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Stepwise development of an implementation protocol to support the prescription of Exercise = Medicine by clinicians using the Implementation Mapping approach. 逐步制定实施方案,以支持临床医生使用实施映射方法开具运动=医学处方。
IF 2.7 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-10-27 eCollection Date: 2025-01-01 DOI: 10.3389/frhs.2025.1645456
F van Nassau, J Nauta, A J Bouma, L A Krops, I van den Akker-Scheek, R L Diercks, J de Jong, H Leutscher, M Stevens, S van Twillert, W van Mechelen, J Zwerver, E A L M Verhagen, L H V van der Woude, H van Keeken, H P van der Ploeg, R Dekker

Introduction: Several barriers, such as lack of time, knowledge and support, hinder clinicians from providing an individually tailored physical activity (PA) prescription and referral to their patients. As a result, "exercise is medicine" (E = M) is not systematically implemented in clinical care today. Many studies have identified facilitators and barriers to implementation, yet linking these factors to tailored implementation strategies is still an under-researched area. Therefore, this study aimed to apply Implementation Mapping to develop an implementation protocol to support the individually tailored PA prescription in hospital care.

Methods: We used strong stakeholder participation and, we applied the five tasks of the systematic Implementation Mapping approach to match implementation strategies to implementation barriers and facilitators identified through interviews with clinicians working at two university hospitals in the Netherlands.

Results: We identified clinicians as primary actors. Secondary actors were managers of the departments and stakeholders in the broader context. For each actor group, performance objectives were defined. We matched previously identified facilitators and barriers to theory and evidence-informed implementation strategies from the Effective Practice and Organisation of Care taxonomy using the CFIR Strategy Matching Tool. Next, we translated these implementation strategies (e.g., active learning, audit, and feedback, technical assistance, peer education) into practical activities to support the implementation of the E = M tool, such as training for clinicians, creating overviews of possible local exercise referral options, and appointing role models for clinicians. Lastly, these activities were bundled into an implementation protocol. The implementation protocol consisted of a set of implementation activities to support and guide clinicians during the adoption, implementation, and sustainability process of the prescription of E = M. All activities were supported by implementation tools, practical applications, and materials while allowing tailoring to the specific clinical context.

Discussion/conclusion: This study illustrates the application of Implementation Mapping to design an implementation protocol to support and guide the prescription of E = M by clinicians in the hospital environment, using strong stakeholder participation in the development process. The stepwise development of the implementation protocol can serve as an example for researchers or practitioners preparing for E = M implementation.

一些障碍,如缺乏时间、知识和支持,阻碍了临床医生向患者提供量身定制的体育活动(PA)处方和转诊。因此,“运动就是药”(E = M)在当今的临床护理中没有得到系统的实施。许多研究已经确定了实施的促进因素和障碍,但将这些因素与量身定制的实施战略联系起来仍然是一个研究不足的领域。因此,本研究旨在应用实施映射来制定实施协议,以支持医院护理中个性化定制的PA处方。方法:我们使用了强有力的利益相关者参与,我们应用了系统实施映射方法的五项任务,通过与荷兰两所大学医院的临床医生的访谈,将实施战略与实施障碍和促进因素相匹配。结果:我们确定临床医生为主要行为者。次要行为者是部门管理者和更广泛背景下的利益相关者。对于每个演员组,定义了绩效目标。我们使用CFIR策略匹配工具匹配了以前确定的理论和循证实施策略的促进因素和障碍,这些策略来自有效实践和护理组织分类。接下来,我们将这些实施策略(例如,主动学习、审计和反馈、技术援助、同伴教育)转化为实际活动,以支持E = M工具的实施,例如对临床医生的培训,创建可能的当地运动推荐选项的概述,以及为临床医生指定榜样。最后,这些活动被捆绑到一个实现协议中。实施方案包括一套实施活动,以支持和指导临床医生在E = M处方的采用、实施和可持续性过程中。所有活动都由实施工具、实际应用程序和材料支持,同时允许针对特定的临床环境进行剪裁。讨论/结论:本研究说明了应用实施映射来设计一个实施协议,以支持和指导临床医生在医院环境中使用E = M处方,在开发过程中使用强大的利益相关者参与。实现协议的逐步发展可以作为准备E = M实现的研究人员或实践者的示例。
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引用次数: 0
Construction of an integrated treatment and management model for psychiatric emergency and intensive care units in a specialized psychiatric hospital: practice of subspecialty development. 精神专科医院急诊科与重症监护室一体化治疗管理模式的构建——亚专科发展的实践
IF 2.7 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-10-27 eCollection Date: 2025-01-01 DOI: 10.3389/frhs.2025.1691858
Yi-Chao Wang, Hui Yu, Fu-Gang Luo, Hong-Mei Wang

Background: Psychiatric patients admitted through emergency pathways often presented with severe comorbid physical illnesses, which posed challenges for timely diagnosis and effective management in psychiatric specialty hospitals. To address this gap, our hospital established an integrated model that linked the Psychiatric Emergency Department (PED) with the Psychiatric Intensive Care Unit (PICU), aiming to create a continuous and coordinated emergency-critical care system.

Description of the model: The PED-PICU integrated model was developed through progressive institutional innovations, including the establishment of a dedicated PICU, functional integration of the PED, and the creation of specialized rapid-response centers. This model enabled early identification of critical conditions, seamless transfer between emergency and intensive care, and continuity of treatment until recovery.

Experience and outcomes: In practice, the model improved coordination between emergency and critical care teams, facilitated timely interventions, and ensured that patients with severe psychiatric and medical comorbidities received comprehensive management within a single institutional framework. The integration also strengthened multidisciplinary collaboration and highlighted the unique role of psychiatric specialty hospitals in managing complex emergencies.

Conclusions: The PED-PICU integrated model represented a pioneering and unique practice in psychiatric specialty hospitals. By closing the gaps between emergency stabilization and intensive care, it established a closed-loop system that might serve as a valuable reference for developing similar subspecialties and improving emergency-critical care pathways in mental health services.

背景:经急诊就诊的精神科患者往往伴有严重的躯体疾病共病,这给精神科专科医院的及时诊断和有效管理带来了挑战。为了解决这一差距,我院建立了精神科急诊科(PED)与精神科重症监护病房(PICU)相结合的综合模式,旨在创建一个连续和协调的紧急重症护理系统。模式描述:PED-PICU一体化模式是通过逐步的制度创新发展起来的,包括建立一个专门的PICU, PED的功能整合,以及创建专门的快速反应中心。这种模式能够及早发现危重情况,在急诊和重症监护之间无缝转移,并持续治疗直至康复。经验和成果:在实践中,该模式改善了急诊和重症监护小组之间的协调,促进了及时干预,并确保患有严重精神疾病和医疗合并症的患者在单一机构框架内得到全面管理。整合还加强了多学科合作,突出了精神病专科医院在处理复杂紧急情况方面的独特作用。结论:PED-PICU一体化模式在精神科专科医院具有开创性和独特的实践意义。通过缩小紧急稳定与重症监护之间的差距,建立了一个闭环系统,可以为发展类似的亚专科和改善精神卫生服务中的紧急重症监护途径提供有价值的参考。
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引用次数: 0
Working between systems: an umbrella review of care navigator roles and responsibilities. 系统之间的工作:护理导航员角色和责任的总体审查。
IF 2.7 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-10-24 eCollection Date: 2025-01-01 DOI: 10.3389/frhs.2025.1632307
Shalini Wijekulasuriya, Leanne Wahlstrom, Suzanne Lewis, Zoi Triandafilidis, Christina Rojas, Nicholas Goodwin, Antonina Semkina, Annette Boaz, Caroline Norrie, Yvonne Zurynski

Background: A growing workforce is being employed internationally to assist patients in navigating between health and social care providers. These roles operate under various care models including patient navigation, social prescribing, and care coordination; tasks and responsibilities of care navigators are highly variable and often lack clarity. Understanding the similarities and differences amongst care navigator roles could improve the embedding of roles into health and social care systems and legitimise professional identity. This umbrella review synthesises evidence on care navigator roles, role titles, tasks, and functions, across diverse models that integrate care at the health and social care interface.

Methods: MEDLINE, Embase, CINAHL, Scopus, and PsycINFO were searched from 1 Jan 2019-31 May 2024. Reviews that used systematic, scoping, or other rigorous methodology were included if they discussed the role or function of workers who coordinated services involving health and social care. Data were synthesised using an inductive thematic approach.

Results: Twenty-six review articles were included, which synthesised 824 unique primary sources. Seventy-eight unique role titles were used to describe care navigators, which aggregated under seven role categories: Patient Navigator, Link Worker, Care Coordinator, Case Manager, Social Prescriber, Intermediary, Health Mediator. The most common were Patient Navigator and Link Worker. Tasks related to navigation, building service users' capacity for self-management, and providing person-centred care overlapped across all role categories, indicating the core functions of the navigation workforce. Patient Navigators' scope of practice included the provision of education, appointment coordination, and assistance with logistic issues, while the roles of Link Workers typically only provided referral-based navigation and developed the capacity of service users for self-management.

Conclusions: The range in the titles and role scope of care navigators highlights increasing demand for system integration, however, the high variability of interchangeable terms and overlapping tasks create complexity for service users, providers, and researchers. An international Delphi study could create a consensus on the nomenclature and taxonomy for navigator roles that interface between health and social care systems. Developing professional identities, training, and strategies to seamlessly embed such roles into existing health and social care structures is also needed.

Systematic review registration: https://www.crd.york.ac.uk/PROSPERO/, PROSPERO #CRD42024572605.

背景:越来越多的劳动力正在国际上被雇用,以帮助患者在卫生和社会保健提供者之间导航。这些角色在不同的护理模式下运作,包括患者导航、社会处方和护理协调;护理导航员的任务和责任是高度可变的,往往缺乏明确性。了解护理导航员角色之间的异同可以改善将角色嵌入卫生和社会保健系统,并使职业身份合法化。本综述综合了有关护理导航员角色、角色名称、任务和职能的证据,涵盖了在健康和社会护理界面整合护理的各种模式。方法:检索2019年1月1日- 2024年5月31日的MEDLINE、Embase、CINAHL、Scopus和PsycINFO。采用系统、范围界定或其他严格方法的审查,如果讨论了协调涉及卫生和社会保健服务的工作人员的作用或职能,则列入审查。数据采用归纳专题方法合成。结果:纳入综述文章26篇,合成了824个独特的一手来源。78个独特的角色名称被用来描述护理导航员,它们汇总在7个角色类别下:患者导航员、链接工作者、护理协调员、病例管理员、社会处方者、中介、健康调解员。最常见的是Patient Navigator和Link Worker。与导航、建立服务用户自我管理能力和提供以人为本的护理相关的任务在所有角色类别中重叠,表明了导航工作人员的核心功能。患者导航员的工作范围包括提供教育、预约协调和后勤问题的协助,而链接工作者的角色通常只提供基于转诊的导航员,并培养服务用户自我管理的能力。结论:护理导航员的头衔和角色范围突出了对系统集成日益增长的需求,然而,可互换术语的高度可变性和重叠的任务给服务用户、提供者和研究人员带来了复杂性。一项国际德尔菲研究可以就卫生和社会保健系统之间的接口导航角色的命名法和分类法达成共识。还需要发展职业身份、培训和战略,将这些角色无缝地嵌入现有的卫生和社会保健结构中。系统评价注册:https://www.crd.york.ac.uk/PROSPERO/, PROSPERO #CRD42024572605。
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引用次数: 0
Unpaid dementia carers: a scoping review of the caregiving trajectory and changing short break needs. 无报酬的痴呆症护理人员:对护理轨迹和不断变化的短期休息需求的范围审查。
IF 2.7 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-10-24 eCollection Date: 2025-01-01 DOI: 10.3389/frhs.2025.1583975
Maria Caulfield, Diane Seddon

Introduction: Short breaks are essential to enable unpaid carers to have a life alongside caregiving. However, there is limited understanding of how carers' break needs evolve over time. This scoping review aimed to identify models of dementia caregiving to explore how short break needs may change across the caregiving career.

Methods: The review followed the best practice guidelines by and Arksey and O'Malley and Levac et al. A search was conducted across four databases in 2023 and rerun in 2025: Applied Social Sciences Index and Abstracts, CINAHL, MEDLINE, and APA PsycINFO.

Results: Eleven models were identified, outlining various stages of caregiving. These models focused specifically on spousal carers or predominantly included spouses. They demonstrate that caregiving is a dynamic process, marked by increasing demands on carers' time and shifting relational dynamics. The models suggest that short break needs may change in response to certain circumstances, with a shift in emphasis from relational well-being in the early stages to rest and recuperation in later stages.

Discussion: The findings highlight the importance of regular practitioner engagement to monitor and discuss changing break needs, and the need for accessible community and social opportunities that support a mutual respite experience for both the carer and the person with dementia. Key knowledge gaps are identified, including the potential role of short breaks in supporting the person with dementia during the transition to residential care, and in helping carers adjust to this new phase of caregiving. Future research could also examine the best ways to capture and monitor short break needs over time, including during Carers' Assessments and other short break conversations.

简介:短暂的休息是必不可少的,使无薪照顾者在照顾他人的同时也能有自己的生活。然而,人们对看护人的休息需求如何随着时间的推移而变化的理解有限。本综述旨在确定痴呆症护理模式,以探索短期休息需求如何在护理职业中发生变化。方法:本综述遵循Arksey、O’malley和Levac等人的最佳实践指南。该研究于2023年在四个数据库中进行,并于2025年重新运行:应用社会科学索引和摘要、CINAHL、MEDLINE和APA PsycINFO。结果:确定了11种模式,概述了护理的各个阶段。这些模型特别关注配偶照顾者或主要包括配偶。他们表明,照顾是一个动态的过程,其特点是对照顾者时间的需求不断增加,关系动态也在变化。这些模型表明,短期休息的需求可能会随着特定情况的变化而改变,从早期的关系健康转向后期的休息和恢复。讨论:研究结果强调了定期的从业人员参与监测和讨论不断变化的休息需求的重要性,以及为护理人员和痴呆症患者提供相互喘息体验的无障碍社区和社会机会的必要性。确定了关键的知识差距,包括短期休息在向住宿护理过渡期间为痴呆症患者提供支持以及帮助护理人员适应这一护理新阶段方面的潜在作用。未来的研究还可以研究捕捉和监控短假需求的最佳方法,包括在照顾者评估和其他短假对话期间。
{"title":"Unpaid dementia carers: a scoping review of the caregiving trajectory and changing short break needs.","authors":"Maria Caulfield, Diane Seddon","doi":"10.3389/frhs.2025.1583975","DOIUrl":"10.3389/frhs.2025.1583975","url":null,"abstract":"<p><strong>Introduction: </strong>Short breaks are essential to enable unpaid carers to have a life alongside caregiving. However, there is limited understanding of how carers' break needs evolve over time. This scoping review aimed to identify models of dementia caregiving to explore how short break needs may change across the caregiving career.</p><p><strong>Methods: </strong>The review followed the best practice guidelines by and Arksey and O'Malley and Levac et al. A search was conducted across four databases in 2023 and rerun in 2025: Applied Social Sciences Index and Abstracts, CINAHL, MEDLINE, and APA PsycINFO.</p><p><strong>Results: </strong>Eleven models were identified, outlining various stages of caregiving. These models focused specifically on spousal carers or predominantly included spouses. They demonstrate that caregiving is a dynamic process, marked by increasing demands on carers' time and shifting relational dynamics. The models suggest that short break needs may change in response to certain circumstances, with a shift in emphasis from relational well-being in the early stages to rest and recuperation in later stages.</p><p><strong>Discussion: </strong>The findings highlight the importance of regular practitioner engagement to monitor and discuss changing break needs, and the need for accessible community and social opportunities that support a mutual respite experience for both the carer and the person with dementia. Key knowledge gaps are identified, including the potential role of short breaks in supporting the person with dementia during the transition to residential care, and in helping carers adjust to this new phase of caregiving. Future research could also examine the best ways to capture and monitor short break needs over time, including during Carers' Assessments and other short break conversations.</p>","PeriodicalId":73088,"journal":{"name":"Frontiers in health services","volume":"5 ","pages":"1583975"},"PeriodicalIF":2.7,"publicationDate":"2025-10-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12592134/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145484150","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Male involvement interventions influencing maternal reproductive health outcomes: a narrative synthesis using RE-AIM with implications for maternal mortality in Africa. 影响孕产妇生殖健康结果的男性参与干预措施:利用RE-AIM对非洲孕产妇死亡率影响的叙述综合。
IF 2.7 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-10-23 eCollection Date: 2025-01-01 DOI: 10.3389/frhs.2025.1659276
Onyekachukwu Anikamadu, Ucheoma Nwaozuru, Nkiruka Obodoechina, Olufunto Olusanya, Temitope Ojo, Juliet Iwelunmor

Introduction: Male involvement is crucial in optimizing maternal reproductive health outcomes, offering the potential to bolster reproductive health outcomes for mothers. The Reach, Effectiveness, Adoption, Implementation, and Maintenance (RE-AIM) framework can describe the implementation of interventions focused on promoting male involvement in maternal reproductive health. This study aims to (1) examine the implementation of male involvement interventions that influence maternal reproductive health outcomes and (2) report the implementation outcomes as conceptualized in the RE-AIM framework.

Methods: This protocol followed the preferred reporting items for systematic review and meta-analysis. We searched PubMed, CINAHL, PsycINFO, and Web of Science utilizing a systematic review with narrative synthesis methodology to identify studies describing interventions that promote male involvement in maternal reproductive health outcomes in Africa from 2000 to 2024 Furthermore, we evaluated the public health impact of male involvement interventions from selected studies using the RE-AIM framework. Two reviewers independently screened articles, selected eligible studies, and extracted data. The quality of included studies was assessed using the NIH Assessment Tool for Observational Cohort and Cross-Sectional Studies.

Results: This review included six studies that met the inclusion criteria. Overall, the studies reported increased maternal reproductive health indicators (e.g., antenatal care uptake, antiretroviral medication adherence, and postnatal care uptake) after implementing the male involvement-focused interventions. The most commonly reported RE-AIM dimensions were Reach (83.4%) and Efficacy/Effectiveness (70%). Adoption (40.5%), Implementation (38.9%), and Maintenance (13.3%) were less often reported. All studies reported on measures of primary outcomes, intervention duration and frequency, sample size, and participants' characteristics. However, few reported on implementation fidelity, quality of life, methods used to identify staff, staff inclusion/exclusion criteria, implementation cost, and maintenance indicators.

Conclusions: The review underscores the potential of male-involvement interventions in advancing maternal reproductive health outcomes. However, the limited reporting of external validity indicators such as intervention fidelity, intervention cost, and maintenance indicators limits such interventions' scalability and long-term sustainability. This calls for more focus on reporting external validity indicators to inform the scalability and transferability of such interventions in real-world settings.

Systematic review registration: https://www.crd.york.ac.uk/PROSPERO/view/CRD420251031192, PROSPERO CRD420251031192.

导言:男性的参与对于优化孕产妇生殖健康结果至关重要,有可能加强母亲的生殖健康结果。《覆盖面、有效性、采用、实施和维持》框架可以描述以促进男性参与孕产妇生殖健康为重点的干预措施的实施情况。本研究旨在(1)研究影响孕产妇生殖健康结果的男性参与干预措施的实施情况,(2)报告在RE-AIM框架中概念化的实施结果。方法:本方案遵循首选报告项目进行系统评价和荟萃分析。我们检索了PubMed、CINAHL、PsycINFO和Web of Science,利用叙述综合方法进行了系统回顾,以确定2000年至2024年非洲描述促进男性参与孕产妇生殖健康结果的干预措施的研究。此外,我们使用RE-AIM框架评估了男性参与干预措施对公共卫生的影响。两位审稿人独立筛选文章,选择符合条件的研究,并提取数据。采用美国国立卫生研究院观察性队列和横断面研究评估工具评估纳入研究的质量。结果:本综述纳入了6项符合纳入标准的研究。总体而言,这些研究报告说,在实施以男性参与为重点的干预措施后,孕产妇生殖健康指标(例如,产前护理、抗逆转录病毒药物依从性和产后护理)有所增加。最常见的RE-AIM维度是Reach(83.4%)和Efficacy/Effectiveness(70%)。采用(40.5%),实现(38.9%)和维护(13.3%)较少被报道。所有研究都报告了主要结局、干预持续时间和频率、样本量和参与者特征的测量结果。然而,很少有关于实施保真度、生活质量、确定工作人员的方法、工作人员纳入/排除标准、实施成本和维护指标的报告。结论:该综述强调了男性参与干预在提高孕产妇生殖健康结果方面的潜力。然而,外部效度指标如干预保真度、干预成本和维护指标的报告有限,限制了这些干预措施的可扩展性和长期可持续性。这需要更多地关注报告外部有效性指标,以告知这些干预措施在现实环境中的可扩展性和可转移性。系统评价注册:https://www.crd.york.ac.uk/PROSPERO/view/CRD420251031192, PROSPERO CRD420251031192。
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引用次数: 0
"Making our voices count": patient action groups as a strategy to engage people with lived experience in implementation of an intervention for hypertensive disorders of pregnancy. “让我们的声音发挥作用”:患者行动小组作为一项战略,使有实际经验的人参与实施妊娠期高血压疾病干预措施。
IF 2.7 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-10-23 eCollection Date: 2025-01-01 DOI: 10.3389/frhs.2025.1602103
Jasmine Hodges, Hiba Fatima, Kelly McHugh, Jennifer Medearis Costello, Kamara Barnett, Narges Farahi, Jessica Greene-Jones, Darci Jones, Alasia Ledford, Leila D Lewis, Jenniqua Lopez, Shelby Smith-Janey, Mary Quezada, M Kathryn Menard, Alexandra F Lightfoot

Community-based clinics are a crucial site for the detection and response to Hypertensive Disorders of Pregnancy (HDP), yet many sites lack a standard protocol to address hypertensive emergencies. Moreover, interventions to address this disparity lack a patient centered lens that inform implementation in a community setting. To address these gaps, the Advancing Community and Clinical Care for Childbirth-related Hypertension: Implementation, Engagement and Valuing Equity (ACHIEVE) study is engaging patients with lived experience of HDP. The study integrates community engagement and implementation science to inform adaptation of a hypertension bundle in outpatient clinics. We have created two Patient Action Groups (PAGs) involving members from populations impacted by HDP to guide our community-academic-clinic-coalition team's iterative processes for bundle implementation and resource development. One PAG is comprised of Black and the other Latina/e birthing people, all of whom have lived experience with HDP. Both PAGs meet monthly, led by a racially/ethnically, culturally, or linguistically congruent facilitator. Agendas are co-created, and activities structured to build relationships, trust, and capacity. PAGs review ACHIEVE strategies and materials to spur recommendations and improve respectful care. To facilitate reciprocal exchange, PAG facilitators meet with the ACHIEVE community engagement team and share updates at monthly partner coalition meetings. We recommend PAGs as a power-shifting strategy to ensure those most affected by inequitable perinatal outcomes can engage in research in a way they feel safe, respected and heard. Researchers can also increase trustworthiness by listening and translating patient-generated ideas into strategies that improve clinical care.

社区诊所是发现和应对妊娠高血压疾病(HDP)的关键场所,但许多场所缺乏处理高血压紧急情况的标准方案。此外,解决这一差异的干预措施缺乏以患者为中心的视角,无法在社区环境中为实施提供信息。为了解决这些差距,推进分娩相关高血压的社区和临床护理:实施,参与和重视公平(ACHIEVE)研究正在吸引有HDP生活经历的患者。该研究将社区参与和实施科学结合起来,为门诊诊所适应高血压捆绑治疗提供信息。我们已经创建了两个患者行动小组(PAGs),成员来自受HDP影响的人群,以指导我们的社区-学术-临床-联盟团队在捆绑实施和资源开发方面的迭代过程。一个PAG由黑人和其他拉丁裔/e人组成,他们都有过HDP的经历。两个小组每月举行一次会议,由种族/民族,文化或语言一致的调解人领导。议程是共同制定的,活动的结构是为了建立关系、信任和能力。PAGs审查实现战略和材料,以促进建议和改善尊重护理。为了促进相互交流,PAG协调员与ACHIEVE社区参与团队会面,并在每月的合作伙伴联盟会议上分享最新情况。我们建议将PAGs作为一种权力转移策略,以确保那些受不公平围产期结果影响最大的人能够以一种他们感到安全、尊重和倾听的方式参与研究。研究人员还可以通过倾听并将患者产生的想法转化为改善临床护理的策略来增加可信度。
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引用次数: 0
Caring for children with spinal muscular atrophy in Greece: parents' and caregivers' experience with the healthcare system. 在希腊照顾患有脊髓性肌萎缩症的儿童:父母和照顾者在医疗保健系统中的经验。
IF 2.7 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-10-23 eCollection Date: 2025-01-01 DOI: 10.3389/frhs.2025.1612270
Kyriakos Souliotis, Christina Golna, Chara Tzavara, Christiana Vasileiadi, Pavlos Golnas, Aikaterini Ntokou, Kornilia Binou, Antigone Karras

Introduction: Spinal muscular atrophy (SMA) is a rare disease characterized by challenges in its management both for patients and parents/caregivers. In Greece, these challenges are exacerbated by the lack of an integrated SMA patient pathway. This survey mapped the experiences of parents of SMA pediatric patients with the Greek healthcare system, highlighting the actual pathway, its impact on quality of life, and associated financial burden.

Methods: Parents of children living with SMA, who were members of MDA Hellas, a non-profit organization for people with neuromuscular diseases in Greece, were invited to complete a novel online questionnaire, prepared in collaboration with the Health Policy Institute, a non-profit research organization specializing in health policy evaluation and design. The survey ran from May to September 2023. The results were analyzed using SPSS V26.0.

Results: Forty-four parents participated in the survey, with a mean age of 43.2 years. In the absence of universal prenatal or newborn screening, parents were the first to recognize any symptoms in the majority (73.5%) of cases. A total of 38.6% of parents had to travel from their place of residence to receive a diagnosis for their child. More than half had to pay out-of-pocket for diagnosis-related services. Parents shouldered additional treatment services and assistive aids' costs in excess of 300 euros a month. The majority reported feelings of agony and fear (90.9%) and guilt (25%) upon receiving the diagnosis. The average PedsQol score was 67 (SD = 15.8), whereas Zarit scores confirmed a higher burden for caregivers of children with graver SMA types.

Conclusion: This survey details the concerns and needs and quantifies SMA burden on parents/caregivers of children with SMA in Greece to inform health policy advocacy. Such advocacy should be translated into a national action plan with a focus on integrating care organization and delivery options.

简介:脊髓性肌萎缩症(SMA)是一种罕见的疾病,其特点是对患者和父母/照顾者的管理都有挑战。在希腊,由于缺乏整合的SMA患者途径,这些挑战更加严重。这项调查绘制了希腊医疗保健系统中SMA儿童患者父母的经历,突出了实际途径,其对生活质量的影响以及相关的经济负担。方法:SMA患儿的父母是希腊神经肌肉疾病患者非营利组织MDA Hellas的成员,他们被邀请完成一份新颖的在线问卷,该问卷是与卫生政策研究所(一家专门从事卫生政策评估和设计的非营利研究机构)合作编写的。这项调查从2023年5月持续到9月。使用SPSS V26.0对结果进行分析。结果:44位家长参与调查,平均年龄43.2岁。在没有普遍的产前或新生儿筛查的情况下,父母是大多数(73.5%)病例中第一个发现任何症状的人。总共有38.6%的父母不得不从他们的居住地前往为他们的孩子接受诊断。超过一半的人不得不自付诊断相关服务的费用。父母每月要承担超过300欧元的额外治疗服务和辅助设备费用。大多数人报告在接受诊断时感到痛苦和恐惧(90.9%)和内疚(25%)。平均PedsQol得分为67 (SD = 15.8),而Zarit得分证实了重度SMA儿童的照顾者负担更高。结论:本调查详细说明了希腊SMA患儿的关注点和需求,并量化了SMA患儿父母/照料者的负担,为卫生政策倡导提供信息。这种宣传应转化为一项国家行动计划,重点是将护理组织和提供方案结合起来。
{"title":"Caring for children with spinal muscular atrophy in Greece: parents' and caregivers' experience with the healthcare system.","authors":"Kyriakos Souliotis, Christina Golna, Chara Tzavara, Christiana Vasileiadi, Pavlos Golnas, Aikaterini Ntokou, Kornilia Binou, Antigone Karras","doi":"10.3389/frhs.2025.1612270","DOIUrl":"10.3389/frhs.2025.1612270","url":null,"abstract":"<p><strong>Introduction: </strong>Spinal muscular atrophy (SMA) is a rare disease characterized by challenges in its management both for patients and parents/caregivers. In Greece, these challenges are exacerbated by the lack of an integrated SMA patient pathway. This survey mapped the experiences of parents of SMA pediatric patients with the Greek healthcare system, highlighting the actual pathway, its impact on quality of life, and associated financial burden.</p><p><strong>Methods: </strong>Parents of children living with SMA, who were members of MDA Hellas, a non-profit organization for people with neuromuscular diseases in Greece, were invited to complete a novel online questionnaire, prepared in collaboration with the Health Policy Institute, a non-profit research organization specializing in health policy evaluation and design. The survey ran from May to September 2023. The results were analyzed using SPSS V26.0.</p><p><strong>Results: </strong>Forty-four parents participated in the survey, with a mean age of 43.2 years. In the absence of universal prenatal or newborn screening, parents were the first to recognize any symptoms in the majority (73.5%) of cases. A total of 38.6% of parents had to travel from their place of residence to receive a diagnosis for their child. More than half had to pay out-of-pocket for diagnosis-related services. Parents shouldered additional treatment services and assistive aids' costs in excess of 300 euros a month. The majority reported feelings of agony and fear (90.9%) and guilt (25%) upon receiving the diagnosis. The average PedsQol score was 67 (SD = 15.8), whereas Zarit scores confirmed a higher burden for caregivers of children with graver SMA types.</p><p><strong>Conclusion: </strong>This survey details the concerns and needs and quantifies SMA burden on parents/caregivers of children with SMA in Greece to inform health policy advocacy. Such advocacy should be translated into a national action plan with a focus on integrating care organization and delivery options.</p>","PeriodicalId":73088,"journal":{"name":"Frontiers in health services","volume":"5 ","pages":"1612270"},"PeriodicalIF":2.7,"publicationDate":"2025-10-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12589048/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145484103","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Health technology assessment infrastructure for emirates health services: a phased framework. 阿联酋卫生服务的卫生技术评估基础设施:分阶段框架。
IF 2.7 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-10-23 eCollection Date: 2025-01-01 DOI: 10.3389/frhs.2025.1662561
Suad Hannawi, Rita Ojeil, Abdalla Alnaqbi, Khadija Almarshoodi, Essam Alzaaroni, Abdulaziz Alzaaroni, Noor Almoheiri, Sondos Al-Salmi, Haifa Hannawi, Maria Al-Salmi, Sabaa Saleh Al-Hemyari

This policy brief presents a structured, phased framework to establish Health Technology Assessment (HTA) within Emirates Health Services (EHS), promoting evidence-based decision-making and optimizing healthcare delivery. The model emphasizes capacity building, stakeholder engagement, and transparency to enhance patient outcomes and ensure financial sustainability. It follows four phases: Phase 0 (strategy alignment, stakeholder mapping), Phase 1 (budget impact and disease burden analysis), Phase 2 (managed entry agreements, multi-criteria decision analysis), and Phase 3 (full HTA adoption with performance metrics). Key methodologies include budget impact modeling, cost-effectiveness, and cost-utility analysis. Evidence is drawn from registries, clinical databases, and pharmacoeconomic studies. The framework offers a scalable and sustainable roadmap for HTA in the UAE, supporting efficient technology integration, optimal resource allocation, and alignment with national priorities. However, the framework's successful implementation will depend on the availability of high-quality local data, sustained stakeholder engagement, and supportive regulatory mechanisms. Potential challenges such as resource constraints, fragmented governance, and variability in HTA maturity across the region highlight the need for flexibility and adaptive strategies.

本政策简报提出了一个结构化的分阶段框架,用于在阿联酋航空医疗服务公司(EHS)内建立医疗技术评估(HTA),促进循证决策和优化医疗服务。该模式强调能力建设、利益攸关方参与和透明度,以提高患者治疗效果并确保财务可持续性。它分为四个阶段:第0阶段(战略调整、利益相关者映射)、第1阶段(预算影响和疾病负担分析)、第2阶段(管理准入协议、多标准决策分析)和第3阶段(全面采用HTA并采用绩效指标)。关键方法包括预算影响建模、成本效益和成本效用分析。证据来自登记、临床数据库和药物经济学研究。该框架为阿联酋的HTA提供了一个可扩展和可持续的路线图,支持有效的技术整合,优化资源分配,并与国家优先事项保持一致。然而,该框架的成功实施将取决于高质量本地数据的可用性、利益相关者的持续参与和支持性监管机制。资源限制、治理碎片化以及整个地区HTA成熟度的可变性等潜在挑战凸显了灵活性和适应性战略的必要性。
{"title":"Health technology assessment infrastructure for emirates health services: a phased framework.","authors":"Suad Hannawi, Rita Ojeil, Abdalla Alnaqbi, Khadija Almarshoodi, Essam Alzaaroni, Abdulaziz Alzaaroni, Noor Almoheiri, Sondos Al-Salmi, Haifa Hannawi, Maria Al-Salmi, Sabaa Saleh Al-Hemyari","doi":"10.3389/frhs.2025.1662561","DOIUrl":"10.3389/frhs.2025.1662561","url":null,"abstract":"<p><p>This policy brief presents a structured, phased framework to establish Health Technology Assessment (HTA) within Emirates Health Services (EHS), promoting evidence-based decision-making and optimizing healthcare delivery. The model emphasizes capacity building, stakeholder engagement, and transparency to enhance patient outcomes and ensure financial sustainability. It follows four phases: Phase 0 (strategy alignment, stakeholder mapping), Phase 1 (budget impact and disease burden analysis), Phase 2 (managed entry agreements, multi-criteria decision analysis), and Phase 3 (full HTA adoption with performance metrics). Key methodologies include budget impact modeling, cost-effectiveness, and cost-utility analysis. Evidence is drawn from registries, clinical databases, and pharmacoeconomic studies. The framework offers a scalable and sustainable roadmap for HTA in the UAE, supporting efficient technology integration, optimal resource allocation, and alignment with national priorities. However, the framework's successful implementation will depend on the availability of high-quality local data, sustained stakeholder engagement, and supportive regulatory mechanisms. Potential challenges such as resource constraints, fragmented governance, and variability in HTA maturity across the region highlight the need for flexibility and adaptive strategies.</p>","PeriodicalId":73088,"journal":{"name":"Frontiers in health services","volume":"5 ","pages":"1662561"},"PeriodicalIF":2.7,"publicationDate":"2025-10-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12588929/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145484112","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Enduring contributions to implementation science: Honoring the legacy of Bryan R. Garner. 对实现科学的持久贡献:纪念Bryan R. Garner的遗产。
IF 2.7 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-10-23 eCollection Date: 2025-01-01 DOI: 10.3389/frhs.2025.1698749
Sara J Becker, James H Ford Ii, Joseph E Glass, Heather J Gotham, Hannah K Knudsen, Andrew Quanbeck, Mat Roosa, Emily C Williams
{"title":"Enduring contributions to implementation science: Honoring the legacy of Bryan R. Garner.","authors":"Sara J Becker, James H Ford Ii, Joseph E Glass, Heather J Gotham, Hannah K Knudsen, Andrew Quanbeck, Mat Roosa, Emily C Williams","doi":"10.3389/frhs.2025.1698749","DOIUrl":"10.3389/frhs.2025.1698749","url":null,"abstract":"","PeriodicalId":73088,"journal":{"name":"Frontiers in health services","volume":"5 ","pages":"1698749"},"PeriodicalIF":2.7,"publicationDate":"2025-10-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12588923/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145484199","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Editorial: Women in mental health services: volume 2. 社论:心理健康服务中的妇女:第2卷。
IF 2.7 Q3 HEALTH CARE SCIENCES & SERVICES Pub Date : 2025-10-22 eCollection Date: 2025-01-01 DOI: 10.3389/frhs.2025.1702469
Theresa Van Lith, Kristen A Morin
{"title":"Editorial: Women in mental health services: volume 2.","authors":"Theresa Van Lith, Kristen A Morin","doi":"10.3389/frhs.2025.1702469","DOIUrl":"https://doi.org/10.3389/frhs.2025.1702469","url":null,"abstract":"","PeriodicalId":73088,"journal":{"name":"Frontiers in health services","volume":"5 ","pages":"1702469"},"PeriodicalIF":2.7,"publicationDate":"2025-10-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12586120/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145460746","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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Frontiers in health services
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