Julia Frost, Samantha Barbara van Beurden, Jess C Bollen, Valerie Wells, Colin Greaves, Chim Lang, Rod Taylor
Aims: To understand the self-management experiences of people with heart failure with preserved ejection fraction (HFpEF), their caregivers and the health care professionals (HCPs) who support them.
Methods and results: A systematic review of qualitative and mixed methods literature, published to July 2023. 4560 abstracts describing patients, caregivers, and HCPs experiences of self-management strategies for HFpEF were identified and screened. Of the 349 full texts identified we included seven papers from three data sources (in 47 patients, 81 caregivers, 129 HCPs) in our final dataset. Key theories, methods and results were extracted, reviewed and synthesised using meta-study techniques.We identified that HFpEF is difficult for HCPs to diagnose and difficult for patients and their caregivers to understand. Patients and caregivers can struggle to access support, which can lead to a 'cycle of decline' over time in patients' outcomes /quality of life. However, self-management can be optimised with adequate support, when the burdens of understanding HFpEF and self-management are acknowledged, when personalised goals are set, and feedback is provided to optimise individualised self-management.
Conclusion: The limited capacity of HCPs to support HFpEF patients and caregivers to develop effective self-management understanding and practice can lead to disempowerment and loss of control. Tailored interventions are required to maximise HCP enablement of patients and their caregivers to develop flexible and sustainable self-management strategies. Future research must specify and evaluate the skillset that HCPs require to provide individualised care that is tailored to the holistic needs of people self-managing HFpEF within the local care context.
{"title":"Understanding the self-management experiences of people with heart failure with preserved ejection fraction (HFpEF), their caregivers and the health care professionals who support them: Systematic review and qualitative meta-study.","authors":"Julia Frost, Samantha Barbara van Beurden, Jess C Bollen, Valerie Wells, Colin Greaves, Chim Lang, Rod Taylor","doi":"10.12968/bjca.2024.0084","DOIUrl":"10.12968/bjca.2024.0084","url":null,"abstract":"<p><strong>Aims: </strong>To understand the self-management experiences of people with heart failure with preserved ejection fraction (HFpEF), their caregivers and the health care professionals (HCPs) who support them.</p><p><strong>Methods and results: </strong>A systematic review of qualitative and mixed methods literature, published to July 2023. 4560 abstracts describing patients, caregivers, and HCPs experiences of self-management strategies for HFpEF were identified and screened. Of the 349 full texts identified we included seven papers from three data sources (in 47 patients, 81 caregivers, 129 HCPs) in our final dataset. Key theories, methods and results were extracted, reviewed and synthesised using meta-study techniques.We identified that HFpEF is difficult for HCPs to diagnose and difficult for patients and their caregivers to understand. Patients and caregivers can struggle to access support, which can lead to a 'cycle of decline' over time in patients' outcomes /quality of life. However, self-management can be optimised with adequate support, when the burdens of understanding HFpEF and self-management are acknowledged, when personalised goals are set, and feedback is provided to optimise individualised self-management.</p><p><strong>Conclusion: </strong>The limited capacity of HCPs to support HFpEF patients and caregivers to develop effective self-management understanding and practice can lead to disempowerment and loss of control. Tailored interventions are required to maximise HCP enablement of patients and their caregivers to develop flexible and sustainable self-management strategies. Future research must specify and evaluate the skillset that HCPs require to provide individualised care that is tailored to the holistic needs of people self-managing HFpEF within the local care context.</p>","PeriodicalId":72463,"journal":{"name":"British journal of cardiac nursing","volume":"20 6","pages":"1-30"},"PeriodicalIF":0.0,"publicationDate":"2025-06-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7617877/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144585755","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
This patient story is the fourth instalment of Karl Perry's series, reflecting on his journey with cardiac disease. In this article, Karl describes the process of recovery after an out-of-hospital cardiac arrest, including the highs and lows of his physical and mental journey.
{"title":"The road to recovery: bumpy, but worth it","authors":"Karl Perry","doi":"10.12968/bjca.2024.0051","DOIUrl":"https://doi.org/10.12968/bjca.2024.0051","url":null,"abstract":"This patient story is the fourth instalment of Karl Perry's series, reflecting on his journey with cardiac disease. In this article, Karl describes the process of recovery after an out-of-hospital cardiac arrest, including the highs and lows of his physical and mental journey.","PeriodicalId":72463,"journal":{"name":"British journal of cardiac nursing","volume":"31 8","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-08-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141928597","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
This patient story is the third instalment of Karl Perry’s series, reflecting on his journey with cardiac disease. In this article, he recounts his experience of an out-of-hospital cardiac arrest, and how this has affected his perspective on life after discharge from hospital.
{"title":"The opportunity of a second life","authors":"Karl Perry","doi":"10.12968/bjca.2024.0035","DOIUrl":"https://doi.org/10.12968/bjca.2024.0035","url":null,"abstract":"This patient story is the third instalment of Karl Perry’s series, reflecting on his journey with cardiac disease. In this article, he recounts his experience of an out-of-hospital cardiac arrest, and how this has affected his perspective on life after discharge from hospital.","PeriodicalId":72463,"journal":{"name":"British journal of cardiac nursing","volume":"2 2","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-05-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141108354","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Sheila O'Keefe-McCarthy, Rosalie Magboo, Rafaela Pedrosa, Jill Bruneau, Suzanne Fredericks, Richard van Valen, Yingyan Chen, Karen L Then
CONNECT is an international virtual research network aiming to strengthen collaborative research across cardiac surgery. This is the second in a series of five articles that introduces CONNECT mentorship.
{"title":"Using an international research network to CONNECT through mentorship experiences in cardiothoracic surgical research","authors":"Sheila O'Keefe-McCarthy, Rosalie Magboo, Rafaela Pedrosa, Jill Bruneau, Suzanne Fredericks, Richard van Valen, Yingyan Chen, Karen L Then","doi":"10.12968/bjca.2024.0018","DOIUrl":"https://doi.org/10.12968/bjca.2024.0018","url":null,"abstract":"CONNECT is an international virtual research network aiming to strengthen collaborative research across cardiac surgery. This is the second in a series of five articles that introduces CONNECT mentorship.","PeriodicalId":72463,"journal":{"name":"British journal of cardiac nursing","volume":"35 7","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-04-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140670946","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
In recognition of this year's heart failure awareness days, taking place between 29 April and 5 May, Nasa‑Marie Wright presents a case study of suspected heart failure in a primary care setting and suggests recommendations for improving diagnosis and management.
{"title":"Heart failure awareness days: heart failure in primary care","authors":"Nasa-Marie Wright","doi":"10.12968/bjca.2024.0024","DOIUrl":"https://doi.org/10.12968/bjca.2024.0024","url":null,"abstract":"In recognition of this year's heart failure awareness days, taking place between 29 April and 5 May, Nasa‑Marie Wright presents a case study of suspected heart failure in a primary care setting and suggests recommendations for improving diagnosis and management.","PeriodicalId":72463,"journal":{"name":"British journal of cardiac nursing","volume":"82 2","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-04-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140713559","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Sarah Jane Palmer outlines a recent study that developed and tested a tool that uses machine learning to predict and display patients’ risk following percutaneous coronary intervention.
莎拉-简-帕尔默（Sarah Jane Palmer）概述了最近的一项研究，该研究开发并测试了一种利用机器学习预测和显示经皮冠状动脉介入治疗后患者风险的工具。
{"title":"A new model to predict complex risk following percutaneous coronary intervention","authors":"Sarah Jane Palmer","doi":"10.12968/bjca.2024.0016","DOIUrl":"https://doi.org/10.12968/bjca.2024.0016","url":null,"abstract":"Sarah Jane Palmer outlines a recent study that developed and tested a tool that uses machine learning to predict and display patients’ risk following percutaneous coronary intervention.","PeriodicalId":72463,"journal":{"name":"British journal of cardiac nursing","volume":"75 1‐2","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-03-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140223085","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
In order to meet the goal of the 25in25 initiative to reduce heart failure mortality by 25% in the next 25 years, Edith Donnelly calls on health professionals in Northern Ireland to rise up to the challenge and play their part in improving heart failure care.
{"title":"Fighting heart failure in Northern Ireland: are we up to the challenge?","authors":"Edith Donnelly","doi":"10.12968/bjca.2024.0014","DOIUrl":"https://doi.org/10.12968/bjca.2024.0014","url":null,"abstract":"In order to meet the goal of the 25in25 initiative to reduce heart failure mortality by 25% in the next 25 years, Edith Donnelly calls on health professionals in Northern Ireland to rise up to the challenge and play their part in improving heart failure care.","PeriodicalId":72463,"journal":{"name":"British journal of cardiac nursing","volume":"9 4","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-03-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140222174","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Andrew Woods, S. Tovey, Jennifer McGurk, Shishir Kore, Ewa Synowiec, Justin Mulhern, Sophie Smith, Joao Sequeira, Oscar Fernandez, Adam McDiarmid, Asif Shah, Stephan Scheuler, Guy MacGowan
Left ventricular assist devices are used to improve the quality of life of people waiting for heart transplantation. Driveline infections are a significant complication of these devices, occurring in 30–40% of cases, which could lead to life threatening sepsis. This study aimed to review UK driveline dressing protocols and infection rates to determine if national standardisation is possible. Six UK heart transplant centres were asked to share their driveline dressing protocols for comparison. National driveline infection data were obtained from the NHS Blood and Transplant database. Infection rates, patient demographics and device types were compared using Chi squared tests, with a P value of <0.05 indicating statistical significance. The study found 38 driveline infections over a 3-year period, with an average infection rate was 4.4% per year. There were no significant difference in infection rates between device types. Dressing protocols varied between centres, but all centres followed international guidance. The timepoint where the highest number of infections were diagnosed was 12 months post implantations, accounting for 23.7% of infections. There were no significant differences in infection rates between centres in 2019–20 or 2021–22, but a significant difference was observed for 2020–21 (P=0.013). UK driveline infection rates are below the average reported in the literature. Despite some differences in dressing protocols, all centres examined in this study maintained a level of infection comparable to reported rates. The feasibility of national standardisation remains uncertain, and further research is needed to determine the most effective dressing protocols for preventing driveline infections.
{"title":"An evaluation of driveline dressing protocols and infection rates for left ventricular assist devices across UK transplant centres","authors":"Andrew Woods, S. Tovey, Jennifer McGurk, Shishir Kore, Ewa Synowiec, Justin Mulhern, Sophie Smith, Joao Sequeira, Oscar Fernandez, Adam McDiarmid, Asif Shah, Stephan Scheuler, Guy MacGowan","doi":"10.12968/bjca.2023.0044","DOIUrl":"https://doi.org/10.12968/bjca.2023.0044","url":null,"abstract":"Left ventricular assist devices are used to improve the quality of life of people waiting for heart transplantation. Driveline infections are a significant complication of these devices, occurring in 30–40% of cases, which could lead to life threatening sepsis. This study aimed to review UK driveline dressing protocols and infection rates to determine if national standardisation is possible. Six UK heart transplant centres were asked to share their driveline dressing protocols for comparison. National driveline infection data were obtained from the NHS Blood and Transplant database. Infection rates, patient demographics and device types were compared using Chi squared tests, with a P value of <0.05 indicating statistical significance. The study found 38 driveline infections over a 3-year period, with an average infection rate was 4.4% per year. There were no significant difference in infection rates between device types. Dressing protocols varied between centres, but all centres followed international guidance. The timepoint where the highest number of infections were diagnosed was 12 months post implantations, accounting for 23.7% of infections. There were no significant differences in infection rates between centres in 2019–20 or 2021–22, but a significant difference was observed for 2020–21 (P=0.013). UK driveline infection rates are below the average reported in the literature. Despite some differences in dressing protocols, all centres examined in this study maintained a level of infection comparable to reported rates. The feasibility of national standardisation remains uncertain, and further research is needed to determine the most effective dressing protocols for preventing driveline infections.","PeriodicalId":72463,"journal":{"name":"British journal of cardiac nursing","volume":"14 9","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-03-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140240685","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Expanding virtual wards for patients with heart failure: the need for digital equity","authors":"Sarah Jane Palmer","doi":"10.12968/bjca.2023.0094","DOIUrl":"https://doi.org/10.12968/bjca.2023.0094","url":null,"abstract":"","PeriodicalId":72463,"journal":{"name":"British journal of cardiac nursing","volume":"49 5","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-12-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139003765","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"World AIDS Day 2023: understanding the interconnected challenges of HIV and cardiovascular disease","authors":"L. Neubeck","doi":"10.12968/bjca.2023.0091","DOIUrl":"https://doi.org/10.12968/bjca.2023.0091","url":null,"abstract":"In this article, Lis Neubeck discusses the link between human immunodeficiency virus and cardiovascular disease risk for World AIDS Day 2023.","PeriodicalId":72463,"journal":{"name":"British journal of cardiac nursing","volume":"71 12","pages":""},"PeriodicalIF":0.0,"publicationDate":"2023-12-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139004581","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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