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Autism in adulthood : challenges and management最新文献

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Spotted with AuDHD: Seeing Yourself in a Mentor Who Sees You. 被发现患有多动症:在一个能看到你的导师身上看到自己。
Pub Date : 2025-04-03 eCollection Date: 2025-04-01 DOI: 10.1089/aut.2024.0074
Laurel Hiatt
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引用次数: 0
"A System That Wasn't Really Optimized for Me": Factors Influencing Autistic University Students' Access to Information. “一个并非真正为我优化的系统”:影响自闭症大学生获取信息的因素。
Pub Date : 2025-04-03 eCollection Date: 2025-04-01 DOI: 10.1089/aut.2023.0139
Kayden M Stockwell, Zoë S Robertson, Andrew J Lampi, Talyn Steinmann, Erline Morgan, Vikram K Jaswal
<p><strong>Background: </strong>More autistic adults pursue higher education each year, but rates of mental health conditions and graduation rates suggest that they are not being adequately supported. In this qualitative study, we report on factors that influence how autistic university students learn about the resources and opportunities available to help students succeed in higher education.</p><p><strong>Methods: </strong>We interviewed 14 autistic students at a public university in the United States as part of a larger project to understand the campus climate for autistic students. Participants were interviewed either in groups or individually via Zoom, or asynchronously over email. We used reflexive thematic analysis to identify patterns of meaning across the data set and provide a theoretically informed interpretation of autistic university students' access to information about resources and opportunities.</p><p><strong>Results: </strong>We constructed two themes related to the difficulties autistic students face in accessing information. The first theme was Challenges Navigating the Interactions Required to Access Information. This theme positions participants' accounts of difficulty accessing socially mediated information within a reciprocal framework. The second theme was University Expectations Limit Information Access. This theme explains how university expectations, practices, and policies that were not designed with autistic students in mind can serve as a barrier to information access.</p><p><strong>Conclusions: </strong>Our participants' experiences highlighted how access to information about the resources and opportunities that could support their success can impact not only their academic and interpersonal experiences but also their sense of belonging to their university community. By better understanding the multiple, interacting factors that influence autistic university students' access to information-and subsequently, resources and opportunities-we can move toward informed, structural changes in higher education that will provide more equitable access to autistic people.</p><p><strong>Abstract: </strong>More autistic people go to university every year, but many struggle, and universities are still learning how to support autistic students. Many universities have resources for students, but these are only helpful if you know about them and how to access them.</p><p><strong>Abstract: </strong>We wanted to understand autistic students' experiences at a particular university and to give recommendations to the university on how to better support their students. After we interviewed autistic students, we noticed that all of them had trouble accessing information about resources and opportunities that could have supported them. We wanted to learn about what influences autistic students' access to information about resources and opportunities in university settings.</p><p><strong>Abstract: </strong>We interviewed 14 autistic students
背景:每年都有更多的自闭症成年人接受高等教育,但心理健康状况和毕业率表明他们没有得到充分的支持。在本定性研究中,我们报告了影响自闭症大学生如何了解可帮助他们在高等教育中取得成功的资源和机会的因素。方法:我们在美国一所公立大学采访了14名自闭症学生,作为了解自闭症学生校园环境的一个更大项目的一部分。参与者可以通过Zoom进行小组或个人访谈,也可以通过电子邮件进行异步访谈。我们使用反身性主题分析来识别数据集的意义模式,并对自闭症大学生获取资源和机会信息的方式提供理论上的解释。结果:我们构建了两个与自闭症学生获取信息困难相关的主题。第一个主题是导航访问信息所需的交互的挑战。这一主题将参与者对难以获取社会中介信息的描述置于一个互惠的框架中。第二个主题是“大学期望限制信息获取”。这个主题解释了没有考虑到自闭症学生的大学期望、实践和政策是如何成为信息获取的障碍的。结论:我们的参与者的经历强调了如何获取有关资源和机会的信息,这些信息可以支持他们的成功,不仅影响他们的学术和人际交往经历,还影响他们对大学社区的归属感。通过更好地理解影响自闭症大学生获取信息以及随后的资源和机会的多种相互作用的因素,我们可以在高等教育中进行知情的、结构性的变革,为自闭症患者提供更公平的获取机会。摘要:每年都有越来越多的自闭症患者进入大学,但很多人都在苦苦挣扎,大学仍在学习如何支持自闭症学生。许多大学都为学生提供资源,但只有当你了解这些资源并知道如何获取它们时,这些资源才会有帮助。摘要:我们希望了解自闭症学生在某所大学的经历,并就如何更好地支持他们的学生向大学提出建议。在我们采访了自闭症学生之后,我们注意到他们都很难获得有关资源和机会的信息,这些信息本可以支持他们。我们想了解是什么影响了自闭症学生在大学环境中获取有关资源和机会的信息。摘要:我们采访了美国一所大学的14名自闭症学生。我们询问了他们的学术和社会经历,他们得到或没有得到的支持,以及如何更好地支持自闭症学生。一组自闭症和非自闭症的研究人员阅读了参与者的回答,并在访谈中寻找共同的主题。摘要:本研究发现,自闭症大学生的资源和机会信息获取受到多种因素的影响。例如,学生经常必须与某人交谈以了解资源或获得帮助,这对许多参与者来说很难。我们还发现,大学分享信息的方式并没有考虑到自闭症患者。例如,许多大学在拥挤的活动中共享资源信息。获取与残疾有关的资源信息也很困难。与会者建议大学在低感官环境中共享信息,帮助自闭症学生彼此联系,并使其更容易了解和获取与残疾有关的资源。摘要:关于这一课题的研究大多是关于自闭症大学生如何在大学图书馆中找到信息。我们对自闭症学生如何在不同情况下获取信息很感兴趣。这项研究表明,我们可以采取措施,使自闭症学生更容易获得信息,这可以帮助学生联系到他们需要的资源。摘要:一个不足之处在于,我们采访的大多数自闭症大学生是白人,并且来自高学历的家庭背景。我们也只采访了在校学生或刚毕业的学生。因为我们没有和很多有色人种的自闭症学生、家里第一个上大学的自闭症学生、或者在毕业前离开大学的自闭症学生交谈过,所以我们的推荐可能只对一些自闭症学生有帮助。摘要:本研究的目的之一是为开展研究的大学如何更好地支持自闭症学生提供建议。 我们希望这些建议能对大学管理者、教育工作者和自闭症学生共同努力使大学更具包容性有所帮助。
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引用次数: 0
Autism-Informed Academic Librarians. 了解自闭症的学术图书馆员。
Pub Date : 2025-04-03 eCollection Date: 2025-04-01 DOI: 10.1089/aut.2024.0119
Amelia Anderson
<p><strong>Background: </strong>On college campuses, the academic library can be a place of comfort for some Autistic students. Autistic college students report using the library to explore their interests and as a place to escape a busy campus environment. However, academic librarians are not required to have a formal education about autism or neurodiversity more broadly.</p><p><strong>Methods: </strong>Through content analysis, this study examines sessions presented at the largest biannual conference for academic librarians in the United States to determine if, and how, attendees gain access to autism information.</p><p><strong>Results: </strong>Results indicate that few sessions focus specifically on autism but that the number is growing, especially when included within sessions about neurodiversity more broadly. Additionally, the language used to describe autism is increasingly in alignment with Autistic preferences.</p><p><strong>Conclusion: </strong>Conference sessions about autism and neurodiversity are limited but growing in number and quality. By encouraging more professional development opportunities for academic librarians to learn about autism, college and university students will benefit from more informed librarians and more inclusive library environments.</p><p><strong>Abstract: </strong>Academic libraries are important support spaces for some autistic college students, yet academic librarians receive no formal training or education about autism.</p><p><strong>Abstract: </strong>This study sought to understand if academic librarians receive autism education through professional conference sessions.</p><p><strong>Abstract: </strong>The researcher studied conference programs from five previous biannual, national conferences of the Association of College and Research Libraries (ACRL), the largest conference in the United States for academic librarians, to find all references to autism or neurodiversity more broadly. The researcher analyzed conference sessions using descriptive statistics to provide basic frequencies and qualitative methods to assign meaning to session metadata and descriptions.</p><p><strong>Abstract: </strong>Conference sessions about autism or neurodiversity were limited, with very few specifically addressing the topic. However, with the exception of 2017, these offerings have steadily increased since 2015. Language used to describe these sessions varied, but sessions used the term "neurodiversity" or its derivatives with greater frequency in most recent conference years, indicating greater awareness and understanding of this concept. Finally, sessions largely moved away from deficit-based language.</p><p><strong>Abstract: </strong>This is the first study to look at academic library conference sessions for autism references. It helps us to understand what information is being provided and what autism education academic librarians still need.</p><p><strong>Abstract: </strong>This study only looked at sessions present
背景:在大学校园里,学术图书馆对一些自闭症学生来说是一个舒适的地方。据报道,患有自闭症的大学生利用图书馆来探索自己的兴趣,并将其作为一个逃离繁忙校园环境的地方。然而,学术图书管理员不需要接受关于自闭症或更广泛的神经多样性的正规教育。方法:通过内容分析,本研究考察了在美国最大的两年一次的学术图书馆员会议上提出的会议,以确定与会者是否以及如何获得自闭症信息。结果:结果表明,很少有会议专门关注自闭症,但这一数字正在增长,特别是在更广泛地涉及神经多样性的会议中。此外,用于描述自闭症的语言越来越符合自闭症患者的偏好。结论:关于自闭症和神经多样性的会议有限,但在数量和质量上都在增长。通过鼓励学术图书馆员提供更多的专业发展机会来了解自闭症,高校学生将受益于更知情的图书馆员和更包容的图书馆环境。摘要:高校图书馆是一些自闭症大学生的重要支持场所,但高校图书馆馆员却没有接受过关于自闭症的正规培训和教育。摘要:本研究旨在了解学术图书馆馆员是否通过专业会议接受自闭症教育。摘要:研究人员研究了美国最大的学术图书馆员会议——美国大学与研究图书馆协会(ACRL)之前的五次两年一次的全国会议的会议计划,以找到所有关于自闭症或神经多样性的更广泛的参考文献。研究人员使用描述性统计来分析会议,以提供基本频率和定性方法来分配会议元数据和描述的含义。摘要:关于自闭症或神经多样性的会议非常有限,很少有专门讨论这一主题的会议。然而,除2017年外,这些产品自2015年以来稳步增长。用来描述这些会议的语言各不相同,但在最近的会议中,会议使用“神经多样性”或其衍生词的频率更高,表明人们对这一概念的认识和理解有所提高。最后,会议基本上不再使用基于赤字的语言。摘要:这是第一次对学术图书馆会议的自闭症参考文献进行研究。它帮助我们了解哪些信息被提供了,哪些自闭症教育学术图书馆员还需要。摘要:这项研究只关注了为全国会议提交的会议。学术图书馆员可能会从州或地方会议或其他专业发展途径获得自闭症信息。通过对学术图书馆员和自闭症图书馆用户的访谈和调查提供的更多信息可能有助于为这些结果提供额外的背景。摘要:以往的研究表明,自闭症大学生对学校图书馆的欣赏程度较高。创造更多了解自闭症的学术图书馆员将有助于确保这些校园空间保持或变得更具包容性和支持性。
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引用次数: 0
Positive Experiences in Postsecondary Education Among Autistic Youths in Hong Kong. 香港自闭症青少年接受专上教育的积极经验
Pub Date : 2025-04-03 eCollection Date: 2025-04-01 DOI: 10.1089/aut.2024.0108
Gary Yu Hin Lam
<p><strong>Background: </strong>Autistic students may encounter different challenges and barriers in postsecondary education, but many also experience growth and positive development. Little is known about the positive aspects of their postsecondary experience, especially in non-Western countries.</p><p><strong>Methods: </strong>Thirty autistic students from universities and colleges in Hong Kong participated in individual semi-structured interviews. We asked them to describe their positive experience in postsecondary education, including their enjoyment, memorable events, gains, and positive aspects. We analysed interview data using thematic analysis.</p><p><strong>Results: </strong>We identified four major themes that depicted autistic students' positive experience in postsecondary education. Autistic students described effective teaching strategies and arrangements that could facilitate their learning and made postsecondary education settings more preferred than secondary school. They found different supportive people in the right niches, including peers, educators, and family members. They also developed themselves through participating in activities and learning experiences offered in postsecondary education settings, where they also found like-minded people. They regarded accommodations as something good to have but not always useful, and their user experience and effectiveness varied.</p><p><strong>Conclusions: </strong>The findings highlight how autistic students can develop and thrive in postsecondary education. Recommendations are discussed for postsecondary institutions to create an accessible environment, provide enriching contexts, and support stakeholders to work with autistic students in ways that are conducive to their positive development. More research is needed to better understand how to support diverse autistic individuals in postsecondary institutions across different cultures.</p><p><strong>Abstract: </strong>Many autistic youths going into universities or colleges find postsecondary education challenging, but there are also successful cases who have positive experiences going through postsecondary education. We know very little about their positive and successful experiences.</p><p><strong>Abstract: </strong>This study aimed to explore the positive aspects of educational experiences in postsecondary education in autistic youths in Hong Kong.</p><p><strong>Abstract: </strong>We interviewed 30 autistic students studying in universities or colleges in Hong Kong about their experiences in postsecondary education. We specifically analyzed and highlighted the portion of interviews that described their positive experiences.</p><p><strong>Abstract: </strong>We found several themes that can describe the positive experiences of autistic students in postsecondary education in Hong Kong. Autistic students preferred the flexible teaching practices and free institution environments, especially compared with secondary school. Peers, fami
背景:自闭症学生在高等教育中可能会遇到不同的挑战和障碍,但许多人也经历了成长和积极的发展。人们对他们的高等教育经历的积极方面知之甚少,尤其是在非西方国家。方法:30名来自香港大专院校的自闭症学生参加了半结构化的个人访谈。我们要求他们描述他们在高等教育中的积极经历,包括他们的享受、难忘的事件、收获和积极的方面。我们使用主题分析来分析访谈数据。结果:我们确定了四个主要主题来描述自闭症学生在高等教育中的积极体验。自闭症学生描述了有效的教学策略和安排,可以促进他们的学习,并使高等教育环境比中学更受欢迎。他们在合适的位置找到了不同的支持者,包括同龄人、教育者和家庭成员。他们还通过参加高等教育机构提供的活动和学习经验来发展自己,在那里他们也找到了志同道合的人。他们认为住宿是有好处的东西,但并不总是有用的,他们的用户体验和有效性各不相同。结论:研究结果强调了自闭症学生如何在高等教育中发展和茁壮成长。讨论了对高等教育机构的建议,以创造一个无障碍的环境,提供丰富的背景,并支持利益相关者以有利于自闭症学生积极发展的方式与他们合作。需要更多的研究来更好地了解如何在不同文化的高等教育机构中支持不同的自闭症患者。摘要:许多自闭症青少年进入大学后都觉得接受高等教育很困难,但也有一些成功的案例,他们在接受高等教育方面有积极的经历。我们对他们积极成功的经历所知甚少。摘要:本研究旨在探讨香港自闭症青少年接受高等教育的积极方面。摘要:我们采访了30名在香港大学或学院就读的自闭症学生,了解他们在高等教育中的经历。我们特别分析并强调了描述他们积极经历的部分采访。摘要:我们找到了几个可以描述香港自闭症学生在高等教育中的积极经历的主题。与中学相比,自闭症学生更喜欢灵活的教学方式和自由的制度环境。支持、关心和理解自闭症学生的同龄人、家庭、教授和专业人士都对他们有帮助。有意义的参与其他大专学生特有的活动,可以促进自闭症学生的个人成长。他们也认为有学术住宿是件好事,尽管其效果尚不明确。摘要:我们对促进自闭症青少年积极发展的高等教育要素和因素有了更多的了解。这项研究强调了香港独有的文化因素,但也可为其他文化的专上院校提供参考。摘要:香港样本的研究结果可能不适用于其他文化或国家。在大学和社区学院的青年之间也可能存在亚组差异。摘要:本研究为自闭症学生获得成功并享受高等教育提供了积极的例子。自闭症青少年可以通过倡导满足他们的需要,支持他们的积极发展,为接受专上教育做好准备。
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引用次数: 0
Foreword: Special Issue on Autism and Postsecondary Education. 前言:自闭症与高等教育特刊。
Pub Date : 2025-04-03 eCollection Date: 2025-04-01 DOI: 10.1089/aut.2025.0010
David B Nicholas, Brett Ranon Nachman
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引用次数: 0
Longitudinal Relationships Between Depressive Attributional Style and Internalizing Symptoms in an Autism-Enriched Sample of Incoming College Students. 大学生孤独症患者抑郁归因方式与内化症状的纵向关系
Pub Date : 2025-04-03 eCollection Date: 2025-04-01 DOI: 10.1089/aut.2024.0090
Sydney R Terroso, Erin E McKenney, Steven M Brunwasser, Jared K Richards, Talena C Day, Bella Kofner, Rachel G McDonald, Kristen Gillespie-Lynch, Erin Kang, Matthew D Lerner, Katherine O Gotham

Background: Anxiety and depression are among the most common psychiatric conditions reported in first-year college students. Autistic adults are estimated to face double the rate of anxiety and depression compared with non-autistic peers, influencing quality of life, social success, and academic performance. One potential avenue to understand and address internalizing symptoms in autistic adults beginning their college careers is depressive attributional style, a biased causal explanatory style in which negative life events are attributed to internal, stable, and global causes. The current study evaluates the relationship between depressive attributional style and symptoms of anxiety and depression across the first semester of college, as moderated by autistic traits. We also explore baseline depressive attributional style across additional marginalized aspects of identity based on race/ethnicity, gender, and sexual orientation, and examine potential interaction effects of autistic traits on these relationships.

Methods: Undergraduate students were recruited from four northeastern universities. Our sample (n = 144) includes 47 participants who self-identified or reported a formal autism diagnosis, and 97 non-autistic participants. Participants completed baseline and endpoint questionnaires, as well as a 2-minute biweekly survey, tracking changes in sadness, anhedonia, and anxiety throughout their first semester.

Results: Longitudinal analyses demonstrate that elevated depressive attributional style at baseline predicted biweekly anxiety, sadness, and anhedonia symptoms across the semester. This pattern extended across (was not moderated by) levels of autistic traits, however, participants who reported higher autistic traits endorsed a significantly greater depressive attributional style at baseline, and greater anxiety, sadness, and anhedonia throughout the semester. The relationship between autistic traits and depressive attributional style was strongest for participants with a nonheterosexual orientation.

Conclusion: This study underscores the autistic community-identified need for mental health research, with attention to intersecting identities, and suggests depressive attributional style for further investigation as a potential treatment target.

Abstract: In the first year of college, many students face challenges with anxiety and depression. Autistic students report even higher mental health concerns than non-autistic students. One way to understand why this happens is by looking at how college students explain negative events in their lives. Autistic students may have a more depressive attributional style, in which they see themselves as a cause of negative events and believe that bad things will persist. This outlook is known to contribute to anxiety and depression.

Abstract: We wanted to see how a

背景:焦虑和抑郁是大学一年级学生中最常见的精神疾病。据估计,自闭症成年人的焦虑和抑郁率是非自闭症同龄人的两倍,这影响了他们的生活质量、社交成功和学习成绩。一种潜在的途径来理解和解决自闭症成年人开始他们的大学生涯的内化症状是抑郁归因风格,一种有偏见的因果解释风格,其中消极的生活事件归因于内部的,稳定的,和全局的原因。目前的研究评估了抑郁归因方式与大学第一学期焦虑和抑郁症状之间的关系,并由自闭症特征缓和。我们还探讨了基于种族/民族、性别和性取向的身份的其他边缘化方面的基线抑郁归因风格,并研究了自闭症特征对这些关系的潜在交互影响。方法:从东北四所高校招收本科生。我们的样本(n = 144)包括47名自我确认或报告正式自闭症诊断的参与者,以及97名非自闭症参与者。参与者完成了基线和终点调查问卷,以及每两周一次的2分钟调查,追踪他们在第一学期中悲伤、快感缺乏和焦虑的变化。结果:纵向分析表明,基线抑郁归因类型的升高预示着整个学期两周的焦虑、悲伤和快感缺乏症状。这种模式在自闭症特征的水平上延伸(没有被缓和),然而,报告自闭症特征较高的参与者在基线上有明显更大的抑郁归因风格,整个学期都有更大的焦虑、悲伤和快感缺乏。自闭症特征与抑郁归因风格之间的关系在非异性恋取向的参与者中最为明显。结论:本研究强调了自闭症社区对心理健康研究的需求,并建议进一步研究抑郁归因风格作为潜在的治疗目标。摘要:在大学的第一年,许多学生面临着焦虑和抑郁的挑战。自闭症学生报告的心理健康问题甚至比非自闭症学生更高。理解这种情况发生的一种方法是观察大学生如何解释他们生活中的负面事件。自闭症学生可能有一种更抑郁的归因风格,他们认为自己是负面事件的原因,并相信坏事会持续下去。众所周知,这种观点会导致焦虑和抑郁。摘要:我们想了解抑郁归因方式与大学第一学期焦虑和抑郁之间的关系,以及这是否受到自闭症特征和压力的影响。我们还研究了自闭症特征如何影响抑郁归因方式与基于种族/民族、性别和性取向的身份边缘化方面之间的关系。摘要:对大学生抑郁、焦虑的归因方式和经历进行问卷调查。参与者在大学第一学期前后都完成了几项调查。他们还在学期中每周完成两次简短的调查。摘要:本研究发现,抑郁归因风格与学生整个学期的抑郁和焦虑症状相关。自闭症特征水平较高的参与者在学期中表现出更抑郁的归因风格,以及更大的抑郁和焦虑。具有较高自闭症特征的LGBTQIA+个体比具有较高自闭症特征的异性恋个体更有可能具有更抑郁的归因风格。摘要:本研究有助于我们了解抑郁归因方式可能与自闭症和非自闭症学生的焦虑和抑郁有关。此外,抑郁的归因风格可能在自闭症患者中更常见。这些发现可能意味着,帮助人们培养对负面事件的适应性思维,有助于预防或治疗大学生的焦虑和抑郁。摘要:由于我们希望我们的研究对没有正式诊断的自闭症学生开放,因此我们无法在整个学期中研究自闭症的社会身份与焦虑和抑郁之间的关系。摘要:这些研究结果首次证明了抑郁归因方式可能与自闭症学生的焦虑和抑郁有关。 这表明,旨在解决非自闭症个体抑郁归因风格的干预措施也可能对自闭症个体有益,这可能有助于自闭症群体获得心理健康治疗。
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引用次数: 0
Autistic Students' Experiences of Employment and Employability Support while Studying at a UK University. 自闭症学生在英国大学学习期间的就业和就业能力支持经验。
Pub Date : 2025-04-03 eCollection Date: 2025-04-01 DOI: 10.1089/aut.2024.0112
Clive Trusson, Cheryl Travers
<p><strong>Background: </strong>Studying at a university can provide students with better opportunities of employment. However, autistic people are more likely to be unemployed after graduating than their non-autistic peers. Many university programs include integral internships/placements that require students to engage with the world of work including recruitment and selection processes. While it is known that autistic people often face difficulties in workplace settings generally, this study sought to explore how autistic students at a high-ranking UK university experienced work and employment processes and settings.</p><p><strong>Methods: </strong>We collected the reflections of 12 autistic students, who had been engaging with work and employment processes and work organizational settings during their time as university students, via an in-depth qualitative survey comprising 25 questions. This provided data that, via analysis, offer a composite subjective voice for autistic people receiving disability support services provided by universities.</p><p><strong>Results: </strong>We identified four key themes. First, the reflections of these autistic students revealed a confident awareness of skills/talents that their autism enabled them to offer to employers. Second, the analysis revealed that the support offered by the university to provide employability support to autistic students was bureaucratically structured such that it might be experienced as unhelpfully fractured. Third, autistic students often felt that support while working away from the university campus (e.g., on an internship/placement) was somewhat deficient. Fourth, the data revealed that autistic students can clearly articulate the deficiencies of the support provided to them and how those deficiencies might be addressed to enhance their employability skills and, by extension, their opportunities for success in the labor market.</p><p><strong>Conclusions: </strong>Autistic students would benefit from their universities adopting a more holistic approach to supporting them by engaging with (potential) employers and coworkers. Specifically, there is a need for university disability support workers to develop their knowledge and skills in careers and employability matters. They should aim to develop these to a level similar to that of university careers support workers. There is also a need for autistic students to be better supported while away from campus at a work placement.</p><p><strong>Abstract: </strong>Autistic people often face discrimination in the workplace. More autistic people are going to university and may study on a program that has a work internship built in, requiring them to compete in recruitment and selection processes that are known to be problematic for many autistic people. While universities offer support to autistic students, it is not well known how that support is experienced in relation to employability skills development and while working as an intern.</
背景:在大学学习可以为学生提供更好的就业机会。然而,与非自闭症同龄人相比,自闭症患者在毕业后更有可能失业。许多大学课程都包括完整的实习/安置,要求学生参与包括招聘和选拔过程在内的工作世界。众所周知,自闭症患者通常在工作环境中面临困难,这项研究试图探索英国一所高级大学的自闭症学生如何经历工作和就业过程和环境。方法:通过25个问题的深度定性调查,收集了12名在大学期间参与工作和就业过程以及工作组织环境的自闭症学生的反思。这提供了数据,通过分析,为接受大学提供的残疾支持服务的自闭症患者提供了一个综合的主观声音。结果:我们确定了四个关键主题。首先,这些自闭症学生的反思揭示了他们对自己的技能/才能的自信意识,这些技能/才能使他们能够向雇主提供。其次,分析显示,大学为自闭症学生提供的就业支持是官僚主义的,以至于它可能会被体验为无益的断裂。第三,自闭症学生经常感到在大学校园之外工作时(例如,实习/安置)得到的支持有些不足。第四,数据显示,自闭症学生能够清楚地表达为他们提供的支持的不足之处,以及如何解决这些不足之处,以提高他们的就业技能,进而提高他们在劳动力市场上取得成功的机会。结论:自闭症学生将受益于他们的大学采用更全面的方法,通过与(潜在的)雇主和同事接触来支持他们。具体来说,大学残疾人支持工作者需要发展他们在职业和就业方面的知识和技能。他们的目标应该是把这些人发展到与大学职业支持工作者相似的水平。自闭症学生在校外实习期间也需要得到更好的支持。摘要:自闭症患者在职场中经常面临歧视。越来越多的自闭症患者正在上大学,可能会学习一个内置实习的项目,这就要求他们在招聘和选拔过程中竞争,这对许多自闭症患者来说是一个问题。虽然大学为自闭症学生提供支持,但人们并不清楚这种支持是如何与就业技能发展和实习工作联系起来的。摘要:本研究旨在了解自闭症学生申请工作的经历,包括实习和工作。它还旨在展示自闭症学生对未来职业的看法。本研究的另一个目的是为大学提供自闭症学生在就业能力和就业方面的支持提供建议。摘要:我们编制了一份包含25个问题的深度调查,并将其分发给英国一所大学所有接受残疾支持的自闭症学生。12名自闭症学生回答了问题,他们提供了一组关于就业技能发展、就业经历、获得的支持以及他们希望得到的支持的真实证词。摘要:自闭症学生对自己能为组织提供的技能和才能有信心。自闭症学生还报告说,大学提供的就业和就业能力支持往往是支离破碎的。这是因为不同的支持团队提供不同类型的支持。自闭症学生还觉得,当他们在大学校园外实习时,得到的支持有些不足。自闭症学生清楚地表达了大学如何更好地为他们提供支持。例如,作为自闭症患者,他们可能会在准备面试方面得到特别的支持,也可能会在管理工作场所的焦虑方面得到很好的建议。摘要:虽然之前的研究表明,自闭症学生通常受益于大学里的单点支持,但这项研究强调,当涉及到求职和学生就业时的支持时,尤其是在校外工作时,这一点尤为重要。摘要:我们的研究仅限于来自英国一所高收费大学的自闭症学生。 因此,他们可能不能完全代表其他大学和其他国家的学生,这些国家对自闭症患者有不同的残疾支持系统和就业保护。摘要:研究结果将有助于高校改善对自闭症学生的残疾支持服务。研究结果表明,大学需要采用更全面的服务,更关注自闭症学生的个人就业和就业能力需求。通过采纳建议,更好地支持自闭症学生找工作和在职,自闭症学生在离开大学时更有可能找到合适和充实的工作。
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引用次数: 0
Elevated Suicidal Thoughts and Behaviors and Nonsuicidal Self-Injury in Autistic Youth and Adults: A Multinational Study. 自闭症青少年和成人的自杀想法、行为和非自杀自伤:一项跨国研究。
Pub Date : 2025-03-13 DOI: 10.1089/aut.2024.0225
Jessica M Schwartzman, Carly A McMorris, Claire M Brown, Julian N Trollor, Mirko Uljarević, Mark A Stokes, Zachary J Williams, Darren Hedley

Background: Autistic people are at significant risk for suicidal thoughts and behaviors (STBs) and nonsuicidal self-injury (NSSI). We examined STB and NSSI in different age-groups, considering sex- and age-based effects, in a pooled multinational sample of English-speaking autistic children and adults.

Methods: We administered the Columbia-Suicide Severity Rating Scale to 245 autistic people without intellectual disability (139 youth and 106 adults; 46.1% female sex; M age = 24.8, SD age = 16.3 years, range = 7-70) or their caregivers in Australia, Canada, and the United States. The study samples were enriched with autistic people experiencing depression and suicidality.

Results: Most participants (87.8%) reported suicidal ideation and NSSI (56.3%). Nearly one-third of autistic people (31.0%) reported a lifetime suicide attempt (M = 2.9 attempts; range = 1-26); overdosing was the most common method of suicide attempt. Sex was not a significant risk factor for suicidal ideation, behavior, or NSSI. Increases in lifetime suicidal ideation were observed across older age-groups, with those aged over 18 years reporting more severe and longer-lasting ideation than in children or adolescents. The youngest age of suicide attempt was 7 years in this sample, and the average ages of first/initial, most lethal, and most recent suicide attempts in youth (n = 24) and adults (n = 42) were 16.6, 19.2, and 20.8 years old, respectively.

Conclusion: Regardless of age-group, autistic people across the lifespan constitute a high-priority group for suicide prevention strategies, development of appropriate assessments, and evaluation of system-level programs that effectively address the problem of preventable death by suicide.

背景:自闭症患者有显著的自杀念头和行为(STBs)以及非自杀性自伤(NSSI)风险。我们研究了不同年龄组的STB和自伤,考虑了基于性别和年龄的影响,在讲英语的自闭症儿童和成人的多国样本中。方法:采用哥伦比亚自杀严重程度评定量表对来自澳大利亚、加拿大和美国的245名无智力障碍的自闭症患者(139名青少年和106名成年人,46.1%为女性,M年龄= 24.8岁,SD年龄= 16.3岁,范围= 7-70岁)或其照顾者进行评估。研究样本中有很多患有抑郁症和自杀倾向的自闭症患者。结果:大多数参与者(87.8%)报告有自杀意念和自伤(56.3%)。近三分之一的自闭症患者(31.0%)报告称一生中有过自杀企图(M = 2.9次,范围= 1-26次);过量服用是最常见的自杀方式。性并不是自杀意念、行为或自伤的重要危险因素。在年龄较大的年龄组中观察到终生自杀意念的增加,18岁以上的人报告的自杀意念比儿童或青少年更严重,持续时间更长。该样本中最年轻的自杀企图年龄为7岁,青少年(n = 24)和成人(n = 42)第一次/初次、最致命和最近一次自杀企图的平均年龄分别为16.6岁、19.2岁和20.8岁。结论:无论哪个年龄段,自闭症患者在整个生命周期中都是自杀预防策略、适当评估的发展和有效解决可预防的自杀死亡问题的系统级项目的评估的高优先级群体。
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引用次数: 0
Guidelines for the Creation of Accessible Consent Materials and Procedures: Lessons from Research with Autistic People and People with Intellectual Disability. 创建无障碍同意材料和程序的指南:来自自闭症患者和智力残疾者研究的经验教训。
Pub Date : 2025-02-19 DOI: 10.1089/aut.2024.0263
Kelly B Beck, Kristen T MacKenziem, Anne V Kirby, Katherine McDonald, Ian Moura, Kaitlyn Breitenfeldt, Elizabeth Rutenberg, Tanvi Kumar, Juliet Mancino, Maya Sabatello, Shannon Roth, Christina Nicolaidis

Informed, voluntary, ongoing consent is a central tenet of ethical research. However, consent processes are prone to exclusionary practices and inaccessibility. Consent materials are often too long and complex to foster understanding and ensure that people make truly informed decisions to participate in research. While this complexity is problematic for all people, these challenges are compounded for autistic people and people with intellectual disability. Consent materials and procedures rarely incorporate accommodations for processing and communication differences common in autism and intellectual disability. Failure to provide such accommodations ultimately threatens the conduct of ethical research. We describe lessons learned across multiple major U.S. research institutions that improved informed consent materials and procedures, with the goal of fostering responsible inclusion in research for autistic people and people with intellectual disability. We used these alternative materials and procedures in multiple research projects with samples of autistic people and people with intellectual disability. Each contributing team partnered with university human research participant protections personnel, accessibility experts, community members, and researchers to develop rigorous procedures for improving the readability and accessibility of informed consent materials. We present guidelines for designing consent materials and procedures and assert that participatory methods are vital to the success of ongoing accessibility initiatives. Adoption of understandable consent materials and accessible consent procedures can cultivate more equitable, respectful, and inclusive human research practices. Future work should expand on this work to design inclusive practices for populations with additional considerations.

知情、自愿、持续的同意是伦理研究的核心原则。然而,同意过程容易出现排他性做法和不可访问性。同意材料往往太长太复杂,无法促进理解,也无法确保人们做出真正知情的决定来参与研究。虽然这种复杂性对所有人来说都是一个问题,但对于自闭症患者和智力残疾者来说,这些挑战更加复杂。同意材料和程序很少考虑到自闭症和智力残疾中常见的处理和沟通差异。如果不能提供这样的便利,最终会威胁到伦理研究的开展。我们描述了美国多个主要研究机构的经验教训,这些机构改进了知情同意材料和程序,目标是促进对自闭症患者和智障人士的研究负责任的包容。我们在多个研究项目中使用了这些替代材料和程序,其中包括自闭症患者和智障人士的样本。每个贡献团队都与大学人类研究参与者保护人员、无障碍专家、社区成员和研究人员合作,制定了严格的程序,以提高知情同意材料的可读性和可及性。我们提出了设计同意材料和程序的指导方针,并断言参与式方法对正在进行的无障碍倡议的成功至关重要。采用可理解的同意材料和可理解的同意程序可以培养更公平、尊重和包容的人类研究实践。今后的工作应在此基础上进行扩展,在考虑其他因素的情况下为人口设计包容性做法。
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引用次数: 0
Development and Initial Validation of the Autism and Neurodiversity Attitudes Scale. 自闭症与神经多样性态度量表的开发与初步验证。
Pub Date : 2025-02-05 eCollection Date: 2025-02-01 DOI: 10.1089/aut.2023.0090
Rachel A VanDaalen, Frank R Dillon, Carlos E Santos, Cristalis Capielo Rosario

Background: Drawn from aspects of the autistic self-advocacy movement, the neurodiversity movement is a conceptual framework and sociopolitical movement that views neurological differences and disabilities (e.g., autism) as natural human variations that can form a central component of one's identity. This study presents the development and validation of a scale to assess endorsement of neurodiversity beliefs with respect to autism among both autistic and nonautistic adults.

Methods: Diverse samples of adults were utilized to conduct exploratory (N = 249) and confirmatory (N = 259) factor analyses, resulting in a 17-item second-order three-factor model that demonstrated adequate evidence of reliability and validity.

Results: The three factors consisted of Autism Anti-Stigma, Autism Permanence, and Autism as Difference. Additional analyses of measurement validity revealed that endorsement of the neurodiversity framework is positively correlated with sociopolitical engagement, and that endorsement of the neurodiversity framework is negatively correlated with negative attitudes toward people with disabilities. Self-identified autistic adults endorsed the neurodiversity framework to a greater extent than nonautistic adults.

Conclusion: The validity results are congruent with the historical roots of the neurodiversity movement and the attitudes endorsed by many autistic adults. Given the factor structure and reliability results, researchers can use this scale to assess neurodiversity-affirming attitudes as a unitary construct or can use the anti-stigma subscale to assess stigma-related attitudes toward autism. This scale has utility for researchers that seek to understand and promote well-being in autistic adults, as well as research related to potential support systems in the lives of autistic adults. It can also be used to increase self-understanding among autistic individuals and allies, as this scale can be used for both autistic and nonautistic adults.

背景:神经多样性运动是一个概念框架和社会政治运动,它将神经差异和残疾(如自闭症)视为自然的人类变异,可以形成一个人身份的核心组成部分。本研究提出了一个量表的开发和验证,以评估自闭症和非自闭症成年人对自闭症神经多样性信念的认可。方法:利用不同成人样本进行探索性因子分析(N = 249)和验证性因子分析(N = 259),得到17项二阶三因子模型,具有足够的信度和效度证据。结果:自闭症抗污名化、自闭症持久性和自闭症差异性三个因素。对测量效度的进一步分析表明,神经多样性框架的认可与社会政治参与呈正相关,而神经多样性框架的认可与对残疾人的消极态度呈负相关。自认为患有自闭症的成年人比非自闭症的成年人在更大程度上支持神经多样性框架。结论:效度结果与神经多样性运动的历史根源和许多自闭症成年人所认可的态度是一致的。考虑到因子结构和信度结果,研究人员可以使用该量表作为一个统一的结构来评估神经多样性肯定态度,也可以使用反污名子量表来评估对自闭症的污名相关态度。该量表对研究人员了解和促进自闭症成年人的福祉,以及研究自闭症成年人生活中潜在的支持系统有实用价值。它也可以用来增加自闭症个体和盟友之间的自我理解,因为这个量表可以用于自闭症和非自闭症的成年人。
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Autism in adulthood : challenges and management
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