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Groundwork for a metaphysic of person-centred care: a contribution from Ordinary Language Philosophy 以人为本的护理形而上学的基础:来自日常语言哲学的贡献
Pub Date : 2020-08-11 DOI: 10.5750/EJPCH.V8I1.1820
B. Fulford
This article explores the meaning of person-centred care using an approach based on the ordinary language philosophy of J.L. Austin and others of the mid-twentieth Century ‘Oxford School’. Section I outlines the essential feature of ordinary language philosophy as a shift of attention from definition to use: ordinary language philosophy explores the meanings of terms (and their inherent conceptual challenges) not by the traditional philosophical approach of ever-more-careful definition but by exploring how the terms in question are actually used in everyday (i.e. unreflective) contexts. Section II explores the conceptual challenges presented by person-centred care by applying three particular components of ordinary language philosophy (philosophical field work, outputs as more complete views, and methodological teamwork) to two exemplar papers. Section III describes how the groundwork provided by ordinary language philosophy of the kind exemplified by Section II has been built on successfully in one particular form of person-centred care, namely the person- values -centred care of values-based practice. The chapter concludes with some of the limitations and challenges presented by an ordinary language philosophy of person-centred care. Of particular concern in the light of Isaiah Berlin’s work on the ‘challenge of pluralism’ is the inherent and irreducible pluralism of person-centred care.
本文以J.L. Austin和其他二十世纪中期“牛津学派”的普通语言哲学为基础,探讨了以人为本的护理的意义。第一节概述了日常语言哲学的基本特征,即注意力从定义转向使用:日常语言哲学探索术语的意义(及其固有的概念挑战),不是通过传统的哲学方法,即更仔细的定义,而是通过探索所讨论的术语在日常(即非反思)语境中的实际使用方式。第二部分通过将日常语言哲学的三个特定组成部分(哲学领域工作、作为更完整观点的输出和方法论团队合作)应用于两篇范例论文,探讨了以人为本的护理所带来的概念挑战。第三节描述了由第二节所例证的那种普通语言哲学所提供的基础是如何成功地建立在一种特定形式的以人为本的护理之上的,即以价值观为基础的实践的以人为本的护理。本章总结了以人为本的日常语言哲学提出的一些局限性和挑战。根据以赛亚·伯林关于“多元化的挑战”的工作,特别值得关注的是以人为本的护理的固有和不可简化的多元化。
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引用次数: 3
The Rise of Complementary Medicine and the Materialist Stance of Biomedicine 补充医学的兴起与生物医学的唯物主义立场
Pub Date : 2020-08-11 DOI: 10.5750/EJPCH.V8I1.1827
H. Walach
It is puzzling to observe that at a time when medicine has allegedly made huge progress in combating disease and increasing human wellbeing a counter-movement has arisen: “Complementary and Alternative Medicine  (CAM)”. Sometimes also called “Integrative Medicine” it is quite popular not only in pockets of Society, but across a large part of populations in Western countries. Media campaigns have been started to curb its success. CAM has to be seen against the mainstream background in medicine which has adopted the machine-paradigm proposed by Descartes. While this has been successful within acute medicine, it is less successful in dealing with chronic, functional or lifestyle diseases. By default, the machine paradigm ignores individuality, agency, the psyche, and has placed a taboo on spirituality. This happens, because the mainstream model of modern medicine buys into the materialism that is inherent in the machine paradigm and currently prevalent naturalism. In this sense, CAM can be seen as a counter-movement, mainly driven by public demand, but also by some renegade scientists. It offers the chance to articulate alternative views of the human organism, of human suffering and disease. It allows the discussion of spirituality and other topics that are shunned by mainstream medicine. Complexity science might be a bridge, which has started to understand that that human organism is vastly more complex than the simplistic machine model would have it. We will likely need a new paradigm that can integrate all those elements neglected in the current mainstream model, most notable spirituality and the notion of agency and freedom.
令人费解的是,正当医学据称在对抗疾病和增进人类福祉方面取得巨大进步的时候,却出现了一场相反的运动:“补充和替代医学(CAM)”。有时也被称为“中西医结合”,它不仅在社会上很受欢迎,而且在西方国家的大部分人口中也很受欢迎。媒体活动已经开始遏制它的成功。CAM必须在采用笛卡儿提出的机器范式的医学主流背景下看待。虽然这种方法在急症治疗中取得了成功,但在治疗慢性、功能性或生活方式疾病方面却不太成功。默认情况下,机器范式忽略了个性、代理、心灵,并对灵性设置了禁忌。之所以会出现这种情况,是因为现代医学的主流模式接受了机器范式和当前流行的自然主义所固有的唯物主义。从这个意义上说,CAM可以被视为一种反运动,主要由公众需求驱动,但也受到一些叛变的科学家的推动。它提供了阐明人类机体、人类苦难和疾病的不同观点的机会。它允许讨论灵性和其他主流医学回避的话题。复杂性科学可能是一座桥梁,让我们开始认识到,人类的有机体比简单的机器模型要复杂得多。我们可能需要一种新的范式,能够整合当前主流模式中被忽视的所有元素,最引人注目的是灵性、能动性和自由的概念。
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引用次数: 1
The Person Is The Organism: Overcoming The Nature-Culture Dichotomy In Person Centred Healthcare 人是有机体:在以人为本的医疗保健中克服自然-文化二分法
Pub Date : 2020-08-11 DOI: 10.5750/EJPCH.V8I1.1824
R. Hamilton
Person Centred Healthcare (PCH) arose in the context of gerontology but has now broadened its impact to the wider healthcare domain. While there is much to celebrate in this, there are some serious conceptual flaws in the framework which have only ramified as it continues to grow. Central to these flaws is a dichotomous view of the distinction between persons as the subjects of PCH and the biological organism which is the concern of the traditional bio-medical model. Most worryingly this has led some PCH advocates to flirt with unscientific and potentially dangerous Complementary and Alternative therapies. This article examines this dichotomy and suggests, following Tim Ingold, that ‘the person is the organism’ but that to properly understand this we need a more nuanced view of both persons and organisms which a developmentalist perspective makes possible.
以人为本的医疗保健(PCH)出现在老年学的背景下,但现在已扩大其影响到更广泛的医疗保健领域。虽然这有很多值得庆祝的地方,但该框架中存在一些严重的概念缺陷,随着它的继续发展,这些缺陷只会产生分支。这些缺陷的核心是对作为PCH主体的人与传统生物医学模式所关注的生物有机体之间区别的二分观点。最令人担忧的是,这导致一些PCH的倡导者对不科学和潜在危险的补充和替代疗法进行了调情。这篇文章研究了这种二分法,并提出,按照Tim Ingold的说法,“人是有机体”,但为了正确理解这一点,我们需要对人和有机体都有更细致的看法,而发展主义的观点使这一点成为可能。
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引用次数: 2
Person-Centered Care as the New Professionalism - Raising the Bar from the Lower Denominator of Legally Acceptable Regulatory Competence to the Higher Numerator of Clinical Excellence 以人为本的护理作为新的专业精神——将标准从法律上可接受的监管能力的低分母提高到临床卓越的高分子
Pub Date : 2020-08-11 DOI: 10.5750/EJPCH.V8I1.1880
A. Miles
Professor of Person Centred Care & Co-Director, European Institute for Person Centred Health and Social Care, School of Biomedical Sciences, University of West London UK / Senior Vice President/Secretary General, European Society for Person Centered Healthcare & Editor-in-Chief, European Journal for Person Centered Healthcare & Founding Editor, Journal of Evaluation in Clinical Practice (1994-2019) / Honorary Professor of Person Centred Care, Centre for Public Engagement, Joint Faculty of Health, Social Care and Education, St. George’s University Teaching Hospital Campus, University of London, UK
英国西伦敦大学生物医学科学学院欧洲以人为中心的健康和社会护理研究所教授兼联合主任/欧洲以人为中心的医疗保健协会高级副总裁/秘书长兼欧洲以人为中心的医疗保健杂志主编兼临床实践评估杂志创始编辑(1994-2019)/公众参与中心以人为中心的护理名誉教授,英国伦敦大学圣乔治大学教学医院校区卫生、社会关怀和教育联合学院
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引用次数: 3
An Ethical Critique of Person-Centred Healthcare 以人为本的医疗保健的伦理批判
Pub Date : 2020-08-11 DOI: 10.5750/EJPCH.V8I1.1818
M. Arnold, I. Kerridge, W. Lipworth
This paper explores the counterfactual aspects of Person-Centred Healthcare (PCH). PCH as promoted appears to have self-evident value as an expression of humanism in medical care, but this can be deceptive. Despite its rhetorical appeal, there is limited evidence that it improves either the experience or outcomes of healthcare. More problematically, it is commonly overlooked that the philosophical assumptions upon which PCH rests carry with them other, more malign ideologies and healthcare movements such as preference-driven healthcare, extreme libertarianism and consumerism. This – as distinct from promoting humanism - has the effect of creating perverse clinical incentives that are driven by patient preferences, while simultaneously constraining these same patients’ autonomy within an economically rationalised neoliberal system of healthcare. It also works against consideration of social interests and the values privileged by communities. None of this is an argument against promoting humanism in medicine and taking seriously patients’ lived experiences; rather it is a call for a more critical approach to the bioethics of PCH - one aware of the economics and politics of healthcare.
本文探讨了以人为本的医疗保健(PCH)的反事实方面。作为一种医疗人文主义的表达,PCH的推广似乎具有不言而喻的价值,但这可能具有欺骗性。尽管它在修辞上很有吸引力,但很少有证据表明它改善了医疗保健的体验或结果。更有问题的是,人们通常忽视了PCH所依赖的哲学假设,即其他更邪恶的意识形态和医疗保健运动,如偏好驱动的医疗保健、极端自由主义和消费主义。这与促进人文主义截然不同,它产生了由患者偏好驱动的反常临床激励机制,同时在经济上合理化的新自由主义医疗体系中限制了这些患者的自主权。它也不利于考虑社会利益和社区享有特权的价值观。这些都不是反对在医学中提倡人文主义和认真对待病人的生活经历的理由;相反,它呼吁对PCH的生物伦理采取更批判性的方法——一个意识到医疗保健的经济和政治的方法。
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引用次数: 9
What is this thing called “health”? An ontology for person-centred care 所谓的“健康”是什么?以人为本的护理本体
Pub Date : 2020-08-11 DOI: 10.5750/EJPCH.V8I1.1825
Alexandra Pârvan
In this article person-centredness is understood as a method, and ontology is presented as one of its building tools. Ontology is at work in clinicians and patients in the form of underlying conceptions about the mode of existence of realities pertinent to healthcare, such as: disease, health, body, or person. These unrecognized assumptions affect the communication of diagnosis, the design of treatment, the therapeutic relation, patient self-care, or patient positioning towards treatment. The ontology “instinctively” at work in both clinicians and patients is identified, discussed, and shown to have ancient roots (referred to as the “Platonic split”), to conflict with what can count as person-centred care today, and be unlikely to work well in long-term treatment. The clinical complications it generates are illustrated with possible cases of “substantialization” of disease; differences between this metaphysical concept, denoting a specific form of understanding and living with disease and various psychological terms ( viz ., externalization, somatisation, denial) are explained. The article, then, introduces an alternative ontology, called “transgressive” and considered more likely to facilitate health-with-disease in the long-term. It clarifies what distinguishes it from other approaches in the health-within-illness literature, and analyses two real-life cases of two very different chronic conditions that illustrate the “transgressive ontology” and its health-producing effects. Adopting this health-generating ontology is yet one other way to provide what I call “metaphysical care” or self-care.
在这篇文章中,以人为本被理解为一种方法,本体被提出作为其构建工具之一。本体论在临床医生和患者中发挥作用,其形式是关于与医疗保健相关的现实存在模式的潜在概念,例如:疾病、健康、身体或人。这些未被认识到的假设影响了诊断沟通、治疗设计、治疗关系、患者自我护理或患者对治疗的定位。在临床医生和病人身上“本能地”起作用的本体论被识别、讨论,并被证明具有古老的根源(被称为“柏拉图式分裂”),与今天可以算作以人为本的护理相冲突,并且不太可能在长期治疗中发挥作用。它产生的临床并发症以疾病“实体化”的可能病例说明;解释了这一形而上学概念与各种心理学术语(即外化、躯体化、否认)之间的差异,这一概念表示一种特定形式的理解和与疾病共存。然后,这篇文章介绍了另一种本体论,称为“越轨”,被认为更有可能促进长期的疾病健康。它阐明了它与疾病中的健康文献中的其他方法的区别,并分析了两种截然不同的慢性病的两个现实案例,这些案例说明了“越界本体论”及其对健康的影响。采用这种产生健康的本体论是提供我所说的“形而上关怀”或自我关怀的另一种方式。
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引用次数: 1
Anatomy of positive messages in healthcare consultations: component analysis of messages within 22 randomised trials 医疗咨询中积极信息的剖析:22个随机试验中信息的成分分析
Pub Date : 2020-07-30 DOI: 10.5750/EJPCH.V7I4.1788
J. Howick, E. Lyness, C. Albury, K. Smith, H. Dambha‐Miller, Mohana Ratnapalan, J. Vennik, Stephanie Hughes, J. Bostock, L. Morrison, C. Mallen, H. Everitt, Sue Dean, T. Levett-Jones, S. Ivynian, P. Little, F. Bishop
Background: Patients desire both honesty and hope from their healthcare practitioners. A recent systematic review of 22 randomised trials found that healthcare practitioners who deliver positive messages improve patient outcomes, most notably by reducing pain. However, the verbal and non-verbal components of positive messages within these trials varied greatly, which presents a barrier to the implementation of person-centered care. Objective: This study investigates common components of positive messages within the reviewed trials. Methods: We extracted the verbal and non-verbal language used to deliver positive messages in 22 trials from a recent systematic review. Three independent researchers coded the components of the messages using content analysis. Results: Positive messages in our sample had between 2 and 18 different components. These were clustered into 5 areas: specifying the positive outcomes, making the message personal, drawing on associations and meanings, providing a supportive psychological context and providing a rationale. Messages were reinforced through repetition in half the studies. Within the clusters, the most common components of positive messages were suggestions of specific effects (18 studies) and personalised formulations (15 studies). Most studies did not describe the components of positive messages adequately. Conclusions: Positive messages within randomized trials are complex interventions, with most including strong suggestions about specific effects, presented confidently and made personally relevant to the individual patient. Future trials of positive messages should report all components of these interventions.
背景:患者希望从他们的保健医生诚实和希望。最近一项对22项随机试验的系统回顾发现,传递积极信息的医疗从业人员可以改善患者的治疗效果,尤其是减轻疼痛。然而,在这些试验中,积极信息的语言和非语言成分差异很大,这对以人为本的护理的实施构成了障碍。目的:本研究探讨在回顾试验中积极信息的共同组成部分。方法:我们从最近的系统综述中提取了22项试验中用于传递积极信息的口头和非口头语言。三位独立的研究人员使用内容分析对这些信息的组成部分进行编码。结果:我们样本中的积极信息有2到18种不同的成分。这些被集中在5个方面:明确积极的结果,使信息个性化,利用联系和意义,提供一个支持性的心理背景和提供一个理由。在一半的研究中,信息通过重复得到强化。在这些集群中,积极信息的最常见组成部分是具体效果的建议(18项研究)和个性化配方(15项研究)。大多数研究没有充分描述积极信息的组成部分。结论:随机试验中的积极信息是复杂的干预措施,其中大多数包括对具体效果的强烈建议,自信地提出,并与个体患者个人相关。未来的积极信息试验应报告这些干预措施的所有组成部分。
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引用次数: 5
The medical consultation – systemic-solution-oriented and person-centred 医疗咨询——以系统解决方案为导向,以人为本
Pub Date : 2020-07-29 DOI: 10.5750/EJPCH.V7I4.1784
B. Kissling, P. Ryser
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引用次数: 0
HIV – “an uninvited visitor"; a qualitative study of HIV-infected African migrants with missed appointments in an outpatient clinic in Denmark 艾滋病毒——“不速之客”;在丹麦,对感染艾滋病毒的非洲移民在门诊诊所错过预约的定性研究
Pub Date : 2020-07-29 DOI: 10.5750/EJPCH.V7I4.1782
C. Dyrehave, C. Wejse, H. Maindal, L. Rodkjaer
Background: Lower adherence and lower retention to HIV-care among migrant populations is an emerging problem among people with HIV, probably due to social and cultural disparities. The aim was to explore reasons for missed appointments and non-adherence to treatment among African HIV-infected migrants in Denmark to identify important areas for optimizing healthcare. Method: We conducted a qualitative study and semi-structured interviews were carried out with 13 HIV-infected African migrants who had missed appointments in the outpatient clinic. Data were analyzed using thematic analysis. Results: The major finding was that participants experienced that the HIV diagnosis was accompanied by a complex life situation and patients faced several challenges constituting barriers to non-adherence and retention to care. Five themes emerged: (1) Trauma, (2) Religion, (3) HIV-related stigma, (4) Loneliness/lack of support and (5) Competing problems. The lack of acceptance of HIV was a key aspect across all themes. Complexity and social context of patients’ lives added to the challenges, as well as the hospital setting not providing a health literacy responsive environment. Conclusion: There are several barriers at both individual, social and system level to adherence to treatment and care, thus it is important to address the specific cultural background and specific conditions of life of patients infected with HIV. Future development of migrant-friendly interventions should be more person-centered and socially and culturally targeted to increase attendance, adherence and health literacy.
背景:移民人群对艾滋病毒护理的依从性和坚持性较低是艾滋病毒感染者中一个新出现的问题,可能是由于社会和文化差异。目的是探讨在丹麦感染艾滋病毒的非洲移民错过预约和不坚持治疗的原因,以确定优化医疗保健的重要领域。方法:我们进行了定性研究和半结构化访谈13艾滋病毒感染的非洲移民谁错过了门诊预约。数据采用专题分析进行分析。结果:主要发现是参与者经历了HIV诊断伴随着复杂的生活状况,患者面临着一些挑战,这些挑战构成了不坚持和保留护理的障碍。出现了五个主题:(1)创伤,(2)宗教,(3)艾滋病相关的耻辱,(4)孤独/缺乏支持和(5)竞争问题。缺乏对艾滋病毒的接受是所有主题的一个关键方面。患者生活的复杂性和社会背景,以及医院环境没有提供健康素养响应环境,都增加了挑战。结论:HIV感染者在坚持治疗和护理方面存在着个体、社会和系统层面的障碍,因此解决HIV感染者特定的文化背景和特定的生活条件是很重要的。对移徙者友好的干预措施的未来发展应更加以人为本,并以社会和文化为目标,以提高出勤率、依从性和卫生素养。
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引用次数: 1
PROF DOC in Person Centred Care UWL 以人为本护理博士教授
Pub Date : 2020-07-29 DOI: 10.5750/EJPCH.V7I4.1798
A. Williamson
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引用次数: 0
期刊
European journal for person centered healthcare
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