Pub Date : 2006-12-01DOI: 10.1352/0047-6765(2006)44[450:TROPTE]2.0.CO;2
K Charlie Lakin, Robert Prouty, Kathryn Coucouvanis
{"title":"Twenty-year retrospective on proposals to eliminate the \"institutional bias\" in Medicaid for persons with ID/DD.","authors":"K Charlie Lakin, Robert Prouty, Kathryn Coucouvanis","doi":"10.1352/0047-6765(2006)44[450:TROPTE]2.0.CO;2","DOIUrl":"https://doi.org/10.1352/0047-6765(2006)44[450:TROPTE]2.0.CO;2","url":null,"abstract":"","PeriodicalId":76152,"journal":{"name":"Mental retardation","volume":"44 6","pages":"450-4"},"PeriodicalIF":0.0,"publicationDate":"2006-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1352/0047-6765(2006)44[450:TROPTE]2.0.CO;2","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"26410897","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2006-10-01DOI: 10.1352/0047-6765(2006)44[353:THCIOE]2.0.CO;2
Kevin K Walsh, Theodore A Kastner
We reviewed a Mental Retardation article by Conroy et al. (2003) on consumer outcomes following the closure of the Hissom Center in Oklahoma. In this article the authors misconstrued their 254 subjects, implying they are representative of the Hissom Focus Class while failing to account for 128 subjects included in an earlier analysis. We found the research to be seriously compromised by data collection problems and discrepancies between reported findings and those obtained when the analyses were replicated. Problems ranged from those that seriously compromise the findings (such as the sample) to other problems in basic data management, transcription, and analysis that, when taken together, compromise the integrity of the findings, lead to inappropriate interpretations, and give rise to misleading conclusions that do not follow from the data.
{"title":"The Hissom closure in Oklahoma: errors and interpretation problems in Conroy et al. (2003).","authors":"Kevin K Walsh, Theodore A Kastner","doi":"10.1352/0047-6765(2006)44[353:THCIOE]2.0.CO;2","DOIUrl":"https://doi.org/10.1352/0047-6765(2006)44[353:THCIOE]2.0.CO;2","url":null,"abstract":"<p><p>We reviewed a Mental Retardation article by Conroy et al. (2003) on consumer outcomes following the closure of the Hissom Center in Oklahoma. In this article the authors misconstrued their 254 subjects, implying they are representative of the Hissom Focus Class while failing to account for 128 subjects included in an earlier analysis. We found the research to be seriously compromised by data collection problems and discrepancies between reported findings and those obtained when the analyses were replicated. Problems ranged from those that seriously compromise the findings (such as the sample) to other problems in basic data management, transcription, and analysis that, when taken together, compromise the integrity of the findings, lead to inappropriate interpretations, and give rise to misleading conclusions that do not follow from the data.</p>","PeriodicalId":76152,"journal":{"name":"Mental retardation","volume":"44 5","pages":"353-69"},"PeriodicalIF":0.0,"publicationDate":"2006-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1352/0047-6765(2006)44[353:THCIOE]2.0.CO;2","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"26309737","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2006-10-01DOI: 10.1352/0047-6765(2006)44[375:BAIODA]2.0.CO;2
David Felce
{"title":"Both accurate interpretation of deinstitutionalization and a postinstitutional research agenda are needed.","authors":"David Felce","doi":"10.1352/0047-6765(2006)44[375:BAIODA]2.0.CO;2","DOIUrl":"https://doi.org/10.1352/0047-6765(2006)44[375:BAIODA]2.0.CO;2","url":null,"abstract":"","PeriodicalId":76152,"journal":{"name":"Mental retardation","volume":"44 5","pages":"375-82"},"PeriodicalIF":0.0,"publicationDate":"2006-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1352/0047-6765(2006)44[375:BAIODA]2.0.CO;2","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"26309739","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2006-10-01DOI: 10.1352/0047-6765(2006)44[344:IAAUEO]2.0.CO;2
Diane Casale-Giannola, Michele Wilson Kamens
For young adults with developmental disabilities, postsecondary experiences on a university campus with same-age peers can provide opportunities for learning and social integration. Through the collaborative support of university instructors, a preservice teacher, and her mother, a young woman with Down syndrome was successfully included in a speech communications course at a 4-year, private university. Our purpose here was to explore the impact of this experience on the student, her classmates, and preservice teacher who offered peer support. The experience provided opportunities for interaction with age-appropriate peers and was a positive learning experience for all participants. Challenges emerged related to assessment, expectations, and building relationships. Implications for potential inclusive transition opportunities at the university were discussed.
{"title":"Inclusion at a university: experiences of a young woman with Down syndrome.","authors":"Diane Casale-Giannola, Michele Wilson Kamens","doi":"10.1352/0047-6765(2006)44[344:IAAUEO]2.0.CO;2","DOIUrl":"https://doi.org/10.1352/0047-6765(2006)44[344:IAAUEO]2.0.CO;2","url":null,"abstract":"<p><p>For young adults with developmental disabilities, postsecondary experiences on a university campus with same-age peers can provide opportunities for learning and social integration. Through the collaborative support of university instructors, a preservice teacher, and her mother, a young woman with Down syndrome was successfully included in a speech communications course at a 4-year, private university. Our purpose here was to explore the impact of this experience on the student, her classmates, and preservice teacher who offered peer support. The experience provided opportunities for interaction with age-appropriate peers and was a positive learning experience for all participants. Challenges emerged related to assessment, expectations, and building relationships. Implications for potential inclusive transition opportunities at the university were discussed.</p>","PeriodicalId":76152,"journal":{"name":"Mental retardation","volume":"44 5","pages":"344-52"},"PeriodicalIF":0.0,"publicationDate":"2006-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1352/0047-6765(2006)44[344:IAAUEO]2.0.CO;2","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"26309736","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2006-10-01DOI: 10.1352/0047-6765(2006)44[322:PDISGF]2.0.CO;2
Charles Antaki, W M L Finlay, Emma Sheridan, Treena Jingree, Chris Walton
Service-user groups whose goals include the promotion of self-advocacy for people with an intellectual disability aim, among other things, to encourage service users to identify problems and find solutions. However, service users' contributions to group sessions may not always be full and spontaneous. This presents a dilemma to the facilitator. In two case studies, we identify two ways in which the dilemma is managed. In one case, the facilitator takes an initiating role in each stage of a decision-making cycle. In the other, the facilitator short-circuits the decision-making cycle. The former seems to be closer to the philosophy of self-advocacy, but both nevertheless result in clients not taking the initiative and arguably disempowers them.
{"title":"Producing decisions in service-user groups for people with an intellectual disability: two contrasting facilitator styles.","authors":"Charles Antaki, W M L Finlay, Emma Sheridan, Treena Jingree, Chris Walton","doi":"10.1352/0047-6765(2006)44[322:PDISGF]2.0.CO;2","DOIUrl":"https://doi.org/10.1352/0047-6765(2006)44[322:PDISGF]2.0.CO;2","url":null,"abstract":"<p><p>Service-user groups whose goals include the promotion of self-advocacy for people with an intellectual disability aim, among other things, to encourage service users to identify problems and find solutions. However, service users' contributions to group sessions may not always be full and spontaneous. This presents a dilemma to the facilitator. In two case studies, we identify two ways in which the dilemma is managed. In one case, the facilitator takes an initiating role in each stage of a decision-making cycle. In the other, the facilitator short-circuits the decision-making cycle. The former seems to be closer to the philosophy of self-advocacy, but both nevertheless result in clients not taking the initiative and arguably disempowers them.</p>","PeriodicalId":76152,"journal":{"name":"Mental retardation","volume":"44 5","pages":"322-43"},"PeriodicalIF":0.0,"publicationDate":"2006-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1352/0047-6765(2006)44[322:PDISGF]2.0.CO;2","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"26251555","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2006-10-01DOI: 10.1352/0047-6765(2006)44[315:CAAIAV]2.0.CO;2
Charlotte Brownlow, Lindsay O'Dell
Excerpts from current research with people who have autism using online discussion groups are provided. Two major themes emerged that focus on "expert" knowledge of autism and identity. In contrast to the image of people with autism being unable to speak for themselves, our research on chat rooms has demonstrated that these individuals are finding a voice in an online environment, and the Internet may be a powerful tool in enabling this voice to be heard. The challenge that experiential knowledge poses to scientific knowledge is discussed in light of diagnosis, and the positive nature of an autism spectrum (AS) identity is highlighted as a common thread in discussions.
{"title":"Constructing an autistic identity: AS voices online.","authors":"Charlotte Brownlow, Lindsay O'Dell","doi":"10.1352/0047-6765(2006)44[315:CAAIAV]2.0.CO;2","DOIUrl":"https://doi.org/10.1352/0047-6765(2006)44[315:CAAIAV]2.0.CO;2","url":null,"abstract":"<p><p>Excerpts from current research with people who have autism using online discussion groups are provided. Two major themes emerged that focus on \"expert\" knowledge of autism and identity. In contrast to the image of people with autism being unable to speak for themselves, our research on chat rooms has demonstrated that these individuals are finding a voice in an online environment, and the Internet may be a powerful tool in enabling this voice to be heard. The challenge that experiential knowledge poses to scientific knowledge is discussed in light of diagnosis, and the positive nature of an autism spectrum (AS) identity is highlighted as a common thread in discussions.</p>","PeriodicalId":76152,"journal":{"name":"Mental retardation","volume":"44 5","pages":"315-21"},"PeriodicalIF":0.0,"publicationDate":"2006-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1352/0047-6765(2006)44[315:CAAIAV]2.0.CO;2","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"26251553","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2006-10-01DOI: 10.1352/0047-6765(2006)44[388:IIROAE]2.0.CO;2
Robert Prouty, K Charlie Lakin, Kathryn Coucouvanis
{"title":"Increases in recipients of and expenditures for Medicaid home and community based services continued in 2005.","authors":"Robert Prouty, K Charlie Lakin, Kathryn Coucouvanis","doi":"10.1352/0047-6765(2006)44[388:IIROAE]2.0.CO;2","DOIUrl":"https://doi.org/10.1352/0047-6765(2006)44[388:IIROAE]2.0.CO;2","url":null,"abstract":"","PeriodicalId":76152,"journal":{"name":"Mental retardation","volume":"44 5","pages":"388-90"},"PeriodicalIF":0.0,"publicationDate":"2006-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1352/0047-6765(2006)44[388:IIROAE]2.0.CO;2","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"26309741","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2006-10-01DOI: 10.1352/0047-6765(2006)44[372:LDFTCO]2.0.CO;2
Glenn T Fujiura
{"title":"Lessons drawn from the critique of the Hissom closure evaluation.","authors":"Glenn T Fujiura","doi":"10.1352/0047-6765(2006)44[372:LDFTCO]2.0.CO;2","DOIUrl":"https://doi.org/10.1352/0047-6765(2006)44[372:LDFTCO]2.0.CO;2","url":null,"abstract":"","PeriodicalId":76152,"journal":{"name":"Mental retardation","volume":"44 5","pages":"372-5"},"PeriodicalIF":0.0,"publicationDate":"2006-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1352/0047-6765(2006)44[372:LDFTCO]2.0.CO;2","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"26309738","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Pub Date : 2006-10-01DOI: 10.1352/0047-6765(2006)44[370:TCOCEA]2.0.CO;2
Steven J. Taylor, M. W. Krauss
{"title":"Introduction to Commentaries: The Editors' Perspective","authors":"Steven J. Taylor, M. W. Krauss","doi":"10.1352/0047-6765(2006)44[370:TCOCEA]2.0.CO;2","DOIUrl":"https://doi.org/10.1352/0047-6765(2006)44[370:TCOCEA]2.0.CO;2","url":null,"abstract":"","PeriodicalId":76152,"journal":{"name":"Mental retardation","volume":"44 1","pages":"370-371"},"PeriodicalIF":0.0,"publicationDate":"2006-10-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1352/0047-6765(2006)44[370:TCOCEA]2.0.CO;2","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"66564542","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}