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Effectiveness of a 5-day adapted swim instruction program for children with disabilities. 针对残疾儿童的5天适应性游泳教学计划的有效性。
IF 1.3 Q3 REHABILITATION Pub Date : 2025-01-03 eCollection Date: 2024-01-01 DOI: 10.3389/fresc.2024.1496185
Tana B Carson, J Megan Irwin, Tania Santiago Perez, Ivana Frampton, Lisa Ruby

Background: Drowning is a leading cause of death for children. Some populations of children with disabilities, such as children with autism, experience a health disparity in drowning when compared to peers without disabilities.

Objective: This study presents a secondary data analysis of the response to intervention for a 5-day adapted swim instruction program (iCan Swim) for children with disabilities (n = 164 participants) ages 3-18 years.

Methods: This secondary data analysis assessed the effectiveness of the swim intervention on changes in swim skill level from Day 1 to Day 5. Associations between response to intervention (i.e., change score) and participant characteristics were examined using Kendall's tau-b for age and Chi-square for sex and diagnosis. Models were fit using a Poisson regression to examine potential predictors of progress across participants.

Results: Swim skills significantly improved from Day 1 (Md = 1.00, n = 164) to Day 5 (Md = 2.00, n = 164), z = -10.06, p < .001, r = .58). Most participants (61.6%) improved by at least one swim skill level. Age was weakly, yet significantly positively correlated with swim skill level change scores (τ b = .154, p = .020) and was a significant predictor of swim skill level change for participants with Down Syndrome [b = .091, S.E. = .0434, p = .036, 95%CI (.006,.176)].

Conclusions: While this 5-day adapted swim instruction program was effective for most participants in improving swim skills, certain factors may have contributed to slower progression including participant fearfulness or needing more time. Further study of these factors is warranted.

背景:溺水是儿童死亡的主要原因。某些残疾儿童群体,如自闭症儿童,与没有残疾的同龄人相比,在溺水方面存在健康差异。目的:本研究对3-18岁的残疾儿童(n = 164名参与者)进行为期5天的适应性游泳教学计划(iCan swim)的干预反应进行了二次数据分析。方法:本辅助数据分析评估了游泳干预对第1天至第5天游泳技能水平变化的有效性。对干预反应(即改变评分)和参与者特征之间的关联使用Kendall的tau-b表示年龄,卡方表示性别和诊断。使用泊松回归对模型进行拟合,以检查参与者之间进展的潜在预测因素。结果:游泳技能从第1天(Md = 1.00, n = 164)到第5天(Md = 2.00, n = 164)显著提高,z = -10.06, p τ b =。154, p = .020),是唐氏综合症参与者游泳技能水平变化的显著预测因子[b =。[翻译]:0434, p =。0.36, 95%ci(.006,.176)]。结论:虽然这个为期5天的适应性游泳教学计划对大多数参与者提高游泳技能是有效的,但某些因素可能导致进步较慢,包括参与者的恐惧或需要更多的时间。有必要进一步研究这些因素。
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引用次数: 0
Enhancing shared street accessibility in heritage sites for individuals with visual disabilities: a Canadian perspective. 为视障人士在遗产地加强共享街道的可达性:加拿大的视角。
IF 1.3 Q3 REHABILITATION Pub Date : 2024-12-24 eCollection Date: 2024-01-01 DOI: 10.3389/fresc.2024.1419446
M Lakoud, E Morales, A Ruiz-Rodrigo, I Feillou, S Mathieu, F Routhier

Introduction: Heritage sites often pose significant accessibility challenges for individuals with visual disabilities due to their preserved architectural features and strict regulations against modifications. In shared streets, designed to encourage pedestrian use and reduce vehicle dominance, these challenges are exacerbated by the lack of tactile and directional cues for visually impaired users. This study, set in the context of Canadian heritage sites, explores how shared streets can be adapted to be more inclusive while respecting the integrity of historical environments.

Objective: The objective of this study is to explore and propose practical solutions to enhance the accessibility of shared streets for individuals with visual disabilities within heritage sites, with a particular focus on preservation requirements.

Methodology: The study adopts a three-phase methodology. First, co-design sessions were conducted with three groups of stakeholders: people with disabilities, caregivers, and experts in accessibility and heritage preservation. Second, a narrative literature review was undertaken to identify practices from existing research and urban planning cases. Finally, solutions were developed in collaboration with a design firm to create practical, adaptable prototypes that address the specific needs identified in earlier phases.

Findings: The co-design sessions revealed several key challenges, including the lack of tactile references, difficulties with snow removal, and the need for clearer delineation between pedestrian and vehicular zones. Solutions such as tactile paving, modular bollards, and the use of contrasting materials were developed to address these issues. The narrative review reinforced the importance of universal design in heritage contexts and provided insights into successful implementations in other urban settings.

Conclusion: The study concludes that shared streets can be made more accessible for individuals with visual disabilities by adopting a modular design approach that integrates tactile cues and adaptable urban furniture. These solutions ensure that accessibility and safety can coexist with heritage preservation, promoting inclusivity in public spaces. The research highlights the importance of stakeholder engagement in the design process and offers a replicable framework for improving accessibility in heritage sites globally. However, further field testing is needed to assess the feasibility and acceptance of these solutions within the regulatory constraints of heritage environments.

导读:遗产地由于其保留的建筑特征和严格的禁止修改规定,往往对视力障碍人士构成重大的无障碍挑战。在旨在鼓励行人使用和减少车辆主导的共享街道中,由于缺乏视觉障碍用户的触觉和方向提示,这些挑战变得更加严重。本研究以加拿大遗产遗址为背景,探讨如何在尊重历史环境完整性的同时,使共享街道更具包容性。目的:本研究的目的是探索并提出切实可行的解决方案,以提高文物遗址内视觉障碍者共享街道的可达性,并特别关注保护要求。方法学:本研究采用三阶段方法学。首先,与三组利益相关者进行了共同设计会议:残疾人、护理人员、无障碍和遗产保护专家。其次,对现有研究和城市规划案例进行了叙述性文献综述,以确定实践。最后,解决方案是与设计公司合作开发的,以创建实用的、适应性强的原型,以满足早期阶段确定的特定需求。研究结果:共同设计会议揭示了几个关键挑战,包括缺乏触觉参考,除雪困难,需要更清晰地划定行人和车辆区域。解决方案如触觉铺装、模块化护柱和使用对比材料来解决这些问题。叙述性回顾强调了遗产环境中通用设计的重要性,并为其他城市环境中的成功实施提供了见解。结论:该研究得出结论,通过采用模块化设计方法,将触觉线索和适应性强的城市家具相结合,可以使共享街道更容易为视力障碍人士提供便利。这些解决方案确保了可达性和安全性与遗产保护共存,促进了公共空间的包容性。该研究强调了利益相关者参与设计过程的重要性,并为改善全球遗产地的可达性提供了一个可复制的框架。然而,需要进一步的现场测试来评估这些解决方案在遗产环境的监管约束下的可行性和接受度。
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引用次数: 0
Current status of the curricula of physiotherapy schools in Türkiye in terms of the usage of new rehabilitation technologies and measurement systems. 在新的康复技术和测量系统的使用方面,目前在日本物理治疗学校的课程现状。
IF 1.3 Q3 REHABILITATION Pub Date : 2024-12-20 eCollection Date: 2024-01-01 DOI: 10.3389/fresc.2024.1504509
Selda Uzun, Muhammed Yusuf Kahraman
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引用次数: 0
Striving to establish patient participation in rehabilitation: the challenges experienced by nursing staff when changing practice to include the patient's perspective. 努力让病人参与康复:护理人员在改变做法以纳入病人视角时所经历的挑战。
IF 1.3 Q3 REHABILITATION Pub Date : 2024-12-19 eCollection Date: 2024-01-01 DOI: 10.3389/fresc.2024.1504984
Randi Steensgaard, Raymond Kolbaek, Helge Kasch, Sanne Angel

Purpose: Patient participation is a complex issue and difficult to establish, but essential to successful spinal cord injury rehabilitation. The purpose of this study was to explore the challenges experienced by nursing staff when they wanted to include the patient's perspective in their rehabilitation.

Methods: Action research methodology was applied to increase knowledge, develop competences, and ultimately change practice. Over a period of two years, four nurses and four certified healthcare workers participated in identifying, testing and evaluating ways to improve patient participation. The data consist of evaluations of patient participation and recorded and transcribed dialogues from meetings and workshops. Transformed into text, data were analysed using the interpretive theory of Ricoeur to identify central themes.

Findings: Three central themes highlight the challenges experienced by the nursing staff while focusing more on patient participation in nursing practice: (1) Struggling to really listen to the patient's perspective, (2) Searching for time to listen to the patient's perspective, (3) Legitimising the patient's perspective in rehabilitation.

Conclusion: Even though nursing staff found patient participation to be vital for individualised rehabilitation, it was difficult to include the patient's perspective. The inclusion was challenged on a personal level, within the nursing group, and in the organisation due to prioritizing physical nursing tasks over the patient's perspective. Thus, the nursing staff struggled to change their nursing practice and to convince their colleagues and leaders that the rehabilitation should be re-organised to perform their nursing role to the full. This indicated a need to work on the attitude and approach of the entire organisation to promoting patient participation and nursing rehabilitation.

目的:患者参与是一个复杂且难以确定的问题,但对成功的脊髓损伤康复至关重要。本研究的目的是探讨护理人员在康复过程中考虑病人观点时所面临的挑战。方法:运用行动研究方法增加知识,发展能力,最终改变实践。在两年的时间里,四名护士和四名认证的保健工作者参与了确定、测试和评估改善患者参与的方法。这些数据包括对患者参与情况的评估,以及对会议和研讨会对话的记录和转录。将数据转化为文本,使用利科的解释理论对数据进行分析,以确定中心主题。研究发现:三个中心主题突出了护理人员在更关注患者参与护理实践时所面临的挑战:(1)努力真正倾听患者的观点;(2)寻找时间倾听患者的观点;(3)使患者的观点合法化康复。结论:尽管护理人员发现患者参与对个性化康复至关重要,但很难纳入患者的观点。在个人层面上,在护理小组内,以及在组织中,由于优先考虑身体护理任务而不是患者的观点,纳入受到挑战。因此,护理人员努力改变他们的护理实践,并说服他们的同事和领导,康复应该重新组织,以充分发挥他们的护理作用。这表明需要对整个组织的态度和方法进行工作,以促进患者参与和护理康复。
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引用次数: 0
Evaluating client functioning in a harm reduction program in South Africa: insights from a tool derived from the International Classification of Functioning, Disability and Health. 评估南非减少伤害方案中的客户功能:来自国际功能、残疾和健康分类的工具的见解。
IF 1.3 Q3 REHABILITATION Pub Date : 2024-12-19 eCollection Date: 2024-01-01 DOI: 10.3389/fresc.2024.1445176
Michelle N S Janse van Rensburg, Daleen Casteleijn, Andrew Scheibe

South Africa faces the detrimental effects of problematic substance use. The Community Oriented Substance Use Program (COSUP) is a research-based, community-situated harm-reduction program. The International Classification of Functioning, Disability and Health (ICF) was used as the framework to develop a unique tool to determine the functioning of COSUP clients. The study was a quantitative descriptive, cross-sectional design, with data collected from COSUP sites during January 2023 using the COSUP Client Functioning Tool. Twenty-three Likert-scale structured closed questions about clients' perceptions of their functioning and context were analyzed using descriptive statistics. Open-ended questions about COSUP services were thematically analyzed. Most COSUP clients are working-age African males, and many are unemployed. Clients seem to be coping well physically but need more mental health support. Pressing concerns for COSUP clients are feeling stressed and anxious, an inability to handle stress, poor use of free time, not getting support from others, and not having enough money to meet daily needs. Lack of energy and boredom are significant concerns, along with feelings of rejection and loneliness. Facilitating opportunities for sustaining livelihoods requires focus. Even so, there are those who have a sense of hope due to the positive impact of the program. Basing the COSUP Client Functioning Tool on the ICF framework provided a useful picture of the functioning of people who use/d drugs in their contexts. The COSUP Tool is helpful to guide interventions that are responsive to clients' needs.

南非面临有问题的药物使用的有害影响。以社区为导向的物质使用计划(COSUP)是一个以研究为基础的、位于社区的危害减少计划。国际功能、残疾和健康分类(ICF)被用作开发一种独特工具的框架,以确定COSUP客户的功能。该研究是一项定量描述性横断面设计,使用COSUP客户功能工具于2023年1月从COSUP站点收集数据。使用描述性统计分析了关于客户对其功能和环境的感知的23个李克特量表结构化封闭问题。对COSUP服务的开放式问题进行主题分析。COSUP的大多数客户都是处于工作年龄的非洲男性,其中许多人处于失业状态。客户在身体上似乎应付得很好,但需要更多的心理健康支持。COSUP客户的紧迫问题是感到压力和焦虑,无法处理压力,不善于利用空闲时间,得不到他人的支持,没有足够的钱来满足日常需求。缺乏精力和无聊是重要的问题,还有被拒绝和孤独的感觉。创造维持生计的机会需要重点。尽管如此,还是有一些人因为该项目的积极影响而感到希望。基于ICF框架的COSUP客户功能工具提供了在其环境中使用/d药物的人的功能的有用图像。COSUP工具有助于指导针对客户需求的干预措施。
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引用次数: 0
Postoperative cognitive dysfunction in elderly postcardiac surgery patients: progress in rehabilitation application research. 老年心脏手术后患者术后认知功能障碍康复应用研究进展
IF 1.3 Q3 REHABILITATION Pub Date : 2024-12-17 eCollection Date: 2024-01-01 DOI: 10.3389/fresc.2024.1525813
Zhen-Rong Zhang, Yang-Zheng Li, Xiao-Qing Wu, Wen-Jun Chen, Jian Xu, Wei-Hua Zhao, Xiao-Yan Gong

Postoperative cognitive dysfunction (POCD) is a prevalent complication of the central nervous system in elderly patients following cardiac surgery. This review aims to provide an overview of the etiology, risk factors, diagnostic assessment, and rehabilitation strategies for cognitive dysfunction occurring after cardiac surgery. The pathogenesis of POCD after cardiac surgery includes cerebral microembolism, neuroinflammation, and cryptogenic strokes. Risk factors are associated with advanced age, diminished preoperative cognitive status, and anesthesia. Cognitive function screening tools used for pre- and postoperative assessments can detect changes in patients' cognitive levels in a timely manner. The timely provision of appropriate rehabilitation methods, including cognitive function training, exercise training, transcranial direct current stimulation, and perioperative acupuncture, is crucial, with emerging technologies such as virtual reality playing an increasingly significant role. In conclusion, POCD is a common postoperative complication in elderly cardiac surgery patients, with age and reduced preoperative cognitive function being the primary risk factors. A comprehensive rehabilitation strategy can more effectively address postoperative cognitive dysfunction in patients.

术后认知功能障碍(POCD)是老年心脏手术后中枢神经系统的常见并发症。本文综述了心脏手术后认知功能障碍的病因、危险因素、诊断评估和康复策略。心脏手术后POCD的发病机制包括脑微栓塞、神经炎症和隐源性中风。危险因素与高龄、术前认知状态下降和麻醉有关。用于术前和术后评估的认知功能筛查工具可以及时发现患者认知水平的变化。及时提供适当的康复方法,包括认知功能训练、运动训练、经颅直流电刺激和围手术期针灸,是至关重要的,虚拟现实等新兴技术发挥着越来越重要的作用。综上所述,POCD是老年心脏手术患者术后常见的并发症,年龄和术前认知功能下降是主要危险因素。综合康复策略可以更有效地解决患者术后认知功能障碍。
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引用次数: 0
Effect of low-frequency acupuncture on muscle and fascia stiffness: examination with or without intervention. 低频针刺对肌肉和筋膜僵硬的影响:有或无干预的检查。
IF 1.3 Q3 REHABILITATION Pub Date : 2024-12-12 eCollection Date: 2024-01-01 DOI: 10.3389/fresc.2024.1324000
Toshihiro Maemichi, Masatomo Matsumoto, Shigeru Meguriya, Atsuya Furusho, Takashi Yamashita, Toshiharu Tsutsui, Tsukasa Kumai

Background: Low-frequency acupuncture is used to maintain skeletal muscle flexibility and improve joint range of motion; however, its definite effects are unclear. This study aimed to determine the effects of low-frequency acupuncture on muscle and fascial stiffness and ankle dorsiflexion range of motion.

Methods: The participants included 12 randomly selected healthy adults. The medial head of the gastrocnemius muscle was selected as the target muscle, and changes in hardness and dorsiflexion range of motion of the ankle joint in the deep fascia, muscle, and deep intermuscular fascia of the same region were measured before and after low-frequency acupuncture intervention. Acupuncture needles were inserted until they passed through the deep intermuscular fascia and electrically stimulated at a frequency of 2 Hz for 15 min. The 12 right legs were the intervention legs, and the 12 left legs were the non-intervention legs.

Results: In the intervention leg, hardness increased in the deep fascia immediately after low-frequency acupuncture, but decreased in all regions (deep fascia, muscle, and deep intermuscular fascia) after 15 min. The rate of change in hardness was the greatest in the muscles and deep intermuscular fascia. Additionally, the ankle's dorsiflexion range of motion increased after 15 min. In contrast, the non-intervention leg showed no significant changes in stiffness or ankle dorsiflexion angle.

Conclusions: Low-frequency acupuncture may decrease muscle stiffness and improve fascial gliding. The change in hardness tended to be greater in the deeper areas.

背景:低频针刺用于维持骨骼肌柔韧性,提高关节活动度;然而,其确切效果尚不清楚。本研究旨在确定低频针刺对肌肉和筋膜硬度和踝关节背屈运动范围的影响。方法:随机选取12名健康成人。选取腓肠肌内侧头为靶肌,测量低频针刺干预前后踝关节在同一区域的深筋膜、肌肉和深肌间筋膜的硬度和背屈运动范围的变化。针刺针穿过肌间深筋膜,以2赫兹的频率电刺激15分钟。12条右腿为干预组,12条左腿为非干预组。结果:干预组低频针刺后,深筋膜硬度立即升高,15 min后各区域(深筋膜、肌肉、肌间筋膜)硬度均下降。肌肉和深肌间筋膜的硬度变化率最大。此外,15分钟后,踝关节的背屈活动范围增加。相比之下,非干预组的腿在僵硬度和踝关节背屈角度上没有明显变化。结论:低频针刺可减轻肌肉僵硬,改善筋膜滑动。硬度变化在较深的区域趋于较大。
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引用次数: 0
Relationship between functional independence and community integration of people with spinal cord injury in Bangladesh. 孟加拉国脊髓损伤患者功能独立与社区融合的关系
IF 1.3 Q3 REHABILITATION Pub Date : 2024-12-11 eCollection Date: 2024-01-01 DOI: 10.3389/fresc.2024.1435656
Shazal Kumar Das, Md Bakhtiar, Saiba Muhammad Sabrin, Michael Curtin, Ehsanur Rahman, Zahid Bin Sultan Nahid, Zakia Rahman, Md Furatul Haque, Md Fazlul Karim Patwary, Md Jahangir Alam, Md Emran Hossain, Md Atiar Rahman, Shafiqul Islam, Md Ashfaquzzaman, Md Anowar Khasru Parvez

Design: Prospective, cross-sectional study.

Objectives: To determine the functional outcome and home and social integration of people who had spinal cord injury and completed their inpatient rehabilitation.

Setting: Centre for the Rehabilitation of the Paralysed (CRP), Bangladesh.

Methods: Spinal Cord Independence Measure (SCIM) and Community Integration Questionnaire (CIQ) were used to analyse the relationship between the functional outcome and home and social integration at the end of rehabilitation. Descriptive and inferential statistics were performed to analyse the data.

Results: A total of two hundred participants (181 men and 19 women) were recruited for the study. Among the participants, 92.5% of them reported a history of trauma or accident, including road traffic accidents, falls and other injuries. Approximately 60% of participants presented with paraplegia and 62.5% of participants were categorized on the ASIA Impairment Scale (AIS) as Grade A, complete spinal cord injury. Participants with paraplegia and participants with a Grade B, incomplete injury, on the AIS were functionally more independent (p = 0.011)) compared with participants with tetraplegia and other AIS grades. Participants with paraplegia reported having a more active lifestyle (p = 0.040) in their home and social activities compared to those with tetraplegia. There was no significant association found between functional independence at pre-discharged and community integration one-month post-discharge of the people with SCI.

Conclusion: A month after discharge, there is no statistically significant relationship between community reintegration and functional independence. A measure of functional independence may not be a suitable indicator of community integration. It is proposed that to monitor a person's community integration the CIQ could be used with a measure of quality of life as this would indicate a person's contentment with their level of community integration.

设计:前瞻性横断面研究。目的:了解脊髓损伤患者完成住院康复后的功能结局和家庭与社会融合情况。地点:孟加拉国瘫痪者康复中心。方法:采用脊髓独立性量表(SCIM)和社区融入问卷(CIQ)分析康复末期功能结局与家庭和社会融入的关系。采用描述性统计和推断性统计对数据进行分析。结果:共有200名参与者(181名男性和19名女性)被招募参加这项研究。在参与者中,92.5%的人报告有创伤或事故史,包括道路交通事故、跌倒和其他伤害。大约60%的参与者表现为截瘫,62.5%的参与者在亚洲损伤量表(AIS)中被归类为A级,完全性脊髓损伤。与四肢瘫痪和其他AIS等级的参与者相比,截瘫和B级不完全性损伤的参与者在AIS上的功能独立性更高(p = 0.011)。截瘫患者报告说,与四肢瘫痪患者相比,截瘫患者在家庭和社交活动中有更积极的生活方式(p = 0.040)。脊髓损伤患者出院前的功能独立性与出院后1个月的社区整合之间无显著相关性。结论:出院后1个月,社区重返与功能独立无统计学意义。衡量功能独立性可能不是衡量社区一体化的合适指标。有人建议,为了监测一个人的社区融入,CIQ可以与生活质量的衡量一起使用,因为这将表明一个人对他们的社区融入水平的满意度。
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引用次数: 0
Experience of conductive hearing loss and impacts of hearing aid use throughout life. 传导性听力损失的经验和终生使用助听器的影响。
IF 1.3 Q3 REHABILITATION Pub Date : 2024-12-11 eCollection Date: 2024-01-01 DOI: 10.3389/fresc.2024.1491473
Thomas Hampton, Manuel Loureiro, Kevin Mortimer, Deborah Nyirenda

Introduction: Hearing loss and Deafness/deafness affects as much as 5% of the world's population and has a considerable health and economic burden. We explored the relationship with hearing and hearing aids as well as other assistive technology for health in general with a cohort of UK adults who have conductive hearing loss. We anticipated that insights could lead to greater understanding for the delivery of assistive technology (AT) for conductive hearing loss and the participant's lived experience related to technology and society.

Methods: This study presents the qualitative findings from a mixed methods study exploring the story of each participant's hearing, the impact on their lives and their experience and use of AT. A purposive sample of 33 adults with conductive hearing loss took part in semi-structured interviews. Participants were aged ≥18 years and had previously attended outpatient ENT or audiology clinic at University Hospitals Sussex NHS Foundation Trust. Transcripts underwent thematic analysis.

Results: The overarching theme was "A changing relationship over time with deafness, themselves and society". The three principle sub-themes of the interviews were "a technological world" describing the necessity of interaction with people & technology' both as children and adults, then the concept of "Normalised Marginalisation"-the struggle of childhood and school in the face of social norms' and typicality. Finally, there were issues raised about visibility and "the visible display of D/deafness", tied to aesthetics, vanity and traditional ideas about masculinity. Many participants described their adoption of new technology or devices as "transforming their life" and their quality of life without assistive technology as significantly impaired.

Conclusion: Insights from this study described the experiences of adults with conductive hearing loss and the ways in which they have a difficult relationship with their deafness, including how they felt and viewed themselves and how they interacted with society, particularly as children and young adults. The potential for benefit of assistive technology for hearing health was deemed by many participants to be a necessary bridge integrating them in relationships with other people in society. Early notions of disability, typicality and social norms frequently persisted into adulthood and these insights should be considered by all those professional seeking to provided hearing health assistance to individuals with conductive hearing loss.

听力损失和耳聋/耳聋影响到世界人口的5%,并造成相当大的健康和经济负担。我们研究了听力和助听器以及其他辅助技术对健康的总体影响,研究对象是英国一组有传导性听力损失的成年人。我们预计,这些见解可能会导致对传导性听力损失的辅助技术(AT)的交付以及参与者与技术和社会相关的生活体验的更好理解。方法:本研究采用混合方法对每个参与者的听力故事、对他们生活的影响以及他们的经历和使用AT进行了定性研究。有目的的33名传导性听力损失的成年人参加了半结构化的访谈。参与者年龄≥18岁,以前曾在萨塞克斯大学医院NHS基金会信托的门诊部或听力学诊所就诊。对笔录进行专题分析。结果:总体主题是“随着时间的推移,耳聋,他们自己和社会之间不断变化的关系”。访谈的三个主要副主题是“一个技术世界”,描述儿童和成人与人与技术互动的必要性,然后是“正常化边缘化”的概念-童年和学校面对社会规范的斗争”和典型化。最后,还有一些关于可见性和“残疾/失聪的可见展示”的问题,这些问题与美学、虚荣和传统的男子气概观念有关。许多参与者将他们采用新技术或设备描述为“改变他们的生活”,他们在没有辅助技术的情况下的生活质量受到严重影响。结论:这项研究的见解描述了传导性听力损失的成年人的经历,以及他们与耳聋的艰难关系,包括他们如何感受和看待自己,以及他们如何与社会互动,特别是作为儿童和年轻人。许多参与者认为,辅助技术对听力健康的潜在益处是将他们与社会中其他人联系起来的必要桥梁。早期关于残疾、典型性和社会规范的概念经常持续到成年,所有那些寻求为传导性听力损失患者提供听力健康援助的专业人士都应该考虑这些见解。
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引用次数: 0
Attendance rate and perceived relevance related to type, content, and delivery of current rehabilitation programmes after surgical resection for non-small cell lung cancer. 非小细胞肺癌手术切除后当前康复方案的类型、内容和交付的出勤率和感知相关性
IF 1.3 Q3 REHABILITATION Pub Date : 2024-12-10 eCollection Date: 2024-01-01 DOI: 10.3389/fresc.2024.1447767
Mette Kaasgaard, Uffe Bodtger, Anders Løkke, Erik Jakobsen, Ole Hilberg

Background: Surgical resection is the preferred treatment for localised non-small cell lung cancer (NSCLC). Rehabilitation is central in the management of the associated impaired quality of life, high symptom burden, deconditioning, and social-existential vulnerability. Yet, optimal content and delivery of rehabilitation are not yet defined. Therefore, we aimed to investigate the current rehabilitation offers, attendance rate, and perceived relevance related to content or delivery. Moreover, we investigated the current symptom burden in the patients.

Methods: We conducted an observational cohort study in patients who had undergone surgical resection for NSCLC 4-6 months earlier at Odense University Hospital, Denmark. We retrieved demographic data from patient registries, and interviewed patients via telephone concerning availability, uptake, and attendance rate of any rehabilitation offer in their local primary care setting; content and delivery; benefits of attending, experienced relevance and "symptom burden generally" (specially developed questions); and "symptom burden here and now" [Edmonton Symptom Assessment Scale (ESAS)].

Results: We approached 128 patients, reached 115, and interviewed the 100 (87%) patients who consented. In total, 88% (88/100) had received a rehabilitation offer, and 75% (66/88) had participated in programmes that either targeted NSCLC (23%) or were general cancer rehabilitation (33%), pulmonary rehabilitation (12%), online (1%), or other (33%). Disease-specific rehabilitation was significantly related to the highest attendance rate and perception of relevance. High attendance (≥75%) was, moreover, significantly related to the offer being delivered by a physiotherapist and having a focus on physical exercise. General symptoms were physically oriented [dyspnoea (65%), pain (47%), fatigue (78%)] and "mild" in ESAS scoring. No differences were observed in any baseline characteristics.

Conclusions: Rehabilitation after surgical resection for localised NSCLC is delivered heterogeneously in Denmark. Disease-specific rehabilitation was positively related to attendance rate and to the perceived relevance of the offer.

背景:手术切除是局部非小细胞肺癌(NSCLC)的首选治疗方法。康复是管理相关生活质量受损、高症状负担、去条件化和社会存在脆弱性的核心。然而,康复的最佳内容和方式尚未确定。因此,我们的目的是调查目前的康复服务,出勤率,以及与内容或交付相关的感知相关性。此外,我们还调查了患者目前的症状负担。方法:我们对4-6个月前在丹麦欧登塞大学医院接受非小细胞肺癌手术切除的患者进行了一项观察性队列研究。我们从患者登记册中检索了人口统计数据,并通过电话采访了患者,了解当地初级保健机构提供的任何康复服务的可用性、接受度和出勤率;内容和交付;就诊的好处、经验相关性和“一般症状负担”(专门开发的问题);“此时此地的症状负担”[埃德蒙顿症状评估量表(ESAS)]。结果:我们接触了128名患者,达到115名,并采访了100名(87%)同意的患者。总的来说,88%(88/100)的患者接受了康复治疗,75%(66/88)的患者参加了针对非小细胞肺癌(23%)或普通癌症康复(33%)、肺部康复(12%)、在线(1%)或其他(33%)的项目。疾病特异性康复与最高出勤率和相关性感知显著相关。此外,高出勤率(≥75%)与物理治疗师提供的服务和注重体育锻炼显著相关。一般症状以身体为主[呼吸困难(65%)、疼痛(47%)、疲劳(78%)],ESAS评分为“轻度”。在任何基线特征上均未观察到差异。结论:在丹麦,局部非小细胞肺癌手术切除后的康复治疗存在差异。特定疾病的康复与出勤率和所提供服务的感知相关性呈正相关。
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Frontiers in rehabilitation sciences
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