类型:(1)自我成见;(2)协会成见;(3)公众成见。研究还发现,在所有这三种成见形式中,信息可以在隐性和显性层面上进行处理。本研究提供了用于人工辅助器具的每种成见的定义以及相关概念和理论框架。总结了人工晶体植入术后不同形式成见的证据。结论 对人工晶体植入术后成见的研究多种多样,现有研究探讨了其在个人、家庭和公共层面的影响。关于阿尔茨海默氏病后成见的模型应考虑所有这些层面以及它们之间可能发生的相互作用。未来的研究应探讨如何将污名化管理作为神经心理康复计划的一部分。
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引用次数: 0
Thinking small and big: integrating individual, clinician and systems levels of understanding to improve outcomes after acquired brain injury. 以小见大:综合个人、临床医生和系统层面的理解,改善后天性脑损伤后的治疗效果。
IF 0.8 4区 医学 Q4 CLINICAL NEUROLOGY Pub Date : 2023-12-01 Epub Date: 2023-11-17 DOI: 10.1017/BrImp.2023.14
Dana Wong
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引用次数: 0
Functional improvements associated with cranioplasty after stroke and traumatic brain injury: a cohort study 脑卒中和创伤性脑损伤后颅骨成形术相关的功能改善:一项队列研究
IF 0.8 4区 医学 Q4 CLINICAL NEUROLOGY Pub Date : 2023-11-17 DOI: 10.1017/brimp.2023.2
F. Coelho, G.S. Noleto, D.J.F. Solla, P.N. Martins, A.F. Andrade, M.J. Teixeira, W.S. Paiva, R. Anghinah
Objective:Decompressive craniectomy is part of the acute management of several neurosurgical illnesses, and is commonly followed by cranioplasty. Data are still scarce on the functional and cognitive outcomes following cranioplasty. We aim to evaluate these outcomes in patients who underwent cranioplasty following traumatic brain injury (TBI) or stroke.Methods:In this prospective cohort, we assessed 1-month and 6-month neuropsychological and functional outcomes in TBI and stroke patients who underwent cranioplasty at a Brazilian tertiary center. The primary outcome was the change in the Digits Test at 1 and 6 months after cranioplasty. Repeated measures general linear models were employed to assess the patients' evolution and interactions with baseline characteristics. Effect size was estimated by the partial η2.Results:A total of 20 TBI and 14 stroke patients were included (mean age 42 ± 14 years; 52.9% male; average schooling 9.5 ± 3.8 years; 91.2% right-handed). We found significant improvements in the Digits Tests up to 6 months after cranioplasty (p = 0.004, partial η2 = 0.183), as well as in attention, episodic memory, verbal fluency, working memory, inhibitory control, visuoconstructive and visuospatial abilities (partial η2 0.106–0.305). We found no interaction between the cranioplasty effect and age, sex or schooling. Patients submitted to cranioplasty earlier (<1 year) after injury had better outcomes.Conclusion:Cognitive and functional outcomes improved after cranioplasty following decompressive craniectomy for stroke or TBI. This effect was consistent regardless of age, sex, or education level and persisted after 6 months. Some degree of spontaneous improvement might have contributed to the results.
目的:减压颅骨切除术是一些神经外科疾病的急性治疗的一部分,通常在颅骨成形术之后进行。关于颅骨成形术后的功能和认知结果的数据仍然很少。我们的目的是评估创伤性脑损伤(TBI)或中风后接受颅骨成形术的患者的这些结果。方法:在这个前瞻性队列中,我们评估了在巴西三级中心接受颅骨成形术的TBI和卒中患者1个月和6个月的神经心理和功能结果。主要结果是颅骨成形术后1个月和6个月手指测试的变化。采用重复测量一般线性模型来评估患者的演变及其与基线特征的相互作用。效应大小由偏η2估计。结果:共纳入TBI患者20例,脑卒中患者14例(平均年龄42±14岁;男性52.9%;平均受教育年限9.5±3.8年;91.2%右撇子)。我们发现颅骨成形术后6个月手指测试有显著改善(p = 0.004,部分η2 = 0.183),注意力、情景记忆、言语流畅性、工作记忆、抑制控制、视觉构建和视觉空间能力也有显著改善(部分η2 0.106-0.305)。我们发现颅骨成形术的效果与年龄、性别或学校教育没有相互作用。损伤后较早(1年)接受颅骨成形术的患者预后较好。结论:脑卒中或TBI患者行减压颅脑切除术后颅骨成形术后认知和功能改善。无论年龄、性别或教育水平如何,这种效果都是一致的,并在6个月后持续存在。某种程度的自发改进可能促成了结果。
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引用次数: 0
ASSBI / NZRA AWARDS - Kevin Walsh Award for Most Outstanding Masters Student 2012 ASSBI / NZRA 奖项 - 凯文-沃尔什 2012 年最杰出硕士生奖
IF 0.8 4区 医学 Q4 CLINICAL NEUROLOGY Pub Date : 2023-11-17 DOI: 10.1017/brimp.2023.13
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引用次数: 0
How is assistive technology meeting the needs and goals of people with brain impairment? Building evidence to support practice. 辅助技术如何满足脑损伤患者的需求和目标?建立支持实践的证据。
IF 1.1 4区 医学 Q4 CLINICAL NEUROLOGY Pub Date : 2023-05-01 DOI: 10.1071/IB23030
Libby Callaway, Jacki Liddle
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引用次数: 0
ASSBI / NZRA AWARDS - Kevin Walsh Award for Most Outstanding Masters Student 2012 ASSBI / NZRA奖- 2012年Kevin Walsh最杰出硕士生奖
IF 0.8 4区 医学 Q4 CLINICAL NEUROLOGY Pub Date : 2022-12-01 DOI: 10.1017/BrImp.2022.29
A. Armstrong, J. Dahm, B. Dimech-Betancourt, Katherine A R Frencham, Diane, Parcell, Sue Sloan, K. Trezise, C. Ziino, Dana K. Wong, D. Lawson, R. Stolwyk, D. Cadilhac, Nicolette Kamberis, R. Nair
S THURSDAY 5TH MAY Workshop: Adult ADHD: Assessment, Diagnosis and Intervention Caroline Fisher1, Nicci Grace1, Mary Castellani1 and Eddie Tsang1 1Neuropsychology Service, The Melbourne Clinic, Melbourne, Australia This workshop is targeted at clinicians who are interested in developing clinical knowledge and skills in the assessment and diagnosis of adults with ADHD, as well as ways to support with neurocognitive intervention. Increasingly, adults of all ages are being referred to neuropsychology for diagnostic clarification of possible ADHD. This is likely due to increased community awareness and greater understanding of this condition. Adults with ADHD typically also present with longstanding challenges with mental health and emotional dysregulation, and this can be a complicating factor when providing diagnostic clarification. The workshop will be interactive and include case studies. It will cover three main areas: 1) Clinical features of ADHD in adults, what to look for and ask about in history taking. How undiagnosed ADHD may have impacted on functioning, as well as common mental health and neurodevelopmental comorbidities. 2) Recommendations for conducting a neuropsychology diagnostic assessment including; clinical and cognitive features of ADHD in adults and how to identify these alongside other Abstract 347
5月5日星期四工作坊:成人多动症:评估、诊断和干预卡洛琳·费雪1、妮西·格蕾丝1、玛丽·卡斯特拉尼1和Eddie Tsang1澳大利亚墨尔本诊所神经心理学服务中心本次工作坊针对的是有兴趣发展成人多动症评估和诊断的临床知识和技能的临床医生,以及支持神经认知干预的方法。越来越多的所有年龄段的成年人都被推荐到神经心理学来诊断可能的多动症。这可能是由于社区意识的提高和对这种情况的更深入了解。患有多动症的成年人通常也会长期面临精神健康和情绪失调的挑战,这在提供诊断澄清时可能是一个复杂的因素。研讨会将是互动的,并包括案例研究。它将涵盖三个主要领域:1)成人多动症的临床特征,在历史记录中需要寻找和询问什么。未确诊的多动症如何影响功能,以及常见的心理健康和神经发育共病。2)进行神经心理学诊断评估的建议包括:成人ADHD的临床和认知特征以及如何识别这些特征
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引用次数: 0
2022 ASSBI PRESIDENTIAL ADDRESS. Reflections on language and primary progressive aphasias 2022年总统就职演说。关于语言与原发性进行性失语症的思考
IF 0.8 4区 医学 Q4 CLINICAL NEUROLOGY Pub Date : 2022-12-01 DOI: 10.1017/BrImp.2022.25
O. Piguet
Abstract Primary progressive aphasias are rare younger-onset dementias. As the label denotes, these dementias are characterised clinically by marked changes in language skills. Evidence over the years has shown that individuals with primary progressive aphasia experience widespread cognitive and behavioural changes that extend beyond language. This evidence, however, seems to be largely ignored or downplayed. This article proposes that linguistic relativity which induces a cognitive bias may be responsible for this omission; it also indicates that a revision of the current diagnostic criteria may need to be revised.
原发性进行性失语是一种罕见的年轻发性痴呆。正如标签所示,这些痴呆症的临床特征是语言技能的显著变化。多年来的证据表明,患有原发性进行性失语症的个体经历了广泛的认知和行为变化,这些变化超出了语言的范围。然而,这一证据似乎在很大程度上被忽视或低估了。本文认为,引起认知偏差的语言相对性可能是造成这种遗漏的原因;这也表明可能需要修订当前的诊断标准。
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引用次数: 0
Identifying Trends of Dysautonomia Signs and Symptoms Associated with Protracted Concussion Recovery during the Buffalo Concussion Treadmill Test: A Retrospective Study 在布法罗脑震荡跑步机试验中识别与长时间脑震荡恢复相关的自主神经异常体征和症状的趋势:一项回顾性研究
IF 0.8 4区 医学 Q4 CLINICAL NEUROLOGY Pub Date : 2022-03-25 DOI: 10.1017/brimp.2022.5
Lauren Ziaks, Jenna Tucker, T. Koc, Alexa Schaefer, Kristin R. Hanson
To identify trends of provoked dysautonomia signs and symptoms during the Buffalo Concussion Treadmill Test (BCTT). This is a retrospective cohort study of 101 patient charts post-concussion who were screened for suspected dysautonomia. Patients with suspected dysautonomia were assessed for exercise intolerance using a BCTT. Symptoms and rate of perceived exertion were recorded on a standardized form. Digital pulse oximetry was used to collect heart rate (HR) and oxygen saturation. Descriptive analyses were conducted on BCTT results. Of 101 patient charts, 57 were excluded from analysis, including four patients who completed the BCTT by asymptomatically reaching the target HR zone for their estimated HR max. The remaining 44 patients demonstrated: 35 (79.5%) poor HR stabilization defined as a drop or plateau in HR during exercise, 28 (63.8%) exacerbated concussion symptoms, 13 (29.5%) autonomic nervous system response such as hot flushed sensation, 12 (27.3%) rebound symptoms during recovery phases, and 8 (18.2%) desaturation of 90% or below. The mean delta (80% expected HR max – 80% achieved HR max) on the initial test was 80.66 (± 23.08) beats per minute. This study is the first to identify trends of signs and symptoms during the BCTT in an expanded population with suspected dysautonomia after concussion. Future studies are indicated to validate these findings and contribute to development of modified termination criteria for the BCTT in individuals with suspected dysautonomia associated with protracted concussion recovery.
在布法罗脑震荡跑步机测试(BCTT)中确定诱发性自主神经异常体征和症状的趋势。这是一项回顾性队列研究,对101例脑震荡后疑似自主神经异常的患者进行了筛查。疑似自主神经异常的患者使用BCTT评估运动不耐受。在标准化表格上记录症状和感知劳累率。采用数字脉搏血氧仪采集心率(HR)和血氧饱和度。对BCTT结果进行描述性分析。在101例患者图表中,57例被排除在分析之外,其中包括4例完成BCTT的患者,他们无症状地达到了估计HR max的目标HR区。其余44例患者表现为:35例(79.5%)心率稳定性差(运动时心率下降或平稳),28例(63.8%)脑震荡症状加重,13例(29.5%)自主神经系统反应,如潮热感,12例(27.3%)恢复阶段反弹症状,8例(18.2%)去饱和度90%或以下。初始测试的平均δ(80%预期最大HR - 80%达到最大HR)为80.66(±23.08)次/分钟。这项研究首次确定了在脑震荡后疑似自主神经异常的扩大人群中进行BCTT期间体征和症状的趋势。未来的研究将证实这些发现,并有助于制定与长时间脑震荡恢复相关的疑似自主神经异常患者的BCTT终止标准。
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Brain Impairment
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