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Palliative Care Ethics: Medicine’s Duty to Help 姑息治疗伦理:医学的帮助责任
Pub Date : 2019-04-06 DOI: 10.5772/INTECHOPEN.85160
Ş. Keleş
In palliative care, death, which is a part of human nature, is considered as a normal process. This type of care is concerned with the quality of life rather than its duration. In this context, the basic aim is to perform practices to relieve the patient in a way that does not raise any ethical suspicion. Within this framework, it can be said that palliative care is a requirement of medicine’s duty to help. The aim of this chapter is to draw attention to the importance of ethical values in the configuration of palliative care services for patients who are in the last period of their life or the ones who have terminal illnesses. In palliative care, it is essential to arrange care services in a manner that does not raise any ethical doubt about the measures taken to increase beneficence both to the patients who are in the last days of their life and to their relatives. In this study, “The Directive for Implementing Procedures of Palliative Care Services” prepared by the Ministry of Health in Turkey in 2015 will be evaluated in terms of ethics.
在姑息治疗中,死亡是人性的一部分,被认为是一个正常的过程。这种类型的护理关心的是生活质量而不是寿命。在这种情况下,基本目标是以一种不会引起任何伦理怀疑的方式来执行减轻患者的做法。在这个框架内,姑息治疗可以说是医学帮助义务的要求。本章的目的是提请注意伦理价值的重要性,在配置姑息治疗服务的病人谁是在他们的生命的最后一段时间或谁有绝症。在姑息治疗中,必须以一种不会引起任何道德上怀疑的方式安排护理服务,以增加对处于生命最后几天的病人及其亲属的福利。在本研究中,将从伦理角度对土耳其卫生部于2015年制定的“姑息治疗服务实施程序指令”进行评估。
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引用次数: 1
Palliative Care Network in Brazil 巴西姑息治疗网络
Pub Date : 2019-03-28 DOI: 10.5772/INTECHOPEN.85169
J. Munis, Juliana Dias Reis Pessalacia, Jacqueline Resende Boaventura, Ana Paula Da Silva, Luciana Ferreira Da Silva, Aires Garcia dos Santos Júnior, A. M. Ferreira
Brazil is a country with great diversity and distinct realities, so there is a proportional challenge and complexity in offering a unified and integrated system which is accessible, of quality, and effective. Population aging and the increased incidence of chronic-degenerative noncommunicable diseases (NCDs) increase the need for palliative care (PC); however, public policies still need to be implemented so that this care encompasses adequate funding, professional training, and guaranteed medication. The first national policy for PC was recently proposed, providing guidelines for the organization of PC, emphasizing the importance of integration between the different levels of care and services in the Brazilian health system (SUS). Nevertheless, the challenges of this policy include the training of professionals, communication in the network, the absence of integrated health information systems, and effective mechanisms to finance this new modality of care.
巴西是一个具有巨大多样性和独特现实的国家,因此,在提供一个方便、高质量和有效的统一和综合系统方面存在着相称的挑战和复杂性。人口老龄化和慢性退行性非传染性疾病(NCDs)发病率的增加增加了对姑息治疗(PC)的需求;然而,仍然需要实施公共政策,使这种护理包括充足的资金、专业培训和有保障的药物治疗。最近提出了第一个国家个人护理政策,为个人护理的组织提供了指导方针,强调了巴西卫生系统(SUS)中不同层次的护理和服务之间整合的重要性。然而,这项政策面临的挑战包括专业人员的培训、网络中的沟通、缺乏综合卫生信息系统以及为这种新的护理方式提供资金的有效机制。
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引用次数: 0
Palliative Care Education for Everybody 人人享有姑息治疗教育
Pub Date : 2019-03-26 DOI: 10.5772/INTECHOPEN.85496
G. Bollig
This chapter is about palliative care education for everybody including both professional health care workers and all citizens. A six-step approach to life-long palliative care education (as first described by Bollig in 2008 and published as a conference poster in 2009 and a book in German in 2010) will be proposed and discussed. The chapter will summarize the public knowledge approach to palliative care implementation (Bollig 2008) and other strategies to educate the public about palliative care. The concept of Last Aid courses for citizens will be introduced, and international experiences with this concept will be discussed. A possible combination of Last Aid courses and the compassionate community approach might improve palliative care provision in the community.
这一章是关于每个人的姑息治疗教育,包括专业医护人员和所有公民。将提出和讨论终身姑息治疗教育的六步方法(由Bollig于2008年首次描述,2009年作为会议海报出版,2010年以德语出版)。本章将总结姑息治疗实施的公共知识方法(Bollig 2008)和其他策略,以教育公众关于姑息治疗。介绍公民最后援助课程的概念,并讨论这一概念的国际经验。最后援助课程和富有同情心的社区方法的可能结合可能会改善社区的姑息治疗提供。
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引用次数: 2
Communication with Families in the Last Days of a Patient’s Life and Optimal Delivery of a Death Pronouncement 在病人生命的最后几天与家属的沟通和最佳的死亡宣告
Pub Date : 2019-03-12 DOI: 10.5772/INTECHOPEN.84730
Soichiro Okamoto, Yu Uneno, M. Mori, Takashi Yamaguchi, N. Nakajima
Communicating with family members is critically important when a severely ill patient is experiencing their last few days of life. However, healthcare professionals (HCPs) have limited opportunities to learn effective and respectful ways to perform this communication. In recent decades, significant effort has been put forth to identify the phenomena that indicate the last hours and days of life and the optimal methods to deliver a death pronouncement, which will potentially help HCPs communicate compassionately with family members throughout the dying process. In this chapter, we will review the literature regarding the phenomena that indicate the last hours and days of life and the death pronouncement. Furthermore, we will discuss clinical implications derived from those articles and future research perspectives.
当重症患者经历生命的最后几天时,与家庭成员沟通至关重要。然而,医疗保健专业人员(HCPs)学习有效和尊重的方式进行这种沟通的机会有限。近几十年来,人们付出了巨大的努力,以确定表明生命最后几小时和几天的现象,以及宣布死亡的最佳方法,这可能有助于医务人员在整个死亡过程中与家庭成员进行富有同情心的沟通。在本章中,我们将回顾有关表明生命的最后几个小时和几天以及死亡宣告的现象的文献。此外,我们将讨论这些文章的临床意义和未来的研究前景。
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引用次数: 1
Advance care planning in dementia: recommendations for healthcare professionals. 痴呆症的预先护理计划:对医疗保健专业人员的建议
Pub Date : 2019-02-27 eCollection Date: 2019-01-01 DOI: 10.1177/1178224219826579
Karen Harrison Dening, Elizabeth L Sampson, Kay De Vries

The process of advance care planning in dementia is far from straightforward; as dementia progresses, the ability to consider future thoughts and actions becomes compromised, thus affecting decision-making abilities. Family carers find themselves increasingly in a position where they need to inform, or directly make, decisions on behalf of the person with dementia. This article discusses the context and importance of a palliative care approach and recommends rationales and strategies for healthcare professionals to support families affected by dementia to better plan for their future care.

痴呆症的预先护理规划过程远非直截了当;随着痴呆症的发展,考虑未来想法和行动的能力会受到损害,从而影响决策能力。家庭照护者发现,他们越来越需要代表痴呆症患者告知或直接做出决定。本文讨论了姑息治疗方法的背景和重要性,并为医疗保健专业人员推荐了支持受痴呆症影响的家庭的基本原理和策略,以更好地规划他们未来的护理。
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引用次数: 21
The Marquette Palliative Care System 马奎特姑息治疗系统
Pub Date : 2019-02-22 DOI: 10.5772/INTECHOPEN.84475
R. Love, Sheikh Iqbal Ahamed
Worldwide, major clinical barriers to effective palliative care are the absence of a. current data on symptom type and intensity; b. immediately accessible information on practical, affordable, and effective interventions; and c. self-sustaining systems to facilitate physician engagement in continuing palliative care. Our adaptable system, developed for Bangladesh and Nepal, addresses these barriers. A tele-home palliative care program facilitates home care, minimizes expense, and encourages efficient professional practitioner involvement employing two information technology tools: a patient cell-phone “app” on the Android platform with a 15-item symptom questionnaire and an Internet website with health information sections for patients/families and for clinicians. The physician section contains a guide for patient symptom review, clinical practice palliative care guidelines, secured patient demographics, medical summaries, and current and past symptom reports along with prescription-writing capability. The system is managed by a local organization that registers patients and their physicians, instructs patients on the free download-able application and completes their demographic and medical summaries, and arranges collection of a modest fee. The organization also ensures regular physician/ clinic visits by the patient or by a family member with a patient phone check-in, at least every 2 weeks.
在世界范围内,有效姑息治疗的主要临床障碍是缺乏a.症状类型和强度的当前数据;B.关于实用、负担得起和有效干预措施的可立即获得的信息;c.促进医生参与持续姑息治疗的自我维持系统。我们为孟加拉国和尼泊尔开发的适应性系统解决了这些障碍。远程家庭姑息治疗方案利用两种信息技术工具,促进家庭护理,最大限度地减少费用,并鼓励有效的专业医生参与:Android平台上的患者手机“应用程序”,包含15项症状问卷,以及为患者/家庭和临床医生提供健康信息部分的互联网网站。医生部分包含患者症状审查指南、临床实践姑息治疗指南、安全的患者人口统计数据、医学摘要、当前和过去的症状报告以及处方撰写能力。该系统由一个当地组织管理,该组织负责登记患者及其医生,指导患者使用可免费下载的应用程序,完成他们的人口统计和医疗摘要,并安排收取适当的费用。该组织还确保患者或家属至少每两周通过患者电话登记定期进行医生/诊所访问。
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引用次数: 2
Palliative care and public health: an asymmetrical relationship? 姑息治疗和公共卫生:一种不对称的关系?
Pub Date : 2019-02-20 eCollection Date: 2019-01-01 DOI: 10.1177/1178224218819745
Sandy Whitelaw, David Clark

Interest in the potential for public health and palliative care to work together is now widely established. Based on a mapping review of existing literature, we describe for the first time the ways in which public health has entered palliative care policy and practice and how this has been specifically articulated. We then go on to pursue analytical and critical lines of enquiry that are largely absent from the existing literature. We do this in three ways: (i) by considering why the link between public health and palliative care has become so ubiquitous within palliative care policy; (ii) by establishing how this has been constructed; and (iii) by exploring public health as a 'reference discipline' from which its 'secondary deployment' can become embedded inside another disciplinary field. From this, we develop a range of critical perspectives on the relationship between public health and palliative care by scrutinising its claims of utility and effectiveness and questioning the strength of the interdisciplinary interaction between the two disciplines. We see their relationship in a 'cross disciplinary' context which is still largely symbolic and tactical in nature. We conclude by considering the significance of these insights for policy and practice, with two possible scenarios. If the use of public health is essentially figurative and its resources are not unique, the particular and exclusive use of the term becomes insignificant. Progressive and effective policy and practice is possible, independent of any explicit public health label. If however public health is considered to have intrinsic and definable worth, we suggest that this currently asymmetrical association needs to be significantly developed with much higher levels of theoretical, practical and critical engagement between the two disciplines. Such work would result in more reflective and robust policy and practice.

现在,人们普遍对公共卫生和姑息治疗合作的潜力感兴趣。基于对现有文献的绘图审查,我们首次描述了公共卫生进入姑息治疗政策和实践的方式,以及如何具体阐述这一点。然后,我们继续寻求现有文献中基本上没有的分析和批判性的研究路线。我们通过三种方式做到这一点:(i)考虑为什么公共卫生和姑息治疗之间的联系在姑息治疗政策中变得如此普遍;(ii)通过确定其建造方式;以及(iii)将公共卫生探索为一个“参考学科”,从中可以将其“二次部署”嵌入另一个学科领域。由此,我们通过仔细审查公共卫生和姑息治疗的效用和有效性,并质疑这两个学科之间跨学科互动的强度,对公共卫生和缓和治疗之间的关系形成了一系列批判性的观点。我们在“跨学科”的背景下看待他们的关系,这种关系在很大程度上仍然是象征性的和战术性的。最后,我们考虑了这些见解对政策和实践的重要性,并提出了两种可能的情景。如果公共卫生的使用本质上是比喻性的,其资源也不是唯一的,那么这个词的特殊和排他性使用就变得微不足道了。渐进和有效的政策和做法是可能的,不受任何明确的公共卫生标签的影响。然而,如果公共卫生被认为具有内在和可定义的价值,我们认为,目前这种不对称的联系需要在两个学科之间进行更高水平的理论、实践和批判性参与,才能得到显著发展。这样的工作将产生更具反思性和更有力的政策和做法。
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引用次数: 0
Primary palliative care in southern Brazil: the legacy of Cicely Saunders. 巴西南部的初级姑息治疗:Cicely Saunders的遗产。
Pub Date : 2019-02-18 eCollection Date: 2019-01-01 DOI: 10.1177/1178224219825874
Santiago Rodríguez Corrêa, Carla Mazuko, David Clark
Creative Commons Non Commercial CC BY-NC: This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (http://www.creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage). As her undergraduate medical studies drew to a close, Cicely Saunders, whose centenary is being celebrated in 2018, was moved to write her first article and to submit it for consideration to the St Thomas’s Hospital Gazette. Published in 1958, it proved to be a remarkably complete statement about the issue of terminal care in Britain at that time, and a manifesto for what might be done in the future.1
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引用次数: 1
The effectiveness of pancreatic enzyme replacement therapy for malabsorption in advanced pancreatic cancer, a pilot study. 胰酶替代疗法治疗晚期胰腺癌吸收不良的有效性,一项初步研究。
Pub Date : 2019-02-17 eCollection Date: 2019-01-01 DOI: 10.1177/1178224218825270
Amanda Landers, Helen Brown, Matthew Strother

Advanced adenocarcinoma of the pancreas has a globally poor prognosis. One of the characteristic features of pancreatic cancer (PC) is pancreatic exocrine insufficiency (PEI). This leads to a malabsorption syndrome and subsequent digestive symptoms. Given the high prevalence of PEI and malabsorption in PC, empiric use of pancreatic enzyme replacement therapy (PERT) is recommended. The aim of this pilot study was to determine the potential efficacy of PERT in improving symptoms and quality of life in those with metastatic PC. The study recruited patients with advanced PC referred to a specialist palliative care service. Following an initial assessment, patients were commenced on pancrealipase 25,000IU (Creon) and reassessed after 1 week and 3 weeks post-initiation of supplementation. These assessments included demographics, malabsorption symptom checklist, and completion of two validated quality-of-life questionnaires, the European Organisation for Research and Treatment of Cancer QLQ-C30 and QLQ-PAN26. PERT was associated with statistically significant improvement of symptoms in both the general (QLQ-C30) and pancreatic cancer specific tool (PAN26). Within 1 week of PERT initiation, there was a reduction in diarrhoea scores (26 vs. 8, p<0.005), pancreatic and hepatic pain (47 vs. 33 and 24 vs. 11, respectively, p<0.05). After 3 weeks, there were significant improvements in pancreatic pain and bloating/gas symptoms (47 vs. 26 and 46 vs. 26, respectively, p< 0.005). PERT appears to have the potential to improve symptoms of malabsorption in patients with metastatic PC.

晚期胰腺腺癌的预后普遍较差。胰腺癌(PC)的特征之一是胰腺外分泌功能不全(PEI)。这会导致吸收不良综合征和随后的消化系统症状。鉴于PEI的高患病率和PC的吸收不良,建议经验性使用胰酶替代疗法(PERT)。这项初步研究的目的是确定PERT在改善转移性前列腺癌患者的症状和生活质量方面的潜在功效。该研究招募了转介到专科姑息治疗服务的晚期PC患者。初步评估后,患者开始使用胰酶25000iu (Creon),并在开始补充后1周和3周后重新评估。这些评估包括人口统计、吸收不良症状检查表和完成两份有效的生活质量问卷,欧洲癌症研究和治疗组织QLQ-C30和QLQ-PAN26。PERT与一般(QLQ-C30)和胰腺癌特异性工具(PAN26)的症状改善有统计学意义相关。在PERT开始的1周内,腹泻评分降低(26比8,ppp< 0.005)。PERT似乎有可能改善转移性前列腺癌患者的吸收不良症状。
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引用次数: 25
What is hypnosis and how might it work? 什么是催眠?它是如何起作用的?
Pub Date : 2019-01-31 eCollection Date: 2019-01-01 DOI: 10.1177/1178224219826581
Ann Williamson
Creative Commons Non Commercial CC BY-NC: This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (http://www.creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages (https://us.sagepub.com/en-us/nam/open-access-at-sage). Hypnosis can be seen as ‘a waking state of awareness, (or consciousness), in which a person’s attention is detached from his or her immediate environment and is absorbed by inner experiences such as feelings, cognition and imagery’.1 Hypnotic induction involves focusing of attention and imaginative involvement to the point where what is being imagined feels real. By the use and acceptance of suggestions, the clinician and patient construct a hypnotic reality.
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引用次数: 13
期刊
Palliative Care
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