Pub Date : 2024-09-01DOI: 10.14475/jhpc.2024.27.3.99
Amlak Bantikassegn
The use of antimicrobials in patients receiving end-of-life (EOL) care, which is generally defined as supportive care provided to patients anticipated to live less than 1 year, has been actively debated in the realm of palliative care medicine due to the nebulous nature of the topic. In this article, we explore the use of antimicrobial use near EOL as it relates to both the ethical and practical issues that face physicians. We also discuss the reasons underlying the scarcity of prospective studies on this topic.
{"title":"Ethical and Practical Issues with the Use of Antimicrobial Agents during the End of Life.","authors":"Amlak Bantikassegn","doi":"10.14475/jhpc.2024.27.3.99","DOIUrl":"https://doi.org/10.14475/jhpc.2024.27.3.99","url":null,"abstract":"<p><p>The use of antimicrobials in patients receiving end-of-life (EOL) care, which is generally defined as supportive care provided to patients anticipated to live less than 1 year, has been actively debated in the realm of palliative care medicine due to the nebulous nature of the topic. In this article, we explore the use of antimicrobial use near EOL as it relates to both the ethical and practical issues that face physicians. We also discuss the reasons underlying the scarcity of prospective studies on this topic.</p>","PeriodicalId":73780,"journal":{"name":"Journal of hospice and palliative care","volume":"27 3","pages":"99-102"},"PeriodicalIF":0.0,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11387511/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142302640","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-06-01DOI: 10.14475/jhpc.2024.27.2.77
Jisoo Jeong
This case report explores the challenges and complexities associated with opioid management of cancer pain, emphasizing the importance of early involvement of a hospice consultation team and the adoption of a multidisciplinary approach to care. A 56-year-old man with advanced pancreatic cancer experienced escalating pain and inappropriate opioid prescriptions, highlighting the shortcomings of traditional pain management approaches. Despite procedural intervention by the attending physician and increased opioid dosages, the patient's condition deteriorated. Subsequently, the involvement of a hospice consultation team, in conjunction with collaborative psychiatric care, led to an overall improvement. The case underscores the necessity of early hospice engagement, psychosocial assessments, and collaborative approaches in the optimization of patient-centered palliative care.
{"title":"Early Hospice Consultation Team Engagement for Cancer Pain Relief: A Case Report.","authors":"Jisoo Jeong","doi":"10.14475/jhpc.2024.27.2.77","DOIUrl":"10.14475/jhpc.2024.27.2.77","url":null,"abstract":"<p><p>This case report explores the challenges and complexities associated with opioid management of cancer pain, emphasizing the importance of early involvement of a hospice consultation team and the adoption of a multidisciplinary approach to care. A 56-year-old man with advanced pancreatic cancer experienced escalating pain and inappropriate opioid prescriptions, highlighting the shortcomings of traditional pain management approaches. Despite procedural intervention by the attending physician and increased opioid dosages, the patient's condition deteriorated. Subsequently, the involvement of a hospice consultation team, in conjunction with collaborative psychiatric care, led to an overall improvement. The case underscores the necessity of early hospice engagement, psychosocial assessments, and collaborative approaches in the optimization of patient-centered palliative care.</p>","PeriodicalId":73780,"journal":{"name":"Journal of hospice and palliative care","volume":"27 2","pages":"77-81"},"PeriodicalIF":0.0,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11163179/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141307617","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-06-01DOI: 10.14475/jhpc.2024.27.2.64
Nayssem Khessairi, Dhouha Bacha, Rania Aouadi, Rym Ennaifer, Ahlem Lahmar, Sana Ben Slama
Purpose: End-of-life (EOL) care is a vulnerable period in an individual's life. Healthcare professionals (HPs) strive to balance the preservation of human life with respect for the patient's wishes. The aims of our study were to assess HPs' knowledge and perceptions of EOL care and to propose areas of improvement to improve the quality of care.
Methods: We conducted a single-center, cross-sectional study involving HPs from a university hospital who encountered EOL care situations. We used a questionnaire divided into four sections knowledge, practice, perception, and training. We calculated the rate of correct answers and the collective competence index.
Results: Eighty-six questionnaires were analyzed, with 82.5% (71/86) completed by medical respondents and 17.5% (15/86) by paramedical respondents. Most of the respondents, 71.8% (51/71), were interns and residents. The study focused on palliative care, medical assistance in dying, aggressive medical treatment, and euthanasia, finding adequate knowledge in the first three areas. Respondents assigned to the intensive care unit and those with more than 8 years of experience had significantly higher correct answer rates than their counterparts. Seventy-five percent of respondents (65/86) reported feeling that they had little or no mastery of EOL care, primarily attributing this to insufficient training and the unavailability of trainers.
Conclusion: Based on the findings of our study, which we believe to be the first of its kind in Tunisia, we can conclude that HPs possess an acceptable level of knowledge regarding EOL care. However, they require more exposure and training to develop expertise in this area.
{"title":"Knowledge and Perceptions of the End of Life among Tunisian Medical and Paramedical Staff.","authors":"Nayssem Khessairi, Dhouha Bacha, Rania Aouadi, Rym Ennaifer, Ahlem Lahmar, Sana Ben Slama","doi":"10.14475/jhpc.2024.27.2.64","DOIUrl":"10.14475/jhpc.2024.27.2.64","url":null,"abstract":"<p><strong>Purpose: </strong>End-of-life (EOL) care is a vulnerable period in an individual's life. Healthcare professionals (HPs) strive to balance the preservation of human life with respect for the patient's wishes. The aims of our study were to assess HPs' knowledge and perceptions of EOL care and to propose areas of improvement to improve the quality of care.</p><p><strong>Methods: </strong>We conducted a single-center, cross-sectional study involving HPs from a university hospital who encountered EOL care situations. We used a questionnaire divided into four sections knowledge, practice, perception, and training. We calculated the rate of correct answers and the collective competence index.</p><p><strong>Results: </strong>Eighty-six questionnaires were analyzed, with 82.5% (71/86) completed by medical respondents and 17.5% (15/86) by paramedical respondents. Most of the respondents, 71.8% (51/71), were interns and residents. The study focused on palliative care, medical assistance in dying, aggressive medical treatment, and euthanasia, finding adequate knowledge in the first three areas. Respondents assigned to the intensive care unit and those with more than 8 years of experience had significantly higher correct answer rates than their counterparts. Seventy-five percent of respondents (65/86) reported feeling that they had little or no mastery of EOL care, primarily attributing this to insufficient training and the unavailability of trainers.</p><p><strong>Conclusion: </strong>Based on the findings of our study, which we believe to be the first of its kind in Tunisia, we can conclude that HPs possess an acceptable level of knowledge regarding EOL care. However, they require more exposure and training to develop expertise in this area.</p>","PeriodicalId":73780,"journal":{"name":"Journal of hospice and palliative care","volume":"27 2","pages":"64-76"},"PeriodicalIF":0.0,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11163178/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141307619","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-06-01DOI: 10.14475/jhpc.2024.27.2.82
Youn Seon Choi, Sun Wook Hwang, In Cheol Hwang
Purpose: This study examined the quality of life (QoL) and quality of care (QoC) in inpatient hospice settings in Korea before and during the coronavirus disease 2019 (COVID-19) pandemic.
Methods: Data were obtained from three institutions that participated in two prospective cohort studies. The primary outcomes measured were the QoL of patients with terminal cancer and their family caregivers (FCs), as well as the QoC as perceived by the FCs.
Results: Multivariable regression analysis revealed that during the COVID-19 pandemic, both patients and FCs experienced better QoL than before the pandemic, and FCs reported a higher QoC.
Conclusion: Health policymakers should consider our findings when planning for future pandemics.
目的:本研究调查了韩国 2019 年冠状病毒病(COVID-19)大流行之前和期间住院临终关怀机构的生活质量(QoL)和护理质量(QoC):数据来自参与两项前瞻性队列研究的三家机构。测量的主要结果是晚期癌症患者及其家庭照顾者(FCs)的 QoL 以及家庭照顾者认为的 QoC:多变量回归分析表明,在 COVID-19 大流行期间,患者和家庭照顾者的 QoL 均优于大流行之前,而家庭照顾者报告的 QoC 更高:卫生决策者在规划未来的大流行时应考虑我们的研究结果。
{"title":"Inpatient Hospice Care in Korea during the COVID-19 Pandemic: A Preliminary Study.","authors":"Youn Seon Choi, Sun Wook Hwang, In Cheol Hwang","doi":"10.14475/jhpc.2024.27.2.82","DOIUrl":"10.14475/jhpc.2024.27.2.82","url":null,"abstract":"<p><strong>Purpose: </strong>This study examined the quality of life (QoL) and quality of care (QoC) in inpatient hospice settings in Korea before and during the coronavirus disease 2019 (COVID-19) pandemic.</p><p><strong>Methods: </strong>Data were obtained from three institutions that participated in two prospective cohort studies. The primary outcomes measured were the QoL of patients with terminal cancer and their family caregivers (FCs), as well as the QoC as perceived by the FCs.</p><p><strong>Results: </strong>Multivariable regression analysis revealed that during the COVID-19 pandemic, both patients and FCs experienced better QoL than before the pandemic, and FCs reported a higher QoC.</p><p><strong>Conclusion: </strong>Health policymakers should consider our findings when planning for future pandemics.</p>","PeriodicalId":73780,"journal":{"name":"Journal of hospice and palliative care","volume":"27 2","pages":"82-86"},"PeriodicalIF":0.0,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11163180/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141307618","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-06-01DOI: 10.14475/jhpc.2024.27.2.51
Jung Hwa Lee, Soon Young Lee, Kyung Mi Cha
Purpose: This study aimed to clarify the concept of pediatric hospice and palliative care through conceptual analysis. It also sought to identify the differences between related concepts such as pediatric death care and pediatric spiritual care, in order to provide foundational data for the development of nursing theory and knowledge.
Methods: A conceptual analysis of pediatric hospice and palliative care was conducted using Rodgers' evolutionary method. Out of 5,013 papers identified, 28 were selected for detailed reading and analysis.
Results: Pediatric hospice and palliative care encompasses physical, psychological, social, mental, spiritual, and family care for children with acute and chronic diseases with uncertain prognoses ahead of death, as well as their families. Effective pediatric hospice and palliative care will require multidisciplinary team nursing, effective communication, and supportive policies.
Conclusion: The findings of this study suggest that providing pediatric hospice and palliative care will lead to improvements in pain relief for children and families, the efficiency of responses to death in children, and the quality of life for children and families. The significance of this study is that it clearly clarifies the concept by analyzing pediatric hospice and palliative care using an evolutionary method.
{"title":"An Evolutionary Concept Analysis of Pediatric Hospice and Palliative Care.","authors":"Jung Hwa Lee, Soon Young Lee, Kyung Mi Cha","doi":"10.14475/jhpc.2024.27.2.51","DOIUrl":"10.14475/jhpc.2024.27.2.51","url":null,"abstract":"<p><strong>Purpose: </strong>This study aimed to clarify the concept of pediatric hospice and palliative care through conceptual analysis. It also sought to identify the differences between related concepts such as pediatric death care and pediatric spiritual care, in order to provide foundational data for the development of nursing theory and knowledge.</p><p><strong>Methods: </strong>A conceptual analysis of pediatric hospice and palliative care was conducted using Rodgers' evolutionary method. Out of 5,013 papers identified, 28 were selected for detailed reading and analysis.</p><p><strong>Results: </strong>Pediatric hospice and palliative care encompasses physical, psychological, social, mental, spiritual, and family care for children with acute and chronic diseases with uncertain prognoses ahead of death, as well as their families. Effective pediatric hospice and palliative care will require multidisciplinary team nursing, effective communication, and supportive policies.</p><p><strong>Conclusion: </strong>The findings of this study suggest that providing pediatric hospice and palliative care will lead to improvements in pain relief for children and families, the efficiency of responses to death in children, and the quality of life for children and families. The significance of this study is that it clearly clarifies the concept by analyzing pediatric hospice and palliative care using an evolutionary method.</p>","PeriodicalId":73780,"journal":{"name":"Journal of hospice and palliative care","volume":"27 2","pages":"51-63"},"PeriodicalIF":0.0,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11163181/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141307616","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-03-01DOI: 10.14475/jhpc.2024.27.1.45
In Cheol Hwang, Seong Hoon Shin, Youn Seon Choi, Myung Ah Lee, DaeKyun Kim, Kyung Hee Lee
Purpose: This study investigated palliative care physicians' attitudes regarding social issues related to opioid use.
Methods: An email survey was sent to 674 physicians who were members of the Korean Society for Hospice and Palliative Care (KSHPC).
Results: Data from 66 physicians were analyzed (response rate, 9.8%). About 70% of participants stated that their prescribing patterns were not influenced by social issues related to opioid use, and 90% of participants thought that additional regulations should be limited to non-cancer pain. Under the current circumstances, pain education for physicians is urgently needed, as well as increased awareness among the public. Half of the respondents identified the KSHPC as the primary organization responsible for providing pain education.
Conclusion: Palliative care physicians' prescribing patterns were not influenced by social issues related to opioid use, and these issues also should not affect cancer pain control.
{"title":"Attitudes toward Social Issues Related to Opioid Use among Palliative Care Physicians.","authors":"In Cheol Hwang, Seong Hoon Shin, Youn Seon Choi, Myung Ah Lee, DaeKyun Kim, Kyung Hee Lee","doi":"10.14475/jhpc.2024.27.1.45","DOIUrl":"10.14475/jhpc.2024.27.1.45","url":null,"abstract":"<p><strong>Purpose: </strong>This study investigated palliative care physicians' attitudes regarding social issues related to opioid use.</p><p><strong>Methods: </strong>An email survey was sent to 674 physicians who were members of the Korean Society for Hospice and Palliative Care (KSHPC).</p><p><strong>Results: </strong>Data from 66 physicians were analyzed (response rate, 9.8%). About 70% of participants stated that their prescribing patterns were not influenced by social issues related to opioid use, and 90% of participants thought that additional regulations should be limited to non-cancer pain. Under the current circumstances, pain education for physicians is urgently needed, as well as increased awareness among the public. Half of the respondents identified the KSHPC as the primary organization responsible for providing pain education.</p><p><strong>Conclusion: </strong>Palliative care physicians' prescribing patterns were not influenced by social issues related to opioid use, and these issues also should not affect cancer pain control.</p>","PeriodicalId":73780,"journal":{"name":"Journal of hospice and palliative care","volume":"27 1","pages":"45-49"},"PeriodicalIF":0.0,"publicationDate":"2024-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10911981/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140051247","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-03-01DOI: 10.14475/jhpc.2024.27.1.11
Minhee Cho, Hyunjoo Na
Purpose: Advance directives (ADs) are legal documents that outline a person's preferences or decisions regarding end-of-life care ahead of time. In Korea, there is insufficient awareness and knowledge about ADs among patients undergoing hemodialysis. This study explored the relationship between perceptions of a good death, knowledge about ADs, and attitudes toward ADs in this patient population.
Methods: This cross-sectional survey enrolled 119 hemodialysis patients from a secondary hospital in 2021. The participants completed a self-administered questionnaire, and the data were analyzed using the t-test, analysis of variance, Pearson correlation coefficients, Spearman rank correlation coefficients, and multiple regression analysis.
Results: The average score for perceptions of a good death among hemodialysis patients was 2.80 out of 4, with clinical symptoms identified as the most critical factor. The average scores for knowledge about ADs and attitudes toward ADs were 5.69 out of 9 and 2.79 out of 4, respectively. There was a positive correlation between perceptions of a good death and attitudes toward ADs (r=0.34, P<0.001), as well as between knowledge about Ads and attitudes toward ADs (r=0.19, P=0.037). Factors influencing attitudes toward Ads included employment status (β=0.22, P=0.011), education level (β=0.22, P=0.013), and perceptions of a good death (β=0.29, P=0.001), which accounted for 24.8% of the variance in attitudes toward ADs.
Conclusion: A positive perception of a good death among patients undergoing hemodialysis was associated with a positive attitude toward ADs. Educational programs are needed to improve individuals' understanding of a good death and encourage the development of end-of-life care plans.
{"title":"Factors that Influence Attitudes toward Advance Directives among Hemodialysis Patients.","authors":"Minhee Cho, Hyunjoo Na","doi":"10.14475/jhpc.2024.27.1.11","DOIUrl":"10.14475/jhpc.2024.27.1.11","url":null,"abstract":"<p><strong>Purpose: </strong>Advance directives (ADs) are legal documents that outline a person's preferences or decisions regarding end-of-life care ahead of time. In Korea, there is insufficient awareness and knowledge about ADs among patients undergoing hemodialysis. This study explored the relationship between perceptions of a good death, knowledge about ADs, and attitudes toward ADs in this patient population.</p><p><strong>Methods: </strong>This cross-sectional survey enrolled 119 hemodialysis patients from a secondary hospital in 2021. The participants completed a self-administered questionnaire, and the data were analyzed using the t-test, analysis of variance, Pearson correlation coefficients, Spearman rank correlation coefficients, and multiple regression analysis.</p><p><strong>Results: </strong>The average score for perceptions of a good death among hemodialysis patients was 2.80 out of 4, with clinical symptoms identified as the most critical factor. The average scores for knowledge about ADs and attitudes toward ADs were 5.69 out of 9 and 2.79 out of 4, respectively. There was a positive correlation between perceptions of a good death and attitudes toward ADs (r=0.34, P<0.001), as well as between knowledge about Ads and attitudes toward ADs (r=0.19, P=0.037). Factors influencing attitudes toward Ads included employment status (β=0.22, P=0.011), education level (β=0.22, P=0.013), and perceptions of a good death (β=0.29, P=0.001), which accounted for 24.8% of the variance in attitudes toward ADs.</p><p><strong>Conclusion: </strong>A positive perception of a good death among patients undergoing hemodialysis was associated with a positive attitude toward ADs. Educational programs are needed to improve individuals' understanding of a good death and encourage the development of end-of-life care plans.</p>","PeriodicalId":73780,"journal":{"name":"Journal of hospice and palliative care","volume":"27 1","pages":"11-20"},"PeriodicalIF":0.0,"publicationDate":"2024-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10911983/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140051250","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-03-01DOI: 10.14475/jhpc.2024.27.1.31
Sinyoung Kwon, Jinyee Byun
Purpose: The purpose of this qualitative study was to employ Colaizzi's phenomenological research method to elucidate and understand the essence of practical experiences among consultative hospice palliative care nurses working in hospice institutions.
Methods: The participants in the study were 15 consultative hospice palliative care nurses with over 1 year of work experience in institutions located in S City, I City, and K Province in South Korea. Data were collected from 23 in-depth interviews and analyzed using Colaizzi's phenomenological qualitative method.
Results: The practical experiences of consultative hospice palliative nurses were categorized into five categories, 10 theme clusters, and 25 themes. The five categories included "being aware of patients' situations at the time of transition to hospice palliative care," "empathizing with patients and their families by putting oneself in the other's shoes," "providing patient and family-centered end-of-life care," "experiencing difficulties in practical tasks," and "striving to improve hospice service quality."
Conclusion: This study is significant in that it provides practical data for understanding the experiences of consultative hospice palliative care nurses caring for terminally ill patients. This could enhance our understanding of care solutions that effectively tackle the challenges consultative hospice palliative care nurses encounter while fulfilling their roles.
目的:本定性研究的目的是采用科莱兹的现象学研究方法来阐明和理解在临终关怀机构工作的临终关怀姑息治疗咨询护士的实践经验的本质:研究对象为韩国 S 市、I 市和 K 道的安宁疗护机构中工作 1 年以上的 15 名临终关怀姑息治疗咨询护士。研究人员通过 23 次深入访谈收集数据,并采用科莱兹的现象学定性方法对数据进行分析:结果:临终关怀姑息治疗咨询护士的实践经验被分为 5 个类别、10 个主题群和 25 个主题。这五个类别包括 "了解病人在转入安宁疗护姑息关怀时的情况"、"设身处地地同情病人及其家属"、"提供以病人和家属为中心的临终关怀"、"在实际工作中遇到困难 "和 "努力提高安宁疗护服务质量":这项研究的意义在于,它为了解临终关怀姑息关怀咨询护士护理临终患者的经验提供了实用数据。这可以加深我们对护理解决方案的理解,从而有效应对安宁疗护姑息关怀咨询护士在履行其职责时遇到的挑战。
{"title":"Clinical Experience of Nurses in a Consultative Hospice Palliative Care Service.","authors":"Sinyoung Kwon, Jinyee Byun","doi":"10.14475/jhpc.2024.27.1.31","DOIUrl":"10.14475/jhpc.2024.27.1.31","url":null,"abstract":"<p><strong>Purpose: </strong>The purpose of this qualitative study was to employ Colaizzi's phenomenological research method to elucidate and understand the essence of practical experiences among consultative hospice palliative care nurses working in hospice institutions.</p><p><strong>Methods: </strong>The participants in the study were 15 consultative hospice palliative care nurses with over 1 year of work experience in institutions located in S City, I City, and K Province in South Korea. Data were collected from 23 in-depth interviews and analyzed using Colaizzi's phenomenological qualitative method.</p><p><strong>Results: </strong>The practical experiences of consultative hospice palliative nurses were categorized into five categories, 10 theme clusters, and 25 themes. The five categories included \"being aware of patients' situations at the time of transition to hospice palliative care,\" \"empathizing with patients and their families by putting oneself in the other's shoes,\" \"providing patient and family-centered end-of-life care,\" \"experiencing difficulties in practical tasks,\" and \"striving to improve hospice service quality.\"</p><p><strong>Conclusion: </strong>This study is significant in that it provides practical data for understanding the experiences of consultative hospice palliative care nurses caring for terminally ill patients. This could enhance our understanding of care solutions that effectively tackle the challenges consultative hospice palliative care nurses encounter while fulfilling their roles.</p>","PeriodicalId":73780,"journal":{"name":"Journal of hospice and palliative care","volume":"27 1","pages":"31-44"},"PeriodicalIF":0.0,"publicationDate":"2024-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10911980/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140051248","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
This article underscores the importance of integrating comprehensive palliative care for noncancer patients who are undergoing hemodialysis, with an emphasis on the aging populations in Asian nations such as Taiwan, Japan, the Republic of Korea, and China. As the global demographic landscape shifts towards an aging society and healthcare continues to advance, a marked increase has been observed in patients undergoing hemodialysis who require palliative care. This necessitates an immediate paradigm shift to incorporate this care, addressing the intricate physical, psychosocial, and spiritual challenges faced by these individuals and their families. Numerous challenges impede the provision of effective palliative care, including difficulties in prognosis, delayed referrals, cultural misconceptions, lack of clinician confidence, and insufficient collaboration among healthcare professionals. The article proposes potential solutions, such as targeted training for clinicians, the use of telemedicine to facilitate shared decision-making, and the introduction of time-limited trials for dialysis to overcome these obstacles. The integration of palliative care into routine renal treatment and the promotion of transparent communication among healthcare professionals represent key strategies to enhance the quality of life and end-of-life care for people on hemodialysis. By embracing innovative strategies and fostering collaboration, healthcare providers can deliver more patient-centered, holistic care that meets the complex needs of seriously ill patients within an aging population undergoing hemodialysis.
{"title":"Palliative Care for Adult Patients Undergoing Hemodialysis in Asia: Challenges and Opportunities.","authors":"Wei-Min Chu, Hung-Bin Tsai, Yu-Chi Chen, Kuan-Yu Hung, Shao-Yi Cheng, Cheng-Pei Lin","doi":"10.14475/jhpc.2024.27.1.1","DOIUrl":"10.14475/jhpc.2024.27.1.1","url":null,"abstract":"<p><p>This article underscores the importance of integrating comprehensive palliative care for noncancer patients who are undergoing hemodialysis, with an emphasis on the aging populations in Asian nations such as Taiwan, Japan, the Republic of Korea, and China. As the global demographic landscape shifts towards an aging society and healthcare continues to advance, a marked increase has been observed in patients undergoing hemodialysis who require palliative care. This necessitates an immediate paradigm shift to incorporate this care, addressing the intricate physical, psychosocial, and spiritual challenges faced by these individuals and their families. Numerous challenges impede the provision of effective palliative care, including difficulties in prognosis, delayed referrals, cultural misconceptions, lack of clinician confidence, and insufficient collaboration among healthcare professionals. The article proposes potential solutions, such as targeted training for clinicians, the use of telemedicine to facilitate shared decision-making, and the introduction of time-limited trials for dialysis to overcome these obstacles. The integration of palliative care into routine renal treatment and the promotion of transparent communication among healthcare professionals represent key strategies to enhance the quality of life and end-of-life care for people on hemodialysis. By embracing innovative strategies and fostering collaboration, healthcare providers can deliver more patient-centered, holistic care that meets the complex needs of seriously ill patients within an aging population undergoing hemodialysis.</p>","PeriodicalId":73780,"journal":{"name":"Journal of hospice and palliative care","volume":"27 1","pages":"1-10"},"PeriodicalIF":0.0,"publicationDate":"2024-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10911979/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140051251","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2024-03-01DOI: 10.14475/jhpc.2024.27.1.21
Chesney Ward, Katherine Montgomery
Purpose: The purpose of this systematic review is to explore end-of-life (EOL) care planning and the impact of socioeconomic status (SES) among people who identify as Black or African American.
Methods: The Preferred Reporting Items for Systematic Reviews and Meta-analyses (PRISMA) were used to guide and inform this systematic review process. The following academic electronic databases with publications that reflected the interdisciplinary fields related to the research objective were searched APA PsycINFO, CINHAL, PubMed, Scopus, and Social Work Abstracts.
Results: After the authors conducted the search, 14 articles (from 13 studies) ultimately met the criteria for inclusion. The results substantiated significant concerns highlighted in previous literature regarding SES and its relation to EOL planning, but also revealed an absence of original work and interventions to increase engagement in EOL planning among Black and African American populations.
Conclusion: Black individuals deserve an equitable EOL experience. Researchers, practitioners, and policymakers need to move towards advocacy and action to meet this important need.
目的:本系统综述旨在探讨生命末期(EOL)护理规划以及社会经济地位(SES)对黑人或非裔美国人的影响:方法:本系统性综述采用了系统性综述和荟萃分析首选报告项目(PRISMA)作为指导和信息来源。检索了以下学术电子数据库中与研究目标相关的跨学科领域的出版物 APA PsycINFO、CINHAL、PubMed、Scopus 和 Social Work Abstracts:作者进行搜索后,最终有 14 篇文章(来自 13 项研究)符合纳入标准。研究结果证实了以往文献中强调的有关社会经济地位及其与临终规划关系的重要问题,但也显示出缺乏原创性工作和干预措施来提高黑人和非裔美国人对临终规划的参与度:黑人理应获得公平的临终关怀。研究人员、从业人员和政策制定者需要进行宣传并采取行动来满足这一重要需求。
{"title":"End-of-Life Planning and the Influence of Socioeconomic Status among Black Americans: A Systematic Review.","authors":"Chesney Ward, Katherine Montgomery","doi":"10.14475/jhpc.2024.27.1.21","DOIUrl":"10.14475/jhpc.2024.27.1.21","url":null,"abstract":"<p><strong>Purpose: </strong>The purpose of this systematic review is to explore end-of-life (EOL) care planning and the impact of socioeconomic status (SES) among people who identify as Black or African American.</p><p><strong>Methods: </strong>The Preferred Reporting Items for Systematic Reviews and Meta-analyses (PRISMA) were used to guide and inform this systematic review process. The following academic electronic databases with publications that reflected the interdisciplinary fields related to the research objective were searched APA PsycINFO, CINHAL, PubMed, Scopus, and Social Work Abstracts.</p><p><strong>Results: </strong>After the authors conducted the search, 14 articles (from 13 studies) ultimately met the criteria for inclusion. The results substantiated significant concerns highlighted in previous literature regarding SES and its relation to EOL planning, but also revealed an absence of original work and interventions to increase engagement in EOL planning among Black and African American populations.</p><p><strong>Conclusion: </strong>Black individuals deserve an equitable EOL experience. Researchers, practitioners, and policymakers need to move towards advocacy and action to meet this important need.</p>","PeriodicalId":73780,"journal":{"name":"Journal of hospice and palliative care","volume":"27 1","pages":"21-30"},"PeriodicalIF":0.0,"publicationDate":"2024-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10911982/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140051249","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}