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Quality of life instruments for patients with peripherally inserted vascular access devices: A scoping review 外周插入式血管通路装置患者的生活质量工具:范围综述。
Pub Date : 2025-06-01 Epub Date: 2025-02-15 DOI: 10.1016/j.enfcle.2025.102145
Saloa Unanue-Arza , Orlaith Hernon , Selene Lurueña-Rodríguez , Caitriona Duggan , Victoria Armenteros-Yeguas , Peter J. Carr

Objective

To identify studies that assess the quality of life of people with a peripheral intravenous catheter (PIVC), a midline catheter (MC) and a peripheral insertion central catheter (PICC).

Method

Using a scoping review design we included studies that reported the quality of life of adult patients with the aforementioned vascular access devices. With a specific keyword search strategy performed in December 2023 we searched, CINAHL, Embase, Cochrane, Scopus and ProQuest databases. There were no restrictions on the date of publication and studies in English, Spanish or Portuguese were included. Following our inclusion an exclusion criteria, extracted findings reported with the patterns, advances, gaps, evidence for practice and research framework.

Results

Of 6317 sources we included 151 papers for full text screening and included 21 studies for data extraction and interpretation. PICCs were the primary catheter reported in seven studies. All remaining studies included more than one device. The most frequently used questionnaire was European Organisation for Research and Treatment of Cancer Quality of Life Questionnaire Core 30 (eight studies) followed by the Short Form Health Survey, the Karnofsky scale, Functional Living Index-Cancer questionnaire, Palliative Care Outcome Scale FACT-B questionnaire. In eight studies a researcher developed without validated questions were used alone or combined with other validated instruments.

Conclusion

There are no validated questionnaires measuring patient quality of life with specifically for three of the most commonly inserted vascular access devices used in healthcare to date. Opportunities exist to develop and validate a patient related and catheter device specific quality of life instrument.
目的:确定评估外周静脉导管(PIVC)、中线导管(MC)和外周插入中心导管(PICC)患者生活质量的研究。方法:采用范围回顾设计,我们纳入了报道使用上述血管通路装置的成年患者生活质量的研究。通过2023年12月执行的特定关键字搜索策略,我们检索了CINAHL, Embase, Cochrane, Scopus和ProQuest数据库。对出版日期没有限制,包括英文、西班牙文或葡萄牙文的研究报告。根据我们的纳入和排除标准,提取的研究结果报告了模式、进展、差距、实践证据和研究框架。结果:在6317个来源中,我们纳入了151篇论文用于全文筛选,21篇研究用于数据提取和解释。在7项研究中,PICCs是首选导管。所有剩余的研究都包括不止一种设备。最常用的问卷是欧洲癌症研究和治疗组织生活质量问卷核心30(8项研究),其次是简短健康调查,Karnofsky量表,功能生活指数-癌症问卷,姑息治疗结果量表FACT-B问卷。在8项研究中,研究人员开发的未验证问题单独使用或与其他验证工具结合使用。结论:迄今为止,没有有效的问卷来衡量患者的生活质量,特别是针对医疗保健中最常用的三种血管通路插入装置。存在开发和验证与患者相关和导管装置特定的生活质量仪器的机会。
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引用次数: 0
Implementation sciences: Transformative potential for the advancement of nurses in vascular access care 实施科学:血管通路护理护士进步的变革潜力。
Pub Date : 2025-06-01 Epub Date: 2025-07-17 DOI: 10.1016/j.enfcle.2025.502306
Enrique Castro-Sánchez , Ismael Fernández-Fernández , Ian Blanco-Mavillard
This special article addresses the complexity of vascular access care and explores how implementation science can act as a catalyst to optimize vascular nursing practice. Although vascular access care is crucial, its quality is often unsatisfactory due to the diversity of procedures, technologies, and the need to adapt to each patient. Despite numerous improvement interventions, high complication rates and suboptimal use of these vascular devices persist.
Implementation science can be a crucial strategy to overcome these identified challenges, recognizing the behaviors of healthcare professionals, especially nurses, and their relevance to ensure quality care within the local and organizational context. In this sense, it is challenging to integrate implementation science into the nursing practice of vascular care, such as resistance to change and resource constraints, but it also offers opportunities for innovation and interdisciplinary collaboration. We suggest reevaluating specialized nursing roles to focus on implementation of interventions and optimizing care decisions related to vascular access. This integration requires the development of new competencies and an understanding of the organizational context, key elements to ensure the sustainability and effectiveness of interventions.
这篇特别的文章解决了血管通路护理的复杂性,并探讨了如何实施科学可以作为催化剂,以优化血管护理实践。虽然血管通路护理是至关重要的,其质量往往是不令人满意的,由于多样性的程序,技术,并需要适应每个病人。尽管有许多改善措施,这些血管装置的高并发症发生率和不理想的使用仍然存在。实施科学可以成为克服这些已确定挑战的关键策略,认识到医疗保健专业人员,特别是护士的行为,以及它们在当地和组织环境中确保高质量护理的相关性。从这个意义上说,将实施科学整合到血管护理的护理实践中是具有挑战性的,例如抗拒变革和资源限制,但它也为创新和跨学科合作提供了机会。我们建议重新评估专业护理角色,重点关注干预措施的实施和优化与血管通路相关的护理决策。这种整合需要发展新的能力和对组织环境的理解,这是确保干预措施的可持续性和有效性的关键要素。
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引用次数: 0
Quality of life and emotional state of patients who are candidates for CAR-T therapy: Role of the advanced practice nurse CAR-T治疗候选者的生活质量和情绪状态:高级实习护士的作用。
Pub Date : 2025-04-01 Epub Date: 2025-03-08 DOI: 10.1016/j.enfcle.2025.502188
Mercedes Montoro-Lorite , Gloria García , Cristina Moreno-García , Ariadna Domènech , Pilar Ayora , Carla Ramos

Introduction

CAR-T therapy is indicated in patients with refractory disease who usually present comorbidities, toxicities associated with previous treatments, and disease instability. Additionally, they must travel close to the infusion center, incurring financial and psychosocial costs. Our study aims to describe the quality of life and psycho-emotional state of candidates for CAR-T therapy.

Methods

An observational study was conducted from January to December 2022. The inclusion criteria were being 18 years or older, eligible for CAR-T therapy, and able to understand Spanish. Sociodemographic, clinical variables and Hospital Anxiety and Depression and quality of life scales were collected.

Results

One hundred and four participants were recruited, among them, seventy percent did not live in their usual residence. Seventy-five percent of the participants had depression, 76% anxiety, and 78% emotional function impairment. No statistically significant differences between the presence of anxiety/depression associated with not residing in their usual address (p 0.056) or receiving psychological care in their center of origin (p 0.583) were found. However, a correlation between the presence of anxiety/depression among participants referred to the psychology service by the Advanced Practice Nurse (APN) (p < 0.001) was found.

Conclusions

In conclusion, assessing the quality of life and psycho-emotional state of candidates for CAR-T therapy with validated scales allows us to identify candidates presenting anxiety and depression with the goal of improving the management of their emotional health. The APN's role is crucial in detecting complications and facilitating early referral to the psychology team.
CAR-T疗法适用于难治性疾病患者,这些患者通常存在合并症、与既往治疗相关的毒性和疾病不稳定性。此外,他们必须靠近输液中心,从而产生经济和社会心理成本。我们的研究旨在描述CAR-T治疗候选者的生活质量和心理情绪状态。方法:于2022年1月至12月进行观察性研究。纳入标准为18岁或以上,有资格接受CAR-T治疗,并能理解西班牙语。收集社会人口学、临床变量和医院焦虑、抑郁和生活质量量表。结果:招募了104名参与者,其中70%的人不住在他们的常住住所。75%的参与者患有抑郁症,76%的参与者患有焦虑症,78%的参与者患有情绪功能障碍。与不常住地相关的焦虑/抑郁(p 0.056)或在原籍中心接受心理治疗(p 0.583)的存在无统计学意义差异。然而,由高级执业护士(APN)提供心理服务的参与者之间存在焦虑/抑郁之间的相关性(p)结论:总之,用有效的量表评估CAR-T治疗候选人的生活质量和心理情绪状态,使我们能够识别出现焦虑和抑郁的候选人,以改善他们的情绪健康管理。APN的作用是发现并发症和促进早期转介到心理小组至关重要。
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引用次数: 0
Reproducibility of the TRIPED-GM paediatric triage system TRIPED-GM儿科分诊系统的可重复性。
Pub Date : 2025-04-01 Epub Date: 2025-04-25 DOI: 10.1016/j.enfcle.2025.502191
M. Concepción Míguez-Navarro , Gloria Guerrero-Márquez , Carmen Ignacio Cerro

Introduction

The triage system aims to determine the level of urgency of patients in order to provide appropriate care and reduce morbidity and mortality. It is essential that the system used is valid, reliable and easy to use. The TRIPED-GM system is a five-level classification system exclusively for pediatric age, which includes six steps, three of which are mandatory (PAT, guiding sign/symptom, and priority rectifiers).

Objective

To determine the reproducibility of the TRIPED-GM system when used on patients evaluated consecutively by 2 nurses.

Method

Observational, descriptive, cross-sectional study involving 237 patients under 16 years of age who attended a third-level pediatric emergency service. Reliability was measured using Kappa (κ), linear Kappa (κp), and quadratic Kappa (κp2) indices, which compared the priority assigned by two research nurses and sixteen paediatric emergency nurses with over a year of experience in triage. Patients were classified consecutively and blindly.

Results

There was agreement in 221 (93.2%) patients. The overall concordance was: κ = 0.84 (95% CI 0.77−0.91), κp = 0.85 (95% CI 0.78−0.92), κp2 = 0.85 (95% CI 0.78−0.92). There were no differences in the assignment of more than one priority level in any patient. Concordance in the mandatory steps was: Pediatric Assessment Triangle: κ = 0.82 (95% CI 0.68−0.96), Main reason for consultation: κ = 0.76 (95% CI 0.62−0.89), Rectifiers: κ = 0.94 (95% CI 0.88−1). Concordance was higher in patients who consulted for illness compared to those for trauma/accidents: κ = 0.84 (95% CI 0.76−0.92) vs. κ = 0.79 (95% CI 0.57–1).

Conclusion

The TRIPED-GM pediatric triage system is reliable for use in emergency services with patients of similar characteristics.
导读:分诊系统旨在确定患者的紧急程度,以便提供适当的护理,降低发病率和死亡率。系统的有效性、可靠性和易用性是至关重要的。TRIPED-GM系统是一个专门针对儿童年龄的五级分类系统,包括六个步骤,其中三个是强制性的(PAT,指导性体征/症状和优先纠正)。目的:探讨TRIPED-GM系统在两名护士连续评价患者时的可重复性。方法:观察性、描述性、横断面研究,纳入237例16岁以下的三级儿科急诊患者。信度采用Kappa (K)、线性Kappa (KP)和二次Kappa (Kp2)指数进行测量,这些指数比较了两名研究护士和16名具有一年以上分诊经验的儿科急诊护士分配的优先级。患者按顺序盲目分类。结果:221例(93.2%)患者的结论一致。总体一致性为:K = 0.84 (95% CI 0.77-0.91), KP = 0.85 (95% CI 0.78-0.92), Kp2 = 0.85 (95% CI 0.78-0.92)。在任何患者中,分配一个以上的优先级没有差异。强制性步骤的一致性为:儿科评估三角:K = 0.82 (95% CI 0.68-0.96),主要咨询原因:K = 0.76 (95% CI 0.62-0.89),纠正措施:K = 0.94 (95% CI 0.88-1)。与创伤/事故患者相比,疾病患者的一致性更高:K = 0.84 (95% CI 0.76-0.92) vs. K = 0.79 (95% CI 0.57-1)。结论:TRIPED-GM儿科分诊系统在具有相似特征的患者急诊服务中是可靠的。
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引用次数: 0
Sleep quality in patients admitted to an intermediate care unit 中级护理病房病人的睡眠质量。
Pub Date : 2025-04-01 Epub Date: 2025-04-23 DOI: 10.1016/j.enfcle.2025.102157
Paula Itxaso Sirera-Pérez , Adriana Martín-Sanjoaquín , Beatriz Juandeaburre-Pedroarena , Itziar Luquin-Iturmendi , Rosana Goñi-Viguria

Introduction

Patients admitted to critical care units (ICU) are subject to develop sleep disturbances, caused by multiple factors that are present in this type of units.

Objetive

Describe patients' perceptions of night rest, to relate them to sociodemographic variables, and determine factors that interfere with their sleep quality.

Methodology

Descriptive, prospective, observational study in an ICU of a tertiary level university hospital. Sleep perception was assessed with the five-item Richards-Campbell Sleep Questionnaire (RCSQ). Sociodemographic and clinical variables were collected. A self-developed questionnaire with 9 questions addressing the main factors mentioned in the literature that influence sleep was utilized. Descriptive and inferential statistics were performed, being considered statistically significant p < ,05.

Results

The sleep of 75 patients was studied, for 146 nights.
The sleep perception was rated as fair, with moderate ease in falling asleep, average awakenings, and moderate ease in returning to sleep. The mean RCSQ score was 60.22 (SD: 24.81).
It was observed that concern (p < .001), noise (p = .016), pain (p = .008), discomfort (p = .001), ambient light (p = .026), and the presence of nearby patients (p = .027) significantly influenced in the sleep.

Conclusions

Patients’ perception of night sleep was fair. Keeping patients informed, minimizing ambient light and noise, optimizing analgesic guidelines, and promoting a comfortable position could facilitate night rest.
入住重症监护病房(ICU)的患者容易出现睡眠障碍,这是由多种因素引起的,这些因素存在于这类病房中。目的:描述患者对夜间休息的感知,将其与社会人口学变量联系起来,并确定干扰其睡眠质量的因素。方法:在某三级大学医院ICU进行描述性、前瞻性、观察性研究。睡眠感知通过五项理查兹-坎贝尔睡眠问卷(RCSQ)进行评估。收集社会人口学和临床变量。使用了一份自行开发的问卷,其中包含9个问题,解决了文献中提到的影响睡眠的主要因素。结果:对75例患者进行了为期146晚的睡眠研究。睡眠感知被评为公平,入睡适度,醒来平均,恢复睡眠适度。RCSQ平均评分为60.22 (SD: 24.81)。结论:患者对夜间睡眠的感知一般。让患者了解情况,减少环境光和噪音,优化镇痛指南,促进舒适的体位可以促进夜间休息。
{"title":"Sleep quality in patients admitted to an intermediate care unit","authors":"Paula Itxaso Sirera-Pérez ,&nbsp;Adriana Martín-Sanjoaquín ,&nbsp;Beatriz Juandeaburre-Pedroarena ,&nbsp;Itziar Luquin-Iturmendi ,&nbsp;Rosana Goñi-Viguria","doi":"10.1016/j.enfcle.2025.102157","DOIUrl":"10.1016/j.enfcle.2025.102157","url":null,"abstract":"<div><h3>Introduction</h3><div>Patients admitted to critical care units (ICU) are subject to develop sleep disturbances, caused by multiple factors that are present in this type of units.</div></div><div><h3>Objetive</h3><div>Describe patients' perceptions of night rest, to relate them to sociodemographic variables, and determine factors that interfere with their sleep quality.</div></div><div><h3>Methodology</h3><div>Descriptive, prospective, observational study in an ICU of a tertiary level university hospital. Sleep perception was assessed with the five-item Richards-Campbell Sleep Questionnaire (RCSQ). Sociodemographic and clinical variables were collected. A self-developed questionnaire with 9 questions addressing the main factors mentioned in the literature that influence sleep was utilized. Descriptive and inferential statistics were performed, being considered statistically significant p &lt; ,05.</div></div><div><h3>Results</h3><div>The sleep of 75 patients was studied, for 146 nights.</div><div>The sleep perception was rated as fair, with moderate ease in falling asleep, average awakenings, and moderate ease in returning to sleep. The mean RCSQ score was 60.22 (SD: 24.81).</div><div>It was observed that concern (p &lt; .001), noise (p = .016), pain (p = .008), discomfort (p = .001), ambient light (p = .026), and the presence of nearby patients (p = .027) significantly influenced in the sleep.</div></div><div><h3>Conclusions</h3><div>Patients’ perception of night sleep was fair. Keeping patients informed, minimizing ambient light and noise, optimizing analgesic guidelines, and promoting a comfortable position could facilitate night rest.</div></div>","PeriodicalId":72917,"journal":{"name":"Enfermeria clinica (English Edition)","volume":"35 3","pages":"Article 102157"},"PeriodicalIF":0.0,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144035991","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Comparison of content validity indices for clinical nursing research: A practical case 临床护理研究内容效度指标的比较:一个实际案例。
Pub Date : 2025-04-01 Epub Date: 2025-06-06 DOI: 10.1016/j.enfcle.2025.502214
Paulina Hurtado-Arenas , Miguel R. Guevara , Víctor M. González-Chordá

Objective

To compare techniques to analyze the content validity of measurement instruments applicable to nursing care research through a practical case.

Method

Secondary study derived from validating the Hospital Survey on Patient Safety (HSOPS) in a Chilean hospital. The study setting was hospital care, with a population focused on nursing staff and a sample of 12 expert nurses who are teachers or have clinical experience in quality and patient safety. Design and content validity test based on three phases: identification of primary methods, calculation of methods, comparison of similarities and differences of methods.

Results

Lawsche, Tristan-López, Lynn, Polit et al. methods are similar. The modified kappa value is similar to the content validity index (I-CVI) value, with a slight variation when penalizing the value by probability according to chance. There are significant differences between all methods and Hernández Nieto’s content validity coefficient (CVC).

Conclusions

The Polit et al. method is more rigorous, and its mathematical formulation is better justified, providing solidity to clinical nursing research. Furthermore, the Hernandez-Nieto method is suggested when validating more than one characteristic.
目的:通过一个实际案例,比较分析适用于护理研究的测量工具的内容效度。方法:二级研究来源于对智利一家医院患者安全调查(hsop)的验证。研究环境是医院护理,人口集中在护理人员和12名专家护士,他们是教师或在质量和患者安全方面有临床经验。设计和内容效度检验基于三个阶段:确定主要方法、计算方法、比较方法的异同点。结果:Lawsche, Tristan-López, Lynn, Polit等方法相似。修正后的kappa值与内容效度指数(I-CVI)值相似,但在根据偶然性对该值进行概率惩罚时略有变化。各方法与Hernández涅托内容效度系数(CVC)差异显著。结论:Polit等方法更为严谨,其数学公式更合理,为临床护理研究提供了坚实依据。此外,在验证多个特征时,建议使用Hernandez-Nieto方法。
{"title":"Comparison of content validity indices for clinical nursing research: A practical case","authors":"Paulina Hurtado-Arenas ,&nbsp;Miguel R. Guevara ,&nbsp;Víctor M. González-Chordá","doi":"10.1016/j.enfcle.2025.502214","DOIUrl":"10.1016/j.enfcle.2025.502214","url":null,"abstract":"<div><h3>Objective</h3><div>To compare techniques to analyze the content validity of measurement instruments applicable to nursing care research through a practical case.</div></div><div><h3>Method</h3><div>Secondary study derived from validating the Hospital Survey on Patient Safety (HSOPS) in a Chilean hospital. The study setting was hospital care, with a population focused on nursing staff and a sample of 12 expert nurses who are teachers or have clinical experience in quality and patient safety. Design and content validity test based on three phases: identification of primary methods, calculation of methods, comparison of similarities and differences of methods.</div></div><div><h3>Results</h3><div>Lawsche, Tristan-López, Lynn, Polit et al. methods are similar. The modified kappa value is similar to the content validity index (I-CVI) value, with a slight variation when penalizing the value by probability according to chance. There are significant differences between all methods and Hernández Nieto’s content validity coefficient (CVC).</div></div><div><h3>Conclusions</h3><div>The Polit et al. method is more rigorous, and its mathematical formulation is better justified, providing solidity to clinical nursing research. Furthermore, the Hernandez-Nieto method is suggested when validating more than one characteristic.</div></div>","PeriodicalId":72917,"journal":{"name":"Enfermeria clinica (English Edition)","volume":"35 3","pages":"Article 502214"},"PeriodicalIF":0.0,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144251154","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Political participation of occupational health nurses: A necessity? 职业卫生护士的政治参与:必要吗?
Pub Date : 2025-04-01 Epub Date: 2025-06-05 DOI: 10.1016/j.enfcle.2025.502213
Javier González-Caballero
{"title":"Political participation of occupational health nurses: A necessity?","authors":"Javier González-Caballero","doi":"10.1016/j.enfcle.2025.502213","DOIUrl":"10.1016/j.enfcle.2025.502213","url":null,"abstract":"","PeriodicalId":72917,"journal":{"name":"Enfermeria clinica (English Edition)","volume":"35 3","pages":"Article 502213"},"PeriodicalIF":0.0,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144251156","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The rapid emergence of AI within the nursing profession: adaptation to new competencies 人工智能在护理行业的迅速出现:适应新的能力
Pub Date : 2025-04-01 Epub Date: 2025-06-24 DOI: 10.1016/j.enfcle.2025.502264
Fernando Campaña Castillo , Antonio Rosa Castillo
{"title":"The rapid emergence of AI within the nursing profession: adaptation to new competencies","authors":"Fernando Campaña Castillo ,&nbsp;Antonio Rosa Castillo","doi":"10.1016/j.enfcle.2025.502264","DOIUrl":"10.1016/j.enfcle.2025.502264","url":null,"abstract":"","PeriodicalId":72917,"journal":{"name":"Enfermeria clinica (English Edition)","volume":"35 3","pages":"Article 502264"},"PeriodicalIF":0.0,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144365344","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Advanced nursing competencies in rare diseases. A rapid realistic review 罕见病高级护理能力。快速现实审查。
Pub Date : 2025-04-01 Epub Date: 2025-03-03 DOI: 10.1016/j.enfcle.2025.102127
Héctor Nafría-Soria , Isabel Salcedo-de Diego , Pilar Serrano-Gallardo

Objective

To identify the advanced competencies developed by nurses in the care of patients with Rare Diseases, exploring how contextual factors interact to generate mechanisms that enable the development of these competencies.

Method

Realist Rapid Review. A reference panel, composed of professionals and stakeholders involved in Rare Diseases, contributed to the development of the research question and the design of the search strategy, which was conducted in Medline, CINAHL, CUIDEN, and grey literature. Data were extracted and analyzed by the researchers, then refined and validated by an expert panel. After data analysis, Context-Mechanism-Outcome configurations (CMOs) were developed, considering the outcomes as nurses’ competencies in the care of patients with Rare Diseases.

Results

A total of 1294 documents were identified, of which 25 were selected. Eight Context-Mechanism-Outcome (CMO) configurations were constructed and grouped into three levels: macro (healthcare management policies), meso (associative movement), and micro (related to patients, family, and professionals). The advanced competencies identified and validated were related to case management/continuity of care/coordination between services; training and education; specialization competencies; development of a humanistic profile and patient advocacy; substitution roles/competencies and development of technological competencies.

Conclusions

The developed CMO configurations provide plausible explanations that can contribute to the potential development of an advanced competency profile for nurses caring for patients with Rare Diseases and their families in the Spanish context, thereby enhancing their healthcare delivery.
目的:确定护士在罕见病患者护理中发展的高级能力,探索环境因素如何相互作用以产生使这些能力发展的机制。方法:现实快速回顾。一个由罕见病相关专业人员和利益相关者组成的参考小组对研究问题的发展和搜索策略的设计做出了贡献,该研究在Medline、CINAHL、CUIDEN和灰色文献中进行。数据由研究人员提取和分析,然后由专家小组进行提炼和验证。经过数据分析,开发了情境-机制-结果配置(cmo),将结果视为护士护理罕见病患者的能力。结果:共识别1294份文献,筛选出25份。构建了八种情境-机制-结果(CMO)配置,并将其分为三个层次:宏观(医疗保健管理政策)、中观(关联运动)和微观(与患者、家庭和专业人员相关)。确定和验证的高级能力与病例管理/护理连续性/服务之间的协调有关;培训和教育;专业化能力;发展人文主义形象和患者倡导;替代角色/能力和技术能力的发展。结论:开发的CMO配置提供了合理的解释,可以促进西班牙背景下护理罕见病患者及其家属的护士高级能力概况的潜在发展,从而提高他们的医疗服务。
{"title":"Advanced nursing competencies in rare diseases. A rapid realistic review","authors":"Héctor Nafría-Soria ,&nbsp;Isabel Salcedo-de Diego ,&nbsp;Pilar Serrano-Gallardo","doi":"10.1016/j.enfcle.2025.102127","DOIUrl":"10.1016/j.enfcle.2025.102127","url":null,"abstract":"<div><h3>Objective</h3><div>To identify the advanced competencies developed by nurses in the care of patients with Rare Diseases, exploring how contextual factors interact to generate mechanisms that enable the development of these competencies.</div></div><div><h3>Method</h3><div>Realist Rapid Review. A reference panel, composed of professionals and stakeholders involved in Rare Diseases, contributed to the development of the research question and the design of the search strategy, which was conducted in Medline, CINAHL, CUIDEN, and grey literature. Data were extracted and analyzed by the researchers, then refined and validated by an expert panel. After data analysis, Context-Mechanism-Outcome configurations (CMOs) were developed, considering the outcomes as nurses’ competencies in the care of patients with Rare Diseases.</div></div><div><h3>Results</h3><div>A total of 1294 documents were identified, of which 25 were selected. Eight Context-Mechanism-Outcome (CMO) configurations were constructed and grouped into three levels: macro (healthcare management policies), meso (associative movement), and micro (related to patients, family, and professionals). The advanced competencies identified and validated were related to case management/continuity of care/coordination between services; training and education; specialization competencies; development of a humanistic profile and patient advocacy; substitution roles/competencies and development of technological competencies.</div></div><div><h3>Conclusions</h3><div>The developed CMO configurations provide plausible explanations that can contribute to the potential development of an advanced competency profile for nurses caring for patients with Rare Diseases and their families in the Spanish context, thereby enhancing their healthcare delivery.</div></div>","PeriodicalId":72917,"journal":{"name":"Enfermeria clinica (English Edition)","volume":"35 3","pages":"Article 102127"},"PeriodicalIF":0.0,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143569029","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Nurses’ perception of humanised care: Validation of the ECCOE-Es questionnaire 护士对人性化护理的感知:ECCOE-Es问卷的验证。
Pub Date : 2025-04-01 Epub Date: 2025-06-09 DOI: 10.1016/j.enfcle.2025.502250
Laia Wennberg-Capellades , Montserrat Rus-García , Laia Cruells-Francisco , Rosa María Collado-Cabezas , Xavier Teixidó-Huertas , Maria Luisa Martin-Ferreres

Aims

To adapt and validate for use in Spain the ECCOE questionnaire for assessing nurse caring behaviours from the perspective of nurses; to apply the adapted questionnaire to a sample of hospital registered nurses in Spain and to examine the perceptions of humanised care behaviours.

Methods

Multi-centre cross-sectional study. Validity evidence based on the ECCOE_Es internal structure through confirmatory factor analysis and convergent and divergent validity in the relationships with moral sensitivity and burnout, respectively. Reliability was also examined through Cronbach’s alpha and temporal stability with Pearson’s correlation of test scores. Descriptive and comparative analysis of nurses’ responses to the ECCOE_Es was performed.

Results

A total of 462 nurses’ questionnaires were analysed. Temporal stability (r = 0,908) and internal consistency were adequate (α > 0,76 for the subscales and α = 0,96 for the total scale). Confirmatory factor analysis supported the structure of the original instrument with 7 subscales. ECCOE-Es were positively correlated with moral sensitivity (r = 0,454) and negatively correlated with burnout (r = −0,265). Humanism subscale was perceived as the most important, whereas items related to individualised care were less frequently endorsed.

Conclusions

ECCOE’s Spanish adaptation has adequate psychometric properties, and its original properties and structure are confirmed as a suitable tool for assessing nurses’ perceptions of humanised care. Overall, they perceived themselves as delivering humanised care, there was a scope for improvement in this respect.
目的:适应和验证在西班牙使用ECCOE问卷从护士的角度评估护士护理行为;将调整后的调查问卷应用于西班牙医院注册护士的样本,并检查对人性化护理行为的看法。方法:多中心横断面研究。通过验证性因子分析获得基于ECCOE_Es内部结构的效度证据,以及分别与道德敏感性和职业倦怠关系的收敛效度和发散效度。信度也通过Cronbach's alpha和时间稳定性与Pearson测验分数的相关性进行检验。对护士对ECCOE_Es的反应进行描述性和对比性分析。结果:共对462份护士问卷进行分析。时间稳定性(r = 0,908)和内部一致性较好(子量表α > = 0,76,总量表α = 0,96)。验证性因子分析支持原始仪器的7个分量表结构。ECCOE-Es与道德敏感性正相关(r= 0.454),与职业倦怠负相关(r= - 0.265)。人文主义子量表被认为是最重要的,而与个性化护理相关的项目则较少得到认可。结论:ECCOE的西班牙语适应性具有足够的心理测量特性,其原始特性和结构被确认为评估护士对人性化护理的看法的合适工具。总的来说,他们认为自己提供了人性化的护理,在这方面还有改进的余地。
{"title":"Nurses’ perception of humanised care: Validation of the ECCOE-Es questionnaire","authors":"Laia Wennberg-Capellades ,&nbsp;Montserrat Rus-García ,&nbsp;Laia Cruells-Francisco ,&nbsp;Rosa María Collado-Cabezas ,&nbsp;Xavier Teixidó-Huertas ,&nbsp;Maria Luisa Martin-Ferreres","doi":"10.1016/j.enfcle.2025.502250","DOIUrl":"10.1016/j.enfcle.2025.502250","url":null,"abstract":"<div><h3>Aims</h3><div>To adapt and validate for use in Spain the ECCOE questionnaire for assessing nurse caring behaviours from the perspective of nurses; to apply the adapted questionnaire to a sample of hospital registered nurses in Spain and to examine the perceptions of humanised care behaviours.</div></div><div><h3>Methods</h3><div>Multi-centre cross-sectional study. Validity evidence based on the ECCOE_Es internal structure through confirmatory factor analysis and convergent and divergent validity in the relationships with moral sensitivity and burnout, respectively. Reliability was also examined through Cronbach’s alpha and temporal stability with Pearson’s correlation of test scores. Descriptive and comparative analysis of nurses’ responses to the ECCOE_Es was performed.</div></div><div><h3>Results</h3><div>A total of 462 nurses’ questionnaires were analysed. Temporal stability (r = 0,908) and internal consistency were adequate (α &gt; 0,76 for the subscales and α = 0,96 for the total scale). Confirmatory factor analysis supported the structure of the original instrument with 7 subscales. ECCOE-Es were positively correlated with moral sensitivity (r = 0,454) and negatively correlated with burnout (r = −0,265). <em>Humanism</em> subscale was perceived as the most important, whereas items related to individualised care were less frequently endorsed.</div></div><div><h3>Conclusions</h3><div>ECCOE’s Spanish adaptation has adequate psychometric properties, and its original properties and structure are confirmed as a suitable tool for assessing nurses’ perceptions of humanised care. Overall, they perceived themselves as delivering humanised care, there was a scope for improvement in this respect.</div></div>","PeriodicalId":72917,"journal":{"name":"Enfermeria clinica (English Edition)","volume":"35 3","pages":"Article 502250"},"PeriodicalIF":0.0,"publicationDate":"2025-04-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144276924","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
期刊
Enfermeria clinica (English Edition)
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