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"It's Kind of Like Code-Switching": Black Older Adults' Experiences with a Voice Assistant for Health Information Seeking. “这有点像代码转换”:黑人老年人使用语音助手寻求健康信息的经历。
Pub Date : 2022-04-01 Epub Date: 2022-04-29 DOI: 10.1145/3491102.3501995
Christina N Harrington, Radhika Garg, Amanda Woodward, Dimitri Williams

Black older adults from lower socioeconomic environments are often neglected in health technology interventions. Voice assistants have a potential to make healthcare more accessible to older adults, yet, little is known about their experiences with this type of health information seeking, especially Black older adults. Through a three-phase exploratory study, we explored health information seeking with 30 Black older adults in lower-income environments to understand how they ask health-related questions, and their perceptions of the Google Home being used for that purpose. Through our analysis, we identified the health information needs and common search topics, and discussed the communication breakdowns and types of repair performed. We contribute an understanding of cultural code-switching that has to be done by these older adults when interacting with voice assistants, and the importance of such phenomenon when designing for historically excluded groups.

来自较低社会经济环境的黑人老年人往往在卫生技术干预中被忽视。语音助手有可能使老年人更容易获得医疗保健,然而,人们对他们在这类健康信息寻求方面的经验知之甚少,尤其是黑人老年人。通过一项三阶段的探索性研究,我们对30名低收入环境中的黑人老年人进行了健康信息搜索,以了解他们如何询问与健康相关的问题,以及他们对Google Home用于此目的的看法。通过分析,我们确定了健康信息需求和常见搜索主题,并讨论了通信故障和执行的修复类型。我们有助于理解这些老年人在与语音助手互动时必须进行的文化代码转换,以及在为历史上被排斥的群体设计时这种现象的重要性。
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引用次数: 34
"I Wanted to See How Bad it Was": Online Self-screening as a Critical Transition Point Among Young Adults with Common Mental Health Conditions. "我想看看情况有多糟糕":在线自我筛查是患有常见精神疾病的年轻人的关键过渡点。
Pub Date : 2022-04-01 Epub Date: 2022-04-29 DOI: 10.1145/3491102.3501976
Kaylee Payne Kruzan, Jonah Meyerhoff, Theresa Nguyen, David C Mohr, Madhu Reddy, Rachel Kornfield

Young adults have high rates of mental health conditions, yet they are the age group least likely to seek traditional treatment. They do, however, seek information about their mental health online, including by filling out online mental health screeners. To better understand online self-screening, and its role in help-seeking, we conducted focus groups with 50 young adults who voluntarily completed a mental health screener hosted on an advocacy website. We explored (1) catalysts for taking the screener, (2) anticipated outcomes, (3) reactions to the results, and (4) desired next steps. For many participants, the screener results validated their lived experiences of symptoms, but they were nevertheless unsure how to use the information to improve their mental health moving forward. Our findings suggest that online screeners can serve as a transition point in young people's mental health journeys. We discuss design implications for online screeners, post-screener feedback, and digital interventions broadly.

年轻人的心理健康问题发病率很高,但他们却是最不可能寻求传统治疗的年龄组。不过,他们确实会通过网络,包括填写在线心理健康筛查表来寻求有关自己心理健康的信息。为了更好地了解在线自我筛查及其在寻求帮助中的作用,我们与 50 名自愿填写了一个宣传网站上的心理健康筛查表的年轻人进行了焦点小组讨论。我们探讨了:(1)参加筛查的诱因;(2)预期结果;(3)对筛查结果的反应;(4)希望采取的下一步措施。对于许多参与者来说,筛查结果验证了他们在生活中的症状体验,但他们并不确定如何利用这些信息来改善自己的心理健康。我们的研究结果表明,在线筛查器可以作为年轻人心理健康历程中的一个过渡点。我们讨论了在线筛查器、筛查后反馈以及广泛的数字干预的设计意义。
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引用次数: 0
From Reflection to Action: Combining Machine Learning with Expert Knowledge for Nutrition Goal Recommendations. 从思考到行动:将机器学习与专家知识相结合,提出营养目标建议。
Pub Date : 2021-05-01 Epub Date: 2021-05-07 DOI: 10.1145/3411764.3445555
Elliot G Mitchell, Elizabeth M Heitkemper, Marissa Burgermaster, Matthew E Levine, Yishen Miao, Maria L Hwang, Pooja M Desai, Andrea Cassells, Jonathan N Tobin, Esteban G Tabak, David J Albers, Arlene M Smaldone, Lena Mamykina

Self-tracking can help personalize self-management interventions for chronic conditions like type 2 diabetes (T2D), but reflecting on personal data requires motivation and literacy. Machine learning (ML) methods can identify patterns, but a key challenge is making actionable suggestions based on personal health data. We introduce GlucoGoalie, which combines ML with an expert system to translate ML output into personalized nutrition goal suggestions for individuals with T2D. In a controlled experiment, participants with T2D found that goal suggestions were understandable and actionable. A 4-week in-the-wild deployment study showed that receiving goal suggestions augmented participants' self-discovery, choosing goals highlighted the multifaceted nature of personal preferences, and the experience of following goals demonstrated the importance of feedback and context. However, we identified tensions between abstract goals and concrete eating experiences and found static text too ambiguous for complex concepts. We discuss implications for ML-based interventions and the need for systems that offer more interactivity, feedback, and negotiation.

自我跟踪有助于对 2 型糖尿病(T2D)等慢性病进行个性化的自我管理干预,但对个人数据进行反思需要动力和素养。机器学习(ML)方法可以识别模式,但根据个人健康数据提出可行建议是一项关键挑战。我们介绍了 GlucoGoalie,它将 ML 与专家系统相结合,将 ML 输出转化为针对 T2D 患者的个性化营养目标建议。在一项对照实验中,患有 T2D 的参与者发现,目标建议是可以理解和执行的。一项为期四周的实地部署研究表明,接收目标建议能增强参与者的自我发现能力,选择目标凸显了个人偏好的多面性,而遵循目标的体验则证明了反馈和上下文的重要性。然而,我们发现抽象的目标和具体的饮食体验之间存在矛盾,并且发现静态文本对于复杂的概念过于模糊。我们讨论了基于 ML 的干预措施的意义,以及提供更多互动、反馈和协商的系统的必要性。
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引用次数: 0
"Taking care of myself as long as I can": How People with Dementia Configure Self-Management Systems. "尽我所能照顾自己":痴呆症患者如何配置自我管理系统。
Emma Dixon, Anne Marie Piper, Amanda Lazar

Self-management research in HCI has addressed a variety of conditions. Yet, this literature has largely focused on neurotypical populations and chronic conditions that can be managed, leaving open questions of what self-management might look like for populations with progressive cognitive impairment. Grounded in interviews with seventeen technology savvy people with mild to moderate dementia, our analysis reveals their use of technological and social resources as part of the work of self-management. We detail how participants design self-management systems to enable desired futures, function well in their social world, and maintain control. Our discussion broadens the notion of self-management to include future-oriented, sociotechnical, self-determinate design. We advocate for expanding the way technologists, designers, and HCI scholars view people with mild to moderate dementia to recognize them as inventive creators and capable actors in self-management.

人机交互领域的自我管理研究涉及多种疾病。然而,这些文献主要关注的是神经畸形人群和可以管理的慢性疾病,而对于逐渐出现认知障碍的人群来说,自我管理可能是什么样的,这还是个未知数。通过对 17 位精通技术的轻度至中度痴呆症患者进行访谈,我们的分析揭示了他们在自我管理工作中对技术和社会资源的使用。我们详细介绍了参与者如何设计自我管理系统,以实现理想的未来,在社会世界中发挥良好作用,并保持控制力。我们的讨论拓宽了自我管理的概念,使其包括面向未来的、社会技术的、自我决定的设计。我们主张扩大技术专家、设计师和人机交互学者对轻度至中度痴呆症患者的看法,承认他们是自我管理中富有创造力的创造者和有能力的行动者。
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引用次数: 0
A Review on Strategies for Data Collection, Reflection, and Communication in Eating Disorder Apps. 进食障碍应用中数据收集、反思和沟通策略综述
Anjali Devakumar, Jay Modh, Bahador Saket, Eric P S Baumer, Munmun De Choudhury
Eating disorders (EDs) constitute a mental illness with the highest mortality. Today, mobile health apps provide promising means to ED patients for managing their condition. Apps enable users to monitor their eating habits, thoughts, and feelings, and offer analytic insights for behavior change. However, not only have scholars critiqued the clinical validity of these apps, their underlying design principles are not well understood. Through a review of 34 ED apps, we uncovered 11 different data types ED apps collect, and 9 strategies they employ to support collection and reflection. Drawing upon personal health informatics and visualization frameworks, we found that most apps did not adhere to best practices on what and how data should be collected from and reflected to users, or how data-driven insights should be communicated. Our review offers suggestions for improving the design of ED apps such that they can be useful and meaningful in ED recovery.
饮食失调是死亡率最高的一种精神疾病。今天,移动健康应用程序为急诊科患者提供了很有前途的方法来管理他们的病情。应用程序使用户能够监控自己的饮食习惯、想法和感受,并为行为改变提供分析见解。然而,学者们不仅批评了这些应用程序的临床有效性,而且他们的基本设计原则也没有得到很好的理解。通过对34个ED应用程序的回顾,我们发现了ED应用程序收集的11种不同的数据类型,以及它们采用的9种策略来支持收集和反思。根据个人健康信息学和可视化框架,我们发现大多数应用程序都没有遵循最佳实践,即应该从用户那里收集和反映什么以及如何收集数据,或者应该如何传达数据驱动的见解。我们的研究为改进ED应用程序的设计提供了建议,使它们在ED恢复中有用和有意义。
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引用次数: 12
"They don't always think about that": Translational Needs in the Design of Personal Health Informatics Applications. “他们并不总是考虑到这一点”:个人健康信息应用设计中的转化需求。
Susanne Kirchner, Jessica Schroeder, James Fogarty, Sean A Munson

Personal health informatics continues to grow in both research and practice, revealing many challenges of designing applications that address people's needs in their health, everyday lives, and collaborations with clinicians. Research suggests strategies to address such challenges, but has struggled to translate these strategies into design practice. This study examines translation of insights from personal health informatics research into resources to support designers. Informed by a review of relevant literature, we present our development of a prototype set of design cards intended to support designers in re-thinking potential assumptions about personal health informatics. We examined our design cards in semi-structured interviews, first with 12 student designers and then with 12 health-focused professional designers and researchers. Our results and discussion reveal tensions and barriers designers encounter, the potential for translational resources to inform the design of health-related technologies, and a need to support designers in addressing challenges of knowledge, advocacy, and evidence in designing for health.

个人健康信息学在研究和实践中不断发展,揭示了设计应用程序解决人们在健康、日常生活和与临床医生合作方面的需求的许多挑战。研究人员提出了应对这些挑战的策略,但很难将这些策略转化为设计实践。本研究探讨如何将个人健康资讯研究的见解转化为资源,以支援设计人员。通过对相关文献的回顾,我们提出了一套设计卡片的原型,旨在支持设计师重新思考关于个人健康信息的潜在假设。我们在半结构化访谈中检查了我们的设计卡片,首先是12名学生设计师,然后是12名关注健康的专业设计师和研究人员。我们的结果和讨论揭示了设计师遇到的紧张和障碍,转化资源为健康相关技术设计提供信息的潜力,以及支持设计师应对健康设计中知识、宣传和证据方面的挑战的需求。
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引用次数: 7
Prototyping for Social Wellbeing with Early Social Media Users: Belonging, Experimentation, and Self-Care. 为早期社交媒体用户的社会福祉设计原型:归属感、实验和自我关怀。
Linda Charmaraman, Catherine Grevet Delcourt

Many 10-14 year olds are at the early stages of using social media, habits they develop on popular platforms can have lasting effects on their socio-emotional wellbeing. We led a remote innovation workshop with 23 middle schoolers on digital wellbeing, identity exploration, and computational concepts related to social computing. This workshop was a unique opportunity to reflect on emergent habits, discuss them with peers, and imagine oneself as an ICT innovator. Resulting themes related to participants' social wellbeing online included a) sense of belonging to communities of interest, friends, and family, b) self-care and social support strategies involving managing risks, control, and empathy, and c) experimentation while building self-confidence and bravely exploring audience reactions. Participants iteratively designed and tested a sandbox social network website, resulting in Social Sketch. Reflecting on our study, we describe the process for conceptualizing Social Sketch, and challenges in social media innovation with teenagers.

许多 10-14 岁的青少年正处于使用社交媒体的初期阶段,他们在流行平台上养成的习惯会对他们的社会情感健康产生持久的影响。我们为 23 名初中生举办了一次远程创新研讨会,内容涉及数字福祉、身份探索以及与社交计算相关的计算概念。这次研讨会为我们提供了一个独特的机会,让我们反思新出现的习惯,与同伴讨论这些习惯,并将自己想象成一名信息和通信技术创新者。与参与者的在线社会福祉相关的主题包括:a) 对兴趣社区、朋友和家人的归属感;b) 自我保健和社会支持策略,包括管理风险、控制和移情;c) 在建立自信和勇敢探索受众反应的同时进行尝试。参与者反复设计并测试了一个沙盒社交网络网站,最终形成了 "社交草图"。在反思我们的研究时,我们描述了 Social Sketch 的概念化过程,以及青少年社交媒体创新所面临的挑战。
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引用次数: 0
Studying the Formation of an Older Adult-Led Makerspace. 研究老年人主导的创客空间的形成。
Amanda Lazar, Alisha Pradhan, Ben Jelen, Katie A Siek, Alex Leitch

Makerspaces are being introduced in a wide variety of settings, including community settings such as schools and libraries. Older adults are one group for whom making agendas are being pursued, with envisioned outcomes such as supporting agency and well-being. However, research on making and DIY with older adults typically study individuals who are already engaged in making practices or bring individuals in to a technology environment that has already been created. In this paper, we study the older adult-driven formation of a makerspace in an independent living community. Through an ethnographically-informed approach, we studied the ways that individuals considered appropriate allocation of resources towards a makerspace, scoped activities, evaluated goals, and made trade-ofs. Our analysis is centered around describing the way that this makerspace formed as well as three ways that individuals made sense of the makerspace as the planning unfolded: the openness of a space that promises to cater to interests of the population; the promise of a makerspace to involve more residents in technology, but the need to obscure the technology to make it appealing; and a valuation of the return on investment for limited fnancial and space resources. Our discussion contributes to supporting and studying early adoption of technology by older adults, complicates visions of "making for all," and presents considerations regarding the often under-specifed community of a makerspace.

创客空间被引入到各种各样的环境中,包括学校和图书馆等社区环境。老年人是制定议程的一个群体,其设想的结果是支持机构和福祉。然而,针对老年人的制作和DIY研究通常是针对已经从事制作实践的个人,或者将个人带入已经创建的技术环境。本文以独立生活社区中老年人驱动的创客空间形成为研究对象。通过一种民族志信息方法,我们研究了个体考虑将资源适当分配给创客空间、确定活动范围、评估目标和做出权衡的方式。我们的分析集中在描述这个创客空间的形成方式,以及随着规划的展开,个人对创客空间的理解有三种方式:一个空间的开放性,承诺满足人们的兴趣;创客空间承诺让更多的居民参与技术,但需要模糊技术以使其具有吸引力;对有限的财政和空间资源的投资回报进行评估。我们的讨论有助于支持和研究老年人对技术的早期采用,使“为所有人制造”的愿景变得复杂,并提出了关于通常未明确定义的创客空间社区的考虑。
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引用次数: 9
"We have been magnified for years - Now you are under the microscope!": Co-researchers with Learning Disabilities Created an Online Survey to Challenge Public Understanding of Learning Disabilities. “多年来我们一直被放大——现在你在显微镜下!”:有学习障碍的共同研究人员创建了一项在线调查,以挑战公众对学习障碍的理解。
Pub Date : 2020-04-21 eCollection Date: 2020-04-01 DOI: 10.1145/3313831.3376278
Dorota Chapko, Pino Frumiento, Nalini Edwards, Lizzie Emeh, Donald Kennedy, David McNicholas, Michaela Overton, Mark Snead, Robyn Steward, Jenny M Sutton, Evie Jeffreys, Catherine Long, Jess Croll-Knight, Ben Connors, Sam Castell-Ward, David Coke, Bethany McPeake, William Renel, Chris McGinley, Anna Remington, Dora Whittuck, John Kieffer, Sarah Ewans, Mark Williams, Mick Grierson

Public attitudes towards learning disabilities (LDs) are generally reported as positive, inclusive and empathetic. However, these findings do not reflect the lived experiences of people with LDs. To shed light on this disparity, a team of co-researchers with LDs created the first online survey to challenge public understanding of LDs, asking questions in ways that are important to them and represent how they see themselves. Here, we describe and evaluate the process of creating an accessible survey platform and an online survey in a research team consisting of academic and non-academic professionals with and without LDs or autism. Through this inclusive research process, the co-designed survey met the expectations of the co-researchers and was well-received by the initial survey respondents. We reflect on the co-researchers' perspectives following the study completion, and consider the difficulties and advantages we encountered deploying such approaches and their potential implications on future survey data analysis.

公众对学习障碍的态度通常是积极、包容和共情的。然而,这些发现并不能反映ld患者的生活经历。为了揭示这种差异,一组与ld合作的研究人员创建了第一个在线调查,以挑战公众对ld的理解,以对他们重要的方式提出问题,并代表他们如何看待自己。在这里,我们描述并评估了一个由学术和非学术专业人员组成的研究团队创建一个可访问的调查平台和在线调查的过程,这些专业人员有或没有ld或自闭症。通过这种包容性的研究过程,共同设计的调查达到了共同研究人员的期望,并得到了最初调查受访者的好评。在研究完成后,我们反思了共同研究者的观点,并考虑了我们在使用这些方法时遇到的困难和优势,以及它们对未来调查数据分析的潜在影响。
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引用次数: 6
Approach Matters: Linking Practitioner Approaches to Technology Design for People with Dementia. 方法很重要:将从业人员的方法与痴呆症患者的技术设计联系起来。
Emma Dixon, Amanda Lazar

Technology design for dementia is an active and growing area. Though work to date has largely addressed functional needs, there is a growing recognition of the importance of supporting meaningful activities. However, technology for active, rather than passive, engagement is relatively novel beyond specific applications (e.g., music or reminiscence therapy). To better understand how to support active engagement of people with dementia in activities, we interviewed nineteen practitioners. Our findings reveal differing approaches to making sense of the actions of people with dementia, as well as to engaging them in activities. We discuss the importance of tracing epistemological understandings of dementia to different configurations of technology for people living with dementia and provide a practical guide to support designers to do so. Finally, we discuss considerations for the design of dementia technologies around facilitating self-actualization and managing emotional exposure for care-providers.

痴呆症技术设计是一个活跃且不断发展的领域。虽然迄今为止的工作主要是满足功能性需求,但人们越来越认识到支持有意义活动的重要性。然而,除了特定应用(如音乐或回忆疗法)之外,用于主动而非被动参与的技术还相对比较新颖。为了更好地了解如何支持痴呆症患者积极参与活动,我们采访了 19 位从业人员。我们的调查结果揭示了在理解痴呆症患者的行为以及让他们参与活动方面的不同方法。我们讨论了从对痴呆症的认识论理解出发,为痴呆症患者设计不同配置的技术的重要性,并提供了一份实用指南,以支持设计者开展这项工作。最后,我们围绕促进自我实现和管理护理人员的情绪暴露,讨论了痴呆症技术设计的注意事项。
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引用次数: 0
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Proceedings of the SIGCHI conference on human factors in computing systems. CHI Conference
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