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European journal for person centered healthcare最新文献

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Person-Centred Healthcare versus Patient Centricity - what is the difference and how are pharmaceutical companies aiming to secure internal representation of the patient voice? 以人为中心的医疗保健与以患者为中心的医疗保健——有什么区别?制药公司如何确保患者声音的内部代表?
Pub Date : 2020-10-21 DOI: 10.5750/ejpch.v8i3.1897
Ankita Batla, J. Soon, R. Morton
The Sixth Annual Conference and Awards Ceremony of the European Society for Person Centered Healthcare (ESPCH6), dynamically co-created by the ESPCH and WPP Health Practice, was delivered earlier this year at the University of West London on 27 & 28 February 2020 [1]. The purpose of ESPCH6 was to debate how the reintroduction of the historic tenets of humanistic medicine/healthcare could take place within a data-driven modern context, with a laser-sharp focus on the pragmatic imperative of higher quality care at sustainable or lowered cost. The conference brought together a wide range of distinguished clinical and academic speakers, chairpersons, and key opinion leaders from across the globe, including the USA, Canada, Australia, Germany, Switzerland, Denmark, and, in the UK, colleagues from the University of Oxford, University of West London, Manchester Metropolitan University, Kingston University, St. George’s University of London, the University of Hull, and the University of Gloucester UK. Over ESPCH6’s two intensive days, 33 detailed presentations were delivered across 11 academic sessions, spanning a wide range of study areas of immediate relevance to the development and implementation of person-centred approaches within health and social care systems [1]. Notably, and as a direct function of ESPCH’s partnership with WPP Health Practice, a key characteristic of ESPCH6 was the inclusion, as speakers, of a wide range of expert patients and patient advocacy organisations, alongside a range of senior colleagues as speakers from the pharmaceutical and healthcare technology industries. In this Guest Editorial, we report and discuss the results of our recent interviews with senior members of the pharmaceutical industry, principally those who presented at ESPCH6, but also others. We demonstrate how pharmaceutical companies are stepping up to the personcentered care (PCC) agenda, and how their individual and collective approaches are adding value and momentum to the global PCC movement.
由ESPCH和WPP健康实践动态共同创建的欧洲以人为中心的医疗保健协会(ESPCH6)第六届年会和颁奖典礼于今年早些时候于2020年2月27日和28日在西伦敦大学举行。ESPCH6的目的是讨论如何在数据驱动的现代背景下重新引入人文医学/保健的历史原则,重点关注以可持续或低成本提供更高质量护理的务实必要性。会议汇集了来自世界各地的众多杰出临床和学术演讲者、主席和主要意见领袖,包括美国、加拿大、澳大利亚、德国、瑞士、丹麦,以及来自英国牛津大学、西伦敦大学、曼彻斯特城市大学、金斯顿大学、伦敦圣乔治大学、赫尔大学和英国格洛斯特大学的同事。在ESPCH6密集的两天里,11个学术会议上发表了33份详细的报告,涵盖了与卫生和社会保健系统中以人为本的方法的发展和实施直接相关的广泛研究领域。值得注意的是,作为ESPCH与WPP健康实践合作伙伴关系的直接职能,ESPCH6的一个关键特征是邀请了广泛的专家患者和患者倡导组织作为演讲者,以及来自制药和医疗保健技术行业的一系列资深同事作为演讲者。在这篇客座社论中,我们报告并讨论了我们最近对制药行业高级成员的采访结果,主要是那些在ESPCH6上发言的人,但也有其他人。我们展示了制药公司如何加快以人为本的护理(PCC)议程,以及他们的个人和集体方法如何为全球PCC运动增加价值和动力。
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引用次数: 0
Personhood and Disorders of Consciousness: Finding Room in Person-Centered Healthcare 人格与意识障碍:在以人为本的医疗保健中寻找空间
Pub Date : 2020-10-21 DOI: 10.5750/ejpch.v8i3.1868
Bianca Andrade, M. Azevedo
Advocates of the Person-Centered Healthcare (PCH) approach say that PCH is a response to a failure of caring for patients as persons. Nevertheless, there are many human subjects falling to fulfill the requirements of a traditional philosophical definition of personhood. Hence, if we take, PCH seriously, a greater clarification of the key terminology of PCH is urgently needed. It seems necessary, for instance, that the concept of the person should be extended in order to include those individuals with insipient or immature levels of consciousness, as well as those who are severely and permanently mentally handicapped. In this article, we will depart from some well-known philosophical concepts of what it means to be a person and try to offer a broader and more inclusive meaning.  We suggest that persons are human beings with a socially recognized biography, which implies to recognize as persons individuals with necessities, but also with narratives about their interests and claims, expressed sometimes by other people related to them. This is particularly the case of individuals that suffer from severe disorders of consciousness. For those, is not only care that matters; respect matters too. Caregivers should therefore not only sympathetically care for the well-being of these people; they should also be concerned to respect their interests and claims by interpreting them empathetically, in the light of their biographical story. Our conclusion is that, in order to be coherent, PCH must consider individuals with severe disorders of consciousness as persons and we think that our revised concept of personhood fits with this requirement.
以人为本的医疗保健(PCH)方法的倡导者说,PCH是对病人作为人照顾失败的反应。然而,仍有许多人类主体不符合传统哲学对人格定义的要求。因此,如果我们认真对待PCH,迫切需要对PCH的关键术语进行更大的澄清。例如,似乎有必要扩大人的概念,以便包括那些意识水平低下或不成熟的人,以及那些严重和永久智力残疾的人。在这篇文章中,我们将从一些众所周知的哲学概念出发,试图提供一个更广泛、更包容的意义。我们认为,人是具有社会认可的传记的人,这意味着要认识到,作为人,个人有必需品,但也有关于他们的利益和要求的叙述,有时是由与他们相关的其他人表达的。患有严重意识障碍的人尤其如此。对他们来说,重要的不仅仅是关心;尊重也很重要。因此,护理人员不仅应该同情地照顾这些人的福祉;他们还应该关心尊重他们的利益和要求,根据他们的传记故事,同情地解释他们。我们的结论是,为了保持连贯性,PCH必须将有严重意识障碍的个体视为人,我们认为我们修订的人格概念符合这一要求。
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引用次数: 1
Treatment Challenges, Priorities, and Relationship with Healthcare Providers in HIV Care: A Cross-Sectional Survey of Portuguese Adults Living with HIV 治疗的挑战,优先事项,并与艾滋病毒护理卫生保健提供者的关系:葡萄牙成人艾滋病毒感染者的横断面调查
Pub Date : 2020-10-21 DOI: 10.5750/ejpch.v8i3.1873
A. Antunes, I. Augusto, P. Parada, C. Okoli, A. Appiah, P. D. L. Rios
BACKGROUND: The World Health Organization’s definition of health focuses on health-related quality of life in all domains, not just the “absence of disease or infirmity”. We investigated various treatment challenges among People living with HIV (PLHIV) in Portugal. METHODS: We analyzed data for n=60 adult PLHIV with a confirmed diagnosis and on anti-retroviral therapy (ART) who participated in the 2019 Positive Perspectives Survey. Descriptive analyses were performed using R Version 3.6.1. RESULTS: Most participants were virally suppressed (97%), male (67%); <50 years (51%); and had ≥1 non-HIV comorbidity (70%). Overall, 15% reported trouble swallowing pills, 35% experienced ART side effects, 22% felt daily oral ART limited their life, 25% were stressed by their dosing schedule, 33% said daily oral dosing cued bad memories, while 63% said daily dosing reminded them of their HIV. These challenges were associated with treatment-avoidance behaviors; PLHIV reported missing ≥1 ART dose within the past month because of food requirements 27%, side effects 12%, concerns about long-term ART impacts 10%, and problems swallowing 5%. Overall, 73% were open to taking long-acting, nondaily ART if they remained virologically controlled. Only 35% overall perceived no communication barriers with their HCPs; these individuals had higher prevalence of optimal physical (86% vs. 49%, p=0.011) and mental health (86% vs. 36%, p<0.001) than those with a perceived barrier. CONCLUSION: For some PLHIV, taking pills daily was linked with diverse emotional challenges, including pill fatigue and anxiety. Clinicians should consider patient preferences when prescribing ART and engage PLHIV in treatment decisions.
背景:世界卫生组织对健康的定义侧重于所有领域与健康有关的生活质量,而不仅仅是“没有疾病或虚弱”。我们调查了葡萄牙艾滋病毒感染者(PLHIV)的各种治疗挑战。方法:我们分析了参加2019年积极观点调查的n=60名确诊并接受抗逆转录病毒治疗(ART)的成年PLHIV患者的数据。描述性分析使用R Version 3.6.1进行。结果:大多数参与者病毒被抑制(97%),男性(67%);<50岁(51%);非hiv合并症≥1例(70%)。总体而言,15%的人报告吞咽药丸有困难,35%的人经历过抗逆转录病毒治疗的副作用,22%的人认为每天口服抗逆转录病毒治疗限制了他们的生活,25%的人对他们的给药计划感到压力,33%的人说每天口服给药会导致糟糕的记忆,63%的人说每天给药会让他们想起自己的艾滋病毒。这些挑战与治疗回避行为有关;PLHIV报告在过去一个月内由于食物需求27%,副作用12%,担心长期抗逆转录病毒治疗影响10%,吞咽问题5%,缺少≥1次抗逆转录病毒治疗剂量。总体而言,如果病毒学得到控制,73%的人愿意服用长效非每日抗逆转录病毒药物。总体而言,只有35%的人认为与他们的医护人员没有沟通障碍;这些个体的最佳身体健康患病率(86%对49%,p=0.011)和心理健康患病率(86%对36%,p<0.001)高于有感知障碍的个体。结论:对于一些PLHIV患者,每天服药与多种情绪挑战有关,包括服药疲劳和焦虑。临床医生在开抗逆转录病毒治疗处方时应考虑患者的偏好,并将hiv纳入治疗决策。
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引用次数: 2
Moving past phronesis: clinical reasoning in person-centered care 超越现实:以人为本的临床推理
Pub Date : 2020-10-21 DOI: 10.5750/ejpch.v8i3.1860
S. Copeland
Phronesis has been a popular concept among those attempting to categorize and understand the kind of reasoning that doctor’s employ in the clinic. However, this paper argues that it is not the best possible concept for understanding the kind of reasoning necessary for person-centred care. First, it attends to what is lacking in that concept, and then it proposes an alternative (the concept of effectual reasoning) to demonstrate the potential for a better understanding of clinical reasoning as both open-ended and strategic. That approach is better than phronesis because it allows us to address both relational aspects of autonomy, and the need to center all persons, as such, including healthcare practitioners as well as patients, in healthcare.
在那些试图对医生在诊所使用的推理进行分类和理解的人中间,Phronesis一直是一个流行的概念。然而,本文认为,这并不是理解以人为本的护理所必需的那种推理的最佳概念。首先,它关注这个概念中所缺乏的东西,然后它提出了一个替代方案(有效推理的概念),以展示更好地理解临床推理作为开放式和战略性的潜力。这种方法比phronesis更好,因为它使我们能够解决自主性的关系方面,以及在医疗保健中以所有人为中心的需要,包括医疗保健从业人员和患者。
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引用次数: 2
A non-modern vision: facts and values in psychotherapy 非现代视角:心理治疗中的事实与价值
Pub Date : 2020-10-21 DOI: 10.5750/ejpch.v8i3.1867
Henrik Berg
Evidence-based practice in psychology is the prevailing regulatory principle for psychotherapy practice. This paper criticises the notion of facts and values in evidence-based practice in psychology and related concepts. More particularly, it aims at showing that values-based practice follows a modern scheme contrasting facts and values sharply. Person-centred medicine is suggested as a more viable option. Person-centred medicine follows a non-modern scheme in which facts and values are integrated. This move, it is argued, will lead to a more humanistic conception of the patient and psychotherapy.
心理学中的循证实践是心理治疗实践的主流规范原则。本文对心理学循证实践中的事实和价值概念及其相关概念进行了批判。更具体地说,它旨在表明基于价值的实践遵循一个现代的方案,将事实和价值进行鲜明对比。建议以人为本的医疗是一种更可行的选择。以人为本的医学遵循一种非现代的方案,将事实和价值观结合起来。这一举动,有人认为,将导致一个更人性化的病人和心理治疗的概念。
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引用次数: 1
there is nothing wrong with you 你没有任何问题
Pub Date : 2020-10-21 DOI: 10.5750/ejpch.v8i3.1887
J. Pheby
No abstract
没有抽象的
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引用次数: 2
Medical Commentary on Pheby, J. (2020). there cannot be treatment without judgement EJPCH 8 (3) 415-417 医学评论Pheby, J.(2020)。没有判断就不能治疗EJPCH 8 (3) 415-417
Pub Date : 2020-10-21 DOI: 10.5750/ejpch.v8i3.1890
D. Pheby
No abstract
没有抽象的
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引用次数: 0
Medical Commentary on Pheby, J. (2020). lifestyle and degeneracy EJPCH 8 (3) 424-426 医学评论Pheby, J.(2020)。生活方式与堕落[j] .中华医学杂志8 (3):424-426
Pub Date : 2020-10-21 DOI: 10.5750/ejpch.v8i3.1894
D. Pheby
No abstract
没有抽象的
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引用次数: 0
Explaining epistemic injustice in medicine: tightrope walking, double binds, paths of least resistance and the invisibility of power positions to those who occupy them 解释医学中认知上的不公正:走钢丝、双重束缚、阻力最小的道路以及权力位置对占据这些位置的人的隐形性
Pub Date : 2020-10-21 DOI: 10.5750/ejpch.v8i3.1861
Garrath Williams
Person-centered healthcare requires providers to appreciate the knowledge and perspectives of patients. Effective and appropriate care depends on such knowledge. Medical institutions can only function well when they acknowledge patients’ own experiences. Yet a range of evidence shows that professionals and organisations often ignore patients’ own knowledge about their condition and treatment. This article aims to explain why this epistemic injustice occurs and persists. (Epistemic: to do with knowledge. Justice, because professionals and organisations do wrong when they bypass or deny patients’ own knowledge.) The explanation focuses on problems of power and accountability. Illness is a disempowering experience, partly for bodily and psychological reasons, partly because the ill person depends on others for help, partly because professionals and organisations are specially empowered in order that they may help. Occupying a lesser power position, patients often walk a tightrope between conflicting demands and may be caught in double binds: situations where every possibility for action risks bad outcomes. By contrast, professionals need not notice their greater power position and how this opens up paths of least resistance, whereby it is easy to ignore or belittle patients’ knowledge. When it is hard for patients to voice their “complaints” (the details of their illness, their sense of being badly treated), accountability falters. Healthcare providers may see themselves as expert and responsible, even as they fail many persons they are meant to help.
以人为本的医疗保健要求提供者了解患者的知识和观点。有效和适当的护理取决于这些知识。医疗机构只有承认病人自己的经历,才能发挥良好的作用。然而,一系列证据表明,专业人士和组织经常忽视患者自己对病情和治疗的了解。本文旨在解释为什么这种认识上的不公正会发生并持续下去。Epistemic:与知识有关的。正义,因为专业人士和组织回避或否认患者自己的知识是错误的。)解释的重点是权力和问责问题。疾病是一种让人丧失能力的经历,部分原因是身体和心理上的,部分原因是病人依赖他人的帮助,部分原因是专业人士和组织被特别授权,以便他们可以提供帮助。患者处于权力较低的位置,经常在相互冲突的需求之间走钢丝,可能陷入双重束缚:每一种可能的行动都有可能带来不好的结果。相比之下,专业人士不需要注意到他们更大的权力地位,也不需要注意到这为他们开辟了一条阻力最小的道路,从而很容易忽视或贬低患者的知识。当病人很难说出他们的“抱怨”(他们疾病的细节,他们被虐待的感觉)时,问责制就会动摇。医疗保健提供者可能认为自己是专家和负责任的,即使他们辜负了许多他们想要帮助的人。
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引用次数: 3
lifestyle and degeneracy 生活方式和堕落
Pub Date : 2020-10-21 DOI: 10.5750/ejpch.v8i3.1893
J. Pheby
No abstract
没有抽象的
{"title":"lifestyle and degeneracy","authors":"J. Pheby","doi":"10.5750/ejpch.v8i3.1893","DOIUrl":"https://doi.org/10.5750/ejpch.v8i3.1893","url":null,"abstract":"No abstract","PeriodicalId":72966,"journal":{"name":"European journal for person centered healthcare","volume":"20 1","pages":"424-426"},"PeriodicalIF":0.0,"publicationDate":"2020-10-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"75313268","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
期刊
European journal for person centered healthcare
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