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The effect of the use of sterile transparent film dressing on the catheter dwell time and the development of catheter-related complications in newborns: Randomized clinical trial 使用无菌透明膜敷料对新生儿导管停留时间及导管相关并发症发生的影响:随机临床试验
Pub Date : 2025-04-01 Epub Date: 2025-02-16 DOI: 10.1016/j.enfcle.2025.102147
Müjde Çalıkuşu İncekar , Suzan Yıldız , Yağmur Gül , Ozan Uzunhan

Objective

The aim of this study was to evaluate the effect of sterile transparent film dressing and tape dressing used in peripheral intravenous catheter application in newborns on the catheter dwell time and the development of catheter-related complications.

Methods

The study was conducted in the neonatal intensive care unit of a hospital as a randomized controlled trial design. This study was conducted with the group that sterile transparent film dressing and the group that tape dressing methods. Data were collected using newborn follow-up forms, the Infiltration Scale and Phlebitis Scale.

Results

There was no statistically significant difference between the two groups referring to the signs of extravasation, phlebitis, and occlusion in newborns related to the catheter dwell time and catheter-related complications (p > 0.05). The scores and signs of infiltration were higher in the tape dressing group (p < 0.05).

Conclusion

The use of a sterile transparent film dressing reduces tissue infiltration in neonates with peripheral intravenous catheters. It is recommended that health care professionals working in neonatal intensive care units use sterile transparent film dressings to dress peripheral intravenous catheters.
目的:探讨新生儿外周静脉置管应用无菌透明膜敷料和胶带敷料对置管停留时间及置管相关并发症发生的影响。方法:本研究采用随机对照试验设计,在某医院新生儿重症监护病房进行。本研究采用无菌透明膜敷料组和胶带敷料组进行。采用新生儿随访表、浸润量表和静脉炎量表收集数据。结果:两组新生儿导管外渗、静脉炎、阻塞等体征与导管停留时间及导管相关并发症相关,差异无统计学意义(p < 0.05)。结论:使用无菌透明膜敷料可减少外周静脉留置新生儿的组织浸润。建议在新生儿重症监护病房工作的卫生保健专业人员使用无菌透明膜敷料包扎外周静脉导管。
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引用次数: 0
Validation in Spanish of the GAIN instrument for its application in caregivers of patients with multimorbidity in the home environment 西班牙语验证增益仪器在家庭环境中多行动病人护理人员中的应用。
Pub Date : 2025-04-01 Epub Date: 2025-04-25 DOI: 10.1016/j.enfcle.2025.102152
Remedios Reina Campos , José Miguel Morales Asencio , M. Rosa Iglesias Parra , Marina García Gámez

Objective

Validation of the informal care gains scale available in Spanish to extend it to a version for caregivers of patients with multimorbidity at home.

Method

Psychometric validation study in family caregivers of people with multimorbidity in home care. Content validation was carried out using a panel of experts and the Delphi technique and subsequent empirical validation in a sample of family caregivers of patients with multimorbidity in home care.

Results

PHASE I: 3 of the 10 items were modified to specify the study population. PHASE II: A total of 227 subjects, with a median age of 84 years in patients and 59 years in family caregivers. 78.9% of the caregivers were women. The reliability analysis offered McDonald's omega values of .82, with an average inter-item correlation of .41. The test-retest reliability offered a value of .95. The bifactor structure obtained a good fit: RMSEA of .08 (90% CI .06–.11), TLI .88, explaining 40.6% of the variance. The instrument showed discriminative capacity between caregivers based on overload (p < .001).

Conclusions

The GAIN scale is a valid and reliable instrument for measuring the gains of family caregivers of people with multimorbidity in home care. It is easy to use and allows you to understand what factors to enhance in caregivers to preserve their resilience during the process.
目的:验证西班牙语的非正式护理收益量表,将其扩展到家庭中多重疾病患者护理人员的版本。方法:对多病家庭护理人员进行心理测量验证研究。使用专家小组和德尔菲技术进行内容验证,并随后在家庭护理中患有多种疾病的患者的家庭护理人员样本中进行实证验证。结果:第一阶段:10项中的3项被修改以指定研究人群。ii期:共有227名受试者,患者中位年龄为84岁,家庭护理者中位年龄为59岁。78.9%的护理人员为女性。信度分析得出麦当劳的omega值为0.82,平均项目间相关系数为0.41。重测信度为0.95。双因子结构获得了很好的拟合:RMSEA为0.08 (90% CI为0.06至0.11),TLI为0.88,解释了40.6%的方差。结论:GAIN量表是一种有效、可靠的测量多重疾病家庭照护中家庭照护者收益的工具。它易于使用,并允许您了解在护理人员中增强哪些因素以保持他们在此过程中的恢复力。
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引用次数: 0
Factors associated with the success of a prompted voiding programme for restoring urinary continence upon discharge among hospitalised older adults: Pilot study 住院老年人出院后恢复尿失禁的提示排尿方案成功的相关因素:初步研究
Pub Date : 2025-04-01 Epub Date: 2025-06-05 DOI: 10.1016/j.enfcle.2025.102139
Laura Martín-Losada , Montserrat Solís-Muñoz , Cristina González-Blázquez , María del Pilar Serrano-Gallardo , Ana Isabel Parro-Moreno

Aim

To assess the success of a prompted voiding programme for restoring urinary continence at discharge among older adults hospitalized. To identify associated factors with the recovery of urinary continence.

Methods

A quasi-experimental, pre-/post-intervention, without control group study was conducted. Participants were aged 65 and over with a history of urinary incontinence less than one year of current from the Functional Recovery Unit of Guadarrama Hospital throughout a convenience sampling. Patients were on a prompted voiding programme throughout their hospitalisation, individualizing for a voiding diary. Data were collected from October 2019 to March 2020. A descriptive, pre-post intervention, prediction and logistic regression analysis were conducted using SPSS 25 and STATA 15 software. The study was approved by the reference Ethics Committee.

Results

57 patients were included, 86% of them were female (n = 49) who were 82.1 age mean (SD = 9.4). The 56.1% (n = 32) experienced new-onset mixed urinary incontinence and the mean hospital stay was 40.5 (SD:14.7) days. 35.1% (n = 20) achieved urinary continence and reduced the number of urine leaks in those patients who remained incontinent upon discharge (P ≤ .001). Factors associated with the recovery of urinary continence were functional ability upon discharge (P < .001), frequency of the episodes of urinary incontinence on admission (P ≤ .001), frequency of toilet use on admission (P ≤ .001), lessened hospital stays (P = .041), reduction of the risk of the appearance of pressure wounds (P ≤ .001).

Conclusion

Prompted voiding has been shown to be effective in restoring urinary continence in more than a third of the patients studied. Having better functional ability and more frequency of toilet use on admission were associated with the programme’s success. It prevents skin wounds and reduces dependency level.
目的:评估提示排尿方案在老年人住院出院时恢复尿失禁的成功。目的:探讨尿失禁恢复的相关因素。方法:采用准实验、干预前/干预后、无对照组研究。参与者年龄在65岁及以上,在瓜达拉玛医院功能恢复科有尿失禁史,目前不到一年。患者在整个住院期间都在进行提示排尿计划,个体化排尿日记。数据收集时间为2019年10月至2020年3月。采用SPSS 25和STATA 15软件进行描述性、干预前后、预测和logistic回归分析。该研究得到了参考伦理委员会的批准。结果:纳入57例患者,女性占86% (n = 49),平均年龄82.1岁(SD = 9.4)。56.1% (n = 32)出现新发混合性尿失禁,平均住院时间为40.5 (SD:14.7)天。35.1% (n = 20)的患者出院后尿失禁,漏尿次数减少(p≤0.001)。与尿失禁恢复相关的因素是出院时的功能能力(p)。结论:提示排尿已被证明对超过三分之一的患者的尿失禁恢复有效。有更好的功能能力和更频繁的上厕所与该计划的成功有关。防止皮肤损伤,降低依赖性。
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引用次数: 0
New challenges: Advanced nurse practitioners and genomics in personalised, precision-based care for cancer patients 新的挑战:先进的护士从业人员和基因组学在个性化,精确的癌症患者护理
Pub Date : 2025-03-01 Epub Date: 2025-04-11 DOI: 10.1016/j.enfcle.2025.502218
Celia Diez de los Ríos de la Serna , Paz Fernández-Ortega
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引用次数: 0
Exploring the relationship between spiritual well-being and respect for patient privacy among nurses and midwives in Turkey 探索精神健康和尊重病人隐私之间的关系护士和助产士在土耳其。
Pub Date : 2025-03-01 Epub Date: 2025-02-15 DOI: 10.1016/j.enfcle.2025.502162
Kemal Macit Hisar , Sabriye Uçan Yamaç

Objective

The aim of this study was to examine the relationship between of nurses and midwives spiritual well-being and respect for patient privacy.

Methods

The target population of this descriptive research consisted of nurses and midwives employed in healthcare institutions in a district located in the Mediterranean Region of Turkey. The data were collected from 494 nurses and midwives between January 18 and April 29, 2022 using a demographic information form, the Spiritual Well-Being Scale, and the Patient Privacy Scale.

Results

The sample consisted of 494 participants, 422 (85.4%) females and 72 (14.6%) males. The findings revealed that the midwives had significantly higher levels of respect for patient privacy and spiritual well-being than the nurses. Moreover, the participants’ spiritual well-being and respect for patient privacy were positively correlated with age and clinical experience but negatively associated with weekly working hours.

Conclusions

In light of these findings, increasing midwives’ and nurses’ awareness of spiritual well-being and patient privacy through formal education, in-service training, drama activities, and case analyses can contribute to improving the quality of care. In further research, it may be recommended to evaluate the perceptions, opinions and practices of midwives and nurses regarding patient privacy and spiritual well-being.
目的:本研究的目的是探讨护士和助产士的精神幸福感与尊重病人隐私的关系。方法:本描述性研究的目标人群包括在位于土耳其地中海地区的一个地区的医疗机构工作的护士和助产士。这些数据是在2022年1月18日至4月29日期间从494名护士和助产士中收集的,使用人口统计信息表、精神健康量表和患者隐私量表。结果:共纳入调查对象494人,其中女性422人(85.4%),男性72人(14.6%)。调查结果显示,助产士对病人隐私和精神健康的尊重程度明显高于护士。此外,参与者的精神健康和对患者隐私的尊重与年龄和临床经验呈正相关,而与每周工作时间负相关。结论:根据这些发现,通过正规教育、在职培训、戏剧活动和案例分析来提高助产士和护士对精神健康和患者隐私的意识有助于提高护理质量。在进一步的研究中,可能会建议评估助产士和护士对患者隐私和精神健康的看法、意见和做法。
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引用次数: 0
Interdisciplinary management and anesthetic nursing care for a pediatric patient with epidermolysis bullosa 1例小儿大疱性表皮松解症的跨学科治疗与麻醉护理。
Pub Date : 2025-03-01 DOI: 10.1016/j.enfcle.2025.102155
Luis García-Costa , Susana Raquel Pérez-Rayo , Alejandro Bosch-Alcaraz , Andrea Ruiz-Romero
Epidermolysis Bullosa (EB) is a rare disease characterized by the formation of blisters and vesicles on the skin and mucous membranes. There are 4 types: simple, junctional, dystrophic, and Kindler syndrome. They can have serious complications such as difficult airway, syndactyly, wound superinfection, or squamous cell carcinoma.
We present the case of a 6-year-old male patient with severe generalized recessive dystrophic EB, surgically intervened for syndactyly in the left upper limb and cures in both lower limbs.
These patients have a high risk of suffering adverse events related to the surgical process secondary to the fragility of their tegumentary system, mucous membranes, and noble organs. For this reason, prior to the surgical procedure, an anamnesis and planning was performed, confirming that the patient had a difficult airway as evidenced by previous anesthesia and by the Mallampati scale, a mouth opening greater than or equal to 3 cm and a reduced degree of head-neck mobility. Therefore, minimally invasive measures were taken such as a single venoclysis and maintenance of spontaneous breathing and control of this through nasal glasses with capnography and pulse oximetry. An alternative plan was considered in case these measures failed. In addition, special care was applied, such as the use of dressings and vaseline for skin protection, avoiding friction in mobilizations, pain management with intravenous analgesia and nerve blocks, and anxiolysis through family accompaniment.
大疱性表皮松解症(EB)是一种罕见的疾病,其特征是在皮肤和粘膜上形成水疱和囊泡。有4种类型:单纯性、交界性、营养不良性和Kindler综合征。它们可能有严重的并发症,如气道困难、并指、伤口重复感染或鳞状细胞癌。我们报告一名6岁男性患者,患有严重的全身性隐性营养不良EB,手术干预左上肢并指,并治愈双下肢。这些患者有很高的风险遭受与手术过程相关的不良事件,继发于他们的被膜系统、粘膜和高贵器官的脆弱性。因此,在手术之前,进行了一次记忆和计划,确认患者有气道困难,这可以通过先前的麻醉和Mallampati量表来证明,嘴巴张开大于或等于3厘米,头颈部活动程度降低。因此,我们采取了微创措施,如单静脉溶栓,通过鼻镜配合血管造影和脉搏血氧仪维持和控制自主呼吸。如果这些措施失败,就会考虑另一项计划。此外,还采用了特殊护理,如使用敷料和凡士林保护皮肤,避免活动时摩擦,静脉镇痛和神经阻滞治疗疼痛,以及通过家庭陪伴缓解焦虑。
{"title":"Interdisciplinary management and anesthetic nursing care for a pediatric patient with epidermolysis bullosa","authors":"Luis García-Costa ,&nbsp;Susana Raquel Pérez-Rayo ,&nbsp;Alejandro Bosch-Alcaraz ,&nbsp;Andrea Ruiz-Romero","doi":"10.1016/j.enfcle.2025.102155","DOIUrl":"10.1016/j.enfcle.2025.102155","url":null,"abstract":"<div><div>Epidermolysis Bullosa (EB) is a rare disease characterized by the formation of blisters and vesicles on the skin and mucous membranes. There are 4 types: simple, junctional, dystrophic, and Kindler syndrome. They can have serious complications such as difficult airway, syndactyly, wound superinfection, or squamous cell carcinoma.</div><div>We present the case of a 6-year-old male patient with severe generalized recessive dystrophic EB, surgically intervened for syndactyly in the left upper limb and cures in both lower limbs.</div><div>These patients have a high risk of suffering adverse events related to the surgical process secondary to the fragility of their tegumentary system, mucous membranes, and noble organs. For this reason, prior to the surgical procedure, an anamnesis and planning was performed, confirming that the patient had a difficult airway as evidenced by previous anesthesia and by the Mallampati scale, a mouth opening greater than or equal to 3 cm and a reduced degree of head-neck mobility. Therefore, minimally invasive measures were taken such as a single venoclysis and maintenance of spontaneous breathing and control of this through nasal glasses with capnography and pulse oximetry. An alternative plan was considered in case these measures failed. In addition, special care was applied, such as the use of dressings and vaseline for skin protection, avoiding friction in mobilizations, pain management with intravenous analgesia and nerve blocks, and anxiolysis through family accompaniment.</div></div>","PeriodicalId":72917,"journal":{"name":"Enfermeria clinica (English Edition)","volume":"35 2","pages":"Article 102155"},"PeriodicalIF":0.0,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143544812","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Delphi consensus on a questionnaire of information, knowledge and promotion of living donor kidney transplantation 活体肾移植的信息、知识和推广问卷调查的德尔菲共识。
Pub Date : 2025-03-01 DOI: 10.1016/j.enfcle.2025.102159
Laura Rota-Musoll , Xavier Palomar-Aumatell , Meritxell Mondejar-Pont , Guillermo Pedreira-Robles , Sergi Cazorla-Calderon , Mireia Subirana-Casacuberta

Objective

To match the items of a questionnaire on the information process of renal replacement therapy and the degree of information and promotion of living donor kidney transplantation by nephrology nurses, taking into account the gender perspective.

Methods

This study was developed in 2 phases: 1) elaboration of an initial questionnaire by the research team, which consisted of 4 nurses, and 2) completion of two rounds of the Delphi method to agree on the research team's proposal.

Results

16 specialist nurses from all areas of nephrology nursing participated. Of the original questionnaire with 35 questions, 31 items were agreed upon. After the two Delphi rounds, consensus was reached on all questions and a new question was included, which was introduced by the panelists. The consensus made it possible to identify 7 dimensions, which were grouped into 4 themes: Profile of professionals, type of information on renal replacement therapy, knowledge and promotion of kidney transplantation in vivo.

Conclusions

This research has made it possible to create a questionnaire agreed by experts to identify the type of information that nephrology nurses give to people with kidney disease and how the gender perspective influences the information process. At the same time, this tool will facilitate the identification of nurses' level of knowledge about living donor kidney transplantation and the way they promote this renal treatment to the people they care for.
目的:在考虑性别因素的情况下,对肾科护士肾替代治疗的信息处理与活体肾移植的了解程度和推广程度进行问卷调查。方法:本研究分2个阶段进行:1)由4名护士组成的研究小组编制初步问卷,2)完成两轮德尔菲法,以同意研究小组的建议。结果:来自肾内科各个护理领域的16名专科护士参与。原来的调查表有35个问题,其中31个项目获得了同意。经过两轮德尔菲讨论,所有问题都达成了共识,并加入了一个新的问题,由小组成员介绍。共识使得确定7个维度成为可能,这些维度分为4个主题:专业人员概况,肾脏替代治疗的信息类型,体内肾移植的知识和促进。结论:本研究使得创建专家同意的问卷成为可能,以确定肾脏病护士向肾病患者提供的信息类型以及性别观点如何影响信息处理。同时,该工具将有助于识别护士对活体供肾移植的知识水平,以及他们向他们所照顾的人推广这种肾脏治疗的方式。
{"title":"Delphi consensus on a questionnaire of information, knowledge and promotion of living donor kidney transplantation","authors":"Laura Rota-Musoll ,&nbsp;Xavier Palomar-Aumatell ,&nbsp;Meritxell Mondejar-Pont ,&nbsp;Guillermo Pedreira-Robles ,&nbsp;Sergi Cazorla-Calderon ,&nbsp;Mireia Subirana-Casacuberta","doi":"10.1016/j.enfcle.2025.102159","DOIUrl":"10.1016/j.enfcle.2025.102159","url":null,"abstract":"<div><h3>Objective</h3><div>To match the items of a questionnaire on the information process of renal replacement therapy and the degree of information and promotion of living donor kidney transplantation by nephrology nurses, taking into account the gender perspective.</div></div><div><h3>Methods</h3><div>This study was developed in 2 phases: 1) elaboration of an initial questionnaire by the research team, which consisted of 4 nurses, and 2) completion of two rounds of the Delphi method to agree on the research team's proposal.</div></div><div><h3>Results</h3><div>16 specialist nurses from all areas of nephrology nursing participated. Of the original questionnaire with 35 questions, 31 items were agreed upon. After the two Delphi rounds, consensus was reached on all questions and a new question was included, which was introduced by the panelists. The consensus made it possible to identify 7 dimensions, which were grouped into 4 themes: Profile of professionals, type of information on renal replacement therapy, knowledge and promotion of kidney transplantation in vivo.</div></div><div><h3>Conclusions</h3><div>This research has made it possible to create a questionnaire agreed by experts to identify the type of information that nephrology nurses give to people with kidney disease and how the gender perspective influences the information process. At the same time, this tool will facilitate the identification of nurses' level of knowledge about living donor kidney transplantation and the way they promote this renal treatment to the people they care for.</div></div>","PeriodicalId":72917,"journal":{"name":"Enfermeria clinica (English Edition)","volume":"35 2","pages":"Article 102159"},"PeriodicalIF":0.0,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143544783","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Obstetric violence during the SARS-CoV-2 pandemic in Spain: A descriptive study 西班牙 SARS-CoV-2 大流行期间的产科暴力:描述性研究。
Pub Date : 2025-03-01 Epub Date: 2025-02-15 DOI: 10.1016/j.enfcle.2025.102151
Desirée Mena-Tudela , Susana Iglesias-Casás , María Jesús Valero-Chillerón , Irene Llagostera-Reverter , Julián Mahiques-Llopis

Aim

The aim of this study was to describe women’s perceptions of obstetric violence, medicalisation, and interventionism at childbirth in Spain during the SARS-CoV-2 pandemic.

Method

A cross-sectional design was used. For data collection, an online questionnaire with closed questions was designed and distributed via social media. Women who gave birth between March 2020 and April 2021 in Spain were recruited.

Results

The sample consisted of 6060 questionnaires. Sixty-two percent of respondents thought that the measures taken were arbitrary and ineffective in curbing the pandemic. For the following variables, statistically significant differences were found between groups related to maternal SARS-CoV-2 diagnosis: feeling rejected for suspected positive SARS-CoV-2 status (p < 0.001), being encouraged to breastfeed (p = 0.048), offering bottles without consent (p < 0.001), not being allowed to be accompanied (p < 0.001), and separating the healthy baby from the mother at birth (p = 0.009). Women who tested positive were also less satisfied with their care and felt less empowered. Thirty-three point five percent of women (n = 2030) report having suffered obstetric violence. Of these, 67.8% (n = 1376) believe that such obstetric violence is not justified by the pandemic.

Discussion

Understanding these experiences during a pandemic provides an opportunity to develop specific protection policies for women in the event of future health crises.
目的:本研究的目的是描述在SARS-CoV-2大流行期间西班牙妇女对分娩时的产科暴力、医疗化和干预主义的看法。方法:采用横断面设计。在数据收集方面,我们设计了一份带有封闭式问题的在线问卷,并通过社交媒体分发。研究人员招募了2020年3月至2021年4月在西班牙分娩的女性。结果:样本共6060份问卷。62%的答复者认为所采取的措施是武断的,在遏制大流行方面没有效果。对于以下变量,发现与产妇SARS-CoV-2诊断相关的组之间存在统计学显著差异:因疑似SARS-CoV-2阳性状态而感到被拒绝(p讨论:了解大流行期间的这些经历,可以为妇女在未来发生健康危机时制定具体的保护政策提供机会。
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引用次数: 0
The caring experience: Being a woman, mother and caregiver from patients diagnosed with mucopolysaccharidosis 护理经验:从被诊断为粘多糖病的患者身上扮演一个女人、母亲和照顾者的角色。
Pub Date : 2025-03-01 Epub Date: 2025-03-15 DOI: 10.1016/j.enfcle.2025.502167
Marcela Campos-Sánchez , Nolly Nataly Castañeda-Ibáñez

Introduction

Rare or orphan diseases represent a challenge for the health system and the quality of life of patients and their families. In Colombia, mothers assume the main role of caregivers, facing physical, emotional, and financial challenges. This study aims to understand the experience of women who are mothers and caregivers of patients with Mucopolysaccharidosis in Colombia, and the variables associated with caregiver burden.

Method

A mixed study was conducted in which the Zarit Caregiver Overload Scale was applied to 48 female caregivers of children with Mucopolysaccharidosis, and they were given an individual structured interview.

Results

The Zarit scale showed that 92% of the participants did not have overload. However, the interviews revealed a variety of negative emotions and feelings, such as loneliness, sadness, fear, and guilt. The women expressed an unfinished life project, with overloaded social roles and a constant permanent crisis. The main emotional resource and support wase faith in God. Tensions were found in the relational fabric with the child or patient, between overprotection and independence.

Conclusions

Understanding the experience of the caregivers of patients with MPS allowed unveiling the complex elements of caregiving through the three intertwined roles: being a woman, being a mother and being a caregiver. The use of religiosity as an indicator of physical and mental well-being confirms its benefit in the processes of coping with the difficulties related to the experience of diagnosis and treatment.
导言:罕见病或孤儿病是对医疗系统和患者及其家庭生活质量的挑战。在哥伦比亚,母亲是照顾者的主要角色,她们面临着身体、情感和经济方面的挑战。本研究旨在了解哥伦比亚作为粘多糖病患者母亲和照顾者的妇女的经历,以及与照顾者负担相关的变量:采用扎里特(Zarit)照顾者超负荷量表对48名照顾黏多醣症患儿的女性进行了混合研究,并对她们进行了个别结构化访谈:结果:扎里特量表显示,92%的参与者没有超负荷现象。然而,访谈显示了各种负面情绪和感受,如孤独、悲伤、恐惧和内疚。妇女们表达了一种未完成的生活计划,社会角色超负荷,危机持续不断。主要的情感资源和支持是对上帝的信仰。在与孩子或病人的关系结构中,发现了过度保护与独立之间的紧张关系:通过了解马普托瘫痪病人护理者的经历,可以揭示出护理工作的复杂因素,包括三个相互交织的角色:作为一名女性、作为一名母亲和作为一名护理者。使用宗教信仰作为身心健康的指标,证实了宗教信仰在应对与诊断和治疗经历有关的困难过程中的益处。
{"title":"The caring experience: Being a woman, mother and caregiver from patients diagnosed with mucopolysaccharidosis","authors":"Marcela Campos-Sánchez ,&nbsp;Nolly Nataly Castañeda-Ibáñez","doi":"10.1016/j.enfcle.2025.502167","DOIUrl":"10.1016/j.enfcle.2025.502167","url":null,"abstract":"<div><h3>Introduction</h3><div>Rare or orphan diseases represent a challenge for the health system and the quality of life of patients and their families. In Colombia, mothers assume the main role of caregivers, facing physical, emotional, and financial challenges. This study aims to understand the experience of women who are mothers and caregivers of patients with Mucopolysaccharidosis in Colombia, and the variables associated with caregiver burden.</div></div><div><h3>Method</h3><div>A mixed study was conducted in which the Zarit Caregiver Overload Scale was applied to 48 female caregivers of children with Mucopolysaccharidosis, and they were given an individual structured interview.</div></div><div><h3>Results</h3><div>The Zarit scale showed that 92% of the participants did not have overload. However, the interviews revealed a variety of negative emotions and feelings, such as loneliness, sadness, fear, and guilt. The women expressed an unfinished life project, with overloaded social roles and a constant permanent crisis. The main emotional resource and support wase faith in God. Tensions were found in the relational fabric with the child or patient, between overprotection and independence.</div></div><div><h3>Conclusions</h3><div>Understanding the experience of the caregivers of patients with MPS allowed unveiling the complex elements of caregiving through the three intertwined roles: being a woman, being a mother and being a caregiver. The use of religiosity as an indicator of physical and mental well-being confirms its benefit in the processes of coping with the difficulties related to the experience of diagnosis and treatment.</div></div>","PeriodicalId":72917,"journal":{"name":"Enfermeria clinica (English Edition)","volume":"35 2","pages":"Article 502167"},"PeriodicalIF":0.0,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143652431","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Application of bladder ultrasound to reduce urinary catheterization in patients suspected of acute urinary retention: A systematic review 膀胱超声在急性尿潴留患者中减少导尿的应用:一项系统综述。
Pub Date : 2025-03-01 DOI: 10.1016/j.enfcle.2025.502163
Iván Fernández-Prada , Sendoa Ballesteros-Peña

Aim

To evaluate the impact of the use of bladder ultrasound in the reduction of urinary catheterization in patients suspected of acute urinary retention or at risk of suffering from it.

Method

A systematic literature review was conducted across various databases to identify studies comparing the use of bladder ultrasound to standard practice in managing acute urinary retention. Both observational and experimental studies that reported the number of urinary catheterizations performed were included.

Results

A total of 8 studies involving 3210 participants were included. The findings indicated that the use of bladder ultrasound was associated with a significant reduction in the number of urinary catheterizations, with decreases ranging from 20% to 90% compared to control groups. Even in studies where a reduction in the number of catheterizations was not observed, there was a decrease in adverse effects associated with this procedure, such as urinary tract infections and extended hospital stays.

Conclusions

This systematic review provides evidence on the benefits of bladder ultrasound in diagnosing and managing acute urinary retention, enabling a reduction in the number of urinary catheterizations. Implementing this technology, along with proper training for nursing staff, could enhance patient care and safety, as well as the efficiency of healthcare systems.
目的:评价膀胱超声在减少疑似急性尿潴留或有急性尿潴留危险患者导尿量中的作用。方法:对不同数据库进行系统的文献综述,以确定比较膀胱超声与标准实践在处理急性尿潴留中的应用的研究。观察性和实验性研究均包括了导尿次数的报告。结果:共纳入8项研究,涉及3210名受试者。研究结果表明,膀胱超声的使用与导尿次数的显著减少有关,与对照组相比减少了20%至90%。即使在没有观察到导尿次数减少的研究中,与此过程相关的不良反应(如尿路感染和延长住院时间)也有所减少。结论:本系统综述为膀胱超声在诊断和治疗急性尿潴留中的益处提供了证据,可以减少导尿次数。实施这项技术,加上对护理人员的适当培训,可以提高患者护理和安全,以及医疗保健系统的效率。
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引用次数: 0
期刊
Enfermeria clinica (English Edition)
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